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Palliative Care In Amyotrophic Lateral Sclerosis
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Book Synopsis Palliative Care in Amyotrophic Lateral Sclerosis by : David Oliver
Download or read book Palliative Care in Amyotrophic Lateral Sclerosis written by David Oliver and published by Oxford University Press, USA. This book was released on 2014 with total page 337 pages. Available in PDF, EPUB and Kindle. Book excerpt: This volume provides an evidence-based guide to the care of people with ALS/MND, including the control of symptoms, the psychosocial care of patients and their families, and care in bereavement.
Book Synopsis Palliative Care in Amyotrophic Lateral Sclerosis (motor Neurone Disease) by : David Oliver
Download or read book Palliative Care in Amyotrophic Lateral Sclerosis (motor Neurone Disease) written by David Oliver and published by . This book was released on 2000 with total page 224 pages. Available in PDF, EPUB and Kindle. Book excerpt: Although new treatments for amyotrophic lateral sclerosis/motor neurone disease are being developed, these at present offer only the potential to slow the disease process. Therefore a palliative care approach to the care of the patient and their family is at the center of good clinical practice in ALS/MND. This book aims to provide and evidence based guide to the care of people with ALS/MND, including the control of symptoms, the psychosocial care of patients and their families and care in bereavement. The palliative care approach to the care of ALS/MND is outlined and the role of the multidisciplinary team emphasized. The international authorship are from many different disciplines and are all closely involved in the care of ALS patients; giving a depth of practical knowledge and experience and allowing a comparison of the differences across cultures, social circumstances, health care systmes and nations. All contributors are clinicians involved in the care of people with ALS/MND and they are able to provide clear guidelines of the care throughout the disease process, from telling of the diagnosis to death. The experience of patients and families are considered and case studies are provided to show the practical applications of the theoretical knowledge. An evidence based approach, grounded in day to day care of patients, is used. Different models of care are explored and the interaction of palliative care with other treatment regimes is addressed, as the experience from the treatment of cancer has shown that there may easily be areas of conflict and confusion if there is a lack of clarity in the care provided for patients. The book aims to provide a reference for all involved in the care of patients with ALS/MND, including neurologists, general physicians, rehabilitationists, paramedical staff, general/family practitioners and specialist palliative care teams. The care of a patient with ALS/MND, and their family, is often a challenge, but one all should take up so that patients can live life as fully as possible.
Book Synopsis Neuropalliative Care by : Claire J. Creutzfeldt
Download or read book Neuropalliative Care written by Claire J. Creutzfeldt and published by Springer. This book was released on 2018-10-01 with total page 312 pages. Available in PDF, EPUB and Kindle. Book excerpt: This comprehensive guide thoroughly covers all aspects of neuropalliative care, from symptom-specific considerations, to improving communication between clinicians, patients and families. Neuropalliative Care: A Guide to Improving the Lives of Patients and Families Affected by Neurologic Disease addresses clinical considerations for diseases such as dementia, multiple sclerosis, and severe acute brain injury, as well discussing the other challenges facing palliative care patients that are not currently sufficiently met under current models of care. This includes methods of effective communication, supporting the caregiver, how to make difficult treatment decisions in the face of uncertainty, managing grief, guilt and anger, and treating the pain itself. Written by leaders in the field of neuropalliative care, this book is an exceptional, well-rounded resource of neuropalliative care, serving as a reference for all clinicians caring for patients with neurological disease and their families: neurologists and palliative care specialists, physicians, nurses, chaplains, social workers, as well as trainees in these areas.
Book Synopsis Palliative Care in Neurology by : Raymond Voltz
Download or read book Palliative Care in Neurology written by Raymond Voltz and published by Frontiers Media SA. This book was released on 2020-03-10 with total page 153 pages. Available in PDF, EPUB and Kindle. Book excerpt: Over the last 50 years palliative care has usually been associated with cancer patients but more recently there has been increased discussion of the role of palliative care for neurological patients. In the past years, neurology has moved from being a purely diagnostic area to a very therapeutically active one. A further step needs to be taken to modify the therapeutic activity from “cure” to “care” depending on the patient’s disease trajectory. Palliative care has been associated with care at the end of life, whereas it may be appropriate earlier in the disease progression, and will extend after death in the support of bereaved families. The care of patients with neurological disease, and their families, will encompass the psychological, spiritual and existential issues and neurologists, and the teams in which they work, should develop skills to consider all aspects of care, in order to maximize the quality of life of all involved, and enable patients to die peacefully.
Book Synopsis Navigating Life with Amyotrophic Lateral Sclerosis by : Mark B. Bromberg
Download or read book Navigating Life with Amyotrophic Lateral Sclerosis written by Mark B. Bromberg and published by Oxford University Press. This book was released on 2017 with total page 281 pages. Available in PDF, EPUB and Kindle. Book excerpt: Navigating Life with Amyotrophic Lateral Sclerosis provides accessible, comprehensive, and up-to-date information about the challenges patients, family members, and caregivers face when confronted by ALS, a disease that affects approximately 5,600 Americans every year, with as many as 30,000 people managing the disease at any given time. ALS is a difficult disease for the patient and is also challenging for the caregiver and family as there are many questions, issues relating to care, and problems to manage. This guide covers all aspects of managing ALS, from the onset of symptoms, diagnosis, treatments, and coping strategies, to the use of home health care or hospice, and new research in the field. The book also sheds lights on difficult topics, such as end-of-life care and managing legal affairs. Navigating Life with Amyotrophic Lateral Sclerosis is unique because it covers two perspectives: one author is a neurologist with 30 years of experience treating ALS patients, and the other author experienced first-hand the issues in providing care for a parent with ALS. Formatted in a question-and-answer style, peppered throughout with patient stories, and with sections devoted to family members and caregivers, this compassionate resource provides guidance to those seeking to understand how to live with this disease.
Book Synopsis Molecular and Cellular Therapies for Motor Neuron Diseases by : Nicholas M Boulis
Download or read book Molecular and Cellular Therapies for Motor Neuron Diseases written by Nicholas M Boulis and published by Academic Press. This book was released on 2017-01-18 with total page 336 pages. Available in PDF, EPUB and Kindle. Book excerpt: Molecular and Cellular Therapies for Motor Neuron Diseases discusses the basics of the diseases, also covering advances in research and clinical trials. The book provides a resource for students that will help them learn the basics in a detailed manner that is required for scientists and clinicians. Users will find a comprehensive overview of the background of Amyotrophic Lateral Sclerosis (ALS/Lou Gehrig’s Disease) and Spinal Muscular Atrophy (SMA), along with the current understanding of their genetics and mechanisms. In addition, the book details gene and cell therapies that have been developed and their translation to clinical trials. Provides an overview of gene and cell therapies for amyotrophic lateral sclerosis (ALS) and other motor neuron diseases Edited by a leading Neurosurgeon and two research scientists to promote synthesis between basic neuroscience and clinical relevance Presents a great resource for researchers and practitioners in neuroscience, neurology, and gene and cell therapy
Book Synopsis Public Policy in ALS/MND Care by : Robert H. Blank
Download or read book Public Policy in ALS/MND Care written by Robert H. Blank and published by Springer Nature. This book was released on 2020 with total page 345 pages. Available in PDF, EPUB and Kindle. Book excerpt: Anyone interested in ALS/MND-physician, patient, or healthcare policy director -should read this book and learn from it. -Walter G. Bradley D.M., F.R.C.P., Professor and Chairman Emeritus, Miller School of Medicine, University of Miami, USA "This book illustrates the inequities in the accessibility of quality neurological care existing globally and which forms a major target for redress by the World Federation of Neurology and the World Health Organisation." -William M Carroll AM, MBBS, MD, FRACP, FRCP(E), President, World Federation of Neurology This book focuses on the public policy and political/ethical dimensions of ALS/MND across a wide selection of countries and argues for the need of a multidisciplinary and international approach. Policy issues addressed include adequacy of funding for research and care, payment policy and regulatory functions of public and private insurers, long-term services and caregiver support, public health and prevention efforts, access to genetic testing and assisted technologies, ensuring a competent and adequate workforce especially for hands-on caregivers, and the challenging issues of providing palliative and hospice care for ALS/MND patients, advance directives and assisted suicide that face policy makers in all political jurisdictions. Robert H. Blank, PhD, (University of Maryland) is an adjunct Professor of Political Science at the University of Canterbury in Christchurch, New Zealand. He has been a frequent guest professor at Aarhus University in Denmark and at National Taiwan University in Taipei, Taiwan, and a Research Scholar at New College Florida. Jerome E. Kurent received his MD from the University of Cincinnati College of Medicine and completed residencies in Neurology and Internal Medicine at the Johns Hopkins Hospital. He completed fellowships in neuromuscular diseases and electromyography at the National Institutes of Health, followed by a Geriatrics Medicine fellowship at Harvard where he also received his MPH. Dr. Kurent joined the Medical University of South Carolina faculty in 1984, and is Professor of Neurology, Medicine and Psychiatry and Behavioral Sciences. David Oliver, MD., recently retired as Consultant Physician in Palliative Medicine at the Wisdom Hospice in Rochester, Kent where he developed an integrated service over 32 years. He is an Honorary Professor at the Tizard Centre at the University of Kent, where he supervises students and is involved in research
Book Synopsis Amyotrophic Lateral Sclerosis by : Francesco Pagnini
Download or read book Amyotrophic Lateral Sclerosis written by Francesco Pagnini and published by Oxford University Press. This book was released on 2018-02-22 with total page 301 pages. Available in PDF, EPUB and Kindle. Book excerpt: Amyotrophic lateral sclerosis: Understanding and optimizing quality of life and psychological well-being presents a comprehensive and up-to-date review of the enhancement of the lives of people with amyotrophic lateral sclerosis (ALS) and their caregivers. ALS is a progressive, fatal neurodegenerative disorder. No current medical therapy can reverse or stop its progression, and the promotion of quality of life and psychological well-being is a central component of ALS care. Health care professionals who work in this field should incorporate attention to psychological, emotional, and relational aspects of the disease into their approach to care. This book provides some of the knowledge and direction necessary for optimizing the quality of care for individuals with ALS and their caregivers. Topics discussed include an ALS-centred view of quality of life, depressive features, anxiety, resilience, cognitive impairment, complementary and alternative medicines, and psychological research.
Book Synopsis Individual Quality of Life by : Charles Richard Boddington Joyce
Download or read book Individual Quality of Life written by Charles Richard Boddington Joyce and published by Taylor & Francis. This book was released on 1999 with total page 248 pages. Available in PDF, EPUB and Kindle. Book excerpt: First Published in 1999. Routledge is an imprint of Taylor & Francis, an informa company.
Book Synopsis Diet and Nutrition in Palliative Care by : Victor R. Preedy
Download or read book Diet and Nutrition in Palliative Care written by Victor R. Preedy and published by CRC Press. This book was released on 2011-05-24 with total page 456 pages. Available in PDF, EPUB and Kindle. Book excerpt: Optimal terminal and palliative care requires consideration of the patient and family unit as well as cultural and religious sensitivities. The patient's well being in terms of mobility, anxiety, stress, social interaction, and pain control needs expert focus and attention. Furthermore, there is an increasing awareness that diet and nutritional sup
Book Synopsis Respiratory Management of ALS by : Lee Guion
Download or read book Respiratory Management of ALS written by Lee Guion and published by Jones & Bartlett Publishers. This book was released on 2010-10-25 with total page 274 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Respiratory Management of Motor Neuron Disease brings together the latest research, expert opinions, and treatment options for respiratory symptom management. It provides a detailed, step-by-step approach to assessment of upper and lower airway structures and how motor neuron loss impairs function. Treatment options emphasize symptom management and enhanced quality of life. Palliative care, end-of-life decision making, and long term mechanical ventilation in patients with MND/ALS are included.This textbook encourages critical thinking through 1) inclusion of researchable questions at the end of chapters, and 2) discussion of different approaches to patient assessment and symptom management when medical evidence is lacking. Students will be encouraged to use their understanding of anatomy, physiology, pharmacology, lung expansion and secretion mobilization techniques to review, support or challenge current practices in MND/ALS. Respiratory therapy students, respiratory care practitioners, nurses in neurology clinics, primary care physicians, and pulmonologists whose practice includes patients with motor neuron disease will all benefit from the detailed review of bulbar and thoracic muscles, loss of function, and treatment recommendations.
