Living Well with Chronic Illness

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Author :
Publisher : National Academies Press
ISBN 13 : 0309221277
Total Pages : 350 pages
Book Rating : 4.3/5 (92 download)

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Book Synopsis Living Well with Chronic Illness by : Institute of Medicine

Download or read book Living Well with Chronic Illness written by Institute of Medicine and published by National Academies Press. This book was released on 2011-06-30 with total page 350 pages. Available in PDF, EPUB and Kindle. Book excerpt: In the United States, chronic diseases currently account for 70 percent of all deaths, and close to 48 million Americans report a disability related to a chronic condition. Today, about one in four Americans have multiple diseases and the prevalence and burden of chronic disease in the elderly and racial/ethnic minorities are notably disproportionate. Chronic disease has now emerged as a major public health problem and it threatens not only population health, but our social and economic welfare. Living Well with Chronic Disease identifies the population-based public health actions that can help reduce disability and improve functioning and quality of life among individuals who are at risk of developing a chronic disease and those with one or more diseases. The book recommends that all major federally funded programmatic and research initiatives in health include an evaluation on health-related quality of life and functional status. Also, the book recommends increasing support for implementation research on how to disseminate effective longterm lifestyle interventions in community-based settings that improve living well with chronic disease. Living Well with Chronic Disease uses three frameworks and considers diseases such as heart disease and stroke, diabetes, depression, and respiratory problems. The book's recommendations will inform policy makers concerned with health reform in public- and private-sectors and also managers of communitybased and public-health intervention programs, private and public research funders, and patients living with one or more chronic conditions.

Life after the Diagnosis

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Publisher : Da Capo Press
ISBN 13 : 0738219541
Total Pages : 999 pages
Book Rating : 4.7/5 (382 download)

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Book Synopsis Life after the Diagnosis by : Steven Pantilat

Download or read book Life after the Diagnosis written by Steven Pantilat and published by Da Capo Press. This book was released on 2017-02-14 with total page 999 pages. Available in PDF, EPUB and Kindle. Book excerpt: In Life After the Diagnosis, Dr. Steven Z. Pantilat, a renowned international expert in palliative care, shares innovative approaches for dealing with serious illness, outlines the steps that patients should take, and demystifies the medical system. He makes sense of what doctors say, what they actually mean, and how to get the best information to help make the best medical decisions. Dr. Pantilat covers everything from the first steps after the diagnosis and finding the right caregiving and support, to planning your future so your loved ones don't have to. He offers advice on how to tackle the most difficult treatment decisions and discussions and shows readers how to choose treatments that help more than they hurt, stay consistent with their values and personal goals, and live as well as possible for as long as possible.

Living Well with a Serious Illness

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Publisher : JHU Press
ISBN 13 : 1421445727
Total Pages : 225 pages
Book Rating : 4.4/5 (214 download)

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Book Synopsis Living Well with a Serious Illness by : Robin Bennett Kanarek

Download or read book Living Well with a Serious Illness written by Robin Bennett Kanarek and published by JHU Press. This book was released on 2023-04-04 with total page 225 pages. Available in PDF, EPUB and Kindle. Book excerpt: A practical guide for understanding how palliative care can improve quality of life for patients and their caregivers. Robin Bennett Kanarek was a registered nurse working with patients suffering from chronic medical conditions when her ten-year-old son was diagnosed with leukemia. As her son endured grueling treatments, Robin realized how often medical professionals overlook critical psychological, emotional, and spiritual support for people with life-threatening illnesses. Living Well with a Serious Illness is the culmination of decades of Robin's work to advance the field of palliative care. Although palliative care is often associated with hospice and end-of-life planning, Kanarek argues for a more expanded definition that incorporates palliative care earlier in patients' journeys. Living Well with a Serious Illness helps patients and their caregivers understand • what palliative care entails • how to access the support they need when going through a serious illness • what questions to ask medical professionals • how to navigate advanced care planning • definitions of common terminology used with end-of-life planning • the importance of spiritual care, coping strategies, and emotional support • how to become an advocate for palliative care This book illuminates the importance of seeing patients as individuals who can benefit from care for their body, mind, and spirit—the core tenet of palliative care.

