Ethics Of Research Involving Minors

Download Ethics Of Research Involving Minors full books in PDF, epub, and Kindle. Read online Ethics Of Research Involving Minors ebook anywhere anytime directly on your device. Fast Download speed and no annoying ads. We cannot guarantee that every ebooks is available!

Ethical Conduct of Clinical Research Involving Children

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309133386
Total Pages : 445 pages
Book Rating : 4.3/5 (91 download)

DOWNLOAD NOW!

Book Synopsis Ethical Conduct of Clinical Research Involving Children by : Institute of Medicine

Download or read book Ethical Conduct of Clinical Research Involving Children written by Institute of Medicine and published by National Academies Press. This book was released on 2004-07-09 with total page 445 pages. Available in PDF, EPUB and Kindle. Book excerpt: In recent decades, advances in biomedical research have helped save or lengthen the lives of children around the world. With improved therapies, child and adolescent mortality rates have decreased significantly in the last half century. Despite these advances, pediatricians and others argue that children have not shared equally with adults in biomedical advances. Even though we want children to benefit from the dramatic and accelerating rate of progress in medical care that has been fueled by scientific research, we do not want to place children at risk of being harmed by participating in clinical studies. Ethical Conduct of Clinical Research Involving Children considers the necessities and challenges of this type of research and reviews the ethical and legal standards for conducting it. It also considers problems with the interpretation and application of these standards and conduct, concluding that while children should not be excluded from potentially beneficial clinical studies, some research that is ethically permissible for adults is not acceptable for children, who usually do not have the legal capacity or maturity to make informed decisions about research participation. The book looks at the need for appropriate pediatric expertise at all stages of the design, review, and conduct of a research project to effectively implement policies to protect children. It argues persuasively that a robust system for protecting human research participants in general is a necessary foundation for protecting child research participants in particular.

Ethical Conduct of Clinical Research Involving Children

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309091810
Total Pages : 446 pages
Book Rating : 4.3/5 (9 download)

DOWNLOAD NOW!

Book Synopsis Ethical Conduct of Clinical Research Involving Children by : Institute of Medicine

Download or read book Ethical Conduct of Clinical Research Involving Children written by Institute of Medicine and published by National Academies Press. This book was released on 2004-08-09 with total page 446 pages. Available in PDF, EPUB and Kindle. Book excerpt: In recent decades, advances in biomedical research have helped save or lengthen the lives of children around the world. With improved therapies, child and adolescent mortality rates have decreased significantly in the last half century. Despite these advances, pediatricians and others argue that children have not shared equally with adults in biomedical advances. Even though we want children to benefit from the dramatic and accelerating rate of progress in medical care that has been fueled by scientific research, we do not want to place children at risk of being harmed by participating in clinical studies. Ethical Conduct of Clinical Research Involving Children considers the necessities and challenges of this type of research and reviews the ethical and legal standards for conducting it. It also considers problems with the interpretation and application of these standards and conduct, concluding that while children should not be excluded from potentially beneficial clinical studies, some research that is ethically permissible for adults is not acceptable for children, who usually do not have the legal capacity or maturity to make informed decisions about research participation. The book looks at the need for appropriate pediatric expertise at all stages of the design, review, and conduct of a research project to effectively implement policies to protect children. It argues persuasively that a robust system for protecting human research participants in general is a necessary foundation for protecting child research participants in particular.

The Ethics of Research with Children and Young People

Author : Priscilla Alderson
Publisher : SAGE Publications
ISBN 13 : 0857021370
Total Pages : 177 pages
Book Rating : 4.8/5 (57 download)

DOWNLOAD NOW!

Book Synopsis The Ethics of Research with Children and Young People by : Priscilla Alderson

Download or read book The Ethics of Research with Children and Young People written by Priscilla Alderson and published by SAGE Publications. This book was released on 2011-02-09 with total page 177 pages. Available in PDF, EPUB and Kindle. Book excerpt: Ethical questions are at the centre of research with children and young people. This clear and practical text informs students and researchers about the relevant laws and guidelines and current debates in research ethics. Priscilla Alderson and Virginia Morrow cover ethics at every stage of research, and with all kinds of young research participants, particularly those who are vulnerable or neglected. They break down the process of research into ten stages, each with its own set of related questions and problems, and they show how these need to be addressed. This practical book is essential reading for anyone who conducts or reviews research with children or young people. Priscilla Alderson is Emerita Professor of Childhood Studies at the Institute of Education University of London. Virginia Morrow is Senior Research Officer in the Department of International Development, University of Oxford.

