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Dying In Public
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Download or read book Dying in Public written by Hendler Sue and published by . This book was released on 2012-08-01 with total page 158 pages. Available in PDF, EPUB and Kindle. Book excerpt: As a university professor, an environmentalist, and a world-traveller, Sue Hendler was thriving. Then she was diagnosed with metastatic breast cancer. She had to give up her job, make hard decisions about medical treatment, and drastically shorten her vision of the future. As her cancer spread, she ironically acquired a new identity as a cancer "survivor." Compelled to find meaning in her "new normal" of life with a fatal disease, she decided to write for a wider audience. In Dying in Public: Living with Metastatic Breast Cancer, Hendler talks about her experiences of undergoing surgery, taking steroids, receiving chemotherapy, and enrolling in a clinical drug trial. As her condition worsens she remains committed to living fully. She struggles with writing a bucket list, discusses her "legacy," and talks about her feelings of anger and the importance of love. She also describes how she lived, towards the end, with the support of the members of her "Care Team," a group of over thirty friends, family, and health care workers who enabled her to remain at home until the day before her death. This honest, witty, and unsentimental depiction of "dying in public" is a profound tribute to a life well lived.
Book Synopsis Amusing Ourselves to Death by : Neil Postman
Download or read book Amusing Ourselves to Death written by Neil Postman and published by Vintage. This book was released on 1986 with total page 200 pages. Available in PDF, EPUB and Kindle. Book excerpt: Examines the effects of television culture on how we conduct our public affairs and how "entertainment values" corrupt the way we think.
Book Synopsis Facing the Bureaucracy by : Gerald Garvey
Download or read book Facing the Bureaucracy written by Gerald Garvey and published by Jossey-Bass. This book was released on 1993 with total page 284 pages. Available in PDF, EPUB and Kindle. Book excerpt: Gerald Garvey provides a fascinating look inside the federal bureaucracy and offers insights into the forces, personalities, and politicking that make changing governmental institutions so difficult.
Book Synopsis Dying in America by : Institute of Medicine
Download or read book Dying in America written by Institute of Medicine and published by National Academies Press. This book was released on 2015-03-19 with total page 638 pages. Available in PDF, EPUB and Kindle. Book excerpt: For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.
Book Synopsis Dying of Whiteness by : Jonathan M. Metzl
Download or read book Dying of Whiteness written by Jonathan M. Metzl and published by Basic Books. This book was released on 2019-03-05 with total page 354 pages. Available in PDF, EPUB and Kindle. Book excerpt: A physician's "provocative" (Boston Globe) and "timely" (Ibram X. Kendi, New York Times Book Review) account of how right-wing backlash policies have deadly consequences -- even for the white voters they promise to help. In election after election, conservative white Americans have embraced politicians who pledge to make their lives great again. But as physician Jonathan M. Metzl shows in Dying of Whiteness, the policies that result actually place white Americans at ever-greater risk of sickness and death. Interviewing a range of everyday Americans, Metzl examines how racial resentment has fueled progun laws in Missouri, resistance to the Affordable Care Act in Tennessee, and cuts to schools and social services in Kansas. He shows these policies' costs: increasing deaths by gun suicide, falling life expectancies, and rising dropout rates. Now updated with a new afterword, Dying of Whiteness demonstrates how much white America would benefit by emphasizing cooperation rather than chasing false promises of supremacy. Winner of the Robert F. Kennedy Book Award
Book Synopsis Deaths of Despair and the Future of Capitalism by : Anne Case
Download or read book Deaths of Despair and the Future of Capitalism written by Anne Case and published by Princeton University Press. This book was released on 2021-03-02 with total page 332 pages. Available in PDF, EPUB and Kindle. Book excerpt: A New York Times Bestseller A Wall Street Journal Bestseller A New York Times Notable Book of 2020 A New York Times Book Review Editors’ Choice Shortlisted for the Financial Times and McKinsey Business Book of the Year A New Statesman Book to Read From economist Anne Case and Nobel Prize winner Angus Deaton, a groundbreaking account of how the flaws in capitalism are fatal for America's working class Deaths of despair from suicide, drug overdose, and alcoholism are rising dramatically in the United States, claiming hundreds of thousands of American lives. Anne Case and Angus Deaton explain the overwhelming surge in these deaths and shed light on the social and economic forces that are making life harder for the working class. As the college educated become healthier and wealthier, adults without a degree are literally dying from pain and despair. Case and Deaton tie the crisis to the weakening position of labor, the growing power of corporations, and a rapacious health-care sector that redistributes working-class wages into the pockets of the wealthy. This critically important book paints a troubling portrait of the American dream in decline, and provides solutions that can rein in capitalism's excesses and make it work for everyone.
