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All In Living Not Dying With Als
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Book Synopsis All In: Living not Dying with ALS by : Chris Benyo
Download or read book All In: Living not Dying with ALS written by Chris Benyo and published by Christian Faith Publishing, Inc.. This book was released on 2022-08-01 with total page 120 pages. Available in PDF, EPUB and Kindle. Book excerpt: "You have ALS. There is no cure or known treatment plan. This is a fatal disease. Life expectancy is two to five years. I'm sorry." These words were spoken to us in a dimly lit doctor's office on December 9, 2010, less than six months after we married. A choice needed to be made at that moment. Die with ALS or Live with ALS and be All In. By the grace of God and Denise's amazing faith we chose to live not die with ALS. This is a story of love, of survival, and running, the sport that united us and enables me to keep the memory of Denise alive. There is a lot to her empty chair as you will discover in these pages. Be inspired by my wife and know our God is with us always.
Book Synopsis We Know How This Ends by : Bruce H. Kramer
Download or read book We Know How This Ends written by Bruce H. Kramer and published by U of Minnesota Press. This book was released on 2015-04-01 with total page 215 pages. Available in PDF, EPUB and Kindle. Book excerpt: Nautilus Book Awards — Silver Award Winner 2010 had been a very good year for Bruce H. Kramer. But what began as a floppy foot and leg weakness led to a shattering diagnosis: he had amyotrophic lateral sclerosis. ALS is a cruel, unrelenting neurodegenerative disease in which the body’s muscles slowly weaken, including those used to move, swallow, talk, and ultimately breathe. There is no cure: ALS is a death sentence. When death is a constant companion, sitting too closely beside you at the dinner table, coloring your thoughts and feelings and words, your outlook on life is utterly transformed. The perspective and insights offered in We Know How This Ends reveal this daily reality and inspire a way forward for anyone who has suffered major loss and for anyone who surely will. Rather than wallowing in sadness and bitterness, anger and denial, Kramer accepted the crushing diagnosis. The educator and musician recognized that if he wanted a meaningful life, then embracing his imminent death was his only viable option. His decision was the foundation for profound, personal reflection and growth, even as his body weakened, and inspired him to share the lessons he was learning from ALS about how to live as fully as possible, even in the midst of devastating grief. At the time Kramer was diagnosed, broadcast journalist Cathy Wurzer was struggling with her own losses, especially her father’s slow descent into the bewildering world of dementia. Mutual friends put this unlikely pair—journalist and educator—together, and the serendipitous result has been a series of remarkable broadcast conversations, a deep friendship, and now this book. Written with wisdom, genuine humor, and down-to-earth observations, We Know How This Ends is far more than a memoir. It is a dignified, courageous, and unflinching look at how acceptance of loss and inevitable death can lead us all to a more meaningful and fulfilling life.
Book Synopsis Until I Say Good-Bye by : Bret Witter
Download or read book Until I Say Good-Bye written by Bret Witter and published by Hachette UK. This book was released on 2013-03-14 with total page 346 pages. Available in PDF, EPUB and Kindle. Book excerpt: THE NEW YORK TIMES BESTSELLER What would you do with one last year? Susan Spencer-Wendel was determined to laugh instead of cry. In June 2011, Susan Spencer-Wendel learned she had amyotrophic lateral sclerosis (ALS) - Lou Gehrig's disease - an irreversible condition that systematically destroys the nerves that power the muscles. She was 44-years-old, with three young children, and she had only one year of health remaining. She decided to live that year with joy. She left her job as a journalist and spent time with her family. She built a meeting place for friends in her backyard. And she took seven trips with the seven most important people in her life. As her health declined, Susan journeyed to the Yukon, Hungary, the Bahamas, and Cyprus. She went to the beach with her sons and to Kleinfeld's bridal shop in New York City with her teenage daughter, Marina, for a glimpse of the wedding she would never attend. She also wrote this book. No longer able to walk or even lift her arms, she tapped it out letter by letter on her iPhone using only her right thumb, the last finger still working. And yet Until I Say Good-Bye is not angry or bitter. It is sad in parts - how could it not be? - but it is filled with Susan's optimism, joie de vivre and sens of humour. It is a book that, like Susan, will make everyone smile. From a hilarious family Christmas disaster to the decrepit monastery in eastern Cyprus where she rediscovered her heritage, Until I Say Good-Bye is Susan Spencer-Wendel's unforgettable gift to her loved ones and to us: a record of their final experiences together and a reminder that every day is better when it is lived with joy.
