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Living With Spina Bifida
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Book Synopsis Living with Spina Bifida by : Adrian Sandler, M.D.
Download or read book Living with Spina Bifida written by Adrian Sandler, M.D. and published by Univ of North Carolina Press. This book was released on 2009-11-30 with total page 295 pages. Available in PDF, EPUB and Kindle. Book excerpt: It is the most common complex birth defect. Spina bifida affects approximately one out of every 1,000 children born in the United States. In this comprehensive guide, Dr. Adrian Sandler offers a wealth of useful information on the medical, developmental, and psychological aspects of this condition. Accurate, accessible, and up-to-date, Living with Spina Bifida is written especially for families and professionals who care for children, adolescents, and adults with spina bifida. This edition contains a new preface by the author, addressing recent developments in research and treatment, as well as an updated list of spina bifida associations.
Book Synopsis Children with Spina Bifida by : Marlene Lutkenhoff
Download or read book Children with Spina Bifida written by Marlene Lutkenhoff and published by . This book was released on 1999 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Provides parents of children with spina bifida information on prenatal diagnosis, health concerns, treatments, therapies, and causes.
Book Synopsis Wheelz on the Moon by : Aaron Wheelz Fotheringham
Download or read book Wheelz on the Moon written by Aaron Wheelz Fotheringham and published by Adventures of Mike Believe. This book was released on 2018-03-14 with total page 82 pages. Available in PDF, EPUB and Kindle. Book excerpt: Welcome to the Adventures of Mike Believe. This children's book series will change your child's life by igniting the part of their imagination that helps to create the future of their dreams. The first book, "Wheelz On The Moon," will show them how to activate their imagination through visualization. The next book will show them how to turn that visualization into feelings that will shape their actual reality through love and an unbreakable belief in themselves. Aaron Fotheringham and Mike Dolman are on a mission to change the way kids use their thoughts and feelings to create their future, support one another, and not let anything stop them on their journey to making their dreams come true. KIDS ARE THE ILLUSTRATORS OF THIS BOOK! They can draw right inside the book!Join us in changing the world. If you think being in a wheelchair isn't fun, you've never met Aaron Fotheringham, a.k.a Wheelz. Wheelz is a 'Professional' WCMX (Wheelchair Motocross) athlete. He was born with Spina bifida, a birth defect of the spinal chord that causes limited usage of his legs. But that doesn't stop Wheelz from showing the world that a wheelchair is not just a medical device, but rather, an extreme sports machine! Synopsis: Mike Believe reveals his dream of becoming the first kid to ever skateboard on the moon! But Mike's mom want's him to skateboard less and focus more on school. Mike's best friend, Aaron Dreams, a.k.a. "WHEELZ," is living proof that anything is possible. Born with Spina Bifida, a birth defect of the spinal cord, Wheelz has limited usage of his legs, but this doesn't stop him from using his wheelchair every day to chase his dreams!Wheelz starts to see that there are no limits to what he can achieve in life when his father teaches him the power of his imagination. When Mike Believe's classmate, Perscilla Pout, doubts his ability to get to the moon, Mike loses faith in himself. But Wheelz won't let him give up on his dream. Wheelz teaches Mike how to activate his imagination, and suddenly, getting to the moon seems possible after all! Will Mike Believe's imagination be strong enough to visualize a way to the moon? Or will his dream be crushed by his doubts and fears...On their incredible journey to the moon, the boys learn that they aren't alone. Someone is leading them to discover what an open mind is truly capable of. But first, they must let go of their limiting beliefs of whats possible, and strengthen their imaginations. Join Mike Believe, and Wheelz, on their journey to unlocking limitless imagination, true friendship, and maybe even other worlds!
Book Synopsis Living with Spina Bifida by : Larry E. Appelmann
Download or read book Living with Spina Bifida written by Larry E. Appelmann and published by Trafford Publishing. This book was released on 2002 with total page 68 pages. Available in PDF, EPUB and Kindle. Book excerpt: Larry Appelmann talks about his experiences, including the past surgeries he has had. He also mentions his family and how important they are to him. Living with Spina Bifida: Speaking Out About My Disability contains 13 chapters, including a prologue and a bibliography, which you normally would not see in an autobiography but he included one because there were a lot of things related to his disability that he wanted to include in his autobiography. Click here to read a special message from the author.
