Researching Quality Of Life Among Families Of Children With Autism Spectrum Disorder

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Researching Quality of Life Among Families of Children With Autism Spectrum Disorder

Author : Gardiner
Publisher :
ISBN 13 : 9781473997080
Total Pages : pages
Book Rating : 4.9/5 (97 download)

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Book Synopsis Researching Quality of Life Among Families of Children With Autism Spectrum Disorder by : Gardiner

Download or read book Researching Quality of Life Among Families of Children With Autism Spectrum Disorder written by Gardiner and published by . This book was released on 2017 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: This research methods case describes my dissertation research, which utilized a mixed-methods design to examine quality of life among families of children with autism spectrum disorder. A large group or participants completed surveys over the phone and online, and a smaller subset participated in follow-up interviews. The case presents an overview of the methodological challenges we confronted, including consideration of how best to engage diverse participants and choosing appropriate survey tools, given the unique needs of our population. We describe the strategies we employed to address these challenges and reflect on their effectiveness. In particular, we highlight a unique approach in which we hosted Knowledge Translation events that brought together individuals with autism spectrum disorder and their families with researchers, service providers, clinicians, and government representatives. These events proved critical across the research process, as they informed the original study design, served as a venue for participant recruitment, and inspired the inclusion of key questions within the interview guide. We also discuss methods of engaging hard-to-reach populations. The methodological implications of the study design and methodology are reviewed, and recommendations to future researchers are presented.

The Effects of Autism on the Family

Author : Eric Schopler
Publisher : Springer Science & Business Media
ISBN 13 : 1489922938
Total Pages : 367 pages
Book Rating : 4.4/5 (899 download)

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Book Synopsis The Effects of Autism on the Family by : Eric Schopler

Download or read book The Effects of Autism on the Family written by Eric Schopler and published by Springer Science & Business Media. This book was released on 2013-06-29 with total page 367 pages. Available in PDF, EPUB and Kindle. Book excerpt: As the oldest statewide program serving autistic people in the United States, North Carolina's Division TEACCH (Treatment and Education of Autistic and related Communication handicapped CHildren) has had a major impact on ser vices for these people and their families. As we move into our second decade, we are frequently questioned about all aspects of our procedures, techniques, and program. Of all the questions that are asked, however, the one that comes up most frequently and seems to set our program apart from others concerns the ways in which we work with families. To help answer this question we identified what we have found to be the major components in our parent-professional relationships, and we elaborate on these with the most current research informa tion, clinical insights, and community knowledge available through the expertise of our distinguished contributors. Our purpose was to collect the most recent information and to organize the resulting volume along the outlines of the par ent-professional relationship found most important in the TEACCH program. Thus, the four main sections of the book include these four major ways profes sionals work with parents: as their advocates, their trainers, their trainees, and their reciprocal emotional support source. To the extent this effort was success ful, we acknowledge that it is easier to organize book chapters along these dimensions than it is to provide their implementation in the field.

Factors Related to Quality of Life in Families of Children with Autism Spectrum Disorder

Author : Jessica R. Garrett
Publisher :
ISBN 13 :
Total Pages : 140 pages
Book Rating : 4.:/5 (915 download)

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Book Synopsis Factors Related to Quality of Life in Families of Children with Autism Spectrum Disorder by : Jessica R. Garrett

Download or read book Factors Related to Quality of Life in Families of Children with Autism Spectrum Disorder written by Jessica R. Garrett and published by . This book was released on 2014 with total page 140 pages. Available in PDF, EPUB and Kindle. Book excerpt: Additional research using instruments with better psychometric attributes for mastery, control, and stress might provide more information on parenting children with ASD and family quality of life.

Autism and the Family: Understanding and Supporting Parents and Siblings

Author : Kate E. Fiske
Publisher : W. W. Norton & Company
ISBN 13 : 0393710564
Total Pages : 275 pages
Book Rating : 4.3/5 (937 download)

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Book Synopsis Autism and the Family: Understanding and Supporting Parents and Siblings by : Kate E. Fiske