Children in Medical Research

Author : Lainie Friedman Ross
Publisher : OUP Oxford
ISBN 13 : 0191534218
Total Pages : 300 pages
Book Rating : 4.1/5 (915 download)

DOWNLOAD NOW!

Book Synopsis Children in Medical Research by : Lainie Friedman Ross

Download or read book Children in Medical Research written by Lainie Friedman Ross and published by OUP Oxford. This book was released on 2006-02-09 with total page 300 pages. Available in PDF, EPUB and Kindle. Book excerpt: Lainie Ross presents a rigorous critical investigation of the development of policy governing the involvement of children in medical research. She examines the shift in focus from protection of medical research subjects, enshrined in post-World War II legislation, to the current era in which access is assuming greater precedence. Infamous studies such as Willowbrook (where mentally retarded children were infected with hepatitis) are evidence that before the policy shift protection was not always adequate, even for the most vulnerable groups. Additional safeguards for children were first implemented in many countries in the 1970s and 1980s; more recent policies and guidelines are trying to promote greater participation. Ross considers whether the safeguards work, whether they are fair, and how they apply in actual research practice. She goes on to offer specific recommendations to modify current policies and guidelines. Ross examines the regulatory structures (e.g. federal regulations and institutional review boards), the ad hoc policies (e.g. payment in pediatric research and the role of schools as research venues), the actual practices of researchers (e.g. the race/ethnicity of enrolled research subjects or the decision to enroll newborns) as well as the decision-making process (both parental permission and the child's assent), in order to provide a broad critique. Some of her recommendations will break down current barriers to the enrolment of children (e.g. permitting the payment of child research subjects; allowing healthy children to be exposed to research that entails more than minimal risk without requiring recourse to 407 panels); whereas other recommendations may create new restrictions (e.g., the need for greater protection for research performed in schools; restrictions on what research should be done in the newborn nursery). The goal is to ensure that medical research is done in a way that promotes the health of current and future children without threatening, to use the words of Hans Jonas, 'the erosion of those moral values whose loss . . . would make its most dazzling triumphs not worth having'.

Ethical Considerations for Research on Housing-Related Health Hazards Involving Children

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309164923
Total Pages : 216 pages
Book Rating : 4.3/5 (91 download)

DOWNLOAD NOW!

Book Synopsis Ethical Considerations for Research on Housing-Related Health Hazards Involving Children by : Institute of Medicine

Download or read book Ethical Considerations for Research on Housing-Related Health Hazards Involving Children written by Institute of Medicine and published by National Academies Press. This book was released on 2005-11-10 with total page 216 pages. Available in PDF, EPUB and Kindle. Book excerpt: Ethical Considerations for Research on Housing-Related Health Hazards Involving Children explores the ethical issues posed when conducting research designed to identify, understand, or ameliorate housing-related health hazards among children. Such research involves children as subjects and is conducted in the home and in communities. It is often conducted with children in low-income families given the disproportionate prevalence of housing-related conditions such as lead poisoning, asthma, and fatal injuries among these children. This book emphasizes five key elements to address the particular ethical concerns raised by these characteristics: involving the affected community in the research and responding to their concerns; ensuring that parents understand the essential elements of the research; adopting uniform federal guidelines for such research by all sponsors (Subpart D of 45 CFR 46); providing guidance on key terms in the regulations; and viewing research oversight as a system with important roles for researchers, IRBs and their research institutions, sponsors and regulators of research, and the community.

Doing Research with Children and Young People

Author : Sandy Fraser
Publisher : SAGE
ISBN 13 : 9780761943815
Total Pages : 308 pages
Book Rating : 4.9/5 (438 download)

DOWNLOAD NOW!

Book Synopsis Doing Research with Children and Young People by : Sandy Fraser

Download or read book Doing Research with Children and Young People written by Sandy Fraser and published by SAGE. This book was released on 2004 with total page 308 pages. Available in PDF, EPUB and Kindle. Book excerpt: Doing Research with Children and Young People introduces researchers to the key considerations involved in working with children and young people.

Research Involving Children

Author : United States. National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research
Publisher :
ISBN 13 :
Total Pages : 184 pages
Book Rating : 4.3/5 (91 download)

DOWNLOAD NOW!

Book Synopsis Research Involving Children by : United States. National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research

Download or read book Research Involving Children written by United States. National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research and published by . This book was released on 1977 with total page 184 pages. Available in PDF, EPUB and Kindle. Book excerpt:

The Belmont Report

Author : United States. National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research
Publisher :
ISBN 13 :
Total Pages : 614 pages
Book Rating : 4.:/5 (318 download)

DOWNLOAD NOW!

