Risky Business Sharing Health Data While Protecting Privacy

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Risky Business: Sharing Health Data While Protecting Privacy

Author : Khaled El Emam
Publisher : Trafford Publishing
ISBN 13 : 1466980494
Total Pages : 253 pages
Book Rating : 4.4/5 (669 download)

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Book Synopsis Risky Business: Sharing Health Data While Protecting Privacy by : Khaled El Emam

Download or read book Risky Business: Sharing Health Data While Protecting Privacy written by Khaled El Emam and published by Trafford Publishing. This book was released on 2013-03-04 with total page 253 pages. Available in PDF, EPUB and Kindle. Book excerpt: Due to the digitization of medical records, more and more health data is readily available. This dynamic has created many opportunities to unlock this information and use it to improve medical practice, and through research and surveillance understand the effectiveness and side effects of drugs and medical devices to ultimately improve the public’s health. This data can also be used for commercial purposes such as sales and marketing. However, this newfound utility raises some profound questions about how this data ought to be used and how it will impact personal privacy. Unless we are able to address these privacy issues in a convincing and defensible way, there will be increased breaches of personal privacy. This will provoke regulators to impose new rules limiting the use and disclosure of health data for secondary purposes, patients increasingly to adopt privacy protective behaviours because they no longer trust how their health information is being managed, or healthcare providers to be reluctant to share their patients’ data. By adopting responsible data sharing practices, researchers, companies and the general public can gain the benefits and the promise of big data analytics without sacrificing personal privacy or infringing upon law or regulation. Risky Business – Sharing Health Data While Protecting Privacy illustrates how this goal can be achieved. Bringing articles from a diverse collection of health data experts to inform the reader on contemporary policy, legal and technical issues surrounding health information privacy and data sharing. It is a uniquely practical work to inform the reader on how best – and how not to – share health data in the US and Canada.

Guide to Big Data Applications

Author : S. Srinivasan
Publisher : Springer
ISBN 13 : 3319538179
Total Pages : 567 pages
Book Rating : 4.3/5 (195 download)

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Book Synopsis Guide to Big Data Applications by : S. Srinivasan

Download or read book Guide to Big Data Applications written by S. Srinivasan and published by Springer. This book was released on 2017-05-25 with total page 567 pages. Available in PDF, EPUB and Kindle. Book excerpt: This handbook brings together a variety of approaches to the uses of big data in multiple fields, primarily science, medicine, and business. This single resource features contributions from researchers around the world from a variety of fields, where they share their findings and experience. This book is intended to help spur further innovation in big data. The research is presented in a way that allows readers, regardless of their field of study, to learn from how applications have proven successful and how similar applications could be used in their own field. Contributions stem from researchers in fields such as physics, biology, energy, healthcare, and business. The contributors also discuss important topics such as fraud detection, privacy implications, legal perspectives, and ethical handling of big data.

OECD Health Policy Studies Health Data Governance Privacy, Monitoring and Research

Author : OECD
Publisher : OECD Publishing
ISBN 13 : 9264244565
Total Pages : 202 pages
Book Rating : 4.2/5 (642 download)

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Book Synopsis OECD Health Policy Studies Health Data Governance Privacy, Monitoring and Research by : OECD

Download or read book OECD Health Policy Studies Health Data Governance Privacy, Monitoring and Research written by OECD and published by OECD Publishing. This book was released on 2015-10-05 with total page 202 pages. Available in PDF, EPUB and Kindle. Book excerpt: This report identifies eight key data governance mechanisms to maximise benefits to patients and to societies from the collection, linkage and analysis of health data, and to minimise risks to both patient privacy and the security of health data.

