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Managing Memory Clinical Facts Biomedical Negotiations And Alzheimers Identities
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Book Synopsis Managing Memory: Clinical Facts, Biomedical Negotiations, and Alzheimer's Identities by : Renee Lynn Beard
Download or read book Managing Memory: Clinical Facts, Biomedical Negotiations, and Alzheimer's Identities written by Renee Lynn Beard and published by . This book was released on 2005 with total page 674 pages. Available in PDF, EPUB and Kindle. Book excerpt: Methods. 18 months of participant observation at two specialty clinics, including 46 diagnoses of AD or MCI, qualitative interviews, and focus groups were conducted. Data were analyzed using Grounded Theory. The complete sample included 77 respondents: focus groups with 32 diagnosed individuals, focus groups with 12 care partners of diagnosed individuals, and 33 in-depth interviews (12 clinicians, 12 Alzheimer's Association staff members, and 9 diagnosed individuals).
Book Synopsis Living with Alzheimer's by : Renée L. Beard
Download or read book Living with Alzheimer's written by Renée L. Beard and published by NYU Press. This book was released on 2016-04-26 with total page 337 pages. Available in PDF, EPUB and Kindle. Book excerpt: News of Alzheimer’s disease is constantly in the headlines. Every day we hear heart-wrenching stories of people caring for a loved one who has become a shell of their former self, of projections about rising incidence rates, and of cures that are just around the corner. However, we don't see or hear from the people who actually have the disease. In Living with Alzheimer’s, Renée L. Beard argues that the exclusively negative portrayals of Alzheimer’s are grossly inaccurate. To understand what life with memory loss is really like, Beard draws on intensive observations of nearly 100 seniors undergoing cognitive evaluation, as well as post-diagnosis interviews with individuals experiencing late-in-life forgetfulness. Since we all forget sometimes, seniors with an Alzheimer’s diagnosis ultimately need to be socialized into medicalized interpretations of their forgetfulness. In daily life, people with the disease are forced to manage stigma and the presumption of incompetence on top of the actual symptoms of their ailment. The well-meaning public, and not their dementia, becomes the major barrier to a happy life for those affected. Beard also examines how these perceptions affect treatment for Alzheimer’s. Interviews with clinicians and staff from the Alzheimer’s Association reveal that despite the best of intentions, pejorative framings of life with dementia fuel both clinical practice and advocacy efforts. These professionals perpetuate narratives about “self-loss,” “impending cures,” and the economic and emotional “burden” to families and society even if they do not personally believe them. Yet, Beard also concludes that in spite of these trends, most of the diagnosed individuals in her study achieve a graceful balance between accepting the medical label and resisting the social stigma that accompanies it. In stark contrast to the messages we receive, this book provides an unprecedented view into the ways that people with early Alzheimer’s actively and deliberately navigate their lives.
Download or read book Aging A-Z written by Carroll L. Estes and published by Routledge. This book was released on 2019-04-10 with total page 497 pages. Available in PDF, EPUB and Kindle. Book excerpt: This provocative, intellectually charged treatise serves as a concise introduction to emancipatory gerontology, examining multiple dimensions of persistent and hotly debated topics around aging, the life course, the roles of power, politics and partisanship, culture, economics, and communications. Critical perspectives are presented as definitions for reader understanding, with links to concepts of identity, knowledge construction, social networks, social movements, and inequalities. With today’s intensifying concentration of wealth and corporatization, precarity is the fate for growing numbers of the world’s population. Intersectionality as an analytic concept offers a new appreciation of how social advantage and disadvantage accumulate, and how constructions of race, ethnicity, class, ability, and gender influence aging. The book’s entries offer a bibliographic compendium, crediting the salience of early pioneering theorists and locating these within the cutting-edge of research (social, behavioral, policy, and gene–environment sciences) that currently advances our understandings of human development, trauma, and resilience. Accompanying these foundations are theories of resistance for advancing human rights and the dignity of marginalized populations.
Book Synopsis Thinking about Dementia by : Annette Leibing
Download or read book Thinking about Dementia written by Annette Leibing and published by Rutgers University Press. This book was released on 2006 with total page 263 pages. Available in PDF, EPUB and Kindle. Book excerpt: Cultural responses to most illnesses differ; dementia is no exception. These responses, together with a society's attitudes toward its elderly population, affect the frequency of dementia-related diagnoses and the nature of treatment. Bringing together essays by nineteen respected scholars, this unique volume approaches the subject from a variety of angles, exploring the historical, psychological, and philosophical implications of dementia. Based on solid ethnographic fieldwork, the essays employ a cross-cultural perspective and focus on questions of age, mind, voice, self, loss, temporality, memory, and affect. Taken together, the essays make four important and interrelated contributions to our understanding of the mental status of the elderly. First, cross-cultural data show the extent to which the aging process, while biologically influenced, is also very much culturally constructed. Second, detailed ethnographic reports raise questions about the behavioral criteria used by health care professionals and laymen for defining the elderly as demented. Third, case studies show how a diagnosis affects a patient's treatment in both clinical and familial settings.; Finally, the collection highlights the gap that separates current biological understandings of aging from its cultural meanings. As Alzheimer's disease and other forms of dementia continue to command an ever-increasing amount of attention in medicine and psychology, this book will be essential reading for anthropologists, social scientists, and health care professionals.
Author :Agency for Healthcare Research and Quality/AHRQ Publisher :Government Printing Office ISBN 13 :1587634333 Total Pages :385 pages Book Rating :4.5/5 (876 download)
Book Synopsis Registries for Evaluating Patient Outcomes by : Agency for Healthcare Research and Quality/AHRQ
Download or read book Registries for Evaluating Patient Outcomes written by Agency for Healthcare Research and Quality/AHRQ and published by Government Printing Office. This book was released on 2014-04-01 with total page 385 pages. Available in PDF, EPUB and Kindle. Book excerpt: This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. For the purposes of this guide, a patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes. A registry database is a file (or files) derived from the registry. Although registries can serve many purposes, this guide focuses on registries created for one or more of the following purposes: to describe the natural history of disease, to determine clinical effectiveness or cost-effectiveness of health care products and services, to measure or monitor safety and harm, and/or to measure quality of care. Registries are classified according to how their populations are defined. For example, product registries include patients who have been exposed to biopharmaceutical products or medical devices. Health services registries consist of patients who have had a common procedure, clinical encounter, or hospitalization. Disease or condition registries are defined by patients having the same diagnosis, such as cystic fibrosis or heart failure. The User’s Guide was created by researchers affiliated with AHRQ’s Effective Health Care Program, particularly those who participated in AHRQ’s DEcIDE (Developing Evidence to Inform Decisions About Effectiveness) program. Chapters were subject to multiple internal and external independent reviews.
Book Synopsis Having Epilepsy by : Joseph Schneider
Download or read book Having Epilepsy written by Joseph Schneider and published by Temple University Press. This book was released on 2009-01-28 with total page 300 pages. Available in PDF, EPUB and Kindle. Book excerpt: Interviews with 80 individuals show how those with epilepsy learn to accept it as part of their lives.
Book Synopsis Emerging Technologies for Diagnosing Alzheimer's Disease by : Marianne Boenink
Download or read book Emerging Technologies for Diagnosing Alzheimer's Disease written by Marianne Boenink and published by Springer. This book was released on 2016-09-13 with total page 300 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book explores international biomedical research and development on the early diagnosis of Alzheimer's disease. It offers timely, multidisciplinary reflections on the social and ethical issues raised by promises of early diagnostics and asks under which conditions emerging diagnostic technologies can be considered a responsible innovation. The initial chapters in this edited volume provide an overview and a critical discussion of recent developments in biomedical research on Alzheimer's disease. Subsequent contributions explore the values at stake in current practices of dealing with Alzheimer's disease and dementia, both within and outside the biomedical domain. Novel diagnostic technologies for Alzheimer's disease emerge in a complex and shifting field, full of controversies. Innovating with care requires a precise mapping of how concepts, values and responsibilities are filled in through the confrontation of practices. In doing so, the volume offers a practice-based approach of responsible innovation that is also applicable to other fields of innovation.
Book Synopsis Beyond the HIPAA Privacy Rule by : Institute of Medicine
Download or read book Beyond the HIPAA Privacy Rule written by Institute of Medicine and published by National Academies Press. This book was released on 2009-03-24 with total page 334 pages. Available in PDF, EPUB and Kindle. Book excerpt: In the realm of health care, privacy protections are needed to preserve patients' dignity and prevent possible harms. Ten years ago, to address these concerns as well as set guidelines for ethical health research, Congress called for a set of federal standards now known as the HIPAA Privacy Rule. In its 2009 report, Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research, the Institute of Medicine's Committee on Health Research and the Privacy of Health Information concludes that the HIPAA Privacy Rule does not protect privacy as well as it should, and that it impedes important health research.
Download or read book Losing My Mind written by Thomas DeBaggio and published by Simon and Schuster. This book was released on 2002-04-05 with total page 221 pages. Available in PDF, EPUB and Kindle. Book excerpt: When Tom DeBaggio turned fifty-seven in 1999, he thought he was about to embark on the relaxing golden years of retirement -- time to spend with his family, his friends, the herb garden he had spent decades cultivating and from which he made a living. Then, one winter day, he mentioned to his doctor during a routine exam that he had been stumbling into forgetfulness, making his work difficult. After that fateful visit, and a subsequent battery of tests over several months, DeBaggio joined the legion of twelve million others afflicted with Alzheimer's disease. But under such a curse, DeBaggio was also given one of the greatest gifts: the ability to chart the ups and downs of his own failing mind. Losing My Mind is an extraordinary first-person account of early onset Alzheimer's -- the form of the disease that ravages younger, more alert minds. DeBaggio started writing on the first day of his diagnosis and has continued despite his slipping grasp on one of life's greatest treasures, memory. In an inspiring and detailed account, DeBaggio paints a vivid picture of the splendor of memory and the pain that comes from its loss. Whether describing the happy days of a youth spent in a much more innocent time or evaluating how his disease has affected those around him, DeBaggio poignantly depicts one of the most important parts of our lives -- remembrance -- and how we often take it for granted. But to DeBaggio, memory is more than just an account of a time long past, it is one's ability to function, to think, and ultimately, to survive. As his life becomes reduced to moments of clarity, the true power of thought and his ability to connect to the world shine through, and in DeBaggio's case, it is as much in the lack of functioning as it is in the ability to function that one finds love, hope and the relaxing golden years of peace. At once an autobiography, a medical history and a testament to the beauty of memory, Losing My Mind is more than just a story of Alzheimer's, it is the captivating tale of one man's battle to stay connected with the world and his own life.
Book Synopsis Dying in America by : Institute of Medicine
Download or read book Dying in America written by Institute of Medicine and published by National Academies Press. This book was released on 2015-03-19 with total page 470 pages. Available in PDF, EPUB and Kindle. Book excerpt: For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.
Book Synopsis Personhood, Identity and Care in Advanced Old Age by : Higgs, Paul
Download or read book Personhood, Identity and Care in Advanced Old Age written by Higgs, Paul and published by Policy Press. This book was released on 2016-10-05 with total page 188 pages. Available in PDF, EPUB and Kindle. Book excerpt: How do we sustain agency and identity amidst the frailty of advanced old age? What role does care play in this process? Pushing forward new sociological theory, this book explores the theoretical and practical issues raised by age and infirmity. It begins with a theoretical examination of the fourth age, interrogating notions of agency, identity and personhood, as well as the impact of frailty, abjection and ‘othering’. It then applies this analysis to issues of care. Exploring our collective hopes and fears concerning old age and the ends of people’s lives, this is essential reading on one of the biggest social issues of our time.
Book Synopsis Palliative Care for Advanced Alzheimer's and Dementia by : Gary Martin, PhD
Download or read book Palliative Care for Advanced Alzheimer's and Dementia written by Gary Martin, PhD and published by Springer Publishing Company. This book was released on 2010-07-23 with total page 334 pages. Available in PDF, EPUB and Kindle. Book excerpt: 2010 AJN Book of the Year Award Winner in both Gerontologic Nursing and Hospice and Palliative Care! "This book...provides important information on best practices and appropriate ways to care for a person with Alzheimer's and advanced dementia. Drs. Martin and Sabbagh have assembled a team of experts to help craft recommendations that should ultimately become standards that all professional caregivers adopt." -Michael Reagan Son of former President Ronald Reagan President, Reagan Legacy Foundation This book testifies that caregivers can have a monumental impact on the lives of persons with advanced dementia. Through specialized programming and a renewed effort toward patient-centered care, caregivers can profoundly enrich the quality of life for these persons. Providing guidelines for health care professionals, caregivers, and family members, this book introduces palliative care programs and protocols for the treatment of people with advanced dementia. The book is designed to guide professional caregivers in meeting the needs of patients and their families, providing insight into the philosophy, assessment, planning, implementation, and evaluation measures involved in interdisciplinary palliative care. The chapter authors offer guidelines and standards of care based on contributions from nurses, physical therapists, social workers, dietitions, psychologists, family caregivers and pastors. An exhibit at the end of every chapter clearly articulates the standards of care appropriate for all advanced dementia facilities and health care staff. This book helps caregivers: Enhance the physiological, psychological, social, and spiritual well-being of the patient and the patient's family Anticipate and meet the patient's basic human needs: hunger, thirst, body positioning, hygiene, continence, and management of any pain Ensure that the patient's surroundings are safe, comfortable, and homelike Address health care decisions that will support the patient's right to self-determination until the end of life
Book Synopsis Pragmatics in Dementia Discourse by : Boyd H. Davis
Download or read book Pragmatics in Dementia Discourse written by Boyd H. Davis and published by Cambridge Scholars Publishing. This book was released on 2014-07-08 with total page 295 pages. Available in PDF, EPUB and Kindle. Book excerpt: Alison Wray notes that “Alzheimer’s Disease affects language in many different ways. Directly, language processing is undermined by damage to the language areas of the brain. Indirectly, language is compromised by short term memory loss, distortions in perception, and disturbed semantic representation . . . All of this makes AD an obvious focus of interest for linguists and in particular, those interested in the field of pragmatics – yet a striking amount of what is published about AD language is written by non-linguists. AD language is independently researched in at least psychology, neuroscience, sociology, clinical linguistics and nursing. Each discipline has its own methods, theories, assumptions and values, which affect the research questions asked, the empirical approach taken in answering them, and how the evidence is interpreted. Without a more reliable holistic picture informed by linguistic and applied linguistic theory and methods, approaches to diagnosis and care risk being constrained, and may result in a less than satisfactory experience for all those whose daily life involves the direct or indirect experience of AD.” This book is an attempt to address some of the above issues noted by bringing together a group of researchers whose work focuses on interaction in the context of dementia. The authors represent the fields of linguistics, clinical linguistics, nursing, and speech pathology, and each chapter draws on methods associated with discourse analysis and pragmatics to examine how people with dementia utilize language in the presence of cognitive decline. In addition, the book seeks to generate academic discussion on how researchers can move forward to focus greater attention on this topic. In particular, this collection will inspire researchers involved in mainstream theoretical linguistics and pragmatics to turn their attention to the discourse of dementia and investigate what it has to say about our knowledge of language theories, and, in addition, to challenge what we know about ourselves as subjective beings.
Author :National Academies of Sciences, Engineering, and Medicine Publisher :National Academies Press ISBN 13 :0309475201 Total Pages :399 pages Book Rating :4.3/5 (94 download)
Book Synopsis Returning Individual Research Results to Participants by : National Academies of Sciences, Engineering, and Medicine
Download or read book Returning Individual Research Results to Participants written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2018-08-23 with total page 399 pages. Available in PDF, EPUB and Kindle. Book excerpt: When is it appropriate to return individual research results to participants? The immense interest in this question has been fostered by the growing movement toward greater transparency and participant engagement in the research enterprise. Yet, the risks of returning individual research resultsâ€"such as results with unknown validityâ€"and the associated burdens on the research enterprise are competing considerations. Returning Individual Research Results to Participants reviews the current evidence on the benefits, harms, and costs of returning individual research results, while also considering the ethical, social, operational, and regulatory aspects of the practice. This report includes 12 recommendations directed to various stakeholdersâ€"investigators, sponsors, research institutions, institutional review boards (IRBs), regulators, and participantsâ€"and are designed to help (1) support decision making regarding the return of results on a study-by-study basis, (2) promote high-quality individual research results, (3) foster participant understanding of individual research results, and (4) revise and harmonize current regulations.
Book Synopsis Dissertation Abstracts International by :
Download or read book Dissertation Abstracts International written by and published by . This book was released on 2003 with total page 506 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Putting a Name to It by : Annemarie Jutel
Download or read book Putting a Name to It written by Annemarie Jutel and published by JHU Press. This book was released on 2011-05-16 with total page 199 pages. Available in PDF, EPUB and Kindle. Book excerpt: Finalist, Foundation for the Sociology of Health and Illness Book Prize, British Sociological Association Over a decade after medical sociologist Phil Brown called for a sociology of diagnosis, Putting a Name to It provides the first book-length, comprehensive framework for this emerging subdiscipline of medical sociology. Diagnosis is central to medicine. It creates social order, explains illness, identifies treatments, and predicts outcomes. Using concepts of medical sociology, Annemarie Goldstein Jutel sheds light on current knowledge about the components of diagnosis to outline how a sociology of diagnosis would function. She situates it within the broader discipline, lays out the directions it should explore, and discusses how the classification of illness and framing of diagnosis relate to social status and order. Jutel explains why this matters not just to doctor-patient relationships but also to the entire medical system. As a result, she argues, the sociological realm of diagnosis encompasses not only the ongoing controversy surrounding revisions to the Diagnostic and Statistical Manual of Mental Disorders in psychiatry but also hot-button issues such as genetic screening and pharmaceutical industry disease mongering. Both a challenge and a call to arms, Putting a Name to It is a lucid, persuasive argument for formalizing, professionalizing, and advancing longstanding practice. Jutel’s innovative, open approach and engaging arguments will find support among medical sociologists and practitioners and across much of the medical system.
Book Synopsis Understanding Autism by : Chloe Silverman
Download or read book Understanding Autism written by Chloe Silverman and published by Princeton University Press. This book was released on 2013-09-23 with total page 352 pages. Available in PDF, EPUB and Kindle. Book excerpt: How the love and labor of parents have changed our understanding of autism Autism has attracted a great deal of attention in recent years, thanks to dramatically increasing rates of diagnosis, extensive organizational mobilization, journalistic coverage, biomedical research, and clinical innovation. Understanding Autism, a social history of the expanding diagnostic category of this contested illness, takes a close look at the role of emotion—specifically, of parental love—in the intense and passionate work of biomedical communities investigating autism. Chloe Silverman tracks developments in autism theory and practice over the past half-century and shows how an understanding of autism has been constituted and stabilized through vital efforts of schools, gene banks, professional associations, government committees, parent networks, and treatment conferences. She examines the love and labor of parents, who play a role in developing—in conjunction with medical experts—new forms of treatment and therapy for their children. While biomedical knowledge is dispersed through an emotionally neutral, technical language that separates experts from laypeople, parental advocacy and activism call these distinctions into question. Silverman reveals how parental care has been a constant driver in the volatile field of autism research and treatment, and has served as an inspiration for scientific change. Recognizing the importance of parental knowledge and observations in treating autism, this book reveals that effective responses to the disorder demonstrate the mutual interdependence of love and science.