How to Live Well with Chronic Pain and Illness

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Author :
Publisher : Simon and Schuster
ISBN 13 : 1614292639
Total Pages : 352 pages
Book Rating : 4.6/5 (142 download)

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Book Synopsis How to Live Well with Chronic Pain and Illness by : Toni Bernhard

Download or read book How to Live Well with Chronic Pain and Illness written by Toni Bernhard and published by Simon and Schuster. This book was released on 2015-10-06 with total page 352 pages. Available in PDF, EPUB and Kindle. Book excerpt: Comfort, understanding, and advice for those who are suffering--and those who care for them. Chronic illness creates many challenges, from career crises and relationship issues to struggles with self-blame, personal identity, and isolation. Beloved author Toni Bernhard addresses these challenges and many more, using practical examples to illustrate how mindfulness, equanimity, and compassion can help readers make peace with a life turned upside down. In her characteristic conversational style, Bernhard shows how to cope and make the most of life despite the challenges of chronic illness. Benefit from: • Mindfulness exercises to mitigate physical and emotional pain • Concrete advice for negotiating the everyday hurdles of medical appointments, household chores, and social obligations • Tools for navigating the strains illness can place on relationships Several chapters are directed toward family and friends of the chronically ill, helping them to understand what their loved one is going through and how they can help. Humorous and empathetic, Bernhard shares her own struggles and setbacks with unflinching honesty, offering invaluable support in the search to find peace and well-being.

You Don't Look Sick!

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Publisher : Demos Medical Publishing
ISBN 13 : 1936303426
Total Pages : 199 pages
Book Rating : 4.9/5 (363 download)

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Book Synopsis You Don't Look Sick! by : Joy H. Selak

Download or read book You Don't Look Sick! written by Joy H. Selak and published by Demos Medical Publishing. This book was released on 2012-12-17 with total page 199 pages. Available in PDF, EPUB and Kindle. Book excerpt: Chronicles one person's true life story of illness and her physicians compassionate commentary as they journey through the four stages of chronic illness; Getting Sick, Being Sick, Grief and Acceptance and Living Well. Designed for people at all stages of the chronic illness journey, this book is also illuminating for caregivers and loved ones.

Living Well with Chronic Illness

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Author :
Publisher :
ISBN 13 : 9781457513435
Total Pages : 240 pages
Book Rating : 4.5/5 (134 download)

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Book Synopsis Living Well with Chronic Illness by : Richard Cheu

Download or read book Living Well with Chronic Illness written by Richard Cheu and published by . This book was released on 2012-12 with total page 240 pages. Available in PDF, EPUB and Kindle. Book excerpt: Learn how to overcome limiting thoughts and feelings and expand your life beyond your chronic illness! A chronic illness can bring on strong negative emotions of shock, fear, and despair. You can't allow these feelings to overwhelm you. This book will help you to: o Answer Yes to life: Expand your vision beyond your illness o Take control of shock, stress and grief o Understand that life is change and change is good o Let go of your excess baggage that is holding you back o Overcome loneliness o Change your perspective to live a larger life o Be inspired by others to overcome adversity o Find meaning in your life story o Free your spirit and continue your spiritual journey Richard Cheu is an author, ordained deacon and hospital chaplain in the Archdiocese of New York, stress-management consultant, and caregiver. He provides pastoral counseling at Bellevue Hospital, the Visiting Nurse Service inpatient hospice, and other New York City medical facilities. He formerly was a neurophysiologist and Emergency Medical Technician.

A Delicate Balance

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Author :
Publisher : Da Capo Press
ISBN 13 :
Total Pages : 320 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis A Delicate Balance by : Susan Milstrey Wells

Download or read book A Delicate Balance written by Susan Milstrey Wells and published by Da Capo Press. This book was released on 2000-07-07 with total page 320 pages. Available in PDF, EPUB and Kindle. Book excerpt: A sensitive, hopeful exploration of maximizing your quality of life while living with chronic illness.

Handbook for Mortals

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Publisher : Oxford University Press
ISBN 13 : 0199744564
Total Pages : 317 pages
Book Rating : 4.1/5 (997 download)

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Book Synopsis Handbook for Mortals by : Joanne Lynn, MD

Download or read book Handbook for Mortals written by Joanne Lynn, MD and published by Oxford University Press. This book was released on 2011-06-16 with total page 317 pages. Available in PDF, EPUB and Kindle. Book excerpt: Rev. ed. of: Handbook for mortals / Joanne Lynn, Joan Harrold, and the Center to Improve Care of the Dying, George Washington University. 1999.

Life Disrupted

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Publisher : Bloomsbury Publishing USA
ISBN 13 : 0802779735
Total Pages : 289 pages
Book Rating : 4.8/5 (27 download)

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Book Synopsis Life Disrupted by : Laurie Edwards

Download or read book Life Disrupted written by Laurie Edwards and published by Bloomsbury Publishing USA. This book was released on 2011-02-01 with total page 289 pages. Available in PDF, EPUB and Kindle. Book excerpt: Twenty-seven-year-old Laurie Edwards is one of 125 million Americans who have a chronic illness, in her case a rare genetic respiratory disease. Because of medical advances in the treatment of serious childhood diseases, 600,000 chronically ill teens enter adulthood every year who decades ago would not have survived-they and people diagnosed in adulthood face the same challenges of college, career, and starting a family as others in their twenties and thirties, but with the added circumstance of having chronic illness. Life Disrupted is a personal and unflinching guide to living well with a chronic illness: managing your own health care without letting it take over your life, dealing with difficult doctors and frequent hospitalizations, having a productive and satisfying career that accommodates your health needs, and nurturing friendships and a loving, committed relationship regardless of recurring health problems. Laurie Edwards also addresses the particular needs of people who have more than one chronic illness or who are among the twenty-five million Americans with a rare disorder. She shares her own story and the experiences of others with chronic illness, as well as advice from life coaches, employment specialists, and health professionals. Reading Life Disrupted is like having a best friend and mentor who truly does know what you're going through.

