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Writing About My Health Journey With Dysautonomia
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Book Synopsis The Dysautonomia Project by : Msm Kelly Freeman
Download or read book The Dysautonomia Project written by Msm Kelly Freeman and published by Bardolf. This book was released on 2015-10-05 with total page 224 pages. Available in PDF, EPUB and Kindle. Book excerpt: "The Dysautonomia Project" is a much needed tool for physicians, patients, or caregivers looking to arm themselves with the power of knowledge. It combines current publications from leaders in the field of autonomic disorders with explanations for doctors and patients about the signs and symptoms, which will aid in reducing the six-year lead time to diagnosis.
Book Synopsis Dysautonomia, Pots Syndrome by : Frederick Earlstein
Download or read book Dysautonomia, Pots Syndrome written by Frederick Earlstein and published by Nrb Publishing. This book was released on 2014-10-02 with total page 126 pages. Available in PDF, EPUB and Kindle. Book excerpt: Dysautonomia, POTS Syndrome affects many people. This books aims to provide the information sought out by those people who suffer. Frederick Earlstein has written this medical education guide to provide an understanding of Dysautonomia, POTS Syndrome including POTS and Associated Disorders, signs and symptoms, causes and treatment, living with POTS, research and resources, and medical definitions. In a straightforward, no nonsense fashion, Frederick Earlstein covers all aspects of Dysautonomia, POTS Syndrome. The book is full of informative content and answers to your questions - including some you didn't know you had!
Book Synopsis POTS - Together We Stand by : Jodi Epstein Rhum
Download or read book POTS - Together We Stand written by Jodi Epstein Rhum and published by Createspace Independent Publishing Platform. This book was released on 2011-09-27 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Second EditionPOTS - Together We Stand: Riding the Waves of Dysautonomia is a collaborative effort of many doctors, teachers, counselors, parents and patients who wove this tapestry. Initially conceptualized as a survival guide for children, teens, young adults and parents; it quickly transcended into this unprecedented, critical volume. This encompassing work responds to the many desperate and heartbreaking pleas of those affected by dysautonomia; included are clear explanations of medical information, evidenced-based research, best practices for clinical diagnoses and treatment options, alternative/complimentary medicine approaches, non-medical strategies, coping techniques, helpful tips, patient rights and options, and inspiring narrative accounts of people living with the syndrome around the globe. The book contributors and its readers join hand in hand to represent the POTS dysautonomia community's shared struggles and hopes, concerns and endeavors, unequivocally serving as a living testament that "Together We Stand." This is the 3rd Edition!
Book Synopsis Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition by : Derrick Lonsdale
Download or read book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition written by Derrick Lonsdale and published by Academic Press. This book was released on 2017-06-29 with total page 358 pages. Available in PDF, EPUB and Kindle. Book excerpt: Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition explores thiamine and how its deficiency affects the functions of the brainstem and autonomic nervous system by way of metabolic changes at the level of the mitochondria. Thiamine deficiency derails mitochondrial oxidative metabolism and gives rise to the classic disease of beriberi that, in its early stages, can be considered the prototype for a set of disorders that we now recognize as dysautonomia. This book represents the life's work of the senior author, Dr. Derrick Lonsdale, and a recent collaboration with his co-author Dr. Chandler Marrs. - Presents clinical experience and animal research that have answered questions about thiamine chemistry - Demonstrates that the consumption of empty calories can result in clinical effects that lead to misdiagnosis - Addresses the biochemical changes induced by vitamin deficiency, particularly that of thiamine
Book Synopsis Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome by : Institute of Medicine
Download or read book Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome written by Institute of Medicine and published by National Academies Press. This book was released on 2015-03-16 with total page 251 pages. Available in PDF, EPUB and Kindle. Book excerpt: Myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS) are serious, debilitating conditions that affect millions of people in the United States and around the world. ME/CFS can cause significant impairment and disability. Despite substantial efforts by researchers to better understand ME/CFS, there is no known cause or effective treatment. Diagnosing the disease remains a challenge, and patients often struggle with their illness for years before an identification is made. Some health care providers have been skeptical about the serious physiological - rather than psychological - nature of the illness. Once diagnosed, patients often complain of receiving hostility from their health care provider as well as being subjected to treatment strategies that exacerbate their symptoms. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome proposes new diagnostic clinical criteria for ME/CFS and a new term for the illness - systemic exertion intolerance disease(SEID). According to this report, the term myalgic encephalomyelitis does not accurately describe this illness, and the term chronic fatigue syndrome can result in trivialization and stigmatization for patients afflicted with this illness. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome stresses that SEID is a medical - not a psychiatric or psychological - illness. This report lists the major symptoms of SEID and recommends a diagnostic process.One of the report's most important conclusions is that a thorough history, physical examination, and targeted work-up are necessary and often sufficient for diagnosis. The new criteria will allow a large percentage of undiagnosed patients to receive an accurate diagnosis and appropriate care. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome will be a valuable resource to promote the prompt diagnosis of patients with this complex, multisystem, and often devastating disorder; enhance public understanding; and provide a firm foundation for future improvements in diagnosis and treatment.
