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People With Dementia Speak Out
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Book Synopsis People with Dementia Speak Out by : Lucy Whitman
Download or read book People with Dementia Speak Out written by Lucy Whitman and published by Jessica Kingsley Publishers. This book was released on 2015-09-21 with total page 306 pages. Available in PDF, EPUB and Kindle. Book excerpt: In People with Dementia Speak Out, twenty-three people from diverse backgrounds share their experiences of living with dementia. The contributors are honest about the frustrations and fears they face, but overall there is remarkably little self-pity and a great deal of optimism. The personal accounts demonstrate that with the right support at the right time, and above all with opportunities to continue to contribute to society in a meaningful way, it is possible to live well with dementia. These fascinating stories bring to life the characters behind the collective term 'people with dementia', and show that each person with dementia is a unique individual with their own personality, history, beliefs, cultural affinities and sense of humour, and their own way of adapting to the disabilities and opportunities which this condition confers. This unique collection of personal testimonies will be reassuring and encouraging for those coming to terms with a diagnosis of dementia, for their families and carers, and is essential reading for health and social care professionals at all levels.
Book Synopsis Who will I be when I die? by : Christine Bryden
Download or read book Who will I be when I die? written by Christine Bryden and published by Jessica Kingsley Publishers. This book was released on 2012-02-15 with total page 178 pages. Available in PDF, EPUB and Kindle. Book excerpt: Christine Bryden was 46 years old when she was diagnosed with dementia, and in this book she describes her remarkable emotional, physical and spiritual journey in the three years immediately following. Offering rare first-hand insights into how it feels to gradually lose the ability to undertake tasks most people take for granted, it is made all the more remarkable by Christine's positivity and strength, and deep sense, drawn in part from her Christian faith, that life continues to have purpose and meaning. Originally published in Australia in 1998, the book is brought up-to-date with a new Foreword, Preface and Appendix, in which Christine explains how the disease has progressed over the years, and how she is today. It also contains many previously unseen photographs of Christine and her family, from around the time of her diagnosis up to the present day. Inspirational and informative in equal measure, Who will I be when I die? will be of interest to other people with dementia and their families, as well as to dementia care professionals.
Book Synopsis Learning to Speak Alzheimer's by : Joanne Koenig Coste
Download or read book Learning to Speak Alzheimer's written by Joanne Koenig Coste and published by Houghton Mifflin Harcourt. This book was released on 2004-09-08 with total page 184 pages. Available in PDF, EPUB and Kindle. Book excerpt: A guide to more successful communication for the millions of Americans caring for someone with dementia: “Offers a fresh approach and hope.”—NPR Revolutionizing the way we perceive and live with Alzheimer’s, Joanne Koenig Coste offers a practical approach to the emotional well-being of both patients and caregivers that emphasizes relating to patients in their own reality. Her accessible and comprehensive method, which she calls habilitation, works to enhance communication between care partners and patients and has proven successful with thousands of people living with dementia. Learning to Speak Alzheimer’s also offers hundreds of practical tips, including how to: · cope with the diagnosis and adjust to the disease’s progression · help the patient talk about the illness · face the issue of driving · make meals and bath times as pleasant as possible · adjust room design for the patient’s comfort · deal with wandering, paranoia, and aggression “A fine addition to Alzheimer's and caregiving collections.”—Library Journal (starred review) “Promises to transform not only the lives of patients but those of care providers…This book is a gift.”—Sue Levkoff, coauthor of Aging Well
Book Synopsis People with Dementia Speak Out by : Lucy Whitman
Download or read book People with Dementia Speak Out written by Lucy Whitman and published by . This book was released on 2015 with total page 304 pages. Available in PDF, EPUB and Kindle. Book excerpt: People from a wide range of backgrounds reflect on their experiences of living with dementia, and what impact the condition has had on their lives. This timely collection offers a much-needed opportunity to hear the voices of people with dementia, as they demystify the condition and break down stigma and stereotypes.
Book Synopsis Hearing the Person with Dementia by : Bernie McCarthy
Download or read book Hearing the Person with Dementia written by Bernie McCarthy and published by Jessica Kingsley Publishers. This book was released on 2011-07-15 with total page 114 pages. Available in PDF, EPUB and Kindle. Book excerpt: Losing the ability to communicate can be a frustrating and difficult experience for people with dementia, their families and carers. As the disease progresses, the person with dementia may find it increasingly difficult to express themselves clearly, and to understand what others say. Written with both family and professional carers in mind, this book clearly explains what happens to communication as dementia progresses, how this may affect an individual's memory, language and senses, and how carers might need to adapt their approach as a result. Advocating a person-centred approach to dementia care, the author describes methods of verbal and non-verbal communication, techniques for communicating with people who can not speak or move easily, and strategies for communicating more effectively in specific day-to-day situations, including at mealtimes, whilst helping the person with dementia to bathe or dress, and whilst out and about. Exercises at the end of each chapter encourage the carer to reflect on their learning and apply it to their own circumstances, and guidelines for creating a life story with the person with dementia as a means of promoting good communication are also included. This concise, practical book is essential reading for family caregivers, professional care staff, and all those who work with, or who are training to work with, people with dementia.
Book Synopsis Dancing with Dementia by : Christine Bryden
Download or read book Dancing with Dementia written by Christine Bryden and published by Jessica Kingsley Publishers. This book was released on 2005 with total page 204 pages. Available in PDF, EPUB and Kindle. Book excerpt: Christine Bryden was a top civil servant and single mother of three children when she was diagnosed with dementia at the age of 46. Dancing with Dementia is a vivid account of her experiences of living with dementia, exploring the effects of memory problems, loss of independence, difficulties in communication and the exhaustion of coping with simple tasks. She describes how, with the support of her husband Paul, she continues to lead an active life nevertheless, and explains how professionals and carers can help. This book is a thoughtful exploration of how dementia challenges our ideas of personal identity and of the process of self-discovery it can bring about.
Book Synopsis An Extra Pair of Hands by : Kate Mosse
Download or read book An Extra Pair of Hands written by Kate Mosse and published by Profile Books. This book was released on 2021-06-03 with total page 170 pages. Available in PDF, EPUB and Kindle. Book excerpt: 'Inspiring' GUARDIAN 'Heartbreaking' INDEPENDENT 'I loved it' ADAM KAY 'Beautiful' MATT HAIG 'Luminous' NICCI GERRARD 'Essential reading' MADELEINE BUNTING 'A celebration' CHRISTIE WATSON ----- A Best Book for Summer in The Times, Guardian and The i Independent Book of the Month ----- Caring is an issue that affects us all - as bestselling novelist Kate Mosse knows all too well. Kate has cared in turn for her father and mother, and for Granny Rosie, her 90-year-old mother-in-law. Along the way she has experienced the joys, challenges and frustrations shared by an invisible army of carers. At the heart of this care lie everyday acts of love, and the realisation that, sooner or later, most of us will come to rely on an extra pair of hands. ----- 'Lifts the spirits without pulling punches' IAN RANKIN 'Irresistible' RACHEL JOYCE 'Questions how and why we fetishise independence when the reality of human experience is always interdependence' GUARDIAN, BOOK OF THE DAY 'Heartfelt, funny and at times heartbreaking. 10/10' INDEPENDENT 'Utterly beautiful' FRANCESCA SEGAL
Book Synopsis Caring for a Person with Alzheimer's Disease: Your Easy -to-Use- Guide from the National Institute on Aging (Revised January 2019) by : National Institute on Aging
Download or read book Caring for a Person with Alzheimer's Disease: Your Easy -to-Use- Guide from the National Institute on Aging (Revised January 2019) written by National Institute on Aging and published by Lulu.com. This book was released on 2019-04-13 with total page 106 pages. Available in PDF, EPUB and Kindle. Book excerpt: The guide tells you how to: Understand how AD changes a person Learn how to cope with these changes Help family and friends understand AD Plan for the future Make your home safe for the person with AD Manage everyday activities like eating, bathing, dressing, and grooming Take care of yourself Get help with caregiving Find out about helpful resources, such as websites, support groups, government agencies, and adult day care programs Choose a full-time care facility for the person with AD if needed Learn about common behavior and medical problems of people with AD and some medicines that may help Cope with late-stage AD
Book Synopsis Talking to Alzheimer's by : Claudia Strauss
Download or read book Talking to Alzheimer's written by Claudia Strauss and published by . This book was released on 2001 with total page 196 pages. Available in PDF, EPUB and Kindle. Book excerpt: Simple ways to connect when you visit with a family member or friend.
Book Synopsis Dementia, Culture and Ethnicity by : Julia Botsford
Download or read book Dementia, Culture and Ethnicity written by Julia Botsford and published by Jessica Kingsley Publishers. This book was released on 2015-04-21 with total page 330 pages. Available in PDF, EPUB and Kindle. Book excerpt: With contributions from experienced dementia practitioners and care researchers, this book examines the impact of culture and ethnicity on the experience of dementia and on the provision of support and services, both in general terms and in relation to specific minority ethnic communities. Drawing together evidence-based research and expert practitioners' experiences, this book highlights the ways that dementia care services will need to develop in order to ensure that provision is culturally appropriate for an increasingly diverse older population. The book examines cultural issues in terms of assessment and engagement with people with dementia, challenges for care homes, and issues for supporting families from diverse ethnic backgrounds in relation to planning end of life care and bereavement. First-hand accounts of living with dementia from a range of cultural and ethnic backgrounds give unique perspectives into different attitudes to dementia and dementia care. The contributors also examine recent policy and strategy on dementia care and the implications for working with culture and ethnicity. This comprehensive and timely book is essential reading for dementia care practitioners, researchers and policy makers.
Book Synopsis Dementia with Dignity by : Judy Cornish
Download or read book Dementia with Dignity written by Judy Cornish and published by Createspace Independent Publishing Platform. This book was released on 2019-01-22 with total page 272 pages. Available in PDF, EPUB and Kindle. Book excerpt: The revolutionary how-to guidebook that details ways to make it easier to provide dementia home care for people experiencing Alzheimer's or dementia. Alzheimer's home care is possible! Dementia with Dignity explains the groundbreaking new approach: the DAWN Method(R), designed so families and caregivers can provide home care. It outlines practical tools and techniques to help your loved one feel happier and more comfortable so that you can postpone the expense of long-term care. In this book you'll learn: -The basic facts about Alzheimer's and dementia, plus the skills lost and those not lost; -How to recognize and respond to the emotions caused by Alzheimer's or dementia, and avoid dementia-related behaviors; -Tools for working with an impaired person's moods and changing sense of reality; -Home care techniques for dealing with hygiene, safety, nutrition and exercise issues; -A greater understanding and appreciation of what someone with Alzheimer's or dementia is experiencing, and how your home care can increase home their emotional wellbeing. Wouldn't dementia home care be easier if you could get on the same page as your loved one? When we understand what someone experiencing Alzheimer's or dementia is going through, we can truly help them enjoy more peace and security at home. This book will help you recognize the unmet emotional needs that are causing problems, giving you a better understanding and ability to address them. The good news about dementia is that home care is possible. There are infinitely more happy times and experiences to be shared together. Be a part of caring for, honoring, and upholding the life of someone you love by helping them experience Alzheimer's or dementia with dignity. Judy Cornish is the author of The Dementia Handbook-How to Provide Dementia Care at Home, founder of the Dementia & Alzheimer's Wellbeing Network(R) (DAWN), and creator of the DAWN Method. She is also a geriatric care manager and elder law attorney, member of the National Association of Elder Law Attorneys (NAELA) and the American Society on Aging (ASA).
Book Synopsis Telling Tales About Dementia by : Lucy Whitman
Download or read book Telling Tales About Dementia written by Lucy Whitman and published by Jessica Kingsley Publishers. This book was released on 2009-09-15 with total page 226 pages. Available in PDF, EPUB and Kindle. Book excerpt: How does it feel when someone you love develops dementia? How do you cope with the shock, the stress and the grief? Can you be sure that you and your family will receive the support you need? In Telling Tales About Dementia, thirty carers from different backgrounds and in different circumstances share their experiences of caring for a parent, partner or friend with dementia. They speak from the heart about love and loss: 'I still find it hard to believe that Alzheimer's has happened to us,' writes one contributor, 'as if we were sent the wrong script.' The stories told here vividly reflect the tragedy of dementia, the gravity of loss, and instances of unsatisfactory diagnosis, treatment and care. But they contain hope and optimism too: clear indications that the quality of people's lives can be enhanced by sensitive support services, by improved understanding of the impact of dementia, by recognising the importance of valuing us all as human beings, and by embracing and sustaining the connections between us. This unique collection of personal accounts will be an engaging read for anyone affected by dementia in a personal or professional context, including relatives of people with dementia, social workers, medical practitioners and care staff.
Book Synopsis Loving Someone Who Has Dementia by : Pauline Boss
Download or read book Loving Someone Who Has Dementia written by Pauline Boss and published by John Wiley & Sons. This book was released on 2011-06-24 with total page 256 pages. Available in PDF, EPUB and Kindle. Book excerpt: Research-based advice for people who care for someone with dementia Nearly half of U.S. citizens over the age of 85 are suffering from some kind of dementia and require care. Loving Someone Who Has Dementia is a new kind of caregiving book. It's not about the usual techniques, but about how to manage on-going stress and grief. The book is for caregivers, family members, friends, neighbors as well as educators and professionals—anyone touched by the epidemic of dementia. Dr. Boss helps caregivers find hope in "ambiguous loss"—having a loved one both here and not here, physically present but psychologically absent. Outlines seven guidelines to stay resilient while caring for someone who has dementia Discusses the meaning of relationships with individuals who are cognitively impaired and no longer as they used to be Offers approaches to understand and cope with the emotional strain of care-giving Boss's book builds on research and clinical experience, yet the material is presented as a conversation. She shows you a way to embrace rather than resist the ambiguity in your relationship with someone who has dementia.
Author :National Academies of Sciences Engineering and Medicine Publisher : ISBN 13 :9780309495035 Total Pages : pages Book Rating :4.4/5 (95 download)
Book Synopsis Reducing the Impact of Dementia in America by : National Academies of Sciences Engineering and Medicine
Download or read book Reducing the Impact of Dementia in America written by National Academies of Sciences Engineering and Medicine and published by . This book was released on 2022-04-26 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: As the largest generation in U.S. history - the population born in the two decades immediately following World War II - enters the age of risk for cognitive impairment, growing numbers of people will experience dementia (including Alzheimer's disease and related dementias). By one estimate, nearly 14 million people in the United States will be living with dementia by 2060. Like other hardships, the experience of living with dementia can bring unexpected moments of intimacy, growth, and compassion, but these diseases also affect people's capacity to work and carry out other activities and alter their relationships with loved ones, friends, and coworkers. Those who live with and care for individuals experiencing these diseases face challenges that include physical and emotional stress, difficult changes and losses in their relationships with life partners, loss of income, and interrupted connections to other activities and friends. From a societal perspective, these diseases place substantial demands on communities and on the institutions and government entities that support people living with dementia and their families, including the health care system, the providers of direct care, and others. Nevertheless, research in the social and behavioral sciences points to possibilities for preventing or slowing the development of dementia and for substantially reducing its social and economic impacts. At the request of the National Institute on Aging of the U.S. Department of Health and Human Services, Reducing the Impact of Dementia in America assesses the contributions of research in the social and behavioral sciences and identifies a research agenda for the coming decade. This report offers a blueprint for the next decade of behavioral and social science research to reduce the negative impact of dementia for America's diverse population. Reducing the Impact of Dementia in America calls for research that addresses the causes and solutions for disparities in both developing dementia and receiving adequate treatment and support. It calls for research that sets goals meaningful not just for scientists but for people living with dementia and those who support them as well. By 2030, an estimated 8.5 million Americans will have Alzheimer's disease and many more will have other forms of dementia. Through identifying priorities social and behavioral science research and recommending ways in which they can be pursued in a coordinated fashion, Reducing the Impact of Dementia in America will help produce research that improves the lives of all those affected by dementia.
Book Synopsis Where the Light Gets In by : Kimberly Williams-Paisley
Download or read book Where the Light Gets In written by Kimberly Williams-Paisley and published by Crown. This book was released on 2016-04-05 with total page 290 pages. Available in PDF, EPUB and Kindle. Book excerpt: “The relationship between a mother and daughter is one of the most complicated and meaningful there is. Kimberly Williams-Paisley writes about her own with grace, truth, and beauty as she shares her journey back to her mother in the wake of a devastating illness.” —Brooke Shields Many know Kimberly Williams-Paisley as the bride in the popular Steve Martin remakes of the Father of the Bride movies, the calculating Peggy Kenter on Nashville, or the wife of country music artist, Brad Paisley. But behind the scenes, Kim was dealing with a tragic secret: her mother, Linda, was suffering from a rare form of dementia that slowly crippled her ability to talk, write and eventually recognize people in her own family. Where the Light Gets In tells the full story of Linda’s illness—called primary progressive aphasia—from her early-onset diagnosis at the age of 62 through the present day. Kim draws a candid picture of the ways her family reacted for better and worse, and how she, her father and two siblings educated themselves, tried to let go of shame and secrecy, made mistakes, and found unexpected humor and grace in the midst of suffering. Ultimately the bonds of family were strengthened, and Kim learned ways to love and accept the woman her mother became. With a moving foreword by actor and advocate Michael J. Fox, Where the Light Gets In is a heartwarming tribute to the often fragile yet unbreakable relationships we have with our mothers.
Download or read book Speaking Our Minds written by Lisa Snyder and published by . This book was released on 1999 with total page 266 pages. Available in PDF, EPUB and Kindle. Book excerpt: Four million people have been diagnosed with Alzheimer's disease in the United States, yet most live in silent shadows, their stories untold. Here seven individuals of various ages and backgrounds express their thoughts and feelings about what it is like to have Alzheimer's disease, to live with it day to day, and to cope with its impact on their lives. What emerges is a powerful and compassionate portrait of people forced to define themselves in new ways, not just by what has been lost, but also by what endures.
Download or read book Dementia Reimagined written by Tia Powell and published by Penguin. This book was released on 2020-09-01 with total page 322 pages. Available in PDF, EPUB and Kindle. Book excerpt: Now in paperback, the cultural and medical history of dementia and Alzheimer's disease by a leading psychiatrist and bioethicist who urges us to turn our focus from cure to care. Despite being a physician and a bioethicist, Tia Powell wasn't prepared to address the challenges she faced when her grandmother, and then her mother, were diagnosed with dementia--not to mention confronting the hard truth that her own odds aren't great. In the U.S., 10,000 baby boomers turn 65 every day; by the time a person reaches 85, their chances of having dementia approach 50 percent. And the truth is, there is no cure, and none coming soon, despite the perpetual promises by pharmaceutical companies that they are just one more expensive study away from a pill. Dr. Powell's goal is to move the conversation away from an exclusive focus on cure to a genuine appreciation of care--what we can do for those who have dementia, and how to keep life meaningful and even joyful. Reimagining Dementia is a moving combination of medicine and memoir, peeling back the untold history of dementia, from the story of Solomon Fuller, a black doctor whose research at the turn of the twentieth century anticipated important aspects of what we know about dementia today, to what has been gained and lost with the recent bonanza of funding for Alzheimer's at the expense of other forms of the disease. In demystifying dementia, Dr. Powell helps us understand it with clearer eyes, from the point of view of both physician and caregiver. Ultimately, she wants us all to know that dementia is not only about loss--it's also about the preservation of dignity and hope.