Download or read book Autism and the Family: Understanding and Supporting Parents and Siblings written by Kate E. Fiske and published by W. W. Norton & Company. This book was released on 2017-02-07 with total page 275 pages. Available in PDF, EPUB and Kindle. Book excerpt: Ready-to-implement resources and approaches for effective professional care in school and clinical settings. The reverberations of autism spectrum disorders among parents and siblings can be complex. Parents may grapple with the impact of their child's initial diagnosis, wrestle with the tension between their professional ambitions and family obligations, and labor to maintain a healthy union with their partners. Brothers and sisters may be given less attention, asked to assume a more adult role than they feel ready for, or strive for meaningful connection and communication with their sibling and parents. Although the energy of clinicians, teachers, and other professionals working with individuals with autism spectrum disorder is often focused intensively on the child who is diagnosed, the practitioner can also be an invaluable resource for the child's family. Drawing upon clinical research and firsthand family interviews, this book helps clinicians understand the experiences of parents and siblings of a child with ASD from the time of diagnosis through adulthood. It provides clear recommendations for sensitive, informed professional support. Step-by-step in each chapter, Fiske elucidates such vital subjects as: Understanding the experience of diagnosis Recognizing patterns of parent stress over time Appreciating and navigating the effects of ASD on relationships between parents Involving and providing support for siblings Integrating grandparents and other extended family in care and treatment Understanding a family's culture Identifying and developing effective coping strategies Building a strong rapport with parents and family Guiding parents in the treatment of autism And many more, including key takeaways for assisting families in managing feelings of grief and guilt, navigating support options, treatment resources, and related financial concerns, and calibrating the division of labor in the home. Autism and the Family supplies all the foundations necessary for professionals to understand the full impact of ASD on the child, siblings, and parents and cultivate an empathic, supportive approach to treatment for the entire family.

Emerging Programs for Autism Spectrum Disorder

Author : Neophytos Papaneophytou
Publisher : Academic Press
ISBN 13 : 0323859771
Total Pages : 592 pages
Book Rating : 4.3/5 (238 download)

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Book Synopsis Emerging Programs for Autism Spectrum Disorder by : Neophytos Papaneophytou

Download or read book Emerging Programs for Autism Spectrum Disorder written by Neophytos Papaneophytou and published by Academic Press. This book was released on 2021-06-10 with total page 592 pages. Available in PDF, EPUB and Kindle. Book excerpt: Emerging Programs for Autism Spectrum Disorder: Improving Communication, Behavior, and Family Dynamics brings forward a hybrid and a transdisciplinary methodology to identify methods used to diagnose, treat, and manage those with autism within personal and social constructs and values building exemplary international experiences from across the globe. Luminary experts offer their superb level of expertise through their research, experience, and clinical work. The book addresses all the aspects of care, lifespan, and lifestyle issues from treatment to living. It will emphasize issues related to neurodiversity, individuality, best practices, and support of people on the Autism Spectrum and their families. In addition, this book includes specific case studies, highlighting family experiences and the application of best practices by therapists thereof. Provides a multidisciplinary approach of the diagnosis, management and treatment of autism spectrum disorders Includes specific case studies highlighting family experiences Emphasizes issues related to neurodiversity, individuality and improving quality of life

Assessing Social Support and Stress in Autism-Focused Virtual Communities: Emerging Research and Opportunities

Author : Saha, Amit
Publisher : IGI Global
ISBN 13 : 1522540210
Total Pages : 141 pages
Book Rating : 4.5/5 (225 download)

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Book Synopsis Assessing Social Support and Stress in Autism-Focused Virtual Communities: Emerging Research and Opportunities by : Saha, Amit

Download or read book Assessing Social Support and Stress in Autism-Focused Virtual Communities: Emerging Research and Opportunities written by Saha, Amit and published by IGI Global. This book was released on 2018-05-18 with total page 141 pages. Available in PDF, EPUB and Kindle. Book excerpt: With the high prevalence of autism spectrum disorders among the younger generation, there is a shortage of adequate resources to deliver care for these individuals. Therefore, social media and online forums help create a sense of community and a sense of social network, where members provide support for each other. Assessing Social Support and Stress in Autism-Focused Virtual Communities: Emerging Research and Opportunities is a critical reference volume featuring the latest academic research on online communities and how using social media can provide stress relief for families and individuals diagnosed with an autism spectrum disorder. Including coverage among a variety of applicable viewpoints and subjects such as social media concepts, stress relief, and healthcare communities, this book is ideally designed for academics and practitioners as well as healthcare professionals, researchers, students, academics, and practitioners looking for innovative research on autism spectrum disorders.

