Confidentiality Privacy And Data Protection In Biomedicine

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Confidentiality, Privacy, and Data Protection in Biomedicine

Author : Edward S. Dove
Publisher : Taylor & Francis
ISBN 13 : 1040132499
Total Pages : 334 pages
Book Rating : 4.0/5 (41 download)

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Book Synopsis Confidentiality, Privacy, and Data Protection in Biomedicine by : Edward S. Dove

Download or read book Confidentiality, Privacy, and Data Protection in Biomedicine written by Edward S. Dove and published by Taylor & Francis. This book was released on 2024-09-19 with total page 334 pages. Available in PDF, EPUB and Kindle. Book excerpt: Featuring contributions from leading scholars of health privacy law, this important volume offers insightful reflection on issues such as confidentiality, privacy, and data protection, as well as analysis in how a range of jurisdictions—including the US, the UK, Europe, South Africa, and Australia—navigate a rapidly developing biomedical environment. While the collection of personal health information offers the potential to drive research and innovation, it also generates complex legal and ethical questions in how this information is used to ensure the rights and interests of individuals and communities are respected. But in many ways laws have struggled to keep pace with technological developments. This book therefore seeks to fill a lacuna for legal insight and reflection. Over three parts, the book first explores the conceptual landscape which law and legal institutions must contend, and then turns to examine practical issues such as the GDPR, secondary use of data for research, genomic research, and data trusts. With cutting-edge analysis drawing on domestic and international case law, legislation, and policy, this comprehensive volume will prove fascinating reading for all students and researchers interested in this evolving and contentious area of study.

Handbook of Research on Computational Grid Technologies for Life Sciences, Biomedicine, and Healthcare

Author : Cannataro, Mario
Publisher : IGI Global
ISBN 13 : 1605663751
Total Pages : 960 pages
Book Rating : 4.6/5 (56 download)

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Book Synopsis Handbook of Research on Computational Grid Technologies for Life Sciences, Biomedicine, and Healthcare by : Cannataro, Mario

Download or read book Handbook of Research on Computational Grid Technologies for Life Sciences, Biomedicine, and Healthcare written by Cannataro, Mario and published by IGI Global. This book was released on 2009-05-31 with total page 960 pages. Available in PDF, EPUB and Kindle. Book excerpt: "This book provides methodologies and developments of grid technologies applied in different fields of life sciences"--Provided by publisher.

Health Law, Human Rights And the Biomedicine Convention

Author : H. D. C. Roscam Abbing
Publisher : Martinus Nijhoff Publishers
ISBN 13 : 9004148221
Total Pages : 295 pages
Book Rating : 4.0/5 (41 download)

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Book Synopsis Health Law, Human Rights And the Biomedicine Convention by : H. D. C. Roscam Abbing

Download or read book Health Law, Human Rights And the Biomedicine Convention written by H. D. C. Roscam Abbing and published by Martinus Nijhoff Publishers. This book was released on 2005 with total page 295 pages. Available in PDF, EPUB and Kindle. Book excerpt: In 1997, the Council of Europe established the Convention on Human Rights and Biomedicine. It is generally regarded as an important addition to the general human rights laid down in the European Convention for the Protection of Human Rights and Fundamental Freedoms (1950), in particular with a view to the developments in modern biology and medicine. The Biomedicine Convention, which entered into force in 2000, is a framework treaty, meaning that a number of issues have to be dealt with or will be elaborated in additional Protocols; at this moment, three such Protocols have already been opened for signature. This volume of essays, written in honour of Henriette Roscam Abbing upon her retirement as Professor of Health Law at the University of Utrecht, gives an overview of some of the most important issues raised by the Convention. In six parts, this volume discusses the basic concepts and leading principles; the provision of services; the rights of patients; research; human tissue and genetics; and the implementation of the Convention.

Protecting Data Privacy in Health Services Research

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309071879
Total Pages : 208 pages
Book Rating : 4.3/5 (9 download)

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Book Synopsis Protecting Data Privacy in Health Services Research by : Institute of Medicine

Download or read book Protecting Data Privacy in Health Services Research written by Institute of Medicine and published by National Academies Press. This book was released on 2001-01-13 with total page 208 pages. Available in PDF, EPUB and Kindle. Book excerpt: The need for quality improvement and for cost saving are driving both individual choices and health system dynamics. The health services research that we need to support informed choices depends on access to data, but at the same time, individual privacy and patient-health care provider confidentiality must be protected.

