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An Examination Of Quality Of Life Of Parents Of Adult Children Diagnosed With Autism Spectrum Disorder
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Book Synopsis An Examination of Quality of Life of Parents of Adult Children Diagnosed with Autism Spectrum Disorder by : Christina Noel Marsack
Download or read book An Examination of Quality of Life of Parents of Adult Children Diagnosed with Autism Spectrum Disorder written by Christina Noel Marsack and published by . This book was released on 2016 with total page 210 pages. Available in PDF, EPUB and Kindle. Book excerpt: To deliver services effectively, social workers need to understand the reality of the lives of both parents and adult children with ASD, as well as understanding the QOL and caregiver burden with which the parents are living.
Book Synopsis Handbook of Quality of Life for Individuals with Autism Spectrum Disorder by : Justin B. Leaf
Download or read book Handbook of Quality of Life for Individuals with Autism Spectrum Disorder written by Justin B. Leaf and published by Springer Nature. This book was released on 2022-06-01 with total page 477 pages. Available in PDF, EPUB and Kindle. Book excerpt: This handbook offers a comprehensive examination of wide-ranging issues relevant to adults diagnosed with autism spectrum disorder. Coverage includes a detailed review of such issues as psychiatric comorbidity, family relationships, education, living in different settings (e.g., group homes, community), meaningful and effective interventions, functional goals (e.g., social, language, vocational, and adaptive behaviors), and curriculum. In addition the book provides unique perspectives of parents as well as individuals diagnosed with autism spectrum disorder who have reached adulthood. Key areas of coverage include: Transitioning adults diagnosed with autism spectrum disorder from educational settings to vocational settings. Strategies that can help create independence for adults diagnosed with autism spectrum disorder. Effective approaches to address issues relating to sexuality for adults diagnosed with autism spectrum disorder. The effectiveness of early intensive behavioral intervention to help adults diagnosed with autism spectrum disorder. Handbook of Quality of Life for Individuals with Autism Spectrum Disorder is an essential reference for researchers, professors, and graduate students as well as clinicians, therapists, and related professionals in clinical child and school psychology, social work, behavioral therapy and related disciplines, including clinical medicine, clinical nursing, counseling, speech and language pathology, and special education.
Book Synopsis Understanding the Quality of Life of Parents Whose Young Adult Children Diagnosed with Asperger's Syndrome Live in a College Setting by : Faye McRavion
Download or read book Understanding the Quality of Life of Parents Whose Young Adult Children Diagnosed with Asperger's Syndrome Live in a College Setting written by Faye McRavion and published by . This book was released on 2022 with total page 175 pages. Available in PDF, EPUB and Kindle. Book excerpt: The purpose of this transcendental phenomenological study was to understand, as a lived experience, the parents’ quality of life (QoL) with young adult children diagnosed with autism spectrum disorder (ASD) residing on a college campus. In addition, this study helped understand parent experiences related to factors about transition and their QoL. For parents of adult children with ASD in a college residency setting, many stressful and challenging times were attributed to their child living outside the home, which ultimately impacted parental stress and the parents’ QoL. The theory guiding this study is the Schlossberg Transition Theory (1981), and the 4 S Transition model of assimilation and appraisal was used to conceptualize the framework. The central research question for this study was designed to understand the lived experiences of parents with young adult ASD children living in a college residency setting and the impact stress and transition had on their QoL. The research sub-questions were designed to understand better parenting a young adult child with ASD and the significant challenges as resources and support systems were limited. A transcendental phenomenological approach was used for this study, and data collection included questionnaires, semi-structured individual interviews, and a single focus group interview. Data analysis was manually collected and included bracketing, open coding, and thematic analysis. The analysis yielded four major themes: Relinquishing Control, Fear of the Unknown, Evolution Within Transition, and Campus Support. In addition, findings from this study also revealed how to support families with adult children affected by autism and enrich the education of professionals who work with them in higher education.