Despite Lupus

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Author :
Publisher : Sara Gorman
ISBN 13 : 1439234892
Total Pages : 106 pages
Book Rating : 4.4/5 (392 download)

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Book Synopsis Despite Lupus by : Sara Gorman

Download or read book Despite Lupus written by Sara Gorman and published by Sara Gorman. This book was released on 2009 with total page 106 pages. Available in PDF, EPUB and Kindle. Book excerpt: Looking for a better way to manage life with a chronic illness? Despite Lupus will guide you through the proven steps needed to obtain the emotional and physical wellness you deserve.

Living Well at the End of Life

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Author :
Publisher : RAND Corporation
ISBN 13 :
Total Pages : 32 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis Living Well at the End of Life by : Joanne Lynn

Download or read book Living Well at the End of Life written by Joanne Lynn and published by RAND Corporation. This book was released on 2003 with total page 32 pages. Available in PDF, EPUB and Kindle. Book excerpt: Self-care deficits and a slowly dwindling course to death, which usually results from frailty or dementia. Effective and reliable care for persons coming to the end of life will require changes in the organization and financing of care to match these trajectories, as well as compassionate and skillful clinicians. (Available from the publisher or libraries holding the journal.).

The Art of Conversation Through Serious Illness

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Publisher : Oxford University Press
ISBN 13 : 9780199752867
Total Pages : 160 pages
Book Rating : 4.7/5 (528 download)

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Book Synopsis The Art of Conversation Through Serious Illness by : Richard McQuellon

Download or read book The Art of Conversation Through Serious Illness written by Richard McQuellon and published by Oxford University Press. This book was released on 2010-04-29 with total page 160 pages. Available in PDF, EPUB and Kindle. Book excerpt: Every day, thousands of people receive a diagnosis of serious, life-threatening illness, and their families and friends suddenly become caregivers. Despite the best of intentions it is not always easy to communicate well under these circumstances, or find deep empathy for something one has never before experienced. When is it best to speak, and when to be silent? How can someone provide real comfort, and how can relationships with loved ones facing serious illness be enhanced in this most difficult time? This book is about how to be an encouraging caregiver and friend under the most difficult circumstances, when the possibility of death is all too real The authors believe that open dialogue must not be avoided until the last minute when opportunities will be limited, but that caregivers and loved ones can embrace this time, mortal time, honestly as a way to sensitively and compassionately engage with those for whom a central fact of life is realized--that all of our lives are time-limited. In The Art of Conversation Through Serious Illness, the authors consider how to best listen to and speak with one facing life-threatening illness, with lessons on being a primary conversation partner, becoming properly empathic and receiving empathy, maintaining everyday conversation, using platitudes appropriately, understanding healthy denial, and talking about dying. Offering bedside guidance usually only available to professionals and peppered with insightful anecdotes from the authors' own experiences, this gentle, succinct book is appropriate for anyone going through this uniquely difficult yet universal life experience.

Surviving and Thriving with an Invisible Chronic Illness

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Author :
Publisher : New Harbinger Publications
ISBN 13 : 1626256012
Total Pages : 178 pages
Book Rating : 4.6/5 (262 download)

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Book Synopsis Surviving and Thriving with an Invisible Chronic Illness by : Ilana Jacqueline

Download or read book Surviving and Thriving with an Invisible Chronic Illness written by Ilana Jacqueline and published by New Harbinger Publications. This book was released on 2018-03-01 with total page 178 pages. Available in PDF, EPUB and Kindle. Book excerpt: “An important antidote to the dogmatic ‘kale and vitamins’ tone of most ‘self-help’ literature.” —Alexa Tsoulis-Reay, senior writer, New York magazine Popular blogger Ilana Jacqueline offers smart and savvy advice, humor, and practical tips for living with an invisible chronic illness. Do you live with a chronic, debilitating, yet invisible condition? You may feel isolated, out of step, judged, lonely, or misunderstood—and that’s on top of dealing with the symptoms of your actual illness. Take heart. You are not alone, although sometimes it can feel that way. Written by a blogger who suffers from an invisible chronic illness, Surviving and Thriving with an Invisible Chronic Illness offers peer-to-peer support to help you stay sane, be your own advocate, and get back to living your life. This compelling guide is written for anyone suffering with an illness no one can see—such as postural orthostatic tachycardia syndrome (POTS), chronic fatigue syndrome (CFS), fibromyalgia, multiple chemical sensitivity (MCS), Lyme disease, lupus, dysautonomia, or even multiple sclerosis (MP). This book will tell you everything you need to know about living with a complicated, invisible condition—from how to balance sex, dating, and relationships to handling work and school with unavoidable absences. You’ll also learn to navigate judg-y or skeptical relatives and strangers and—most importantly—manage your medical care. Suffering from a chronic illness doesn’t mean you can’t live an active, engaged life. This book will show you how.