Download or read book Pots Syndrome written by Patrick Ussher and published by Createspace Independent Publishing Platform. This book was released on 2017-04-12 with total page 158 pages. Available in PDF, EPUB and Kindle. Book excerpt: Postural Orthostatic Tachycardia Syndrome (POTS) is currently defined as a 'syndrome', a collection of symptoms for which the root cause has not yet been identified. This book aims to rectify this by arguing the case for POTS being considered a form of neurological injury to the limbic system following an antecedent trauma, such as a viral illness, pregnancy, surgery or psychological trauma (or a combination). Patrick Ussher himself had POTS but recovered by following a limbic system rehabilitation program (originally developed to treat Multiple Chemical Sensitivity) called the Dynamic Neural Retraining System (DNRS). After recovery, he set about mapping the idea of a limbic system impairment onto pre-existing research into POTS and found that it could explain many key findings including: NET protein deficiency (which is responsible for blood vessel constriction problems and resulting elevated heart rate upon standing), low aldosterone and poor sodium retention (which are responsible for low blood volume problems) and mast cell activation problems. This book will simultaneously act as a guide for those interested in using the DNRS as a treatment for POTS and also as a call for further research into the potential efficacy of the DNRS for treating POTS.
Book Synopsis Surviving and Thriving with an Invisible Chronic Illness by : Ilana Jacqueline
Download or read book Surviving and Thriving with an Invisible Chronic Illness written by Ilana Jacqueline and published by New Harbinger Publications. This book was released on 2018-03-01 with total page 181 pages. Available in PDF, EPUB and Kindle. Book excerpt: “An important antidote to the dogmatic ‘kale and vitamins’ tone of most ‘self-help’ literature.” —Alexa Tsoulis-Reay, senior writer, New York magazine Popular blogger Ilana Jacqueline offers smart and savvy advice, humor, and practical tips for living with an invisible chronic illness. Do you live with a chronic, debilitating, yet invisible condition? You may feel isolated, out of step, judged, lonely, or misunderstood—and that’s on top of dealing with the symptoms of your actual illness. Take heart. You are not alone, although sometimes it can feel that way. Written by a blogger who suffers from an invisible chronic illness, Surviving and Thriving with an Invisible Chronic Illness offers peer-to-peer support to help you stay sane, be your own advocate, and get back to living your life. This compelling guide is written for anyone suffering with an illness no one can see—such as postural orthostatic tachycardia syndrome (POTS), chronic fatigue syndrome (CFS), fibromyalgia, multiple chemical sensitivity (MCS), Lyme disease, lupus, dysautonomia, or even multiple sclerosis (MP). This book will tell you everything you need to know about living with a complicated, invisible condition—from how to balance sex, dating, and relationships to handling work and school with unavoidable absences. You’ll also learn to navigate judg-y or skeptical relatives and strangers and—most importantly—manage your medical care. Suffering from a chronic illness doesn’t mean you can’t live an active, engaged life. This book will show you how.
