GDPR and Biobanking

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Author :
Publisher : Springer Nature
ISBN 13 : 3030493881
Total Pages : 432 pages
Book Rating : 4.0/5 (34 download)

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Book Synopsis GDPR and Biobanking by : Jane Reichel

Download or read book GDPR and Biobanking written by Jane Reichel and published by Springer Nature. This book was released on 2021 with total page 432 pages. Available in PDF, EPUB and Kindle. Book excerpt: Part I Setting the scene -- Introduction: Individual rights, the public interest and biobank research 4000 (8) -- Genetic data and privacy protection -- Part II GDPR and European responses -- Biobank governance and the impact of the GDPR on the regulation of biobank research -- Controller' and processor's responsibilities in biobank research under GDPR -- Individual rights in biobank research under GDPR -- Safeguards and derogations relating to processing for archiving purposes in the scientific purposes: Article 89 analysis for biobank research -- A Pan-European analysis of Article 89 implementation and national biobank research regulations -- EEA, Switzerland analysis of GDPR requirements and national biobank research regulations -- Part III National insights in biobank regulatory frameworks -- Selected 10-15 countries for reports: Germany -- Greece -- France -- Finland -- Sweden -- United Kingdom -- Part IV Conclusions -- Reflections on individual rights, the public interest and biobank research, ramifications and ways forward. .

African Data Privacy Laws

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Author :
Publisher : Springer
ISBN 13 : 3319473174
Total Pages : 380 pages
Book Rating : 4.3/5 (194 download)

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Book Synopsis African Data Privacy Laws by : Alex B. Makulilo

Download or read book African Data Privacy Laws written by Alex B. Makulilo and published by Springer. This book was released on 2016-11-30 with total page 380 pages. Available in PDF, EPUB and Kindle. Book excerpt: This volume presents analyses of data protection systems and of 26 jurisdictions with data protection legislation in Africa, as well as additional selected countries without comprehensive data protection laws. In addition, it covers all sub-regional and regional data privacy policies in Africa. Apart from analysing data protection law, the book focuses on the socio-economic contexts, political settings and legal culture in which such laws developed and operate. It bases its analyses on the African legal culture and comparative international data privacy law. In Africa protection of personal data, the central preoccupation of data privacy laws, is on the policy agenda. The recently adopted African Union Cyber Security and Data Protection Convention 2014, which is the first and currently the only single treaty across the globe to address data protection outside Europe, serves as an illustration of such interest. In addition, there are data protection frameworks at sub-regional levels for West Africa, East Africa and Southern Africa. Similarly, laws on protection of personal data are increasingly being adopted at national plane. Yet despite these data privacy law reforms there is very little literature about data privacy law in Africa and its recent developments. This book fills that gap.

Clinical Research Monitoring: A European Approach

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Publisher : World Scientific
ISBN 13 : 9813223197
Total Pages : 535 pages
Book Rating : 4.8/5 (132 download)

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Book Synopsis Clinical Research Monitoring: A European Approach by : A A Van Dooren

Download or read book Clinical Research Monitoring: A European Approach written by A A Van Dooren and published by World Scientific. This book was released on 2017-09-21 with total page 535 pages. Available in PDF, EPUB and Kindle. Book excerpt: Clinical research monitoring is a vital aspect of Good Clinical Practice (GCP). Its principles are straightforward: they are aimed at protecting those subjects that participate in the trial, and their goal is to provide reliable data that will contribute to the safety and efficacy of the intervention under study, i.e. to support the health of future subjects. However, the practical implementation of these major goals is complicated. Various mishaps have happened in recent history, and an extensive set of international rules and regulations have emerged.This book gives a thorough survey of the ethical and legal aspects of clinical research and provides a detailed guideline for implementing these aspects into the practice of studying investigational medicinal products in humans, in the European context. It can be used as a study aid for starting monitors, a reference guide for more experienced monitors, and anyone else involved in clinical research.Related Link(s)

Descriptive Translation Studies and Beyond

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Publisher : John Benjamins Publishing
ISBN 13 : 9027221456
Total Pages : 320 pages
Book Rating : 4.0/5 (272 download)

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Book Synopsis Descriptive Translation Studies and Beyond by : Gideon Toury

