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Living With Down Syndrome
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Download or read book Down Syndrome written by Lynn Nadel and published by Wiley-Liss. This book was released on 1995-02-20 with total page 320 pages. Available in PDF, EPUB and Kindle. Book excerpt: Recent advances in medicine are allowing people with Down syndrome to live longer and more productively - while at the same time creating new medical and social challenges for them and the people who provide their care. Down Syndrome: Living and Learning in the Community, which was written under the auspices of the National Down Syndrome Society, provides long-awaited, state-of-the-art information and advice about the disease. This book will prove an invaluable tool for parents and health care professionals, enabling people with Down syndrome to cope with the problems they face and participate to the fullest in community life.
Book Synopsis Down Syndrome Across the Life Span by : Monica Cuskelly
Download or read book Down Syndrome Across the Life Span written by Monica Cuskelly and published by John Wiley & Sons. This book was released on 2008-04-30 with total page 300 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book promotes a positive message for people with Down syndrome across the world. Living with Down Syndrome is a positive experience for the majority of children and adults with Down syndrome, and for their families. Of course there are difficulties to be faced, but quality of life, from infancy to old age, is determined more by the quality of healthcare, education and social inclusion offered to individuals, than by the developmental difficulties that are associated with Down syndrome. The aim of this book is to bring the latest information on research and good practice to families, practitioners and policy makers in order improve the services available to individuals with Down syndrome in all countries.
Book Synopsis More Alike Than Different by : David Egan
Download or read book More Alike Than Different written by David Egan and published by Rowman & Littlefield. This book was released on 2020-09-07 with total page 177 pages. Available in PDF, EPUB and Kindle. Book excerpt: In this inspiring memoir, David Egan tells his own story, giving us a window into a life spent pushing boundaries. With a family undaunted by his diagnosis of Down syndrome, Egan learned early to speak up for himself. He has since become a powerful advocate for all people with disabilities. His optimistic perspective rejected the limits of stereotypes and the expectations of others. He shares how the support of loving family and friends led him to overcome challenges and blaze new trails. It started with swimming and baseball, when he earned places on his neighborhood teams, competing fiercely and as a fully accepted teammate. He writes firsthand of the empowering feeling of being fully included in elementary school and at work as an adult. Egan has earned positions at prestigious companies and a distinguished fellowship on Capitol Hill. He sits on the boards of influential advocacy organizations. He has addressed audiences worldwide and has played a powerful global advocacy role with Special Olympics. He allowed himself to dream big, and he encourages everyone to do the same. His lesson to all of us is to focus on our shared humanity despite our differences--and our diagnoses. This hopeful memoir will encourage everyone to make the most of their lives.
Book Synopsis Greater Expectations by : Jan Gothard
Download or read book Greater Expectations written by Jan Gothard and published by Fremantle Press. This book was released on 2011-03-01 with total page 424 pages. Available in PDF, EPUB and Kindle. Book excerpt: Based on more than 60 personal interviews and supported by scholarly research, this book shows the varied attitudes and approaches that make up the rich experience of living with disability in a changing society. Covering Down syndrome from conception to old age, this historical analysis touches upon a variety of themes, including education, friendship, health, recreation, sexuality, employment, and independence. This moving, partly autobiographical account is a must read for all parents, teachers, health professionals, and policy makers who make choices that affect people with disabilities.
Book Synopsis Living with Down Syndrome by : Roy I Brown
Download or read book Living with Down Syndrome written by Roy I Brown and published by . This book was released on 2019-07-26 with total page 310 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book is written for parents, grandparents, medical staff and caregivers of people with Down syndrome; undergraduate students and young researchers in the field of intellectual disabilities, to give a broad coverage of Down syndrome, showing the latest advances and the changes in its perception, based on practice, personal experience and research.Down syndrome is discussed throughout the lifespan - from birth to old age, in the family and community. The issues of friendship, school and employment as well as health in its broadest sense and the challenges of ageing are reviewed. The application of policies based on both the Convention on the Rights of Persons with Disabilities and the concept of quality of life is also considered. Genetics is often misunderstood, so a simple explanation is given in terms of a condition that occurs naturally as a result of billions of years of evolution.The variability of people with Down syndrome is exemplified with cases from various parts of the world that have been successful in their lives and in their activities. The book is summarised with an optimistic photo essay.It contains an abundant bibliography both historical and recent.This book, originally published in Spanish, was translated to benefit a wider range of readers in need of a rigorous exposition of Down syndrome in accessible terms, including those whose English is their second language.