Anonymizing Health Data

Author : Khaled El Emam
Publisher : "O'Reilly Media, Inc."
ISBN 13 : 1449363032
Total Pages : 252 pages
Book Rating : 4.4/5 (493 download)

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Book Synopsis Anonymizing Health Data by : Khaled El Emam

Download or read book Anonymizing Health Data written by Khaled El Emam and published by "O'Reilly Media, Inc.". This book was released on 2013-12-11 with total page 252 pages. Available in PDF, EPUB and Kindle. Book excerpt: Updated as of August 2014, this practical book will demonstrate proven methods for anonymizing health data to help your organization share meaningful datasets, without exposing patient identity. Leading experts Khaled El Emam and Luk Arbuckle walk you through a risk-based methodology, using case studies from their efforts to de-identify hundreds of datasets. Clinical data is valuable for research and other types of analytics, but making it anonymous without compromising data quality is tricky. This book demonstrates techniques for handling different data types, based on the authors’ experiences with a maternal-child registry, inpatient discharge abstracts, health insurance claims, electronic medical record databases, and the World Trade Center disaster registry, among others. Understand different methods for working with cross-sectional and longitudinal datasets Assess the risk of adversaries who attempt to re-identify patients in anonymized datasets Reduce the size and complexity of massive datasets without losing key information or jeopardizing privacy Use methods to anonymize unstructured free-form text data Minimize the risks inherent in geospatial data, without omitting critical location-based health information Look at ways to anonymize coding information in health data Learn the challenge of anonymously linking related datasets

Research Anthology on Privatizing and Securing Data

Author : Management Association, Information Resources
Publisher : IGI Global
ISBN 13 : 1799889556
Total Pages : 2188 pages
Book Rating : 4.7/5 (998 download)

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Book Synopsis Research Anthology on Privatizing and Securing Data by : Management Association, Information Resources

Download or read book Research Anthology on Privatizing and Securing Data written by Management Association, Information Resources and published by IGI Global. This book was released on 2021-04-23 with total page 2188 pages. Available in PDF, EPUB and Kindle. Book excerpt: With the immense amount of data that is now available online, security concerns have been an issue from the start, and have grown as new technologies are increasingly integrated in data collection, storage, and transmission. Online cyber threats, cyber terrorism, hacking, and other cybercrimes have begun to take advantage of this information that can be easily accessed if not properly handled. New privacy and security measures have been developed to address this cause for concern and have become an essential area of research within the past few years and into the foreseeable future. The ways in which data is secured and privatized should be discussed in terms of the technologies being used, the methods and models for security that have been developed, and the ways in which risks can be detected, analyzed, and mitigated. The Research Anthology on Privatizing and Securing Data reveals the latest tools and technologies for privatizing and securing data across different technologies and industries. It takes a deeper dive into both risk detection and mitigation, including an analysis of cybercrimes and cyber threats, along with a sharper focus on the technologies and methods being actively implemented and utilized to secure data online. Highlighted topics include information governance and privacy, cybersecurity, data protection, challenges in big data, security threats, and more. This book is essential for data analysts, cybersecurity professionals, data scientists, security analysts, IT specialists, practitioners, researchers, academicians, and students interested in the latest trends and technologies for privatizing and securing data.

Data-Driven Innovation Big Data for Growth and Well-Being

Author : OECD
Publisher : OECD Publishing
ISBN 13 : 9264229353
Total Pages : 456 pages
Book Rating : 4.2/5 (642 download)

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Book Synopsis Data-Driven Innovation Big Data for Growth and Well-Being by : OECD

Download or read book Data-Driven Innovation Big Data for Growth and Well-Being written by OECD and published by OECD Publishing. This book was released on 2015-10-06 with total page 456 pages. Available in PDF, EPUB and Kindle. Book excerpt: This report improves the evidence base on the role of Data Driven Innovation for promoting growth and well-being, and provide policy guidance on how to maximise the benefits of DDI and mitigate the associated economic and societal risks.