Book Synopsis Neurodegenerative Disorders by : Orla Hardiman
Download or read book Neurodegenerative Disorders written by Orla Hardiman and published by Springer. This book was released on 2016-02-26 with total page 336 pages. Available in PDF, EPUB and Kindle. Book excerpt: This new edition provides an accessible guide to the commonest neurodegenerative diseases, outlining the main clinical features, treatment options and outcomes of the conditions most frequently encountered in clinical practice. Beginning with an overview of the general principles that underlie degeneration, and the contribution of established and new diagnostics techniques, the book goes on to describe the most common neurodegenerative conditions and, new for the second edition, also HIV dementia and multiple sclerosis. Final chapters cover important management issues including the use of palliative care strategies, biomarkers and neuropsychology. Written by experts in the field internationally Neurodegenerative Disorders, Second Edition is a practical guide for clinicians that will be indispensable for the management of these conditions.
Book Synopsis Amyotrophic Lateral Sclerosis (ALS) Q&A by : Ahmed Bayouda
Download or read book Amyotrophic Lateral Sclerosis (ALS) Q&A written by Ahmed Bayouda and published by Ahmed Bayouda. This book was released on 2024-06-15 with total page 29 pages. Available in PDF, EPUB and Kindle. Book excerpt: Discover "ALS Q&A" – Your Essential Guide to Understanding Amyotrophic Lateral Sclerosis Are you seeking clear, comprehensive, and reliable information about Amyotrophic Lateral Sclerosis (ALS)? Look no further! "ALS Q&A" by Ahmed Bayouda is your ultimate resource, offering an in-depth exploration of this challenging neurodegenerative disease in an easy-to-read question-and-answer format. Why Choose "ALS Q&A"? Comprehensive Coverage: This ebook covers everything you need to know about ALS, from basic definitions and symptoms to advanced diagnostic methods and the latest treatment options. It’s designed to cater to patients, caregivers, healthcare professionals, and anyone interested in learning more about ALS. Accessible and Clear: Written in a straightforward Q&A format, "ALS Q&A" breaks down complex medical information into digestible answers. Whether you're a medical expert or a curious reader, you'll find the content engaging and easy to understand. Up-to-Date Information: Stay informed with the latest research findings, emerging therapies, and innovative approaches to ALS management. This ebook ensures you're equipped with current and relevant knowledge. Practical Advice: Discover actionable tips for managing symptoms, improving quality of life, and accessing support resources. "ALS Q&A" provides practical guidance to help you navigate the challenges of ALS effectively. What You'll Learn: What is ALS? Gain a solid understanding of ALS, its causes, and its impact on the nervous system. Early Symptoms and Diagnosis: Recognize the early signs of ALS and learn about the diagnostic process. Treatment Options: Explore current treatments, medications, and therapeutic approaches. Living with ALS: Find out how to manage daily life, from mobility aids to dietary considerations. Research and Future Directions: Stay updated on cutting-edge research and potential future treatments. Support Networks: Learn where to find emotional and practical support for patients and caregivers. Get Your Copy Today! Don’t miss out on this invaluable resource. Whether you’re directly affected by ALS or seeking to expand your knowledge, "ALS Q&A" is an essential addition to your library. Take the first step towards understanding ALS better. Purchase "ALS Q&A" today and empower yourself with knowledge and practical advice that makes a difference.
