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Functional Status And Health Related Quality Of Life Assessment In Patients With Rheumatoid Arthritis
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Book Synopsis Functional Status and Health Related Quality of Life Assessment in Patients with Rheumatoid Arthritis by : Graeme Hawthorne
Download or read book Functional Status and Health Related Quality of Life Assessment in Patients with Rheumatoid Arthritis written by Graeme Hawthorne and published by . This book was released on 2000 with total page 52 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Impact of Pain Acceptance and Health-related Quality of Life and Functional Status in Women with Rheumatoid Arthritis by : Chavare Sumita Dhananjay
Download or read book Impact of Pain Acceptance and Health-related Quality of Life and Functional Status in Women with Rheumatoid Arthritis written by Chavare Sumita Dhananjay and published by Jordanpeterson. This book was released on 2022-11-13 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: ABSTRACT Chronic pain is a major health concern in India as well as globally due to increase in prevalence rate of chronic pain in recent years with alarming rate. The aetiology of chronic pain involves biological, psychological, social factors which leads to serious implications in various spheres of life of an individual suffering with chronic pain. Despite of multidimensional nature of chronic pain, the contribution of psychological and social factors in pain management is overlooked and is rarely explored by conducting the empirical research studies. Rheumatoid arthritis is one of the serious causes of chronic pain in the world with higher prevalence rate mainly among women. Rheumatoid arthritis (RA) is an autoimmune disease with unknown causes which is characterized by joint stiffness, severe joint pain. There is no permanent cure for RA at present and is currently managed by mainly using pharmacological treatment. RA has significant impact on an individual's capacity to perform basic daily living activities, professional duties and family responsibilities which ultimately affects mental health of an individual. Depression and anxiety are major mental health concerns among RA patients which are found to be linked with several psychological aspects of an individual. Therefore, considering the role of psychological factors in maintaining wellbeing of an individual with RA, the present research aims to study the effect of pain acceptance and active coping on health-related quality of life and functional status among women with RA. Present study was conducted on the sample of 175 women patients with Rheumatoid Arthritis seeking treatment from two private Rheumatology clinics in Pune. The data for the present study was collected by using purposive sampling method. Mixed method research design was implemented in the present study, wherein first quantitative data was obtained by administering the standardized tools and the qualitative data was collected through in-depth interviews and the participants' responses on open-ended question mentioned in personal information form. The tools for obtaining quantitative data included Chronic Pain Acceptance Questionnaire (CPAQ), Vanderbilt Pain Management Inventory (VPMI), Health Assessment Questionnaire (HAQ) and WHO Quality of life-BREF. Obtained quantitative data was statistically analysed with the help of SPSS Ver.22 by conducting Pearson Product Moment Correlation analysis, ChiSquare test of association and simple linear regression analysis to investigate the relationship between pain acceptance and active coping with health-related quality of
Book Synopsis Health-related Quality of Life by : Joan Gygax Spicer
Download or read book Health-related Quality of Life written by Joan Gygax Spicer and published by . This book was released on 1998 with total page 324 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Measuring Health-Related Quality of Life in Children and Adolescents by : Dennis Drotar
Download or read book Measuring Health-Related Quality of Life in Children and Adolescents written by Dennis Drotar and published by Psychology Press. This book was released on 2014-06-03 with total page 394 pages. Available in PDF, EPUB and Kindle. Book excerpt: This volume's purpose is to describe concepts and methods concerning assessment of health-related quality of life (HRQOL) in children and adolescents with a special focus on chronic health conditions. The impetus for this book came from a recognition of the increasing importance of HRQOL assessments in the evaluation of treatment outcomes and the need to increase the utilization of HRQOL assessments in research and clinical applications with a range of pediatric populations. The need to develop a volume that describes new research and clinical applications concerning this topic stemmed from several recent developments. There is a continuing need for evaluations of the efficacy of medical treatments for children and adolescents, including those with chronic health conditions. To address these critical unmet needs in the field of HRQOL assessment, and to advance scientific methods and clinical applications in this field, a conference was held at Case Western Reserve University. The conference set out to summarize current information concerning the development and implementation of measures of HRQOL assessment, to identify and consider key conceptual and methodological issues in research concerning the measurement of HRQOL, and to recommend priorities to advance the state-of-the-art in research and clinical applications of QOL assessment in children and adolescents with chronic health conditions. This volume summarizes and synthesizes the information that was presented by the conference participants in a series of lively discussions and chapters that were based on the presentations.
