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Author : Dorothy Tebbutt
Publisher :
ISBN 13 :
Total Pages : 240 pages
Book Rating : 4.:/5 (841 download)
Download or read book Coping and Quality of Life in Families with Childhood Chronic Illness written by Dorothy Tebbutt and published by . This book was released on 1996 with total page 240 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Author : Lorraine M. Wright
Publisher :
ISBN 13 :
Total Pages : 428 pages
Book Rating : 4.4/5 (91 download)
Download or read book Families & Chronic Illness written by Lorraine M. Wright and published by . This book was released on 1987 with total page 428 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Author : Christine Eiser
Publisher : Jessica Kingsley Publishers
ISBN 13 : 9781853021688
Total Pages : 260 pages
Book Rating : 4.0/5 (216 download)
Download or read book Growing Up with a Chronic Disease written by Christine Eiser and published by Jessica Kingsley Publishers. This book was released on 1993 with total page 260 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book, drawing on theoretical and practical sources, acknowledges the potential for distress involved in caring for a sick child but also emphasizes the coping resources and skills that can be, and frequently are, adopted by families.
Author : Hans Koot
Publisher : Routledge
ISBN 13 : 1317763017
Total Pages : 480 pages
Book Rating : 4.3/5 (177 download)
Download or read book Quality of Life in Child and Adolescent Illness written by Hans Koot and published by Routledge. This book was released on 2014-01-14 with total page 480 pages. Available in PDF, EPUB and Kindle. Book excerpt: How can we measure the quality of life in children and adolescents with chronic disease? Major progress in the diagnosis and treatment of severe and chronic disease has led to an increased number of children and their families having to adapt and cope with the impact of disease, survival, and the cost of treatment. Health professionals have responded to this by developing a diversity of instruments for measuring quality of life for use in paediatrics, psychology and public health. This book introduces the reader to the emerging field of quality of life assessment and provides a comprehensive overview of the conceptual and methodological issues concerning quality of life in child and adolescent illness. Particular emphasis is provided on current efforts to measure the impact of specific chronic conditions on different domains of child functioning. Future directions are outlined for the development of appropriate instruments for measuring quality of life in children and adolescents. Quality of Life in Child and Adolescent Illness is intended for psychologists, paediatricians, paediatric nurses, child psychiatrists, public health professionals, researchers and other interested readers from the undergraduate to the working professional.
Author : Robert E. Cole
Publisher : Routledge
ISBN 13 : 1134769377
Total Pages : 278 pages
Book Rating : 4.1/5 (347 download)
Download or read book How Do Families Cope With Chronic Illness? written by Robert E. Cole and published by Routledge. This book was released on 2013-05-13 with total page 278 pages. Available in PDF, EPUB and Kindle. Book excerpt: Because chronic disorder is becoming an ordinary feature of family life and development, understanding its impact has become critical. This volume, and the conference proceedings it reports, represents a major effort to examine the family's response to chronic physical or psychopathological illness in one or more of its members. Recent data are revising our notions of chronic illness. Evidence is mounting that chronic psychiatric disorders reflect, in part, abnormalities of brain structure and function. In this sense, they are, in part, medical disorders. On the other hand, a number of traditionally labeled medical disorders produce a broad range of psychological symptoms and are exquisitely sensitive to psychosocial influences. Families undergo a complex process of adaptation during which their response to stress and their fundamental beliefs about learning and parenting change. These beliefs endure and are difficult to alter. By examining the processes in a wide range of chronic conditions, this volume helps to identify the common, underlying processes of adaptation. The first three chapters concern the families' responses to disorders that are distinctly medical; the next three focus on families' responses to "grey zone" disorders or anomalies that appear early in life, minor physical anomalies, and communication handicaps; and one chapter focuses exclusively on schizophrenia. The last chapter reflects an effort to develop a model based on the experience of researchers with both psychiatric and medical illness.
Author : Elissa Lampe Deggelman
Publisher :
ISBN 13 :
Total Pages : 85 pages
Book Rating : 4.:/5 (774 download)
Download or read book Coping and Quality of Life for Siblings of Children with Chronic Illness written by Elissa Lampe Deggelman and published by . This book was released on 2011 with total page 85 pages. Available in PDF, EPUB and Kindle. Book excerpt: Chronic illnesses affect the sick-child's entire family, including his or her siblings. Research has revealed illness parameters and well-sibling demographic factors that may impact the psychosocial adjustment of well-siblings. The present study examined well-sibling age and gender, illness severity, and time since diagnosis to predict well-sibling quality of life. Coping was used to predict well-sibling adjustment after controlling for significant demographic or illness parameters that were predictors of well-sibling adjustment. Types of coping examined included approach and avoidance coping styles, total number of coping strategies, and a relative coping ratio of avoidance coping styles. Potential differences in well-sibling adjustment according to informant were also examined, including parent-report and self-report. Participants included 43 well-siblings of children with cystic fibrosis, aged 7 to 19 years, who presented in a children's hospital's cystic fibrosis clinic. Well-siblings completed assessments quality of life and strategies for coping with cystic fibrosis. Parents completed demographic questionnaires and quality of life assessments for both the sick-child and the well-sibling. Results found that well-sibling age and total number of coping strategies used were significant predictors of adjustment. Well-sibling adjustment as measured by quality of life was more impaired than previous studies found that examined psychopathology, and well-sibling self-report was significantly more impaired than parent-report of adjustment. These data emphasize the importance of obtaining quality of life ratings directly from the well-sibling rather than relying on parental report. Future research should incorporate measures of well-siblings' knowledge of the illness and well-siblings' ratings of severity of the illness. Additionally, future intervention studies should seek to incorporate coping curriculum to help improve well-sibling adjustment.
