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The Caregivers Tale
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Book Synopsis The Caregiver's Tale by : Ann Burack-Weiss
Download or read book The Caregiver's Tale written by Ann Burack-Weiss and published by Columbia University Press. This book was released on 2006 with total page 210 pages. Available in PDF, EPUB and Kindle. Book excerpt: Ann Burack-Weiss explores a rich variety of published memoirs by authors who cared for ill or disabled family members. The text will offer insight and comfort to individuals caring for a loved one and is a valuable resource for all healthcare professionals.
Download or read book The Caregiver written by Samuel Park and published by Simon & Schuster. This book was released on 2019-07-09 with total page 304 pages. Available in PDF, EPUB and Kindle. Book excerpt: From the critically acclaimed author of This Burns My Heart comes a “luminous mother-daughter saga” (Entertainment Weekly) about a young woman who is forced to flee 1980s Brazil for California, and in doing so unearths the hidden life of her enigmatic mother. Mara Alencar’s mother Ana is her moon, her sun, her stars. Ana, a struggling voice-over actress, is an admirably brave and recklessly impulsive woman who does everything in her power to care for her little girl in perilous 1980s Rio de Janeiro. With no other family or friends her own age, Ana eclipses Mara’s entire world. They take turns caring for each other—in ways big and small. But who is Ana, really? As she grows older, Mara slowly begins to piece together the many facets of Ana’s complicated life—a mother, a rebel, and always, an actress. When Ana becomes involved with a civilian rebel group attempting to undermine the city’s cruel Police Chief, their fragile arrangement begins to unravel. Mara is forced to flee the only home she’s ever known, for California, where she lives as an undocumented immigrant, caregiving for a dying woman. It’s here that she begins to grapple with her turbulent past and starts to uncover vital truths—about her mother, herself, and what it means to truly take care of someone. A “lovely and heartbreaking” (People) story that is “simultaneously dreamlike and visceral” (The Atlantic), The Caregiver is “a beautiful testament to Samuel Park’s extraordinary talents as a storyteller…that reads, in some moments, like a thriller—and, in others, like a meditation on what it means to be alive…A ferocious page-turner with deep wells of compassion for the struggles of the living—and the sins of the dead” (Kirkus Reviews, starred review).
Book Synopsis My Mother Has Alzheimer's and My Dog Has Tapeworms A Caregiver's Tale by : R Lynn Barnett
Download or read book My Mother Has Alzheimer's and My Dog Has Tapeworms A Caregiver's Tale written by R Lynn Barnett and published by Lulu.com. This book was released on 2015-08-27 with total page 298 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book is about how we dealt with my mom with Alzheimer's. It's written with humor and heart.
Download or read book The Caregivers written by Nell Lake and published by Simon and Schuster. This book was released on 2014-02-11 with total page 336 pages. Available in PDF, EPUB and Kindle. Book excerpt: A moving, intimate, and compassionate book that chronicles the experiences of a group of long-term caregivers—spouses, parents, and friends of the elderly and ill—illuminating critical issues of old age, end-of-life care, medical reform, and social policy—and “providing comfort in the time-honored form of shared experience” (The Minneapolis Star-Tribune). In 2010, journalist Nell Lake began sitting in on the weekly meetings of a local hospital’s caregivers support group. Soon members invited her into their lives. For two years, she brought empathy, insight, and an eye for detail to understanding Penny, a fifty-year-old botanist caring for her aging mother; Daniel, a survivor of Nazi Germany who tends his ailing wife; William, whose wife suffers from Alzheimer’s; and others with whom all caregivers will identify. Witnessing acts of devotion and frustration, lessons in patience and in letting go, Lake illuminates the intimate exchanges of caregiving and care-receiving and considers important and timely social issues: How can we care for the aging, ill, and dying with skill and compassion, even as the costs and labors of care increase? How might the medical profession take into account the needs of caregivers as well as patients? In The Caregivers Nell Lake shares a thoughtful and tenderly reported depiction of the real-life predicaments that evoke these crucial questions. With more and more people spending their late years ill and frail, and 43 million Americans already caring for family members over age fifty, this is an important chronicle of a widely shared experience and a public concern. “The Caregivers is as elegantly constructed as a novel, but more than that, Lake writes about these people with such warmth and vividness that they feel as memorable as our favorite fictional characters. It is a beautifully written account” (The Boston Globe).
