Levels of Hope in Parents of Chronically Ill Children

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Publisher :
ISBN 13 : 9781423509158
Total Pages : 89 pages
Book Rating : 4.5/5 (91 download)

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Book Synopsis Levels of Hope in Parents of Chronically Ill Children by : Perry A. Carlson

Download or read book Levels of Hope in Parents of Chronically Ill Children written by Perry A. Carlson and published by . This book was released on 2002-08-01 with total page 89 pages. Available in PDF, EPUB and Kindle. Book excerpt: The concept of hope is a common facet of human existence that most, if not all, share in the journey through life. Hope is a process that relates to areas of rational thought, relationships, experiences, and the spiritual or transcendent realm. In the scientific literature, hope has been positively correlated with quality of life and health outcomes. Functionally, hope has been viewed as a prerequisite to coping, as a coping strategy, and as an outcome in and of itself. As such, it is an important consideration in dealing with patients and their families. In the United States approximately 10.3 million children are faced with some type of chronic illness. Parents of these children face added challenges that bring additional burdens of care and stress. Hope has been shown to be involved in coping with stress, but there is very little in the current literature about levels of hope in caregivers and even less dealing with parental hope. This study measures the levels of hope in parents of chronically ill children and examines the possible correlation between the level of disability the parents perceive in relation to their chronically ill child and the parents' level of hope.

Chronic Kids, Constant Hope

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Publisher : Crossway
ISBN 13 : 9781581341843
Total Pages : 212 pages
Book Rating : 4.3/5 (418 download)

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Book Synopsis Chronic Kids, Constant Hope by : Elizabeth M. Hoekstra

Download or read book Chronic Kids, Constant Hope written by Elizabeth M. Hoekstra and published by Crossway. This book was released on 2000 with total page 212 pages. Available in PDF, EPUB and Kindle. Book excerpt: Written by two mothers with children who suffer from a chronic illness, this book addresses issues such as dealing with emotions, siblings, educating yourself and taking care of yourself. The book has a strong Christian focus.

Little Blessings

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Publisher : Xlibris Corporation
ISBN 13 : 1462898092
Total Pages : 99 pages
Book Rating : 4.4/5 (628 download)

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Book Synopsis Little Blessings by : Rick and Sheree Drabek

Download or read book Little Blessings written by Rick and Sheree Drabek and published by Xlibris Corporation. This book was released on 2011-07-12 with total page 99 pages. Available in PDF, EPUB and Kindle. Book excerpt: Are you experiencing feelings of shock, anger, or depression because your child or a child close to you has been diagnosed with a terminal illness? Are you having trouble making the right medical decisions? Do you feel like you just can’t do it all on your own? Are you struggling with what the future holds for your ill child? Most support networks for parents and families of terminally ill children are not able to provide first-hand knowledge into the physical, emotional, and spiritual needs of those caring for the child. Through their own experiences with a terminally ill child, Rick and Sheree Drabek guide you through many of the decisions you might face and encourage you to discover all of the blessings in your life.

Little Blessings

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Publisher : Xlibris Corporation
ISBN 13 : 9781462898084
Total Pages : 100 pages
Book Rating : 4.8/5 (98 download)

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Book Synopsis Little Blessings by : Rick

Download or read book Little Blessings written by Rick and published by Xlibris Corporation. This book was released on 2011-07 with total page 100 pages. Available in PDF, EPUB and Kindle. Book excerpt: Are you experiencing feelings of shock, anger, or depression because your child or a child close to you has been diagnosed with a terminal illness? Are you having trouble making the right medical decisions? Do you feel like you just can't do it all on your own? Are you struggling with what the future holds for your ill child? Most support networks for parents and families of terminally ill children are not able to provide first-hand knowledge into the physical, emotional, and spiritual needs of those caring for the child. Through their own experiences with a terminally ill child, Rick and Sheree Drabek guide you through many of the decisions you might face and encourage you to discover all of the blessings in your life.

The Oxford Handbook of Hope

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Publisher : Oxford University Press
ISBN 13 : 019939931X
Total Pages : 401 pages
Book Rating : 4.1/5 (993 download)

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Book Synopsis The Oxford Handbook of Hope by : Matthew W. Gallagher

Download or read book The Oxford Handbook of Hope written by Matthew W. Gallagher and published by Oxford University Press. This book was released on 2018 with total page 401 pages. Available in PDF, EPUB and Kindle. Book excerpt: Hope has long been a topic of interest for psychologists, philosophers, educators, and physicians. In the past few decades, researchers from various disciplines and from around the world have studied how hope relates to superior academic performance, improved outcomes in the workplace, and improved psychological and physical health in individuals of all ages. Edited by Matthew W. Gallagher and the late Shane J. Lopez, The Oxford Handbook of Hope provides readers with a thorough and comprehensive update on the past 25 years of hope research while simultaneously providing an outline of what leading hope researchers believe the future of this line of research to be. In this extraordinary volume, Gallagher, Lopez, and their expert team of contributors discuss such topics as how best to define hope, how hope is distinguished from related philosophical and psychological constructs, what the current best practices are for measuring and quantifying hope, interventions and strategies for promoting hope across a variety of settings, the impact it has on physical and mental health, and the ways in which hope promotes positive functioning. Throughout its pages, these experts review what is currently known about hope and identify the topics and questions that will help guide the next decade of research ahead.

After the Worst Day Ever

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Publisher : Beacon Press
ISBN 13 : 0807024708
Total Pages : 194 pages
Book Rating : 4.8/5 (7 download)

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Book Synopsis After the Worst Day Ever by : Duane R. Bidwell

Download or read book After the Worst Day Ever written by Duane R. Bidwell and published by Beacon Press. This book was released on 2024-03-19 with total page 194 pages. Available in PDF, EPUB and Kindle. Book excerpt: For those who care for chronically ill children, a new understanding of hope that equips adults to better nurture pediatric hope among sick kids—articulated by the children themselves As anyone with a chronic illness knows, hope can sometimes be hard to come by. For parents and caregivers of children with serious illness, there can be a real struggle to move beyond one's own grief, fear, and suffering to see what hope means for these kids. Duane Bidwell, a scholar, minister, and former hospital chaplain who has struggled with serious illness himself, spent time with 48 chronically ill children in dialysis units and transplant clinics around the United States. Chronically ill kids, he found, don’t adhere to popular or scholarly understandings of hope. They experience hope as a sense of well-being in the present, not a promise of future improvement, an ability to set goals, or the absence of illness and suffering. With this mindset, these kids suggest a new understanding of pediatric hope, saying hope becomes concrete when they (1) realize community, (2) claim power, (3) attend to Spirit, (4) choose trust, and (5) maintain identity. Offering textured portraits of children with end-stage kidney disease, After the Worst Day Ever illustrates in their words how sick children experience, maintain, and turn toward hope even when illness cannot be cured and severely limits quality of life. Their insights reveal how the adults in a sick child's world—parents, chaplains, medical professionals, teachers, and others—can nurture hope. They also shift our understanding of hope from an internal resource located “inside” an individual to a shared, communal experience that becomes a resource for individuals. Rich and moving, Bidwell’s work helps us imagine anew what it means to sustain hope despite inescapable suffering and the limits of chronic illness.

The Lived Experience of Hope in Parents of Critically Ill Children

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Publisher :
ISBN 13 :
Total Pages : 224 pages
Book Rating : 4.:/5 (352 download)

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Book Synopsis The Lived Experience of Hope in Parents of Critically Ill Children by : Annie Meyer Wilkinson

Download or read book The Lived Experience of Hope in Parents of Critically Ill Children written by Annie Meyer Wilkinson and published by . This book was released on 1996 with total page 224 pages. Available in PDF, EPUB and Kindle. Book excerpt:

"Save My Kid"

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Publisher : NYU Press
ISBN 13 : 1479864625
Total Pages : 255 pages
Book Rating : 4.4/5 (798 download)

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Book Synopsis "Save My Kid" by : Amanda M. Gengler

Download or read book "Save My Kid" written by Amanda M. Gengler and published by NYU Press. This book was released on 2020-01-21 with total page 255 pages. Available in PDF, EPUB and Kindle. Book excerpt: A frank analysis of the medical and emotional inequalities that pervade the healthcare process for critically ill children Families who have a child with a life-threatening illness face a daunting road ahead of them, one that not only upends their everyday lives, but also strikes at the very heart of parenthood. In “Save My Kid,” Amanda M. Gengler traces the emotional difficulties these families navigate as they confront a fundamentally unequal healthcare system in the United States. Gengler reveals the unrecognized, everyday inequalities tangled up in the process of seeking medical care, showing how different families manage their children’s critical illnesses. She also uncovers the role that emotional goals—deeply rooted in the culture of illness and medicine—play in medical decision-making, healthcare interactions, and the end of children’s lives. A deeply compassionate read, “Save My Kid” is an inside look at inequality in healthcare among those with the most at stake.

Chronic Hope

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Publisher :
ISBN 13 : 9781631952289
Total Pages : 210 pages
Book Rating : 4.9/5 (522 download)

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Book Synopsis Chronic Hope by : Bonnie O'Neil

Download or read book Chronic Hope written by Bonnie O'Neil and published by . This book was released on 2021-04-13 with total page 210 pages. Available in PDF, EPUB and Kindle. Book excerpt: Chronic Hope helps parents of children living with chronic disease gain practical wisdom for managing the emotional stress of raising a chronically ill child, so they can navigate these challenges with grace, courage, and love.

When Your Child Has a Chronic Medical Illness

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Publisher : American Psychological Association (APA)
ISBN 13 : 9781433833816
Total Pages : 419 pages
Book Rating : 4.8/5 (338 download)

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Book Synopsis When Your Child Has a Chronic Medical Illness by : Frank J. Sileo

Download or read book When Your Child Has a Chronic Medical Illness written by Frank J. Sileo and published by American Psychological Association (APA). This book was released on 2021-01-26 with total page 419 pages. Available in PDF, EPUB and Kindle. Book excerpt: Written by leading mental health professionals, this warm and accessible parenting book for children with chronic illnesses offers clear, practical guidance for all aspects of the journey. When you're focused on ensuring your child gets the best possible treatments for their symptoms, it's easy to overlook or dismiss the impact the illness can have on your relationships and emotions. This book places your psychological well-being front and center, so you can be the best caregiver possible for your child.

A Phenomenological Study of the Lived Experience of Hope in Families with Chronically Ill Child

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Publisher :
ISBN 13 :
Total Pages : 380 pages
Book Rating : 4.3/5 (129 download)

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Book Synopsis A Phenomenological Study of the Lived Experience of Hope in Families with Chronically Ill Child by : Cynthia Sue Brunsman

Download or read book A Phenomenological Study of the Lived Experience of Hope in Families with Chronically Ill Child written by Cynthia Sue Brunsman and published by . This book was released on 1988 with total page 380 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Chronic Hope

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Publisher : Morgan James Publishing
ISBN 13 : 1631952293
Total Pages : 198 pages
Book Rating : 4.6/5 (319 download)

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Book Synopsis Chronic Hope by : Bonnie O’Neil

Download or read book Chronic Hope written by Bonnie O’Neil and published by Morgan James Publishing. This book was released on 2021-01-12 with total page 198 pages. Available in PDF, EPUB and Kindle. Book excerpt: Chronic Hope helps parents of children living with chronic disease gain practical wisdom for managing the emotional stress of raising a chronically ill child, so they can navigate these challenges with grace, courage, and love.

Maternal & Child Health Nursing

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Publisher : Lippincott Williams & Wilkins
ISBN 13 : 1582559996
Total Pages : 1806 pages
Book Rating : 4.5/5 (825 download)

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Book Synopsis Maternal & Child Health Nursing by : Adele Pillitteri

Download or read book Maternal & Child Health Nursing written by Adele Pillitteri and published by Lippincott Williams & Wilkins. This book was released on 2010 with total page 1806 pages. Available in PDF, EPUB and Kindle. Book excerpt: Growing research shows that many children from immigrant and refugee families are not doing well in school, due in part to linguistic and cultural disadvantages. Teaching dual-language learners requires cultural sensitivity, an understanding of language acquisition, and intentional teaching strategies. Combining research and techniques, this resource helps early childhood educators support dual-language learners as they develop the skills necessary for school readiness and success.

Parents with a Chronically Ill Child

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Publisher :
ISBN 13 :
Total Pages : 118 pages
Book Rating : 4.3/5 (129 download)

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Book Synopsis Parents with a Chronically Ill Child by : Susan C. Aula

Download or read book Parents with a Chronically Ill Child written by Susan C. Aula and published by . This book was released on 1998 with total page 118 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Parenting Matters

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Publisher : National Academies Press
ISBN 13 : 0309388570
Total Pages : 525 pages
Book Rating : 4.3/5 (93 download)

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Book Synopsis Parenting Matters by : National Academies of Sciences, Engineering, and Medicine

Download or read book Parenting Matters written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2016-11-21 with total page 525 pages. Available in PDF, EPUB and Kindle. Book excerpt: Decades of research have demonstrated that the parent-child dyad and the environment of the familyâ€"which includes all primary caregiversâ€"are at the foundation of children's well- being and healthy development. From birth, children are learning and rely on parents and the other caregivers in their lives to protect and care for them. The impact of parents may never be greater than during the earliest years of life, when a child's brain is rapidly developing and when nearly all of her or his experiences are created and shaped by parents and the family environment. Parents help children build and refine their knowledge and skills, charting a trajectory for their health and well-being during childhood and beyond. The experience of parenting also impacts parents themselves. For instance, parenting can enrich and give focus to parents' lives; generate stress or calm; and create any number of emotions, including feelings of happiness, sadness, fulfillment, and anger. Parenting of young children today takes place in the context of significant ongoing developments. These include: a rapidly growing body of science on early childhood, increases in funding for programs and services for families, changing demographics of the U.S. population, and greater diversity of family structure. Additionally, parenting is increasingly being shaped by technology and increased access to information about parenting. Parenting Matters identifies parenting knowledge, attitudes, and practices associated with positive developmental outcomes in children ages 0-8; universal/preventive and targeted strategies used in a variety of settings that have been effective with parents of young children and that support the identified knowledge, attitudes, and practices; and barriers to and facilitators for parents' use of practices that lead to healthy child outcomes as well as their participation in effective programs and services. This report makes recommendations directed at an array of stakeholders, for promoting the wide-scale adoption of effective programs and services for parents and on areas that warrant further research to inform policy and practice. It is meant to serve as a roadmap for the future of parenting policy, research, and practice in the United States.

Chronically Ill Children and Their Families

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Publisher : Jossey-Bass
ISBN 13 :
Total Pages : 456 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis Chronically Ill Children and Their Families by : Nicholas Hobbs

Download or read book Chronically Ill Children and Their Families written by Nicholas Hobbs and published by Jossey-Bass. This book was released on 1985 with total page 456 pages. Available in PDF, EPUB and Kindle. Book excerpt:

In the Shadow of Illness

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Publisher : Princeton University Press
ISBN 13 : 9780691050799
Total Pages : 336 pages
Book Rating : 4.0/5 (57 download)

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Book Synopsis In the Shadow of Illness by : Myra Bluebond-Langner

Download or read book In the Shadow of Illness written by Myra Bluebond-Langner and published by Princeton University Press. This book was released on 2000-06-19 with total page 336 pages. Available in PDF, EPUB and Kindle. Book excerpt: A revealing account of how families adapt to living with a chronically ill child What is it like to live with a child who has a chronic, life-threatening disease? What impact does the illness have on well siblings in the family? Myra Bluebond-Langner suggests that understanding the impact of the illness lies not in identifying deficiencies in the lives of those affected, but in appreciating how family members carry on with their lives in the face of the disease's intrusion. The Private Worlds of Dying Children, Bluebond-Langner's previous book, now considered a classic in the field, explored the world of terminally ill children. In her new book, she turns her attention to the lives of those who live in the shadow of chronic illness: the parents and well siblings of children who have cystic fibrosis. Through a series of narrative portraits, she draws us into the daily lives of nine families of children at different points in the natural history of the illness—from diagnosis through the terminal phase. In these portraits, as family members talk about their experiences in their own words, we see how parents, well siblings, and the ill children themselves struggle, in different ways, to contain the intrusion of the disease into their lives. Bluebond-Langner looks at how parents adjust their priorities and their idea of what constitutes a normal life, how they try to balance the needs of other family members while caring for the ill child, and how they see the future. This context helps us understand how well siblings view the illness and how they relate to their ill sibling and parents. Since the issues raised are not unique to cystic fibrosis but are common to other chronic and life-threatening illnesses, this book will be of interest to all who study, care for, or live with the seriously ill.