Data Disclosure

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Confidentiality, Disclosure, and Data Access

Author : Pat Doyle
Publisher : Elsevier Science & Technology
ISBN 13 :
Total Pages : 474 pages
Book Rating : 4.F/5 ( download)

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Book Synopsis Confidentiality, Disclosure, and Data Access by : Pat Doyle

Download or read book Confidentiality, Disclosure, and Data Access written by Pat Doyle and published by Elsevier Science & Technology. This book was released on 2001 with total page 474 pages. Available in PDF, EPUB and Kindle. Book excerpt: There is a fundamental tension at the heart of every statistical agency mission. Each is charged with collecting high quality data to inform the national policy and enable statistical research. This necessitates dissemination of both summary and micro data. Each is also charged with protecting the confidentiality of survey respondents. This often necessitates the blurring of the data to reduce the probability of the re-identification of individuals. The tradeoff dilemma, which could well be stated as protecting confidentiality (avoiding disclosure) but optimizing access, has become more complex as both technological advances and public perceptions have altered in an information age. Fortunately, statistical disclosure techniques have kept pace with these changes. This volume is intended to provide a review of new state of the art techniques that directly address these issues from both a theoretical and practical perspective. It provides a review of new research in the area of confidentiality and statistical disclosure techniques. A major section of the book provides an overview of new advances in the field of both economic and demographic data in measuring disclosure risk and information loss. It also presents new information on the different approaches taken by statistical agencies in disseminating data - ranging from licensing agreements , to secure access and provides a new survey of what statistical disclosure techniques are used by statistical agencies around the world. This is complimented by a series of chapters on public perceptions of statistical agency actions, including the results of a new survey on business perceptions. The book concludes with a chapter on the challenges of technology to data protection. National Statistical Agencies, statistical practitioners, thinktanks, research organisations and universities will find this a useful tool.

Synthetic Datasets for Statistical Disclosure Control

Author : Jörg Drechsler
Publisher : Springer Science & Business Media
ISBN 13 : 146140326X
Total Pages : 138 pages
Book Rating : 4.4/5 (614 download)

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Book Synopsis Synthetic Datasets for Statistical Disclosure Control by : Jörg Drechsler

Download or read book Synthetic Datasets for Statistical Disclosure Control written by Jörg Drechsler and published by Springer Science & Business Media. This book was released on 2011-06-24 with total page 138 pages. Available in PDF, EPUB and Kindle. Book excerpt: The aim of this book is to give the reader a detailed introduction to the different approaches to generating multiply imputed synthetic datasets. It describes all approaches that have been developed so far, provides a brief history of synthetic datasets, and gives useful hints on how to deal with real data problems like nonresponse, skip patterns, or logical constraints. Each chapter is dedicated to one approach, first describing the general concept followed by a detailed application to a real dataset providing useful guidelines on how to implement the theory in practice. The discussed multiple imputation approaches include imputation for nonresponse, generating fully synthetic datasets, generating partially synthetic datasets, generating synthetic datasets when the original data is subject to nonresponse, and a two-stage imputation approach that helps to better address the omnipresent trade-off between analytical validity and the risk of disclosure. The book concludes with a glimpse into the future of synthetic datasets, discussing the potential benefits and possible obstacles of the approach and ways to address the concerns of data users and their understandable discomfort with using data that doesn’t consist only of the originally collected values. The book is intended for researchers and practitioners alike. It helps the researcher to find the state of the art in synthetic data summarized in one book with full reference to all relevant papers on the topic. But it is also useful for the practitioner at the statistical agency who is considering the synthetic data approach for data dissemination in the future and wants to get familiar with the topic.

Data Disclosure

Author : Moritz Hennemann
Publisher : Walter de Gruyter GmbH & Co KG
ISBN 13 : 3111010600
Total Pages : 228 pages
Book Rating : 4.1/5 (11 download)

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Book Synopsis Data Disclosure by : Moritz Hennemann

Download or read book Data Disclosure written by Moritz Hennemann and published by Walter de Gruyter GmbH & Co KG. This book was released on 2023-04-26 with total page 228 pages. Available in PDF, EPUB and Kindle. Book excerpt: Data has become a key factor for the competitiveness of private and state actors alike. Personal data in particular fuels manifold corresponding data ecosystems - in many cases based on the disclosure decision of an individual. This volume presents the proceedings of the bidt "Vectors of Data Disclosure" conference held in Munich 2022. The contributions give comparative insights into the data disclosure process - combining perspectives of law, cultural studies, and business information systems. The authors thereby tackle the question in which way regulation and cultural settings shape (or do not shape) respective decisions in different parts of the world. The volume also includes interim results of the corresponding bidt research project - including in-depth reports covering the regulatory and cultural dimensions of data disclosure in eight different countries / regions worldwide, a business information systems model of the disclosure decision process, and empirical studies. The volume thereby lays the ground for interdisciplinary informed policy decisions and gives guidance to stakeholders.