Download or read book Eyes to the Wind written by Ady Barkan and published by Simon and Schuster. This book was released on 2022-01-18 with total page 304 pages. Available in PDF, EPUB and Kindle. Book excerpt: In this inspirational and moving memoir, activist Barkan explores his life with ALS and how his diagnosis gave him a profound new understanding of his commitment to social justice for all.
Book Synopsis Tuesdays with Morrie by : Mitch Albom
Download or read book Tuesdays with Morrie written by Mitch Albom and published by Crown. This book was released on 2007-06-29 with total page 226 pages. Available in PDF, EPUB and Kindle. Book excerpt: #1 NEW YORK TIMES BESTSELLER • A special 25th anniversary edition of the beloved book that has changed millions of lives with the story of an unforgettable friendship, the timeless wisdom of older generations, and healing lessons on loss and grief—featuring a new afterword by the author “A wonderful book, a story of the heart told by a writer with soul.”—Los Angeles Times “The most important thing in life is to learn how to give out love, and to let it come in.” Maybe it was a grandparent, or a teacher, or a colleague. Someone older, patient and wise, who understood you when you were young and searching, helped you see the world as a more profound place, gave you sound advice to help you make your way through it. For Mitch Albom, that person was his college professor Morrie Schwartz. Maybe, like Mitch, you lost track of this mentor as you made your way, and the insights faded, and the world seemed colder. Wouldn’t you like to see that person again, ask the bigger questions that still haunt you, receive wisdom for your busy life today the way you once did when you were younger? Mitch Albom had that second chance. He rediscovered Morrie in the last months of the older man’s life. Knowing he was dying, Morrie visited with Mitch in his study every Tuesday, just as they used to back in college. Their rekindled relationship turned into one final “class”: lessons in how to live. “The truth is, Mitch,” he said, “once you learn how to die, you learn how to live.” Tuesdays with Morrie is a magical chronicle of their time together, through which Mitch shares Morrie’s lasting gift with the world.
Book Synopsis The End-of-Life Handbook by : David Feldman
Download or read book The End-of-Life Handbook written by David Feldman and published by New Harbinger Publications. This book was released on 2008-01-01 with total page 202 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book address both the emotional and psychological issues associated with death and dying and the practical and medical realities typically dealt with at this time-unusual among titles in this subject area. The authors, a psychologist and medical doctor, are passionate advocates for quality end-of-life care. Author Feldman's background in positive psychology brings an emphasis on hope, inspiration, meaning, and human connection at the end of life to the book. As medical technology progresses and life expectancies edge upward, families are being faced with ever-more-complicated choices as loved ones approach their final hours. This book offers readers much-needed guidance and support for making these often difficult decisions.
Book Synopsis Palliative Care in Amyotrophic Lateral Sclerosis by : David Oliver
Download or read book Palliative Care in Amyotrophic Lateral Sclerosis written by David Oliver and published by OUP Oxford. This book was released on 2014-03-20 with total page 353 pages. Available in PDF, EPUB and Kindle. Book excerpt: Amytrophic Lateral Sclerosis (ALS or motor neurone disease) is a progressive neurodegenerative disease that can cause profound suffering for both the patient and their family. Whilst new treatments for ALS are being developed, these are not curative and offer only the potential to slow its progression. Palliative care must therefore be integral to the clinical approach to the disease. Palliative Care in Amyotrophic Lateral Sclerosis: From diagnosis to bereavement reflects the wide scope of this care; it must cover not just the terminal phase, but support the patient and their family from the onset of the disease. Both the multidisciplinary palliative care team and the neurology team are essential in providing a high standard of care and allowing quality of life (both patient and carer) to be maintained. Clear guidelines are provided to address care throughout the disease process. Control of symptoms is covered alongside the psychosocial care of patients and their families. Case studies are used to emphasise the complexity of the care needs and involvement of the patient and family, culminating in discussion of bereavement. Different models of care are explored, and this new edition utilizes the increase in both the evidence-base and available literature on the subject. New topics discussed include complementary therapies, personal and family experiences of ALS, new genetics research, and updated guidelines for patient care, to ensure this new edition remains the essential guide to palliative care in ALS.
