Adoption of Health Literacy Best Practices to Enhance Clinical Research and Community Participation

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Publisher :
ISBN 13 :
Total Pages : 12 pages
Book Rating : 4.:/5 (131 download)

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Book Synopsis Adoption of Health Literacy Best Practices to Enhance Clinical Research and Community Participation by :

Download or read book Adoption of Health Literacy Best Practices to Enhance Clinical Research and Community Participation written by and published by . This book was released on 2022 with total page 12 pages. Available in PDF, EPUB and Kindle. Book excerpt: Clinical research is critical to developing new treatments and therapies for patients. To maximize societal benefit and health equity, it is important that clinical research information be accessible and inclusive, and participants should be representative of the patient population. To explore the role that patient comprehension of clinical research can have in delivering high-quality clinical care and in increasing the diversity of the populations enrolled in clinical research, the National Academies of Sciences, Engineering, and Medicine's Roundtable on Health Literacy held a virtual public workshop on October 28, 2021. Workshop attendees discussed current and promising resources and approaches for ensuring that the public receives clinical research information in accessible language that promotes health literacy. They also discussed strategies for integrating clinical research information into various care and community settings to improve research awareness and engagement. This Proceedings of a Workshop-in Brief highlights the presentations and discussions of the workshop.

Health Literacy in Clinical Research

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Publisher : National Academies Press
ISBN 13 : 0309499690
Total Pages : 121 pages
Book Rating : 4.3/5 (94 download)

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Book Synopsis Health Literacy in Clinical Research by : National Academies of Sciences, Engineering, and Medicine

Download or read book Health Literacy in Clinical Research written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2020-06-28 with total page 121 pages. Available in PDF, EPUB and Kindle. Book excerpt: Because of the individualized nature of drug and therapeutic treatments, clinical trials require participants who represent the diversity of the patient base. If early trials do not have a broad patient base, it can be difficult to know who may or may not benefit from or respond to a treatment later. In addition to diversity in recruitment, informed consent during participation is also crucial. If participants do not fully understand what they are signing up for, they may become confused, mistrustful, or drop out of a trial altogether, confusing investigators and possibly affecting the generalizability of a study. To explore the incorporation of health literacy practices into clinical trials, the Roundtable on Health Literacy convened a workshop titled Clinical Trials: Practice and Impact on April 11, 2019, in Washington, DC. The workshop presentations and discussion centered around issues related to the challenges or barriers for diverse populations' participation in clinical trials, best practices for clinical trial sites and researchers incorporating health literacy practices, and effective health literacy strategies for clear communication with participants. This publication summarizes the presentation and discussion of the workshop.

Building the Case for Health Literacy

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Publisher : National Academies Press
ISBN 13 : 0309474299
Total Pages : 171 pages
Book Rating : 4.3/5 (94 download)

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Book Synopsis Building the Case for Health Literacy by : National Academies of Sciences, Engineering, and Medicine

Download or read book Building the Case for Health Literacy written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2018-08-26 with total page 171 pages. Available in PDF, EPUB and Kindle. Book excerpt: The field of health literacy has evolved from one focused on individuals to one that recognizes that health literacy is multidimensional. While communicating in a health literate manner is important for everyone, it is particularly important when communicating with those with limited health literacy who also experience more serious medication errors, higher rates of hospitalization and use of the emergency room, poor health outcomes, and increased mortality. Over the past decade, research has shown that health literacy interventions can significantly impact various areas including health care costs, outcomes, and health disparities. To understand the extent to which health literacy has been shown to be effective at contributing to the Quadruple Aim of improving the health of communities, providing better care, providing affordable care, and improving the experience of the health care team, the National Academies of Sciences, Engineering, and Medicine convened a public workshop on building the case for health literacy. This publication summarizes the presentations and discussions from the workshop, and highlights important lessons about the role of health literacy in meeting the Quadruple Aim, case studies of organizations that have adopted health literacy, and discussions among the different stakeholders involved in making the case for health literacy.

