Albinism In Africa

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Albinism in Africa

Author : Jennifer Kromberg
Publisher : Academic Press
ISBN 13 : 0128133171
Total Pages : 358 pages
Book Rating : 4.1/5 (281 download)

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Book Synopsis Albinism in Africa by : Jennifer Kromberg

Download or read book Albinism in Africa written by Jennifer Kromberg and published by Academic Press. This book was released on 2018-01-02 with total page 358 pages. Available in PDF, EPUB and Kindle. Book excerpt: Albinism in Africa: Historical, Geographic, Medical, Genetic, and Psychosocial Aspects provides the first in-depth reference for understanding and treating patients of human albinism in Africa. Leading international contributors examine the historical, geographic, psychosocial, genetic and molecular considerations of importance in effectively and sensitively managing this genetic disorder. Foundational chapters covering the historical and psychosocial aspects of albinism are supplemented by discussions of the pathobiology of the disease, as well as a thorough analysis of the genetics of skin pigmentation, eye pigmentation, hair pigmentation, and incidents of skin cancer involved in the manifestations of this disorder. New prenatal diagnostics and genetic testing methods, genetic risk assessment for individuals, families, and communities, and novel genetic markers that may be used for developing new therapeutics for treating albinism are also discussed in detail. The book provides care management approaches that may be applied to instances of albinism in other regions, along with guiding principles for treating rare genetic disorders and stigmatized patient populations across the globe. Includes contributions from leading international contributors who examine the historical, geographic, psychosocial, genetic and molecular aspects of importance in sensitively managing albinism in Africa Discusses recent advances in our understanding of the pathobiology of albinism, while also offering a thorough analysis of the genetics of skin pigmentation, eye pigmentation, hair pigmentation, and rates of skin cancer Highlights new prenatal diagnostics and genetic testing methods and approaches to genetic risk assessment for individuals, families and communities

African Philosophy and the Otherness of Albinism

Author : Elvis Imafidon
Publisher : Routledge
ISBN 13 : 0429813112
Total Pages : 146 pages
Book Rating : 4.4/5 (298 download)

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Book Synopsis African Philosophy and the Otherness of Albinism by : Elvis Imafidon

Download or read book African Philosophy and the Otherness of Albinism written by Elvis Imafidon and published by Routledge. This book was released on 2018-10-30 with total page 146 pages. Available in PDF, EPUB and Kindle. Book excerpt: Albinism is one of the foremost disability and public health issues in Africa today. It often makes headlines in local, national and international medias and forms the basis for intense advocacy at all levels. This is primarily due to the harmful representations of persons with albinism deeply entrenched in African traditions. These deeply rooted ideologies about albinism in African thought have largely promoted the continuous discrimination, stigmatization, harming, killing, commodification and violation of the human rights of persons with albinism in African places. How has albinism emerged as a thick concept in African traditions? What are these deeply entrenched ideas about the ontology of albinism in African thought? What epistemic injustice has been done to persons with albinism in Africa places? Why do harmful beliefs about albinism still persist in modern African societies? How does the African communalistic ethic justify the harm done against persons with albinism? What is the duty to, and burden of, care for persons with albinism? What peculiar existential challenges do persons with albinism in general and females with albinism in particular face in African societies and how can they be overcome? What can be learnt from the education philosophy of reconstructionism and genetic engineering in improving the wellbeing of persons with albinism? African Philosophy and the Otherness of Albinism: White Skin, Black Race digs deep into these philosophical questions revealing fascinating but latent aspects of how albinism is understood in African places as a necessary step to take in improving the wellbeing and integrity of persons with albinism in Africa today. This book will be of interest to scholars and students of African philosophy, sociology, African studies and disability studies.