Download or read book Spina Bifida written by M. Memet Özek and published by Springer Science & Business Media. This book was released on 2008-08-29 with total page 523 pages. Available in PDF, EPUB and Kindle. Book excerpt: The aim of this book to promote a multidisciplinary approach to Spina Bifida, providing the three main specialists categories involved – neurosurgeon, orthopedic surgeons, and urologists – with a concise reference that explains the main clinical problems to be faced in everyday clinical practice. The book also provides the busy specialist with an updated overview of surgical approaches.
Download or read book Born Twice written by T. M. Berg and published by Createspace Independent Publishing Platform. This book was released on 2018-05-02 with total page 624 pages. Available in PDF, EPUB and Kindle. Book excerpt: Why is this happening? Why him? Why us? I can't count the number of times those words echoed through my mind over the course of the summer of 2017. There is no more powerless feeling for a parent than being forced to watch as their child battles for his health & well being. At my wife's 20 week ultrasound, we expected to learn the sex of our second munchkin, but instead our world was crumbled. Words like Spina Bifida, Arnold Chiari Malformation, Myelomeningocele & Hydrocephalus destroyed the excitement we held and replaced it with more uncertainty than we knew existed. The next weeks & months were a whirlwind as we met with specialists and flew across the country so that my wife could undergo fetal surgery to close the opening in my son's back, as well as give him the best chance for a life of worthwhile quality. We would remain there for 4 months, away from our oldest son & our home. Our little Loxley Poet had our hearts from the beginning, so it was never a question as to if we would do all in our power to give him the best chance. It was only a matter of how and when? The amazing people in our lives, our friends & family, made sure we had everything we needed, support in all shapes and sizes. Our journey being what it was, I decided that I could look at it as a burden or as an opportunity. Instead of asking ourselves 'why, ' perhaps we should have been asking ourselves, 'why not?' So, thats what we did. We would handle this and we would thrive, because thats what families do. That's how we survive. That's how we live. This book is for my little warrior, all of his twice born brothers & sisters, as well as their selfless families willing to sacrifice some so that their children may have it all.
Book Synopsis Spina Bifida and Craniosynostosis by : Branislav Kolarovszki
Download or read book Spina Bifida and Craniosynostosis written by Branislav Kolarovszki and published by BoD – Books on Demand. This book was released on 2021-06-23 with total page 174 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book is a comprehensive overview of spina bifida and craniosynostosis with emphasis on new trends in the management of these diseases. Chapters on spina bifida cover such topics as the etiology and pathophysiology of caudal neural tube defects, the overall management of pediatric patients with spina bifida, surgical treatment, and urological and orthopedic care. The chapters on craniosynostosis present new technologies of surgical treatment, craniomaxillofacial corrective surgery, and telescoping techniques with multiple cranial osteotomies.
Download or read book Golem Girl written by Riva Lehrer and published by One World. This book was released on 2021-10-26 with total page 449 pages. Available in PDF, EPUB and Kindle. Book excerpt: The vividly told, gloriously illustrated memoir of an artist born with disabilities who searches for freedom and connection in a society afraid of strange bodies “Golem Girl is luminous; a profound portrait of the artist as a young—and mature—woman; an unflinching social history of disability over the last six decades; and a hymn to life, love, family, and spirit.”—David Mitchell, author of Cloud Atlas WINNER OF THE BARBELLION PRIZE • FINALIST FOR THE NATIONAL BOOK CRITICS CIRCLE AWARD FOR AUTOBIOGRAPHY • NAMED ONE OF THE BEST BOOKS OF THE YEAR BY KIRKUS REVIEWS What do we sacrifice in the pursuit of normalcy? And what becomes possible when we embrace monstrosity? Can we envision a world that sees impossible creatures? In 1958, amongst the children born with spina bifida is Riva Lehrer. At the time, most such children are not expected to survive. Her parents and doctors are determined to "fix" her, sending the message over and over again that she is broken. That she will never have a job, a romantic relationship, or an independent life. Enduring countless medical interventions, Riva tries her best to be a good girl and a good patient in the quest to be cured. Everything changes when, as an adult, Riva is invited to join a group of