Book Synopsis Living with Down Syndrome by : Sue Buckley
Download or read book Living with Down Syndrome written by Sue Buckley and published by DSE Enterprises. This book was released on 2000 with total page 34 pages. Available in PDF, EPUB and Kindle. Book excerpt: Offers a person-focused introduction to Down syndrome. This book explains the effects of Down syndrome on development, stressing that while individuals with Down syndrome do have special needs, they are people first, with the same rights and human needs as everyone else in their communities.
Book Synopsis Excelling in Life with Down Syndrome by : Vee P. Prasher
Download or read book Excelling in Life with Down Syndrome written by Vee P. Prasher and published by Nova Science Publishers. This book was released on 2021 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Life expectancy for adults with Down syndrome has dramatically increased over the last 100 years. Many people with Down syndrome are now living into their 60's and 70's. Further, there has been a marked social shift in people with Down syndrome no longer living in large impersonal institutions but now living in the community, often within their family homes or independently. Children are becoming literate and adolescents are acquiring professions and hobbies. This integration into society results in a higher quality of life. Many previously published textbooks have reviewed the medical and psychological conditions associated with Down syndrome. This book aims to highlight the more positive aspects of the life of people with Down syndrome. Fruitful examples, such as the Special Olympics, camping, arts, digital literacy and citizenship actions are included. The book presents early childhood interventions, transition of children to adults, experience with PALS programs, the role of positive behaviour support and self-directed support, and finally optimal aging. The aim of this book is primarily to educate families, carers and professionals that people with Down syndrome can achieve excellent well-being in physical, mental and spiritual domains. One's ability to maximise their own well-being is a human right which also reduces risks and costs associated with mental illness. We hope this book highlights the importance for children and adults with Down syndrome to be seen as valued citizens of their community and allows their voices to be heard.
Download or read book Facts about Down Syndrome written by and published by . This book was released on 1984 with total page 20 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Life with a Superhero by : Kathryn U. Hulings
Download or read book Life with a Superhero written by Kathryn U. Hulings and published by University of North Texas Press. This book was released on 2013 with total page 270 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Mayborn Graduate Institute of Journalism."
Book Synopsis Living with Down Syndrome by : Jenny Bryan
Download or read book Living with Down Syndrome written by Jenny Bryan and published by Raintree. This book was released on 1999 with total page 40 pages. Available in PDF, EPUB and Kindle. Book excerpt: Discusses the causes, nature, and symptoms of diabetes, how it is affected by medicine and diet, and what to do in an emergency.