Book Synopsis Heeding the Caregiver Call by : Dr. Barbara Ella Milton Jr.
Download or read book Heeding the Caregiver Call written by Dr. Barbara Ella Milton Jr. and published by Xlibris Corporation. This book was released on with total page 355 pages. Available in PDF, EPUB and Kindle. Book excerpt: In the fall of 2015, Barbara Sr. called her only child to ask for her help. Unbeknownst to her family, Barbara Sr. was already in the grips of Alzheimer’s. This book tells the story of Barbara Jr.’s journey as her mother’s caregiver and shares insights into the physical, emotional, financial, and spiritual impacts of caregiving while fighting her own cancer. It also provides practical information to others who assume caregiving roles for their loved ones. Follow this mother and daughter’s journey through resentments and regrets, forgiveness and faith, laughter and love. Barbara Jr. promised her mother on her deathbed that she would tell her story. Here it is.
Book Synopsis The Caregiver by : Shelley Shepard Gray
Download or read book The Caregiver written by Shelley Shepard Gray and published by Harper Collins. This book was released on 2011-03-08 with total page 251 pages. Available in PDF, EPUB and Kindle. Book excerpt: An Amish man and woman, bearing responsibilities and trauma, find hope and love in New York Times bestselling author Shelley Shepard Gray’s The Caregiver. Lucy is still coping with the grief of losing her husband when she learns that her cousin has breast cancer. As a caregiver, Lucy will not only be able to help manage her cousin’s illness, but find her own inner strength to carry on living. Then, while on board the train to Jacob’s Crossing, she meets fellow Amish traveler Calvin Weaver. A farmer, Calvin and his little sister are heading to the same destination as Lucy. As they get to know one another on their journey, the train stalls in Cleveland. The only Amish among the passengers, Lucy and Calvin must rely on each other and protect his sister. But both carry pain they are unable to contain in the stressful English world and mistrust comes between them. In Jacob’s Crossing, Lucy and Calvin absorb themselves in their familial obligations, but are unable to forget their brief time together. And it will take the grace of God to help them heal their hearts and reach for the happiness they can share. “Gray writes with honesty, tenderness, and depth. Her characters are admirable, richly-layered, and impossible to forget.” —New York Times bestselling author Jillian Hart Families of Honor The Caregiver The Protector The Survivor
Download or read book Already Toast written by Kate Washington and published by Beacon Press. This book was released on 2021-03-16 with total page 224 pages. Available in PDF, EPUB and Kindle. Book excerpt: The story of one woman’s struggle to care for her seriously ill husband—and a revealing look at the role unpaid family caregivers play in a society that fails to provide them with structural support. Already Toast shows how all-consuming caregiving can be, how difficult it is to find support, and how the social and literary narratives that have long locked women into providing emotional labor also keep them in unpaid caregiving roles. When Kate Washington and her husband, Brad, learned that he had cancer, they were a young couple: professionals with ascending careers, parents to two small children. Brad’s diagnosis stripped those identities away: he became a patient and she his caregiver. Brad’s cancer quickly turned aggressive, necessitating a stem-cell transplant that triggered a massive infection, robbing him of his eyesight and nearly of his life. Kate acted as his full-time aide to keep him alive, coordinating his treatments, making doctors’ appointments, calling insurance companies, filling dozens of prescriptions, cleaning commodes, administering IV drugs. She became so burned out that, when she took an online quiz on caregiver self-care, her result cheerily declared: “You’re already toast!” Through it all, she felt profoundly alone, but, as she later learned, she was in fact one of millions: an invisible army of family caregivers working every day in America, their unpaid labor keeping our troubled healthcare system afloat. Because our culture both romanticizes and erases the realities of care work, few caregivers have shared their stories publicly. As the baby-boom generation ages, the number of family caregivers will continue to grow. Readable, relatable, timely, and often raw, Already Toast—with its clear call for paying and supporting family caregivers—is a crucial intervention in that conversation, bringing together personal experience with deep research to give voice to those tasked with the overlooked, vital work of caring for the seriously ill.
