Searching For Every Step Finding Purpose In Living With Spinal Muscular Atrophy

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Searching For Every Step: Finding Purpose in Living With Spinal Muscular Atrophy

Author : Kurt E. Beach
Publisher : Beach Publishing LLC
ISBN 13 : 9780578971971
Total Pages : 208 pages
Book Rating : 4.9/5 (719 download)

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Book Synopsis Searching For Every Step: Finding Purpose in Living With Spinal Muscular Atrophy by : Kurt E. Beach

Download or read book Searching For Every Step: Finding Purpose in Living With Spinal Muscular Atrophy written by Kurt E. Beach and published by Beach Publishing LLC. This book was released on 2021-10-15 with total page 208 pages. Available in PDF, EPUB and Kindle. Book excerpt: This inspiring memoir tells the story of a young man who is diagnosed with spinal muscular atrophy-a rare muscular disease-at a young age. In Searching for Every Step, author Kurt Beach offers his insight on the steps he took to find his true purpose in life. In his memoir, Beach recalls the steps and missteps he took in order to manage his bout with SMA and how this rare condition played a part in many decisions he made throughout his life. Despite his rare circumstances, his struggles are struggles we all face. Through his condition, he finds the courage and strength to overcome physical, emotional, and social obstacles concerning his career aspirations, schooling, romantic relationships, and even adoption. During a life changing event, Beach finds what he is missing in life. This experience not only shows him what kind of strength he has but what his true purpose in life is. Searching for Every Step delivers wisdom and inspiration to anyone who has struggled through life and gives them the inspiration to shift their focus away from their troubles and toward a more positive, faith-driven life

I Live a Life Like Yours

Author : Jan Grue
Publisher : FSG Originals
ISBN 13 : 0374600791
Total Pages : 272 pages
Book Rating : 4.3/5 (746 download)

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Book Synopsis I Live a Life Like Yours by : Jan Grue

Download or read book I Live a Life Like Yours written by Jan Grue and published by FSG Originals. This book was released on 2021-08-17 with total page 272 pages. Available in PDF, EPUB and Kindle. Book excerpt: "A quietly brilliant book that warms slowly in the hands." —Dwight Garner, The New York Times I am not talking about surviving. I am not talking about becoming human, but about how I came to realize that I had always already been human. I am writing about all that I wanted to have, and how I got it. I am writing about what it cost, and how I was able to afford it. Jan Grue was diagnosed with spinal muscular atrophy at the age of three. Shifting between specific periods of his life—his youth with his parents and sister in Norway; his years of study in Berkeley, St. Petersburg, and Amsterdam; and his current life as a professor, husband, and father—he intersperses these histories with elegant, astonishingly wise reflections on the world, social structures, disability, loss, relationships, and the body: in short, on what it means to be human. Along the way, Grue moves effortlessly between his own story and those of others, incorporating reflections on philosophy, film, art, and the work of writers from Joan Didion to Michael Foucault. He revives the cold, clinical language of his childhood, drawing from a stack of medical records that first forced the boy who thought of himself as “just Jan” to perceive that his body, and therefore his self, was defined by its defects. I Live a Life Like Yours is a love story. It is rich with loss, sorrow, and joy, and with the details of one life: a girlfriend pushing Grue through the airport and forgetting him next to the baggage claim; schoolmates forming a chain behind his wheelchair on the ice one winter day; his parents writing desperate letters in search of proper treatment for their son; his own young son climbing into his lap as he sits in his wheelchair, only to leap down and run away too quickly to catch. It is a story about accepting one’s own body and limitations, and learning to love life as it is while remaining open to hope and discovery.