Golden Boy

Author : Tara Sullivan
Publisher : G.P. Putnam's Sons
ISBN 13 : 0399161120
Total Pages : 370 pages
Book Rating : 4.3/5 (991 download)

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Book Synopsis Golden Boy by : Tara Sullivan

Download or read book Golden Boy written by Tara Sullivan and published by G.P. Putnam's Sons. This book was released on 2013 with total page 370 pages. Available in PDF, EPUB and Kindle. Book excerpt: "A Tanzanian albino boy finds himself the ultimate outsider, hunted because of the color of his skin"--

Nobody's Magic

Author : Destiny O. Birdsong
Publisher : Grand Central Publishing
ISBN 13 : 1538721414
Total Pages : 327 pages
Book Rating : 4.5/5 (387 download)

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Book Synopsis Nobody's Magic by : Destiny O. Birdsong

Download or read book Nobody's Magic written by Destiny O. Birdsong and published by Grand Central Publishing. This book was released on 2022-02-08 with total page 327 pages. Available in PDF, EPUB and Kindle. Book excerpt: “The magic here is not the supernatural kind, but rather an attention to the grace of the ordinary. It is the magic of watching these women come into their power.”—New York Times A GMA Buzz Pick! A Most Anticipated Book by Essence · The Millions · Atlantic Journal Constitution · Glamour · Teen Vogue · Bustle · BookPage · Nashville Scene · Ms. Magazine · Parnassus Musing A Best Book of February by Washington Post · Nylon · BookRiot In this glittering triptych novel, Suzette, Maple and Agnes, three Black women with albinism, call Shreveport, Louisiana home. At the bustling crossroads of the American South and Southwest, these three women find themselves at the crossroads of their own lives. Suzette, a pampered twenty-year‑old, has been sheltered from the outside world since a dangerous childhood encounter. Now, a budding romance with a sweet mechanic allows Suzette to seek independence, which unleashes dark reactions in those closest to her. In discovering her autonomy, Suzette is forced to decide what she is willing to sacrifice in order to make her own way in the world. Maple is reeling from the unsolved murder of her free‑spirited mother. She flees the media circus and her judgmental grandmother by shutting herself off from the world in a spare room of the motel where she works. One night, at a party, Maple connects with Chad, someone who may understand her pain more than she realizes, and she discovers that the key to her mother's death may be within her reach. Agnes is far from home, working yet another mind‑numbing job. She attracts the interest of a lonely security guard and army veteran who’s looking for a traditional life for himself and his young son. He’s convinced that she wields a certain “magic,” but Agnes soon unleashes a power within herself that will shock them both and send her on a trip to confront not only her family and her past, but also herself. This novel, told in three parts, is a searing meditation on grief, female strength, and self‑discovery set against a backdrop of complicated social and racial histories. Nobody's Magic is a testament to the power of family—the ones you're born in and the ones you choose. And in these three narratives, among the yearning and loss, each of these women may find a seed of hope for the future.

Protecting the Right to Life of People Living With Albinism. A Case Study of Kenya

Author : Sylvia Waliaula
Publisher : GRIN Verlag
ISBN 13 : 3668940258
Total Pages : 33 pages
Book Rating : 4.6/5 (689 download)

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Book Synopsis Protecting the Right to Life of People Living With Albinism. A Case Study of Kenya by : Sylvia Waliaula

Download or read book Protecting the Right to Life of People Living With Albinism. A Case Study of Kenya written by Sylvia Waliaula and published by GRIN Verlag. This book was released on 2019-05-17 with total page 33 pages. Available in PDF, EPUB and Kindle. Book excerpt: Diploma Thesis from the year 2018 in the subject Law - Public Law / Constitutional Law / Basic Rights, grade: 64, De Montfort University Leicester (Business and Law), course: LAW, language: English, abstract: This paper examines the question, how, based on the right to life, the lifes of people with albinism can and should be protected in the case of Kenya. The Right to life is an inherent right, and both state and non-state actors have legal obligations to refrain from intentional and unlawful deprivation of life. In spite of this, the belief and practice of witchcraft are traditionally rooted in a number of African communities, this has led in a series of violations of the rights of persons living with albinism. The most barbaric of all being the evisceration of their body parts or bones, to use them in witchcraft rituals, aimed to bring success in one's life, cure diseases and also keep evil at bay. Nevertheless, this study examines the legal significance of international treaties protecting the right to life and security of persons living with albinism. An illustration of the principles established in the Convention on the Rights of Persons with disabilities and other core international norms that ordinarily protect the right to life will be demonstrated. Notably, international human rights serve as a catalyst for legal change, through furthering the promotion of fundamental human rights. In light of this observation, this study illustrates national court cases, domestic laws and practices structured by the Kenyan government that comply with its international obligations, in promoting and preserving the right to life of people with albinism.