artists, writers, and performers who are building Disability Culture. Their work is daring, edgy, funny, and dark—it rejects tropes that define disabled people as pathetic, frightening, or worthless. They insist that disability is an opportunity for creativity and resistance. Emboldened, Riva asks if she can paint their portraits—inventing an intimate and collaborative process that will transform the way she sees herself, others, and the world. Each portrait story begins to transform the myths she’s been told her whole life about her body, her sexuality, and other measures of normal. Written with the vivid, cinematic prose of a visual artist, and the love and playfulness that defines all of Riva's work, Golem Girl is an extraordinary story of tenacity and creativity. With the author's magnificent portraits featured throughout, this memoir invites us to stretch ourselves toward a world where bodies flow between all possible forms of what it is to be human. “Not your typical memoir about ‘what it’s like to be disabled in a non-disabled world’ . . . Lehrer tells her stories about becoming the monster she was always meant to be: glorious, defiant, unbound, and voracious. Read it!”—Alice Wong, founder and director, Disability Visibility Project
Book Synopsis Life with Spina Bifida by : Heidi Ayarbe
Download or read book Life with Spina Bifida written by Heidi Ayarbe and published by Momentum. This book was released on 2018-08 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Gives readers a look into the lives and abilities of people who have spina bifida, as well as the challenges they face. Learn how medications, therapy, and other treatments help people with spina bifida every day. Additional features include a table of contents, an informative infographic, a Fast Facts spread, critical-thinking questions, a phonetic glossary, a selected bibliography, an index, sources for further research, and information about the author.
Download or read book Fetal MRI written by Daniela Prayer and published by Springer Science & Business Media. This book was released on 2011-02-15 with total page 531 pages. Available in PDF, EPUB and Kindle. Book excerpt: This is the most comprehensive book to be written on the subject of fetal MRI. It provides a practical hands-on approach to the use of state-of-the-art MRI techniques and the optimization of sequences. Fetal pathological conditions and methods of prenatal MRI diagnosis are discussed by organ system, and the available literature is reviewed. Interpretation of findings and potential artifacts are thoroughly considered with the aid of numerous high-quality illustrations. In addition, the implications of fetal MRI are explored from the medico-legal and ethical points of view. This book will serve as a detailed resource for radiologists, obstetricians, neonatologists, geneticists, and any practitioner wanting to gain an in-depth understanding of fetal MRI technology and applications. In addition, it will provide a reference source for technologists, researchers, students, and those who are implementing a fetal MRI service in their own facility.
Book Synopsis Ferri's Clinical Advisor 2020 E-Book by : Fred F. Ferri
Download or read book Ferri's Clinical Advisor 2020 E-Book written by Fred F. Ferri and published by Elsevier Health Sciences. This book was released on 2019-06-01 with total page 7615 pages. Available in PDF, EPUB and Kindle. Book excerpt: Significantly updated with the latest developments in diagnosis and treatment recommendations, Ferri's Clinical Advisor 2020 features the popular "5 books in 1" format to organize vast amounts of information in a clinically relevant, user-friendly manner. This efficient, intuitive format provides quick access to answers on 1,000 common medical conditions, including diseases and disorders, differential diagnoses, and laboratory tests – all reviewed by experts in key clinical fields. Updated algorithms, along with hundreds of new figures, tables, and boxes, ensure that you stay current with today's medical practice. - Contains significant updates throughout, covering all aspects of current diagnosis and treatment. - Features 27 all-new topics including chronic traumatic encephalopathy, medical marijuana, acute respiratory failure, gallbladder carcinoma, shift work disorder, radial tunnel syndrome, fertility preservation in women, fallopian tube cancer, primary chest wall cancer, large-bowel obstruction, inguinal hernia, and bundle branch block, among others. - Includes a new appendix covering Physician Quality Reporting System (PQRS) Measures. - Provides current ICD-10 insurance billing codes to help expedite insurance reimbursements. - Patient Teaching Guides for many of the diseases and disorders are included, most available in both English and Spanish versions, which can be downloaded and printed for patients.