Download or read book Count Us In written by Jason Kingsley and published by HMH. This book was released on 1994-01-12 with total page 219 pages. Available in PDF, EPUB and Kindle. Book excerpt: Award winner: “Hearing about Down syndrome directly from these young men has a good deal more impact than reading any guide from a professional.” —Booklist This book is in Mitchell and Jason’s own words. . . . We wanted readers to have a true-to-life sense of their charm, their directness, their humor and warmth, and, yes, their intelligence. At ages nineteen and twenty-two, respectively, Jason Kingsley and Mitchell Levitz shared their innermost thoughts, feelings, hopes, dreams―and their experiences growing up with Down syndrome. Their frank discussion of what mattered most in their lives―careers, friendships, school, sex, marriage, finances, politics, and independence―earned Count Us In numerous national awards, including the EDI Award from the National Easter Seal Society. More important, their wit, intelligence, candor, and charm made for a powerful and inspirational statement about the full potential of people with developmental disabilities, challenging prevailing stereotypes. In this edition, with a new afterword, the authors also discuss their lives since then: milestones and challenges, and changes both expected and unexpected. “Their parents were told to expect nothing. But Jason Kingsley and Mitchell Levitz were lucky, because their parents didn’t listen. They gave their sons that chance to show how far they could go—and they’ve astounded everyone!” —Jane Pauley “This single volume will do more to change stereotypes about Down syndrome than any book I have read. These two young men steal our hearts and wash away generations of misconceptions.” —Mary L. Coleman, MD, Emeritus, Georgetown University “An excellent illustration of what it’s like to have Down syndrome . . . Most moving here are the portrayals of strong family relationships.” —Publishers Weekly “Will open eyes and touch the heart.” —Library Journal
Download or read book Down Syndrome written by William I. Cohen and published by John Wiley & Sons. This book was released on 2003-04-14 with total page 493 pages. Available in PDF, EPUB and Kindle. Book excerpt: Der Band bietet einen aktuellen Überblick über klinische, entwicklungsbezogene, psychosoziale, erziehungs- und berufsbezogene Fragen bei Patienten mit Down Syndrom. Er diskutiert auch die Konsequenzen des Human-Genom-Projektes und die Sequenzierung des Chromosom 21. Erörtert aktuellste Entwicklungen, u.a. zum Thema Sexualität, Einbeziehung, Übergang ins Erwachsenenalter und Rechtsprechung. Behandelt die aktuellsten Neuerungen der "Health Care Guidelines for Individuals with Down Syndrome". Enthält auch Material zu mitunter kontrovers diskutierten alternativen und unkonventionellen Therapieansätzen.
Book Synopsis Different--A Great Thing to Be! by : Heather Avis
Download or read book Different--A Great Thing to Be! written by Heather Avis and published by WaterBrook. This book was released on 2021-06-29 with total page 40 pages. Available in PDF, EPUB and Kindle. Book excerpt: NEW YORK TIMES BESTSELLER • This joyful rhyming book encourages children to value the “different” in all people, leading the way to a kinder world in which the differences in all of us are celebrated and embraced. Macy is a girl who’s a lot like you and me, but she's also quite different, which is a great thing to be. With kindness, grace, and bravery, Macy finds her place in the world, bringing beauty and laughter wherever she goes and leading others to find delight in the unique design of every person. Children are naturally aware of the differences they encounter at school, in their neighborhood, and in other everyday relationships. They just need to be given tools to understand and appreciate what makes us “different,” permission to ask questions about it, and eyes to see and celebrate it in themselves as well as in those around them.
Book Synopsis Choosing Down Syndrome by : Chris Kaposy
Download or read book Choosing Down Syndrome written by Chris Kaposy and published by MIT Press. This book was released on 2022-08-09 with total page 237 pages. Available in PDF, EPUB and Kindle. Book excerpt: An argument that more people should have children with Down syndrome, written from a pro-choice, disability-positive perspective. The rate at which parents choose to terminate a pregnancy when prenatal tests indicate that the fetus has Down syndrome is between 60 and 90 percent. In Choosing Down Syndrome, Chris Kaposy offers a carefully reasoned ethical argument in favor of choosing to have such a child. Arguing from a pro-choice, disability-positive perspective, Kaposy makes the case that there is a common social bias against cognitive disability that influences decisions about prenatal testing and terminating pregnancies, and that more people should resist this bias by having children with Down syndrome. Drawing on accounts by parents of children with Down syndrome, and arguing for their objectivity, Kaposy finds that these parents see themselves and their families as having benefitted from having a child with Down syndrome. To counter those who might characterize these accounts as based on self-deception or expressing adaptive preference, Kaposy cites supporting evidence, including divorce rates and observational studies showing that families including children with Down syndrome typically function well. Himself the father of a child with Down syndrome, Kaposy argues that cognitive disability associated with Down syndrome does not lead to diminished well-being. He argues further that parental expectations are influenced by neoliberal ideologies that unduly focus on the supposed diminished economic potential of a person with Down syndrome. Kaposy does not advocate restricting access to abortion or prenatal testing for Down syndrome, and he does not argue that it is ethically mandatory in all cases to give birth to a child with Down syndrome. People should be free to make important decisions based on their values. Kaposy's argument shows that it may be consistent with their values to welcome a child with Down syndrome into the family.
