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Impact Of Cystic Fibrosis On Family Functioning
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Book Synopsis Promoting Adherence to Medical Treatment in Chronic Childhood Illness by : Dennis Drotar
Download or read book Promoting Adherence to Medical Treatment in Chronic Childhood Illness written by Dennis Drotar and published by Psychology Press. This book was released on 2000-08 with total page 515 pages. Available in PDF, EPUB and Kindle. Book excerpt: This interdisciplinary edited volume addresses critical gaps in scientific understanding of adherence/compliance to treatment regimens in chronic health conditions for children & Ados.
Book Synopsis In the Shadow of Illness by : Myra Bluebond-Langner
Download or read book In the Shadow of Illness written by Myra Bluebond-Langner and published by Princeton University Press. This book was released on 2020-06-30 with total page 321 pages. Available in PDF, EPUB and Kindle. Book excerpt: A revealing account of how families adapt to living with a chronically ill child What is it like to live with a child who has a chronic, life-threatening disease? What impact does the illness have on well siblings in the family? Myra Bluebond-Langner suggests that understanding the impact of the illness lies not in identifying deficiencies in the lives of those affected, but in appreciating how family members carry on with their lives in the face of the disease's intrusion. The Private Worlds of Dying Children, Bluebond-Langner's previous book, now considered a classic in the field, explored the world of terminally ill children. In her new book, she turns her attention to the lives of those who live in the shadow of chronic illness: the parents and well siblings of children who have cystic fibrosis. Through a series of narrative portraits, she draws us into the daily lives of nine families of children at different points in the natural history of the illness—from diagnosis through the terminal phase. In these portraits, as family members talk about their experiences in their own words, we see how parents, well siblings, and the ill children themselves struggle, in different ways, to contain the intrusion of the disease into their lives. Bluebond-Langner looks at how parents adjust their priorities and their idea of what constitutes a normal life, how they try to balance the needs of other family members while caring for the ill child, and how they see the future. This context helps us understand how well siblings view the illness and how they relate to their ill sibling and parents. Since the issues raised are not unique to cystic fibrosis but are common to other chronic and life-threatening illnesses, this book will be of interest to all who study, care for, or live with the seriously ill.
Book Synopsis Explorations in Family Nursing by : Dorothy Whyte
Download or read book Explorations in Family Nursing written by Dorothy Whyte and published by Routledge. This book was released on 2002-09-11 with total page 260 pages. Available in PDF, EPUB and Kindle. Book excerpt: Explorations in Family Nursing examines a systemic approach to care which can be applied both in hospital and community settings. Working collaboratively with the family, the nurse is able to strengthen the level of care available to the patient and promote the health and well-being of the whole family. The book examines the theory underpinning family nursing and establishes the principles, including how to make assessments, plan interventions and evaluate progress. A team of experienced contributors demonstrate how widely family nursing strategies can be applied in practice and cover issues including: * children with chronic and terminal illnesses * children with learning disabilities * adolescents * frail elderly people * patients in intensive care Suitable for practitioners and for students from Diploma to post-graduate level , Explorations in Family Nursing makes a timely and relevant contribution to the development of nursing practice.
Book Synopsis A Life Course Perspective on Health Trajectories and Transitions by : Claudine Burton-Jeangros
Download or read book A Life Course Perspective on Health Trajectories and Transitions written by Claudine Burton-Jeangros and published by Springer. This book was released on 2015-08-11 with total page 215 pages. Available in PDF, EPUB and Kindle. Book excerpt: This open access book examines health trajectories and health transitions at different stages of the life course, including childhood, adulthood and later life. It provides findings that assess the role of biological and social transitions on health status over time. The essays examine a wide range of health issues, including the consequences of military service on body mass index, childhood obesity and cardiovascular health, socio-economic inequalities in preventive health care use, depression and anxiety during the child rearing period, health trajectories and transitions in people with cystic fibrosis and oral health over the life course. The book addresses theoretical, empirical and methodological issues as well as examines different national contexts, which help to identify factors of vulnerability and potential resources that support resilience available for specific groups and/or populations. Health reflects the ability of individuals to adapt to their social environment. This book analyzes health as a dynamic experience. It examines how different aspects of individual health unfold over time as a result of aging but also in relation to changing socioeconomic conditions. It also offers readers potential insights into public policies that affect the health status of a population.