Download or read book Koko Ken written by Ken Martinez and published by . This book was released on 2013-02 with total page 313 pages. Available in PDF, EPUB and Kindle. Book excerpt: In the early '80s, recovering from my divorce, I moved from Ketchum, Idaho, to Palo Alto, California, to live temporarily with my sister Martin and her family, the other Martins, until I found an apartment. My brother-in-law was and still is a pastor in the Nazarene church. Also attending the church were two college mates of mine and the Martins, Jan and Doug Burgesen and their two children (the two kids, Stevie and Cindy, not Doug and Jan) who could not pronounce "Uncle Ken." It came out "Koko Ken." Soon, very soon, I was known to the whole church (even to my niece Jennifer and my two nephews, Todd and Gabe) as Koko Ken, which gave me the title of this book. Because of a birth defect, spina bifida (the definition's in the book), I wasn't expected to live past six weeks. As of this writing, October 1, 2012, I'm six weeks shy of sixty-two years old. I've lived a very fortunate life. I've hiked up two volcanoes, Lassen and Diamond Head. I've ten speeded down Mt. Haleakala. I played Chopin's, King Faruk's, and Carnegie Hall's pianos. Read my book. It's funny. It's sad. It's me. I'm almost a George Plimpton.
Book Synopsis Adherence and Self-Management in Pediatric Populations by : Avani C. Modi
Download or read book Adherence and Self-Management in Pediatric Populations written by Avani C. Modi and published by Academic Press. This book was released on 2020-01-06 with total page 458 pages. Available in PDF, EPUB and Kindle. Book excerpt: Adherence and Self-Management in Pediatric Populations addresses the contemporary theories, evidence-based assessments, and intervention approaches for common pediatric chronic illnesses. An introductory chapter summarizes the state of the field and provides a general foundation in adherence and self-management. Subsequent chapters focus on specific diseases, ensuring that the scope of knowledge contained therein is current and thorough, especially as the assessments and interventions can be specific to each disease. Case examples are included within each chapter to illustrate the application of these approaches. The book ends with an emerging areas chapter to illuminate the future of adherence science and clinical work. This book will be extremely helpful to professionals beginning to treat youth with suboptimal adherence or for those who conduct adherence research. Experts in the field will benefit from the synthesized literature to aid in clinical decision-making and advancing adherence science. - Organized by disease for quick reference - Provides case examples to illustrate concepts - Incorporates technology-focused measurement and intervention approaches (mobile and electronic health) throughout
Download or read book Pediatric Surgery written by Prem Puri and published by Springer Nature. This book was released on 2023-01-06 with total page 1479 pages. Available in PDF, EPUB and Kindle. Book excerpt: This comprehensive book provides detailed practical advice on the diagnosis and surgical management of congenital and acquired conditions in infants and children. Following the great success of the first edition, the new edition has been fully updated to reflect the major developments in the field of the past decade. Advances in prenatal diagnosis, imaging, anaesthesia and intensive care as well as the introduction of new surgical techniques, including minimally invasive surgery and robotic technology that have radically altered surgical conditions are now discussed in the book. In addition new chapters have been added on surgical safety in children, surgical problems of children with disabilities and surgical implications of HIV infection in children among others. This is a superbly structured and richly illustrated guide aimed at trainees, young pediatric surgeons and general surgeons with interest in pediatric surgery. The book also serves as a handy, quick and easy reference for those making decisions in daily practice. Pediatric Surgery, Diagnosis and Management features contributions by leading experts in pediatric surgery and pediatric urology who have unique experience in their respective fields.
Book Synopsis Paediatric Orthopaedics by : Sattar Alshryda
Download or read book Paediatric Orthopaedics written by Sattar Alshryda and published by Springer. This book was released on 2016-11-24 with total page 527 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book provides a refined clinical guide for evidence-based recommendations in paediatric orthopaedics. Focusing on specific body regions (hip, knees, ankle and feet, spine, shoulder, elbow and wrist and hand) this resource addresses clinical questions related to conditions in these areas. A background section in each chapter sets the scene for the best available practice and also appraises the evidence for its strength and weakness. At the end of each chapter, the authors’ provide recommendations on future research. Evidence-Based Paediatric Orthopaedics: The Best Answers to Clinical Questions has been edited by a team of surgeons with a great interest in evidence-based practice who have brought together an international experts to produce this timely book. A wide spectrum audience including paediatric orthopaedic surgeons, trauma surgeons, orthopaedic residents, emergency department doctors, general practitioners and medical students looking for an evidence based approach to paediatric orthopaedics will find this book to be an essential guide for clinical practice.