Health Literacy in Clinical Practice and Public Health

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Publisher : IOS Press
ISBN 13 : 1643680757
Total Pages : 616 pages
Book Rating : 4.6/5 (436 download)

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Book Synopsis Health Literacy in Clinical Practice and Public Health by : R.A. Logan

Download or read book Health Literacy in Clinical Practice and Public Health written by R.A. Logan and published by IOS Press. This book was released on 2020-06-23 with total page 616 pages. Available in PDF, EPUB and Kindle. Book excerpt: “Health literacy is the ultimate global currency of health and well-being. Without health literacy, medicine fails, public health fails, and people pay the cost for these failures with their lives. As this book goes to press, the world is confronted by the COVID-19 pandemic. Improving health literacy becomes increasingly important if we are to successfully confront the challenges that stress our systems of medicine and public health like never before.” (Richard H. Carmona, M.D., M.P.H., FACS, former Surgeon General of the United States, in his foreword to this book.) Two years ago, HTI published the book Health Literacy: New Directions in Research, Theory and Practice. Together with that earlier volume, this book: Health Literacy in Clinical Practice and Public Health: New Initiatives and Lessons Learned at the Intersection with other Disciplines, strives to enumerate and expand our understanding of the multidisciplinary connections which underpin the field of health literacy. The book’s balance between research and practice is a response to the feedback the editors received about the previous publication, which focused more on HL theory and research. With reports of specific health literacy research initiatives and interventions, particularly in clinical practice and public health, the book covers contemporary health literacy research and practice and is divided into three sections. Section one explores health literacy’s capacity to foster progress in clinical practice and public health; section two provides insights into health literacy initiatives and lessons learned from diverse healthcare stakeholders; and section three examines health literacy’s similarities with – and differences from – related health research disciplines. The book sets the practice and research of health literacy on an evidence-based, thoughtful, effective, efficient, and applied course. As Dr Richard Carmona says in his foreword: “It is enthusiastically recommended for all health and medical practitioners and researchers.”

Innovations in Health Literacy Research

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Publisher : National Academies Press
ISBN 13 : 0309210356
Total Pages : 110 pages
Book Rating : 4.3/5 (92 download)

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Book Synopsis Innovations in Health Literacy Research by : Institute of Medicine

Download or read book Innovations in Health Literacy Research written by Institute of Medicine and published by National Academies Press. This book was released on 2011-03-07 with total page 110 pages. Available in PDF, EPUB and Kindle. Book excerpt: Nearly nine out of 10 adults have difficulty using everyday health information to make good health decisions. The Institute of Medicine (IOM) Roundtable on Health Literacy held a meeting on May 27, 2010, to explore areas for research in health literacy, the relationship between health literacy and health disparities, and ways to apply information technology to improve health literacy.

Community-Based Health Literacy Interventions

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Publisher : National Academies Press
ISBN 13 : 0309466679
Total Pages : 245 pages
Book Rating : 4.3/5 (94 download)

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Book Synopsis Community-Based Health Literacy Interventions by : National Academies of Sciences, Engineering, and Medicine

Download or read book Community-Based Health Literacy Interventions written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2018-06-10 with total page 245 pages. Available in PDF, EPUB and Kindle. Book excerpt: In its landmark report, Health Literacy: A Prescription to End Confusion, the Institute of Medicine noted that there are 90 million adults in the United States with limited health literacy who cannot fully benefit from what the health and health care systems have to offer. Since the release of that report, health literacy has become a vibrant research field that has developed and disseminated a wide range of tools and practices that have helped organizations, ranging in size from large health care systems to individual health care providers and pharmacists, to engage in health literate discussions with and provide health literate materials for patients and family members. Improving the health literacy of organizations can be an important component of addressing the social determinants of health and achieving the triple aim of improving the patient experience, improving the health of populations, and reducing the cost of care. However, the focus on organizations does not address the larger issue of how to improve health literacy across the U.S. population. To get a better understanding of the state of community-based health literacy interventions, the Roundtable on Health Literacy hosted a workshop on July 19, 2017 on community-based health literacy interventions. It featured examples of community-based health literacy programs, discussions on how to evaluate such programs, and the actions the field can take to embrace this larger view of health literacy. This publication summarizes the presentations and discussions from the workshop.