Our Bodies, Our Data

Author : Adam Tanner
Publisher : Beacon Press
ISBN 13 : 0807033359
Total Pages : 226 pages
Book Rating : 4.8/5 (7 download)

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Book Synopsis Our Bodies, Our Data by : Adam Tanner

Download or read book Our Bodies, Our Data written by Adam Tanner and published by Beacon Press. This book was released on 2017-01-10 with total page 226 pages. Available in PDF, EPUB and Kindle. Book excerpt: How the hidden trade in our sensitive medical information became a multibillion-dollar business, but has done little to improve our health-care outcomes Hidden to consumers, patient medical data has become a multibillion-dollar worldwide trade industry between our health-care providers, drug companies, and a complex web of middlemen. This great medical-data bazaar sells copies of the prescription you recently filled, your hospital records, insurance claims, blood-test results, and more, stripped of your name but possibly with identifiers such as year of birth, gender, and doctor. As computing grows ever more sophisticated, patient dossiers become increasingly vulnerable to reidentification and the possibility of being targeted by identity thieves or hackers. Paradoxically, comprehensive electronic files for patient treatment—the reason medical data exists in the first place—remain an elusive goal. Even today, patients or their doctors rarely have easy access to comprehensive records that could improve care. In the evolution of medical data, the instinct for profit has outstripped patient needs. This book tells the human, behind-the-scenes story of how such a system evolved internationally. It begins with New York advertising man Ludwig Wolfgang Frohlich, who founded IMS Health, the world’s dominant health-data miner, in the 1950s. IMS Health now gathers patient medical data from more than 45 billion transactions annually from 780,000 data feeds in more than 100 countries. Our Bodies, Our Data uncovers some of Frohlich’s hidden past and follows the story of what happened in the following decades. This is both a story about medicine and medical practice, and about big business and maximizing profits, and the places these meet, places most patients would like to believe are off-limits. Our Bodies, Our Data seeks to spark debate on how we can best balance the promise big data offers to advance medicine and improve lives while preserving the rights and interests of every patient. We, the public, deserve a say in this discussion. After all, it’s our data.

Health Professionals' Education in the Age of Clinical Information Systems, Mobile Computing and Social Networks

Author : Aviv Shachak
Publisher : Academic Press
ISBN 13 : 0128093218
Total Pages : 531 pages
Book Rating : 4.1/5 (28 download)

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Book Synopsis Health Professionals' Education in the Age of Clinical Information Systems, Mobile Computing and Social Networks by : Aviv Shachak

Download or read book Health Professionals' Education in the Age of Clinical Information Systems, Mobile Computing and Social Networks written by Aviv Shachak and published by Academic Press. This book was released on 2017-07-26 with total page 531 pages. Available in PDF, EPUB and Kindle. Book excerpt: Health Professionals' Education in the Age of Clinical Information Systems, Mobile Computing and Social Networks addresses the challenges posed by information and communication technology to health professionals’ education, and the lessons learned from field experiences and research. This book is divided in three parts: "the changing landscape of information and communication technology in health care", in which it discusses how information and communication technology is transforming health care and the implications of these changes for health professions education; "experiences from the field", with real-life examples of health professionals’ education in and for the digital era; and "evaluation of students and programs", addressing the use of technology to assess learners as well as the complexity of evaluating programs to enhance competence in an information technology-rich health care world Written by leading researchers from different parts of the world, the book is a valuable source for educators and professionals who are active or wish to be part of the health informatics field. Brings an in-depth understanding and background on the challenges for education of the health professions brought by information and communication technology Provides real-life examples on how technology is used in healthcare and how it can be used in education Presents valuable information in a visually appealing format with tables and figures

For the Record

Author : National Research Council
Publisher : National Academies Press
ISBN 13 : 0309056977
Total Pages : 287 pages
Book Rating : 4.3/5 (9 download)

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Book Synopsis For the Record by : National Research Council