Laughing at My Nightmare

Author : Shane Burcaw
Publisher : Macmillan
ISBN 13 : 162672007X
Total Pages : 257 pages
Book Rating : 4.6/5 (267 download)

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Book Synopsis Laughing at My Nightmare by : Shane Burcaw

Download or read book Laughing at My Nightmare written by Shane Burcaw and published by Macmillan. This book was released on 2014-10-14 with total page 257 pages. Available in PDF, EPUB and Kindle. Book excerpt: "With acerbic wit & a hilarious voice, Shane Burcaw's YA memoir describes the challenges he faces as a 20-year-old with muscular atrophy. From awkward handshakes to trying to finding a girlfriend and everything in between"--

I Love Jesus, But I Want to Die

Author : Sarah J. Robinson
Publisher : WaterBrook
ISBN 13 : 0593193539
Total Pages : 257 pages
Book Rating : 4.5/5 (931 download)

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Book Synopsis I Love Jesus, But I Want to Die by : Sarah J. Robinson

Download or read book I Love Jesus, But I Want to Die written by Sarah J. Robinson and published by WaterBrook. This book was released on 2021-05-11 with total page 257 pages. Available in PDF, EPUB and Kindle. Book excerpt: A compassionate, shame-free guide for your darkest days “A one-of-a-kind book . . . to read for yourself or give to a struggling friend or loved one without the fear that depression and suicidal thoughts will be minimized, medicalized or over-spiritualized.”—Kay Warren, cofounder of Saddleback Church What happens when loving Jesus doesn’t cure you of depression, anxiety, or suicidal thoughts? You might be crushed by shame over your mental illness, only to be told by well-meaning Christians to “choose joy” and “pray more.” So you beg God to take away the pain, but nothing eases the ache inside. As darkness lingers and color drains from your world, you’re left wondering if God has abandoned you. You just want a way out. But there’s hope. In I Love Jesus, But I Want to Die, Sarah J. Robinson offers a healthy, practical, and shame-free guide for Christians struggling with mental illness. With unflinching honesty, Sarah shares her story of battling depression and fighting to stay alive despite toxic theology that made her afraid to seek help outside the church. Pairing her own story with scriptural insights, mental health research, and simple practices, Sarah helps you reconnect with the God who is present in our deepest anguish and discover that you are worth everything it takes to get better. Beautifully written and full of hard-won wisdom, I Love Jesus, But I Want to Die offers a path toward a rich, hope-filled life in Christ, even when healing doesn’t look like what you expect.

Neurodegeneration

Author : Anthony Schapira
Publisher : John Wiley & Sons
ISBN 13 : 0470672684
Total Pages : 344 pages
Book Rating : 4.4/5 (76 download)

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Book Synopsis Neurodegeneration by : Anthony Schapira

Download or read book Neurodegeneration written by Anthony Schapira and published by John Wiley & Sons. This book was released on 2017-04-24 with total page 344 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book unites the diverse range of complex neurodegenerative diseases into a textbook designed for clinical practice, edited by globally leading authorities on the subject. Presents a clinically oriented guide to the diseases caused by neurodegeneration Templated chapters combine clinical and research information on neurodegenerative diseases beginning with the common elements before treating each disease individually Diseases are grouped by anatomical regions of degeneration and include common disorders such as Parkinson’s Disease, Alzheimer’s Disease, Amyotrophic Lateral Sclerosis/Motor Neuron Disease, and Multiple Sclerosis as well as less common diseases Edited by globally leading authorities on the subject, and written by expert contributing authors

Miracle Boy Grows Up

Author : Ben Mattlin
Publisher : Skyhorse
ISBN 13 : 1620875144
Total Pages : 313 pages
Book Rating : 4.6/5 (28 download)

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Book Synopsis Miracle Boy Grows Up by : Ben Mattlin

Download or read book Miracle Boy Grows Up written by Ben Mattlin and published by Skyhorse. This book was released on 2012-08-01 with total page 313 pages. Available in PDF, EPUB and Kindle. Book excerpt: Ben Mattlin lives a normal, independent life. Why is that interesting? Because Mattlin was born with spinal muscular atrophy, a congenital weakness from which he was expected to die in childhood. Not only did Mattlin live through childhood, he became one of the first students in a wheelchair to attend Harvard, from which he graduated and became a professional writer. His advantage? Mattlin’s life happened to parallel the growth of the disability rights movement, so that in many ways he did not feel that he was disadvantaged at all, merely different. Miracle Boy Grows Up is a witty, unsentimental memoir that you won’t forget, told with engrossing intelligence and a unique perspective on living with a disability in the United States.