Download or read book No More Tears written by Margaret Aranda and published by Tate Publishing. This book was released on 2013-04-09 with total page 320 pages. Available in PDF, EPUB and Kindle. Book excerpt: There was a day that her life got stumped. First she was a Stanford doctor, then she became a trauma patient due to a car accident. Now, she could not stand up or else she would faint. The doctor-turned-patient had an invisible disease and the doctors were stumped too. What did she have? Why must she live on IV fluid? In No More Tears Dr. Margaret Aranda takes you on a ride to the door of Heaven as she describes her near-death experience after a car accident. She was unable to walk and unable to talk, and for over three years, I lived on IV fluid. No More Tears will inspire you to persevere, to speak up, to be that rare bird, that underdog who wins despite the odds. http://www.drmargaretaranda.blogspot.com http://www.dysautonomiamd.blogspot.com http://www.girlpowerinamm.blogspot.com https://www.facebook.com/NoMoreTearsAPhysicanTurnedPatientInspiresRecovery?ref=hl
Book Synopsis The Trifecta Passport: Tools for Mast Cell Activation Syndrome, Postural Orthostatic Tachycardia Syndrome and Ehlers-Danlos Syndrome by : Amber Walker
Download or read book The Trifecta Passport: Tools for Mast Cell Activation Syndrome, Postural Orthostatic Tachycardia Syndrome and Ehlers-Danlos Syndrome written by Amber Walker and published by Amber Walker. This book was released on 2021-01-27 with total page 503 pages. Available in PDF, EPUB and Kindle. Book excerpt: The “trifecta” refers to three conditions that commonly occur together: mast cell activation syndrome (MCAS), postural orthostatic tachycardia syndrome (POTS) and the hypermobile type of Ehlers-Danlos syndrome (hEDS). These three conditions are gradually becoming more recognized in the mainstream medical world as more and more patients find themselves struggling with debilitating and often mysterious symptoms. However, recognizing these conditions is only the first step on the healing journey. With the right approach and toolbox, patients can reverse many of these symptoms to find lasting vitality. Written by a Doctor of Physical Therapy who has additional certifications in functional medicine and nutrition and extensive experience in working with these conditions, this book serves as patient guide that empowers individuals to put all of the puzzle pieces together as part of an individualized healing plan. Part One (3 chapters) is an overview of the three trifecta conditions, and Part Two (9 chapters) outlines the important pillars of an essential plan to address any (or all) of these conditions holistically. The book wraps up with a chapter of patient case stories. Accompanying the purchase of this book is access to a free 20-page PDF document that serves as a customizable workbook for readers to use as they read along. The Trifecta Passport dives into topics such as nervous system regulation, mold and other biotoxins, nutrition, exercise, detoxification, mental/emotional health and trauma, structural/musculoskeletal issues and the many underlying root issues (related to hormones, bacterial/viral load, gut health, etc.) that can trigger or exacerbate these conditions. This resource unpacks many different tools and practical treatment options that should be on the radar of patients living with these (and other) chronic conditions. When faced with these labels, it can be overwhelming to weed through all the resources out there to figure out how to move forward with a comprehensive and personalized road map. By helping readers put it all together in an organized manner, this book is a great resource for any patient with chronic illness as well as the caregivers and doctors who support them.
Download or read book Brave New Medicine written by Cynthia Li and published by Reveal Press. This book was released on 2019-09-01 with total page 274 pages. Available in PDF, EPUB and Kindle. Book excerpt: In this revelatory memoir, Doctor Cynthia Li shares the truth about her disabling autoimmune illness, the limitations of Western medicine, and her hard-won lessons on healing—mind, body, and spirit. Li had it all: a successful career in medicine, a loving marriage, children on the horizon. But it all came crashing down when, after developing an autoimmune thyroid condition, mysterious symptoms began consuming her body. Test after test came back "within normal limits," baffling her doctors—and baffling herself. Housebound with two young children, Li began a solo odyssey from her living room couch to find a way to heal. Brave New Medicine details the physical and existential crisis that forces a young doctor to question her own medical training. She dives into the root causes of her illness, learning to unlock her body's innate intelligence and wholeness. Li relates her story with the insight of a scientist, and the humility and candor of a patient, exploring the emotional and spiritual shifts beyond the physical body. Millions of people worldwide are affected by autoimmune disease. While complex conditions like chronic fatigue syndrome (ME/CFS) are gaining attention, patients struggling with these mysterious ailments remain largely dismissed by their doctors, families, and friends. This is the harsh reality that doctor-turned-"difficult patient" Li faced firsthand. Drawing on cutting-edge science, ancient healing arts, and the power of intuition, this memoir offers support, validation, and a new perspective for doctors and patients alike. Through her story, you can find the wisdom and heart to start your own healing journey, too.
Book Synopsis Postural Tachycardia Syndrome by : Nicholas Gall
Download or read book Postural Tachycardia Syndrome written by Nicholas Gall and published by Springer Nature. This book was released on 2020-10-21 with total page 316 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book describes the varying clinical manifestations of postural tachycardia syndrome (PoTS) and provides a robust yet practical set of clinical tools for those managing patients suffering with this syndrome. Guidance is provided by a range of disciplines relevant to PoTS including general and specialist assessments, associated conditions, diagnostic considerations, therapy and service models. Postural Tachycardia Syndrome: A Concise and Practical Guide to Management and Associated Conditions presents the scientific background and practical information for the busy medical professional, illustrating key features with care-based materials to help them manage this condition, which can be a challenge for patients and clinicians alike.