Download or read book Descriptive Translation Studies and Beyond written by Gideon Toury and published by John Benjamins Publishing. This book was released on 1995 with total page 320 pages. Available in PDF, EPUB and Kindle. Book excerpt: A replacement of the author's well-known book on Translation Theory, In Search of a Theory of Translation (1980), this book makes a case for Descriptive Translation Studies as a scholarly activity as well as a branch of the discipline, having immediate consequences for issues of both a theoretical and applied nature. Methodological discussions are complemented by an assortment of case studies of various scopes and levels, with emphasis on the need to contextualize whatever one sets out to focus on.Part One deals with the position of descriptive studies within TS and justifies the author's choice to devote a whole book to the subject. Part Two gives a detailed rationale for descriptive studies in translation and serves as a framework for the case studies comprising Part Three. Concrete descriptive issues are here tackled within ever growing contexts of a higher level: texts and modes of translational behaviour — in the appropriate cultural setup; textual components — in texts, and through these texts, in cultural constellations. Part Four asks the question: What is knowledge accumulated through descriptive studies performed within one and the same framework likely to yield in terms of theory and practice?This is an excellent book for higher-level translation courses.

The Privacy Fallacy

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Publisher : Cambridge University Press
ISBN 13 : 1009002546
Total Pages : 261 pages
Book Rating : 4.0/5 (9 download)

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Book Synopsis The Privacy Fallacy by : Ignacio Cofone

Download or read book The Privacy Fallacy written by Ignacio Cofone and published by Cambridge University Press. This book was released on 2023-11-30 with total page 261 pages. Available in PDF, EPUB and Kindle. Book excerpt: Our privacy is besieged by tech companies. Companies can do this because our laws are built on outdated ideas that trap lawmakers, regulators, and courts into wrong assumptions about privacy, resulting in ineffective legal remedies to one of the most pressing concerns of our generation. Drawing on behavioral science, sociology, and economics, Ignacio Cofone challenges existing laws and reform proposals and dispels enduring misconceptions about data-driven interactions. This exploration offers readers a holistic view of why current laws and regulations fail to protect us against corporate digital harms, particularly those created by AI. Cofone then proposes a better response: meaningful accountability for the consequences of corporate data practices, which ultimately entails creating a new type of liability that recognizes the value of privacy.

Artificial Intelligence and International Law

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Publisher : Springer Nature
ISBN 13 : 9811914966
Total Pages : 264 pages
Book Rating : 4.8/5 (119 download)

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Book Synopsis Artificial Intelligence and International Law by : Jaemin Lee

Download or read book Artificial Intelligence and International Law written by Jaemin Lee and published by Springer Nature. This book was released on 2022-05-10 with total page 264 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book examines the timely issue of artificial intelligence (AI) and law. At this moment, AI is rapidly developing and being utilized in many different sectors. Meanwhile, the rise of AI raises complex questions and poses new challenges—new products and services involving AI will require new regulations and standards to minimize potential negative side-effects and maximize the benefits of this new technology, both within domestic law and international law. Thus, this book focuses on the impact of AI on international law and seeks ways to develop international law frameworks to adequately address the challenges of the AI era. In this context, new forms of inter-state conflicts and emergence of new subjects and objects of international law are discussed along with relevant up-to-date developments in major jurisdictions. Issues arising from the advent of AI relating to state sovereignty, state responsibility, dispute settlements, and north-south divide are also considered.

Revolutionizing Tropical Medicine

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Publisher : John Wiley & Sons
ISBN 13 : 1119282659
Total Pages : 793 pages
Book Rating : 4.1/5 (192 download)

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Book Synopsis Revolutionizing Tropical Medicine by : Kerry Atkinson