Spinal Muscular Atrophy

Author : Charlotte J Sumner
Publisher : Academic Press
ISBN 13 : 0128036869
Total Pages : 508 pages
Book Rating : 4.1/5 (28 download)

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Book Synopsis Spinal Muscular Atrophy by : Charlotte J Sumner

Download or read book Spinal Muscular Atrophy written by Charlotte J Sumner and published by Academic Press. This book was released on 2016-10-24 with total page 508 pages. Available in PDF, EPUB and Kindle. Book excerpt: Spinal Muscular Atrophy: Disease Mechanisms and Therapy provides the latest information on a condition that is characterized by motoneuron loss and muscle atrophy, and is the leading genetic cause of infant mortality. Since the identification of the gene responsible for SMA in 1995, there have been important advances in the basic understanding of disease mechanisms, and in therapeutic development. This book provides a comprehensive accounting of recent advances in basic and clinical research that covers SMA clinical features and standards of care, multifaceted aspects of SMN protein functions and SMA disease pathology, various animal models, and biomarkers, as well as current therapeutic development. This title is ideal for graduate students/postdocs and principal investigators who are already in the SMA field and need to keep updated on recent findings and approaches, and for those who are new to, or would like to join, the field. Likewise, users will find an excellent source of reading for biotech/pharma scientists, clinical researchers, and practitioners, regulators, and patients and their advocacy organizations. Furthermore, this book is a handy reference for researchers and clinicians who may want to apply the research strategies and therapeutic approaches in SMA to other rare diseases. - Provides comprehensive, up-to-date reviews by leading investigators on diverse topics of SMA, including clinical features and patient care, SMN genetics and protein functions, animal models, disease pathology and mechanisms, biomarkers, current therapeutic development, and the role of non-profit organizations in therapeutic development - Written to bridge multiple disciplines and promote better communications among basic scientists, clinical researchers, and health care providers on the latest developments in SMA - Includes outstanding questions and perspectives for future investigations and key references for additional detailed study

Mackenzie's Mission

Author : Rachael Casella
Publisher : Allen & Unwin
ISBN 13 : 1760874396
Total Pages : 335 pages
Book Rating : 4.7/5 (68 download)

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Book Synopsis Mackenzie's Mission by : Rachael Casella

Download or read book Mackenzie's Mission written by Rachael Casella and published by Allen & Unwin. This book was released on 2020-06-02 with total page 335 pages. Available in PDF, EPUB and Kindle. Book excerpt: A story of triumph over adversity, the strength that can be found in love and kindness, and the power of one couple to effect positive change in the world. 'A true love story' - Mia Freedman, founder of Mamamia Rachael and Jonathan were thrilled to welcome their baby Mackenzie into the world and to start their new lives as parents. Little did they know that in a few months they would be tested to endurance and beyond. Like many other couples starting a family, Rachael and Jonathan had no idea they were both carriers for a genetic disease, and that 1 in 20 babies are affected by genetic birth defects. Their daughter was one of those babies, and Mackenzie's Mission is Rachael's beautiful and heartwarming account of Mackenzie's life, child loss, and a journey through IVF. Determined that other couples should not go through the same heartbreak, Rachael and Jonathan are now champions for genetic testing. This is a story of triumph over adversity, the strength that can be found in kindness and the power of one couple to effect positive change in the world. 'Heartbreaking and inspiring. A must read for anyone who's lost a child, loved a child, or is desperately trying to for a child. You will cry but you will also find comfort in this incredible story.' - Erin Molan, sports presenter, Nine Network 'A book about grief and finding purpose through unimaginable loss and heartbreak. Beautiful Mackenzie will continue to have a powerful impact on this world through the work of her remarkable parents.' - Libby Trickett, Olympic swimming gold medallist and author of Beneath the Surface 'The most extraordinary story of a mother's love and her daughter's legacy.' - Marcia Leone, creator of Not So Mumsy