Exploring Challenges, Progress, and New Models for Engaging the Public in the Clinical Research Enterprise

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Publisher : National Academies Press
ISBN 13 : 0309089468
Total Pages : 97 pages
Book Rating : 4.3/5 (9 download)

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Book Synopsis Exploring Challenges, Progress, and New Models for Engaging the Public in the Clinical Research Enterprise by : Institute of Medicine

Download or read book Exploring Challenges, Progress, and New Models for Engaging the Public in the Clinical Research Enterprise written by Institute of Medicine and published by National Academies Press. This book was released on 2003-07-25 with total page 97 pages. Available in PDF, EPUB and Kindle. Book excerpt: This report is a summary of a workshop focused on exploring the role of the public in the Clinical Research Enterprise. The Clinical Research Enterprise depends upon practitioners, policy makers, and others for participation in trials, ethical review of research, and continued support of research funding. However, the role of the public has expanded beyond this traditional model as consumers have begun to demand a role in the formulation of the research agenda and in the design, review, and pursuit of research. This report identifies four major challenges to the Clinical Research Enterprise: enhancing public participation in clinical research, which includes making the system safer and faster; developing the necessary information systems that are needed to make the clinical research enterprise a coordinated and seamless whole; fostering an adequately trained workforce; and ensuring adequate funding for clinical research. In addition, the report identifies two translational blocks-from basic science into clinical practice and from the clinical identification of things that work into broader application to improve medical care and the public's health. This workshop summary addresses the contribution of the public to overcoming these obstacles.

Informed Consent and Health Literacy

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Publisher : National Academies Press
ISBN 13 : 0309317304
Total Pages : 192 pages
Book Rating : 4.3/5 (93 download)

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Book Synopsis Informed Consent and Health Literacy by : Institute of Medicine

Download or read book Informed Consent and Health Literacy written by Institute of Medicine and published by National Academies Press. This book was released on 2015-03-04 with total page 192 pages. Available in PDF, EPUB and Kindle. Book excerpt: Informed consent - the process of communication between a patient or research subject and a physician or researcher that results in the explicit agreement to undergo a specific medical intervention - is an ethical concept based on the principle that all patients and research subjects should understand and agree to the potential consequences of the clinical care they receive. Regulations that govern the attainment of informed consent for treatment and research are crucial to ensuring that medical care and research are conducted in an ethical manner and with the utmost respect for individual preferences and dignity. These regulations, however, often require - or are perceived to require - that informed consent documents and related materials contain language that is beyond the comprehension level of most patients and study participants. To explore what actions can be taken to help close the gap between what is required in the informed consent process and communicating it in a health-literate and meaningful manner to individuals, the Institute of Medicine's Roundtable on Health Literacy convened a one-day public workshop featuring presentations and discussions that examine the implications of health literacy for informed consent for both research involving human subjects and treatment of patients. Topics covered in this workshop included an overview of the ethical imperative to gain informed consent from patients and research participants, a review of the current state and best practices for informed consent in research and treatment, the connection between poor informed consent processes and minority underrepresentation in research, new approaches to informed consent that reflect principles of health literacy, and the future of informed consent in the treatment and research settings. Informed Consent and Health Literacy is the summary of the presentations and discussion of the workshop.

Optimizing Health Literacy for Improved Clinical Practices

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Publisher : IGI Global
ISBN 13 : 152254075X
Total Pages : 338 pages
Book Rating : 4.5/5 (225 download)

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Book Synopsis Optimizing Health Literacy for Improved Clinical Practices by : Papalois, Vassilios E.

Download or read book Optimizing Health Literacy for Improved Clinical Practices written by Papalois, Vassilios E. and published by IGI Global. This book was released on 2018-06-15 with total page 338 pages. Available in PDF, EPUB and Kindle. Book excerpt: Scientific evidence from different countries around the globe shows that those with low or inadequate health-related knowledge and skills include all ages, social, and economic backgrounds. The consequences of this inadequacy simultaneously affect individuals, healthcare systems, and society in many ways, such as healthcare quality and cost. Research on health literacy can provide insight on how to improve the communication of health issues, raise awareness, and promote the lifelong learning of patients and healthcare professionals. Optimizing Health Literacy for Improved Clinical Practices examines the latest advances in providing and helping patients and medical professionals to understand basic health information and the services that are most appropriate. Featuring coverage on a broad range of topics such as patient engagement, mobile health, and health communication, this book is geared towards medical professionals, hospital adminstrators, healthcare providers, academicians, and researchers in the field.

