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Author :
Publisher :
ISBN 13 : 9786624105642
Total Pages : pages
Book Rating : 4.1/5 (56 download)
Download or read book CIHR Best Practices for Protecting Privacy in Health Research written by and published by . This book was released on 2005 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt:
Author : Canadian Institutes of Health Research
Publisher :
ISBN 13 : 9780662410553
Total Pages : 161 pages
Book Rating : 4.4/5 (15 download)
Download or read book CIHR Best Practices for Protecting Privacy in Health Research written by Canadian Institutes of Health Research and published by . This book was released on 2005 with total page 161 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309071879
Total Pages : 208 pages
Book Rating : 4.3/5 (9 download)
Download or read book Protecting Data Privacy in Health Services Research written by Institute of Medicine and published by National Academies Press. This book was released on 2001-01-13 with total page 208 pages. Available in PDF, EPUB and Kindle. Book excerpt: The need for quality improvement and for cost saving are driving both individual choices and health system dynamics. The health services research that we need to support informed choices depends on access to data, but at the same time, individual privacy and patient-health care provider confidentiality must be protected.
Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309124999
Total Pages : 334 pages
Book Rating : 4.3/5 (91 download)
Download or read book Beyond the HIPAA Privacy Rule written by Institute of Medicine and published by National Academies Press. This book was released on 2009-03-24 with total page 334 pages. Available in PDF, EPUB and Kindle. Book excerpt: In the realm of health care, privacy protections are needed to preserve patients' dignity and prevent possible harms. Ten years ago, to address these concerns as well as set guidelines for ethical health research, Congress called for a set of federal standards now known as the HIPAA Privacy Rule. In its 2009 report, Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research, the Institute of Medicine's Committee on Health Research and the Privacy of Health Information concludes that the HIPAA Privacy Rule does not protect privacy as well as it should, and that it impedes important health research.
Author : Kabene, Stfane M.
Publisher : IGI Global
ISBN 13 : 1615207341
Total Pages : 392 pages
Book Rating : 4.6/5 (152 download)
Download or read book Healthcare and the Effect of Technology: Developments, Challenges and Advancements written by Kabene, Stfane M. and published by IGI Global. This book was released on 2010-03-31 with total page 392 pages. Available in PDF, EPUB and Kindle. Book excerpt: "This book examines current developments and challenges in the incorporation of ICT in the health system from the vantage point of patients, providers, and researchers. The authors take an objective, realistic view of the shift that will result for patients, providers, and the healthcare industry in general from the increased use of eHealth services"--Provided by publisher.
Author : John Michael Elliott
Publisher : World Scientific
ISBN 13 : 9814462721
Total Pages : 343 pages
Book Rating : 4.8/5 (144 download)
Download or read book Bioethics In Singapore: The Ethical Microcosm written by John Michael Elliott and published by World Scientific. This book was released on 2010-07-19 with total page 343 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book provides an analysis of the ways in which the BAC has established an ethical framework for biomedical research in Singapore, following the launch of the Biomedical Sciences Initiative by the Singapore Government. The editors and authors have an intimate knowledge of the working of the BAC, and the focus of the book includes the ways in which international forces have influenced the form and substance of bioethics in Singapore. Together, the authors offer a comparative account of the institutionalisation of biomedical research ethics in Singapore, considered in the wider context of international regulatory efforts. The book reviews the work of the BAC by placing it within the broader cultural, social and political discourses that have emerged in relation to the life sciences since the turn of the 21st century. This book is not primarily intended to be a retrospect or an appraisal of the contribution of the BAC, though this is one aspect of it. Rather, the main intention is to make a substantive contribution to the rapidly emerging field of bioethics. Ethical discussions in the book include consideration of stem cell research and cloning, genetics and research with human participants, and focus on likely future developments as well as the past.Many of the contributors of the book have been personally involved in this work, and hence they write with an authoritative first-hand knowledge that scholars in bioethics and public policy may appreciate. As indicated above, the book also explains the way in which ethics and science — international and local — have interacted in a policy setting. Scholars and policy makers may find the Singaporean experience to be a valuable resource, as the approach has been to make the ethical governance of research in Singapore consistent with international best practice while observing the requirements of a properly localised application of universally accepted principles. In addition, at least three chapters (the first three chapters in particular) are accessible to the lay reader interested in the development of bioethics and biomedical sciences, both inside and outside Singapore, from 2000 (the year in which the BAC was established). Both scholars and interested lay readers are therefore likely to find this publication a valuable reference./a
Author : Chios Carmody
Publisher : McGill-Queen's Press - MQUP
ISBN 13 : 0773580964
Total Pages : 333 pages
Book Rating : 4.7/5 (735 download)
Download or read book Is Our House in Order? written by Chios Carmody and published by McGill-Queen's Press - MQUP. This book was released on 2010-09-30 with total page 333 pages. Available in PDF, EPUB and Kindle. Book excerpt: Canadians like to think that their country is law-abiding and honours its international commitments. Is Our House in Order? explores this public perception while considering whether or not it is correct in terms of domestic law.
