The Emotional Journey Of The Alzheimers Family

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The Emotional Journey of the Alzheimer's Family

Author : Robert B. Santulli, MD
Publisher : Dartmouth College Press
ISBN 13 : 1611687446
Total Pages : 231 pages
Book Rating : 4.6/5 (116 download)

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Book Synopsis The Emotional Journey of the Alzheimer's Family by : Robert B. Santulli, MD

Download or read book The Emotional Journey of the Alzheimer's Family written by Robert B. Santulli, MD and published by Dartmouth College Press. This book was released on 2015-04-17 with total page 231 pages. Available in PDF, EPUB and Kindle. Book excerpt: Alzheimer's disease is a growing public health crisis. According to the Alzheimer's Association, there are 5.4 million victims of this disease; by 2050, there will be close to 15 million people who suffer from this debilitating disorder of memory, thinking, personality, and functioning. The disease profoundly affects immediate family members, close friends, and neighbors. These people - the Alzheimer's family - undergo tremendous psychological and emotional change as they witness the cruel and relentless progression of the disease in their loved one. Incorporating over thirty years of experience with Alzheimer's patients and their families with current medical knowledge, the authors chart the complex emotional journey of the Alzheimer's family from the onset of the disease through the death of the loved one. They discuss the anger that rises in the face of discordant views of the disease, the defenses that emerge when family members are unwilling to accept a dementia diagnosis, and the common emotions of anxiety, guilt, anger, and shame. They focus especially on grief as the core response to losing a loved one to dementia, and describe the difficult processes of adaptation and acceptance, which lead to personal growth. Final chapters emphasize the importance of establishing a care community and how to understand and cope with personal stress. This volume will be useful to medical professionals and ordinary people close to or caring for a person with dementia.

The Emotional Journey of the Alzheimer's Family

Author : Robert B. Santulli, MD
Publisher : Dartmouth College Press
ISBN 13 : 1611687454
Total Pages : 231 pages
Book Rating : 4.6/5 (116 download)

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Book Synopsis The Emotional Journey of the Alzheimer's Family by : Robert B. Santulli, MD

Download or read book The Emotional Journey of the Alzheimer's Family written by Robert B. Santulli, MD and published by Dartmouth College Press. This book was released on 2015-03-22 with total page 231 pages. Available in PDF, EPUB and Kindle. Book excerpt: Alzheimer's disease is a growing public health crisis. According to the Alzheimer's Association, there are 5.4 million victims of this disease; by 2050, there will be close to 15 million people who suffer from this debilitating disorder of memory, thinking, personality, and functioning. The disease profoundly affects immediate family members, close friends, and neighbors. These people - the Alzheimer's family - undergo tremendous psychological and emotional change as they witness the cruel and relentless progression of the disease in their loved one. Incorporating over thirty years of experience with Alzheimer's patients and their families with current medical knowledge, the authors chart the complex emotional journey of the Alzheimer's family from the onset of the disease through the death of the loved one. They discuss the anger that rises in the face of discordant views of the disease, the defenses that emerge when family members are unwilling to accept a dementia diagnosis, and the common emotions of anxiety, guilt, anger, and shame. They focus especially on grief as the core response to losing a loved one to dementia, and describe the difficult processes of adaptation and acceptance, which lead to personal growth. Final chapters emphasize the importance of establishing a care community and how to understand and cope with personal stress. This volume will be useful to medical professionals and ordinary people close to or caring for a person with dementia.

H.O.P.E. for the Alzheimer's Journey

Author : Carol B. Amos
Publisher : Morgan James Publishing
ISBN 13 : 1683509048
Total Pages : 149 pages
Book Rating : 4.6/5 (835 download)

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Book Synopsis H.O.P.E. for the Alzheimer's Journey by : Carol B. Amos

Download or read book H.O.P.E. for the Alzheimer's Journey written by Carol B. Amos and published by Morgan James Publishing. This book was released on 2018-06-03 with total page 149 pages. Available in PDF, EPUB and Kindle. Book excerpt: “A useful, step-by-step guide for anyone new to caring for those with Alzheimer’s.” —Library Journal H.O.P.E. for the Alzheimer’s Journey equips Alzheimer’s caregivers with knowledge, tools, and advice for their difficult road ahead. Author Carol B. Amos incorporates her own experience—including her family’s email correspondence illustrating how they coped during this particular challenge. Amos also introduces The Caregiving Principle™: a simple approach that provides a deeper understanding of a person with Alzheimer’s disease and a framework for the caregiver’s role. She provides examples of how The Caregiving Principle™ helped her connect with her mother. H.O.P.E. for the Alzheimer’s Journey encourages caregivers to take care for themselves and provides inspiration for a less stressful, more rewarding journey.