Quality of Life in Families with Autistic Children

Author : Mary McPhail Gray
Publisher :
ISBN 13 :
Total Pages : 592 pages
Book Rating : 4.3/5 (129 download)

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Book Synopsis Quality of Life in Families with Autistic Children by : Mary McPhail Gray

Download or read book Quality of Life in Families with Autistic Children written by Mary McPhail Gray and published by . This book was released on 1980 with total page 592 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Hope for the Autism Spectrum

Author : Sally Kirk
Publisher : Jessica Kingsley Publishers
ISBN 13 : 1846428572
Total Pages : 433 pages
Book Rating : 4.8/5 (464 download)

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Book Synopsis Hope for the Autism Spectrum by : Sally Kirk

Download or read book Hope for the Autism Spectrum written by Sally Kirk and published by Jessica Kingsley Publishers. This book was released on 2008-10-15 with total page 433 pages. Available in PDF, EPUB and Kindle. Book excerpt: When Sally Kirk's son, Will, was diagnosed with an Autism Spectrum Disorder (ASD), she did everything she could to understand his condition and to find ways of improving his quality of life. In this book, Sally shares the story of her journey with Will and how her discovery of biomedical interventions significantly improved his behaviour and changed their lives for the better. Based on personal experience and extensive biomedical research, the book shows how important it is to understand both the child's mind and body, and explores how, when underlying physical problems are treated, brain function and troublesome behaviors often improve. It describes in depth the most common physical problems for those on the autism spectrum and the variety of treatments available such as minimizing exposure to heavy metals and toxins, alterations in diet, and use of vaccinations. This positive, practical book tells a personal story of hope and provides a wealth of essential information on biomedical interventions for parents of children on the autism spectrum. It will also be a useful resource for therapists, medical professionals and adults with autism-spectrum diagnoses.

Totally Lost

Author : John D. Richmond
Publisher : Page Publishing Inc
ISBN 13 : 164298258X
Total Pages : 119 pages
Book Rating : 4.6/5 (429 download)

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Book Synopsis Totally Lost by : John D. Richmond

Download or read book Totally Lost written by John D. Richmond and published by Page Publishing Inc. This book was released on 2022-11-03 with total page 119 pages. Available in PDF, EPUB and Kindle. Book excerpt: This is a book written as it was being lived. This is not a medical journal written as a result of research nor is it a memoire written years or decades in retrospect. These are our experiences with autism spectrum disorder and the trials and tribulations our family has been through, almost in real time. The reader is taken into our emotions: the happiness, sadness, terror, and endless love that our family has experienced since diagnosis. You will meet our son, diagnosed just after his fifth birthday, and the many others that have helped us along this journey. Including, a very special friend that has become a member of our family and completely inseparable. The reader is taken into our home and experiences some of the same coping mechanisms and techniques that we have utilized to make this condition livable and life a little easier. I give my unsolicited advice as to how to make it through some of the most challenging times of this condition. This book is a reference for families living with autism so that they know they are not alone in this struggle, there are ways to learn and cope with this condition, and there are many resources available to help them. Make no mistake, if someone you know is diagnosed with autism, the whole family lives it

Stress, Affective Symptoms and Marital Satisfaction in Parents of Children with Autism Spectrum Disorder

Author : Karim Hajhashemi
Publisher : GRIN Verlag
ISBN 13 : 3668128863
Total Pages : 15 pages
Book Rating : 4.6/5 (681 download)

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Book Synopsis Stress, Affective Symptoms and Marital Satisfaction in Parents of Children with Autism Spectrum Disorder by : Karim Hajhashemi

Download or read book Stress, Affective Symptoms and Marital Satisfaction in Parents of Children with Autism Spectrum Disorder written by Karim Hajhashemi and published by GRIN Verlag. This book was released on 2016-01-19 with total page 15 pages. Available in PDF, EPUB and Kindle. Book excerpt: Research Paper (postgraduate) from the year 2015 in the subject Psychology - Clinic and Health Psychology, Abnormal Psychology, James Cook University, language: English, abstract: Lovisotto, R., Caltabiano, N., & Hajhashemi, K. (2015). Parental stress, affective symptoms and marital satisfaction in parents of children with Autism Spectrum Disorder. International Journal of Humanities and Social Science, 5(10), 30-38. Parents of children with Autism Spectrum Disorder (ASD), a life-long developmental disorder, responded to an online survey considering their stress experience, affective symptoms and marital satisfaction. As these parents sourced different programs for their children, type of program was used to assign parents to different groups in order to consider their stress, affective symptoms and marital satisfaction. The type of programs parents used included the Applied Behaviour Analysis (n=15); Early Intervention Centre (n=13) and no formal program (n=16). Parents of children with ASD in the ABA group reported significantly lower parental stress scores, lower affective symptoms scores and higher marital satisfaction scores compared to the other two groups. These results are suggestive of the beneficial effect that an ABA program can have on the family unit.