Download or read book Untethered written by Phyllis Peters and published by . This book was released on 2013-11 with total page 308 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Untethered: A Caregiver's Tale is that rare thing, funny fiction about a serious subject. It tells the story of Tom, a baby boomer with aging parents who need to be watched over, his young wife Mel, and a number of stray seniors who seem to have walked out of a P. G. Wodehouse story. Engaging and moving, this novel will keep you reading past your bedtime." -Wyn Cooper, author of Chaos is the New Calm "You can't avoid death, taxes, and caring for the elderly." -Mark V. Olsen & Will Scheffer, producers/creators, Getting On Tom Conklin is a workaday administrator and proud baby boomer. His recent divorce has just ended in marriage to Mel-a sexy, younger French colleague-as he begins caring for his aging and increasingly difficult parents. When his formerly upstanding dad gets arrested for assault with an old dial phone, Tom tries to persuade his parents to sign over their power of attorney, to stop driving, or to take up a comparatively safe hobby like genital tattooing. Denial, however, becomes Tom's most powerful adversary. With Mel's desire for children proving a game changer, his pot-smoking, French great-grandmother-in-law moving in, and his elderly neighbors challenging his very sense of self, Tom escapes into magical thinking. Buying into local lore sends him searching for real buried treasure, but meaningful, emotional treasure proves much more elusive. Untethered: A Caregiver's Tale is full-length fiction as comic relief. It celebrates the modern family at its funniest and most vulnerable, offering cathartic fun aimed not at the caregiven, but in praise of the caregiver. Untethered: A Caregiver's Tale is now a feature of the fundraising efforts for the Accelerating Medicines Partnership (AMP) via the Foundation for the National Institutes of Health. 100% of the profits from the sale of the book will be donated to the AMP's efforts at eradicating Alzheimer's. Please visit www.untetheredcaregiver.com to learn more.
Book Synopsis Prisoners Without Bars by : Donna O'Donnell Figurski
Download or read book Prisoners Without Bars written by Donna O'Donnell Figurski and published by BQB Publishing. This book was released on 2018-11-01 with total page 284 pages. Available in PDF, EPUB and Kindle. Book excerpt: “Laugh! Cry! G-A-S-P!" This heart-wrenching and triumphant love story is a tale of advocacy and caregiving. Donna's husband, David, stumbled into their bedroom, his hand covering a blood-filled eye from a brain hemorrhage. Donna called 9-1-1. David slipped into a coma. At that moment, Donna was thrust onto the path of caregiver for her best friend and the love of her life. In her debut memoir, Donna shares how a neurosurgeon said that David would make a "great organ donor." She writes of arrogant doctors, uncaring visitors, insensitive ambulance drivers, and problematic nurses. She also tells of the many compassionate doctors, nurses, therapists, staff, strangers, family members, and friends who helped them on their journey. Donna compellingly describes her ability to appear positive as she experiences the horror of making life-or-death decisions. As her world crashes, she credits laughter as her lifesaver. More than thirteen years later, Donna and David are living a "new normal" together.