Download or read book When My Time Comes written by Diane Rehm and published by Vintage. This book was released on 2020-02-04 with total page 257 pages. Available in PDF, EPUB and Kindle. Book excerpt: The renowned radio host and one of the most trusted voices in the nation candidly and compassionately addresses the hotly contested right-to-die movement, of which she is one of our most inspiring champions. The basis for the acclaimed PBS series. Through interviews with terminally ill patients and their relatives, as well as physicians, ethicists, religious leaders, and representatives of both those who support and vigorously oppose this urgent movement, Rehm gives voice to a broad range of people personally linked to the realities of medical aid in dying. With characteristic evenhandedness, she provides the full context for this highly divisive issue and presents the fervent arguments—both for and against—that are propelling the current debate: Should we adopt laws allowing those who are dying to put an end to their suffering? Featuring a deeply personal foreword by John Grisham, When My Time Comes is a response to many misconceptions and misrepresentations of end-of-life care. It is a call to action—and to conscience—and it is an attempt to heal and soothe, reminding us that death, too, is an integral part of life.
Book Synopsis Ranger Confidential by : Andrea Lankford
Download or read book Ranger Confidential written by Andrea Lankford and published by Rowman & Littlefield. This book was released on 2010-04-02 with total page 208 pages. Available in PDF, EPUB and Kindle. Book excerpt: For twelve years, Andrea Lankford lived in the biggest, most impressive national parks in the world, working a job she loved. She chaperoned baby sea turtles on their journey to sea. She pursued bad guys on her galloping patrol horse. She jumped into rescue helicopters bound for the heart of the Grand Canyon. She won arguments with bears. She slept with a few too many rattlesnakes. Hell yeah, it was the best job in the world! Fortunately, Andrea survived it. In this graphic and yet surprisingly funny account of her and others’ extraordinary careers, Lankford unveils a world in which park rangers struggle to maintain their idealism in the face of death, disillusionment, and the loss of a comrade killed while holding that thin green line between protecting the park from the people, the people from the park, and the people from each other. Ranger Confidential is the story behind the scenery of the nation’s crown jewels—Yosemite, Grand Canyon, Yellowstone, Great Smokies, Denali. In these iconic landscapes, where nature and humanity constantly collide, scenery can be as cruel as it is redemptive.
