Families Of Adolescents With Cystic Fibrosis

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Adolescent Risk and Vulnerability

Author : National Research Council
Publisher : National Academies Press
ISBN 13 : 0309170362
Total Pages : 164 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis Adolescent Risk and Vulnerability by : National Research Council

Download or read book Adolescent Risk and Vulnerability written by National Research Council and published by National Academies Press. This book was released on 2001-10-08 with total page 164 pages. Available in PDF, EPUB and Kindle. Book excerpt: Adolescents obviously do not always act in ways that serve their own best interests, even as defined by them. Sometimes their perception of their own risks, even of survival to adulthood, is larger than the reality; in other cases, they underestimate the risks of particular actions or behaviors. It is possible, indeed likely, that some adolescents engage in risky behaviors because of a perception of invulnerabilityâ€"the current conventional wisdom of adults' views of adolescent behavior. Others, however, take risks because they feel vulnerable to a point approaching hopelessness. In either case, these perceptions can prompt adolescents to make poor decisions that can put them at risk and leave them vulnerable to physical or psychological harm that may have a negative impact on their long-term health and viability. A small planning group was formed to develop a workshop on reconceptualizing adolescent risk and vulnerability. With funding from Carnegie Corporation of New York, the Workshop on Adolescent Risk and Vulnerability: Setting Priorities took place on March 13, 2001, in Washington, DC. The workshop's goal was to put into perspective the total burden of vulnerability that adolescents face, taking advantage of the growing societal concern for adolescents, the need to set priorities for meeting adolescents' needs, and the opportunity to apply decision-making perspectives to this critical area. This report summarizes the workshop.

Cystic Fibrosis, Third Edition

Author : Margaret Hodson
Publisher : CRC Press
ISBN 13 : 1444113690
Total Pages : 523 pages
Book Rating : 4.4/5 (441 download)

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Book Synopsis Cystic Fibrosis, Third Edition by : Margaret Hodson

Download or read book Cystic Fibrosis, Third Edition written by Margaret Hodson and published by CRC Press. This book was released on 2012-12-11 with total page 523 pages. Available in PDF, EPUB and Kindle. Book excerpt: This international and authoritative work, which brings together current knowledge in the field of cystic fibrosis, has become established in previous editions as a leading reference in the field. The third edition continues to provide everything that the clinician or allied health professional treating patients with cystic fibrosis will need in a single manageable volume. Thoroughly revised and updated throughout, it reflects the significant advances that have been made in the field since the second edition published in 2000. Cystic Fibrosis evaluates in detail the basic science that underlies the disease and its progression, putting it into a clinical context. Diagnostic and clinical aspects are covered in depth, as are monitoring the condition and the importance of multi-disciplinary care, reflected in the sections into which the new edition has been sub-divided to improve accessibility. Future developments, including novel therapies, are covered in a concluding section. The clinical areas have been much expanded, with the introduction of separate chapters covering sleep, lung mechanics and the work of breathing, upper airway disease, insulin deficiency and diabetes, bone disease, and sexual and reproductive issues. A new section on monitoring discusses the use of databases to improve patient care, and covers monitoring in different age groups, exercise testing and the outcomes of clinical trials in these areas. Separate chapters are devoted to paramedical issues, including nursing, physiotherapy, psychology, and palliative and spiritual care. Throughout, the emphasis is on providing an up-to-date and balanced review of both the clinical and basic sciences aspects of the subject, and to reflect the multi-disciplinary nature of the cystic fibrosis care team. Drawing on the expertise of a team of international specialists from a variety of backgrounds, the third edition of Cystic Fibrosiswill continue to find a broad readership among respiratory physicians, paediatricians, specialist nurses and other health professionals working with patients with cystic fibrosis.

Hodson and Geddes' Cystic Fibrosis

Author : Andrew Bush
Publisher : CRC Press
ISBN 13 : 1444180010
Total Pages : 675 pages
Book Rating : 4.4/5 (441 download)

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Book Synopsis Hodson and Geddes' Cystic Fibrosis by : Andrew Bush