Book Synopsis The Belmont Report by : United States. National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research

Download or read book The Belmont Report written by United States. National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research and published by . This book was released on 1978 with total page 614 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Children As Research Subjects : Science, Ethics, and Law

Author : Program in Medical Ethics Michael A. Grodin Director
Publisher : Oxford University Press, USA
ISBN 13 : 9780199771424
Total Pages : 290 pages
Book Rating : 4.7/5 (714 download)

DOWNLOAD NOW!

Book Synopsis Children As Research Subjects : Science, Ethics, and Law by : Program in Medical Ethics Michael A. Grodin Director

Download or read book Children As Research Subjects : Science, Ethics, and Law written by Program in Medical Ethics Michael A. Grodin Director and published by Oxford University Press, USA. This book was released on 1994-02-08 with total page 290 pages. Available in PDF, EPUB and Kindle. Book excerpt: Is using children as research subjects ever justified? Are there limits to such use? Does the fact that children are medically and psychosocially different from adults have implications for research? What can we learn from the history of the use and abuse of children as research subjects? Do parents have the authority to volunteer their children for research projects? How should children participate in the decision to be involved in research? How should research risks be assessed and balanced? These perplexing questions and others are addressed by a distinguished group of experts in the field of biomedical and behavioral research with children. This book adopts an integrated multidisciplinary approach which uses science, ethics, and law as guides for exploring these most difficult issues. The tension between acquiring important new knowledge and fulfilling the obligation to protect children from exploitation and harm is a recurring theme. As the first book to be devoted solely to the science, ethics, and law of research with children, it is an indispensable resource to physicians, psychologists, educators, lawyers, ethicists, Institutional Review Board members, child advocates and others involved in performing or reviewing research with children.

Researching with Children and Young People

Author : Kay Tisdall
Publisher : SAGE
ISBN 13 : 1446204375
Total Pages : 250 pages
Book Rating : 4.4/5 (462 download)

DOWNLOAD NOW!

Book Synopsis Researching with Children and Young People by : Kay Tisdall

Download or read book Researching with Children and Young People written by Kay Tisdall and published by SAGE. This book was released on 2008-12-18 with total page 250 pages. Available in PDF, EPUB and Kindle. Book excerpt: ′This text will be of great use to postgraduate researchers in education, social work and nursing, and any practitioner involved in carrying out research with children and young people′ - CPD Update ′[T]here is a sense of newness and innovation about the book, whereby the reader is treated to insight into the life and work of collaborators who wrote each case study....[T]he book is highly accessible for students at graduate and undergraduate level, for example BA (Hons) Early Childhood Studies students′ - ESCalate Researching with Children and Young People covers every stage of the process of doing a research project, from research design and data collection, through to analysis and writing up. The book is divided into three sections, in which the authors cover: - Introducing research and consultation with children and young people - Collecting and analysing data - Whole-project issues. Each chapter includes activities, discussion questions, tips and extended case studies to help the reader to engage with the material and investigate the practical implications. This text will be of great use to postgraduate researchers in education, social work and nursing, and any practitioner involved in carrying out research with children and young people.

Ethical Research With Children

Author : Farrell, Ann
Publisher : McGraw-Hill Education (UK)
ISBN 13 : 0335216501
Total Pages : 198 pages
Book Rating : 4.3/5 (352 download)

DOWNLOAD NOW!

Book Synopsis Ethical Research With Children by : Farrell, Ann

Download or read book Ethical Research With Children written by Farrell, Ann and published by McGraw-Hill Education (UK). This book was released on 2005-11-01 with total page 198 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book focuses on doing ethical research with children in today's climate of increased globalization, surveillance and awareness of children as competent research participants. It covers a range of conceptual, methodological and procedural issues, and provides a framework for doing ethical research with children.

Doing Ethical Research With Children

Author : Harcourt, Deborah
Publisher : McGraw-Hill Education (UK)
ISBN 13 : 0335246427
Total Pages : 138 pages
Book Rating : 4.3/5 (352 download)

DOWNLOAD NOW!