Book Synopsis Cystic Fibrosis, Third Edition by : Margaret Hodson
Download or read book Cystic Fibrosis, Third Edition written by Margaret Hodson and published by CRC Press. This book was released on 2012-12-11 with total page 523 pages. Available in PDF, EPUB and Kindle. Book excerpt: This international and authoritative work, which brings together current knowledge in the field of cystic fibrosis, has become established in previous editions as a leading reference in the field. The third edition continues to provide everything that the clinician or allied health professional treating patients with cystic fibrosis will need in a single manageable volume. Thoroughly revised and updated throughout, it reflects the significant advances that have been made in the field since the second edition published in 2000. Cystic Fibrosis evaluates in detail the basic science that underlies the disease and its progression, putting it into a clinical context. Diagnostic and clinical aspects are covered in depth, as are monitoring the condition and the importance of multi-disciplinary care, reflected in the sections into which the new edition has been sub-divided to improve accessibility. Future developments, including novel therapies, are covered in a concluding section. The clinical areas have been much expanded, with the introduction of separate chapters covering sleep, lung mechanics and the work of breathing, upper airway disease, insulin deficiency and diabetes, bone disease, and sexual and reproductive issues. A new section on monitoring discusses the use of databases to improve patient care, and covers monitoring in different age groups, exercise testing and the outcomes of clinical trials in these areas. Separate chapters are devoted to paramedical issues, including nursing, physiotherapy, psychology, and palliative and spiritual care. Throughout, the emphasis is on providing an up-to-date and balanced review of both the clinical and basic sciences aspects of the subject, and to reflect the multi-disciplinary nature of the cystic fibrosis care team. Drawing on the expertise of a team of international specialists from a variety of backgrounds, the third edition of Cystic Fibrosiswill continue to find a broad readership among respiratory physicians, paediatricians, specialist nurses and other health professionals working with patients with cystic fibrosis.
Book Synopsis Advanced Abnormal Child Psychology by : Michel Hersen
Download or read book Advanced Abnormal Child Psychology written by Michel Hersen and published by Routledge. This book was released on 2000-02 with total page 621 pages. Available in PDF, EPUB and Kindle. Book excerpt: There was a time when abnormal child psychology was the stepchild of abnormal psychology, with perhaps one or two chapters in an entire advanced textbook devoted to children. Given the explosive amount of new research on child development in general since the 1980s, "stepchild" is obviously no longer a valid characterization. Indeed, in the last 15 years, many new journals devoted to childhood problems have made their appearance on library bookshelves. The first edition of this book was assembled in an effort to integrate the empirical and clinical literatures and show the advanced undergraduate and beginning graduate student the breadth and depth of our existing knowledge about the disorders that manifest themselves early in development. Now, since its publication in 1995, a great deal more work has been done. This revised and expanded second edition includes much new material from the first edition authors and from several new ones, all respected experts in the field. Part I offers an overview. It outlines: *historical developments with documentation of the neglect and abuse that children suffered at the hands of society well into the 20th century; *developmental psychopathology as a theoretical framework to guide research and clinical efforts; *psychophysiological determinants of behavior, with special attention focused on childhood autism, and attention deficit and antisocial conduct disorders; *theoretical, methodological, and practical considerations involved in determining investigatory paths including sampling, design selection, measurement, data analysis, and pragmatics; and *the reactions of children, families, and society to complex and diverse child health problems. Part II addresses assessment and treatment issues. It discusses: *behavioral treatment of childhood disorders and multiple case examples of commonly used techniques; *new developments in pharmacological treatment and sound guidelines for the consideration of pharmacotherapy; and *formulations and a review of preventive interventions. Part III examines specific disorders of childhood and adolescence. It discusses: *anxiety disorders, affective and mood disorders, mental retardation, autism, specific developmental disorders, conduct disorder, attention-deficit hyperactivity disorder (ADHD), and eating disorders; *psychological aspects of pediatric disorders--interventions tailored to the needs of the child and family to maximize adaptation and recovery; and *substance use disorders--ranging from models emphasizing social influences to those focusing on biological vulnerabilities. Each chapter in Part III has an identical structure--clinical description, causes, course, familial contributions, psychological and genetic influences, current treatments, summary--and includes numerous case illustrations.
Book Synopsis Handbook of Pediatric Psychology in School Settings by : Ronald T. Brown
Download or read book Handbook of Pediatric Psychology in School Settings written by Ronald T. Brown and published by Routledge. This book was released on 2003-09-12 with total page 840 pages. Available in PDF, EPUB and Kindle. Book excerpt: In recent years the escalating costs of health care have caused managed care programs to shift the delivery of pediatric psychological services away from specialized medical centers and into primary care and school settings. One result has been a radical expansion of school psychology into issues of clinical intervention, health promotion, and the assessment of psychotropic medications. School psychologists are now expected to either deliver or (more likely) to provide consultation regarding a wide variety of pediatric psychological services. Because this is a recent phenomenon, very few school-based psychologists or allied health practitioners (school counselors and social workers) have received training in pediatric psychology. The mission of this book is to provide them with a comprehensive and authoritative guide to their newly acquired responsibilities in such areas as psychotherapy, psychopharmacology, health promotion, and prevention of disease. This book is appropriate for anyone concerned with issues of pediatric psychology in school settings: school psychologists, pediatric psychologists, clinical child psychologists, as well as pediatricians and child psychiatrists.