Book Synopsis Night of the Grizzlies by : Jack Olsen
Download or read book Night of the Grizzlies written by Jack Olsen and published by Crime Rant Books. This book was released on 1969 with total page 234 pages. Available in PDF, EPUB and Kindle. Book excerpt: For more than half a century, grizzly bears roamed free in the national parks without causing a human fatality. Then in 1967, on a single August night, two campers were fatally mauled by enraged bears -- thus signaling the beginning of the end for America's greatest remaining land carnivore. Night of the Grizzlies, Olsen's brilliant account of another sad chapter in America's vanishing frontier, traces the causes of that tragic night: the rangers' careless disregard of established safety precautions and persistent warnings by seasoned campers that some of the bears were acting "funny"; the comforting belief that the great bears were not really dangerous -- would attack only when provoked. The popular sport that summer was to lure the bears with spotlights and leftover scraps -- in hopes of providing the tourists with a show, a close look at the great "teddy bears." Everyone came, some of the younger campers even making bold enough to sleep right in the path of the grizzlies' known route of arrival. This modern "bearbaiting" could have but one tragic result…
Book Synopsis Scripting Death by : Mara Buchbinder
Download or read book Scripting Death written by Mara Buchbinder and published by Univ of California Press. This book was released on 2021-05-04 with total page 247 pages. Available in PDF, EPUB and Kindle. Book excerpt: How the legalization of assisted dying is changing our lives. Over the past five years, medical aid-in-dying (also known as assisted suicide) has expanded rapidly in the United States and is now legally available to one in five Americans. This growing social and political movement heralds the possibility of a new era of choice in dying. Yet very little is publicly known about how medical aid-in-dying laws affect ordinary citizens once they are put into practice. Sociological studies of new health policies have repeatedly demonstrated that the realities often fall short of advocacy visions, raising questions about how much choice and control aid-in-dying actually affords. Scripting Death chronicles two years of ethnographic research documenting the implementation of Vermont’s 2013 Patient Choice and Control at End of Life Act. Author Mara Buchbinder weaves together stories collected from patients, caregivers, health care providers, activists, and legislators to illustrate how they navigate aid-in-dying as a new medical frontier in the aftermath of legalization. Scripting Death explains how medical aid-in-dying works, what motivates people to pursue it, and ultimately, why upholding the “right to die” is very different from ensuring access to this life-ending procedure. This unprecedented, in-depth account uses the case of assisted death as an entry point into ongoing cultural conversations about the changing landscape of death and dying in the United States.
Book Synopsis Loneliness and Dying as Issues of Public Concern in Sweden by : Axel Ågren
Download or read book Loneliness and Dying as Issues of Public Concern in Sweden written by Axel Ågren and published by Linköping University Electronic Press. This book was released on 2020-12-21 with total page 78 pages. Available in PDF, EPUB and Kindle. Book excerpt: Loneliness among older people and how the dying should be cared for are issues that evoke public debate. These issues are often described as universal and existential aspects of the human experience. Societal understandings of loneliness and dying have, however, changed dramatically over the past decades. Loneliness among older people and how we die are surrounded with ideals of how to "age well" and "good deaths", where failure to meet these expectations is associated with tabus, stigma and personal and societal failures. Consequently, studying loneliness among older people and care of the dying gives rise to the question of to what degree loneliness and dying are personal or public concerns. The aim of this dissertation is to study how loneliness among older people is constructed in the Swedish news press and how care of the dying is constructed in policies and through the perspectives of experts in palliative care. Specifically, the analysis explores to what extent these issues have become public concerns, and how "old and lonely" and "the dying" are positioned and constructed. In Paper I, the focus is on identifying overall discourses on loneliness among older people in the Swedish news press. Paper II is an analysis of how the responsibility for reducing loneliness is designated in the Swedish news press. Paper III explores how policies on palliative care have emerged and developed in Sweden over time since the 1970s up until today. Paper IV highlights the perspectives of experts, in palliative care, on the development and current state of palliative care, and the role of policymaking in this context. The findings of Paper I illustrate that although loneliness among older people have seemingly gained increased attention, much of the news articles are about the deficiencies in the organisation of eldercare and volunteer work with aims of reducing loneliness. In Paper II, the main finding is that the task of reducing loneliness is discussed, defined, and designated by and to those who were "non-old" and "non-lonely", where ambitions of inclusion result in constructing old people as the "others". Paper III shows how policies on palliative care have