Download or read book Revolutionizing Tropical Medicine written by Kerry Atkinson and published by John Wiley & Sons. This book was released on 2019-05-23 with total page 793 pages. Available in PDF, EPUB and Kindle. Book excerpt: A comprehensive resource describing innovative technologies and digital health tools that can revolutionize the delivery of health care in low- to middle-income countries, particularly in remote rural impoverished communities Revolutionizing Tropical Medicine offers an up-to-date guide for healthcare and other professionals working in low-resource countries where access to health care facilities for diagnosis and treatment is challenging. Rather than suggesting the expensive solution of building new bricks and mortar clinics and hospitals and increasing the number of doctors and nurses in these deprived areas, the authors propose a complete change of mindset. They outline a number of ideas for improving healthcare including rapid diagnostic testing for infectious and non-infectious diseases at a point-of-care facility, together with low cost portable imaging devices. In addition, the authors recommend a change in the way in which health care is delivered. This approach requires task-shifting within the healthcare provision system so that nurses, laboratory technicians, pharmacists and others are trained in the newly available technologies, thus enabling faster and more appropriate triage for people requiring medical treatment. This text: Describes the current burden of communicable and non-communicable diseases in low- to middle-income countries throughout the world Describes the major advances in healthcare outcomes in low-to middle-income countries derived from implementation of the United Nations/World Health Organisation’s 2000 Millennium Development Goals Provides a review of inexpensive rapid diagnostic point-of-care tests for infectious diseases in low-resource countries, particularly for people living in remote rural areas Provides a review of other rapid point-of-care services for assessing hematological function, biochemical function, renal function, hepatic function and status including hepatitis, acid-base balance, sickle cell disease, severe acute malnutrition and spirometry Explores the use of low-cost portable imaging devices for use in remote rural areas including a novel method of examining the optic fundus using a smartphone and the extensive value of portable ultrasound scanning when x-ray facilities are not available Describes the use of telemedicine in the clinical management of both children and adults in remote rural settings Looks to the future of clinical management in remote impoverished rural settings using nucleic acid identification of pathogens, the use of nanoparticles for water purification, the use of drones, the use of pulse oximetry and the use of near-infrared spectroscopy Finally, it assesses the potential for future healthcare improvement in impoverished areas and how the United Nations/World Health Organization 2015 Sustainable Development Goals are approaching this. Written for physicians, infectious disease specialists, pathologists, radiologists, nurses, pharmacists and other health care workers, as well as government healthcare managers, Revolutionizing Tropical Medicine is a new up-to-date essential and realistic guide to treating and diagnosing patients in low-resource tropical countries based on new technologies.

Data Privacy Law

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Author :
Publisher : MICHIE
ISBN 13 :
Total Pages : 520 pages
Book Rating : 4.F/5 ( download)

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Book Synopsis Data Privacy Law by : Paul M. Schwartz

Download or read book Data Privacy Law written by Paul M. Schwartz and published by MICHIE. This book was released on 1996 with total page 520 pages. Available in PDF, EPUB and Kindle. Book excerpt: Studies data privacy law in the USA in the light of the principles of the EC Directive on the Protection of Individuals with Regard to the Processing of Personal Data and on the Free Movement of Such Data (1995).

Protecting Genetic Privacy in Biobanking through Data Protection Law

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Author :
Publisher : Oxford University Press
ISBN 13 : 0192650394
Total Pages : 305 pages
Book Rating : 4.1/5 (926 download)

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Book Synopsis Protecting Genetic Privacy in Biobanking through Data Protection Law by : Dara Hallinan

Download or read book Protecting Genetic Privacy in Biobanking through Data Protection Law written by Dara Hallinan and published by Oxford University Press. This book was released on 2021-03-11 with total page 305 pages. Available in PDF, EPUB and Kindle. Book excerpt: Biobanks are critical infrastructure for medical research but they are also the subject of considerable ethical and legal uncertainty. Given that biobanks process large quantities of genomic data, questions have emerged as to how genetic privacy should be protected. What types of genetic privacy rights and rights holders should be protected and to what extent? Since 25th May 2018 the General Data Protection Regulation (GDPR) has applied and now occupies a key position in the European legal framework for the regulation of biobanking. This book takes an in-depth look at the function, problems, and opportunities presented by European data protection law under the GDPR as a framework for the protection of genetic privacy in biobanking in Europe. Hallinan argues that the substantive framework presented by the GDPR already offers an admirable base-line level of protection for the range of genetic privacy rights engaged by biobanking. The book further argues that, whilst numerous problems with this standard of protection are indeed identifiable, the GDPR offers the flexibility to accommodate solutions to these problems, as well as the procedural mechanisms to realise these solutions.

Magbook General Science 2021

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Publisher : Arihant Publications India limited
ISBN 13 : 9324199331
Total Pages : 273 pages
Book Rating : 4.3/5 (241 download)

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Book Synopsis Magbook General Science 2021 by : Poonam Singh

Download or read book Magbook General Science 2021 written by Poonam Singh and published by Arihant Publications India limited. This book was released on 2020-07-30 with total page 273 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Genomic Data Sharing

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Publisher : Academic Press
ISBN 13 : 0128198044
Total Pages : 232 pages
Book Rating : 4.1/5 (281 download)

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Book Synopsis Genomic Data Sharing by : Jennifer B. Mccormick