Download or read book For the Record written by National Research Council and published by National Academies Press. This book was released on 1997-07-09 with total page 287 pages. Available in PDF, EPUB and Kindle. Book excerpt: When you visit the doctor, information about you may be recorded in an office computer. Your tests may be sent to a laboratory or consulting physician. Relevant information may be transmitted to your health insurer or pharmacy. Your data may be collected by the state government or by an organization that accredits health care or studies medical costs. By making information more readily available to those who need it, greater use of computerized health information can help improve the quality of health care and reduce its costs. Yet health care organizations must find ways to ensure that electronic health information is not improperly divulged. Patient privacy has been an issue since the oath of Hippocrates first called on physicians to "keep silence" on patient matters, and with highly sensitive dataâ€"genetic information, HIV test results, psychiatric recordsâ€"entering patient records, concerns over privacy and security are growing. For the Record responds to the health care industry's need for greater guidance in protecting health information that increasingly flows through the national information infrastructureâ€"from patient to provider, payer, analyst, employer, government agency, medical product manufacturer, and beyond. This book makes practical detailed recommendations for technical and organizational solutions and national-level initiatives. For the Record describes two major types of privacy and security concerns that stem from the availability of health information in electronic form: the increased potential for inappropriate release of information held by individual organizations (whether by those with access to computerized records or those who break into them) and systemic concerns derived from open and widespread sharing of data among various parties. The committee reports on the technological and organizational aspects of security management, including basic principles of security; the effectiveness of technologies for user authentication, access control, and encryption; obstacles and incentives in the adoption of new technologies; and mechanisms for training, monitoring, and enforcement. For the Record reviews the growing interest in electronic medical records; the increasing value of health information to providers, payers, researchers, and administrators; and the current legal and regulatory environment for protecting health data. This information is of immediate interest to policymakers, health policy researchers, patient advocates, professionals in health data management, and other stakeholders.

Beyond the HIPAA Privacy Rule

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309124999
Total Pages : 334 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis Beyond the HIPAA Privacy Rule by : Institute of Medicine

Download or read book Beyond the HIPAA Privacy Rule written by Institute of Medicine and published by National Academies Press. This book was released on 2009-03-24 with total page 334 pages. Available in PDF, EPUB and Kindle. Book excerpt: In the realm of health care, privacy protections are needed to preserve patients' dignity and prevent possible harms. Ten years ago, to address these concerns as well as set guidelines for ethical health research, Congress called for a set of federal standards now known as the HIPAA Privacy Rule. In its 2009 report, Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research, the Institute of Medicine's Committee on Health Research and the Privacy of Health Information concludes that the HIPAA Privacy Rule does not protect privacy as well as it should, and that it impedes important health research.

Privacy, Trust, and the Public's Comfort with Sharing Health Data with Third-party Commercial Companies

Author : Marie Grace Trinidad
Publisher :
ISBN 13 :
Total Pages : 224 pages
Book Rating : 4.6/5 (846 download)

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Book Synopsis Privacy, Trust, and the Public's Comfort with Sharing Health Data with Third-party Commercial Companies by : Marie Grace Trinidad

Download or read book Privacy, Trust, and the Public's Comfort with Sharing Health Data with Third-party Commercial Companies written by Marie Grace Trinidad and published by . This book was released on 2020 with total page 224 pages. Available in PDF, EPUB and Kindle. Book excerpt: Healthcare partnerships with third-party commercial companies have been met with reservations from the public about the privacy of health information and concerns about how this data is used. While research points to the need to provide patients greater control over the use of their data, or notification of data use, it is not yet clear how to move forward with this effort while balancing the needs of researchers for quality data sets. To better understand and characterize the public’s comfort with third-party commercial companies and perhaps manage and address the public’s concern, in this dissertation I examine the relationships between the public’s comfort with sharing health data with third-party commercial companies for patient and business purposes in relation to the public’s comfort with demographic characteristics, perceived healthcare access, trust in the health system and trust in providers, privacy concerns, and altruism. I also explore the effect of a past data breach and concern about recent data breach events, comfort with researchers, quality analysts, commercial companies, and law enforcement, confidence in existing health data laws, and desire for greater control over health data or notification of data use on the public’s comfort with sharing health data with third-party commercial companies. In this dissertation I present the results of a survey of the US public (n = 1841) to assess comfort with sharing health data with third-party commercial companies for patient or business purposes. Weighted Ordinary Least Squares (OLS) Regression analysis was used to first estimate the relationship between comfort with third-party commercial companies for patient and business purposes (dependent variables) and the aforementioned independent variables, followed by stepwise regression modeling to estimate a full model of contributing factors to the public’s comfort with sharing health data with third-party commercial companies. In the final analysis, variables that were significantly (p