Overview of the Privacy Act of 1974

Author : United States. Department of Justice. Privacy and Civil Liberties Office
Publisher :
ISBN 13 :
Total Pages : 276 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis Overview of the Privacy Act of 1974 by : United States. Department of Justice. Privacy and Civil Liberties Office

Download or read book Overview of the Privacy Act of 1974 written by United States. Department of Justice. Privacy and Civil Liberties Office and published by . This book was released on 2010 with total page 276 pages. Available in PDF, EPUB and Kindle. Book excerpt: The "Overview of the Privacy Act of 1974," prepared by the Department of Justice's Office of Privacy and Civil Liberties (OPCL), is a discussion of the Privacy Act's disclosure prohibition, its access and amendment provisions, and its agency recordkeeping requirements. Tracking the provisions of the Act itself, the Overview provides reference to, and legal analysis of, court decisions interpreting the Act's provisions.

Health Data in the Information Age

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309049954
Total Pages : 272 pages
Book Rating : 4.3/5 (9 download)

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Book Synopsis Health Data in the Information Age by : Institute of Medicine

Download or read book Health Data in the Information Age written by Institute of Medicine and published by National Academies Press. This book was released on 1994-01-01 with total page 272 pages. Available in PDF, EPUB and Kindle. Book excerpt: Regional health care databases are being established around the country with the goal of providing timely and useful information to policymakers, physicians, and patients. But their emergence is raising important and sometimes controversial questions about the collection, quality, and appropriate use of health care data. Based on experience with databases now in operation and in development, Health Data in the Information Age provides a clear set of guidelines and principles for exploiting the potential benefits of aggregated health dataâ€"without jeopardizing confidentiality. A panel of experts identifies characteristics of emerging health database organizations (HDOs). The committee explores how HDOs can maintain the quality of their data, what policies and practices they should adopt, how they can prepare for linkages with computer-based patient records, and how diverse groups from researchers to health care administrators might use aggregated data. Health Data in the Information Age offers frank analysis and guidelines that will be invaluable to anyone interested in the operation of health care databases.

Sharing Clinical Trial Data

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309316324
Total Pages : 304 pages
Book Rating : 4.3/5 (93 download)

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Book Synopsis Sharing Clinical Trial Data by : Institute of Medicine

Download or read book Sharing Clinical Trial Data written by Institute of Medicine and published by National Academies Press. This book was released on 2015-04-20 with total page 304 pages. Available in PDF, EPUB and Kindle. Book excerpt: Data sharing can accelerate new discoveries by avoiding duplicative trials, stimulating new ideas for research, and enabling the maximal scientific knowledge and benefits to be gained from the efforts of clinical trial participants and investigators. At the same time, sharing clinical trial data presents risks, burdens, and challenges. These include the need to protect the privacy and honor the consent of clinical trial participants; safeguard the legitimate economic interests of sponsors; and guard against invalid secondary analyses, which could undermine trust in clinical trials or otherwise harm public health. Sharing Clinical Trial Data presents activities and strategies for the responsible sharing of clinical trial data. With the goal of increasing scientific knowledge to lead to better therapies for patients, this book identifies guiding principles and makes recommendations to maximize the benefits and minimize risks. This report offers guidance on the types of clinical trial data available at different points in the process, the points in the process at which each type of data should be shared, methods for sharing data, what groups should have access to data, and future knowledge and infrastructure needs. Responsible sharing of clinical trial data will allow other investigators to replicate published findings and carry out additional analyses, strengthen the evidence base for regulatory and clinical decisions, and increase the scientific knowledge gained from investments by the funders of clinical trials. The recommendations of Sharing Clinical Trial Data will be useful both now and well into the future as improved sharing of data leads to a stronger evidence base for treatment. This book will be of interest to stakeholders across the spectrum of research--from funders, to researchers, to journals, to physicians, and ultimately, to patients.

Statistical Disclosure Control in Practice

Author : Leon Willenborg
Publisher : Springer Science & Business Media
ISBN 13 : 146124028X
Total Pages : 164 pages
Book Rating : 4.4/5 (612 download)

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Book Synopsis Statistical Disclosure Control in Practice by : Leon Willenborg

Download or read book Statistical Disclosure Control in Practice written by Leon Willenborg and published by Springer Science & Business Media. This book was released on 2012-12-06 with total page 164 pages. Available in PDF, EPUB and Kindle. Book excerpt: The aim of this book is to discuss various aspects associated with disseminating personal or business data collected in censuses or surveys or copied from administrative sources. The problem is to present the data in such a form that they are useful for statistical research and to provide sufficient protection for the individuals or businesses to whom the data refer. The major part of this book is concerned with how to define the disclosure problem and how to deal with it in practical circumstances.

Registries for Evaluating Patient Outcomes

Author : Agency for Healthcare Research and Quality/AHRQ
Publisher : Government Printing Office
ISBN 13 : 1587634333
Total Pages : 396 pages
Book Rating : 4.5/5 (876 download)

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Book Synopsis Registries for Evaluating Patient Outcomes by : Agency for Healthcare Research and Quality/AHRQ

Download or read book Registries for Evaluating Patient Outcomes written by Agency for Healthcare Research and Quality/AHRQ and published by Government Printing Office. This book was released on 2014-04-01 with total page 396 pages. Available in PDF, EPUB and Kindle. Book excerpt: This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. For the purposes of this guide, a patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes. A registry database is a file (or files) derived from the registry. Although registries can serve many purposes, this guide focuses on registries created for one or more of the following purposes: to describe the natural history of disease, to determine clinical effectiveness or cost-effectiveness of health care products and services, to measure or monitor safety and harm, and/or to measure quality of care. Registries are classified according to how their populations are defined. For example, product registries include patients who have been exposed to biopharmaceutical products or medical devices. Health services registries consist of patients who have had a common procedure, clinical encounter, or hospitalization. Disease or condition registries are defined by patients having the same diagnosis, such as cystic fibrosis or heart failure. The User’s Guide was created by researchers affiliated with AHRQ’s Effective Health Care Program, particularly those who participated in AHRQ’s DEcIDE (Developing Evidence to Inform Decisions About Effectiveness) program. Chapters were subject to multiple internal and external independent reviews.

Elements of Statistical Disclosure Control

Author : Leon Willenborg
Publisher : Springer Science & Business Media
ISBN 13 : 1461301211
Total Pages : 273 pages
Book Rating : 4.4/5 (613 download)

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Book Synopsis Elements of Statistical Disclosure Control by : Leon Willenborg

Download or read book Elements of Statistical Disclosure Control written by Leon Willenborg and published by Springer Science & Business Media. This book was released on 2012-12-06 with total page 273 pages. Available in PDF, EPUB and Kindle. Book excerpt: Statistical disclosure control is the discipline that deals with producing statistical data that are safe enough to be released to external researchers. This book concentrates on the methodology of the area. It deals with both microdata (individual data) and tabular (aggregated) data. The book attempts to develop the theory from what can be called the paradigm of statistical confidentiality: to modify unsafe data in such a way that safe (enough) data emerge, with minimum information loss. This book discusses what safe data, are, how information loss can be measured, and how to modify the data in a (near) optimal way. Once it has been decided how to measure safety and information loss, the production of safe data from unsafe data is often a matter of solving an optimization problem. Several such problems are discussed in the book, and most of them turn out to be hard problems that can be solved only approximately. The authors present new results that have not been published before. The book is not a description of an area that is closed, but, on the contrary, one that still has many spots awaiting to be more fully explored. Some of these are indicated in the book. The book will be useful for official, social and medical statisticians and others who are involved in releasing personal or business data for statistical use. Operations researchers may be interested in the optimization problems involved, particularly for the challenges they present. Leon Willenborg has worked at the Department of Statistical Methods at Statistics Netherlands since 1983, first as a researcher and since 1989 as a senior researcher. Since 1989 his main field of research and consultancy has been statistical disclosure control. From 1996-1998 he was the project coordinator of the EU co-funded SDC project.

Statistical Disclosure Control

Author : Anco Hundepool
Publisher : John Wiley & Sons
ISBN 13 : 1118348214
Total Pages : 308 pages
Book Rating : 4.1/5 (183 download)

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Book Synopsis Statistical Disclosure Control by : Anco Hundepool

Download or read book Statistical Disclosure Control written by Anco Hundepool and published by John Wiley & Sons. This book was released on 2012-07-05 with total page 308 pages. Available in PDF, EPUB and Kindle. Book excerpt: A reference to answer all your statistical confidentiality questions. This handbook provides technical guidance on statistical disclosure control and on how to approach the problem of balancing the need to provide users with statistical outputs and the need to protect the confidentiality of respondents. Statistical disclosure control is combined with other tools such as administrative, legal and IT in order to define a proper data dissemination strategy based on a risk management approach. The key concepts of statistical disclosure control are presented, along with the methodology and software that can be used to apply various methods of statistical disclosure control. Numerous examples and guidelines are also featured to illustrate the topics covered. Statistical Disclosure Control: Presents a combination of both theoretical and practical solutions Introduces all the key concepts and definitions involved with statistical disclosure control. Provides a high level overview of how to approach problems associated with confidentiality. Provides a broad-ranging review of the methods available to control disclosure. Explains the subtleties of group disclosure control. Features examples throughout the book along with case studies demonstrating how particular methods are used. Discusses microdata, magnitude and frequency tabular data, and remote access issues. Written by experts within leading National Statistical Institutes. Official statisticians, academics and market researchers who need to be informed and make decisions on disclosure limitation will benefit from this book.

The Disclosure of Climate Data from the Climatic Research Unit at the University of East Anglia

Author :
Publisher : The Stationery Office
ISBN 13 : 9780215553409
Total Pages : 208 pages
Book Rating : 4.5/5 (534 download)

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Book Synopsis The Disclosure of Climate Data from the Climatic Research Unit at the University of East Anglia by :

Download or read book The Disclosure of Climate Data from the Climatic Research Unit at the University of East Anglia written by and published by The Stationery Office. This book was released on 2010 with total page 208 pages. Available in PDF, EPUB and Kindle. Book excerpt: disclosure of climate data from the Climatic Research Unit at the University of East Anglia : Eighth report of session 2009-10, Vol. 2: Oral and written Evidence

Full Disclosure

Author : Camryn Garrett
Publisher : Ember
ISBN 13 : 198482998X
Total Pages : 322 pages
Book Rating : 4.9/5 (848 download)

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Book Synopsis Full Disclosure by : Camryn Garrett

Download or read book Full Disclosure written by Camryn Garrett and published by Ember. This book was released on 2020-12-01 with total page 322 pages. Available in PDF, EPUB and Kindle. Book excerpt: "An unflinchingly honest, eye-opening, heartful story that's sure to keep readers talking." --Angie Thomas, #1 New York Times bestselling author of The Hate U Give and On the Come Up "Romantic, funny, hopeful, and unflinchingly real." --Becky Albertalli, New York Times bestselling author of Simon Vs. The Homosapiens Agenda The uplifting story of an HIV-positive teen, falling in love and learning to live her truth. Simone Garcia-Hampton is starting over at a new school, and this time things will be different. She's making real friends, making a name for herself as student director of Rent, and making a play for Miles, the guy who makes her melt every time he walks into a room. The last thing she wants is for word to get out that she's HIV-positive, because last time . . . well, last time things got ugly. Keeping her viral load under control is easy, but keeping her diagnosis under wraps is not so simple. As Simone and Miles start going out for real--shy kisses escalating into much more--she feels an uneasiness that goes beyond butterflies. She knows she has to tell him that she's positive, especially if sex is a possibility, but she's terrified of how he'll react! And then she finds an anonymous note in her locker: I know you have HIV. You have until Thanksgiving to stop hanging out with Miles. Or everyone else will know too. Simone's first instinct is to protect her secret at all costs, but as she gains a deeper understanding of the prejudice and fear in her community, she begins to wonder if the only way to rise above is to face the haters head-on. . . . "Full Disclosure is such a joy to read." --Erika Sanchez, National Book Award finalist for I Am Not Your Perfect Mexican Daughter "A big-hearted love letter to inclusivity, bravery, and acceptance, Full Disclosure is a wonder of a book." --Kathleen Glasgow, New York Times bestselling author of Girl in Pieces

United States Code

Author : United States
Publisher :
ISBN 13 :
Total Pages : 1464 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis United States Code by : United States

Download or read book United States Code written by United States and published by . This book was released on 1971 with total page 1464 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Report on Statistical Disclosure and Disclosure-avoidance Techniques

Author : United States. Federal Committee on Statistical Methodology. Subcommittee on Disclosure-Avoidance Techniques
Publisher :
ISBN 13 :
Total Pages : 84 pages
Book Rating : 4.:/5 (319 download)

