Providing End Of Life Care

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Fragility Fracture Nursing

Author : Karen Hertz
Publisher : Springer
ISBN 13 : 3319766813
Total Pages : 169 pages
Book Rating : 4.3/5 (197 download)

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Book Synopsis Fragility Fracture Nursing by : Karen Hertz

Download or read book Fragility Fracture Nursing written by Karen Hertz and published by Springer. This book was released on 2018-06-15 with total page 169 pages. Available in PDF, EPUB and Kindle. Book excerpt: This open access book aims to provide a comprehensive but practical overview of the knowledge required for the assessment and management of the older adult with or at risk of fragility fracture. It considers this from the perspectives of all of the settings in which this group of patients receive nursing care. Globally, a fragility fracture is estimated to occur every 3 seconds. This amounts to 25 000 fractures per day or 9 million per year. The financial costs are reported to be: 32 billion EUR per year in Europe and 20 billon USD in the United States. As the population of China ages, the cost of hip fracture care there is likely to reach 1.25 billion USD by 2020 and 265 billion by 2050 (International Osteoporosis Foundation 2016). Consequently, the need for nursing for patients with fragility fracture across the world is immense. Fragility fracture is one of the foremost challenges for health care providers, and the impact of each one of those expected 9 million hip fractures is significant pain, disability, reduced quality of life, loss of independence and decreased life expectancy. There is a need for coordinated, multi-disciplinary models of care for secondary fracture prevention based on the increasing evidence that such models make a difference. There is also a need to promote and facilitate high quality, evidence-based effective care to those who suffer a fragility fracture with a focus on the best outcomes for recovery, rehabilitation and secondary prevention of further fracture. The care community has to understand better the experience of fragility fracture from the perspective of the patient so that direct improvements in care can be based on the perspectives of the users. This book supports these needs by providing a comprehensive approach to nursing practice in fragility fracture care.

Dying in America

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309303133
Total Pages : 470 pages
Book Rating : 4.3/5 (93 download)

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Book Synopsis Dying in America by : Institute of Medicine

Download or read book Dying in America written by Institute of Medicine and published by National Academies Press. This book was released on 2015-03-19 with total page 470 pages. Available in PDF, EPUB and Kindle. Book excerpt: For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.

Approaching Death

Author : Committee on Care at the End of Life
Publisher : National Academies Press
ISBN 13 : 0309518253
Total Pages : 457 pages
Book Rating : 4.3/5 (95 download)

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Book Synopsis Approaching Death by : Committee on Care at the End of Life

Download or read book Approaching Death written by Committee on Care at the End of Life and published by National Academies Press. This book was released on 1997-10-30 with total page 457 pages. Available in PDF, EPUB and Kindle. Book excerpt: When the end of life makes its inevitable appearance, people should be able to expect reliable, humane, and effective caregiving. Yet too many dying people suffer unnecessarily. While an "overtreated" dying is feared, untreated pain or emotional abandonment are equally frightening. Approaching Death reflects a wide-ranging effort to understand what we know about care at the end of life, what we have yet to learn, and what we know but do not adequately apply. It seeks to build understanding of what constitutes good care for the dying and offers recommendations to decisionmakers that address specific barriers to achieving good care. This volume offers a profile of when, where, and how Americans die. It examines the dimensions of caring at the end of life: Determining diagnosis and prognosis and communicating these to patient and family. Establishing clinical and personal goals. Matching physical, psychological, spiritual, and practical care strategies to the patient's values and circumstances. Approaching Death considers the dying experience in hospitals, nursing homes, and other settings and the role of interdisciplinary teams and managed care. It offers perspectives on quality measurement and improvement, the role of practice guidelines, cost concerns, and legal issues such as assisted suicide. The book proposes how health professionals can become better prepared to care well for those who are dying and to understand that these are not patients for whom "nothing can be done."

Textbook of Palliative Care

Author : Roderick Duncan MacLeod
Publisher : Springer
ISBN 13 : 9783031489907
Total Pages : 0 pages
Book Rating : 4.4/5 (899 download)

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Book Synopsis Textbook of Palliative Care by : Roderick Duncan MacLeod

Download or read book Textbook of Palliative Care written by Roderick Duncan MacLeod and published by Springer. This book was released on 2025-05-29 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: This second edition provides the most up-to-date information on all aspects of palliative care including recent developments (including COVID-19), global policies, service provision, symptom management, professional aspects, organization of services, palliative care for specific populations, palliative care emergencies, ethical issues in palliative care, research in palliative care, public health approaches and financial aspects of care. This new Textbook of Palliative Care remains a unique, comprehensive, clinically relevant and state-of-the art book, aimed at advancing palliative care as a science, a clinical practice and as an art. Palliative care has been part of healthcare for over fifty years but we still needs to be explained. Healthcare education and training has been slow to recognize the vital importance of ensuring that all practitioners have a good understanding of what is involved in the care of people with serious or advanced illnesses and theirfamilies. However, the science of palliative care is advancing and this new edition will contribute to a better understanding of this specialty. This new edition offers 20 new chapters out of over 120, written by experts in their given fields provide up-to-date information on a wide range of topics of relevance to those providing care towards the end of life no matter what the disease may be. We present a global perspective on contemporary and classic issues in palliative care with authors from a wide range of disciplines involved in this essential aspect of care. The Textbook includes sections addressing aspects such as symptom management and care provision, organization of care in different settings, care in specific disease groups, palliative care emergencies, ethics, public health approaches and research in palliative care. This new Textbook will be of value to practitioners in all disciplines and professions where the care of people approaching death is important, specialists as well as non-specialists, in any setting where people with serious advanced illnesses are residing. It is also an important resource for researchers, policy-and decision-makers at national or regional levels. Neither the science nor the art of palliative care will stand still so the Editors and contributors from all over the world aim to keep this Textbook updated so that the reader can find new evidence and approaches to care.

Dying Well

Author : Ira Byock
Publisher : Penguin
ISBN 13 : 110150028X
Total Pages : 321 pages
Book Rating : 4.1/5 (15 download)

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Book Synopsis Dying Well by : Ira Byock

Download or read book Dying Well written by Ira Byock and published by Penguin. This book was released on 1998-03-01 with total page 321 pages. Available in PDF, EPUB and Kindle. Book excerpt: From Ira Byock, prominent palliative care physician and expert in end of life decisions, a lesson in Dying Well. Nobody should have to die in pain. Nobody should have to die alone. This is Ira Byock's dream, and he is dedicating his life to making it come true. Dying Well brings us to the homes and bedsides of families with whom Dr. Byock has worked, telling stories of love and reconciliation in the face of tragedy, pain, medical drama, and conflict. Through the true stories of patients, he shows us that a lot of important emotional work can be accomplished in the final months, weeks, and even days of life. It is a companion for families, showing them how to deal with doctors, how to talk to loved ones—and how to make the end of life as meaningful and enriching as the beginning. Ira Byock is also the author of The Best Care Possible: A Physician's Quest to Transform Care Through the End of Life.

Improving Palliative Care for Cancer

Author : National Research Council
Publisher : National Academies Press
ISBN 13 : 0309074029
Total Pages : 344 pages
Book Rating : 4.3/5 (9 download)

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Book Synopsis Improving Palliative Care for Cancer by : National Research Council

Download or read book Improving Palliative Care for Cancer written by National Research Council and published by National Academies Press. This book was released on 2001-10-19 with total page 344 pages. Available in PDF, EPUB and Kindle. Book excerpt: In our society's aggressive pursuit of cures for cancer, we have neglected symptom control and comfort care. Less than one percent of the National Cancer Institute's budget is spent on any aspect of palliative care research or education, despite the half million people who die of cancer each year and the larger number living with cancer and its symptoms. Improving Palliative Care for Cancer examines the barriersâ€"scientific, policy, and socialâ€"that keep those in need from getting good palliative care. It goes on to recommend public- and private-sector actions that would lead to the development of more effective palliative interventions; better information about currently used interventions; and greater knowledge about, and access to, palliative care for all those with cancer who would benefit from it.

The Four Things That Matter Most - 10th Anniversary Edition

Author : Ira Byock
Publisher : Simon and Schuster
ISBN 13 : 0743258606
Total Pages : 237 pages
Book Rating : 4.7/5 (432 download)

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Book Synopsis The Four Things That Matter Most - 10th Anniversary Edition by : Ira Byock

Download or read book The Four Things That Matter Most - 10th Anniversary Edition written by Ira Byock and published by Simon and Schuster. This book was released on 2004-03-08 with total page 237 pages. Available in PDF, EPUB and Kindle. Book excerpt: “This beautiful book, full of wisdom and warmth, teaches us how to protect and preserve our most valuable possessions—the relationships with those we love. It shows that the things that matter definitely aren’t ‘things,’ and how to empower your life in the right direction.” —Dr. Stephen R. Covey, author of The 7 Habits of Highly Effective People Four simple phrases—“Please forgive me,” “I forgive you,” “Thank you,” and “I love you”—carry enormous power to mend and nurture our relationships and inner lives. These four phrases and the sentiments they convey provide a path to emotional wellbeing, guiding us through interpersonal difficulties to life with integrity and grace. Newly updated with stories from people who have turned to this life-altering book in their time of need, this motivational teaching about what really matters reminds us how we can honor each relationship every day. Dr. Ira Byock, an international leader in palliative care, explains how we can practice these life-affirming words in our day-to-day lives. Too often we assume that the people we love really know that we love them. Dr. Byock demonstrates the value of “stating the obvious” and provides practical insights into the benefits of letting go of old grudges and toxic emotions. His stories help us to forgive, appreciate, love, and celebrate one another and live life more fully. Using the Four Things in a wide range of life situations, we can experience emotional healing even in the wake of family strife, personal tragedy, divorce, or in the face of death. With practical wisdom and spiritual power, The Four Things That Matter Most gives us the language and guidance to honor and experience what really matters most in our lives every day.

Care of the Dying Patient

Author : David A. Fleming
Publisher : University of Missouri Press
ISBN 13 : 0826272215
Total Pages : 172 pages
Book Rating : 4.8/5 (262 download)

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Book Synopsis Care of the Dying Patient by : David A. Fleming

Download or read book Care of the Dying Patient written by David A. Fleming and published by University of Missouri Press. This book was released on 2010-04-15 with total page 172 pages. Available in PDF, EPUB and Kindle. Book excerpt: Although the need for improved care for dying patients is widely recognized and frequently discussed, few books address the needs of the physicians, nurses, social workers, therapists, hospice team members, and pastoral counselors involved in care. Care of the Dying Patient contains material not found in other sources, offering advice and solutions to anyone—professional caregiver or family member—confronted with incurable illness and death. Its authors have lectured and published extensively on care of the dying patient and here review a wide range of topics to show that relief of physical suffering is not the only concern in providing care. This collection encompasses diverse aspects of end-of-life care across multiple disciplines, offering a broad perspective on such central issues as control of pain and other symptoms, spirituality, the needs of caregivers, and special concerns regarding the elderly. In its pages, readers will find out how to: effectively utilize palliative-care services and activate timely referral to hospice, arrange for care that takes into account patients’ cultural beliefs, and respond to spiritual and psychological distress, including the loss of hope that often overshadows physical suffering. The authors especially emphasize palliative care and hospice, since some physicians fear that such referrals may be viewed by patients and families as abandonment. They also address ethical and legal risks in pain management and warn that fear of overprescribing pain medication may inadvertently lead to ineffective pain relief and even place the treating team at risk of liability for undertreatment of pain. While physicians have the ability to treat disease, they also help to determine the time and place of death, and they must recognize that end-of-life choices are made more complex than ever before by advances in medicine and at the same time increasingly important. Care of the Dying Patient addresses some of the challenges frequently confronted in terminal care and points the way toward a more compassionate way of death.

Cancer Pain Management in Developing Countries

Author : Sushma Bhatnagar
Publisher : Lippincott Williams & Wilkins
ISBN 13 : 1975103106
Total Pages : 241 pages
Book Rating : 4.9/5 (751 download)

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Book Synopsis Cancer Pain Management in Developing Countries by : Sushma Bhatnagar

Download or read book Cancer Pain Management in Developing Countries written by Sushma Bhatnagar and published by Lippincott Williams & Wilkins. This book was released on 2018-06-29 with total page 241 pages. Available in PDF, EPUB and Kindle. Book excerpt: Publisher's Note: Products purchased from 3rd Party sellers are not guaranteed by the Publisher for quality, authenticity, or access to any online entitlements included with the product. A Comprehensive Handbook of Cancer Pain Management in Developing Countries Written by an international panel of expert pain physicians, A Comprehensive Handbook of Cancer Pain Management in Developing Countries addresses this challenging and vital topic with reference to the latest body of evidence relating to cancer pain. It thoroughly covers pain management in the developing world, explaining the benefit of psychological, interventional, and complementary therapies in cancer pain management, as well as the importance of identifying and overcoming regulatory and educational barriers.

Fast Facts for the Hospice Nurse

Author : Patricia Moyle Wright, PhD, MBA, MSN, CRNP, ACNS-BC, CHPN, CNE, FPCN
Publisher : Springer Publishing Company
ISBN 13 : 0826131999
Total Pages : 209 pages
Book Rating : 4.8/5 (261 download)

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Book Synopsis Fast Facts for the Hospice Nurse by : Patricia Moyle Wright, PhD, MBA, MSN, CRNP, ACNS-BC, CHPN, CNE, FPCN

Download or read book Fast Facts for the Hospice Nurse written by Patricia Moyle Wright, PhD, MBA, MSN, CRNP, ACNS-BC, CHPN, CNE, FPCN and published by Springer Publishing Company. This book was released on 2017-01-28 with total page 209 pages. Available in PDF, EPUB and Kindle. Book excerpt: An on-the-go reference for hospice nurses and those interested in end-of-life care, this practical guide covers the essential elements in the compassionate and holistic care of terminally ill patients and their families. Nurses care for patients facing end-of-life issues in every practice specialty and, as the U.S. population continues to age, the need for proficiency in end-of-life skills will become increasingly important. Fast Facts for the Hospice Nurse: A Concise Guide to End-of-Life Care is an invaluable resource that provides emotional, administrative, and palliative support, whether in a hospice, long-term care facility, or acute care setting. This vital go-to text clearly and concisely lays out not only how to care for patients facing end-of-life issues, but also how to engage in self-care and cope with occupational stress. Beginning with an overview of hospice care, including its history and philosophy, this book offers a timeline of the growth of the hospice movement in the United States. Subsequent sections include up-to-date information on the clinical responsibilities of the hospice nurse in addressing the physical, psychological, and spiritual needs of terminally ill patients and their families in a culturally sensitive way. This book also outlines the administrative duties of the hospice nurse, including hospice documentation, a review of hospice regulations, and quality management. The closing section focuses on occupational stress in hospice nursing and how to engage in self-care. This text can serve as a useful clinical resource and also as a reference for nurses seeking hospice certification from the Hospice and Palliative Credentialing Center. Key Features Organized within the context of the scope and standards of practice of the Hospice and Palliative Nurses Association. Addresses key points about issues unique to hospice nursing and highlights evidence-based interventions Addresses important Medicare regulations and reimbursement Offers numerous clinical resources to assist with hospice nursing practice Serves as a concise study resource for hospice nursing certification

Contemporary Bioethics

Author : Mohammed Ali Al-Bar
Publisher : Springer
ISBN 13 : 3319184288
Total Pages : 273 pages
Book Rating : 4.3/5 (191 download)

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Book Synopsis Contemporary Bioethics by : Mohammed Ali Al-Bar

Download or read book Contemporary Bioethics written by Mohammed Ali Al-Bar and published by Springer. This book was released on 2015-05-27 with total page 273 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book discusses the common principles of morality and ethics derived from divinely endowed intuitive reason through the creation of al-fitr' a (nature) and human intellect (al-‘aql). Biomedical topics are presented and ethical issues related to topics such as genetic testing, assisted reproduction and organ transplantation are discussed. Whereas these natural sources are God’s special gifts to human beings, God’s revelation as given to the prophets is the supernatural source of divine guidance through which human communities have been guided at all times through history. The second part of the book concentrates on the objectives of Islamic religious practice – the maqa' sid – which include: Preservation of Faith, Preservation of Life, Preservation of Mind (intellect and reason), Preservation of Progeny (al-nasl) and Preservation of Property. Lastly, the third part of the book discusses selected topical issues, including abortion, assisted reproduction devices, genetics, organ transplantation, brain death and end-of-life aspects. For each topic, the current medical evidence is followed by a detailed discussion of the ethical issues involved.

The Helping Professional's Guide to End-of-Life Care

Author : E. Alessandra Strada
Publisher : New Harbinger Publications
ISBN 13 : 160882201X
Total Pages : 400 pages
Book Rating : 4.6/5 (88 download)

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Book Synopsis The Helping Professional's Guide to End-of-Life Care by : E. Alessandra Strada

Download or read book The Helping Professional's Guide to End-of-Life Care written by E. Alessandra Strada and published by New Harbinger Publications. This book was released on 2013-01-02 with total page 400 pages. Available in PDF, EPUB and Kindle. Book excerpt: Nearly half of people at the end of life will receive hospice care, but few psychologists, nurses, physicians, chaplains, and hospice workers have been trained specifically to recognize and address the psychological, social, and emotional issues that may arise in patients who are dying. Patients in the midst of advanced terminal illness may experience a variety of distressing emotions, and may feel anxious, frightened, regretful, or desperate. This guide was created specifically to guide helping professionals of all kinds through the process of working through patients’ psychological issues to allow them peace and comfort in their final moments. The Helping Professional’s Guide to End-of-Life Care clarifies the spiritual and emotional care that patients need and presents an evidence-based approach integrating cognitive behavioral therapy (CBT), transpersonal psychotherapy, hypnosis, mindfulness, and guided imagery to help patients manage emotional distress at the end of life. Through case conceptualizations and detailed treatment planning guidance, readers learn to formulate comprehensive assessment and treatment plans for patients and gain skills that will help them manage the emotional intensity of this work. This secular, professional treatment model can be applied to patients of any religious or spiritual background. The book also addresses integrating the patient’s therapeutic team with the medical team, addressing the emotional needs of friends and family of the dying, crisis intervention for suicidal patients, working with clients on psychotropic medications, and how helping professionals can manage their own emotions to become more effective clinicians.

Pediatric Palliative Care

Author : Betty Ferrell
Publisher :
ISBN 13 : 0190244186
Total Pages : 161 pages
Book Rating : 4.1/5 (92 download)

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Book Synopsis Pediatric Palliative Care by : Betty Ferrell

Download or read book Pediatric Palliative Care written by Betty Ferrell and published by . This book was released on 2016 with total page 161 pages. Available in PDF, EPUB and Kindle. Book excerpt: Pediatric palliative care is a field of significant growth as health care systems recognize the benefits of palliative care in areas such as neonatal intensive care, pediatric ICU, and chronic pediatric illnesses. Pediatric Palliative Care, the fourth volume in the HPNA Palliative Nursing Manuals series, highlights key issues related to the field. Chapters address pediatric hospice, symptom management, pediatric pain, the neonatal intensive care unit, transitioning goals of care between the emergency department and intensive care unit, and grief and bereavement in pediatric palliative care. The content of the concise, clinically focused volumes in the HPNA Palliative Nursing Manuals series is one resource for nurses preparing for specialty certification exams and provides a quick-reference in daily practice. Plentiful tables and patient teaching points make these volumes useful resources for nurses.

Oxford Textbook of Palliative Medicine

Author : Nathan I. Cherny
Publisher : Oxford University Press, USA
ISBN 13 : 0199656096
Total Pages : 1281 pages
Book Rating : 4.1/5 (996 download)

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Book Synopsis Oxford Textbook of Palliative Medicine by : Nathan I. Cherny

Download or read book Oxford Textbook of Palliative Medicine written by Nathan I. Cherny and published by Oxford University Press, USA. This book was released on 2015 with total page 1281 pages. Available in PDF, EPUB and Kindle. Book excerpt: Emphasising the multi-disciplinary nature of palliative care the fourth edition of this text also looks at the individual professional roles that contribute to the best-quality palliative care.

Dignity Therapy

Author : Harvey Max Chochinov
Publisher : OUP USA
ISBN 13 : 0195176219
Total Pages : 216 pages
Book Rating : 4.1/5 (951 download)

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Book Synopsis Dignity Therapy by : Harvey Max Chochinov

Download or read book Dignity Therapy written by Harvey Max Chochinov and published by OUP USA. This book was released on 2012-01-04 with total page 216 pages. Available in PDF, EPUB and Kindle. Book excerpt: Maintaining dignity for patients approaching death is a core principle of palliative care. Dignity therapy, a psychological intervention developed by Dr. Harvey Max Chochinov and his internationally lauded research group, has been designed specifically to address many of the psychological, existential, and spiritual challenges that patients and their families face as they grapple with the reality of life drawing to a close. In the first book to lay out the blueprint for this unique and meaningful intervention, Chochinov addresses one of the most important dimensions of being human. Being alive means being vulnerable and mortal; he argues that dignity therapy offers a way to preserve meaning and hope for patients approaching death. With history and foundations of dignity in care, and step by step guidance for readers interested in implementing the program, this volume illuminates how dignity therapy can change end-of-life experience for those about to die - and for those who will grieve their passing.

Palliative Care in Oncology

Author : Bernd Alt-Epping
Publisher : Springer
ISBN 13 : 3662462028
Total Pages : 302 pages
Book Rating : 4.6/5 (624 download)

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Book Synopsis Palliative Care in Oncology by : Bernd Alt-Epping

Download or read book Palliative Care in Oncology written by Bernd Alt-Epping and published by Springer. This book was released on 2015-03-26 with total page 302 pages. Available in PDF, EPUB and Kindle. Book excerpt: Palliative care provides comprehensive support for severely affected patients with any life-limiting or life-threatening diagnosis. To do this effectively, it requires a disease-specific approach as the patients’ needs and clinical context will vary depending on the underlying diagnosis. Experts in the field of palliative care and oncology describe in detail the needs of patients with advanced cancer in comparison to those with non-cancer disease and also identify the requirements of patients with different cancer entities. Basic principles of symptom control are explained, with careful attention to therapy for pain associated with either the cancer or its treatment and to symptom-guided antineoplastic therapy. Complex therapeutic strategies for palliative cancer patients are highlighted that involve both cancer- and symptom-directed options and address a range of therapeutic aims. Issues relating to drug use in palliative cancer care are fully explored, and a separate section is devoted to care in the final phase. A range of organizational and policy issues are also discussed, and the book concludes by considering likely future developments in palliative care for cancer patients. Palliative Care in Oncology will be of particular interest to palliative care physicians who are interested in broadening the scope of their disease-specific knowledge, as well as to oncologists who wish to learn more about modern palliative care concepts relevant to their day-to-day work with cancer patients.

When Children Die

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309084377
Total Pages : 713 pages
Book Rating : 4.3/5 (9 download)

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Book Synopsis When Children Die by : Institute of Medicine

Download or read book When Children Die written by Institute of Medicine and published by National Academies Press. This book was released on 2003-02-09 with total page 713 pages. Available in PDF, EPUB and Kindle. Book excerpt: The death of a child is a special sorrow. No matter the circumstances, a child's death is a life-altering experience. Except for the child who dies suddenly and without forewarning, physicians, nurses, and other medical personnel usually play a central role in the lives of children who die and their families. At best, these professionals will exemplify "medicine with a heart." At worst, families' encounters with the health care system will leave them with enduring painful memories, anger, and regrets. When Children Die examines what we know about the needs of these children and their families, the extent to which such needs areâ€"and are notâ€"being met, and what can be done to provide more competent, compassionate, and consistent care. The book offers recommendations for involving child patients in treatment decisions, communicating with parents, strengthening the organization and delivery of services, developing support programs for bereaved families, improving public and private insurance, training health professionals, and more. It argues that taking these steps will improve the care of children who survive as well as those who do notâ€"and will likewise help all families who suffer with their seriously ill or injured child. Featuring illustrative case histories, the book discusses patterns of childhood death and explores the basic elements of physical, emotional, spiritual, and practical care for children and families experiencing a child's life-threatening illness or injury.