But She Still Can Love A Childs Understanding Of Als

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But She Still Can Love: A Child's Understanding of ALS

Author : Amalia Flecksteiner
Publisher :
ISBN 13 : 9780578896571
Total Pages : 28 pages
Book Rating : 4.8/5 (965 download)

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Book Synopsis But She Still Can Love: A Child's Understanding of ALS by : Amalia Flecksteiner

Download or read book But She Still Can Love: A Child's Understanding of ALS written by Amalia Flecksteiner and published by . This book was released on 2021-04-08 with total page 28 pages. Available in PDF, EPUB and Kindle. Book excerpt: ALS, or amyotrophic lateral sclerosis, is a progressive neurodegenerative disease that currently has no cure. ALS is a disease that typically involves a gradual onset, with initial symptoms that can be quite varied in different people. One person may struggle with lifting a coffee cup or grasping a pen, while others may begin slurring or losing their speech - ALS affects everyone differently. Regardless, ALS is a disease that always takes - takes someone's ability to help themselves, takes someone's ability to express themselves, and ultimately takes someone from the ones who love them most.Mom was taken from us by this disease too soon. She was a nurse of over 30 years, always taking care of others, to end up being taken care of herself. Though we ultimately lost Mom to ALS, we gained a purpose to bring awareness and support to others who may have or had the same experience with their loved one. Whether it's Mom, Dad, Grandma, Grandpa, or another loved one affected by this disease that always takes, always remember - but they still can love.For more ALS information and resources, visit als.org. A large portion of the proceeds from this book will benefit the ALS Association of Georgia Chapter's 'Walk to Defeat ALS' in honor of Mom, Marina Pascarelli.

And Love Speaks

Author : Jamie L Blair
Publisher : Euphoria Publishing
ISBN 13 : 9781638771234
Total Pages : 38 pages
Book Rating : 4.7/5 (712 download)

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Book Synopsis And Love Speaks by : Jamie L Blair

Download or read book And Love Speaks written by Jamie L Blair and published by Euphoria Publishing. This book was released on 2021-05-24 with total page 38 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Grandma said she's sick, but she looks fine to me. She has a disease called ALS that makes it hard for her muscles to work. My whole family is learning new ways to help her, but I miss how things used to be." Amyotrophic Lateral Sclerosis (ALS) is a very challenging disease that affects all types of people: parents, grandparents, aunts, uncles, and friends. Of course, it also has an enormous impact on the children who love those who've been diagnosed with ALS. Children bring kisses, hugs, caregiving, and joy to those living with ALS, but at the same time, those children may be experiencing confusion, fear, and worry as they watch the person they love face a scary disease. And Love Speaks helps to navigate those difficult feelings and conversations, to help children understand that their loved one with ALS is the same person inside, and to maximize quality time together ensuring every moment counts.

And Love Speaks

Author : Jamie L Blair
Publisher :
ISBN 13 : 9781638771227
Total Pages : 38 pages
Book Rating : 4.7/5 (712 download)

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Book Synopsis And Love Speaks by : Jamie L Blair

Download or read book And Love Speaks written by Jamie L Blair and published by . This book was released on 2021-05-07 with total page 38 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Grandma said she's sick, but she looks fine to me. She has a disease called ALS that makes it hard for her muscles to work. My whole family is learning new ways to help her, but I miss how things used to be." Amyotrophic Lateral Sclerosis (ALS) is a very challenging disease that affects all types of people: parents, grandparents, aunts, uncles, and friends. Of course, it also has an enormous impact on the children who love those who've been diagnosed with ALS. Children bring kisses, hugs, caregiving, and joy to those living with ALS, but at the same time, those children may be experiencing confusion, fear, and worry as they watch the person they love face a scary disease. And Love Speaks helps to navigate those difficult feelings and conversations, to help children understand that their loved one with ALS is the same person inside, and to maximize quality time together ensuring every moment counts.