Author : Khaled El Emam
Publisher : Trafford Publishing
ISBN 13 : 1466980494
Total Pages : 253 pages
Book Rating : 4.4/5 (669 download)
Download or read book Risky Business: Sharing Health Data While Protecting Privacy written by Khaled El Emam and published by Trafford Publishing. This book was released on 2013-03-04 with total page 253 pages. Available in PDF, EPUB and Kindle. Book excerpt: Due to the digitization of medical records, more and more health data is readily available. This dynamic has created many opportunities to unlock this information and use it to improve medical practice, and through research and surveillance understand the effectiveness and side effects of drugs and medical devices to ultimately improve the public’s health. This data can also be used for commercial purposes such as sales and marketing. However, this newfound utility raises some profound questions about how this data ought to be used and how it will impact personal privacy. Unless we are able to address these privacy issues in a convincing and defensible way, there will be increased breaches of personal privacy. This will provoke regulators to impose new rules limiting the use and disclosure of health data for secondary purposes, patients increasingly to adopt privacy protective behaviours because they no longer trust how their health information is being managed, or healthcare providers to be reluctant to share their patients’ data. By adopting responsible data sharing practices, researchers, companies and the general public can gain the benefits and the promise of big data analytics without sacrificing personal privacy or infringing upon law or regulation. Risky Business – Sharing Health Data While Protecting Privacy illustrates how this goal can be achieved. Bringing articles from a diverse collection of health data experts to inform the reader on contemporary policy, legal and technical issues surrounding health information privacy and data sharing. It is a uniquely practical work to inform the reader on how best – and how not to – share health data in the US and Canada.
Author : Khaled El Emam
Publisher : CRC Press
ISBN 13 : 1466579064
Total Pages : 417 pages
Book Rating : 4.4/5 (665 download)
Download or read book Guide to the De-Identification of Personal Health Information written by Khaled El Emam and published by CRC Press. This book was released on 2013-05-06 with total page 417 pages. Available in PDF, EPUB and Kindle. Book excerpt: Offering compelling practical and legal reasons why de-identification should be one of the main approaches to protecting patients’ privacy, the Guide to the De-Identification of Personal Health Information outlines a proven, risk-based methodology for the de-identification of sensitive health information. It situates and contextualizes this risk-based methodology and provides a general overview of its steps. The book supplies a detailed case for why de-identification is important as well as best practices to help you pin point when it is necessary to apply de-identification in the disclosure of personal health information. It also: Outlines practical methods for de-identification Describes how to measure re-identification risk Explains how to reduce the risk of re-identification Includes proofs and supporting reference material Focuses only on transformations proven to work on health information—rather than covering all possible approaches, whether they work in practice or not Rated the top systems and software engineering scholar worldwide by The Journal of Systems and Software, Dr. El Emam is one of only a handful of individuals worldwide qualified to de-identify personal health information for secondary use under the HIPAA Privacy Rule Statistical Standard. In this book Dr. El Emam explains how we can make health data more accessible—while protecting patients’ privacy and complying with current regulations.
Author : Deryck Beyleveld
Publisher : Anthemis
ISBN 13 : 2874551228
Total Pages : 220 pages
Book Rating : 4.8/5 (745 download)
Download or read book La protection des données médicales written by Deryck Beyleveld and published by Anthemis. This book was released on 2008 with total page 220 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Author : Sarah B. Macfarlane
Publisher : Springer
ISBN 13 : 113754984X
Total Pages : 532 pages
Book Rating : 4.1/5 (375 download)
Download or read book The Palgrave Handbook of Global Health Data Methods for Policy and Practice written by Sarah B. Macfarlane and published by Springer. This book was released on 2019-03-05 with total page 532 pages. Available in PDF, EPUB and Kindle. Book excerpt: This handbook compiles methods for gathering, organizing and disseminating data to inform policy and manage health systems worldwide. Contributing authors describe national and international structures for generating data and explain the relevance of ethics, policy, epidemiology, health economics, demography, statistics, geography and qualitative methods to describing population health. The reader, whether a student of global health, public health practitioner, programme manager, data analyst or policymaker, will appreciate the methods, context and importance of collecting and using global health data.