Sharing Clinical Trial Data

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309316324
Total Pages : 236 pages
Book Rating : 4.3/5 (93 download)

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Book Synopsis Sharing Clinical Trial Data by : Institute of Medicine

Download or read book Sharing Clinical Trial Data written by Institute of Medicine and published by National Academies Press. This book was released on 2015-04-20 with total page 236 pages. Available in PDF, EPUB and Kindle. Book excerpt: Data sharing can accelerate new discoveries by avoiding duplicative trials, stimulating new ideas for research, and enabling the maximal scientific knowledge and benefits to be gained from the efforts of clinical trial participants and investigators. At the same time, sharing clinical trial data presents risks, burdens, and challenges. These include the need to protect the privacy and honor the consent of clinical trial participants; safeguard the legitimate economic interests of sponsors; and guard against invalid secondary analyses, which could undermine trust in clinical trials or otherwise harm public health. Sharing Clinical Trial Data presents activities and strategies for the responsible sharing of clinical trial data. With the goal of increasing scientific knowledge to lead to better therapies for patients, this book identifies guiding principles and makes recommendations to maximize the benefits and minimize risks. This report offers guidance on the types of clinical trial data available at different points in the process, the points in the process at which each type of data should be shared, methods for sharing data, what groups should have access to data, and future knowledge and infrastructure needs. Responsible sharing of clinical trial data will allow other investigators to replicate published findings and carry out additional analyses, strengthen the evidence base for regulatory and clinical decisions, and increase the scientific knowledge gained from investments by the funders of clinical trials. The recommendations of Sharing Clinical Trial Data will be useful both now and well into the future as improved sharing of data leads to a stronger evidence base for treatment. This book will be of interest to stakeholders across the spectrum of research-from funders, to researchers, to journals, to physicians, and ultimately, to patients.

Data Protection and Privacy in Healthcare

Author : Ahmed Elngar
Publisher : CRC Press
ISBN 13 : 9781003048848
Total Pages : 248 pages
Book Rating : 4.0/5 (488 download)

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Book Synopsis Data Protection and Privacy in Healthcare by : Ahmed Elngar

Download or read book Data Protection and Privacy in Healthcare written by Ahmed Elngar and published by CRC Press. This book was released on 2021 with total page 248 pages. Available in PDF, EPUB and Kindle. Book excerpt: "The Healthcare industry is one of the largest and rapidly developing industries. Over the last few years, healthcare management is changing from disease centered to patient centered. While on one side the analysis of healthcare data plays an important role in healthcare management, but on the other side the privacy of a patient's record must be of equal concern. This book uses a research-oriented approach and focuses on privacy-based healthcare tools and technologies. It offers details on privacy laws with real-life case studies and examples, and addresses privacy issues in newer technologies such as Cloud, Big Data, and IoT. It discusses the e-health system and preserving its privacy, and the use of wearable technologies for patient monitoring, data streaming and sharing, and use of data analysis to provide various health services. This book is written for research scholars, academicians working in healthcare and data privacy domains, as well as researchers involved with healthcare law, and those working at facilities in security and privacy domains. Students and industry professionals, as well as medical practitioners might also find this book of interest"--

Expanding Access to Research Data

Author : Panel on Data Access for Research Purposes
Publisher : National Academies Press
ISBN 13 : 9780309100120
Total Pages : 142 pages
Book Rating : 4.1/5 (1 download)

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Book Synopsis Expanding Access to Research Data by : Panel on Data Access for Research Purposes

Download or read book Expanding Access to Research Data written by Panel on Data Access for Research Purposes and published by National Academies Press. This book was released on 2005-11-11 with total page 142 pages. Available in PDF, EPUB and Kindle. Book excerpt: Policy makers need information about the nation—ranging from trends in the overall economy down to the use by individuals of Medicare—in order to evaluate existing programs and to develop new ones. This information often comes from research based on data about individual people, households, and businesses and other organizations, collected by statistical agencies. The benefit of increasing data accessibility to researchers and analysts is better informed public policy. To realize this benefit, a variety of modes for data access— including restricted access to confidential data and unrestricted access to appropriately altered public-use data—must be used. The risk of expanded access to potentially sensitive data is the increased probability of breaching the confidentiality of the data and, in turn, eroding public confidence in the data collection enterprise. Indeed, the statistical system of the United States ultimately depends on the willingness of the public to provide the information on which research data are based. Expanding Access to Research Data issues guidance on how to more fully exploit these tradeoffs. The panel’s recommendations focus on needs highlighted by legal, social, and technological changes that have occurred during the last decade.