The First Thing About You

Author : Chaz Hayden
Publisher : Candlewick Press
ISBN 13 : 1536223115
Total Pages : 369 pages
Book Rating : 4.5/5 (362 download)

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Book Synopsis The First Thing About You by : Chaz Hayden

Download or read book The First Thing About You written by Chaz Hayden and published by Candlewick Press. This book was released on 2022-09-06 with total page 369 pages. Available in PDF, EPUB and Kindle. Book excerpt: A high school student with spinal muscular atrophy is determined to reinvent himself in a hilarious and poignant debut from an exciting new voice. When fifteen-year-old Harris moves with his family from California (home of beautiful-but-inaccessible beaches) to New Jersey (home of some much-hyped pizza and bagels), he’s determined to be known as more than just the kid in the powered wheelchair. Armed with his favorite getting-to-know-you question (“What’s your favorite color?”), he’ll weed out the incompatible people—the greens and the purples, people who are too close to his own blue to make for good friends—and surround himself with outgoing yellows, adventurous oranges, and even thrilling reds. But first things first: he needs to find a new nurse, stat, so that his mom doesn’t have to keep accompanying him to school. Enter Miranda, a young nursing student who graduated from Harris’s new high school. Beautiful, confident, and the perfect blend of orange and red, Miranda sees Harris for who he really is—funny, smart, and totally worthy of the affections of Nory Fischer, the cute girl who’s in most of his classes. With Miranda at his side, Harris soon befriends geeky Zander (yellow) and even makes headway with Nory (who stubbornly refuses to reveal her favorite color). But Miranda is fighting her own demons, and Harris starts to wonder if she truly has his best interests at heart.

We Carry Kevan

Author : Kevan Chandler
Publisher : Worthy Books
ISBN 13 : 9781546014744
Total Pages : 0 pages
Book Rating : 4.0/5 (147 download)

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Book Synopsis We Carry Kevan by : Kevan Chandler

Download or read book We Carry Kevan written by Kevan Chandler and published by Worthy Books. This book was released on 2020-04-21 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: A story about friendships and commitment to one another so incredible you wouldn't believe it if it wasn't true. Kevan is just one of the guys. It's impossible to know him and not become a little more excited about life. He is an inspiring man permeated by joy, unafraid of sorrow, full of vitality and life! His sense of humor is infectious and so is his story. He grew up, he says, at "belt-buckle level" and stayed there until Kevan's beloved posse decided to leave his wheelchair at the Atlanta airport, board a plane for France, and have his friends carry him around Europe to accomplish their dream to see the world together! Kevan's beloved posse traveled to Paris, England, and Ireland where, in the climax of their adventure, they scale 600 feet up to the 1,400-year-old monastic fortress of Skellig Michael. In WE CARRY KEVAN the reader sits with Kevan, one head-level above everyone else for the first time in his life and enjoys camaraderie unlike anything most people ever experience. Along the way they encounter the curiosity and beauty of strangers, the human family disarmed by grace, and the constant love of God so rich and beautiful in the company of good friends. WE CARRY KEVAN displays the profound power of friendship and self-sacrifice.

It's One of Them!

Author : Grace Saunders
Publisher : AuthorHouse
ISBN 13 : 1496997549
Total Pages : 187 pages
Book Rating : 4.4/5 (969 download)

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Book Synopsis It's One of Them! by : Grace Saunders

Download or read book It's One of Them! written by Grace Saunders and published by AuthorHouse. This book was released on 2014-12-10 with total page 187 pages. Available in PDF, EPUB and Kindle. Book excerpt: Grace Saunders and her brother Ben were both born with the genetic disorder spinal muscular atrophy type 2/3, SMA. From her happy childhood growing up in Hertfordshire, enduring painful operations, to becoming a mom and a wife living an independent life in Coventry. Her extraordinary story of strength, not only coping with a severe physical disability, but being victim to domestic violence. Graces story also involves drugs, murder, the police investigation that was Operation Ore and the death of her brother, aged thirty. This is a womans struggle for a normal life, independence, and remarkably, having a healthy baby girl when she was told she would never be able to have children. She coped many years, being a single mother with the help of her family and personal care assistants. She writes about her education, care, and funny stories about the world of Internet dating. She tells her story with, honesty, humor, and heartfelt emotion, Grace shares the highs and lows she has faced and has come out the other side, although a little bruised, stronger than ever, and still smiling. Graces attitude to the life she has been dealt with is, as she says, Its One of Them!