How to Help Children Through a Parent's Serious Illness

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Author :
Publisher : Macmillan
ISBN 13 : 0312146191
Total Pages : 242 pages
Book Rating : 4.3/5 (121 download)

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Book Synopsis How to Help Children Through a Parent's Serious Illness by : Kathleen McCue

Download or read book How to Help Children Through a Parent's Serious Illness written by Kathleen McCue and published by Macmillan. This book was released on 1996-08-15 with total page 242 pages. Available in PDF, EPUB and Kindle. Book excerpt: Offering supportive, practical advice from a leading child-life specialist, this book includes information such as what to tell a child about the illness, how to recognize early-warning signs in a child's drawings, sleep patterns, schoolwork and eating habits, and when and where to get professional help. Illustrations & Calvin & Hobbes cartoons.

Living with the Enemy

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Author :
Publisher : Routledge
ISBN 13 : 1317605691
Total Pages : 241 pages
Book Rating : 4.3/5 (176 download)

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Book Synopsis Living with the Enemy by : Ray Owen

Download or read book Living with the Enemy written by Ray Owen and published by Routledge. This book was released on 2014-07-11 with total page 241 pages. Available in PDF, EPUB and Kindle. Book excerpt: ‘This isn’t living, this is just existing.’ A long-term physical health condition – a chronic illness, or even a disability – can take over your existence. Battling against the effects of the condition can take so much of your time and energy that it feels like the rest of your life is ‘on hold’. The physical symptoms of different conditions will vary, as will the way you manage them. But the kinds of psychological stress the situation brings are common to lots of long-term health problems: worry about the future, sadness about what has been lost, frustration at changes, guilt about being a burden, friction with friends and family. You can lose your sense of purpose and wonder ‘What’s the point?’ Trapped in a war against your own illness, every day is just about the battle, and it can seem impossible to find achievement and fulfilment in life if the condition cannot be cured. It doesn’t have to be like that. Using the latest developments in cognitive behavioural therapy (CBT) which emphasise mindfulness and acceptance, and including links to downloadable audio exercises and worksheets, this book will show you how you can live better despite your long-term condition. It will teach you to spot the ways of coping that haven’t been working for you, how to make sure that troubling thoughts and unwanted feelings don’t run your life, how to make sense of the changes in your circumstances, to make the most of today and work towards a future that includes more of the things that matter to you. If you stop fighting a losing battle, and instead learn how to live well with the enemy, then – even with your long-term condition – you’ll find yourself not simply existing, but really living again.

Leaves Falling Gently

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Publisher : New Harbinger Publications
ISBN 13 : 160882554X
Total Pages : 148 pages
Book Rating : 4.6/5 (88 download)

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Book Synopsis Leaves Falling Gently by : Susan Bauer-Wu

Download or read book Leaves Falling Gently written by Susan Bauer-Wu and published by New Harbinger Publications. This book was released on 2011-09-01 with total page 148 pages. Available in PDF, EPUB and Kindle. Book excerpt: A life-limiting illness may have taken hold of your body, but you can still live more fully and openly than ever before. You can enrich your life by exploring ways to make peace with yourself and deepen connections with friends and family. This book will help you reap the benefits of mindfulness and acceptance, one day at a time. Leaves Falling Gently is a comforting guide to the mindfulness and compassion practices that will help you embrace the present moment, despite your illness. With each simple practice, you’ll deepen your appreciation for the experiences that bring you joy and enhance your capacity for gratitude, generosity, and love. As you work through each personal reflection and guided meditation, you’ll regain the strength to live fully, regardless of the changes and challenges that come.

Being Sick Well

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Publisher : Baker Books
ISBN 13 : 9780801012686
Total Pages : 0 pages
Book Rating : 4.0/5 (126 download)

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Book Synopsis Being Sick Well by : Jeffrey H. Boyd

Download or read book Being Sick Well written by Jeffrey H. Boyd and published by Baker Books. This book was released on 2005 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Nearly half of the U.S. population suffers from a chronic illness, from back pain to brain tumors. Boyd shows sufferers and their loved ones how to live fully in spite of their condition.