Privacy and Medical Confidentiality in Healthcare

Author : Thierry Vansweevelt
Publisher : Edward Elgar Publishing
ISBN 13 : 1035309432
Total Pages : 323 pages
Book Rating : 4.0/5 (353 download)

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Book Synopsis Privacy and Medical Confidentiality in Healthcare by : Thierry Vansweevelt

Download or read book Privacy and Medical Confidentiality in Healthcare written by Thierry Vansweevelt and published by Edward Elgar Publishing. This book was released on 2023-12-11 with total page 323 pages. Available in PDF, EPUB and Kindle. Book excerpt: This seminal book delivers an international examination of the duty of medical confidentiality and a patient’s right to privacy in the face of contemporary threats such as cyber-security, patient autonomy, and the greater reliance on telemedicine post Covid-19 pandemic.

Rethinking Informed Consent in Bioethics

Author : Neil C. Manson
Publisher : Cambridge University Press
ISBN 13 : 1139463209
Total Pages : 15 pages
Book Rating : 4.1/5 (394 download)

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Book Synopsis Rethinking Informed Consent in Bioethics by : Neil C. Manson

Download or read book Rethinking Informed Consent in Bioethics written by Neil C. Manson and published by Cambridge University Press. This book was released on 2007-03-29 with total page 15 pages. Available in PDF, EPUB and Kindle. Book excerpt: Informed consent is a central topic in contemporary biomedical ethics. Yet attempts to set defensible and feasible standards for consenting have led to persistent difficulties. In Rethinking Informed Consent in Bioethics, first published in 2007, Neil Manson and Onora O'Neill set debates about informed consent in medicine and research in a fresh light. They show why informed consent cannot be fully specific or fully explicit, and why more specific consent is not always ethically better. They argue that consent needs distinctive communicative transactions, by which other obligations, prohibitions, and rights can be waived or set aside in controlled and specific ways. Their book offers a coherent, wide-ranging and practical account of the role of consent in biomedicine which will be valuable to readers working in a range of areas in bioethics, medicine and law.

Data Matters

Author : National Academies of Sciences, Engineering, and Medicine
Publisher : National Academies Press
ISBN 13 : 030948247X
Total Pages : 103 pages
Book Rating : 4.3/5 (94 download)

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Book Synopsis Data Matters by : National Academies of Sciences, Engineering, and Medicine

Download or read book Data Matters written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2019-01-28 with total page 103 pages. Available in PDF, EPUB and Kindle. Book excerpt: In an increasingly interconnected world, perhaps it should come as no surprise that international collaboration in science and technology research is growing at a remarkable rate. As science and technology capabilities grow around the world, U.S.-based organizations are finding that international collaborations and partnerships provide unique opportunities to enhance research and training. International research agreements can serve many purposes, but data are always involved in these collaborations. The kinds of data in play within international research agreements varies widely and may range from financial and consumer data, to Earth and space data, to population behavior and health data, to specific project-generated dataâ€"this is just a narrow set of examples of research data but illustrates the breadth of possibilities. The uses of these data are various and require accounting for the effects of data access, use, and sharing on many different parties. Cultural, legal, policy, and technical concerns are also important determinants of what can be done in the realms of maintaining privacy, confidentiality, and security, and ethics is a lens through which the issues of data, data sharing, and research agreements can be viewed as well. A workshop held on March 14-16, 2018, in Washington, DC explored the changing opportunities and risks of data management and use across disciplinary domains. The third workshop in a series, participants gathered to examine advisory principles for consideration when developing international research agreements, in the pursuit of highlighting promising practices for sustaining and enabling international research collaborations at the highest ethical level possible. The intent of the workshop was to explore, through an ethical lens, the changing opportunities and risks associated with data management and use across disciplinary domainsâ€"all within the context of international research agreements. This publication summarizes the presentations and discussions from the workshop.

From Genes to Personalized Healthcare

Author : Nicolas Jacq
Publisher : IOS Press
ISBN 13 : 1586037382
Total Pages : 356 pages
Book Rating : 4.5/5 (86 download)

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Book Synopsis From Genes to Personalized Healthcare by : Nicolas Jacq

Download or read book From Genes to Personalized Healthcare written by Nicolas Jacq and published by IOS Press. This book was released on 2007 with total page 356 pages. Available in PDF, EPUB and Kindle. Book excerpt: The main focus of this publication is on technologies, solutions and requirements that interest the grid and the life-science communities to foster the integration of grids into health. The proceedings are especially interesting for grid middleware and grid application developers, biomedical and health informatics users, and security and policy makers with a common focus on the application in the health domain. Topics in this publication are: State-of-the-art of the grid research and use at molecule, cell, organ, individual and population levels; and security and imaging. In security, data protection and pseudonymization are being discussed. In imaging, there's Globus MEDICUS, which federates DICOM devices through a grid architecture and KnowARC on facilitating grid networks for the biomedical research community. Finally, there's a report on the successful use of multimodal workflows in diabetic retinopathy research.