Toward Health Equity and Patient-Centeredness

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Publisher : National Academies Press
ISBN 13 : 0309177537
Total Pages : 103 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis Toward Health Equity and Patient-Centeredness by : Institute of Medicine

Download or read book Toward Health Equity and Patient-Centeredness written by Institute of Medicine and published by National Academies Press. This book was released on 2009-02-25 with total page 103 pages. Available in PDF, EPUB and Kindle. Book excerpt: To receive the greatest value for health care, it is important to focus on issues of quality and disparity, and the ability of individuals to make appropriate decisions based on basic health knowledge and services. The Forum on the Science of Health Care Quality Improvement and Implementation, the Roundtable on Health Disparities, and the Roundtable on Health Literacy jointly convened the workshop "Toward Health Equity and Patient-Centeredness: Integrating Health Literacy, Disparities Reduction, and Quality Improvement" to address these concerns. During this workshop, speakers and participants explored how equity in care delivered and a focus on patients could be improved.

Health Literacy

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Publisher : National Academies Press
ISBN 13 : 0309284872
Total Pages : 234 pages
Book Rating : 4.3/5 (92 download)

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Book Synopsis Health Literacy by : Institute of Medicine

Download or read book Health Literacy written by Institute of Medicine and published by National Academies Press. This book was released on 2013-07-10 with total page 234 pages. Available in PDF, EPUB and Kindle. Book excerpt: The roots of health literacy can be traced back to the national literacy movement in India under Gandhi and to aid groups working in Africa to promote education and health. The term health literacy was first used in 1974 and described as "health education meeting minimal standards for all school grade levels". From that first use the definition of health literacy evolved during the next 30 years with official definitions promulgated by government agencies and large programs. Despite differences among these definitions, they all hold in common the idea that health literacy involves the need for people to understand information that helps them maintain good health. Although the United States produces a majority of the research on health literacy, Europe has strong multinational programs as well as research efforts, and health literacy experts in developing countries have created successful programs implemented on a community level. Given these distinct strengths of efforts worldwide, there are many opportunities for collaboration. International collaboration can harness the United States' research power, Europe's multilingual and multinational experience, and developing nations' community-based programs to create robust programs and research that reach people-not based on language or nationality but on need and value. A workshop on international health literacy efforts that feature presentations and discussion about health literacy interventions from various countries as well as other topics related to international health literacy was held as the basis for this report. Health Literacy: Improving Health, Health Systems, and Health Policy Around the World summarizes the findings and discussions at the workshop.

Relevance of Health Literacy to Precision Medicine

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Publisher : National Academies Press
ISBN 13 : 0309447321
Total Pages : 125 pages
Book Rating : 4.3/5 (94 download)

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Book Synopsis Relevance of Health Literacy to Precision Medicine by : National Academies of Sciences, Engineering, and Medicine

Download or read book Relevance of Health Literacy to Precision Medicine written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2016-12-04 with total page 125 pages. Available in PDF, EPUB and Kindle. Book excerpt: On January 20, 2015, President Obama announced the Precision Medicine Initiative (PMI) in his State of the Union address. The PMI, by developing new approaches for detecting, measuring, and analyzing a wide range of biomedical information including molecular, genomic, cellular, clinical, behavioral, physiological, and environmental parameters, is intended to enable a new era of medicine in which researchers, providers, and patients work together to develop individualized care. Part of this effort included the creation of a national, large-scale research participant group, or cohort. The PMI Cohort Program is aimed at extending precision medicine to many diseases, including both rare and common diseases such as diabetes, heart disease, Alzheimer's disease, obesity, and mental illnesses such as depression, bipolar disorder, and schizophrenia, by building a national research cohort of 1 million or more U.S. participants. An important challenge to assembling the PMI Cohort will be to reach individuals who are socioeconomically disadvantaged. Individuals who are socioeconomically disadvantaged have lower health literacy; often belong to racial, ethnic, and minority communities; and are often less likely to participate in research studies and biorepositories. To explore possible strategies and messaging designs, the Roundtable on Health Literacy formed an ad hoc committee charged with planning and conducting a 1-day public workshop on the intersection of health literacy and precision medicine. The workshop participants discussed a variety of topics including an overview of precision medicine and its potential, the relevance of health literacy to the success of precision medicine efforts, and perspectives and understanding of different groups, such as health care providers, consumers, and insurers. This publication summarizes the presentations and discussions from the workshop.