Cultural Representations of Albinism in Africa

Author : Charlotte Baker
Publisher :
ISBN 13 : 9781800791398
Total Pages : 0 pages
Book Rating : 4.7/5 (913 download)

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Book Synopsis Cultural Representations of Albinism in Africa by : Charlotte Baker

Download or read book Cultural Representations of Albinism in Africa written by Charlotte Baker and published by . This book was released on 2022 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: "'The authors in this inspiring volume focus on the socially transformative potential narrative has to shape understandings of albinism in Africa. Scholars and activists, they reflect on how traditional beliefs, literary fiction, radio, music, photography, film and the arts can bring about social change, and also educate publics about albinism.' - Carli Coetzee, Editor, Journal of African Cultural Studies 'Highly intriguing and skillfully nuanced, this book evaluates several methods of advocacy on behalf of people with albinism from Africa, who often face stigma and physical attacks. The result is a rich commentary on what has worked, what didn't and why. This is recommended reading for anyone engaging in advocacy for any marginalized group in parts of Africa and elsewhere.' - Ikponwosa Ero, Former UN Independent Expert on the enjoyment of human rights by persons with albinism The challenges currently faced by people with albinism in many African countries are increasingly becoming a focus of African writers, storytellers, artists and filmmakers across the continent. At the same time, a growing number of advocates and activists are taking account of the power of cultural representation and turning to the arts to convey important messages about albinism - and disability more broadly - to audiences locally and internationally. This volume focuses on the power of cultural representations of albinism, taking into account their real-world effects and implications. Contributions from academics and albinism advocates range across traditional beliefs, literature, radio, newsprint, the media, film and the arts for public engagement, contending that all forms of representation have an important role to play in building sensitivity to the issues related to albinism amongst national and international audiences. Contributors draw attention to the implications of different forms of cultural representation, the potential of these different forms to open up new discursive spaces for the expression of identities and the articulation or critique of particularly difficult issues, and their potential to evoke far-reaching social change"--

Truevine

Author : Beth Macy
Publisher : Little, Brown
ISBN 13 : 0316337560
Total Pages : 432 pages
Book Rating : 4.3/5 (163 download)

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Book Synopsis Truevine by : Beth Macy

Download or read book Truevine written by Beth Macy and published by Little, Brown. This book was released on 2016-10-18 with total page 432 pages. Available in PDF, EPUB and Kindle. Book excerpt: NATIONAL BESTSELLER The true story of two African-American brothers who were kidnapped and displayed as circus freaks, and whose mother endured a 28-year struggle to get them back. The year was 1899 and the place a sweltering tobacco farm in the Jim Crow South town of Truevine, Virginia. George and Willie Muse were two little boys born to a sharecropper family. One day a white man offered them a piece of candy, setting off events that would take them around the world and change their lives forever. Captured into the circus, the Muse brothers performed for royalty at Buckingham Palace and headlined over a dozen sold-out shows at New York's Madison Square Garden. They were global superstars in a pre-broadcast era. But the very root of their success was in the color of their skin and in the outrageous caricatures they were forced to assume: supposed cannibals, sheep-headed freaks, even "Ambassadors from Mars." Back home, their mother never accepted that they were "gone" and spent 28 years trying to get them back. Through hundreds of interviews and decades of research, Beth Macy expertly explores a central and difficult question: Where were the brothers better off? On the world stage as stars or in poverty at home? TRUEVINE is a compelling narrative rich in historical detail and rife with implications to race relations today.

Albinism and Its Occurrence in Africa

Author : Sture Lagercrantz
Publisher :
ISBN 13 :
Total Pages : pages
Book Rating : 4.:/5 (138 download)

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Book Synopsis Albinism and Its Occurrence in Africa by : Sture Lagercrantz

Download or read book Albinism and Its Occurrence in Africa written by Sture Lagercrantz and published by . This book was released on 1979 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt:

Visibly Visible Invisible

Author : California African American Museum
Publisher : Createspace Independent Publishing Platform
ISBN 13 : 9781507654354
Total Pages : 138 pages
Book Rating : 4.6/5 (543 download)

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Book Synopsis Visibly Visible Invisible by : California African American Museum

Download or read book Visibly Visible Invisible written by California African American Museum and published by Createspace Independent Publishing Platform. This book was released on 2015-03-13 with total page 138 pages. Available in PDF, EPUB and Kindle. Book excerpt: Albinism in Tanzania, Jamaica and the USA through the eyes of artist Yrneh Gabon Brown. Catalog for exhibition at the California African American Museum, Los Angeles, California.