Book Synopsis Quality of Life Assessment: Key Issues in the 1990s by : S.R. Walker
Download or read book Quality of Life Assessment: Key Issues in the 1990s written by S.R. Walker and published by Springer Science & Business Media. This book was released on 2012-12-06 with total page 491 pages. Available in PDF, EPUB and Kindle. Book excerpt: It was over five years ago that the Centre for Medicines Research organized a workshop entitled "Quality of Life: Assessment and Application". This workshop brought together a unique group of participants, some of whom had been involved in studies on quality of life for well over a decade, whilst others were meeting the subject for the first time. This blend of experienced researchers and enthusiastic newcomers was a great stimulus to the discus sions which followed individual presentations as well as that resulting from the study groups. In the ensuing publication, a balance was sought between a consideration of the complex principles underlying the assessment of quality of life and the application of such assessments to specific clinical conditions which necessitated this approach. The organization in 1991 of a second workshop entitled "Quality of Life Assessment: Key Issues in the 1990s" resulted in a further consideration of the quality of life philosophy, concepts and key instruments together with an update on assessing quality of life in a number of major disease areas. Of particular importance was an examination of various viewpoints concerned with ethical questions and their implications, and quality oflife from industry, regulatory and health care purchasers' perspectives. As a result of this second workshop, the editors of the original book referred to above decided to produce a second edition with a number of updates and additional chapters.
Book Synopsis Recent Advances in Clinical Trial Design and Analysis by : Peter F. Thall
Download or read book Recent Advances in Clinical Trial Design and Analysis written by Peter F. Thall and published by Springer Science & Business Media. This book was released on 2012-12-06 with total page 263 pages. Available in PDF, EPUB and Kindle. Book excerpt: Clinical trials have two purposes -- to treat the patients in the trial, and to obtain information which increases our understanding of the disease and especially how patients respond to treatment. Statistical design provides a means to achieve both these aims, while statistical data analysis provides methods for extracting useful information from the trial data. Recent advances in statistical computing have enabled statisticians to implement very rapidly a broad array of methods which previously were either impractical or impossible. Biostatisticians are now able to provide much greater support to medical researchers working in both clinical and laboratory settings. As our collective toolkit of techniques for analyzing data has grown, it has become increasingly difficult for biostatisticians to keep up with all the developments in our own field. Recent Advances in Clinical Trial Design and Analysis brings together biostatisticians doing cutting-edge research and explains some of the more recent developments in biostatistics to clinicians and scientists who work in clinical trials.
Download or read book Osteoarthritis written by J.-Y. Reginster and published by Springer Science & Business Media. This book was released on 2012-12-06 with total page 790 pages. Available in PDF, EPUB and Kindle. Book excerpt: Musculoskeletal diseases are rapidly becoming a major health concern. The incidence of osteoarthritis, the most common arthritic disorder, is increasing steadily due to the graying of the world population. This disease is responsible of human life, a time in for significant morbidity, particularly in the second half which the quality of life is of primary importance. The aim of this publication is to bring to physicians and scientists a comprehensive overview of the field, from molecules to men. The direct costs related to osteoarthritis have been increasing steadily over the years and will soon be comparable to those of other major illnesses, such as cardiovascular diseases. This, of course, does not take into account all of the other costs related to the disease which often cannot be simply calculated in dollars and cents. There has been a great deal of renewed interest in osteoarthritis in the last few decades. This has been brought on by the need to improve our knowledge of all aspects of the disease, especially with regard to its etiopathogenesis and treatment. The most recent findings and developments on the structural, bio chemical, biomechanical and molecular changes observed in clinical and ex perimental osteoarthritis are presented in this book.