Lou Gehrig Disease, Als Or Amyotrophic Lateral Sclerosis Explained. Als Symptoms, Signs, Stages, Types, Diagnosis, Treatment, Caregiver Tips, Aids And

Download Lou Gehrig Disease, Als Or Amyotrophic Lateral Sclerosis Explained. Als Symptoms, Signs, Stages, Types, Diagnosis, Treatment, Caregiver Tips, Aids And PDF Online Free

Author : Robert Rymore
Publisher : Imb Publishing
ISBN 13 : 9781909151604
Total Pages : 154 pages
Book Rating : 4.1/5 (516 download)

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Book Synopsis Lou Gehrig Disease, Als Or Amyotrophic Lateral Sclerosis Explained. Als Symptoms, Signs, Stages, Types, Diagnosis, Treatment, Caregiver Tips, Aids And by : Robert Rymore

Download or read book Lou Gehrig Disease, Als Or Amyotrophic Lateral Sclerosis Explained. Als Symptoms, Signs, Stages, Types, Diagnosis, Treatment, Caregiver Tips, Aids And written by Robert Rymore and published by Imb Publishing. This book was released on 2013-08-01 with total page 154 pages. Available in PDF, EPUB and Kindle. Book excerpt: The author, Robert Rymore, had a good friend who was diagnosed with Lou Gehrig Disease. He wanted to be able to help her and decided to buy some books about the disease. To his disappointment there was a lack of good informative books available on the subject. He decided to investigate the subject thoroughly and write a book about it to be able to help others. He decided he would start talking to professionals - doctors, physical therapists, speech therapists and occupational therapists - to learn more. He quickly realized the information he was getting would be extremely valuable for other people with ALS and their loved ones. This book has been a labor of love, one born of necessity and certainly one that aims to help those with ALS, their families, and their friends. ALS symptoms, signs, stages, types, diagnosis, treatment, caregiver tips, aids and what to expect is all covered. Including chapters about financial considerations, famous people with Lou Gehrig Disease and resources. The book is written in an easy to read and understandable style and contains tips for caregivers.

The Women

Author : Hilton Als
Publisher :
ISBN 13 : 9780141999746
Total Pages : 160 pages
Book Rating : 4.9/5 (997 download)

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Book Synopsis The Women by : Hilton Als

Download or read book The Women written by Hilton Als and published by . This book was released on 2022-05-05 with total page 160 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Navigating Life with Amyotrophic Lateral Sclerosis

Author : Mark B. Bromberg
Publisher : Oxford University Press
ISBN 13 : 0190241624
Total Pages : 281 pages
Book Rating : 4.1/5 (92 download)

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Book Synopsis Navigating Life with Amyotrophic Lateral Sclerosis by : Mark B. Bromberg

Download or read book Navigating Life with Amyotrophic Lateral Sclerosis written by Mark B. Bromberg and published by Oxford University Press. This book was released on 2017 with total page 281 pages. Available in PDF, EPUB and Kindle. Book excerpt: Navigating Life with Amyotrophic Lateral Sclerosis provides accessible, comprehensive, and up-to-date information about the challenges patients, family members, and caregivers face when confronted by ALS. This guide covers all aspects of managing ALS, from the onset of symptoms, diagnosis, treatments, and coping strategies, to the use of home health care or hospice, and new research in the field. The book also sheds lights on difficult topics, such as end-of-life care and managing legal affairs. Formatted in a question-and-answer style, peppered throughout with patient stories, and with sections devoted to family members and caregivers, this compassionate resource provides guidance to those seeking to understand how to live with this disease.

Until I Say Good-Bye

Author : Bret Witter
Publisher : Hachette UK
ISBN 13 : 1444762214
Total Pages : 346 pages
Book Rating : 4.4/5 (447 download)

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Book Synopsis Until I Say Good-Bye by : Bret Witter

Download or read book Until I Say Good-Bye written by Bret Witter and published by Hachette UK. This book was released on 2013-03-14 with total page 346 pages. Available in PDF, EPUB and Kindle. Book excerpt: THE NEW YORK TIMES BESTSELLER What would you do with one last year? Susan Spencer-Wendel was determined to laugh instead of cry. In June 2011, Susan Spencer-Wendel learned she had amyotrophic lateral sclerosis (ALS) - Lou Gehrig's disease - an irreversible condition that systematically destroys the nerves that power the muscles. She was 44-years-old, with three young children, and she had only one year of health remaining. She decided to live that year with joy. She left her job as a journalist and spent time with her family. She built a meeting place for friends in her backyard. And she took seven trips with the seven most important people in her life. As her health declined, Susan journeyed to the Yukon, Hungary, the Bahamas, and Cyprus. She went to the beach with her sons and to Kleinfeld's bridal shop in New York City with her teenage daughter, Marina, for a glimpse of the wedding she would never attend. She also wrote this book. No longer able to walk or even lift her arms, she tapped it out letter by letter on her iPhone using only her right thumb, the last finger still working. And yet Until I Say Good-Bye is not angry or bitter. It is sad in parts - how could it not be? - but it is filled with Susan's optimism, joie de vivre and sens of humour. It is a book that, like Susan, will make everyone smile. From a hilarious family Christmas disaster to the decrepit monastery in eastern Cyprus where she rediscovered her heritage, Until I Say Good-Bye is Susan Spencer-Wendel's unforgettable gift to her loved ones and to us: a record of their final experiences together and a reminder that every day is better when it is lived with joy.

More Love, Less Fear

Author : Robert
Publisher : Balboa Press
ISBN 13 : 1504325273
Total Pages : 207 pages
Book Rating : 4.5/5 (43 download)

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Book Synopsis More Love, Less Fear by : Robert

Download or read book More Love, Less Fear written by Robert and published by Balboa Press. This book was released on 2015-02-06 with total page 207 pages. Available in PDF, EPUB and Kindle. Book excerpt: The despair that befalls a family when one of its own is forever changed by illness or tragedy is an experience we can only hope to escape. A serious accident, stroke, terminal illness, or more can cause stress and sorrow that are often unbearable. But we dont get to choose from a menu of life lessons. We simply wake up one day to them sitting on our plate. The question then becomes: What do you do? Daybreak jogs, PTA meetings, church choir rehearsals, laughter, and family timethese were the basic ingredients of Robert and Theresa Lees life together. Then, at age forty-three, Theresa was diagnosed with ALS. With raw honesty and grace, Robert chronicles the inspiring story of his late wifes twelve-year dance with the disease, his role as her caregiver, and the highs and lows ALS took their marriage through. A touching memoir filled with moments of lightheartedness, wisdom and simple humanity, readers will be uplifted by this brave couples tale of unconditional love and their ultimate message: You are not alone. Life is a never-ending teacher of lessons. The question is, Are we paying attention? In 2002, my life, which all along had been filled with many of these blessings-lessonsor blessons as I called thempresented the greatest challenge my family and I would have to face yet. Robert Lee, author

White Girls

Author : Hilton Als
Publisher : McSweeney's
ISBN 13 : 1940450063
Total Pages : 339 pages
Book Rating : 4.9/5 (44 download)

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Book Synopsis White Girls by : Hilton Als

Download or read book White Girls written by Hilton Als and published by McSweeney's. This book was released on 2013-11-30 with total page 339 pages. Available in PDF, EPUB and Kindle. Book excerpt: White Girls, Hilton Als’s first book since The Women fourteen years ago, finds one of The New Yorker's boldest cultural critics deftly weaving together his brilliant analyses of literature, art, and music with fearless insights on race, gender, and history. The result is an extraordinary, complex portrait of “white girls,” as Als dubs them—an expansive but precise category that encompasses figures as diverse as Truman Capote and Louise Brooks, Malcolm X and Flannery O’Connor. In pieces that hairpin between critique and meditation, fiction and nonfiction, high culture and low, the theoretical and the deeply personal, Als presents a stunning portrait of a writer by way of his subjects, and an invaluable guide to the culture of our time.

We Know How This Ends

Author : Bruce H. Kramer
Publisher : U of Minnesota Press
ISBN 13 : 1452945195
Total Pages : 215 pages
Book Rating : 4.4/5 (529 download)

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Book Synopsis We Know How This Ends by : Bruce H. Kramer

Download or read book We Know How This Ends written by Bruce H. Kramer and published by U of Minnesota Press. This book was released on 2015-04-01 with total page 215 pages. Available in PDF, EPUB and Kindle. Book excerpt: Nautilus Book Awards — Silver Award Winner 2010 had been a very good year for Bruce H. Kramer. But what began as a floppy foot and leg weakness led to a shattering diagnosis: he had amyotrophic lateral sclerosis. ALS is a cruel, unrelenting neurodegenerative disease in which the body’s muscles slowly weaken, including those used to move, swallow, talk, and ultimately breathe. There is no cure: ALS is a death sentence. When death is a constant companion, sitting too closely beside you at the dinner table, coloring your thoughts and feelings and words, your outlook on life is utterly transformed. The perspective and insights offered in We Know How This Ends reveal this daily reality and inspire a way forward for anyone who has suffered major loss and for anyone who surely will. Rather than wallowing in sadness and bitterness, anger and denial, Kramer accepted the crushing diagnosis. The educator and musician recognized that if he wanted a meaningful life, then embracing his imminent death was his only viable option. His decision was the foundation for profound, personal reflection and growth, even as his body weakened, and inspired him to share the lessons he was learning from ALS about how to live as fully as possible, even in the midst of devastating grief. At the time Kramer was diagnosed, broadcast journalist Cathy Wurzer was struggling with her own losses, especially her father’s slow descent into the bewildering world of dementia. Mutual friends put this unlikely pair—journalist and educator—together, and the serendipitous result has been a series of remarkable broadcast conversations, a deep friendship, and now this book. Written with wisdom, genuine humor, and down-to-earth observations, We Know How This Ends is far more than a memoir. It is a dignified, courageous, and unflinching look at how acceptance of loss and inevitable death can lead us all to a more meaningful and fulfilling life.

Every Note Played

Author : Lisa Genova
Publisher : Simon and Schuster
ISBN 13 : 1476717826
Total Pages : 336 pages
Book Rating : 4.4/5 (767 download)

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Book Synopsis Every Note Played by : Lisa Genova

Download or read book Every Note Played written by Lisa Genova and published by Simon and Schuster. This book was released on 2018-03-20 with total page 336 pages. Available in PDF, EPUB and Kindle. Book excerpt: “Unsparing in her depiction of the disease’s harrowing effects, neuroscientist Genova also celebrates humanity.” —People “Sometimes it’s easier to tell truth in fiction…And she tells it with heart and hope.” —NPR “Her juxtaposition of scientific detail with compassionate, heartfelt storytelling is unparalleled.” —Bookreporter “Every Note Played will grip and gut you.” —The Boston Globe From neuroscientist and New York Times bestselling author of Still Alice comes a powerful exploration of regret, forgiveness, freedom, and what it means to be alive. An accomplished concert pianist, Richard received standing ovations from audiences all over the world in awe of his rare combination of emotional resonance and flawless technique. Every finger of his hands was a finely calibrated instrument, dancing across the keys and striking each note with exacting precision. That was eight months ago. Richard now has ALS, and his entire right arm is paralyzed. His fingers are impotent, still, devoid of possibility. The loss of his hand feels like a death, a loss of true love, a divorce—his divorce. He knows his left arm will go next. Three years ago, Karina removed their framed wedding picture from the living room wall and hung a mirror there instead. But she still hasn’t moved on. Karina is paralyzed by excuses and fear, stuck in an unfulfilling life as a piano teacher, afraid to pursue the path she abandoned as a young woman, blaming Richard and their failed marriage for all of it. When Richard becomes increasingly paralyzed and is no longer able to live on his own, Karina becomes his reluctant caretaker. As Richard’s muscles, voice, and breath fade, both he and Karina try to reconcile their past before it’s too late. Poignant and powerful, Every Note Played is a masterful exploration of redemption and what it means to find peace inside of forgiveness.

Someone I Love Has ALS

Author : Jodi O'Donnell-Ames
Publisher : People Tested Publications
ISBN 13 : 9780996867801
Total Pages : 136 pages
Book Rating : 4.8/5 (678 download)

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Book Synopsis Someone I Love Has ALS by : Jodi O'Donnell-Ames