Book Synopsis The Lady's Handbook for Her Mysterious Illness by : Sarah Ramey
Download or read book The Lady's Handbook for Her Mysterious Illness written by Sarah Ramey and published by Anchor. This book was released on 2021-05-11 with total page 434 pages. Available in PDF, EPUB and Kindle. Book excerpt: The darkly funny memoir of Sarah Ramey’s years-long battle with a mysterious illness that doctors thought was all in her head—but wasn’t. In her harrowing, darkly funny, and unforgettable memoir, Sarah Ramey recounts the decade-long saga of how a seemingly minor illness in her senior year of college turned into a prolonged and elusive condition that destroyed her health but that doctors couldn't diagnose or treat. Worse, as they failed to cure her, they hinted that her devastating symptoms were psychological. The Lady's Handbook for Her Mysterious Illness is a memoir with a mission: to help the millions of (mostly) women who suffer from unnamed or misunderstood conditions—autoimmune illnesses, fibromyalgia and chronic fatigue syndrome, chronic Lyme disease, chronic pain, and many more. Ramey's pursuit of a diagnosis and cure for her own mysterious illness becomes a page-turning medical mystery that reveals a new understanding of today's chronic illnesses as ecological in nature, driven by modern changes to the basic foundations of health, from the quality of our sleep, diet, and social connections to the state of our microbiomes. Her book will open eyes, change lives, and, ultimately, change medicine. The Lady's Handbook for Her Mysterious Illness is a revelation and an inspiration for millions of women whose legitimate health complaints are ignored.
Author :Dr Patrick M Nemechek D O Publisher :Createspace Independent Publishing Platform ISBN 13 :9781982067694 Total Pages :196 pages Book Rating :4.0/5 (676 download)
Book Synopsis The Nemechek Protocol for Autism and Developmental Disorders by : Dr Patrick M Nemechek D O
Download or read book The Nemechek Protocol for Autism and Developmental Disorders written by Dr Patrick M Nemechek D O and published by Createspace Independent Publishing Platform. This book was released on 2017-09-04 with total page 196 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Nemechek Protocol for Autism and Developmental Delay is the most scientific and refined approach to reversing the devastating effects of autism, ADD, ADHD, SPD and the myriad of other developmental disorders. Dr. Nemechek's approach frequently triggers rapid and often breath-taking improvements in children within only a few weeks. And surprisingly, the protocol employs common and natural supplements, and avoids the countless homeopathic remedies and antibiotics frequently prescribed to children that are often both toxic and expensive. Within a few days of starting the protocol many children will experience a connectedness to their surrounds never previously experienced. Significant improvements in motor, sensory and speech delays are realized within the first few weeks. Attention and learning disabilities rapidly begin to resolve within the first few weeks to months as the child's brain restores neuronal pathways damaged by the physical, emotional and inflammatory traumas commonly experienced in childhood. Through a simple 2-step process of re-balancing intestinal bacteria and omega fatty acids, Dr. Nemechek has discovered how to re-activate the brain's neuronal pruning and repair processes thereby allowing a child's brain to begin repairing past injuries and developing correctly. Re-balancing intestinal bacteria also eliminates the excessive production of propionic acid that is responsible for the disconnected and often strange behaviors that are highly characteristic of autism. With the help of Jean Nemechek's writing and editing style, the complexities of omega fatty acids restoration, intestinal bacteriology, autonomic restoration and cumulative brain injury are translated into processes that are easily understandable to the non-scientist. This book is a complete how-to guide outlining the specific supplements and dosages employed by Dr. Nemechek in the treatment of his patients. Readers will learn Dr. Nemechek's step-by-step method of reversing autism and other developmental disorders. Included are specific chapters dealing with relapses, addressing the use of antibiotics, strategies for prevention as well as future vaccinations. The rapid rate of improvement seen with The Nemechek Protocol has caused it to become one of the fastest growing treatment options for children around the world. Thousands of families around the world are benefitting from this safe, inexpensive and highly effective treatment for the devastating problems commonly affecting children today. The phrase "Miracles do Happen" has never been as true when witnessing children regain speech within a few weeks to months after utilizing The Nemechek Protocol.
Book Synopsis How Healing Works by : Wayne Jonas, M.D.