Book Synopsis Pediatric Rehabilitation by : Kevin P. Murphy, MD
Download or read book Pediatric Rehabilitation written by Kevin P. Murphy, MD and published by Springer Publishing Company. This book was released on 2020-11-02 with total page 816 pages. Available in PDF, EPUB and Kindle. Book excerpt: Note to Readers: Publisher does not guarantee quality or access to any included digital components if book is purchased through a third-party seller. This revised and greatly expanded sixth edition of Pediatric Rehabilitation continues to set the standard of care for clinicians and remains the premier reference dedicated to education and training in the field of pediatric rehabilitation medicine. Under the direction of a new editorial team, this text brings together renowned specialists from all sectors of the pediatric rehabilitation community to provide the most current and comprehensive information with evidence-based discussions throughout. The sixth edition encompasses substantial updates from beginning to end and addresses emerging topics in the field with eight entirely new chapters devoted to brachial plexus palsy, oncology, robotics, genetics, spasticity management, rheumatology, burns, and advocacy. Major revisions to chapters on spinal cord injuries, acquired brain injury, cerebral palsy, neuromuscular diagnoses, and medical care of children reflect recent advances and expand coverage to include pediatric stroke, anoxic brain injury, bone health, pain management, and more. Chapter pearls, detailed summary tables, and over 250 figures emphasize major takeaways from the text for readers. With contributors chosen both for their academic and clinical expertise, chapters offer a real hands-on perspective and reference the most up to date literature available. Pediatric Rehabilitation covers all aspects of pediatric rehabilitation medicine from basic examination and testing to in-depth clinical management of the full range of childhood disabilities and injuries. As the foundational reference dedicated to the field of pediatric rehabilitation medicine over 6 editions, the book provides a thorough and contemporary review of clinical practice principles and serves as the primary resource for trainees and clinicians in this area. Key Features: Thoroughly revised and expanded new edition of the seminal reference for the field of pediatric rehabilitation medicine Contains eight entirely new chapters to address areas of growing importance Increased coverage of core topics including brain injury and concussion in children, integrated spasticity management, lifespan care for adults with childhood onset disability, pediatric stroke, and much more 13 high-quality gait videos review ambulation in children and adults with cerebral palsy New editorial team and many new contributors provide new perspectives and a modern evidence-based approach Clinical pearls and highly illustrative tables and lists underscore most essential information
Book Synopsis Discovering the Brain by : National Academy of Sciences
Download or read book Discovering the Brain written by National Academy of Sciences and published by National Academies Press. This book was released on 1992-01-01 with total page 195 pages. Available in PDF, EPUB and Kindle. Book excerpt: The brain ... There is no other part of the human anatomy that is so intriguing. How does it develop and function and why does it sometimes, tragically, degenerate? The answers are complex. In Discovering the Brain, science writer Sandra Ackerman cuts through the complexity to bring this vital topic to the public. The 1990s were declared the "Decade of the Brain" by former President Bush, and the neuroscience community responded with a host of new investigations and conferences. Discovering the Brain is based on the Institute of Medicine conference, Decade of the Brain: Frontiers in Neuroscience and Brain Research. Discovering the Brain is a "field guide" to the brainâ€"an easy-to-read discussion of the brain's physical structure and where functions such as language and music appreciation lie. Ackerman examines: How electrical and chemical signals are conveyed in the brain. The mechanisms by which we see, hear, think, and pay attentionâ€"and how a "gut feeling" actually originates in the brain. Learning and memory retention, including parallels to computer memory and what they might tell us about our own mental capacity. Development of the brain throughout the life span, with a look at the aging brain. Ackerman provides an enlightening chapter on the connection between the brain's physical condition and various mental disorders and notes what progress can realistically be made toward the prevention and treatment of stroke and other ailments. Finally, she explores the potential for major advances during the "Decade of the Brain," with a look at medical imaging techniquesâ€"what various technologies can and cannot tell usâ€"and how the public and private sectors can contribute to continued advances in neuroscience. This highly readable volume will provide the public and policymakersâ€"and many scientists as wellâ€"with a helpful guide to understanding the many discoveries that are sure to be announced throughout the "Decade of the Brain."