ColorSTRUCK

Author : Uzoma Uponi
Publisher :
ISBN 13 : 9781639038916
Total Pages : 278 pages
Book Rating : 4.0/5 (389 download)

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Book Synopsis ColorSTRUCK by : Uzoma Uponi

Download or read book ColorSTRUCK written by Uzoma Uponi and published by . This book was released on 2021-08-16 with total page 278 pages. Available in PDF, EPUB and Kindle. Book excerpt: Afam Izuwa didn't expect that taking care of three orphaned children would be easy. And it isn't, especially since one of them is an albino. Depending on who you ask in this African society, albinos can be a blessing or a curse to a family. The three siblings are aware of the danger their albino sibling faces. They also know they have no choice but to entrust their safety to the care of their new uncle and to fully embrace their new life with him. ***** Awele Martins is in the final weeks of her youth service when she overhears a midnight conversation that sets her on a collision course with evil. Her actions would catapult her into the lives of Afam Izuwa and his dependants and result in a clear demonstration of how hopeless situations can be turned around by divine intervention. Set in Nigeria, ColorSTRUCK explores discrimination against persons with albinism in Africa

Black Broadway in Washington, DC

Author : Briana A. Thomas
Publisher : Arcadia Publishing
ISBN 13 : 1467139297
Total Pages : 192 pages
Book Rating : 4.4/5 (671 download)

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Book Synopsis Black Broadway in Washington, DC by : Briana A. Thomas

Download or read book Black Broadway in Washington, DC written by Briana A. Thomas and published by Arcadia Publishing. This book was released on 2021 with total page 192 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Before chain coffeeshops and luxury high-rises, before even the beginning of desegregation and the 1968 riots, Washington's Greater U Street was known as Black Broadway. From the early 1900s into the 1950s, African Americans plagued by Jim Crow laws in other parts of town were free to own businesses here and built what was often described as a "city within a city." Local author and journalist Briana A. Thomas narrates U Street's rich and unique history, from the early triumph of emancipation to the days of civil rights pioneer Mary Church Terrell and music giant Duke Ellington, through the recent struggle of gentrifiction" --

Phenomenology of Practice

Author : Max Van Manen
Publisher : Routledge
ISBN 13 : 1315422638
Total Pages : 446 pages
Book Rating : 4.3/5 (154 download)

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Book Synopsis Phenomenology of Practice by : Max Van Manen

Download or read book Phenomenology of Practice written by Max Van Manen and published by Routledge. This book was released on 2016-09-16 with total page 446 pages. Available in PDF, EPUB and Kindle. Book excerpt: Max van Manen offers an extensive exploration of phenomenological traditions and methods for the human sciences. It is his first comprehensive statement of phenomenological thought and research in over a decade. Phenomenology of practice refers to the meaning and practice of phenomenology in professional contexts such as psychology, education, and health care, as well as to the practice of phenomenological methods in contexts of everyday living. Van Manen presents a detailed description of key phenomenological ideas as they have evolved over the past century; he then thoughtfully works through the methodological issues of phenomenological reflection, empirical methods, and writing that a phenomenology of practice offers to the researcher. Van Manen’s comprehensive work will be of great interest to all concerned with the interrelationship between being and acting in human sciences research and in everyday life. Max van Manen is the editor of the series Phenomenology of Practice, https://www.routledge.com/series/PPVM

Disability in the Global South

Author : Shaun Grech
Publisher : Springer
ISBN 13 : 3319424882
Total Pages : 613 pages
Book Rating : 4.3/5 (194 download)

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Book Synopsis Disability in the Global South by : Shaun Grech