Download or read book How Healing Works written by Wayne Jonas, M.D. and published by Lorena Jones Books. This book was released on 2018-01-09 with total page 338 pages. Available in PDF, EPUB and Kindle. Book excerpt: Drawing on 40 years of research and patient care, Dr. Wayne Jonas explains how 80 percent of healing occurs organically and how to activate the healing process. In How Healing Works, Dr. Wayne Jonas lays out a revolutionary new way to approach injury, illness, and wellness. Dr. Jonas explains the biology of healing and the science behind the discovery that 80 percent of healing can be attributed to the mind-body connection and other naturally occurring processes. Jonas details how the healing process works and what we can do to facilitate our own innate ability to heal. Dr. Jonas's advice will change how we consume health care, enabling us to be more in control of our recovery and lasting wellness. Simple line illustrations communicate statistics and take-aways in a memorable way. Stories from Dr. Jonas's practice and studies further illustrate his method for helping people get well and stay well after minor and major medical events.
Book Synopsis Autonomic Neurology by : Eduardo E. Benarroch
Download or read book Autonomic Neurology written by Eduardo E. Benarroch and published by Oxford University Press. This book was released on 2014-04-03 with total page 314 pages. Available in PDF, EPUB and Kindle. Book excerpt: The purpose of this book is to present a focused approach to the pathophysiology, diagnosis, and management of the most common autonomic disorders that may present to the clinical neurologist. Autonomic Neurology is divided into 3 sections. The first section includes 5 chapters reviewing the anatomical and biochemical mechanisms of central and peripheral nervous system control of autonomic function, principles of autonomic pharmacology, and a clinical and laboratory approach to the diagnosis of autonomic disorders. The second section focuses on the pathophysiology and management of orthostatic hypotension, postural tachycardia, baroreflex failure; syncope, disorders of sweating, neurogenic bladder and sexual dysfunction, gastrointestinal dysmotility, and autonomic hyperactivity. The final section is devoted to specific autonomic disorders, including central neurodegenerative disorders; common peripheral neuropathies with prominent autonomic failure; painful small fiber neuropathies; autoimmune autonomic ganglionopathies and neuropathies; focal brain disorders; focal spinal cord disorders; and chronic pain disorders with autonomic manifestations. This book is the product of the extensive experience of its contributors in the evaluation and management of the many patients with autonomic symptoms who are referred for neurologic consultation at Mayo Clinic in Rochester, Minnesota. Autonomic Neurology focuses on clinical scenarios and presentation of clinical cases and includes several figures showing the results of normal and abnormal autonomic testing in typical conditions. Its abundance of tables summarizing the differential diagnosis, testing, and management of autonomic disorders also help set this book apart from other books focused on the autonomic nervous system.
Book Synopsis You Don't Look Sick! by : Joy H. Selak
Download or read book You Don't Look Sick! written by Joy H. Selak and published by Demos Medical Publishing. This book was released on 2013 with total page 199 pages. Available in PDF, EPUB and Kindle. Book excerpt: Chronicles one person's true life story of illness and her physicians compassionate commentary as they journey through the four stages of chronic illness; Getting Sick, Being Sick, Grief and Acceptance and Living Well. Designed for people at all stages of the chronic illness journey, this book is also illuminating for caregivers and loved ones.
Download or read book Power Over POTS written by Scheldon Kress and published by Bookbaby. This book was released on 2018-01-14 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: You may be asking: What is POTS? What causes POTS? Why did I get POTS? How do I get better? How long will it take to get well? Will I be able to return to school full-time? Will I be able to play sports again? Will I ever lead a normal life again? You may be asking a lot of similar questions. POWER over POTS helps provide answers to these and many other questions.This consumer health book is for both patients and family members. It explains in simplified terms the scientific mechanisms responsible for POTS, how to correct the malfunctioning mechanisms. Most alterations in body physiology responsible for the reduced return of blood from the lower body to the heart and brain are correctable.Writing this book is an attempt to spread-the-word and explain the causes and treatments in an easy-to-understand manner. No longer is it necessary for adolescents and young adults to suffer with the life-disrupting symptoms of POTS. This POWER over POTS Recovery Program provides knowledge. Knowledge is power that can help you to understand POTS, seek out knowledgeable POTS specialists and successfully navigate POTS and recover.While written for patients with this debilitating illness and their families, many health care professionals can find this information and the therapeutic plan, the POWER over POTS Recovery Program, useful in the management of their POTS patients. Steps to begin the healing process are not possible until a diagnosis is confirmed. Enabling you to shorten the delay in establishing a diagnosis and initiate early and successful treatment are the primary goals of this book. Hopefully, with this book in hand, you can gain the necessary knowledge to manage your illness, take back your life and attain POWER over POTS.