Book Synopsis Cystic Fibrosis in Primary Care by : Douglas Lewis, MD, FAAFP
Download or read book Cystic Fibrosis in Primary Care written by Douglas Lewis, MD, FAAFP and published by Springer Nature. This book was released on 2020-01-28 with total page 184 pages. Available in PDF, EPUB and Kindle. Book excerpt: Cystic fibrosis is a disease that affects the entire body. It tends to be thought of as primarily a pulmonary disease since pulmonary decline is the main factor in early mortality. Because of the multi-system nature of the disease, a better understanding of cystic fibrosis expands the family physician's understanding of subjects ranging from genetics to pulmonary function to nutrition to colon transport to hydration to electrolyte management. The primary care philosophy is unique in that it always considers how a narrow problem can affect an individual globally. Cystic Fibrosis care can often feel fractured to patients as they are sent to multiple specialists to deal with problems outside of the comfort level of a prior or current specialist. With a broad medical philosophy, care is more inclusive as clinicians can manage topics such as diabetes and preventive care without multiple referrals and additional appointments. Family physicians are well-positioned and well-qualified to competently meet many of the care needs of those with cystic fibrosis. This book is edited by a family medicine physician who has specialist level experience with the disease. It opens with a background on cystic fibrosis foundations and centers to familiarize the reader. The next chapter gives a basic overview of the disease. Each of the subsequent chapters provide a comprehensive look at how cystic fibrosis affects other areas of the body that the primary care physician should be familiar with. Major components of cystic fibrosis such as physiology, spirometry, inflammation, airway clearance, chronic infection, cystic fibrosis related diabetes and pancreatic insufficiency, among others, are thoroughly explained. Written by experts in the field, Cystic Fibrosis in Primary Care appeals to all family physicians as well as specialists, residents, medical students physician assistants and nurse practitioners alike.
Book Synopsis Quality of Life in Child and Adolescent Illness by : Hans M. Koot
Download or read book Quality of Life in Child and Adolescent Illness written by Hans M. Koot and published by Psychology Press. This book was released on 2001 with total page 486 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book introduces the reader to the emerging field of quality of life assessment and provides a comprehensive overview of the conceptual and methodological issues concerning quality of life in child and adolescent illness.
Book Synopsis Diet and Exercise in Cystic Fibrosis by : Ronald Ross Watson
Download or read book Diet and Exercise in Cystic Fibrosis written by Ronald Ross Watson and published by Academic Press. This book was released on 2014-07-29 with total page 419 pages. Available in PDF, EPUB and Kindle. Book excerpt: Diet and Exercise in Cystic Fibrosis, a unique reference edited by distinguished and internationally recognized nutritionist and immunologist Ronald Ross Watson, fills the gap in the current dietary modalities aimed at controlling cystic fibrosis. Using expert evaluation on the latest studies of the role of food and exercise in lifelong management of cystic fibrosis, this valuable resource shows how to maintain intestinal, hepatic, and pulmonary high quality function for improving quality of life for those with cystic fibrosis. A helpful tool for researchers and clinicians alike, this reference helps refine research targets, and provides the beginning of a structured dietary management scheme for those with cystic fibrosis. - Provides a detailed resource that reviews the health problems occurring in Cystic Fibrosis relative to dietary, complementary, and alternative therapies - Contains expert evaluation on the role of foods and exercise for lifelong management of Cystic Fibrosis to maintain intestinal, hepatic, and pulmonary high quality function for improved quality of life - Defines and evaluates various nutritional and dietary approaches to the unique problems of those with Cystic Fibrosis
Book Synopsis Handbook of Genomics and the Family by : Kenneth P. Tercyak
Download or read book Handbook of Genomics and the Family written by Kenneth P. Tercyak and published by Springer Science & Business Media. This book was released on 2010-08-12 with total page 616 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book introduces readers to the study of how genes, singly and in combination with each other and the environment, affect health and behavior. It provides family-focused perspectives relating to genetic counseling and education.