The International Law of Biotechnology

Author : Matthias Herdegen
Publisher : Edward Elgar Publishing
ISBN 13 : 1035302055
Total Pages : 219 pages
Book Rating : 4.0/5 (353 download)

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Book Synopsis The International Law of Biotechnology by : Matthias Herdegen

Download or read book The International Law of Biotechnology written by Matthias Herdegen and published by Edward Elgar Publishing. This book was released on 2023-01-20 with total page 219 pages. Available in PDF, EPUB and Kindle. Book excerpt: In this thoroughly updated second edition, Matthias Herdegen provides a comprehensive and contemporary assessment of the regulation of biotechnology processes and products from an international and comparative perspective, complete with analysis of intricate legal and ethical debates.

Medical Confidentiality and Crime

Author : Sabine Michalowski
Publisher : Routledge
ISBN 13 : 1351918761
Total Pages : 415 pages
Book Rating : 4.3/5 (519 download)

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Book Synopsis Medical Confidentiality and Crime by : Sabine Michalowski

Download or read book Medical Confidentiality and Crime written by Sabine Michalowski and published by Routledge. This book was released on 2017-10-24 with total page 415 pages. Available in PDF, EPUB and Kindle. Book excerpt: Medical confidentiality is universally recognised as a value worth protecting. However, difficulties arise when confidential medical information becomes relevant in the context of crime prevention and criminal prosecution. Should medical confidentiality be upheld where the physician holds information which is essential for the investigation of a serious crime; for establishing the truth in a criminal trial; for an accused’s defence; or for the prevention of a criminal offence? And according to which criteria should such decisions be made? Based on an examination of different approaches in medical ethics and a comparison of the relevant law of France, Germany, England and Wales and the US, this book analyses how a balance of the competing interests can best be struck.

Research Anthology on Privatizing and Securing Data

Author : Management Association, Information Resources
Publisher : IGI Global
ISBN 13 : 1799889556
Total Pages : 2188 pages
Book Rating : 4.7/5 (998 download)

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Book Synopsis Research Anthology on Privatizing and Securing Data by : Management Association, Information Resources

Download or read book Research Anthology on Privatizing and Securing Data written by Management Association, Information Resources and published by IGI Global. This book was released on 2021-04-23 with total page 2188 pages. Available in PDF, EPUB and Kindle. Book excerpt: With the immense amount of data that is now available online, security concerns have been an issue from the start, and have grown as new technologies are increasingly integrated in data collection, storage, and transmission. Online cyber threats, cyber terrorism, hacking, and other cybercrimes have begun to take advantage of this information that can be easily accessed if not properly handled. New privacy and security measures have been developed to address this cause for concern and have become an essential area of research within the past few years and into the foreseeable future. The ways in which data is secured and privatized should be discussed in terms of the technologies being used, the methods and models for security that have been developed, and the ways in which risks can be detected, analyzed, and mitigated. The Research Anthology on Privatizing and Securing Data reveals the latest tools and technologies for privatizing and securing data across different technologies and industries. It takes a deeper dive into both risk detection and mitigation, including an analysis of cybercrimes and cyber threats, along with a sharper focus on the technologies and methods being actively implemented and utilized to secure data online. Highlighted topics include information governance and privacy, cybersecurity, data protection, challenges in big data, security threats, and more. This book is essential for data analysts, cybersecurity professionals, data scientists, security analysts, IT specialists, practitioners, researchers, academicians, and students interested in the latest trends and technologies for privatizing and securing data.

Data Protection and Privacy in Healthcare

Author : Ahmed Elngar
Publisher : CRC Press
ISBN 13 : 1000349357
Total Pages : 188 pages
Book Rating : 4.0/5 (3 download)

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Book Synopsis Data Protection and Privacy in Healthcare by : Ahmed Elngar

Download or read book Data Protection and Privacy in Healthcare written by Ahmed Elngar and published by CRC Press. This book was released on 2021-03-10 with total page 188 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Healthcare industry is one of the largest and rapidly developing industries. Over the last few years, healthcare management is changing from disease centered to patient centered. While on one side the analysis of healthcare data plays an important role in healthcare management, but on the other side the privacy of a patient’s record must be of equal concern. This book uses a research-oriented approach and focuses on privacy-based healthcare tools and technologies. It offers details on privacy laws with real-life case studies and examples, and addresses privacy issues in newer technologies such as Cloud, Big Data, and IoT. It discusses the e-health system and preserving its privacy, and the use of wearable technologies for patient monitoring, data streaming and sharing, and use of data analysis to provide various health services. This book is written for research scholars, academicians working in healthcare and data privacy domains, as well as researchers involved with healthcare law, and those working at facilities in security and privacy domains. Students and industry professionals, as well as medical practitioners might also find this book of interest.