Guide to Protecting the Confidentiality of Personally Identifiable Information

Author : Erika McCallister
Publisher : DIANE Publishing
ISBN 13 : 1437934889
Total Pages : 59 pages
Book Rating : 4.4/5 (379 download)

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Book Synopsis Guide to Protecting the Confidentiality of Personally Identifiable Information by : Erika McCallister

Download or read book Guide to Protecting the Confidentiality of Personally Identifiable Information written by Erika McCallister and published by DIANE Publishing. This book was released on 2010-09 with total page 59 pages. Available in PDF, EPUB and Kindle. Book excerpt: The escalation of security breaches involving personally identifiable information (PII) has contributed to the loss of millions of records over the past few years. Breaches involving PII are hazardous to both individuals and org. Individual harms may include identity theft, embarrassment, or blackmail. Organ. harms may include a loss of public trust, legal liability, or remediation costs. To protect the confidentiality of PII, org. should use a risk-based approach. This report provides guidelines for a risk-based approach to protecting the confidentiality of PII. The recommend. here are intended primarily for U.S. Fed. gov¿t. agencies and those who conduct business on behalf of the agencies, but other org. may find portions of the publication useful.

The EU General Data Protection Regulation (GDPR)

Author : Paul Voigt
Publisher : Springer
ISBN 13 : 3319579592
Total Pages : 385 pages
Book Rating : 4.3/5 (195 download)

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Book Synopsis The EU General Data Protection Regulation (GDPR) by : Paul Voigt

Download or read book The EU General Data Protection Regulation (GDPR) written by Paul Voigt and published by Springer. This book was released on 2017-08-07 with total page 385 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book provides expert advice on the practical implementation of the European Union’s General Data Protection Regulation (GDPR) and systematically analyses its various provisions. Examples, tables, a checklist etc. showcase the practical consequences of the new legislation. The handbook examines the GDPR’s scope of application, the organizational and material requirements for data protection, the rights of data subjects, the role of the Supervisory Authorities, enforcement and fines under the GDPR, and national particularities. In addition, it supplies a brief outlook on the legal consequences for seminal data processing areas, such as Cloud Computing, Big Data and the Internet of Things.Adopted in 2016, the General Data Protection Regulation will come into force in May 2018. It provides for numerous new and intensified data protection obligations, as well as a significant increase in fines (up to 20 million euros). As a result, not only companies located within the European Union will have to change their approach to data security; due to the GDPR’s broad, transnational scope of application, it will affect numerous companies worldwide.

Computers at Risk

Author : National Research Council
Publisher : National Academies Press
ISBN 13 : 0309043883
Total Pages : 320 pages
Book Rating : 4.3/5 (9 download)

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Book Synopsis Computers at Risk by : National Research Council

Download or read book Computers at Risk written by National Research Council and published by National Academies Press. This book was released on 1990-02-01 with total page 320 pages. Available in PDF, EPUB and Kindle. Book excerpt: Computers at Risk presents a comprehensive agenda for developing nationwide policies and practices for computer security. Specific recommendations are provided for industry and for government agencies engaged in computer security activities. The volume also outlines problems and opportunities in computer security research, recommends ways to improve the research infrastructure, and suggests topics for investigators. The book explores the diversity of the field, the need to engineer countermeasures based on speculation of what experts think computer attackers may do next, why the technology community has failed to respond to the need for enhanced security systems, how innovators could be encouraged to bring more options to the marketplace, and balancing the importance of security against the right of privacy.