Book Synopsis Understanding the Quality of Life of Parents Whose Young Adult Children Diagnosed with Asperger's Syndrome Live in a College Residential Setting by : Faye McRavion
Download or read book Understanding the Quality of Life of Parents Whose Young Adult Children Diagnosed with Asperger's Syndrome Live in a College Residential Setting written by Faye McRavion and published by . This book was released on 2022 with total page 175 pages. Available in PDF, EPUB and Kindle. Book excerpt: The purpose of this transcendental phenomenological study was to understand, as a lived experience, the parents’ quality of life (QoL) with young adult children diagnosed with autism spectrum disorder (ASD) residing on a college campus. In addition, this study helped understand parent experiences related to factors about transition and their QoL. For parents of adult children with ASD in a college residency setting, many stressful and challenging times were attributed to their child living outside the home, which ultimately impacted parental stress and the parents’ QoL. The theory guiding this study is the Schlossberg Transition Theory (1981), and the 4 S Transition model of assimilation and appraisal was used to conceptualize the framework. The central research question for this study was designed to understand the lived experiences of parents with young adult ASD children living in a college residency setting and the impact stress and transition had on their QoL. The research sub-questions were designed to understand better parenting a young adult child with ASD and the significant challenges as resources and support systems were limited. A transcendental phenomenological approach was used for this study, and data collection included questionnaires, semi-structured individual interviews, and a single focus group interview. Data analysis was manually collected and included bracketing, open coding, and thematic analysis. The analysis yielded four major themes: Relinquishing Control, Fear of the Unknown, Evolution Within Transition, and Campus Support. In addition, findings from this study also revealed how to support families with adult children affected by autism and enrich the education of professionals who work with them in higher education.
Book Synopsis Stress Reduction for Caregivers by : Jody Olshevski
Download or read book Stress Reduction for Caregivers written by Jody Olshevski and published by Routledge. This book was released on 2013-11-12 with total page 154 pages. Available in PDF, EPUB and Kindle. Book excerpt: First published in 1999. Routledge is an imprint of Taylor & Francis, an informa company.
Book Synopsis The Quality of Life of Parents with a Child Diagnosed with an Autism Spectrum Disorder by : Julissa Cabellero
Download or read book The Quality of Life of Parents with a Child Diagnosed with an Autism Spectrum Disorder written by Julissa Cabellero and published by . This book was released on 2014 with total page 53 pages. Available in PDF, EPUB and Kindle. Book excerpt: The present study defined the stressors that the participants, who are parents of children who have been diagnosed with an autism spectrum disorder (ASD), experience in their day to day life, identified the participants' descriptions of their quality of life (QoL), defined main areas where resources are lacking, and examined the recommendations that the participants had for other parents of children who have been diagnosed with an ASD and social workers working with ASD families. The present study's findings provide that the participants identified themes that define their major stressors as their children's school system, lacking resources in the community and among their own family, financial implications of their child's diagnosis, parents' reactions to their diagnosed child's behavior, impact of having a child diagnosed with an ASD on family dynamics and worrying over their diagnosed child's future. The need of the participants that emerged in the present study were the need for the following: available resources, reconstruction of their child's education system, and financial assistance. The present study found that the participants' recommendations for other parents and social workers working with ASD families were that service providers need better ASD knowledge and that easy access to available resources must be created.
Book Synopsis The Quality of Life of Parents with a Child Diagnosed with an Autism Spectrum Disorder by : Vanessa D. Evans
Download or read book The Quality of Life of Parents with a Child Diagnosed with an Autism Spectrum Disorder written by Vanessa D. Evans and published by . This book was released on 2010 with total page 124 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Autism Spectrum Disorder in Mid and Later Life by : Scott D. Wright
Download or read book Autism Spectrum Disorder in Mid and Later Life written by Scott D. Wright and published by Jessica Kingsley Publishers. This book was released on 2016-01-21 with total page 434 pages. Available in PDF, EPUB and Kindle. Book excerpt: Bringing together international academics and professionals who are actively researching and working in the field, this pioneering scholarly volume covers the issues faced by individuals with Autism Spectrum Disorder(ASD) in mid and later life. Including a range of personal, academic and clinical perspectives, the book considers historical and contemporary perspectives on autism, including diagnosis, developmental outcomes and life course issues. Attention is given to medical, care and psychological issues that arise as people with ASD age, such as declining cognitive function and speech and communication issues. Family, community support, housing, advocacy, and socio-cultural considerations for older adults with ASD are also given careful consideration, and there are chapters on relationship and sexuality issues and on environmental design.