International Health Law and Ethics

Author : André den Exter
Publisher : Maklu
ISBN 13 : 9046607925
Total Pages : 730 pages
Book Rating : 4.0/5 (466 download)

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Book Synopsis International Health Law and Ethics by : André den Exter

Download or read book International Health Law and Ethics written by André den Exter and published by Maklu. This book was released on 2015 with total page 730 pages. Available in PDF, EPUB and Kindle. Book excerpt: International Health Law and Ethics. Basic Documents contains a collection of treaty documents and soft law on health care rights and health ethics, used in health law training programs. Regional documents and explanatory reports on health care rights, which are derived from international human rights law, provide a way of “unwrapping” government obligations in health care, making rights more specific, accessible and (judicially) accountable. In addition, soft law declarations and medical ethics contribute to understanding the moral meaning of human rights in health care. As such, the principles and standards provide practical guidance for States when dealing with equal access to health care services, the rights of (categories of) patients, biomedical research, organ donation and transplantation, genetics and public health. These topics structure the approach of International Health Law and Ethics. This guide covers the basic documents, while general comments and explanatory reports amplify the principles embodied in the human rights treaties. The authoritative interpretations clarify a ‘European approach’ on the State’s obligations concerning health care rights and ethics. This volume is an initiative of the Erasmus Observatory on Health Law. It will be a helpful guide for all trainers, health care professionals and students interested in human rights issues in health care.

Genomics and Bioethics: Interdisciplinary Perspectives, Technologies and Advancements

Author : Hongladarom, Soraj
Publisher : IGI Global
ISBN 13 : 1616928859
Total Pages : 331 pages
Book Rating : 4.6/5 (169 download)

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Book Synopsis Genomics and Bioethics: Interdisciplinary Perspectives, Technologies and Advancements by : Hongladarom, Soraj

Download or read book Genomics and Bioethics: Interdisciplinary Perspectives, Technologies and Advancements written by Hongladarom, Soraj and published by IGI Global. This book was released on 2010-09-30 with total page 331 pages. Available in PDF, EPUB and Kindle. Book excerpt: "This book focuses on ethical, social, cultural, and legal implications of genetics, genomics and genetic databanking as they relate to concrete cultural and historical traditions"--Provided by publisher.

Biomedical Informatics

Author : Edward H. Shortliffe
Publisher : Springer Science & Business Media
ISBN 13 : 0387362789
Total Pages : 1060 pages
Book Rating : 4.3/5 (873 download)

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Book Synopsis Biomedical Informatics by : Edward H. Shortliffe

Download or read book Biomedical Informatics written by Edward H. Shortliffe and published by Springer Science & Business Media. This book was released on 2006-12-02 with total page 1060 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book focuses on the role of computers in the provision of medical services. It provides both a conceptual framework and a practical approach for the implementation and management of IT used to improve the delivery of health care. Inspired by a Stanford University training program, it fills the need for a high quality text in computers and medicine. It meets the growing demand by practitioners, researchers, and students for a comprehensive introduction to key topics in the field. Completely revised and expanded, this work includes several new chapters filled with brand new material.

Beyond the HIPAA Privacy Rule

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309124999
Total Pages : 334 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis Beyond the HIPAA Privacy Rule by : Institute of Medicine

Download or read book Beyond the HIPAA Privacy Rule written by Institute of Medicine and published by National Academies Press. This book was released on 2009-03-24 with total page 334 pages. Available in PDF, EPUB and Kindle. Book excerpt: In the realm of health care, privacy protections are needed to preserve patients' dignity and prevent possible harms. Ten years ago, to address these concerns as well as set guidelines for ethical health research, Congress called for a set of federal standards now known as the HIPAA Privacy Rule. In its 2009 report, Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research, the Institute of Medicine's Committee on Health Research and the Privacy of Health Information concludes that the HIPAA Privacy Rule does not protect privacy as well as it should, and that it impedes important health research.

Rights of Personality in Scots Law

Author : Niall Whitty
Publisher : Edinburgh University Press
ISBN 13 : 0748699546
Total Pages : 300 pages
Book Rating : 4.7/5 (486 download)

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Book Synopsis Rights of Personality in Scots Law by : Niall Whitty

Download or read book Rights of Personality in Scots Law written by Niall Whitty and published by Edinburgh University Press. This book was released on 2014-02-08 with total page 300 pages. Available in PDF, EPUB and Kindle. Book excerpt: Explores the law on rights of personality in Scotland compared to other jurisdictionsTaking a comparative perspective, this book explores the trends and issues affecting the law on rights of personality in jurisdictions drawn from the families of common law, civilian law, and mixed legal systems. The main focus is on the private law of personality rights, with due regard paid to the impact of constitutional legislation and other instruments protecting human rights.