Download or read book Down Syndrome written by Mark Selikowitz and published by OUP Oxford. This book was released on 2008-05-29 with total page 232 pages. Available in PDF, EPUB and Kindle. Book excerpt: Down syndrome is a genetic condition which causes varying degrees of learning disability as well as other health problems. Nearly one baby in every 1000 born in the UK has the condition. Parents are often frightened and confused by the birth of a baby with Down syndrome, and they need reassurance as well as up-to-date information regarding the condition. The new edition of this highly regarded book for parents of children with Down syndrome covers a number of important new developments in research and clinical practice that have occurred in the field in recent years. These include several newly recognised medical conditions that are known to occur more commonly in patients with Down syndrome, for example, glaucoma, gastrointestinal malformations, feeding difficulties, gastro-oesophageal reflux, coeliac disease, and diabetes. This expanded edition also includes new recommendations regarding routine health checks in line with those of the UK Down Syndrome Medical Interest Group (UKDSMIG). Additionally the book covers new prenatal screening methods which have been developed to identify Down syndrome during pregnancy.
Book Synopsis Mental Wellness in Adults with Down Syndrome by : Dennis McGuire
Download or read book Mental Wellness in Adults with Down Syndrome written by Dennis McGuire and published by . This book was released on 2021 with total page 466 pages. Available in PDF, EPUB and Kindle. Book excerpt: This thoroughly updated second edition of MENTAL WELLNESS IN ADULTS WITH DOWN SYNDROME is upbeat and accessible in tone, yet encyclopedic in scope. The size of the book reflects both the breadth of the authors' knowledge--acquired as cofounders of the first medical clinic dedicated solely to the care of adults with Down syndrome--and the number of psychosocial issues and mental disorders that can affect people with Down syndrome. It's the go-to guide for parents, health practitioners, and caregivers who support teens and adults with Down syndrome. MENTAL WELLNESS emphasizes that understanding and appreciating both the strengths and challenges of people with Down syndrome is the key to promoting good mental health. It shows readers how to distinguish between bona fide mental health issues and common characteristics of Down syndrome--quirks or coping strategies. For example, although talking to oneself can be a sign of psychosis, many adults with Down syndrome use self-talk as an effective problem-solving strategy. The second edition includes new chapters on sensory issues (written by Dr. Katie Frank) and regression, expanded and now separate chapters on communication, concrete thinking, and visual memory, and an extensively updated chapter on Alzheimer's disease citing abundant new research. Other chapters cover a range of conditions and assessment and treatment options: What Is Normal? Self-Esteem & Self-Image Self-Talk Grooves & Flexibility Life-Span Issues Social Skills Mood & Anxiety Disorders Obsessive-Compulsive Disorder Psychotic Disorders Eating Refusal Challenging Behavior Self-Injurious Behavior Autism Tics, Tourette Syndrome & Stereotypies While it's not inevitable that people with Down syndrome will experience mental health problems, certain biological differences and environmental stressors can create greater susceptibility. Assessment and treatment options are detailed for each condition. With this guide, caregivers will be able to foster good mental health and troubleshoot challenging mental health issues.
Book Synopsis My Life with Mosaic Down Syndrome by : Robyn Batezel
Download or read book My Life with Mosaic Down Syndrome written by Robyn Batezel and published by . This book was released on 2018-01-06 with total page 24 pages. Available in PDF, EPUB and Kindle. Book excerpt: Rob describes his life as a Christian with mosaic Down syndrome, a rare genetic condition (one in 25,000 births). He wrote this narrative while in his late 20s.