Facing Autism

Author : Lynn M. Hamilton
Publisher : WaterBrook
ISBN 13 : 1578562627
Total Pages : 386 pages
Book Rating : 4.5/5 (785 download)

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Book Synopsis Facing Autism by : Lynn M. Hamilton

Download or read book Facing Autism written by Lynn M. Hamilton and published by WaterBrook. This book was released on 2000-03-14 with total page 386 pages. Available in PDF, EPUB and Kindle. Book excerpt: Don't Let Autism Have the Last Word in Your Child's Life. Perhaps one of the most devastating things you can learn as a parent is that your child has been diagnosed with autism. A multifaceted disorder, autism has long baffled parents and professionals alike. At one time, doctors gave parents virtually no hope for combating the disorder. But in recent years, new treatments and therapies have demonstrated that improvement is possible. With intensive, early intervention, some children have recovered from autism and have been integrated into school, indistinguishable from their peers. Discover ten things you can do to begin battling your child's autism right now. See why Applied Behavior Analysis has become parents' treatment of choice, and examine its impressive results. Get information on cutting-edge biomedical treatments such as secretin and immunotherapy. Learn how dietary intervention can positively impact your child's behavior. Find out what additional therapies can offer - including sensory and auditory integration. Explore loving ways to keep your family together when your world is torn apart. Children with autism do have the possibility to improve greatly, and some even overcome the effects of autism, if appropriate therapies are begun early enough. Discover the steps you can take today to begin the fight for your child's future in Facing Autism.

A Friend's and Relative's Guide to Supporting the Family with Autism

Author : Ann Palmer
Publisher : Jessica Kingsley Publishers
ISBN 13 : 1849058776
Total Pages : 226 pages
Book Rating : 4.8/5 (49 download)

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Book Synopsis A Friend's and Relative's Guide to Supporting the Family with Autism by : Ann Palmer

Download or read book A Friend's and Relative's Guide to Supporting the Family with Autism written by Ann Palmer and published by Jessica Kingsley Publishers. This book was released on 2012 with total page 226 pages. Available in PDF, EPUB and Kindle. Book excerpt: A guide for the family of autistic children discusses the feelings that family members are likely to experience after a child is diagnosed as well as changes that will take place in a household, and covers the condition's characteristics.

Quality of Life in Families of Children with Autism Spectrum Disorder

Author : Emily Claire Gardiner
Publisher :
ISBN 13 :
Total Pages : 180 pages
Book Rating : 4.:/5 (112 download)

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Book Synopsis Quality of Life in Families of Children with Autism Spectrum Disorder by : Emily Claire Gardiner

Download or read book Quality of Life in Families of Children with Autism Spectrum Disorder written by Emily Claire Gardiner and published by . This book was released on 2014 with total page 180 pages. Available in PDF, EPUB and Kindle. Book excerpt: Having a family member with a neurodevelopmental disorder (NDD) has significant implications for family functioning. Overall, research findings demonstrate that families of children with NDDs are less satisfied with their quality of life (QOL), across domains, than families of typically developing children, and that families of children with Autism Spectrum Disorder (ASD) are even less so. Although families of children with ASD are significantly at-risk, most research has included families of children with varied conditions, and has not examined predictors of family quality of life (FQOL) within specific NDD populations. This research gap, along with rising ASD awareness and prevalence, provides a strong rationale for devoting attention to this group specifically, and addressing the limitations that exist within this work. This research utilized a mixed-methods design to examine QOL among 84 families of children and adolescents (aged 6-18 years) with ASD living in British Columbia, and addressed three aims. First, the role of child characteristics, including adaptive functioning and behaviour problems, was examined in relation to FQOL. Adaptive functioning, and specifically daily living skills, emerged as a significant predictor of FQOL satisfaction, after accounting for behavioural and demographic characteristics, including child age, gender, perceived disability severity, and behavioural problems, as well as family income. Furthermore, there were significant differences across each domain of FQOL when groups were separated by daily living skill functioning level ('low,' 'moderately low,' and 'adequate'). Second, the relation between endorsed family resilience processes, based on Walsh's (2006, 2012) model, and FQOL satisfaction was examined. This revealed that greater endorsement of the 'family connectedness' and 'family communication and problem solving' processes significantly predicted FQOL when child and family demographic characteristics were accounted for. Finally, a subset (n = 15) of caregivers, representing both high and low levels of FQOL satisfaction, participated in a qualitative interview, during which they shared their perceptions of FQOL, both generally and in relation to specific topics, elaborated on service delivery experiences, and reflected on sources of family resilience. The findings are discussed in light of previous research, and the associated practice implications, as well as opportunities for future research, are highlighted.