changed, from an emphasis on psychological end-of-life care and an overarching critique of the hospice care philosophy, to claims for care to be instead inspired by the very same philosophy. Furthermore, ideals of dying at home have lost their significance as palliative care should be universal and carried out everywhere. Based on interviews with experts in palliative care, the results of Paper IV highlight the complex development of palliative care in between deficiencies in end-of-life care of the past and improvements of the present. These improvements resulted, however, in risks of too much bureaucracy. The overall findings of this dissertation indicate that loneliness among older people and care of the dying serve as symbols for criticising the idea of the development of "modern society", which is altogether viewed as individualistic, bureaucratised and medicalised. Throughout the studies included in this dissertation, the issues of individual autonomy and activity as well as responsibility have shown to be central. In the context of palliative care, the concept of autonomy has a key position and responsibility is on the dying person to make choices in order to achieve "good palliative care". Regarding loneliness among older people, emphasis is on how to make older people physically and socially active. Loneliness is constructed as a problem which should be avoided and solved by "society" bearing the responsibility for enabling older people not to be lonely. Ensamhet bland äldre och vård av döende personer är frågor som diskuteras i offentliga fora. Dessa frågor beskrivs ofta som universella och en central del av människans existens. Dock har samhälleliga förståelser av ensamhet och döende förändrats dramatiskt under de senaste decennierna. Ensamhet bland äldre människor och hur vi dör är frågor som är omgärdade av ideal om "god död" och om att "åldras väl", där misslyckanden med att uppfylla dessa förväntningar är förknippade med tabun, stigma och personliga och samhälleliga brister. Eftersom äldres ensamhet och vård i livets slut är frågor som till viss del välfärdsstaten i Sverige engagerar sig i aktualiseras frågan om i vilken grad ensamhet och vård av döende personer är individens eller samhällets ansvar. Den ökade samhälleliga uppmärksamheten för dessa frågor i media och genom policyer, motiverar behovet av forskning om hur ensamhet bland äldre konstrueras, vad som ger upphov till att vissa definitioner blir förgivettagna och vilka typer av definitioner som nyhetspressen och policyer lutar sig emot. Syftet med denna avhandling är att studera hur ensamhet bland äldre konstrueras i svensk nyhetspress och vård av döende konstrueras i policyer samt utifrån experters perspektiv. En central del av detta syfte är att analysera i vilken utsträckning dessa frågor är individens respektive samhällets ansvar. Syftet är vidare att undersöka hur ”ensamma äldre” och ”döende personer” positioneras och konstrueras. I Paper fokuserade jag på att identifiera övergripande diskurser om ensamhet bland äldre i den svenska nyhetspressen. Paper II utgjordes av en analys av hur ansvar för att minska ensamheten bland äldre utpekats i den svenska nyhetspressen. Hur policyer kring palliativ vård i Sverige först etablerades och har utvecklats över tid, mellan åren 1974-2018, studerades i Paper III. Experters perspektiv på utvecklingen och det nuvarande tillståndet för palliativ vård och vilken roll policyer haft i denna typ av vård belystes i Paper IV. Trots att ensamhet bland äldre till synes har fått ökad uppmärksamhet i media, visade resultaten i Paper I att nyhetsartiklarna till stor del handlade om bristerna i organiseringen av äldreomsorg och betydelsen av volontärarbete för att minska ensamheten. I Paper II var den övergripande slutsatsen att uppdraget att minska ensamheten diskuterades, definierades och utpekades av och till dem som var "icke-äldre" och "icke-ensamma", där ambitioner om inkludering resulterade i att konstruera äldre människor som de "andra”. I Paper III var ett centralt fynd att policyer kring palliativ vård förändrats från betoning på psykologisk vård i livets slut och en övergripande kritik av vårdfilosofin från hospicerörelsen till krav på att vården bör utgå från denna filosofi. Dessutom tappade idealen om att dö hemma sin betydelse eftersom policyer med tiden betonade vikten av att palliativ vård ska vara universell och kunna genomföras överallt. Baserat på intervjuer med experter inom palliativ vård var resultaten av Paper IV att den historiska utvecklingen av hospice-rörelsen och samtida internationella händelser inom palliativ vård fungerade som referenspunkter för att förstå utvecklingen och det nuvarande tillståndet för den palliativa vården. Dessa metaberättelser sammanflätades också med personliga erfarenheter från palliativ vård. De övergripande resultaten i denna doktorsavhandling var att ensamhet bland äldre och vård av döende tjänade som symboler för att kritisera utvecklingen av det ”moderna samhället” som betraktades som individualistiskt, byråkratiserat och medikaliserat. I de studier som ingår i denna doktorsavhandling var frågor om ansvar, individuell autonomi och aktivitet centrala. I policyer för palliativ vård var begreppet autonomi centralt och döende personer framställdes som ansvariga för att göra val för att uppnå ”god palliativ vård”. Beträffande ensamhet bland äldre låg tonvikten på att göra äldre fysiskt och socialt aktiva. Ensamhet bland äldre människor ansågs mestadels som ett problem som bör undvikas och lösas. Det var också ”samhället” som skulle göra det möjligt för äldre att inte uppleva ensamhet.