Book Synopsis Health-related Quality of Life and Functional Ability as Patient-reported Outcomes in Rheumatoid Arthritis by : Toini Uutela
Download or read book Health-related Quality of Life and Functional Ability as Patient-reported Outcomes in Rheumatoid Arthritis written by Toini Uutela and published by . This book was released on 2011 with total page 147 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Author :National Academies of Sciences, Engineering, and Medicine Publisher :National Academies Press ISBN 13 :0309489385 Total Pages :445 pages Book Rating :4.3/5 (94 download)
Book Synopsis Functional Assessment for Adults with Disabilities by : National Academies of Sciences, Engineering, and Medicine
Download or read book Functional Assessment for Adults with Disabilities written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2019-08-31 with total page 445 pages. Available in PDF, EPUB and Kindle. Book excerpt: The U.S. Social Security Administration (SSA) provides disability benefits through the Social Security Disability Insurance (SSDI) and Supplemental Security Income (SSI) programs. To receive SSDI or SSI disability benefits, an individual must meet the statutory definition of disability, which is "the inability to engage in any substantial gainful activity [SGA] by reason of any medically determinable physical or mental impairment which can be expected to result in death or which has lasted or can be expected to last for a continuous period of not less than 12 months." SSA uses a five-step sequential process to determine whether an adult applicant meets this definition. Functional Assessment for Adults with Disabilities examines ways to collect information about an individual's physical and mental (cognitive and noncognitive) functional abilities relevant to work requirements. This report discusses the types of information that support findings of limitations in functional abilities relevant to work requirements, and provides findings and conclusions regarding the collection of information and assessment of functional abilities relevant to work requirements.
Book Synopsis The Use of Psychological Testing for Treatment Planning and Outcomes Assessment by : Mark E. Maruish
Download or read book The Use of Psychological Testing for Treatment Planning and Outcomes Assessment written by Mark E. Maruish and published by Taylor & Francis. This book was released on 2014-04-08 with total page 666 pages. Available in PDF, EPUB and Kindle. Book excerpt: Test-based psychological assessment has been significantly affected by the health care revolution in the United States during the past two decades. Despite new limitations on psychological services across the board and psychological testing in particular, it continues to offer a rapid and efficient method of identifying problems, planning and monitoring a course of treatment, and assessing the outcomes of interventions. This thoroughly revised and greatly expanded third edition of a classic reference, now three volumes, constitutes an invaluable resource for practitioners who in a managed care era need to focus their testing not on the general goals of personality assessment, symptom identification, and diagnosis so often presented to them as students and trainees, but on specific questions: What course of treatment should this person receive? How is it going? Was it effective? New chapters describe new tests and models and new concerns such as ethical aspects of outcomes assessment. Volume I reviews general issues and recommendations concerning the use of psychological testing for screening for psychological disturbances, planning and monitoring appropriate interventions, and the assessing outcomes, and offers specific guidelines for selecting instruments. It also considers more specific issues such as the analysis of group and individual patient data, the selection and implementation of outcomes instrumentation, and the ethics of gathering and using outcomes data. Volume II discusses psychological measures developed for use with younger children and adolescents that can be used for the purposes outlined in Volume I; Volume III, those developed for use with adults. Drawing on the knowledge and experience of a diverse group of leading experts--test developers, researchers, clinicians and others, the third edition of The Use of Psychological Testing for Treatment Planning and Outcomes Assessment provides vital assistance to all clinicians, and to their trainees and graduate students.