Download or read book Genomic Data Sharing written by Jennifer B. Mccormick and published by Academic Press. This book was released on 2022-11-29 with total page 232 pages. Available in PDF, EPUB and Kindle. Book excerpt: Genomic Data Sharing: Case Studies, Challenges, and Opportunities for Precision Medicine provides a comprehensive overview of current and emerging issues in genomic data sharing. In this book, international leaders in genomic data examine these issues in-depth, offering practical case studies that highlight key successes, challenges and opportunities. Sections discuss the eMERGE Network, Undiagnosed Disease Network, Vanderbilt Biobank, Marshfield Clinic Biobank, Minnesota Authorization, Rochester Epidemiology Project, NIH sponsored biobanks, GINA, and Global Alliance for Genomics and Health (GA4GH). In addition to these perspectives from the frontlines, the book also provides succinct overviews of ethical, legal, social and IT challenges.Clinician investigators, clinicians affiliated with academic medical centers, policymakers and regulators will also gain insights that will allow them to navigate the increasingly complex ethical, social and clinical landscape of genomic data sharing. - Covers both technical and ELSI (ethical, legal, and social implications) perspectives on genomic data sharing - Includes applied case studies of existing genomic data sharing consortia, including the eMERGE Network, Undiagnosed Disease Network, and the Global Alliance for Genomics and Health (GA4GH), among others - Features chapter contributions from international leaders in genomic data sharing

Mastering the Game:

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Publisher : WIPO
ISBN 13 :
Total Pages : 378 pages
Book Rating : 4./5 ( download)

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Book Synopsis Mastering the Game: by : World Intellectual Property Organization

Download or read book Mastering the Game: written by World Intellectual Property Organization and published by WIPO. This book was released on with total page 378 pages. Available in PDF, EPUB and Kindle. Book excerpt: “Mastering the Game” provides professionals in the videogames industry with practical insights and guidance on legal and business issues related to the use of intellectual property protection in this area. The training material takes the reader through all stages of the game development and distribution process pointing out the role of intellectual property in relation to the various uses of the content.

Data Protection and Privacy, Volume 11

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Publisher : Bloomsbury Publishing
ISBN 13 : 1509926216
Total Pages : 343 pages
Book Rating : 4.5/5 (99 download)

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Book Synopsis Data Protection and Privacy, Volume 11 by : Ronald Leenes

Download or read book Data Protection and Privacy, Volume 11 written by Ronald Leenes and published by Bloomsbury Publishing. This book was released on 2018-12-13 with total page 343 pages. Available in PDF, EPUB and Kindle. Book excerpt: The subjects of Privacy and Data Protection are more relevant than ever, and especially since 25 May 2018, when the European General Data Protection Regulation became enforceable. This volume brings together papers that offer conceptual analyses, highlight issues, propose solutions, and discuss practices regarding privacy and data protection. It is one of the results of the eleventh annual International Conference on Computers, Privacy, and Data Protection, CPDP 2018, held in Brussels in January 2018. The book explores the following topics: biometrics and data protection in criminal justice processing, privacy, discrimination and platforms for men who have sex with men, mitigation through data protection instruments of unfair inequalities as a result of machine learning, privacy and human-robot interaction in robotized healthcare, privacy-by-design, personal data protection of deceased data subjects, large-scale face databases and the GDPR, the new Europol regulation, rethinking trust in the Internet of Things, fines under the GDPR, data analytics and the GDPR, and the essence of the right to the protection of personal data. This interdisciplinary book was written while the reality of the General Data Protection Regulation 2016/679 was becoming clear. It discusses open issues and daring and prospective approaches. It will serve as an insightful resource for readers with an interest in computers, privacy and data protection.

Data Protection in the Internet

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Publisher : Springer Nature
ISBN 13 : 3030280497
Total Pages : 540 pages
Book Rating : 4.0/5 (32 download)

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Book Synopsis Data Protection in the Internet by : Dário Moura Vicente

Download or read book Data Protection in the Internet written by Dário Moura Vicente and published by Springer Nature. This book was released on 2019-12-01 with total page 540 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book identifies and explains the different national approaches to data protection – the legal regulation of the collection, storage, transmission and use of information concerning identified or identifiable individuals – and determines the extent to which they could be harmonised in the foreseeable future. In recent years, data protection has become a major concern in many countries, as well as at supranational and international levels. In fact, the emergence of computing technologies that allow lower-cost processing of increasing amounts of information, associated with the advent and exponential use of the Internet and other communication networks and the widespread liberalization of the trans-border flow of information have enabled the large-scale collection and processing of personal data, not only for scientific or commercial uses, but also for political uses. A growing number of governmental and private organizations now possess and use data processing in order to determine, predict and influence individual behavior in all fields of human activity. This inevitably entails new risks, from the perspective of individual privacy, but also other fundamental rights, such as the right not to be discriminated against, fair competition between commercial enterprises and the proper functioning of democratic institutions. These phenomena have not been ignored from a legal point of view: at the national, supranational and international levels, an increasing number of regulatory instruments – including the European Union’s General Data Protection Regulation applicable as of 25 May 2018 – have been adopted with the purpose of preventing personal data misuse. Nevertheless, distinct national approaches still prevail in this domain, notably those that separate the comprehensive and detailed protective rules adopted in Europe since the 1995 Directive on the processing of personal data from the more fragmented and liberal attitude of American courts and legislators in this respect. In a globalized world, in which personal data can instantly circulate and be used simultaneously in communications networks that are ubiquitous by nature, these different national and regional approaches are a major source of legal conflict.