Congressional Record

Author : United States. Congress
Publisher :
ISBN 13 :
Total Pages : pages
Book Rating : 4.F/5 ( download)

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Book Synopsis Congressional Record by : United States. Congress

Download or read book Congressional Record written by United States. Congress and published by . This book was released on 2008 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: The Congressional Record is the official record of the proceedings and debates of the United States Congress. It is published daily when Congress is in session. The Congressional Record began publication in 1873. Debates for sessions prior to 1873 are recorded in The Debates and Proceedings in the Congress of the United States (1789-1824), the Register of Debates in Congress (1824-1837), and the Congressional Globe (1833-1873)

Chiropractic Text Book

Author : R. W. Stephenson
Publisher : Ravenio Books
ISBN 13 :
Total Pages : 590 pages
Book Rating : 4./5 ( download)

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Book Synopsis Chiropractic Text Book by : R. W. Stephenson

Download or read book Chiropractic Text Book written by R. W. Stephenson and published by Ravenio Books. This book was released on 2015-12-07 with total page 590 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book is written for use in the class room. It may, however, be studied just as easily by the field practitioner, and is not too technical in most of its parts to be readily grasped by the layman. It has grown, rather than having been written; it is the expansion of the notes which were tested in the class room for six years, and the writer believes that, with the constant arrangement and betterment to suit the requirements of the students of Chiropractic, this has created a real textbook, rendering easily understood a subject that students have always said was difficult.

Sometimes I Act Crazy

Author : Jerold J. Kreisman, M.D.
Publisher : John Wiley & Sons
ISBN 13 : 0471792144
Total Pages : 261 pages
Book Rating : 4.4/5 (717 download)

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Book Synopsis Sometimes I Act Crazy by : Jerold J. Kreisman, M.D.

Download or read book Sometimes I Act Crazy written by Jerold J. Kreisman, M.D. and published by John Wiley & Sons. This book was released on 2006-04-14 with total page 261 pages. Available in PDF, EPUB and Kindle. Book excerpt: A source of hope, expert advice, and guidance for people with borderline personality disorder and those who love them Do you experience frightening, often violent mood swings that make you fear for your sanity? Are you often depressed? Do you engage in self-destructive behaviors such as drug or alcohol abuse, anorexia, compulsive eating, self-cutting, and hair pulling? Do you feel empty inside, or as if you don't know who you are? Do you dread being alone and fear abandonment? Do you have trouble finishing projects, keeping a job, or forming lasting relationships? If you or someone you love answered yes to the majority of these questions, there's a good chance that you or that person suffers from borderline personality disorder, a commonly misunderstood and misdiagnosed psychological problem afflicting tens of millions of people. Princess Diana was one of the most well-known BPD sufferers. As a source of hope and practical advice for BPD sufferers and those who love them, this new book by Dr. Jerold J. Kreisman and Hal Straus, bestselling authors of I Hate You, Don't Leave Me, offers proven techniques that help you: * Manage mood swings * Develop lasting relationships * Improve your self-esteem * Keep negative thoughts at bay * Control destructive impulses * Understand your treatment options * Find professional help

Swaiman's Pediatric Neurology E-Book

Author : Kenneth F. Swaiman
Publisher : Elsevier Health Sciences
ISBN 13 : 0323374816
Total Pages : 2955 pages
Book Rating : 4.3/5 (233 download)

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Book Synopsis Swaiman's Pediatric Neurology E-Book by : Kenneth F. Swaiman