Download or read book Disability in the Global South written by Shaun Grech and published by Springer. This book was released on 2016-11-08 with total page 613 pages. Available in PDF, EPUB and Kindle. Book excerpt: This first-of-its kind volume spans the breadth of disability research and practice specifically focusing on the global South. Established and emerging scholars alongside advocates adopt a critical and interdisciplinary stance to probe, challenge and shift common held social understandings of disability in established discourses, epistemologies and practices, including those in prominent areas such as global health, disability studies and international development. Motivated by decolonizing approaches, contributors carefully weave the lived and embodied experiences of disabled people, families and communities through contextual, cultural, spatial, racial, economic, identity and geopolitical complexities and heterogeneities. Dispatches from Ghana, Lebanon, Sri Lanka, Cambodia, Venezuela among many others spotlight the complex uncertainties of modern geopolitics of coloniality; emergent forms of governance including neoliberal globalization, war and conflicts; the interstices of gender, race, ethnicity, space and religion; structural barriers to redistribution and realization of rights; and processes of disability representation. This handbook examines in rigorous depth, established practices and discourses in disability including those on development, rights, policies and practices, opening a space for critical debate on hegemonic and often unquestioned terrains. Highlights of the coverage include: Critical issues in conceptualizing disability across cultures, time and space The challenges of disability models, metrics and statistics Disability, poverty and livelihoods in urban and rural contexts Disability interstices with migration, race, ethnicity, ge nder and sexuality Disabilit y, religion and customary societies and practice · The UNCRPD, disability rights orientations and instrumentalitie · Redistributive systems including budgeting, cash transfer systems and programming. · Global South–North partnerships: intercultural methodologies in disability research. This much awaited handbook provides students, academics, practitioners and policymakers with an authoritative framework for critical thinking and debate about disability, while pushing theoretical and practical frontiers in unprecedented ways.

Cassidy and Allanson's Management of Genetic Syndromes

Author : John C. Carey
Publisher : John Wiley & Sons
ISBN 13 : 1119432677
Total Pages : 1104 pages
Book Rating : 4.1/5 (194 download)

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Book Synopsis Cassidy and Allanson's Management of Genetic Syndromes by : John C. Carey

Download or read book Cassidy and Allanson's Management of Genetic Syndromes written by John C. Carey and published by John Wiley & Sons. This book was released on 2021-01-27 with total page 1104 pages. Available in PDF, EPUB and Kindle. Book excerpt: MANAGEMENT OF GENETIC SYNDROMES THE MOST RECENT UPDATE TO ONE OF THE MOST ESSENTIAL REFERENCES ON MEDICAL GENETICS Cassidy and Allanson’s Management of Genetic Syndromes, Fourth Edition is the latest version of a classic text in medical genetics. With newly covered disorders and cutting-edge, up-to-date information, this resource remains the most crucial reference on the management of genetic syndromes in the field of medical genetics for students, clinicians, caregivers, and researchers. The fourth edition includes current information on the identification of genetic syndromes (including newly developed diagnostic criteria), the genetic basis (including diagnostic testing), and the routine care and management for more than 60 genetic disorders. Written by experts, each chapter includes sections on: Incidence Diagnostic criteria Etiology, pathogenesis and genetics Diagnostic testing Differential diagnosis Manifestations and Management (by system) The book focuses on genetic syndromes, primarily those involving developmental disabilities and congenital defects. The chapter sections dealing with Manifestations and Management represents the centerpiece of each entry and is unmatched by other genetic syndrome references. Management of Genetic Syndromes is perfect for medical geneticists, genetic counselors, primary care physicians and all healthcare professionals seeking to stay current on the routine care and management of individuals with genetic disorders.

Nwelezelanga

Author : Unathi Magubeni
Publisher : Blackbird Books
ISBN 13 : 1928337260
Total Pages : 89 pages
Book Rating : 4.9/5 (283 download)

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Book Synopsis Nwelezelanga by : Unathi Magubeni

Download or read book Nwelezelanga written by Unathi Magubeni and published by Blackbird Books. This book was released on 2017-03-30 with total page 89 pages. Available in PDF, EPUB and Kindle. Book excerpt: With a rich vocabulary that is poetic and uncluttered, this debut novel is nothing short of a masterpiece. It is both a well-written and philosophical book. The story begins with Nokwakha giving birth at her village home, and when it is discovered that the child is an albino the midwife convinces her that it is a curse and she should snuff the life out of it before it takes another breath. The dreadful deed is done by the river, but the 'all-knowing one' has other plans ... With an assured voice and eloquent prose, Magubeni invites us into the life of this extraordinary being, Nwelezelanga, the child who should not have been, contrasting the themes of darkness and light, embracing the unknown and unseen in a way no one else has - or can.