Download or read book Hodson and Geddes' Cystic Fibrosis written by Andrew Bush and published by CRC Press. This book was released on 2015-07-24 with total page 675 pages. Available in PDF, EPUB and Kindle. Book excerpt: Hodson and Geddes' Cystic Fibrosis provides everything the respiratory clinician, pulmonologist or health professional treating patients needs in a single manageable volume. This international and authoritative work brings together current knowledge and has become established in previous editions as a leading reference in the field. This fourth edition includes a wealth of new information, figures, useful videos, and a companion eBook. The basic science that underlies the disease and its progression is outlined in detail and put into a clinical context. Diagnostic and clinical aspects are covered in depth, as well as promising advances such as gene therapies and other novel molecular based treatments. Patient monitoring and the importance of multidisciplinary care are also emphasized. This edition: Features accessible sections reflecting the multidisciplinary nature of the cystic fibrosis care team Contains a chapter written by patients and families about their experiences with the disease Includes expanded coverage of clinical areas, including chapters covering sleep, lung mechanics and the work of breathing, upper airway disease, insulin deficiency and diabetes, bone disease, and sexual and reproductive issues Discusses management both in the hospital and at home Includes a new section on monitoring and discusses the use of databases to improve patient care Covers monitoring in different age groups, exercise testing and the outcomes of clinical trials in these areas Includes chapters devoted to nursing, physiotherapy, psychology, and palliative and spiritual care Throughout, the emphasis is on providing an up-to-date and balanced review of both the clinical and basic science aspects of the subject and reflecting the multidisciplinary nature of the cystic fibrosis care team.

Cystic Fibrosis

Author : Stephanie Duggins Davis
Publisher : Springer Nature
ISBN 13 : 3030423824
Total Pages : 525 pages
Book Rating : 4.0/5 (34 download)

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Book Synopsis Cystic Fibrosis by : Stephanie Duggins Davis

Download or read book Cystic Fibrosis written by Stephanie Duggins Davis and published by Springer Nature. This book was released on 2020-05-21 with total page 525 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book provides a comprehensive overview of the multisystem disease, cystic fibrosis, for both pediatric and adult patients. Written by experts in the field, the text outlines the progressive nature of CF as well as the impact of this autosomal recessive disease on the respiratory, gastrointestinal, endocrine, rheumatologic, and renal systems, as well as the patient’s mental health. The book begins with a chapter describing the history of cystic fibrosis and how the face of this life-shortening disease has changed over the past several decades. The following chapters elucidate the pathophysiology of how cystic fibrosis impacts each organ system. Current management and therapeutics are detailed with step-by-step guidelines for clinicians. This book is unique in that it highlights the entire person, not just the respiratory system, with detailed inclusion of the patient perspectives throughout, informing practice standards and considerations. This is an ideal guide for pediatric and adult physicians who care for patients with cystic fibrosis, as well as respiratory therapists, physical therapists, nurses, nutritionists, and pharmacists who care for these patients.

Behavioral and Emotional Disorders in Adolescents

Author : David A. Wolfe
Publisher : Guilford Publications
ISBN 13 : 1462515231
Total Pages : 737 pages
Book Rating : 4.4/5 (625 download)

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Book Synopsis Behavioral and Emotional Disorders in Adolescents by : David A. Wolfe

Download or read book Behavioral and Emotional Disorders in Adolescents written by David A. Wolfe and published by Guilford Publications. This book was released on 2013-12-09 with total page 737 pages. Available in PDF, EPUB and Kindle. Book excerpt: Systematic, authoritative, and timely, this is an outstanding reference and text for anyone working with or studying adolescents. More than 50 leading experts comprehensively review current knowledge on adolescent externalizing disorders, internalizing disorders, developmental disorders, personality and health-related disorders, gender identity and sexual disorders, and maltreatment and trauma. Chapters identify the core features of each disorder; explore its etiology, course, and outcome; address diagnostic issues specific to adolescents; and describe effective assessment and treatment approaches. The book also provides an integrative conceptual framework for understanding both healthy and maladaptive adolescent development.

Behavioral Approaches to Chronic Disease in Adolescence

Author : William O'Donohue
Publisher : Springer Science & Business Media
ISBN 13 : 0387876871
Total Pages : 339 pages
Book Rating : 4.3/5 (878 download)

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Book Synopsis Behavioral Approaches to Chronic Disease in Adolescence by : William O'Donohue