Distributed Computing and Artificial Intelligence, 20th International Conference

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Publisher : Springer Nature
ISBN 13 : 3031383338
Total Pages : 387 pages
Book Rating : 4.0/5 (313 download)

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Book Synopsis Distributed Computing and Artificial Intelligence, 20th International Conference by : Sascha Ossowski

Download or read book Distributed Computing and Artificial Intelligence, 20th International Conference written by Sascha Ossowski and published by Springer Nature. This book was released on 2023-07-20 with total page 387 pages. Available in PDF, EPUB and Kindle. Book excerpt: The present book brings together experience, current work, and promising future trends associated with distributed computing, artificial intelligence, and their application in order to provide efficient solutions to real problems. DCAI 2023 is a forum to present applications of innovative techniques for studying and solving complex problems in artificial intelligence and computing areas. This year’s technical program presents both high quality and diversity, with contributions in well-established and evolving areas of research. Specifically, 108 papers were submitted, by authors from 31 different countries representing a truly “wide area network” of research activity. The DCAI 23 technical program has selected 36 full papers in the main track and, as in past editions, there will be special issues in ranked journals. This symposium is organized by the LASI and Centro Algoritmi of the University of Minho (Portugal). The authors like to thank all the contributing authors, the members of the Program Committee, National Associations (AEPIA, APPIA), and the sponsors (AIR Institute).

Advances on P2P, Parallel, Grid, Cloud and Internet Computing

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Publisher : Springer Nature
ISBN 13 : 3030898997
Total Pages : 342 pages
Book Rating : 4.0/5 (38 download)

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Book Synopsis Advances on P2P, Parallel, Grid, Cloud and Internet Computing by : Leonard Barolli

Download or read book Advances on P2P, Parallel, Grid, Cloud and Internet Computing written by Leonard Barolli and published by Springer Nature. This book was released on 2021-10-19 with total page 342 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book provide latest research findings, innovative research results, methods and development techniques from both theoretical and practical perspectives related to P2P, grid, cloud and Internet computing as well as to reveal synergies among such large-scale computing paradigms. P2P, grid, cloud and Internet computing technologies have been very fast established as breakthrough paradigms for solving complex problems by enabling aggregation and sharing of an increasing variety of distributed computational resources at large scale. Grid computing originated as a paradigm for high performance computing, as an alternative to expensive supercomputers through different forms of large-scale distributed computing. P2P computing emerged as a new paradigm after client-server and web-based computing and has shown useful to the development of social networking, Business to Business (B2B), Business to Consumer (B2C), Business to Government (B2G), Business to Employee (B2E) and so on. Cloud computing has been defined as a “computing paradigm where the boundaries of computing are determined by economic rationale rather than technical limits.” Cloud computing has fast become the computing paradigm with applicability and adoption in all application domains and providing utility computing at large scale. Finally, Internet computing is the basis of any large-scale distributed computing paradigms; it has very fast developed into a vast area of flourishing field with enormous impact on today’s information societies serving thus as a universal platform comprising a large variety of computing forms such as grid, P2P, cloud and mobile computing.

Big Data Intelligence and Computing

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Publisher : Springer Nature
ISBN 13 : 981992233X
Total Pages : 570 pages
Book Rating : 4.8/5 (199 download)

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Book Synopsis Big Data Intelligence and Computing by : Ching-Hsien Hsu

Download or read book Big Data Intelligence and Computing written by Ching-Hsien Hsu and published by Springer Nature. This book was released on 2023-04-30 with total page 570 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book constitutes the proceedings of the International Conference on Big Data Intelligence and Computing, DataCom 2022, which took place in Denarau Island, Fiji, in December 2022. The 30 full papers included in this volume were carefully reviewed and selected from 88 submissions. The papers detail big data analytics solutions, distributed computation paradigms, on-demand services, autonomic systems, and pervasive applications.