Growing Community Health Literacy through Libraries

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Publisher : Walter de Gruyter GmbH & Co KG
ISBN 13 : 3110362643
Total Pages : 313 pages
Book Rating : 4.1/5 (13 download)

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Book Synopsis Growing Community Health Literacy through Libraries by : Prudence W. Dalrymple

Download or read book Growing Community Health Literacy through Libraries written by Prudence W. Dalrymple and published by Walter de Gruyter GmbH & Co KG. This book was released on 2020-08-24 with total page 313 pages. Available in PDF, EPUB and Kindle. Book excerpt: The capacity to understand and communicate health information is a major international health concern. Sponsored by the Health and Biosciences Section of International Federation of Library Associations, this book highlights the contribution that librarians are making to improving health literacy and enabling citizens to be active participants in the management of their own health. Knowledge is power and the World Health Organization recognizes that health literacy, involving effective access to and understanding of health information, is essential to health and well-being in society by empowering and enabling citizens to participate in their own healthcare. The book presents inspiring studies from an international group of authors showing how libraries and librarians are partnering with diverse sectors of society including universities, hospitals, public health clinics, community-based organisations, voluntary bodies and government agencies, to help citizens understand and manage their health. It provides guidance by example to suggest how libraries can help citizens participate in their healthcare and their communities by collaborating with others to increase health literacy in society.

Improving Health Literacy Within a State

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Publisher : National Academies Press
ISBN 13 : 0309215722
Total Pages : 114 pages
Book Rating : 4.3/5 (92 download)

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Book Synopsis Improving Health Literacy Within a State by : Institute of Medicine

Download or read book Improving Health Literacy Within a State written by Institute of Medicine and published by National Academies Press. This book was released on 2011-12-07 with total page 114 pages. Available in PDF, EPUB and Kindle. Book excerpt: Health literacy is the degree to which individuals can obtain, process, and understand the basic health information and services they need to make appropriate health decisions. According to Health Literacy: A Prescription to End Confusion (IOM, 2004), nearly half of all American adults-90 million people-have inadequate health literacy to navigate the healthcare system. To address issues raised in that report, the Institute of Medicine convened the Roundtable on Health Literacy, which brings together leaders from the federal government, foundations, health plans, associations, and private companies to discuss challenges facing health literacy practice and research and to identify approaches to promote health literacy in both the public and private sectors. On November 30, 2010, the roundtable cosponsored a workshop with the University of California, Los Angeles (UCLA), Anderson School of Management in Los Angeles. Improving Health Literacy Within a State serves as a summary of what occurred at the workshop. The workshop focused on understanding what works to improve health literacy across a state, including how various stakeholders have a role in improving health literacy. The focus of the workshop was on presentations and discussions that address (1) the clinical impacts of health literacy improvement approaches; (2) economic outcomes of health literacy implementation; and (3) how various stakeholders can affect health literacy.