Book Synopsis Statistical Methods for Quality of Life Studies by : Mounir Mesbah
Download or read book Statistical Methods for Quality of Life Studies written by Mounir Mesbah and published by Springer Science & Business Media. This book was released on 2013-06-29 with total page 358 pages. Available in PDF, EPUB and Kindle. Book excerpt: On October 16 and 17, 2000, we hosted an international workshop entitled "Statistical Design, Measurement, and Analysis of Health Related Quality of Life." The workshop was held in the beautiful city of Arradon, South Brittany, France with the main goal of fostering an interdisciplinary forum for discussion of theoretical and applied statistical issues arising in studies of health-related quality of life (HRQoL). Included were biostatisticians, psychometricians and public health professionals (e.g., physicians, sociologists, psychologists) active in the study ofHRQoL. In assembling this volume, we invited each conference participant to contribute a paper based on his or her presentation and the ensuing and very interesting discussions that took place in Arradon. All papers were peer-reviewed, by anonymous reviewers, and revised before final editing and acceptance. Although this process was quite time consuming, we believe that it greatly improved the volume as a whole, making this book a valuable contribution to the field ofHRQoL research. The volume presents a broad spectrum of papers presented at the Workshop, and thus illustrates the range of current research related to the theory, methods and applications of HRQoL, as well as the interdisciplinary nature ofthis work. Following an introduction written by Sir David Cox, it includes 27 articles organized into the following chapters.
Book Synopsis The Wiley Handbook on the Aging Mind and Brain by : Matthew Rizzo
Download or read book The Wiley Handbook on the Aging Mind and Brain written by Matthew Rizzo and published by John Wiley & Sons. This book was released on 2018-05-29 with total page 807 pages. Available in PDF, EPUB and Kindle. Book excerpt: A thought-provoking treatise on understanding and treating the aging mind and brain This handbook recognizes the critical issues surrounding mind and brain health by tackling overarching and pragmatic needs so as to better understand these multifaceted issues. This includes summarizing and synthesizing critical evidence, approaches, and strategies from multidisciplinary research—all of which have advanced our understanding of the neural substrates of attention, perception, memory, language, decision-making, motor behavior, social cognition, emotion, and other mental functions. Written by a plethora of health experts from around the world, The Wiley Handbook on the Aging Mind and Brain offers in-depth contributions in 7 sections: Introduction; Methods of Assessment; Brain Functions and Behavior across the Lifespan; Cognition, Behavior and Disease; Optimizing Brain Function in Health and Disease; Forensics, Competence, Legal, Ethics and Policy Issues; and Conclusion and New Directions. Geared toward improving the recognition, diagnosis, and treatment of many brain-based disorders that occur in older adults and that cause disability and death Seeks to advance the care of patients who have perceptual, cognitive, language, memory, emotional, and many other behavioral symptoms associated with these disorders Addresses principles and practice relevant to challenges posed by the US National Academy of Sciences and National Institute of Aging (NIA) Presents materials at a scientific level that is appropriate for a wide variety of providers The Wiley Handbook on the Aging Mind and Brain is an important text for neurologists, psychiatrists, psychologists, physiatrists, geriatricians, nurses, pharmacists, social workers, and other primary caregivers who care for patients in routine and specialty practices as well as students, interns, residents, and fellows.
Book Synopsis Comprehensive Occupational Therapy for Rheumatoid Arthritis by : Carin Dreijer du Plessis
Download or read book Comprehensive Occupational Therapy for Rheumatoid Arthritis written by Carin Dreijer du Plessis and published by LAP Lambert Academic Publishing. This book was released on 2012 with total page 148 pages. Available in PDF, EPUB and Kindle. Book excerpt: Rheumatoid Arthritis (RA) is a chronic disabling joint disease. Empowering patients with RA to self manage the disease can lead to changes in behaviour, pain or physical health and psychosocial health status. Limited evidence exists for the efficacy of comprehensive Occupational Therapy (OT) intervention for patients with RA in improving functional ability. This study aimed to evaluate the impact of comprehensive OT intervention on patients with RA in producing a sustained improvement in patients' functional ability. It was found that a comprehensive in-patient occupational therapy programme does lead to sustained significant improvement in functional ability and Health related quality of life (HR-QOL). Focus groups and home based intervention appears to have a clinically significant impact on disease activity.
Book Synopsis Comparing Two Programs for Helping Patients Make Informed Decisions about Rheumatoid Arthritis Treatment by : Susan J. Blalock
Download or read book Comparing Two Programs for Helping Patients Make Informed Decisions about Rheumatoid Arthritis Treatment written by Susan J. Blalock and published by . This book was released on 2020 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: BACKGROUND: Rheumatoid arthritis (RA) is a systemic, autoimmune disorder affecting nearly 1% of the US adult population. Current therapeutic guidelines underscore the importance of aggressive treatment of RA with disease-modifying antirheumatic drugs (DMARDs) to control inflammation. Aggressive treatment has been shown to improve patient-centered outcomes, including better symptom control, functional status, and health-related quality of life, and reduced risk of premature death. OBJECTIVES: The aim of the study was to evaluate the effectiveness of the Drug Facts box format for presenting written information concerning medications used to manage RA and the Strategic Memory Advanced Reasoning Training (SMART) program to enhance gist reasoning ability. DESIGN: The study used a 2 × 2 factorial research design. A total of 286 patients who met the following inclusion criteria participated: aged ≥18 years, diagnosis of physician-confirmed RA, moderate-to-severe disease activity as assessed via the Routine Assessment of Patient Index Data 3 (RAPID3), the absence of medical conditions that could prevent escalation of DMARD therapy, email and internet access, and absence of hearing or visual deficits that would prevent them from accessing the interventions. Participants were randomly assigned to 1 of 4 study groups: (1) Drug Facts box only, (2) Drug Facts box plus the SMART program, (3) other consumer medication information (CMI) only, and (4) other CMI plus the SMART program. Data were collected via telephone interviews and online, self-administered questionnaires at 4 data collection points: baseline (before intervention delivery) and 6 weeks, 3 months, and 6 months after baseline. The primary outcome variable was informed decision-making, defined as making a decision consistent with one's values concerning the use of aggressive treatment to manage RA disease activity in the presence of adequate knowledge. At each data collection point, participants were classified as meeting the criteria for informed decision-making if they 1. answered at least 85% of the items correctly on a measure assessing knowledge of medications used to treat RA; scored >0 on a scale assessing attitudes concerning the use of medications to control RA disease activity, where positive numbers reflected more positive attitudes; and were using a DMARD OR2. answered at least 85% of the knowledge items correctly, scored ≤0 on the attitudes scale, and were not using a DMARD. RESULTS: We experienced a high level of attrition (23%) from baseline to the 6-month follow-up. In addition, participation in intervention activities was modest. Of the 143 participants assigned to receive SMART, 38.5% (n = 55) completed at least 3 of the 4 class sessions. All study participants had access to a website with RA medication information, either the Drug Facts box website or the other-CMI website, depending on group assignment. The percentage of participants who viewed at least 1 webpage on these sites varied across study groups, ranging from 23.4% to 53.9%. In our primary analyses, we found no support for our hypotheses that participants would be more likely to meet the criteria for informed decision-making at the 6-month follow-up if they were assigned to receive (1) medication information via the Drug Facts box format vs with the other-CMI format, (2) gist reasoning training delivered via the SMART program vs no training, or (3) Drug Facts box-formatted information plus the SMART program vs individuals in the other 3 groups. Among participants randomly assigned to receive information in the Drug Facts box format, 46.3% met the criteria for informed decision-making at the 6-month follow-up, compared with 47.2% of participants randomly assigned to receive information in the other-CMI format (difference = 0.9; 95% CI, −10.7 to 12.5; P = .88). Among participants randomly assigned to the SMART program, 49.4% met the criteria for informed decision-making at the 6-month follow-up, compared with 44.2% of participants randomly assigned to the no-SMART groups (difference = 5.2; 95% CI, −6.4 to 16.7; P = .38). Finally, among participants randomly assigned to receive Drug Facts box-formatted information combined with the SMART program, 42.2% met the criteria for informed decision-making at the 6-month follow-up, compared with 48.2% of participants randomly assigned to other study groups (difference = −6.0; 95% CI, −19.5 to 7.7; P = .40). However, in