Book Synopsis Doing Ethical Research With Children by : Harcourt, Deborah

Download or read book Doing Ethical Research With Children written by Harcourt, Deborah and published by McGraw-Hill Education (UK). This book was released on 2012-08-01 with total page 138 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Doing Ethical Research with Children is an invaluable resource for all student and practitioner-researchers who wish to honour children as active agents and significant voices in research. The book guides the reader through the processes of ethical research with (not on!) children, positioning the child as competent and capable. It includes practical guidance and examples of research so that issues that may emerge during a research project can be anticipated. My advice is - do not embark on an Early Years research project before reading it!" Lyn Trodd, Chair of the National Sector-Endorsed Foundation Degree in Early Years Network (SEFDEY), University of Hertfordshire, UK "Doing Ethical Research with Children provides an invaluable guide to understanding and managing the ethical implications of research projects with children. The highly accessible format includes useful case-study examples, questions and checklists and the four-phased approach supports the reader to reflect on ethical considerations at every stage of the research process. This book is a welcome and essential resource that positions ethical perspectives at the heart of research activity with children." Shirley Allen, Senior Lecturer Early Childhood Studies, Middlesex University, UK "This is an admirably clear and well-structured book that will be invaluable for anyone serious about research with children. The authors write from long experience, and provide a very helpful 'step by step' guide that is always underpinned by deeply principled, insightful considerations that exemplify good practice and respect for children. The use of real examples along with the authors' questions, invite the reader to reflect on their own thinking and actions, and the extensive checklists and sample documentation provide clear guidance that will be a valuable support for students and their supervisors, researchers, and practitioners alike. I look forward to making good use of this book in my own work and in my work with students of early childhood." Sue Robson, Principal Lecturer, Subject Leader for Early Childhood Studies University of Roehampton, London, UK This book provides a step-by-step guide to approaching your research project and will support you in developing, conducting and disseminating research relating to children and childhood with an ethical imperative. Doing Ethical Research with Children will help you focus and identify many of the key issues surrounding research with children. The book presents an overview of both contemporary and traditional perspectives relating to child related research practices. The authors combine relevant theoretical and practical information, offering a guide to the essential elements for conducting ethical research with children. You are prompted to consider and systematically address these elements, with the help of: Real world 'points to ponder', offering unique insights 'Over to you' reflection activities Case studies considering ethical dilemmas Written specifically as a guide and reflection tool for beginning researchers studying early years and childhood, the book follows the research journey from conceptualisation to dissemination and looks at the unique considerations for research involving children.

International Ethical Guidelines for Health-Related Research Involving Humans

Author : Council for International Organizations of Medical Sciences (CIOMS)
Publisher : World Health Organization
ISBN 13 : 9789290360889
Total Pages : 0 pages
Book Rating : 4.3/5 (68 download)

DOWNLOAD NOW!

Book Synopsis International Ethical Guidelines for Health-Related Research Involving Humans by : Council for International Organizations of Medical Sciences (CIOMS)

Download or read book International Ethical Guidelines for Health-Related Research Involving Humans written by Council for International Organizations of Medical Sciences (CIOMS) and published by World Health Organization. This book was released on 2017-01-31 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: "In the new 2016 version of the ethical guidelines, CIOMS provides answers to a number of pressing issues in research ethics. The Council does so by stressing the need for research having scientific and social value, by providing special guidelines for health-related research in low-resource settings, by detailing the provisions for involving vulnerable groups in research and for describing under what conditions biological samples and health-related data can be used for research."--Page 4 de la couverture.

Ethics and Research with Children

Author : Eric Kodish
Publisher : Oxford University Press, USA
ISBN 13 : 0190647256
Total Pages : 345 pages
Book Rating : 4.1/5 (96 download)

DOWNLOAD NOW!

Book Synopsis Ethics and Research with Children by : Eric Kodish

Download or read book Ethics and Research with Children written by Eric Kodish and published by Oxford University Press, USA. This book was released on 2018-12-14 with total page 345 pages. Available in PDF, EPUB and Kindle. Book excerpt: Fundamental questions about the morality of pediatric medical research persist despite years of debate and the establishment of strict codes of ethics. Is it ever permissible to use a child as a means to an end? How much authority should parents have over decisions about research involving their children? Should children or their parents be paid for participation in research? Most importantly, how can the twin goals of access to the benefits of clinical research and protection from research risk be reconciled? Promoting more thoughtful attention to the complex ethical problems that arise when research involves children, this fully updated new edition of Ethics and Research with Children presents 14 case studies featuring some of the most challenging and fascinating ethical dilemmas in pediatric research. Each chapter begins with a unique case vignette, followed by rich discussion and incisive ethical analysis. Chapters represent a host of current controversies and are contributed by leading scholars from a variety of disciplines that must grapple with how to best protect children from research risk while driving innovation in the fight against childhood diseases. Chapters end with questions for discussion, providing faculty and students with accessible starting points from which to explore more in depth the thorny issues that are raised. In the final chapter, the editors provide a synthesis and summary that serve as a capstone and companion to the case-based chapters. Unique in its specific focus on research, Ethics and Research with Children provides a balanced and thorough account of the enduring dilemmas that arise when children become research subjects, and will be essential reading for those involved with pediatric research in any context.