Book Synopsis Confessions of an Imperfect Caregiver by : Bobbi Carducci
Download or read book Confessions of an Imperfect Caregiver written by Bobbi Carducci and published by . This book was released on 2014-07-26 with total page 284 pages. Available in PDF, EPUB and Kindle. Book excerpt: Bobbi Carducci's life was about to change. Her ill father-in-law 's odd behavior was a mystery when he came to live with her and Mike. For the next seven years Bobbi did everything she could to save him from himself-while he tried to convince everyone that he didn't need her and that she was crazy. "Brutally honest and written from the heart, Carducci's intimate chronicle of caring for her father-in-law is a poignant story of strength, compassion, and humor that will linger with you long after you read the last page. Highly recommended for anyone caring for an elderly parent." Jan Neuharth, author of the Hunt Country Suspense novels "Confessions of an Imperfect Caregiver, perfectly encapsulates the human experience, not just the caregiver's. When we live in a world of worry, stress and self-doubt, where do we find the strength to go on? Bobbi's retelling of her caregiving years unfolds in a beautiful answer to the questions posed by sickness, health, care, and loss." Alexandra Axel, Media Director, The Caregiver Space Bobbi is an award winning author and multi published short story writer. Her work has appeared in numerous anthologies and publications, in print and online. Bobbi's website and blog can be found at www.bobbicarducci.com and theimperfectcaregiver.com. Bobbi also blogs monthly for TheCaregiverSpace.org and AgingCare.com.
Book Synopsis Traumatic Brain Injury by : Lydia Greear
Download or read book Traumatic Brain Injury written by Lydia Greear and published by Xlibris US. This book was released on 2014-10-07 with total page 185 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book is a passionate account of Lydia Greears journey as the main caregiver and guardian for her adult son through recovery from a traumatic brain injury. A moment in time one Saturday night has brought about months of day-by-day steps through managing care for Thaddeus. The original documents were recorded day by day and then weeks and monthly accounts of progress as Thaddeus moved from ER to ICU to rehabilitation. This is an emotionally charged account of being challenged by the unknown. You will see her passion unfold and her challenge to keep a positive attitude as she manages people, systems, and facilities. Many family members are not prepared to deal with the drama of traumatic brain injury. Every brain injury is different, and recovery is uncertain. Lydia searched for support and information to help her deal with the realities of everyday life. There are written accounts published by former patients, doctors, and doctors who were patients. This is a book written from the family members perspective.
Book Synopsis A Tale of Two Sisters by : Bonnie Kronberger
Download or read book A Tale of Two Sisters written by Bonnie Kronberger and published by . This book was released on 2019-08-12 with total page 140 pages. Available in PDF, EPUB and Kindle. Book excerpt: This is the tale of two sisters being held captive by their loved ones. The role of caregiver was thrust upon them, without invitation or consent, and they found themselves on the road to the worst of times and miraculously, the best of times. Linda's caregiving challenges came to an end just as Bonnie's came to light, yet they have chosen to weave their vignettes and stories back and forth. Linda's tale unfolds gradually as God shows her, through significant flashbacks, how He had already prepared her for her assignment. Bonnie's tale is straight-forward, with practical, creative caregiving insights gained through the Lord's very present on-the-job training. Their circumstances were different, but both give amazing examples of how Alzheimer's brought surprising blessings. They experienced unexpected times of joy as their caregiving journey drew them closer to the Lord's heart--even though they were reluctant caregivers.
Download or read book Lewy, Mom, and Me written by Peggy Bushy and published by Createspace Independent Publishing Platform. This book was released on 2016-11-18 with total page 214 pages. Available in PDF, EPUB and Kindle. Book excerpt: In her seventies, Peggy Bushy's mother, Francesca, started telling unbelievable stories. She claimed that people were invading her home and trying to kill her. She also became anxious and reclusive. For several discouraging years, Bushy searched in vain for a reason for her mother's behavior. Finally, Francesca was diagnosed with Lewy body dementia. Although it's the third-most-common cause of dementia, Bushy was unable to find much information on the disease, and the medical community was frustratingly unhelpful. Lewy, Mom, and Me is the book that Bushy wished had been available when her mother was first diagnosed. It details her personal journey of discovery, with all its challenges and revelations, and is written in a compassionate, empathetic style that will comfort any reader dealing with a parent's decline. Bushy explains how she learned to accept the changes in her mother and to support Francesca emotionally as she grappled with her frightening illness. She also describes what was involved in caring for her mother first at home, then in long-term care, and finally in hospice. Part memoir and part survival guide, this compelling testimony offers support and information for family caregivers of aging parents.