unplanned exploratory analyses to determine if the effects of the interventions varied as a function of whether participants met the criteria for informed decision-making at baseline, we found a significant interaction (odds ratio, 0.20; 95% CI, 0.06-0.68; P = .01) at the 6-month follow-up between informed decision-making at baseline and assignment to SMART vs assignment to no SMART. Among participants in the SMART group who did not meet the criteria for informed decision-making at baseline, 40.3% met the criteria at 6-month follow-up, compared with 23.6% of participants in the no-SMART group (mean difference = 18.9; 95% CI, 5.6-32.2; P = .007). Among participants classified as meeting the criteria for informed decision-making at baseline, the difference between the SMART and no-SMART groups was not statistically significant (mean difference = −15.2; 95% CI, −32.7 to 2.4; P = .09). CONCLUSIONS: We found no support for our hypotheses that providing participants with information via the Drug Facts box format and gist reasoning training delivered via the SMART program, either alone or in combination, would have a beneficial effect on informed decision-making in patients with RA. However, the findings from our unplanned exploratory analyses suggest that participation in the SMART program may have a beneficial effect on informed decision-making among patients with inadequate knowledge concerning therapeutic options at baseline or whose current behavior is inconsistent with their values. Because this finding emerged from unplanned exploratory analyses, additional research is needed to determine whether it can be replicated. Future studies should focus on individuals with RA who do not meet the criteria for informed decision-making at baseline and should target patients at a point in time when changes to their medication regimen are being considered. LIMITATIONS: Many study participants did not use the intervention materials. This likely diluted the intervention effects and decreased our ability to detect interactions between the experimental conditions. In addition, we experienced a high level of attrition (23%) from baseline to the 6-month follow-up and differential attrition across study groups. Most importantly, participants assigned to SMART were more likely to drop out of the study than were participants assigned to the no-SMART group.
Download or read book Needs Assessment Instruments written by and published by . This book was released on 1990 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Medicine and Culture by : Lynn Payer
Download or read book Medicine and Culture written by Lynn Payer and published by Macmillan. This book was released on 1996-11-15 with total page 222 pages. Available in PDF, EPUB and Kindle. Book excerpt: The author concludes that medical decisions are often based on cultural biases and philosophies, suggesting a revaluation of American medical practices is warranted.
Book Synopsis Living Well with Chronic Illness by : Institute of Medicine
Download or read book Living Well with Chronic Illness written by Institute of Medicine and published by National Academies Press. This book was released on 2011-06-30 with total page 350 pages. Available in PDF, EPUB and Kindle. Book excerpt: In the United States, chronic diseases currently account for 70 percent of all deaths, and close to 48 million Americans report a disability related to a chronic condition. Today, about one in four Americans have multiple diseases and the prevalence and burden of chronic disease in the elderly and racial/ethnic minorities are notably disproportionate. Chronic disease has now emerged as a major public health problem and it threatens not only population health, but our social and economic welfare. Living Well with Chronic Disease identifies the population-based public health actions that can help reduce disability and improve functioning and quality of life among individuals who are at risk of developing a chronic disease and those with one or more diseases. The book recommends that all major federally funded programmatic and research initiatives in health include an evaluation on health-related quality of life and functional status. Also, the book recommends increasing support for implementation research on how to disseminate effective longterm lifestyle interventions in community-based settings that improve living well with chronic disease. Living Well with Chronic Disease uses three frameworks and considers diseases such as heart disease and stroke, diabetes, depression, and respiratory problems. The book's recommendations will inform policy makers concerned with health reform in public- and private-sectors and also managers of communitybased and public-health intervention programs, private and public research funders, and patients living with one or more chronic conditions.