Pathways

Author : Kae Hammond
Publisher : Kae Hammond
ISBN 13 : 1432781286
Total Pages : 225 pages
Book Rating : 4.4/5 (327 download)

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Book Synopsis Pathways by : Kae Hammond

Download or read book Pathways written by Kae Hammond and published by Kae Hammond. This book was released on 2012-04-10 with total page 225 pages. Available in PDF, EPUB and Kindle. Book excerpt: Possibly the best rescue plan you've ever read.If you are caring for someone with Alzheimers Disease or Related Dementias,PathwaysPathwaysPathways"You have straightened out the curves and turns and false roads of the family caregiver maze. Accurate, useful, dependable, relevant, and reliable. You have done a yeoman's job and all of us who care for a person with dementia will be better for your efforts. PathwaysContact Us:For more information or immediate assistance, contact us at (877) 699-3456 or visit www.dementiahelpcenter.com

Creating Moments of Joy Along the Alzheimer's Journey

Author : Jolene Brackey
Publisher : Purdue University Press
ISBN 13 : 1612494838
Total Pages : 298 pages
Book Rating : 4.6/5 (124 download)

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Book Synopsis Creating Moments of Joy Along the Alzheimer's Journey by : Jolene Brackey

Download or read book Creating Moments of Joy Along the Alzheimer's Journey written by Jolene Brackey and published by Purdue University Press. This book was released on 2016-11-15 with total page 298 pages. Available in PDF, EPUB and Kindle. Book excerpt: The beloved best seller has been revised and expanded for the fifth edition. Jolene Brackey has a vision: that we will soon look beyond the challenges of Alzheimer's disease to focus more of our energies on creating moments of joy. When people have short-term memory loss, their lives are made up of moments. We are not able to create perfectly wonderful days for people with dementia or Alzheimer's, but we can create perfectly wonderful moments, moments that put a smile on their faces and a twinkle in their eyes. Five minutes later, they will not remember what we did or said, but the feeling that we left them with will linger. The new edition of Creating Moments of Joy is filled with more practical advice sprinkled with hope, encouragement, new stories, and generous helpings of humor. In this volume, Brackey reveals that our greatest teacher is having cared for and loved someone with Alzheimer's and that often what we have most to learn about is ourselves.

When Someone You Know Is Living in a Dementia Care Community

Author : Rachael Wonderlin
Publisher : Johns Hopkins University Press
ISBN 13 : 1421420651
Total Pages : 220 pages
Book Rating : 4.4/5 (214 download)

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Book Synopsis When Someone You Know Is Living in a Dementia Care Community by : Rachael Wonderlin

Download or read book When Someone You Know Is Living in a Dementia Care Community written by Rachael Wonderlin and published by Johns Hopkins University Press. This book was released on 2016-11-01 with total page 220 pages. Available in PDF, EPUB and Kindle. Book excerpt: A guide to help family and friends navigate the emotional and practical challenges they face when someone they love is living in community care. Life changes dramatically for the entire family when the decision is made to move a person who has dementia from home to community care. Rachael Wonderlin, a gerontologist, dementia care expert, and popular dementia care blogger, helps caregivers cope with the difficult behaviors, emotions, and anxieties that both they and their loved one may experience. Writing from her own practice and drawing on the latest research in gerontology and dementia, Wonderlin explains the different kinds of dementia, details the wide range of care communities available for people who have dementia, and speaks empathetically to the worry and guilt many families feel. "Do not let anyone make you feel like you have taken the 'easy way out' by choosing a dementia care community," she writes. "You are still going to deal with a lot of challenging behaviors, concerns, and questions regarding your loved one's care." When Someone You Know Is Living in a Dementia Care Community is an accessible guide offering answers to such questions as: How do I choose a place for my loved one to live? What can I find out by visiting a candidate memory-care community twice? What do I do if my loved one asks about going home? How can I improve the quality of my visits? What is the best way to handle conflict between residents, or between the resident and staff? How can I cope with my loved one's sundowning? What do I do if my loved one starts a romantic relationship with another resident? An indispensable book for family members and friends of people with dementia, When Someone You Know is Living in a Dementia Care Community touches the heart while explaining how to make a difficult situation better.