Book Synopsis The Long Goodbye by : John W. Wilson
Download or read book The Long Goodbye written by John W. Wilson and published by . This book was released on 2020-11 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: I'm a caregiver. The patient is my wife. She has frontotemporal dementia, or FTD. What's captured here, in this book, are my thoughts and reactions over time as I came to terms with her disease. These mini-essays represent a curated selection of writings I've been publishing on social media since 2014. In the beginning, they were simply observations about the natural world of the Texas Hill Country. Gradually, however, my wife's disease came to occupy center stage; as it did, the essays became the public face of our life.
Book Synopsis Elder Care Journey by : Laura Katz Olson
Download or read book Elder Care Journey written by Laura Katz Olson and published by SUNY Press. This book was released on 2016-04-22 with total page 230 pages. Available in PDF, EPUB and Kindle. Book excerpt: Combining expert knowledge and first-hand experience, a noted elder care researcher confronts the long-distance care of her own mother. For millions of Americans caregiving is the new normal. For Laura Katz Olson, a respected researcher of long-term care for the aging, Elder Care Journey chronicles the disruption of her world and how it is upended by the ever-increasing long-distance needs of her own mother. A healthy, Senior Olympics medal winner, Olsons mother is slowly and steadily incapacitated by Parkinsons disease and a gradual loss of vision. Thrust into a long-distance caregiving role, Olson finds her previous academic notions about assisting a frail parent increasingly at odds with the reality of the lived experience. In a narrative full of ah-ha! moments, tears, sighs, and outrage that will be familiar to many, Olson opens a window into the nursing home and home care industries that consume much in the way of taxpayer dollars, but often fail to deliver quality care. Olsons personal story vividly demonstrates not only the overwhelming bureaucratic barriers faced by care-dependent seniors but also their beleaguered adult childrens attempts to ensure their parents health, safety, and well-being. After losing two siblings, Laura Katz Olson is left singularly responsible for her physically active and lively mother, Dorothy, a thousand miles away, both young at heart and eagerly bicycling everywhere, but increasingly limited by the normal process of aging. Being an expert on aging and health care, Olson is at first confident as she tries to let her mother age in place. More than anyone, she believes, she should know what to do. Shuttling between Florida and Pennsylvania, Olson settles into a crushing routine, and with each visit she finds incremental downward change in her mothers health. Pulled by daughterly guilt at times, but also a wellspring of love, Olson is frank about the resentment she sometimes experiences. With a unique perspective that links the systemic flaws in our policy approach to elder care to real-world experience, Olson exposes the challenges we all face or are likely to face. More than a personal story, but nevertheless an extremely compelling one, the book should be read by those confounded and frustrated, and by those without direct knowledge of what quietly repeats itself millions of times a day. Miriam Laugesen, Department of Health Policy and Management, Columbia University In Elder Care Journey, Laura Olson tells the riveting story of helping her aging, disabled mother navigate the system of long-term services and supports. A renowned scholar of aging and long-term care policy, Dr. Olson was nevertheless unprepared for the daily frustrations involved in confronting a bewildering array of obstacles, deceptions, burdensome and repetitive procedures and paperwork, and catch-22s, ranging from the annoying to the downright dangerous. She shows how well-intentioned policies can fall far short of meeting peoples needs, especially for those in greatest need, in a system based on fragmented interests and private-sector profit maximization. Combining scholarly expertise with personal experience, she ends the book with a detailed but highly accessible analysis of the long-term care system and how it could be improved to the benefit of both taxpayers and beneficiaries. This book is a compelling read for policymakers and for students and scholars of health care and social welfare policy, highly recommended for undergraduate and graduate courses. The authors experiences also provide helpful advice to caregivers on what to expect and how to deal with it, as well as reassurance that they are not alone. Christine L. Day, University of New Orleans If a society is judged by how well it treats its most vulnerable members, Laura Katz Olson, a prominent health policy scholar, demonstrates that we have a long way to go in how we serve frail and disabled elders in need of