Author : David L. Streiner
Publisher : Guilford Press
ISBN 13 : 9781606234129
Total Pages : 398 pages
Book Rating : 4.2/5 (341 download)
Download or read book When Research Goes Off the Rails written by David L. Streiner and published by Guilford Press. This book was released on 2011-03-11 with total page 398 pages. Available in PDF, EPUB and Kindle. Book excerpt: Few behavioral or health science studies proceed seamlessly. This refreshingly candid guide presents firsthand vignettes of obstacles on the bumpy road of research and offers feasible, easy-to-implement solutions. Contributors from a range of disciplines describe real-world problems at each stage of a quantitative or qualitative research project—from gaining review board approval to collecting and analyzing data—and discuss how these problems were resolved. A detailed summary chart helps readers quickly find material on specific issues, methods, and settings. Written with clarity and wit, the vignettes provide exemplars of critical thinking that researchers can apply when developing the operational plan of a study or when facing practical difficulties in a particular research phase. Winner--American Journal of Nursing Book of the Year Award!
Author : Aris Gkoulalas-Divanis
Publisher : Springer
ISBN 13 : 3319236334
Total Pages : 832 pages
Book Rating : 4.3/5 (192 download)
Download or read book Medical Data Privacy Handbook written by Aris Gkoulalas-Divanis and published by Springer. This book was released on 2015-11-26 with total page 832 pages. Available in PDF, EPUB and Kindle. Book excerpt: This handbook covers Electronic Medical Record (EMR) systems, which enable the storage, management, and sharing of massive amounts of demographic, diagnosis, medication, and genomic information. It presents privacy-preserving methods for medical data, ranging from laboratory test results to doctors’ comments. The reuse of EMR data can greatly benefit medical science and practice, but must be performed in a privacy-preserving way according to data sharing policies and regulations. Written by world-renowned leaders in this field, each chapter offers a survey of a research direction or a solution to problems in established and emerging research areas. The authors explore scenarios and techniques for facilitating the anonymization of different types of medical data, as well as various data mining tasks. Other chapters present methods for emerging data privacy applications and medical text de-identification, including detailed surveys of deployed systems. A part of the book is devoted to legislative and policy issues, reporting on the US and EU privacy legislation and the cost of privacy breaches in the healthcare domain. This reference is intended for professionals, researchers and advanced-level students interested in safeguarding medical data.
Author : Margaret Liu
Publisher : John Wiley & Sons
ISBN 13 : 1444357883
Total Pages : 381 pages
Book Rating : 4.4/5 (443 download)
Download or read book A Clinical Trials Manual From The Duke Clinical Research Institute written by Margaret Liu and published by John Wiley & Sons. This book was released on 2011-08-24 with total page 381 pages. Available in PDF, EPUB and Kindle. Book excerpt: "The publication of the second edition of this manual comes at an important juncture in the history of clinical research. As advances in information technology make it possible to link individuals and groups in diverse locations in jointly seeking the answers to pressing global health problems, it is critically important to remain vigilant about moral and ethical safeguards for every patient enrolled in a trial. Those who study this manual will be well aware of how to ensure patient safety along with fiscal responsibility, trial efficiency, and research integrity." —Robert Harrington, Professor of Medicine, Director, Duke Clinical Research Institute, Durham, North Carolina, USA The Duke Clinical Research Institute (DCRI) is one of the world's leading academic clinical research organizations; its mission is to develop and share knowledge that improves the care of patients around the world through innovative clinical research. This concise handbook provides a practical "nuts and bolts" approach to the process of conducting clinical trials, identifying methods and techniques that can be replicated at other institutions and medical practices. Designed for investigators, research coordinators, CRO personnel, students, and others who have a desire to learn about clinical trials, this manual begins with an overview of the historical framework of clinical research, and leads the reader through a discussion of safety concerns and resulting regulations. Topics include Good Clinical Practice, informed consent, management of subject safety and data, as well as monitoring and reporting adverse events. Updated to reflect recent regulatory and clinical developments, the manual reviews the conduct of clinical trials research in an increasingly global context. This new edition has been further expanded to include: In-depth information on conducting clinical trials of medical devices and biologics The role and responsibilities of Institutional Review Boards, and Recent developments regarding subject privacy concerns and regulations. Ethical documents such as the Belmont Report and the Declaration of Helsinki are reviewed in relation to all aspects of clinical research, with a discussion of how researchers should apply the principles outlined in these important documents. This graphically appealing and eminently readable manual also provides sample forms and worksheets to facilitate data management and regulatory record retention; these can be modified and adapted for use at investigative sites.