Download or read book Autism Adulthood written by Susan Senator and published by Simon and Schuster. This book was released on 2018-04-03 with total page 320 pages. Available in PDF, EPUB and Kindle. Book excerpt: One of the biggest fears of parents with children with autism is their looming adulthood and all that it entails. In this Second Edition of her lauded book Autism Adulthood, Susan Senator further tackles the challenges of adult life on the autism spectrum on the more severe end of the spectrum – those who cannot communicate for themselves, honestly discussing the complex decisions that await all parents and caregivers. To help parents find the guidance they need to provide fruitful lives for their autistic loved ones’ and the support they themselves need, Senator shares her own family’s personal story about her son, Nat, and his struggles and triumphs as an adult with severe autism. Autism Adulthood features interviews with parents, caregivers, researchers, and professionals. Each vignette reveals firsthand a family’s needs and goals—the circumstances, thought processes, and unique solutions. Sharing the wisdom that emerges from parents’ and self-advocates’ experiences, Senator adds her own observations and conclusions based on her long-term familiarity and understanding of autism. Told in Senator’s trademark warm, approachable style, Autism Adulthood, Second Edition paints a vivid and thought-provoking picture of many people grappling with grown-up, real-life autism. Senator’s is the only book of its kind, as real families share their stories and their creative solutions.
Book Synopsis Empowering Parents of Children with Autism Spectrum Disorder by : Amanda Webster
Download or read book Empowering Parents of Children with Autism Spectrum Disorder written by Amanda Webster and published by Springer. This book was released on 2016-10-26 with total page 258 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book presents an international research-based framework that has empowered parents of children with autism spectrum disorder (ASD) to become critical decision makers to actively guide their child’s learning and self-advocacy. Parents can use this framework to identify their child’s vision and dreams, and to work with educators and service providers to establish specific learning goals and to implement effective interventions and programs that enable their child to achieve those goals and realise their vision for the future. The book begins by reviewing available research on evidence-based practice for children with ASD and outlining the Cycle of Learning decision-making framework for parents and professionals. Throughout the remainder of the book, case studies are presented to illustrate the ways in which different parents have successfully utilised this framework to develop effective plans for their child and to advocate for learning and education programs for both their child and other children with ASD in school and community settings. In addition, it highlights concrete examples of how parents have used the framework to empower their children with ASD to develop their self-awareness and self-determination, and to be able to self-advocate as they move through adolescence and into adult life.
Book Synopsis Essentials of Adaptive Behavior Assessment of Neurodevelopmental Disorders by : Celine A. Saulnier
Download or read book Essentials of Adaptive Behavior Assessment of Neurodevelopmental Disorders written by Celine A. Saulnier and published by John Wiley & Sons. This book was released on 2018-05-01 with total page 208 pages. Available in PDF, EPUB and Kindle. Book excerpt: A practical guide to adaptive behaviors across a range of neurodevelopmental disorders Adaptive behavior assessment measures independent living skills, including communication, social skills, personal care, and practical work skills. For individuals with intellectual disabilities, evaluation of these skills is a critical tool for measuring eligibility and can identify specific skills that must be learned before effective educational interventions can be implemented. Essentials of Adaptive Behavior Assessment of Neurodevelopmental Disorders describes the role of adaptive behavior in assessment and treatment, and provides clear guidance for measurement. Case samples provide real-world illustration of behaviors and assessment, and systematic comparison of various measures are presented and explained to better inform planning. Individual chapters outline specific adaptive behaviors across a range of neurodevelopmental disorders, giving clinicians, practitioners, students, and researchers a better understanding of diagnostic differentials and how to place independent skill programming in treatment and intervention. Plan intervention and treatment based on accessible measurement guidelines across a range of disorders Gain a deeper understanding of adaptive functioning specific to ADHD, autism spectrum disorders, disruptive behavior disorders, and genetic disorders Compare and contrast current measures to evaluate their strengths, weaknesses, and areas of overlap Quickly locate essential information with Rapid Reference and Caution boxes For individuals with neurodevelopmental disorders, adaptive behaviors are the keys to independence; without them, these individuals will perpetually struggle with achieving optimum independence without the basic skills needed to function at home, in school, and in the community. Assessment allows these skills to be factored in to treatment and intervention planning, and can help improve the outcomes of other intervention methods. Essentials of Adaptive Behavior Assessment of Neurodevelopmental Disorders clarifies the assessment of these important behaviors, helping clinicians make more informed decisions around diagnosis, education, and treatment planning.