Book Synopsis Spy of the First Person by : Sam Shepard
Download or read book Spy of the First Person written by Sam Shepard and published by Vintage. This book was released on 2018-11-20 with total page 98 pages. Available in PDF, EPUB and Kindle. Book excerpt: The final work from the Pulitzer Prize–winning writer, actor, and musician, drawn from his transformative last days In searing, beautiful prose, Sam Shepard’s extraordinary narrative leaps off the page with its immediacy and power. It tells in a brilliant braid of voices the story of an unnamed narrator who traces, before our rapt eyes, his memories of work, adventure, and travel as he undergoes medical tests and treatments for a condition that is rendering him more and more dependent on the loved ones who are caring for him. The narrator’s memories and preoccupations often echo those of our current moment—for here are stories of immigration and community, inclusion and exclusion, suspicion and trust. But at the book’s core, and his, is family—his relationships with those he loved, and with the natural world around him. Vivid, haunting, and deeply moving, Spy of the First Person takes us from the sculpted gardens of a renowned clinic in Arizona to the blue waters surrounding Alcatraz, from a New Mexico border town to a condemned building on New York City’s Avenue C. It is an unflinching expression of the vulnerabilities that make us human—and an unbound celebration of family and life.
Book Synopsis Handbook for Mortals by : Joanne Lynn, MD
Download or read book Handbook for Mortals written by Joanne Lynn, MD and published by Oxford University Press. This book was released on 2011-06-16 with total page 317 pages. Available in PDF, EPUB and Kindle. Book excerpt: Rev. ed. of: Handbook for mortals / Joanne Lynn, Joan Harrold, and the Center to Improve Care of the Dying, George Washington University. 1999.
Book Synopsis It Helps to Talk about it by : Bob MacLean
Download or read book It Helps to Talk about it written by Bob MacLean and published by . This book was released on 1994 with total page 154 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis An Unexpected Journey by : Ronald J. Unterreiner
Download or read book An Unexpected Journey written by Ronald J. Unterreiner and published by . This book was released on 2017-02-01 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book The Women written by Hilton Als and published by . This book was released on 2022-05-05 with total page 160 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Stiff: The Curious Lives of Human Cadavers by : Mary Roach
Download or read book Stiff: The Curious Lives of Human Cadavers written by Mary Roach and published by W. W. Norton & Company. This book was released on 2004-04-27 with total page 305 pages. Available in PDF, EPUB and Kindle. Book excerpt: A look inside the world of forensics examines the use of human cadavers in a wide range of endeavors, including research into new surgical procedures, space exploration, and a Tennessee human decay research facility.
Download or read book Dying Every Day written by James Romm and published by Vintage. This book was released on 2014-03-11 with total page 328 pages. Available in PDF, EPUB and Kindle. Book excerpt: From acclaimed classical historian, author of Ghost on the Throne (“Gripping . . . the narrative verve of a born writer and the erudition of a scholar” —Daniel Mendelsohn) and editor of The Landmark Arrian:The Campaign of Alexander (“Thrilling” —The New York Times Book Review), a high-stakes drama full of murder, madness, tyranny, perversion, with the sweep of history on the grand scale. At the center, the tumultuous life of Seneca, ancient Rome’s preeminent writer and philosopher, beginning with banishment in his fifties and subsequent appointment as tutor to twelve-year-old Nero, future emperor of Rome. Controlling them both, Nero’s mother, Julia Agrippina the Younger, Roman empress, great-granddaughter of the Emperor Augustus, sister of the Emperor Caligula, niece and fourth wife of Emperor Claudius. James Romm seamlessly weaves together the life and written words, the moral struggles, political intrigue, and bloody vengeance that enmeshed Seneca the Younger in the twisted imperial family and the perverse, paranoid regime of Emperor Nero, despot and madman. Romm writes that Seneca watched over Nero as teacher, moral guide, and surrogate father, and, at seventeen, when Nero abruptly ascended to become emperor of Rome, Seneca, a man never avid for political power became, with Nero, the ruler of the Roman Empire. We see how Seneca was able to control his young student, how, under Seneca’s influence, Nero ruled with intelligence and moderation, banned capital punishment, reduced taxes, gave slaves the right to file complaints against their owners, pardoned prisoners arrested for sedition. But with time, as Nero grew vain and disillusioned, Seneca was unable to hold sway over the emperor, and between Nero’s mother, Agrippina—thought to have poisoned her second husband, and her third, who was her uncle (Claudius), and rumored to have entered into an incestuous relationship with her son—and Nero’s father, described by Suetonius as a murderer and cheat charged with treason, adultery, and incest, how long could the young Nero have been contained? Dying Every Day is a portrait of Seneca’s moral struggle in the midst of madness and excess. In his treatises, Seneca preached a rigorous ethical creed, exalting heroes who defied danger to do what was right or embrace a noble death. As Nero’s adviser, Seneca was presented with a more complex set of choices, as the only man capable of summoning the better aspect of Nero’s nature, yet, remaining at Nero’s side and colluding in the evil regime he created. Dying Every Day is the first book to tell the compelling and nightmarish story of the philosopher-poet who was almost a king, tied to a tyrant—as Seneca, the paragon of reason, watched his student spiral into madness and whose descent saw five family murders, the Fire of Rome, and a savage purge that destroyed the supreme minds of the Senate’s golden age.