Download or read book Someone I Love Has ALS written by Jodi O'Donnell-Ames and published by People Tested Publications. This book was released on 2015-09-09 with total page 136 pages. Available in PDF, EPUB and Kindle. Book excerpt: Kevin and Jodi O'Donnell, were a young New Jersey couple busy raising a toddler and making plans for their future when they received life-altering news in 1995 that changed everything as they knew it. Kevin was only 30 years old when he was told that his health problems were the result of a rare, terminal disease called ALS (Amyotrophic Lateral Sclerosis), or Lou Gehrig's disease. Kevin and Jodi had not heard of ALS until then and had no idea how those three letters would challenge everything they thought to be certain. After more than 20 years of working with ALS families, Jodi realized that more information and better resources could be available to help families who are coming to grips with the challenges of the disease and the caregiving responsibilities that are involved. In the Introduction to "Someone I Love Has ALS: A Family Caregiver's Guide," Jodi recounts the journey she took as a caregiver, advocate and writer and embraces and shares the lessons learned throughout the pages of this wonderful guide, "This guide was created by a variety of caregivers and professionals who have years of experience with various aspects of ALS. It was written by volunteers and experts who care about ALS and your journey. It is the resource that I wish we had received along with the shocking diagnosis." Although Kevin died of ALS in 2001 at the age 35, the disease never won the battle. ALS only strengthened Kevin and Jodi's love for God and each other and it created an even bigger purpose and plan: the creation of Hope Loves Company(r), the only non-profit whose mission is to support the children and grandchildren caregivers of PALS (people with ALS).

Tuesdays with Morrie

Author : Mitch Albom
Publisher : Crown
ISBN 13 : 0307414094
Total Pages : 226 pages
Book Rating : 4.3/5 (74 download)

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Book Synopsis Tuesdays with Morrie by : Mitch Albom

Download or read book Tuesdays with Morrie written by Mitch Albom and published by Crown. This book was released on 2007-06-29 with total page 226 pages. Available in PDF, EPUB and Kindle. Book excerpt: #1 NEW YORK TIMES BESTSELLER • A special 25th anniversary edition of the beloved book that has changed millions of lives with the story of an unforgettable friendship, the timeless wisdom of older generations, and healing lessons on loss and grief—featuring a new afterword by the author “A wonderful book, a story of the heart told by a writer with soul.”—Los Angeles Times “The most important thing in life is to learn how to give out love, and to let it come in.” Maybe it was a grandparent, or a teacher, or a colleague. Someone older, patient and wise, who understood you when you were young and searching, helped you see the world as a more profound place, gave you sound advice to help you make your way through it. For Mitch Albom, that person was his college professor Morrie Schwartz. Maybe, like Mitch, you lost track of this mentor as you made your way, and the insights faded, and the world seemed colder. Wouldn’t you like to see that person again, ask the bigger questions that still haunt you, receive wisdom for your busy life today the way you once did when you were younger? Mitch Albom had that second chance. He rediscovered Morrie in the last months of the older man’s life. Knowing he was dying, Morrie visited with Mitch in his study every Tuesday, just as they used to back in college. Their rekindled relationship turned into one final “class”: lessons in how to live. “The truth is, Mitch,” he said, “once you learn how to die, you learn how to live.” Tuesdays with Morrie is a magical chronicle of their time together, through which Mitch shares Morrie’s lasting gift with the world.

Your Ema Loves You

Author : Eloise Lovelace
Publisher : AuthorHouse
ISBN 13 : 148172052X
Total Pages : 27 pages
Book Rating : 4.4/5 (817 download)

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Book Synopsis Your Ema Loves You by : Eloise Lovelace

Download or read book Your Ema Loves You written by Eloise Lovelace and published by AuthorHouse. This book was released on 2011-03-09 with total page 27 pages. Available in PDF, EPUB and Kindle. Book excerpt: A child often feels confused and scared as he witnesses the physical or mental decline of a grandparent. Although this book deals specifically with ALS, a progressive physical ailment, it could apply to any disease. It teaches the young one that, though he or she may witness these changes, the basic personality of, and love generated by, a grandparent remains powerful and alive.

The Girl With All the Gifts

Author : M. R. Carey
Publisher : Orbit
ISBN 13 : 0316278149
Total Pages : 405 pages
Book Rating : 4.3/5 (162 download)

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Book Synopsis The Girl With All the Gifts by : M. R. Carey

Download or read book The Girl With All the Gifts written by M. R. Carey and published by Orbit. This book was released on 2014-06-10 with total page 405 pages. Available in PDF, EPUB and Kindle. Book excerpt: In the ruins of civilization, a young girl's kindness and capacity for love will either save humanity -- or wipe it out in this USA Today bestselling thriller Joss Whedon calls "heartfelt, remorseless, and painfully human." Melanie is a very special girl. Dr Caldwell calls her "our little genius." Every morning, Melanie waits in her cell to be collected for class. When they come for her, Sergeant keeps his gun pointed at her while two of his people strap her into the wheelchair. She thinks they don't like her. She jokes that she won't bite, but they don't laugh.