Akata Witch

Author : Nnedi Okorafor
Publisher : Penguin
ISBN 13 : 0142420913
Total Pages : 386 pages
Book Rating : 4.1/5 (424 download)

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Book Synopsis Akata Witch by : Nnedi Okorafor

Download or read book Akata Witch written by Nnedi Okorafor and published by Penguin. This book was released on 2017-07-11 with total page 386 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Nnedi Okorafor writes glorious futures and fabulous fantasies. Her characters take your heart and squeeze it; her worlds open your mind to new things." -- Neil Gaiman, author of The Graveyard Book and American Gods Affectionately dubbed "the Nigerian Harry Potter," Akata Witch weaves together a heart-pounding tale of magic, mystery, and finding one's place in the world. Perfect for fans of Children of Blood and Bone! Sunny Nwazue lives in Nigeria, but she was born in New York City. Her features are West African, but she's albino. She's a terrific athlete, but can't go out into the sun to play soccer. There seems to be no place where she fits in. And then she discovers something amazing—she is a "free agent" with latent magical power. And she has a lot of catching up to do. Soon she's part of a quartet of magic students, studying the visible and invisible, learning to change reality. But as she’s finding her footing, Sunny and her friends are asked by the magical authorities to help track down a career criminal who knows magic, too. Will their training be enough to help them combat a threat whose powers greatly outnumber theirs? World Fantasy Award-winning author Nnedi Okorafor blends magic and adventure to create a lush world. Her writing has been called “stunning” by The New York Times and her fans include Neil Gaiman, Rick Riordan, John Green, Ursula K. Le Guin, and many more! Raves for Nnedi Okorafor's writing: "There’s more imagination on a page of Nnedi Okorafor’s work than in whole volumes of ordinary fantasy epics." —Ursula K. Le Guin, award-winning author of A Wizard of Earthsea “The most imaginative, gripping, enchanting fantasy novels I have ever read!” —Laurie Halse Anderson, National Book Award finalist and New York Times bestselling author of Speak "I always loved science fiction, but I didn’t feel I was part of it—until I read first Octavia Butler, and now Nnedi Okorafor." —Whoopi Goldberg "Highly original stuff, episode after amazing episode, full of color, life, and death. Nnedi Okorafor's work is wonderful!" —Diana Wynne Jones, award-winning author of The Chronicles of Chrestomanci "Jam-packed with mythological wonders." —Rick Riordan, #1 New York Times bestselling author of the Percy Jackson and the Olympians series "Okorafor's imagination is stunning." —The New York Times Book Review

Expanding Perspectives on Human Rights in Africa

Author : M. Raymond Izarali
Publisher : Routledge
ISBN 13 : 1351398458
Total Pages : 329 pages
Book Rating : 4.3/5 (513 download)

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Book Synopsis Expanding Perspectives on Human Rights in Africa by : M. Raymond Izarali

Download or read book Expanding Perspectives on Human Rights in Africa written by M. Raymond Izarali and published by Routledge. This book was released on 2019-03-14 with total page 329 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book draws attention to emerging issues around the rights of minorities, marginalized groups, and persons in Africa. It explores the gaps between human rights provisions and conditions, showing that although international human rights principles have been embraced in the continent, various minority groups and marginalized persons are denied such rights through criminalization and persecution. African countries have a good record of signing and ratifying international and regional rights instruments but the political will and capacity for enforcing these with respect to minorities remain weak. International contributors to the book provide new perspectives on the rights of marginalized and minority groups in different parts of Africa and the extent to which they are deprived or denied entitlement to the universality and equality articulated in law. The authors show that human rights, while having come of age as a moral ideal, has not been fully entrenched in practice towards groups such as children, indigenous populations, the mentally ill, persons with disabilities, and persons with albinism. This volume is geared toward scholars, students, human rights groups, policy makers, social workers, international organizations, and policy makers in the fields of criminology, security studies, development studies, political science, sociology, children studies, social psychology, international relations, postcolonial studies, and African Studies.