Author : Michael Yeo
Publisher : Broadview Press
ISBN 13 : 1551117355
Total Pages : 419 pages
Book Rating : 4.5/5 (511 download)
Download or read book Concepts and Cases in Nursing Ethics - Third Edition written by Michael Yeo and published by Broadview Press. This book was released on 2010-09-08 with total page 419 pages. Available in PDF, EPUB and Kindle. Book excerpt: Concepts and Cases in Nursing Ethics is a case-based exploration of the core principles of health care ethics applied to nursing. The book is a collaboration between philosopher-ethicist Michael Yeo and nurse-ethicist and educators Anne Moorhouse, Pamela Khan, and Patricia Rodney. It thus combines philosophical and ethical analysis with extensive knowledge and experience in nursing and health care. The book is organized around six main concepts in health care ethics: beneficence, autonomy, truthfulness, confidentiality, justice, and integrity. A chapter is devoted to the elucidation of each of these concepts. In each chapter, historical background and conceptual analysis are supplemented by case studies that exemplify issues and show how the concept applies in health care and nursing practice. In this new edition, the conceptual analysis throughout has been updated and reworked in view of changes in the health care system. In addition, there is a new chapter specifically devoted to recent developments affecting nursing and other health professions. Previous case studies have been modified and new ones added to address current and emerging issues. Although the text focuses mainly on the social and political situation of nursing, the analysis has relevance also for medicine and the allied health professions, and indeed for anyone working in the health system.
Author : Beyerer, Jürgen
Publisher : KIT Scientific Publishing
ISBN 13 : 3731510286
Total Pages : 170 pages
Book Rating : 4.7/5 (315 download)
Download or read book Proceedings of the 2019 Joint Workshop of Fraunhofer IOSB and Institute for Anthropomatics, Vision and Fusion Laboratory written by Beyerer, Jürgen and published by KIT Scientific Publishing. This book was released on 2020-10-23 with total page 170 pages. Available in PDF, EPUB and Kindle. Book excerpt: In 2019 fand wieder der jährliche Workshop des Fraunhofer IOSB und des Lehrstuhls für Interaktive Echtzeitsysteme des Karlsruher Insitut für Technologie statt. Die Doktoranden beider Institutionen präsentierten den Fortschritt ihrer Forschung in den Themen Maschinelles Lernen, Machine Vision, Messtechnik, Netzwerksicherheit und Usage Control. Die Ideen dieses Workshops sind in diesem Buch gesammelt in der Form technischer Berichte. - In 2019 again, the annual joint workshop of the Fraunhofer IOSB and the Vision and Fusion Laboratory of the Karlsruhe Institute of Technology took place. The doctoral students of both institutions presented extensive reports on the status of their research and discussed topics ranging from computer vision and optical metrology to network security, usage control and machine learning. The results and ideas presented at the workshop are collected in this book in the form of technical reports.
Author : William W. Lowrance
Publisher : Cambridge University Press
ISBN 13 : 1139510827
Total Pages : 203 pages
Book Rating : 4.1/5 (395 download)
Download or read book Privacy, Confidentiality, and Health Research written by William W. Lowrance and published by Cambridge University Press. This book was released on 2012-06-21 with total page 203 pages. Available in PDF, EPUB and Kindle. Book excerpt: The potential of the e-health revolution, increased data sharing, database linking, biobanks and new techniques such as geolocation and genomics to advance human health is immense. For the full potential to be realized, though, privacy and confidentiality will have to be dealt with carefully. Problematically, many conventional approaches to such pivotal matters as consent, identifiability, and safeguarding and security are inadequate. In many places, research is impeded by an overgrown thicket of laws, regulations, guidance and governance. The challenges are being heightened by the increasing use of biospecimens, and by the globalization of research in a world that has not globalized privacy protection. Drawing on examples from many developed countries and legal jurisdictions, the book critiques the issues, summarizes various ethics, policy, and legal positions (and revisions underway), describes innovative solutions, provides extensive references and suggests ways forward.