It's Not That Simple: Helping Families Navigate the Alzheimer's Journey

Author : Pam Ostrowski
Publisher : Alzheimer's Family Consulting
ISBN 13 : 9781735709611
Total Pages : 322 pages
Book Rating : 4.7/5 (96 download)

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Book Synopsis It's Not That Simple: Helping Families Navigate the Alzheimer's Journey by : Pam Ostrowski

Download or read book It's Not That Simple: Helping Families Navigate the Alzheimer's Journey written by Pam Ostrowski and published by Alzheimer's Family Consulting. This book was released on 2021-10-12 with total page 322 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book helps to relieve the fear, anxiety and confusion family member experience when a loved one is diagnosed with dementia. This 3-hour read provides detailed help with skills, tips and guidance based on 14 years of dementia experience.

The Alzheimer's Action Plan

Author : P. Murali Doraiswamy
Publisher : Macmillan
ISBN 13 : 9780312538712
Total Pages : 500 pages
Book Rating : 4.5/5 (387 download)

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Book Synopsis The Alzheimer's Action Plan by : P. Murali Doraiswamy

Download or read book The Alzheimer's Action Plan written by P. Murali Doraiswamy and published by Macmillan. This book was released on 2009-04-28 with total page 500 pages. Available in PDF, EPUB and Kindle. Book excerpt: Leading experts from Duke University provide the cutting-edge information that every family affected by Alzheimer's needs--from the benefits of early detection to prolonging quality of life.

Families Caring for an Aging America

Author : National Academies of Sciences, Engineering, and Medicine
Publisher : National Academies Press
ISBN 13 : 0309448069
Total Pages : 367 pages
Book Rating : 4.3/5 (94 download)

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Book Synopsis Families Caring for an Aging America by : National Academies of Sciences, Engineering, and Medicine

Download or read book Families Caring for an Aging America written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2016-12-08 with total page 367 pages. Available in PDF, EPUB and Kindle. Book excerpt: Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.

Unexpected Gifts

Author : Eve Soldinger
Publisher :
ISBN 13 : 9780692660638
Total Pages : 204 pages
Book Rating : 4.6/5 (66 download)

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Book Synopsis Unexpected Gifts by : Eve Soldinger

Download or read book Unexpected Gifts written by Eve Soldinger and published by . This book was released on 2016-03-18 with total page 204 pages. Available in PDF, EPUB and Kindle. Book excerpt: "He didn't know his age, the year, or his surroundings, but he knew his life could still make a difference. On this path, he went forward with his heart. Every emotion was authentic. Each moment was new-but it was also full of love, anger, or fear, and he had to travel through it." In a matter of days, Eve Soldinger's life and family changed utterly: Her beloved father was diagnosed with dementia. The challenges are those every adult child faced with caring for an aging parent will recognize: How do I see to his needs? How do I protect him? How do I explain to others? But her insight and experience also bring a fresh, hopeful perspective. Discover with Eve and her family how they not only coped with practical challenges, but transformed heartbreaking years into a time of laughter, growth, and love-unexpected gifts that will enrich the lives of all families who walk this path.

A Path Revealed

Author : Carlen Maddux
Publisher : Paraclete Press
ISBN 13 : 1612618766
Total Pages : 129 pages
Book Rating : 4.6/5 (126 download)

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Book Synopsis A Path Revealed by : Carlen Maddux

Download or read book A Path Revealed written by Carlen Maddux and published by Paraclete Press. This book was released on 2016-09-01 with total page 129 pages. Available in PDF, EPUB and Kindle. Book excerpt: Just days after turning fifty, Martha Maddux, a spirited mother and civic activist, was told she had Alzheimer’s disease. She and husband Carlen felt as though they’d been shoved out of a plane 10,000 feet up, with nothing to grab but themselves. A Path Revealed is not about the fallout from an insidious disease that extended over seventeen years. It is the story of a path of hope emerging during the darkest hours - a path that lifted Carlen and Martha above the devastating symptoms of this disease. Carlen traveled with Martha to the backwoods of Kentucky, where the quiet presence of a Catholic nun revealed a hidden path. He was forced to slow down as he traced this path halfway around the world to Australia, retreated weekends to a monastery, embraced meditation, and landed all alone in Thomas Merton’s cabin. This story conveys a message of hope and joy in the midst of an almost overwhelming tragedy.