Download or read book Swaiman's Pediatric Neurology E-Book written by Kenneth F. Swaiman and published by Elsevier Health Sciences. This book was released on 2017-03-16 with total page 2955 pages. Available in PDF, EPUB and Kindle. Book excerpt: Since 1975, Dr. Kenneth Swaiman's classic text has been the reference of choice for authoritative guidance in pediatric neurology, and the 6th Edition continues this tradition of excellence with thorough revisions that bring you fully up to date with all that's new in the field. Five new sections, 62 new chapters, 4 new editors, and a reconfigured format make this a comprehensive and clearly-written resource for the experienced clinician as well as the physician-in-training. - Nearly 3,000 line drawings, photographs, tables, and boxes highlight the text, clarify key concepts, and make it easy to find information quickly.

This Is Not a Love Scene

Author : S. C. Megale
Publisher : St. Martin's Griffin
ISBN 13 : 1250190509
Total Pages : 286 pages
Book Rating : 4.2/5 (51 download)

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Book Synopsis This Is Not a Love Scene by : S. C. Megale

Download or read book This Is Not a Love Scene written by S. C. Megale and published by St. Martin's Griffin. This book was released on 2019-05-07 with total page 286 pages. Available in PDF, EPUB and Kindle. Book excerpt: "This Is Not A Love Scene rings brilliantly true from the first page to the last." —David Baldacci, #1 New York Times bestselling author Funny, emotional, and refreshingly honest, S.C. Megale’s This is Not a Love Scene is for anyone who can relate to feeling different while navigating the terrifying and thrilling waters of first love. Lights, camera—all Maeve needs is action. But at eighteen, a rare form of muscular dystrophy usually stands in the way of romance. She's got her friends, her humor, and a passion for filmmaking to keep her focus off consistent rejection...and the hot older guy starring in her senior film project. Tall, bearded, and always swaying, Cole Stone is everything Maeve can't be. And she likes it. Between takes, their chemistry is shockingly electric. Suddenly, Maeve gets a taste of typical teenage dating life, but girls in wheelchairs don’t get the hot guy—right? Cole’s attention challenges everything she once believed about her self-image and hopes for love. But figuring this out, both emotionally and physically, won't be easy for either of them. Maeve must choose between what she needs and what she wants, while Cole has a tendency to avoid decisions altogether. And the future might not wait for either.

Neuromuscular Disorders in Clinical Practice

Author : Bashar Katirji
Publisher : Springer Science & Business Media
ISBN 13 : 1461465672
Total Pages : 1565 pages
Book Rating : 4.4/5 (614 download)

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Book Synopsis Neuromuscular Disorders in Clinical Practice by : Bashar Katirji

Download or read book Neuromuscular Disorders in Clinical Practice written by Bashar Katirji and published by Springer Science & Business Media. This book was released on 2013-10-11 with total page 1565 pages. Available in PDF, EPUB and Kindle. Book excerpt: Comprehensive, thoroughly updated, and expanded, Neuromuscular Disorders in Clinical Practice, Second Edition encompasses all disorders of the peripheral nervous system, covering all aspects of neuromuscular diseases from diagnosis to treatment. Mirroring the first book, this two-volume edition is divided into two parts. Part one discusses the approach to neuromuscular disorders, covering principles and basics, neuromuscular investigations, and assessment and treatment of neurological disorders. Part two then addresses the complete range of specific neuromuscular diseases: neuronopathies, peripheral neuropathies, neuromuscular junction disorders, muscle ion channel disorders, myopathies, and miscellaneous neuromuscular disorders and syndromes. Neuromuscular Disorders in Clinical Practice, Second Edition is intended to serve as a comprehensive text for both novice and experienced practitioners. General neurologists as well as specialists in neuromuscular medicine and trainees in neuromuscular medicine, clinical neurophysiology and electromyography should find this book inclusive, comprehensive, practical and highly clinically focused. Additionally, specialists in physical medicine and rehabilitation, rheumatology, neurosurgery, and orthopedics will find the book of great value in their practice.