Book Synopsis Dying in Old Age by : Sara M. Moorman
Download or read book Dying in Old Age written by Sara M. Moorman and published by Routledge. This book was released on 2020-09-14 with total page 289 pages. Available in PDF, EPUB and Kindle. Book excerpt: Three-quarters of deaths in the U.S. today occur to people over the age of 65, following chronic illness. This new experience of "predictable death" has important consequences for the ways in which societies structure their health care systems, laws, and labor markets. Dying in Old Age: U.S. Practice and Policy applies a sociological lens to the end of life, exploring how macrosocial systems and social inequalities interact to affect individual experiences of death in the United States. Using data from the National Health and Aging Trends Study and Pew Research Center Survey of Aging and Longevity, this book argues that predictable death influences the entire life course and works to generate greater social disparities. The volume is divided into sections exploring demography, the circumstances of dying people, and public policy affecting dying people and their families. In exploring these interconnected factors, the author also proposes means of making "bad death" an avoidable event. As one of the first books to explore the social consequences of end of life practice, Dying in Old Age will be of great interest to graduate and advanced undergraduate students in sociology, social work, and public health, as well as scholars and policymakers in these areas.
Author :Committee on Care at the End of Life Publisher :National Academies Press ISBN 13 :0309518253 Total Pages :457 pages Book Rating :4.3/5 (95 download)
Book Synopsis Approaching Death by : Committee on Care at the End of Life
Download or read book Approaching Death written by Committee on Care at the End of Life and published by National Academies Press. This book was released on 1997-10-30 with total page 457 pages. Available in PDF, EPUB and Kindle. Book excerpt: When the end of life makes its inevitable appearance, people should be able to expect reliable, humane, and effective caregiving. Yet too many dying people suffer unnecessarily. While an "overtreated" dying is feared, untreated pain or emotional abandonment are equally frightening. Approaching Death reflects a wide-ranging effort to understand what we know about care at the end of life, what we have yet to learn, and what we know but do not adequately apply. It seeks to build understanding of what constitutes good care for the dying and offers recommendations to decisionmakers that address specific barriers to achieving good care. This volume offers a profile of when, where, and how Americans die. It examines the dimensions of caring at the end of life: Determining diagnosis and prognosis and communicating these to patient and family. Establishing clinical and personal goals. Matching physical, psychological, spiritual, and practical care strategies to the patient's values and circumstances. Approaching Death considers the dying experience in hospitals, nursing homes, and other settings and the role of interdisciplinary teams and managed care. It offers perspectives on quality measurement and improvement, the role of practice guidelines, cost concerns, and legal issues such as assisted suicide. The book proposes how health professionals can become better prepared to care well for those who are dying and to understand that these are not patients for whom "nothing can be done."
Download or read book Right of Way written by Angie Schmitt and published by Island Press. This book was released on 2020-08-27 with total page 247 pages. Available in PDF, EPUB and Kindle. Book excerpt: The face of the pedestrian safety crisis looks a lot like Ignacio Duarte-Rodriguez. The 77-year old grandfather was struck in a hit-and-run crash while trying to cross a high-speed, six-lane road without crosswalks near his son’s home in Phoenix, Arizona. He was one of the more than 6,000 people killed while walking in America in 2018. In the last ten years, there has been a 50 percent increase in pedestrian deaths. The tragedy of traffic violence has barely registered with the media and wider culture. Disproportionately the victims are like Duarte-Rodriguez—immigrants, the poor, and people of color. They have largely been blamed and forgotten. In Right of Way, journalist Angie Schmitt shows us that deaths like Duarte-Rodriguez’s are not unavoidable “accidents.” They don’t happen because of jaywalking or distracted walking. They are predictable, occurring in stark geographic patterns that tell a story about systemic inequality. These deaths are the forgotten faces of an increasingly urgent public-health crisis that we have the tools, but not the will, to solve. Schmitt examines the possible causes of the increase in pedestrian deaths as well as programs and movements that are beginning to respond to the epidemic. Her investigation unveils why pedestrians are dying—and she demands action. Right of Way is a call to reframe the problem, acknowledge the role of racism and classism in the public response to these deaths, and energize advocacy around road safety. Ultimately, Schmitt argues that we need improvements in infrastructure and changes to policy to save lives. Right of Way unveils a crisis that is rooted in both inequality and the undeterred reign of the automobile in our cities. It challenges us to imagine and demand safer and more equitable cities, where no one is expendable.