Keeping Love Alive as Memories Fade

Author : Gary Chapman
Publisher : Moody Publishers
ISBN 13 : 0802494412
Total Pages : 275 pages
Book Rating : 4.8/5 (24 download)

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Book Synopsis Keeping Love Alive as Memories Fade by : Gary Chapman

Download or read book Keeping Love Alive as Memories Fade written by Gary Chapman and published by Moody Publishers. This book was released on 2016-09-16 with total page 275 pages. Available in PDF, EPUB and Kindle. Book excerpt: Across America and around the world, the five love languages have revitalized relationships and saved marriages from the brink of disaster. Can they also help individuals, couples, and families cope with the devastating diagnosis of Alzheimer's disease (AD)? Coauthors Chapman, Shaw, and Barr give a resounding yes. Their innovative application of the five love languages creates an entirely new way to touch the lives of the five million Americans who have Alzheimer’s, as well as their fifteen million caregivers. At its heart, this book is about how love gently lifts a corner of dementia’s dark curtain to cultivate an emotional connection amid memory loss. This collaborative, groundbreaking work between a healthcare professional, caregiver, and relationship expert will: Provide an overview of the love languages and Alzheimer’s disease, correlate the love languages with the developments of the stages of AD, discuss how both the caregiver and care receiver can apply the love languages, address the challenges and stresses of the caregiver journey, offer personal stories and case studies about maintaining emotional intimacy amidst AD. Keeping Love Alive as Memories Fade is heartfelt and easy to apply, providing gentle, focused help for those feeling overwhelmed by the relational toll of Alzheimer’s. Its principles have already helped hundreds of families, and it can help yours, too.

An Alzheimer's Angel

Author : Dieter Euler
Publisher : FriesenPress
ISBN 13 : 1039123473
Total Pages : 187 pages
Book Rating : 4.0/5 (391 download)

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Book Synopsis An Alzheimer's Angel by : Dieter Euler

Download or read book An Alzheimer's Angel written by Dieter Euler and published by FriesenPress. This book was released on 2021-11-22 with total page 187 pages. Available in PDF, EPUB and Kindle. Book excerpt: If you love someone with Alzheimer’s . . . this book is for you. Written with caregivers in mind, this personal story documents one family’s journey through the stages of Alzheimer’s with their mother, sharing their experiences and frustrations as well as their joys and love. This is a mirror of the Eulers’ daily lives, designed to support and uplift other families working through similar situations. How can caregivers move past feelings of guilt and shame? What legal, medical, and social resources are available to them? How can onlookers, friends and family of someone with Alzheimer’s care for themselves, or help--even a little? Will they ever find peace? Dieter has some answers which he now wants to share with you.

Where the Light Gets In

Author : Kimberly Williams-Paisley
Publisher : Crown
ISBN 13 : 1101902965
Total Pages : 290 pages
Book Rating : 4.1/5 (19 download)

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Book Synopsis Where the Light Gets In by : Kimberly Williams-Paisley