Book Synopsis I Love Jesus, But I Want to Die by : Sarah J. Robinson
Download or read book I Love Jesus, But I Want to Die written by Sarah J. Robinson and published by WaterBrook. This book was released on 2021-05-11 with total page 257 pages. Available in PDF, EPUB and Kindle. Book excerpt: A compassionate, shame-free guide for your darkest days “A one-of-a-kind book . . . to read for yourself or give to a struggling friend or loved one without the fear that depression and suicidal thoughts will be minimized, medicalized or over-spiritualized.”—Kay Warren, cofounder of Saddleback Church What happens when loving Jesus doesn’t cure you of depression, anxiety, or suicidal thoughts? You might be crushed by shame over your mental illness, only to be told by well-meaning Christians to “choose joy” and “pray more.” So you beg God to take away the pain, but nothing eases the ache inside. As darkness lingers and color drains from your world, you’re left wondering if God has abandoned you. You just want a way out. But there’s hope. In I Love Jesus, But I Want to Die, Sarah J. Robinson offers a healthy, practical, and shame-free guide for Christians struggling with mental illness. With unflinching honesty, Sarah shares her story of battling depression and fighting to stay alive despite toxic theology that made her afraid to seek help outside the church. Pairing her own story with scriptural insights, mental health research, and simple practices, Sarah helps you reconnect with the God who is present in our deepest anguish and discover that you are worth everything it takes to get better. Beautifully written and full of hard-won wisdom, I Love Jesus, But I Want to Die offers a path toward a rich, hope-filled life in Christ, even when healing doesn’t look like what you expect.
Download or read book All We Know written by Lisa Cohen and published by Macmillan. This book was released on 2013-09-10 with total page 450 pages. Available in PDF, EPUB and Kindle. Book excerpt: Chronicles the lives of New York intellectual Esther Murphy, celebrity ephemera collector Mercedes de Acosta, and British Vogue editor Madge Garland and their lifestyles, influence on fashion, and celebrity friendships.
Book Synopsis Dance Me to the End by : Alison Acheson
Download or read book Dance Me to the End written by Alison Acheson and published by Brindle and Glass. This book was released on 2019-10-08 with total page 321 pages. Available in PDF, EPUB and Kindle. Book excerpt: A profoundly honest and intensely personal story of a woman who cares for her husband after the devastating terminal diagnosis of ALS. Marty, age 57, was given a preliminary diagnosis of ALS by his family doctor. Seven weeks later, the diagnosis was confirmed by a neurologist. Ten months and ten days later, Marty passed away. From day one, Alison, Marty’s spouse of over twenty-five years, kept a journal as a way to navigate the overwhelming state of her mind and soul. Soon the rawness of her words harmonized to tell the story of Marty’s diagnosis, illness, and decline. Her journal became a chronicle of caregiving as well as an emotional exploration of the tensions between the intuitive and the pragmatic, the logical and illogical, and the all-consuming demands of being both spouse and nurse. Divided into short pieces, some of which reads as free verse, Alison’s words are at times profoundly intense and painfully private. The composition of the intricate notes of a life in its final movements includes another stanza of the journal that became Dance Me to the End: the guiding of children grappling with the imminent loss of a parent, and the shifting roles of family, friends, and community—all of which add their own complex rhythms. Dance Me to the End is an evocative memoir about the emotional impact of witnessing a loved one suffer from a neurological, degenerative, and terminal disease. This is a detailed account of grief, shock and pain coexisting with the levity, laughter and love shared with her husband and sons in those final months of Marty's life.