Eyes to the Wind

Author : Ady Barkan
Publisher : Simon and Schuster
ISBN 13 : 1982111569
Total Pages : 304 pages
Book Rating : 4.9/5 (821 download)

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Book Synopsis Eyes to the Wind by : Ady Barkan

Download or read book Eyes to the Wind written by Ady Barkan and published by Simon and Schuster. This book was released on 2019-09-10 with total page 304 pages. Available in PDF, EPUB and Kindle. Book excerpt: In this “gripping story of resistance and the triumph of human will” (Senator Elizabeth Warren), activist and subject of the new documentary Not Going Quietly Ady Barkan explores his life with ALS and how his diagnosis gave him a profound new understanding of his commitment to social justice for all. Ady Barkan loved taking afternoon runs on the California coast and holding his newborn son, Carl. But one day, he noticed a troubling weakness in his hand. At first, he brushed it off as carpal tunnel syndrome, but after a week of neurological exams and two MRIs, he learned the cause of the problem: amyotrophic lateral sclerosis, better known as ALS or Lou Gehrig’s disease. At age thirty-two, Ady was given just three to four years to live. Yet despite the devastating diagnosis, he refused to let his remaining days go to waste. Eyes to the Wind is a rousing memoir featuring intertwining storylines about determination, perseverance, and how to live a life filled with purpose and intention. The first traces Ady’s battle with ALS: how he turned the initial shock and panic from his diagnosis into a renewed commitment to social justice—not despite his disability but because of it. The second, told in flashbacks, illustrates Ady’s journey from a goofy political nerd to a prominent figure in the enduring fight for equity and justice whose “selfless activism fighting to make health care a right should be an inspiration to us all” (Senator Bernie Sanders). From one of today’s most vocal advocates for social justice, Eyes to the Wind’s “primary question is existential: how to live when you are dying? Barkan’s answer is to share, open up, act, and capital-R Resist, and his memoir, clearly and candidly written, establishes a legacy” (Booklist).

Our Mom Is Sick- Really, Really Sick, But She Rocks!

Author : Angela Parker-Brown
Publisher :
ISBN 13 : 9781990770319
Total Pages : 0 pages
Book Rating : 4.7/5 (73 download)

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Book Synopsis Our Mom Is Sick- Really, Really Sick, But She Rocks! by : Angela Parker-Brown

Download or read book Our Mom Is Sick- Really, Really Sick, But She Rocks! written by Angela Parker-Brown and published by . This book was released on 2023-09-15 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Told through the perspective of Angela Parker-Brown's twin twelve-year-old daughters, this slim volume offers children and young adults the tools to navigate a parent's serious medical diagnosis. For Angela Parker-Brown, that diagnosis was ALS, Amyotrophic Lateral Sclerosis, a debilitating disease for which there is no cure. From the early signs of the illness to the later stages, Paris and Parker openly talk about their journey with their mother. They discuss their fear and confusion, as well as their sense of unfairness that this should happen to their wonderful mom, who took such good care of them and continued to do so as her condition deteriorated. Guided by a helpful book, Real Kids Talk About ALS, Feeling Normal Sad and Different, and by their mother, Parker and Paris learned about the disease and how to cope with their emotions. Although they are twins, each daughter responded to their new situation differently. Parker delved into research, finding out additional details about ALS, which scared her so much she didn't tell her sister. Angela impressed on her girls how important it is to have the right information, and Parker says how glad she was that their mother didn't try to hide the truth from them. "I liked that our mom trusted us enough to tell us the truth," she said. "It's way scarier when you don't know what's going on, but you know something is going on, but nobody is telling you." As the disease progressed, Paris and Parker learned that they were still able to do normal things like watching TV together, having friends to visit and especially making memories with their mother. Through all the changes in their mother's condition, the girls learned how important it is to acknowledge their feelings, to ask for help, and to always know their mom is still their mom -- and that she rocks!