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Book Synopsis Report on Statistical Disclosure and Disclosure-avoidance Techniques by : United States. Federal Committee on Statistical Methodology. Subcommittee on Disclosure-Avoidance Techniques

Download or read book Report on Statistical Disclosure and Disclosure-avoidance Techniques written by United States. Federal Committee on Statistical Methodology. Subcommittee on Disclosure-Avoidance Techniques and published by . This book was released on 1978 with total page 84 pages. Available in PDF, EPUB and Kindle. Book excerpt:

The Disclosure of Climate Data from the Climatic Research Unit at the University of East Anglia

Author : Great Britain: Parliament: House of Commons: Science and Technology Committee
Publisher : The Stationery Office
ISBN 13 : 9780215553362
Total Pages : 68 pages
Book Rating : 4.5/5 (533 download)

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Book Synopsis The Disclosure of Climate Data from the Climatic Research Unit at the University of East Anglia by : Great Britain: Parliament: House of Commons: Science and Technology Committee

Download or read book The Disclosure of Climate Data from the Climatic Research Unit at the University of East Anglia written by Great Britain: Parliament: House of Commons: Science and Technology Committee and published by The Stationery Office. This book was released on 2010 with total page 68 pages. Available in PDF, EPUB and Kindle. Book excerpt: In this report on the disclosure of climate data from the Climatic Research Unit (CRU) at the University of East Anglia, the Science and Technology Committee calls for the climate science community to become more transparent by publishing raw data and detailed methodologies. On the accusations relating to Professor Phil Jones's refusal to share raw data and computer codes, the Committee finds there was no systematic attempt to mislead and considers that his actions were in line with common practice in the climate science community, but those practices need to change. The Committee welcomes the appointment of the independent Climate Change E-mails Review led by Sir Muir Russell to investigate fully the allegations against CRU. The Committee has not looked at the science produced by CRU and it will be for the Scientific Appraisal Panel, announced by the University on 22 March, to determine whether the work of CRU has been soundly built. On the mishandling of Freedom of Information (FoI) requests, the Committee considers that much of the responsibility should lie with the University, not CRU. The leaked emails appear to show a culture of non-disclosure at CRU and instances where information may have been deleted to avoid disclosure, particularly to climate change sceptics. The failure of the University to grasp fully the potential damage this could do and did was regrettable. The University needs to re-assess how it can support academics whose expertise in FoI requests is limited.

A Guidebook for Using Home Mortgage Disclosure Data for Community Development and Maintenance

Author : Northeast Ohio Areawide Coordinating Agency
Publisher :
ISBN 13 :
Total Pages : 140 pages
Book Rating : 4.3/5 (121 download)

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Book Synopsis A Guidebook for Using Home Mortgage Disclosure Data for Community Development and Maintenance by : Northeast Ohio Areawide Coordinating Agency

Download or read book A Guidebook for Using Home Mortgage Disclosure Data for Community Development and Maintenance written by Northeast Ohio Areawide Coordinating Agency and published by . This book was released on 1980 with total page 140 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Data Driven

Author : Thomas C. Redman
Publisher : Harvard Business Press
ISBN 13 : 1422163644
Total Pages : 257 pages
Book Rating : 4.4/5 (221 download)

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Book Synopsis Data Driven by : Thomas C. Redman

Download or read book Data Driven written by Thomas C. Redman and published by Harvard Business Press. This book was released on 2008-09-22 with total page 257 pages. Available in PDF, EPUB and Kindle. Book excerpt: Your company's data has the potential to add enormous value to every facet of the organization -- from marketing and new product development to strategy to financial management. Yet if your company is like most, it's not using its data to create strategic advantage. Data sits around unused -- or incorrect data fouls up operations and decision making. In Data Driven, Thomas Redman, the "Data Doc," shows how to leverage and deploy data to sharpen your company's competitive edge and enhance its profitability. The author reveals: · The special properties that make data such a powerful asset · The hidden costs of flawed, outdated, or otherwise poor-quality data · How to improve data quality for competitive advantage · Strategies for exploiting your data to make better business decisions · The many ways to bring data to market · Ideas for dealing with political struggles over data and concerns about privacy rights Your company's data is a key business asset, and you need to manage it aggressively and professionally. Whether you're a top executive, an aspiring leader, or a product-line manager, this eye-opening book provides the tools and thinking you need to do that.