Book Synopsis Hope for the Autism Spectrum by : Sally Kirk
Download or read book Hope for the Autism Spectrum written by Sally Kirk and published by Jessica Kingsley Publishers. This book was released on 2008-10-15 with total page 433 pages. Available in PDF, EPUB and Kindle. Book excerpt: When Sally Kirk's son, Will, was diagnosed with an Autism Spectrum Disorder (ASD), she did everything she could to understand his condition and to find ways of improving his quality of life. In this book, Sally shares the story of her journey with Will and how her discovery of biomedical interventions significantly improved his behaviour and changed their lives for the better. Based on personal experience and extensive biomedical research, the book shows how important it is to understand both the child's mind and body, and explores how, when underlying physical problems are treated, brain function and troublesome behaviors often improve. It describes in depth the most common physical problems for those on the autism spectrum and the variety of treatments available such as minimizing exposure to heavy metals and toxins, alterations in diet, and use of vaccinations. This positive, practical book tells a personal story of hope and provides a wealth of essential information on biomedical interventions for parents of children on the autism spectrum. It will also be a useful resource for therapists, medical professionals and adults with autism-spectrum diagnoses.
Book Synopsis Handbook of Life Course Health Development by : Neal Halfon
Download or read book Handbook of Life Course Health Development written by Neal Halfon and published by Springer. This book was released on 2017-11-20 with total page 667 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book is open access under a CC BY 4.0 license. This handbook synthesizes and analyzes the growing knowledge base on life course health development (LCHD) from the prenatal period through emerging adulthood, with implications for clinical practice and public health. It presents LCHD as an innovative field with a sound theoretical framework for understanding wellness and disease from a lifespan perspective, replacing previous medical, biopsychosocial, and early genomic models of health. Interdisciplinary chapters discuss major health concerns (diabetes, obesity), important less-studied conditions (hearing, kidney health), and large-scale issues (nutrition, adversity) from a lifespan viewpoint. In addition, chapters address methodological approaches and challenges by analyzing existing measures, studies, and surveys. The book concludes with the editors’ research agenda that proposes priorities for future LCHD research and its application to health care practice and health policy. Topics featured in the Handbook include: The prenatal period and its effect on child obesity and metabolic outcomes. Pregnancy complications and their effect on women’s cardiovascular health. A multi-level approach for obesity prevention in children. Application of the LCHD framework to autism spectrum disorder. Socioeconomic disadvantage and its influence on health development across the lifespan. The importance of nutrition to optimal health development across the lifespan. The Handbook of Life Course Health Development is a must-have resource for researchers, clinicians/professionals, and graduate students in developmental psychology/science; maternal and child health; social work; health economics; educational policy and politics; and medical law as well as many interrelated subdisciplines in psychology, medicine, public health, mental health, education, social welfare, economics, sociology, and law.
Book Synopsis The Autism Mom's Survival Guide (for Dads, too!) by : Susan Senator
Download or read book The Autism Mom's Survival Guide (for Dads, too!) written by Susan Senator and published by Shambhala Publications. This book was released on 2010-03-30 with total page 206 pages. Available in PDF, EPUB and Kindle. Book excerpt: Given the daily challenges of raising a child with autism, it’s easy for parents to lose themselves and for their overall quality of life to plummet. Susan Senator interweaves the voices of autism parents, researchers, and professionals to offer guidance and encouragement on how to find happiness and fulfillment in the midst of the struggles of raising an autistic child. Topics include: how to handle feelings of despair and hopelessness; finding fun, even during turbulent times; caring for your marriage; and finding a balance between accepting your child as he or she is and seeking new treatments. To learn more about the author, visit her website at susansenator.com.
Book Synopsis Autism Spectrum Disorders Through the Life Span by : Digby Tantam
Download or read book Autism Spectrum Disorders Through the Life Span written by Digby Tantam and published by Jessica Kingsley Publishers. This book was released on 2012 with total page 579 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book contains the latest research on assessment, diagnosis, treatment, intervention and support of individuals with ASD, and examines their implications at various stages of life. A wide range of neurological, genetic, psychological, developmental, social, and emotional issues are covered.
Book Synopsis Parental Perceptions of the Transition to Adulthood for Their Children with Autism Spectrum Disorder by : Jennifer K. Labowitz
Download or read book Parental Perceptions of the Transition to Adulthood for Their Children with Autism Spectrum Disorder written by Jennifer K. Labowitz and published by . This book was released on 2021 with total page 100 pages. Available in PDF, EPUB and Kindle. Book excerpt: Parents of adult children with autism spectrum disorder (ASD) and intellectual disabilities (ID) face many challenges as their child transitions from school aged services to adulthood. With an increasing population of individuals with ASD moving into adulthood, there is growing need to better understand ways to improve outcomes during the transition to adulthood. The purpose of this study was to examine the experience of parents during their child's transition out of their local educational agency services and into adulthood. The following questions directed this study: What are the perceptions of parents of adult children with ASD and co-occurring ID regarding the effectiveness of transition planning during school-aged services? What are the perceptions of parents of adult children with ASD and co-occurring ID regarding their child's preparation for adult services? What are the perceptions of parents of adult children with ASD and cooccurring ID regarding their child's quality of life after transitioning to adulthood? This study found that parents perceived the school transition planning process as individualized, included parent input, and incorporated student specific strengths and interests. Yet, the study showed an absence of continuity between the transition planning process and the success of the actual transition. Participants in this study conveyed the importance of incorporating the school team in the identification of an adult service provider, the need for transparency during the transition, and improved training and oversight for adult service providers regarding individuals with complex needs.
Book Synopsis Handbook of Assessment and Diagnosis of Autism Spectrum Disorder by : Johnny L. Matson
Download or read book Handbook of Assessment and Diagnosis of Autism Spectrum Disorder written by Johnny L. Matson and published by Springer. This book was released on 2016-02-04 with total page 480 pages. Available in PDF, EPUB and Kindle. Book excerpt: This handbook details best practices and discusses ongoing challenges in assessment and diagnosis of autism spectrum disorder (ASD). Chapters address assessment and diagnostic protocols, developmental considerations in ASD assessment, and issues concerning comorbid psychological and medical conditions. Various aspects of the disorder are emphasized throughout the handbook - from assessment in adolescent and adult populations to the latest findings in neuropsychology. The book concludes with future directions for research and clinical applications, focusing on universal screening, improved assessment methods, and earlier and more accurate diagnosis. Topics featured in this handbook include: Types of ASD assessment. Report writing for ASD evaluations. Stress and satisfaction in the diagnostic process. Clinical and neuropsychological perspectives from comorbid diagnosis of ASD and ADHD. Executive functions in ASD. The Handbook of Assessment and Diagnosis of Autism Spectrum Disorder is an essential reference for researchers, clinicians, professionals, and graduate students in clinical child and school psychology, child and adolescent psychiatry, and social work as well as rehabilitation medicine/therapy, behavioral therapy, pediatrics, and educational psychology.