long-term services and supports at the end of their lives. Olson develops a compelling narrative that describes the subtle and not-so-subtle indignities imposed on elders and their caregivers navigating the complex maze of health and social service systems at their hour of greatest need. Even an expert such as Olson struggled in light of the challenges posed by these impediments. By connecting her own personal journey to the larger societal challenges within which her struggles are embedded, Olson makes a significant contribution to the literature that should be required reading for scholars, practitioners, and policymakers looking to advance the welfare of the nations most vulnerable citizens. Edward Alan Miller, author of Block Granting Medicaid: A Model for 21st Century Medicaid Reform? This page-turner is at once a tender tale of a daughters devotion and a stinging indictment of the hugely complex and wholly inadequate American long-term care system. That an elder-care expert can barely navigate the Byzantine web of public and private insurance and services for her disabled mother is alarming enough. Truly horrific are the systems shortcomings and the increasing role that for-profit providers play, fleecing and even abusing their customers. A startling wake-up call. Andrea Louise Campbell, author of Trapped in Americas Safety Net: One Familys Struggle
Book Synopsis The Soul of Caregiving (Revised Edition): A Caregiver's Guide to Healing and Transformation by : Edward M. Smink
Download or read book The Soul of Caregiving (Revised Edition): A Caregiver's Guide to Healing and Transformation written by Edward M. Smink and published by Wise Media Group. This book was released on 2021-10-28 with total page 228 pages. Available in PDF, EPUB and Kindle. Book excerpt: 2022 Revised Edition Who are the caregivers? We all are, for at the heart of being human is the capacity to care, to reach out to others and explore the relationships we build. The Soul of Caregiving is about us, and how we, as caregivers, serve, even sacrifice, for those in need. I invite you to explore with me how we can partake in a kind of sacred journey exploring our experiences as caregivers. Who will be your guide on this journey? Unlike other pilgrims who have a guide assigned to them, you will soon discover it is your own Soul guiding you. We may be professionally skilled to meet the needs of others, but we must also learn to stop and rest. It is not a waste of time, but rather, a necessity. We need time to ponder, reflect, and grow from our experiences. Not an easy endeavor amid a whirlwind of activity. We, as caregivers, experience vulnerability, helplessness, fears, and pain over the traumatic events we experience because we care. We care about those whom we are called to serve. Compassion fatigue arises because we care. Overview of the Chapters Chapter 1 begins by outlying the tension most caregivers experience: the tension their own needs and the needs of those they care for. I call this tension the Dance of Caregiving. Chapter 2 discusses the importance of discovering interior strengths and values where one discovers Soul. Chapter 3 emphasizes caregivers do not care in a vacuum, as there are broad cultural boundaries and expectations which affect them and shape their behaviors. Chapter 4 describes The Archetype of Caregiving, both its strengths and shadow sides. This archetype also relates to several other leadership archetypes, which are also discussed. Chapter 5 discusses hospitality. This chapter positions the caregiver as the host who experiences three different dimensions of hospitality: to host the stranger, to listen to the stories of the guest, and to reflect on their reactions and experiences. Chapter 6 address the frailty of humankind and the notion that we are wounded healers. Chapter 7 addresses the art of reflection as a fundamental skill for caregivers. Chapter 8 argues that the essential actions of a caregiver are spiritual. Chapter 9 explores how the ordinary becomes spiritual as inner strengths and values give birth to meaning, insight, and transformation. Chapter 10 explores compassion fatigue and its two sisters, secondary traumatic stress disorder and burnout. In this chapter, we learn how to recover from compassion fatigue and burnout by building compassion resilience. At the end of each chapter, the reader is invited to ponder and reflect. Your insights are the gold hidden beneath the sands of confusion. Mining these insights will lead to a greater understanding of your strengths and values. The questions at the end of each chapter help facilitate this process.
Book Synopsis The Caregiver's Tale by : Marie Thérèse Gass
Download or read book The Caregiver's Tale written by Marie Thérèse Gass and published by . This book was released on 2007-09-07 with total page 202 pages. Available in PDF, EPUB and Kindle. Book excerpt: Stories and lessons from the first year of caregiving a spouse with TBI.