Burden of Care and Health-related Quality of Life Among Caregivers of Children with Autism Spectrum Disorder

Author : Rahul Khanna
Publisher :
ISBN 13 :
Total Pages : pages
Book Rating : 4.:/5 (635 download)

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Book Synopsis Burden of Care and Health-related Quality of Life Among Caregivers of Children with Autism Spectrum Disorder by : Rahul Khanna

Download or read book Burden of Care and Health-related Quality of Life Among Caregivers of Children with Autism Spectrum Disorder written by Rahul Khanna and published by . This book was released on 2010 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt:

Resources and Quality of Life in Caregivers of Children with Autism Spectrum Disorder

Author : Tiana C Cypher
Publisher :
ISBN 13 :
Total Pages : 0 pages
Book Rating : 4.:/5 (134 download)

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Book Synopsis Resources and Quality of Life in Caregivers of Children with Autism Spectrum Disorder by : Tiana C Cypher

Download or read book Resources and Quality of Life in Caregivers of Children with Autism Spectrum Disorder written by Tiana C Cypher and published by . This book was released on 2022 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Participants were 23 caregivers of children between the ages of four to twenty-two years old who are diagnosed with autism spectrum disorder and attend the Autism Society of North Carolina (ASNC) Social Recreation program in Winterville, Wilmington, and Newport. The present study evaluated the quality of life in parents of children with autism spectrum disorder, as well as the utilization and availability of resources for their child and the family. Data was collected using an online Qualtrics survey sent out to families by email. The survey consisted of questions regarding demographics, questions from the Questionnaire for Each Treatment regarding the treatments their child with autism receives, and questions from the Family Quality of Life Scale by the Beach Center on Disability. Overall results revealed that parenting is the most satisfying domain of quality of life, and disability related support was the least satisfactory for the parents. Results suggest that families with disability need to identify and enroll their children in early intervention programs and recreation program that help with children's development. The government and school programs should also strive to offer educative sessions for parents and families with children with autism to enhance their contribution outside of school hours.

The Quality of Life of Parents with a Child Diagnosed with an Autism Spectrum Disorder

Author : Julissa Cabellero
Publisher :
ISBN 13 :
Total Pages : 53 pages
Book Rating : 4.:/5 (895 download)

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Book Synopsis The Quality of Life of Parents with a Child Diagnosed with an Autism Spectrum Disorder by : Julissa Cabellero

Download or read book The Quality of Life of Parents with a Child Diagnosed with an Autism Spectrum Disorder written by Julissa Cabellero and published by . This book was released on 2014 with total page 53 pages. Available in PDF, EPUB and Kindle. Book excerpt: The present study defined the stressors that the participants, who are parents of children who have been diagnosed with an autism spectrum disorder (ASD), experience in their day to day life, identified the participants' descriptions of their quality of life (QoL), defined main areas where resources are lacking, and examined the recommendations that the participants had for other parents of children who have been diagnosed with an ASD and social workers working with ASD families. The present study's findings provide that the participants identified themes that define their major stressors as their children's school system, lacking resources in the community and among their own family, financial implications of their child's diagnosis, parents' reactions to their diagnosed child's behavior, impact of having a child diagnosed with an ASD on family dynamics and worrying over their diagnosed child's future. The need of the participants that emerged in the present study were the need for the following: available resources, reconstruction of their child's education system, and financial assistance. The present study found that the participants' recommendations for other parents and social workers working with ASD families were that service providers need better ASD knowledge and that easy access to available resources must be created.

Family Predictors of Quality of Life and Child Problem Behavior in Families of Young Children with Autism Spectrum Disorders

Author : Samara Pulver Tetenbaum
Publisher :
ISBN 13 :
Total Pages : pages
Book Rating : 4.:/5 (841 download)

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Book Synopsis Family Predictors of Quality of Life and Child Problem Behavior in Families of Young Children with Autism Spectrum Disorders by : Samara Pulver Tetenbaum

Download or read book Family Predictors of Quality of Life and Child Problem Behavior in Families of Young Children with Autism Spectrum Disorders written by Samara Pulver Tetenbaum and published by . This book was released on 2010 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: