Patient Registry Data For Research A Basic Practical Guide

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Registries for Evaluating Patient Outcomes

Author : Agency for Healthcare Research and Quality/AHRQ
Publisher : Government Printing Office
ISBN 13 : 1587634333
Total Pages : 385 pages
Book Rating : 4.5/5 (876 download)

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Book Synopsis Registries for Evaluating Patient Outcomes by : Agency for Healthcare Research and Quality/AHRQ

Download or read book Registries for Evaluating Patient Outcomes written by Agency for Healthcare Research and Quality/AHRQ and published by Government Printing Office. This book was released on 2014-04-01 with total page 385 pages. Available in PDF, EPUB and Kindle. Book excerpt: This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. For the purposes of this guide, a patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes. A registry database is a file (or files) derived from the registry. Although registries can serve many purposes, this guide focuses on registries created for one or more of the following purposes: to describe the natural history of disease, to determine clinical effectiveness or cost-effectiveness of health care products and services, to measure or monitor safety and harm, and/or to measure quality of care. Registries are classified according to how their populations are defined. For example, product registries include patients who have been exposed to biopharmaceutical products or medical devices. Health services registries consist of patients who have had a common procedure, clinical encounter, or hospitalization. Disease or condition registries are defined by patients having the same diagnosis, such as cystic fibrosis or heart failure. The User’s Guide was created by researchers affiliated with AHRQ’s Effective Health Care Program, particularly those who participated in AHRQ’s DEcIDE (Developing Evidence to Inform Decisions About Effectiveness) program. Chapters were subject to multiple internal and external independent reviews.

Patient Registry Data for Research: A Basic Practical Guide

Author : Mohamad Adam Bujang
Publisher : Institute for Clinical Research, NIH, Malaysia
ISBN 13 :
Total Pages : 87 pages
Book Rating : 4./5 ( download)

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Book Synopsis Patient Registry Data for Research: A Basic Practical Guide by : Mohamad Adam Bujang

Download or read book Patient Registry Data for Research: A Basic Practical Guide written by Mohamad Adam Bujang and published by Institute for Clinical Research, NIH, Malaysia. This book was released on 2021-04-27 with total page 87 pages. Available in PDF, EPUB and Kindle. Book excerpt: Analysis of patient data can be a complicated and challenging process, especially when the data involve many subjects and many variables. A patient registry is a database that organizes collecting the important set of data on a list of identifiable individuals for a specific disease. This type of data usually has tons of data and hundreds of different variables. Thus, the approach to conducting research by using a patient registry database will be more complicated than the other types of dataset. Since the handling of patient registry data is a challenging task, the authors have come out with this e-book/book to become a guideline for the statisticians, medical officers and scientists for them to refer as a handbook whenever they need to use patient registry data for their research.

Clinical Trials

Author : Duolao Wang
Publisher : Remedica
ISBN 13 : 1901346722
Total Pages : 497 pages
Book Rating : 4.9/5 (13 download)

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Book Synopsis Clinical Trials by : Duolao Wang

Download or read book Clinical Trials written by Duolao Wang and published by Remedica. This book was released on 2006 with total page 497 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book explains statistics specifically for a medically literate audience. Readers gain not only an understanding of the basics of medical statistics, but also a critical insight into how to review and evaluate clinical trial evidence.

Medical Data Management

Author : Florian Leiner
Publisher : Springer Science & Business Media
ISBN 13 : 9780387951591
Total Pages : 230 pages
Book Rating : 4.9/5 (515 download)

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Book Synopsis Medical Data Management by : Florian Leiner

Download or read book Medical Data Management written by Florian Leiner and published by Springer Science & Business Media. This book was released on 2003-01-14 with total page 230 pages. Available in PDF, EPUB and Kindle. Book excerpt: Medical Data Management is a systematic introduction to the basic methodology of professional clinical data management. It emphasizes generic methods of medical documentation applicable to such diverse tasks as the electronic patient record, maintaining a clinical trials database, and building a tumor registry. This book is for all students in medical informatics and health information management, and it is ideal for both the undergraduate and the graduate levels. The book also guides professionals in the design and use of clinical information systems in various health care settings. It is an invaluable resource for all health care professionals involved in designing, assessing, adapting, or using clinical data management systems in hospitals, outpatient clinics, study centers, health plans, etc. The book combines a consistent theoretical foundation of medical documentation methods outlining their practical applicability in real clinical data management systems. Two new chapters detail hospital information systems and clinical trials. There is a focus on the international classification of diseases (ICD-9 and -10) systems, as well as a discussion on the difference between the two codes. All chapters feature exercises, bullet points, and a summary to provide the reader with essential points to remember. New to the Third Edition is a comprehensive section comprised of a combined Thesaurus and Glossary which aims to clarify the unclear and sometimes inconsistent terminology surrounding the topic.

Introduction to Health Research Methods

Author : Kathryn H. Jacobsen
Publisher : Jones & Bartlett Publishers
ISBN 13 : 1284094383
Total Pages : 393 pages
Book Rating : 4.2/5 (84 download)

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Book Synopsis Introduction to Health Research Methods by : Kathryn H. Jacobsen

Download or read book Introduction to Health Research Methods written by Kathryn H. Jacobsen and published by Jones & Bartlett Publishers. This book was released on 2016-07-29 with total page 393 pages. Available in PDF, EPUB and Kindle. Book excerpt: A step-by-step guide to conducting research in medicine, public health, and other health sciences, this clear, practical, and straightforward text demystifies the research process and empowers students (and other new investigators) to conduct their own original research projects.

How to Succeed in Medical Research

Author : Robert Foley
Publisher : John Wiley & Sons
ISBN 13 : 1119645573
Total Pages : 176 pages
Book Rating : 4.1/5 (196 download)

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Book Synopsis How to Succeed in Medical Research by : Robert Foley

Download or read book How to Succeed in Medical Research written by Robert Foley and published by John Wiley & Sons. This book was released on 2021-03-02 with total page 176 pages. Available in PDF, EPUB and Kindle. Book excerpt: How to Succeed in Medical Research is a practical resource for medical students and junior doctors across all specialties. Designed for busy readers seeking to distinguish themselves in a highly competitive environment, this concise yet comprehensive guide provides step-by-step advice on selecting a project, finding a mentor, conducting a study, analysing results, publishing a paper, communicating findings, and much more. Presented in an accessible and conversational style, 14 succinct chapters walk readers through the essential stages of their research journey, from the initial steps to getting involved in research as a medical student, to effectively balancing clinical work, scientific research, and other academic pursuits early in your career as a healthcare professional. The book is packed with real-world case studies and expert tips to help readers apply the content directly in their own studies and careers. Straightforward and easy-to-use, this valuable guide: Covers a variety of clinical research and presentation skills using clear and engaging language Provides detailed guidance on writing a paper, conducting a clinical audit, creating a CV and portfolio, and other key proficiencies Develops writing skills for literature reviews, critical appraisals, and case reports Discusses how to further medical careers through research electives, PhD studies, teaching, and quality improvement projects Offers a range of helpful learning features including objectives, key points, case studies, review questions, and links to references and further readings Includes PowerPoint templates for oral presentations and posters via a companion website How to Succeed in Medical Research: A Practical Guide is an ideal resource for medical students, junior doctors and other early career medical professionals.

Clinical Data-Mining

Author : Irwin Epstein
Publisher : Oxford University Press
ISBN 13 : 019533552X
Total Pages : 241 pages
Book Rating : 4.1/5 (953 download)

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Book Synopsis Clinical Data-Mining by : Irwin Epstein

Download or read book Clinical Data-Mining written by Irwin Epstein and published by Oxford University Press. This book was released on 2010 with total page 241 pages. Available in PDF, EPUB and Kindle. Book excerpt: Clinical Data-Mining (CDM) involves the conceptualization, extraction, analysis, and interpretation of available clinical data for practice knowledge-building, clinical decision-making and practitioner reflection. Depending upon the type of data mined, CDM can be qualitative or quantitative; it is generally retrospective, but may be meaningfully combined with original data collection.Any research method that relies on the contents of case records or information systems data inevitably has limitations, but with proper safeguards these can be minimized. Among CDM's strengths however, are that it is unobtrusive, inexpensive, presents little risk to research subjects, and is ethically compatible with practitioner value commitments. When conducted by practitioners, CDM yields conceptual as well as data-driven insight into their own practice- and program-generated questions.This pocket guide, from a seasoned practice-based researcher, covers all the basics of conducting practitioner-initiated CDM studies or CDM doctoral dissertations, drawing extensively on published CDM studies and completed CDM dissertations from multiple social work settings in the United States, Australia, Israel, Hong Kong and the United Kingdom. In addition, it describes consulting principles for researchers interested in forging collaborative university-agency CDM partnerships, making it a practical tool for novice practitioner-researchers and veteran academic-researchers alike.As such, this book is an exceptional guide both for professionals conducting practice-based research as well as for social work faculty seeking an evidence-informed approach to practice-research integration.

The Comprehensive Cancer Center

Author : Mahmoud Aljurf
Publisher : Springer Nature
ISBN 13 : 3030820521
Total Pages : 192 pages
Book Rating : 4.0/5 (38 download)

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Book Synopsis The Comprehensive Cancer Center by : Mahmoud Aljurf

Download or read book The Comprehensive Cancer Center written by Mahmoud Aljurf and published by Springer Nature. This book was released on 2021-10-28 with total page 192 pages. Available in PDF, EPUB and Kindle. Book excerpt: This open access book provides a valuable resource for hospitals, institutions, and health authorities worldwide in their plans to set up and develop comprehensive cancer care centers. The development and implementation of a comprehensive cancer program allows for a systematic approach to evidence-based strategies of prevention, early detection, diagnosis, treatment, and palliation. Comprehensive cancer programs also provide a nexus for the running of clinical trials and implementation of novel cancer therapies with the overall aim of optimizing comprehensive and holistic care of cancer patients and providing them with the best opportunity to improve quality of life and overall survival. This book's self-contained chapter format aims to reinforce the critical importance of comprehensive cancer care centers while providing a practical guide for the essential components needed to achieve them, such as operational considerations, guidelines for best clinical inpatient and outpatient care, and research and quality management structures. Intended to be wide-ranging and applicable at a global level for both high and low income countries, this book is also instructive for regions with limited resources. The Comprehensive Cancer Center: Development, Integration, and Implementation is an essential resource for oncology physicians including hematologists, medical oncologists, radiation oncologists, surgical oncologists, and oncology nurses as well as hospitals, health departments, university authorities, governments and legislators.

Registries for Evaluating Patient Outcomes

Author : U.S. Agency for Health Care Research and Quality/AHRQ
Publisher : Government Printing Office
ISBN 13 : 1587634341
Total Pages : 349 pages
Book Rating : 4.5/5 (876 download)

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Book Synopsis Registries for Evaluating Patient Outcomes by : U.S. Agency for Health Care Research and Quality/AHRQ

Download or read book Registries for Evaluating Patient Outcomes written by U.S. Agency for Health Care Research and Quality/AHRQ and published by Government Printing Office. This book was released on 2014-04-30 with total page 349 pages. Available in PDF, EPUB and Kindle. Book excerpt: This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. For the purposes of this guide, a patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes. A registry database is a file (or files) derived from the registry. Although registries can serve many purposes, this guide focuses on registries created for one or more of the following purposes: to describe the natural history of disease, to determine clinical effectiveness or cost-effectiveness of health care products and services, to measure or monitor safety and harm, and/or to measure quality of care. Registries are classified according to how their populations are defined. For example, product registries include patients who have been exposed to biopharmaceutical products or medical devices. Health services registries consist of patients who have had a common procedure, clinical encounter, or hospitalization. Disease or condition registries are defined by patients having the same diagnosis, such as cystic fibrosis or heart failure. The User’s Guide was created by researchers affiliated with AHRQ’s Effective Health Care Program, particularly those who participated in AHRQ’s DEcIDE (Developing Evidence to Inform Decisions About Effectiveness) program. Chapters were subject to multiple internal and external independent reviews.

Practical Guide to Clinical Data Management

Author : Susanne Prokscha
Publisher : CRC Press
ISBN 13 : 1439848319
Total Pages : 296 pages
Book Rating : 4.4/5 (398 download)

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Book Synopsis Practical Guide to Clinical Data Management by : Susanne Prokscha

Download or read book Practical Guide to Clinical Data Management written by Susanne Prokscha and published by CRC Press. This book was released on 2011-10-26 with total page 296 pages. Available in PDF, EPUB and Kindle. Book excerpt: The management of clinical data, from its collection during a trial to its extraction for analysis, has become a critical element in the steps to prepare a regulatory submission and to obtain approval to market a treatment. Groundbreaking on its initial publication nearly fourteen years ago, and evolving with the field in each iteration since then,

Medical Data Management

Author : Florian Leiner
Publisher : Springer Science & Business Media
ISBN 13 : 0387217738
Total Pages : 208 pages
Book Rating : 4.3/5 (872 download)

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Book Synopsis Medical Data Management by : Florian Leiner

Download or read book Medical Data Management written by Florian Leiner and published by Springer Science & Business Media. This book was released on 2006-04-18 with total page 208 pages. Available in PDF, EPUB and Kindle. Book excerpt: Medical Data Management is a systematic introduction to the basic methodology of professional clinical data management. It emphasizes generic methods of medical documentation applicable to such diverse tasks as the electronic patient record, maintaining a clinical trials database, and building a tumor registry. This book is for all students in medical informatics and health information management, and it is ideal for both the undergraduate and the graduate levels. The book also guides professionals in the design and use of clinical information systems in various health care settings. It is an invaluable resource for all health care professionals involved in designing, assessing, adapting, or using clinical data management systems in hospitals, outpatient clinics, study centers, health plans, etc. The book combines a consistent theoretical foundation of medical documentation methods outlining their practical applicability in real clinical data management systems. Two new chapters detail hospital information systems and clinical trials. There is a focus on the international classification of diseases (ICD-9 and -10) systems, as well as a discussion on the difference between the two codes. All chapters feature exercises, bullet points, and a summary to provide the reader with essential points to remember. New to the Third Edition is a comprehensive section comprised of a combined Thesaurus and Glossary which aims to clarify the unclear and sometimes inconsistent terminology surrounding the topic.

Focus Groups

Author : Richard A. Krueger
Publisher : SAGE
ISBN 13 : 9780761920717
Total Pages : 238 pages
Book Rating : 4.9/5 (27 download)

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Book Synopsis Focus Groups by : Richard A. Krueger

Download or read book Focus Groups written by Richard A. Krueger and published by SAGE. This book was released on 2000-04-26 with total page 238 pages. Available in PDF, EPUB and Kindle. Book excerpt: `I read this book in a single sitting. It is written in an enthusiastic, helpful and clear style that held my attention, and made me want to read what came next. I shall read it again in a single sitting - probably more than once. For it offers common-sense advice about planning and running focus groups which I will want to revisit′ - British Journal of Education Technology The Third Edition of the `standard′ for learning how to conduct a focus group contains: a new chapter comparing and contrasting market research, academic, nonprofit and participatory approaches to focus group research; expanded descriptions on how to plan focus group studies and do the analysis, including step-by-step procedures; examples of questions that ask participants to do more than just discuss, and suggestions on how to answer questions about your focus group research.

A Practical Guide to Managing Clinical Trials

Author : JoAnn Pfeiffer
Publisher : CRC Press
ISBN 13 : 1315299771
Total Pages : 292 pages
Book Rating : 4.3/5 (152 download)

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Book Synopsis A Practical Guide to Managing Clinical Trials by : JoAnn Pfeiffer

Download or read book A Practical Guide to Managing Clinical Trials written by JoAnn Pfeiffer and published by CRC Press. This book was released on 2017-05-18 with total page 292 pages. Available in PDF, EPUB and Kindle. Book excerpt: A Practical Guide to Managing Clinical Trials is a basic, comprehensive guide to conducting clinical trials. Designed for individuals working in research site operations, this user-friendly reference guides the reader through each step of the clinical trial process from site selection, to site set-up, subject recruitment, study visits, and to study close-out. Topics include staff roles/responsibilities/training, budget and contract review and management, subject study visits, data and document management, event reporting, research ethics, audits and inspections, consent processes, IRB, FDA regulations, and good clinical practices. Each chapter concludes with a review of key points and knowledge application. Unique to this book is "A View from India," a chapter-by-chapter comparison of clinical trial practices in India versus the U.S. Throughout the book and in Chapter 10, readers will glimpse some of the challenges and opportunities in the emerging and growing market of Indian clinical trials.

A Practical Guide to Using Panel Data

Author : Simonetta Longhi
Publisher : SAGE
ISBN 13 : 1473911338
Total Pages : 528 pages
Book Rating : 4.4/5 (739 download)

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Book Synopsis A Practical Guide to Using Panel Data by : Simonetta Longhi

Download or read book A Practical Guide to Using Panel Data written by Simonetta Longhi and published by SAGE. This book was released on 2014-12-01 with total page 528 pages. Available in PDF, EPUB and Kindle. Book excerpt: This timely, thoughtful book provides a clear introduction to using panel data in research. It describes the different types of panel datasets commonly used for empirical analysis, and how to use them for cross sectional, panel, and event history analysis. Longhi and Nandi then guide the reader through the data management and estimation process, including the interpretation of the results and the preparation of the final output tables. Using existing data sets and structured as hands-on exercises, each chapter engages with practical issues associated with using data in research. These include: Data cleaning Data preparation Computation of descriptive statistics Using sample weights Choosing and implementing the right estimator Interpreting results Preparing final output tables Graphical representation Written by experienced authors this exciting textbook provides the practical tools needed to use panel data in research.

Driven by Data

Author : Paul Bambrick-Santoyo
Publisher : John Wiley & Sons
ISBN 13 : 0470548746
Total Pages : 336 pages
Book Rating : 4.4/5 (75 download)

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Book Synopsis Driven by Data by : Paul Bambrick-Santoyo

Download or read book Driven by Data written by Paul Bambrick-Santoyo and published by John Wiley & Sons. This book was released on 2010-04-12 with total page 336 pages. Available in PDF, EPUB and Kindle. Book excerpt: Offers a practical guide for improving schools dramatically that will enable all students from all backgrounds to achieve at high levels. Includes assessment forms, an index, and a DVD.

Principles and Practice of Clinical Research

Author : John I. Gallin
Publisher : Elsevier
ISBN 13 : 0080489567
Total Pages : 447 pages
Book Rating : 4.0/5 (84 download)

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Book Synopsis Principles and Practice of Clinical Research by : John I. Gallin

Download or read book Principles and Practice of Clinical Research written by John I. Gallin and published by Elsevier. This book was released on 2011-04-28 with total page 447 pages. Available in PDF, EPUB and Kindle. Book excerpt: The second edition of this innovative work again provides a unique perspective on the clinical discovery process by providing input from experts within the NIH on the principles and practice of clinical research. Molecular medicine, genomics, and proteomics have opened vast opportunities for translation of basic science observations to the bedside through clinical research. As an introductory reference it gives clinical investigators in all fields an awareness of the tools required to ensure research protocols are well designed and comply with the rigorous regulatory requirements necessary to maximize the safety of research subjects. Complete with sections on the history of clinical research and ethics, copious figures and charts, and sample documents it serves as an excellent companion text for any course on clinical research and as a must-have reference for seasoned researchers.*Incorporates new chapters on Managing Conflicts of Interest in Human Subjects Research, Clinical Research from the Patient's Perspective, The Clinical Researcher and the Media, Data Management in Clinical Research, Evaluation of a Protocol Budget, Clinical Research from the Industry Perspective, and Genetics in Clinical Research *Addresses the vast opportunities for translation of basic science observations to the bedside through clinical research*Delves into data management and addresses how to collect data and use it for discovery*Contains valuable, up-to-date information on how to obtain funding from the federal government

Practical Guide to Clinical Data Management

Author : Susanne Prokscha
Publisher : CRC Press
ISBN 13 : 9781574910438
Total Pages : 298 pages
Book Rating : 4.9/5 (14 download)

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Book Synopsis Practical Guide to Clinical Data Management by : Susanne Prokscha

Download or read book Practical Guide to Clinical Data Management written by Susanne Prokscha and published by CRC Press. This book was released on 1999-01-31 with total page 298 pages. Available in PDF, EPUB and Kindle. Book excerpt: Clinical data management (CDM) has changed from being an essentially clerical task in the late 1970s and early 1980s to a highly computerized, highly specialized field today. And clinical data manages have had to adapt their data management systems and processes accordingly. Practical Guide to Clinical Data Management steers you through a basic understanding of the role of data management in clinical trials and includes more advanced topics such as CDM systems, SOPs, and quality assurance. This book helps you ensure GCP, manage laboratory data, and deal with the kinds of clinical data that can cause difficulties in database applications. With the tools this book provides, you'll learn how to: Ensure that your DMB system is in compliance with federal regulations Build a strategic data management and databsing plan Track and record CRFs Deal with problem data, adverse event data, and legacy data Manage and store lab data Identify and manage discrepancies Ensure quality control over reports Choose a CDM system that is right for your company Create and implement a system validation plan and process Set up and enforce data collection standards Develop test plans and change control systems This book is your guide to finding the most successful and practical options for effective clinical data management.