Author : Lindy Burton
Publisher : Routledge
ISBN 13 : 1000580202
Total Pages : 229 pages
Book Rating : 4.0/5 (5 download)
Download or read book The Family Life of Sick Children written by Lindy Burton and published by Routledge. This book was released on 2022-05-24 with total page 229 pages. Available in PDF, EPUB and Kindle. Book excerpt: Originally published in 1975, this book traces the problems which arise for families coping with a chronic childhood disease – cystic fibrosis. The discussion of these problems is important for the families of other seriously ill or disabled children, all of whom are faced with similar implications of their situation. The book looks at the stressful situations which face them: mastering the child’s treatment technique, assisting them to come to terms with their disease. It deals with the practical problems which arise for the parents and siblings of a sick child and explores the profound repercussions of the loss of a child on the entire family, considering the ways in which many of these families managed to transcend their problems.
Author : Ginger L. Welch
Publisher : Springer
ISBN 13 : 3319260332
Total Pages : 238 pages
Book Rating : 4.3/5 (192 download)
Download or read book Family Resilience and Chronic Illness written by Ginger L. Welch and published by Springer. This book was released on 2016-07-29 with total page 238 pages. Available in PDF, EPUB and Kindle. Book excerpt: This interdisciplinary volume offers theoretical, empirical, and practical insights into the strengths of families beset by chronic health issues. Featuring topics that run the lifespan from infancy to late adulthood, its coverage reflects both the diversity of family challenges in long-term illness and the wealth of effective approaches to intervention. The component skills of resilience in life-changing circumstances, from coping and meaning making to balancing care and self-care, are on rich display in a framework for their enhancement in therapy. The book’s expert contributors include tools to aid readers in the learning and teaching of concepts as they model respectful, meaningful research methods and ethical, non-judgmental practice. Among the topics covered: Helping families survive and thrive through the premature birth of an infant. Enhancing coping and resiliency among families of individuals with sickle cell disease. A family science approach to pediatric obesity treatment. Risk and resilience of children and families involved with the foster care system. Strengthening families facing breast cancer: emerging trends and clinical recommendations. The unfolding of unique problems in later life families. With its mix of practical and empirical expertise, Family Resilience and Chronic Illness: Interdisciplinary and Translational Perspectives has much to offer both researchers in the family resilience field and mental health practitioners working with clients with chronic illness.
Author : Christine Eiser
Publisher : Routledge
ISBN 13 : 1135659699
Total Pages : 591 pages
Book Rating : 4.1/5 (356 download)
Download or read book Children With Cancer written by Christine Eiser and published by Routledge. This book was released on 2004-04-12 with total page 591 pages. Available in PDF, EPUB and Kindle. Book excerpt: Cancer is a very rare disease in children. There have been impressive gains in survival in recent years, and these have been achieved through the use of chemotherapy and national and international clinical trials. The diagnosis of cancer in a child imposes considerable stress on the whole family. In the immediate time after diagnosis, parents must learn about the disease and its treatment, explain what is happening to the child, and make arrangements for the care of other children in the family. For the child, treatment is associated with many side effects depending on the specific drugs used. In addition, the child is prone to infection and therefore is likely to miss a lot of school and other activities. For all these reasons, physicians and families have become aware that cancer has huge implications for the quality of the child's life. This book is an attempt to describe how quality of life is affected at different stages of the disease process. Comprehensive reviews are provided of the impact on the child's physical activity, social life, and school and educational achievements. Special consideration is given to children with leukemia (one of the more common cancers) and brain tumors. Cancer does not just affect the child but every member of the family. Consequently there is coverage of the effects on parents and also healthy brothers and sisters. To the extent that improvements in survival have been achieved by national and international collaboration between clinicians, it is concluded that efforts to improve the quality of these children's lives is dependent on collaboration between clinicians, nurses, and behavioral scientists at national and international levels. This book should provide an impetus for such collaboration.
Author : Debra P. Hymovich
Publisher :
ISBN 13 :
Total Pages : 356 pages
Book Rating : 4.3/5 (91 download)
Download or read book Chronic Illness in Children and Adults written by Debra P. Hymovich and published by . This book was released on 1992 with total page 356 pages. Available in PDF, EPUB and Kindle. Book excerpt: Provides a model to analyze the impact of chronic illness on the large population, patients and families, who are affected by it. Illustrates a systematic approach for psychosocial assessment and interventions. This text brings together ideas from extensive research and provides a perspective on chronic illness throughout the lifespan. Through case studies and a well researched nursing model, the book provides innovative approaches for the hospital and community-based nurse. Special features include a review of literature specific to chronicity, excellent diagrams and charts to highlight content, and chapters on time, coping, orientation to life, and stressors.
Author : Alesia T. Barrett Singer M.a.
Publisher : Robert Reed Publishers
ISBN 13 : 9781885003140
Total Pages : 92 pages
Book Rating : 4.0/5 (31 download)
Download or read book Coping with Your Child's Chronic Illness written by Alesia T. Barrett Singer M.a. and published by Robert Reed Publishers. This book was released on 2010 with total page 92 pages. Available in PDF, EPUB and Kindle. Book excerpt: A practical guide for parents who need support, ideas and resources for dealing with their child's chronic illness. Covers communicating with your child's doctor, educating yourself about your child's illness, talking to your child, schooling, and avoiding burn-out and depression.
Author : Laura L. Hayman, PhD, RN, FAAN
Publisher : Springer Publishing Company
ISBN 13 : 082619799X
Total Pages : 256 pages
Book Rating : 4.8/5 (261 download)
Download or read book Chronic Illness in Children written by Laura L. Hayman, PhD, RN, FAAN and published by Springer Publishing Company. This book was released on 2002-09-05 with total page 256 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book provides a research-based discussion of common childhood chronic illnesses and their etiology, diagnosis, treatment, and management. Along with information on specific diseases and conditions, such as asthma, diabetes, and arthritis, the book includes chapters on psychosocial management, focusing on family coping, stress on the child, and adherence. This is a rich resource for nurses and other health practitioners looking for an overview of children's chronic illness in an evidence-based context.
Author : Sherry L. Nelson
Publisher :
ISBN 13 :
Total Pages : 124 pages
Book Rating : 4.3/5 (129 download)
Download or read book Childhood Chronic Illness written by Sherry L. Nelson and published by . This book was released on 1997 with total page 124 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Author : Cindy Dell Clark
Publisher : Rutgers University Press
ISBN 13 : 9780813532707
Total Pages : 244 pages
Book Rating : 4.5/5 (327 download)
Download or read book In Sickness and in Play written by Cindy Dell Clark and published by Rutgers University Press. This book was released on 2003 with total page 244 pages. Available in PDF, EPUB and Kindle. Book excerpt: The author's 46 interviews with the families of children with chronic illness give an understanding of how the children comprehend their illnesses and how parents struggle daily to care for their kids while trying to give them a 'normal' childhood.
Author : Youngran Tak
Publisher :
ISBN 13 :
Total Pages : 422 pages
Book Rating : 4.:/5 (89 download)
Download or read book Family Stress, Perceived Social Support, and Coping of Family who Has a Child with Chronic Illness written by Youngran Tak and published by . This book was released on 1994 with total page 422 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Author : Linda Jan Spence
Publisher :
ISBN 13 :
Total Pages : 440 pages
Book Rating : 4.3/5 (129 download)
Download or read book Family Adaptation to Chronic Childhood Illness written by Linda Jan Spence and published by . This book was released on 1992 with total page 440 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Author : Adolph E. Christ
Publisher : Springer
ISBN 13 :
Total Pages : 232 pages
Book Rating : 4.X/5 (1 download)
Download or read book Psychosocial Family Interventions in Chronic Pediatric Illness written by Adolph E. Christ and published by Springer. This book was released on 1982-05 with total page 232 pages. Available in PDF, EPUB and Kindle. Book excerpt: The symposium "Family Dynamics, Family Therapy, and Pediatric Medical Illness," held at Downstate Medical Center on December 12 and 13, 1980, considered the impact of life-threatening illness in children and adolescents on intrafamilial dynamics. A group of experts addressed the practical and theoretical psychological and social issues facing pediatric patients and their families when con fronting chronic and severe childhood illnesses including brain damage, cancer, hemophilia, juvenile diabetes, and heart disease. The presentations and group discussions clearly revealed the complexity of physical and psychological problems posed by the seriously ill child with chronic disease for both the health care provider and the family. The conference proceedings confirm that quality care and treatment for the ill child requires the partici pation of a variety of health care disciplines representing diverse fields of knowledge. Pediatricians, family practitioners, child psychiatrists, nurses, social workers, psychologists, nutritionists and others all have important collaborative roles to play. The symposium participants wrestled with some of the basic developmental and clinical questions: How is the ongoing development of a family altered as a result of chronic incapacitating illness in a child member? How can principles of intensive family and individ ual psychotherapy be applied during the medical treatment of life threatening illness? What are the psychological stress points during the course of a chronic medical illness? These are but a few of the issues addressed in this publication.