Book Synopsis Palliative Care in Neurology, Volume II by : Raymond Voltz
Download or read book Palliative Care in Neurology, Volume II written by Raymond Voltz and published by Frontiers Media SA. This book was released on 2022-03-11 with total page 112 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Amyotrophic Lateral Sclerosis by : Richard S. Bedlack, MD
Download or read book Amyotrophic Lateral Sclerosis written by Richard S. Bedlack, MD and published by Demos Medical Publishing. This book was released on 2012-12-10 with total page 280 pages. Available in PDF, EPUB and Kindle. Book excerpt: Amyotrophic Lateral Sclerosis: A Patient Care Guide for Clinicians is a practical reference for clinicians caring for ALS patients that brings together the collective wisdom of those at the forefront of patient-oriented research and practice. The book compiles recent findings of both evidence-based and experience-based research to provide clinicians with tools that improve quality and length of life for people with ALS. To present a truly multidisciplinary approach to ALS, this book mirrors the organization of a large clinic with separate departments working collaboratively. It begins with a review of current understandings of ALS including diagnostic criteria, genetic and sporadic subtypes, epidemiology, co-morbidities, and prognosis. From there the book is divided into chapters that include neurological assessment, nursing care and coordination, speech and swallowing interventions, nutrition and nutrition therapy, physical therapy, occupational therapy, respiratory therapy, assistive technology, social work practice related to ALS, and web-based resources. Each chapter is led by experts from that discipline who review evidence- and experience-based care options. In addition, the entire North American ALS Research Group (ALSRG) has had a chance to weigh in as well, making this a unique and well-rounded resource. The book addresses everything from breaking the news of an ALS diagnosis to end-of-life care and bereavement. By putting experts in conversation with each other, both within and across individual disciplines, Amyotrophic Lateral Sclerosis: A Patient Care Guide for Clinicians provides comprehensive, real-world care information that canít be found anywhere else. Amyotrophic Lateral Sclerosis features: A practical reference for all members of the ALS care team, covering everything frombreaking the news to end-of-life care and bereavement Chapters that mirror the organization of large multi-disciplinary ALS clinics andinclude pertinent information for each member of the care team Evidence- and experience-based findings provide current scientific and clinical consensus and a forum for real-world care options
Book Synopsis Until I Say Good-Bye by : Bret Witter
Download or read book Until I Say Good-Bye written by Bret Witter and published by Hachette UK. This book was released on 2013-03-14 with total page 346 pages. Available in PDF, EPUB and Kindle. Book excerpt: THE NEW YORK TIMES BESTSELLER What would you do with one last year? Susan Spencer-Wendel was determined to laugh instead of cry. In June 2011, Susan Spencer-Wendel learned she had amyotrophic lateral sclerosis (ALS) - Lou Gehrig's disease - an irreversible condition that systematically destroys the nerves that power the muscles. She was 44-years-old, with three young children, and she had only one year of health remaining. She decided to live that year with joy. She left her job as a journalist and spent time with her family. She built a meeting place for friends in her backyard. And she took seven trips with the seven most important people in her life. As her health declined, Susan journeyed to the Yukon, Hungary, the Bahamas, and Cyprus. She went to the beach with her sons and to Kleinfeld's bridal shop in New York City with her teenage daughter, Marina, for a glimpse of the wedding she would never attend. She also wrote this book. No longer able to walk or even lift her arms, she tapped it out letter by letter on her iPhone using only her right thumb, the last finger still working. And yet Until I Say Good-Bye is not angry or bitter. It is sad in parts - how could it not be? - but it is filled with Susan's optimism, joie de vivre and sens of humour. It is a book that, like Susan, will make everyone smile. From a hilarious family Christmas disaster to the decrepit monastery in eastern Cyprus where she rediscovered her heritage, Until I Say Good-Bye is Susan Spencer-Wendel's unforgettable gift to her loved ones and to us: a record of their final experiences together and a reminder that every day is better when it is lived with joy.
Book Synopsis Amyotrophic Lateral Sclerosis by : Robert G. Miller
Download or read book Amyotrophic Lateral Sclerosis written by Robert G. Miller and published by ReadHowYouWant.com. This book was released on 2010-05 with total page 390 pages. Available in PDF, EPUB and Kindle. Book excerpt: ALS is not a curable disease, but it is a treatable one. Treatments are now available that can make a major difference in prolonging life and enhancing the quality of life for people with the disease, and there are treatments for many of the symptoms of ALS that can help ease its burden. Multidisciplinary teams in specialized ALS centers are providing top quality care and comprehensive rehabilitation for persons with ALS. In spite of the progressive nature of this disease and its clear tendency to shorten life, the momentum of research in this disease is expanding dramatically and numerous clinical trials are testing promising new therapies. Our understanding of the basic causes of ALS is expanding gradually. The substantial resources of patient advocacy groups such as the Amyotrophic Lateral Sclerosis Association and Muscular Dystrophy Association provide tremendous help and support for people with ALS and their families. Although the diagnosis of ALS can initially be devastating, the vast majority of people discovering new courage from within to battle this disease and live life with vigor and enthusiasm. The information in this book will prove useful to people with ALS and their families both in managing the disease and living within its limitations. ''