Facilitating State Health Exchange Communication Through the Use of Health Literate Practices

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Author :
Publisher : National Academies Press
ISBN 13 : 0309220297
Total Pages : 116 pages
Book Rating : 4.3/5 (92 download)

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Book Synopsis Facilitating State Health Exchange Communication Through the Use of Health Literate Practices by : Institute of Medicine

Download or read book Facilitating State Health Exchange Communication Through the Use of Health Literate Practices written by Institute of Medicine and published by National Academies Press. This book was released on 2012-03-10 with total page 116 pages. Available in PDF, EPUB and Kindle. Book excerpt: Implementation of the Affordable Care Act (ACA) of 2010 will result in significant changes to the U.S. health care system. Among its many provisions, the ACA will extend access to health care coverage to millions of Americans who have been previously uninsured. Many of the newly eligible health insurance consumers will be individuals of low health literacy, some speakers of English and others more comfortable using languages other than English. Health insurance terms such as "deductible," "co-insurance," and "out-of-pocket limit" are difficult to communicate even to those with moderate-to-high levels of health literacy and so health exchanges will face challenges as they attempt to communicate to the broader community. In addition to having to convey some of these basic, and yet complex, principles of insurance, state exchanges will be attempting to adapt to the many changes to enrollment and eligibility brought about by ACA. The Institute of Medicine (IOM) convened the Roundtable on Health Literacy that brings together leaders from the federal government, foundations, health plans, associations, and private companies to discuss challenges facing health literacy practice and research and to identify approaches to promote health literacy in both the public and private sectors. The roundtable sponsored a workshop in Washington, DC, on July 19, 2011, that focused on ways in which health literacy can facilitate state health insurance exchange communication with potential enrollees. The roundtable's workshop focused on four topics: (1) lessons learned from existing state insurance exchanges; (2) the impact of state insurance exchanges on consumers; (3) the relevance of health literacy to health insurance exchanges; and (4) current best practices in developing materials and communicating with consumers. Facilitating State Health Exchange Communication Through the Use of Health Literate Practices summarizes the presentations and discussion that occurred during the workshop. The report provides an overview of health insurance exchanges, presents evidence on the extent to which consumers understand underlying health insurance concepts, and describes the relevancy of health literacy to health insurance reform and how health literacy interventions can facilitate the implementation of health insurance reforms. The report also provides a review of best practices in developing materials and communicating with consumers, and concludes with reflections on the workshop presentations and discussions by members of the roundtable and its chair. Further information is provided in the appendixes, the workshop agenda (Appendix A), workshop speaker biosketches (Appendix B), and testimony provided by the organization America's Health Insurance Plans (AHIP) (Appendix C).

Health Literacy in Context- Settings, Media, and Populations

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Author :
Publisher : MDPI
ISBN 13 : 3038974714
Total Pages : 251 pages
Book Rating : 4.0/5 (389 download)

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Book Synopsis Health Literacy in Context- Settings, Media, and Populations by : Don Nutbeam

Download or read book Health Literacy in Context- Settings, Media, and Populations written by Don Nutbeam and published by MDPI. This book was released on 2019-01-23 with total page 251 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book is a printed edition of the Special Issue "Health Literacy in Context—Settings, Media, and Populations" that was published in IJERPH

Facilitating Health Communication with Immigrant, Refugee, and Migrant Populations Through the Use of Health Literacy and Community Engagement Strategies

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Author :
Publisher : National Academies Press
ISBN 13 : 0309463432
Total Pages : 105 pages
Book Rating : 4.3/5 (94 download)

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Book Synopsis Facilitating Health Communication with Immigrant, Refugee, and Migrant Populations Through the Use of Health Literacy and Community Engagement Strategies by : National Academies of Sciences, Engineering, and Medicine

Download or read book Facilitating Health Communication with Immigrant, Refugee, and Migrant Populations Through the Use of Health Literacy and Community Engagement Strategies written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2017-11-09 with total page 105 pages. Available in PDF, EPUB and Kindle. Book excerpt: The increasingly diverse ethnic composition of the United States population has created a profound and ongoing demographic shift, and public health and health care organizations face many challenges as they move to address and adapt to this change. To better understand how the public health and health care communities can meet the challenges of serving an increasingly diverse population, the Roundtable on Health Literacy conducted a public workshop on facilitating health communication with immigrant, refugee, and migrant populations through the use of health literate approaches. The goal of the workshop was to identify approaches that will enable organizations that serve these ethnically and culturally diverse populations in a manner that allows all members of these communities to obtain, process, and understand basic health information and the services needed to make appropriate health and personal decisions. This publication summarizes the presentations and discussions from the workshop.