Book Synopsis The Psychology of Childhood Illness by : Christine Eiser
Download or read book The Psychology of Childhood Illness written by Christine Eiser and published by Springer Science & Business Media. This book was released on 2012-12-06 with total page 264 pages. Available in PDF, EPUB and Kindle. Book excerpt: The pattern of childhood illness has changed significantly during this century. Many frightening conditions such as polio and tuberculosis have essentially been eradicated. Other conditions that were once fatal have now achieved the status of chronic disorders, for example, leukemia, cancer, and cystic fibrosis. Technological advances which have resulted in the medical treatment of these conditions have, however, created a gamut of psychological problems for the children and their families. Recognition of these problems has lagged behind other advances in pediatric medicine. The emergence of a specialist area of pediatric psychology (Wright, 1975) has largely been responsible for the mushrooming of research in the area. In much early work, the emphasis was on the impact of chronic illness on children and their families. Reactions at times of greatest trauma, especially diagnosis or death, were particularly well documented. Issues relating to day-to-day aspects of child care, involving questions of discipline or protectiveness, have received much less attention. As far as the sick child is concerned, there has been much investigation of academic and intellectual development, as well as of personality changes that might accompany illness.
Book Synopsis Hodson and Geddes' Cystic Fibrosis by : Andrew Bush
Download or read book Hodson and Geddes' Cystic Fibrosis written by Andrew Bush and published by CRC Press. This book was released on 2015-07-24 with total page 675 pages. Available in PDF, EPUB and Kindle. Book excerpt: Hodson and Geddes' Cystic Fibrosis provides everything the respiratory clinician, pulmonologist or health professional treating patients needs in a single manageable volume. This international and authoritative work brings together current knowledge and has become established in previous editions as a leading reference in the field. This fourth edition includes a wealth of new information, figures, useful videos, and a companion eBook. The basic science that underlies the disease and its progression is outlined in detail and put into a clinical context. Diagnostic and clinical aspects are covered in depth, as well as promising advances such as gene therapies and other novel molecular based treatments. Patient monitoring and the importance of multidisciplinary care are also emphasized. This edition: Features accessible sections reflecting the multidisciplinary nature of the cystic fibrosis care team Contains a chapter written by patients and families about their experiences with the disease Includes expanded coverage of clinical areas, including chapters covering sleep, lung mechanics and the work of breathing, upper airway disease, insulin deficiency and diabetes, bone disease, and sexual and reproductive issues Discusses management both in the hospital and at home Includes a new section on monitoring and discusses the use of databases to improve patient care Covers monitoring in different age groups, exercise testing and the outcomes of clinical trials in these areas Includes chapters devoted to nursing, physiotherapy, psychology, and palliative and spiritual care Throughout, the emphasis is on providing an up-to-date and balanced review of both the clinical and basic science aspects of the subject and reflecting the multidisciplinary nature of the cystic fibrosis care team.
Book Synopsis Aiming to Improve Equity in Pulmonary Health, An Issue of Clinics in Chest Medicine, E-Book by : Emily Brigham
Download or read book Aiming to Improve Equity in Pulmonary Health, An Issue of Clinics in Chest Medicine, E-Book written by Emily Brigham and published by Elsevier Health Sciences. This book was released on 2023-08-02 with total page 225 pages. Available in PDF, EPUB and Kindle. Book excerpt: In this issue, guest editors bring their considerable expertise to this important topic.Provides in-depth reviews on the latest updates in the field, providing actionable insights for clinical practice. Presents the latest information on this timely, focused topic under the leadership of experienced editors in the field. Authors synthesize and distill the latest research and practice guidelines to create these timely topic-based reviews.
Book Synopsis Role of the Family in the Rehabilitation of the Physically Disabled by : Paul W. Power
Download or read book Role of the Family in the Rehabilitation of the Physically Disabled written by Paul W. Power and published by . This book was released on 1980 with total page 580 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Facts about Cystic Fibrosis written by and published by . This book was released on 1995 with total page 6 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Liver Disease in Children by : Frederick J. Suchy
Download or read book Liver Disease in Children written by Frederick J. Suchy and published by Cambridge University Press. This book was released on 2007-05-07 with total page 995 pages. Available in PDF, EPUB and Kindle. Book excerpt: Completely revised new edition of the premier reference on pediatric liver disease. Liver Disease in Children, 3rd Edition provides authoritative coverage of every aspect of liver disease affecting infants, children, and adolescents. The book offers an integrated approach to the science and clinical practice of pediatric hepatology and charts the substantial progress in understanding and treating these diseases. Chapters are written by international experts and address the unique pathophysiology, manifestations, and management of these disorders in the pediatric population. The third edition has been thoroughly updated and features new contributions on liver development, cholestatic and autoimmune disorders, fatty liver disease, and inborn errors of metabolism. With the continued evolution of pediatric hepatology as a discipline, this text remains an essential reference for all physicians involved in the care of children with liver disease.