Download or read book Over the Edge written by Thomas Myers and published by . This book was released on 2012 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: Two veterans of decades of adventuring in Grand Canyon chronicle the complete and comprehensive history of Canyon misadventures. These episodes span the entire era of visitation from the time of the first river exploration by John Wesley Powell and his crew of 1869 to that of tourists falling off its rims today. These accounts of the roughly 700 people who have met untimely deaths in the Canyon set a new high water mark for offering the most astounding array of adventures, misadventures, and life saving lessons published between any two covers. Over the Edge promises to be the most intense yet informative book on Grand Canyon ever written.
Book Synopsis Medicolegal Death Investigation System by : Institute of Medicine
Download or read book Medicolegal Death Investigation System written by Institute of Medicine and published by National Academies Press. This book was released on 2003-09-22 with total page 85 pages. Available in PDF, EPUB and Kindle. Book excerpt: The US Department of Justice's National Institute of Justice (NIJ) asked the Institute of Medicine (IOM) of The National Academies to conduct a workshop that would examine the interface of the medicolegal death investigation system and the criminal justice system. NIJ was particularly interested in a workshop in which speakers would highlight not only the status and needs of the medicolegal death investigation system as currently administered by medical examiners and coroners but also its potential to meet emerging issues facing contemporary society in America. Additionally, the workshop was to highlight priority areas for a potential IOM study on this topic. To achieve those goals, IOM constituted the Committee for the Workshop on the Medicolegal Death Investigation System, which developed a workshop that focused on the role of the medical examiner and coroner death investigation system and its promise for improving both the criminal justice system and the public health and health care systems, and their ability to respond to terrorist threats and events. Six panels were formed to highlight different aspects of the medicolegal death investigation system, including ways to improve it and expand it beyond its traditional response and meet growing demands and challenges. This report summarizes the Workshop presentations and discussions that followed them.
Book Synopsis The Land of Open Graves by : Jason De Leon
Download or read book The Land of Open Graves written by Jason De Leon and published by Univ of California Press. This book was released on 2015-10-23 with total page 378 pages. Available in PDF, EPUB and Kindle. Book excerpt: In this gripping and provocative “ethnography of death,” anthropologist and MacArthur "Genius" Fellow Jason De León sheds light on one of the most pressing political issues of our time—the human consequences of US immigration and border policy. The Land of Open Graves reveals the suffering and deaths that occur daily in the Sonoran Desert of Arizona as thousands of undocumented migrants attempt to cross the border from Mexico into the United States. Drawing on the four major fields of anthropology, De León uses an innovative combination of ethnography, archaeology, linguistics, and forensic science to produce a scathing critique of “Prevention through Deterrence,” the federal border enforcement policy that encourages migrants to cross in areas characterized by extreme environmental conditions and high risk of death. For two decades, systematic violence has failed to deter border crossers while successfully turning the rugged terrain of southern Arizona into a killing field. Featuring stark photography by Michael Wells, this book examines the weaponization of natural terrain as a border wall: first-person stories from survivors underscore this fundamental threat to human rights, and the very lives, of non-citizens as they are subjected to the most insidious and intangible form of American policing as institutional violence. In harrowing detail, De León chronicles the journeys of people who have made dozens of attempts to cross the border and uncovers the stories of the objects and bodies left behind in the desert. The Land of Open Graves will spark debate and controversy.