The Handbook of Social Research Ethics

Author : Donna M. Mertens
Publisher : SAGE
ISBN 13 : 1412949181
Total Pages : 689 pages
Book Rating : 4.4/5 (129 download)

DOWNLOAD NOW!

Book Synopsis The Handbook of Social Research Ethics by : Donna M. Mertens

Download or read book The Handbook of Social Research Ethics written by Donna M. Mertens and published by SAGE. This book was released on 2009 with total page 689 pages. Available in PDF, EPUB and Kindle. Book excerpt: Brings together international scholars across the social and behavioural sciences and education to address those ethical issues that arise in the theory and practice of research within the technologically advancing and culturally complex world in which we live.

An Introduction to Childhood Studies

Author : Mary Jane Kehily
Publisher : McGraw-Hill Education (UK)
ISBN 13 : 0335236804
Total Pages : 244 pages
Book Rating : 4.3/5 (352 download)

DOWNLOAD NOW!

Book Synopsis An Introduction to Childhood Studies by : Mary Jane Kehily

Download or read book An Introduction to Childhood Studies written by Mary Jane Kehily and published by McGraw-Hill Education (UK). This book was released on 2008-11-01 with total page 244 pages. Available in PDF, EPUB and Kindle. Book excerpt: "This thoughtful book provides expert overviews of historical, sociological, psychological, cultural, legal and rights-informed approaches to childhood. Through these well written, readable chapters, students will be engaged with important debates in childhood studies, and led towards many ideas and problems for further investigation. This second edition includes new chapters arguing strongly for interdisciplinarity and for measured responses to the current 'crisis' in UK childhoods." Berry Mayall, Institute of Education, University of London, UK An Introduction to Childhood Studies offers a wide-ranging and thought-provoking approach to the study of childhood, providing an important contribution to this burgeoning area of research and teaching. It brings together key themes in the area of Childhood Studies, providing a comprehensive and accessible introduction for students and practitioners, helping to answer questions such as: What is childhood and how can it be studied and understood? How is the idea of childhood shaped by the society we live in? The contributors - who are leading figures in their fields - examine childhood from historical, socio-cultural and policy perspectives. They explore aspects such as the construction of childhood, children's literature, childhood in the digital age and children's rights. Revised and updated throughout, the new edition includes: An expanded introductory chapter - Childhood Studies: past, present, future A new chapter on children's rights and educational provision A new concluding chapter - The future of childhood Revised and updated chapters Further reading suggestions for each chapter An Introduction to Childhood Studies is a key text for students on courses in childhood studies, child psychology, social policy and the sociology of youth and childhood.

The Oxford Textbook of Clinical Research Ethics

Author : Ezekiel J. Emanuel
Publisher : OUP USA
ISBN 13 : 0199768633
Total Pages : 848 pages
Book Rating : 4.1/5 (997 download)

DOWNLOAD NOW!

Book Synopsis The Oxford Textbook of Clinical Research Ethics by : Ezekiel J. Emanuel

Download or read book The Oxford Textbook of Clinical Research Ethics written by Ezekiel J. Emanuel and published by OUP USA. This book was released on 2011-02 with total page 848 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Oxford Textbook of Clinical Research Ethics is the first comprehensive and systematic reference on clinical research ethics. Under the editorship of experts from the U.S. National Institutes of Health of the United States, the book's 73 chapters offer a wide-ranging and systematic examination of all aspects of research with human beings. Considering the historical triumphs of research as well as its tragedies, the textbook provides a framework for analyzing the ethical aspects of research studies with human beings. Through both conceptual analysis and systematic reviews of empirical data, the contributors examine issues ranging from scientific validity, fair subject selection, risk benefit ratio, independent review, and informed consent to focused consideration of international research ethics, conflicts of interests, and other aspects of responsible conduct of research. The editors of The Oxford Textbook of Clinical Research Ethics offer a work that critically assesses and advances scholarship in the field of human subjects research. Comprehensive in scope and depth, this book will be a crucial resource for researchers in the medical sciences, as well as teachers and students.