Download or read book Where the Light Gets In written by Kimberly Williams-Paisley and published by Crown. This book was released on 2016-04-05 with total page 290 pages. Available in PDF, EPUB and Kindle. Book excerpt: “The relationship between a mother and daughter is one of the most complicated and meaningful there is. Kimberly Williams-Paisley writes about her own with grace, truth, and beauty as she shares her journey back to her mother in the wake of a devastating illness.” —Brooke Shields Many know Kimberly Williams-Paisley as the bride in the popular Steve Martin remakes of the Father of the Bride movies, the calculating Peggy Kenter on Nashville, or the wife of country music artist, Brad Paisley. But behind the scenes, Kim was dealing with a tragic secret: her mother, Linda, was suffering from a rare form of dementia that slowly crippled her ability to talk, write and eventually recognize people in her own family. Where the Light Gets In tells the full story of Linda’s illness—called primary progressive aphasia—from her early-onset diagnosis at the age of 62 through the present day. Kim draws a candid picture of the ways her family reacted for better and worse, and how she, her father and two siblings educated themselves, tried to let go of shame and secrecy, made mistakes, and found unexpected humor and grace in the midst of suffering. Ultimately the bonds of family were strengthened, and Kim learned ways to love and accept the woman her mother became. With a moving foreword by actor and advocate Michael J. Fox, Where the Light Gets In is a heartwarming tribute to the often fragile yet unbreakable relationships we have with our mothers.

Creating Moments of Joy

Author : Jolene Brackey
Publisher :
ISBN 13 : 9781557533661
Total Pages : 305 pages
Book Rating : 4.5/5 (336 download)

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Book Synopsis Creating Moments of Joy by : Jolene Brackey

Download or read book Creating Moments of Joy written by Jolene Brackey and published by . This book was released on 2003 with total page 305 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book offers many ways to create moments of joy. No matter what the environment or situation is, this book will be a positive tool on a daily basis. This book breaks down the learning process into five sections. Within those five sections are smaller steps. At the end of each step is a place to journal thoughts, ideas, solutions and treasures. With this journal, many moments of joy will be created.

My Bert Has Alzheimer's

Author : Paula de Ronde
Publisher : FriesenPress
ISBN 13 : 1039129234
Total Pages : 288 pages
Book Rating : 4.0/5 (391 download)

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Book Synopsis My Bert Has Alzheimer's by : Paula de Ronde

Download or read book My Bert Has Alzheimer's written by Paula de Ronde and published by FriesenPress. This book was released on 2022-01-26 with total page 288 pages. Available in PDF, EPUB and Kindle. Book excerpt: My Bert Has Alzheimer’s is an intimate, detailed account of a wife’s experience with her husband’s dementia. As Paula de Ronde quickly learned, life for two people — patient and caregiver - is thrown into disarray with a diagnosis of Alzheimer’s. Ambushed by the disease, it is a journey into the unknown, but one that features an abundance of love, hope, and support. There is no shying away from the horror of the disease, but its awfulness doesn’t strip from the experience of the powerful companions that accompany those enduring it — namely, love, laughter, and community. Thrust into the caregiver role for her other half who used to be her equal and best buddy, making all kinds of decisions together, Paula now enters a new world of uncertainty and chaos. There is no roadmap. Instead she learns that the disease is as individual as each person who contracts it. Here is a caregiver’s poignant and revealing story of the mental, physical, and emotional stress of caring for the love of her life, her Bert, as he gives over to his neurological disease. The caregiver’s life is far from easy. Yet fueled by love, which never wanes, each step of the way is handled with grace and the help of care partners. Alzheimer’s steals memories but also gives teaching moments. As the disease progresses Paula learns to be more tolerant, patient, compassionate and accepting of human frailties. Alzheimer’s releases an inner strength. She meets each challenge, finds a solution to each issue that arises, then passes on her new-found knowledge to others. She learns the value of having a support group. Alzheimer’s cements the old adage that laughter is the best medicine. Together she and her Bert become stronger than the disease. With humour, compassion, wisdom, and deep feeling, she describes this slice of their conjoined lives. More than a record of the impact of a disease this is, at its essence, also a love story.

Carol's Alzheimers Journey

Author : Donald H. Ford
Publisher : Donald H. Ford
ISBN 13 : 9781300803218
Total Pages : 546 pages
Book Rating : 4.8/5 (32 download)

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Book Synopsis Carol's Alzheimers Journey by : Donald H. Ford

Download or read book Carol's Alzheimers Journey written by Donald H. Ford and published by Donald H. Ford. This book was released on 2013-04-01 with total page 546 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book is a lovingly detailed memoir of the Ford's courtship and 63 years of married life together, coupled in the last four chapters with a description of the successful homecare plan Donald designed for Carol after she developed Alzheimer's in her later years. By accentuating the positive, this plan allowed them both to maintain a meaningful, dignified and even joyful life up until Carol's peaceful passing in 2011.