Download or read book Behavioral Approaches to Chronic Disease in Adolescence written by William O'Donohue and published by Springer Science & Business Media. This book was released on 2009-06-12 with total page 339 pages. Available in PDF, EPUB and Kindle. Book excerpt: Adolescence is typically fraught with problems, even under optimal conditions. And when chronic illness is added to the picture, medical and related social issues can complicate, and even disrupt, the course of development. The first text geared toward the integrated care setting, Behavioral Approaches to Chronic Disease in Adolescence offers clinicians an evidence-based guide to helping their young clients manage their chronic conditions and treating the psychosocial effects—from school problems and stigma to noncompliance and depression—that frequently follow diagnosis. Expert contributors present up-to-date information on epidemiology, symptoms, comorbid psychosocial problems, and treatment options for a variety of common illnesses, arranged to foster effective interventions for adolescents and efficient collaboration with other care providers in the team. Coverage is comprehensive, authoritative, and accessible, ensuring best practice while respecting each client’s individuality: Empirically-based treatment guidelines for illnesses commonly found in youth, including Type 1 and 2 diabetes, asthma, cancer, obesity, and chronic pain. Overview of the physiology of adolescence, particularly as it may be affected by medical conditions, and of adolescent brain development. Latest findings on the role of families in teens’ adjustment to illness and treatment. Cultural considerations affecting ethnically diverse clients and their families. Detailed discussions of ethical issues relevant to treating chronically ill young people, and of controversies involving pharmacotherapy with this population. Chapters contain useful handouts for clinicians and clients. Taking Care of the Practitioner” chapter with helpful strategies for avoiding burnout. Its emphasis on specific practical information makes Behavioral Approaches to Chronic Disease in Adolescence a “go-to” reference for health psychologists, child and adolescent mental health practitioners, pediatricians and family practitioners, and clinical social workers.

Comprehensive Evidence Based Interventions for Children and Adolescents

Author : Candice A. Alfano
Publisher : John Wiley & Sons
ISBN 13 : 1118864824
Total Pages : 432 pages
Book Rating : 4.1/5 (188 download)

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Book Synopsis Comprehensive Evidence Based Interventions for Children and Adolescents by : Candice A. Alfano

Download or read book Comprehensive Evidence Based Interventions for Children and Adolescents written by Candice A. Alfano and published by John Wiley & Sons. This book was released on 2014-06-18 with total page 432 pages. Available in PDF, EPUB and Kindle. Book excerpt: A complete guide to evidence based interventions for children and adolescents The past decade has witnessed the development of numerous interventions proved to be highly effective; several treatments are now considered to be "well established" or "probably efficacious" interventions for children. Given the range of providers working with children—clinical psychologists, child psychiatrists, clinical social workers, school psychologists, and marriage and family therapists—this book is designed to provide all professionals the information they now need about the use of these evidence-based interventions (EBIs), as well as the evaluation criteria used to determine their efficacy in in meeting the mental health needs of children. Alfano and Beidel have assembled a team of experts to write the disorder chapters. Each chapter begins with an overview of the disorder then delves into evidence-based approaches to treatment, the impact of parental involvement, case-by-case modifications, progress measurement, and clinical examples. In overview chapters the editors cover: The role of development in treatment planning and implementation Dissemination of EBIs into school and community settings The use of controversial therapies with children Emerging methods of service delivery and access improvement Comprehensive Evidence Based Interventions for Children and Adolescents provides clinicians, researchers, and students alike with the theoretical, conceptual, and practical skills to provide children and adolescents with the best care possible.

Diabetic Adolescents and their Families

Author : Inge Seiffge-Krenke
Publisher : Cambridge University Press
ISBN 13 : 9781139430289
Total Pages : 358 pages
Book Rating : 4.4/5 (32 download)

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Book Synopsis Diabetic Adolescents and their Families by : Inge Seiffge-Krenke

Download or read book Diabetic Adolescents and their Families written by Inge Seiffge-Krenke and published by Cambridge University Press. This book was released on 2001-08-27 with total page 358 pages. Available in PDF, EPUB and Kindle. Book excerpt: Diabetic Adolescents and their Families presents an innovative approach to the study of coping with chronic illness by focusing on the developmental context in its description of a longitudinal study of families with a diabetic or a healthy adolescent. Inge Seiffge-Krenke considers perspectives of the ill adolescents, their parents, and the physicians treating them. Highlighted topics include typical stressors, individual and family coping strategies, and psychosocial consequences associated with diabetes. The author also examines the changes that occur in adolescents' self-concept and body image and analyses their relationships with parents, physicians, friends, and romantic partners as sources of support and of stress. Numerous case studies illustrate the difficulty of balancing normative development and adherence to the therapeutic regimen. Integrating clinical concerns with fundamental findings of developmental psychology, this book will be of value to anyone with an interest in the study of adolescent health psychology.

Family Resilience and Chronic Illness

Author : Ginger L. Welch
Publisher : Springer
ISBN 13 : 3319260332
Total Pages : 238 pages
Book Rating : 4.3/5 (192 download)

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Book Synopsis Family Resilience and Chronic Illness by : Ginger L. Welch

Download or read book Family Resilience and Chronic Illness written by Ginger L. Welch and published by Springer. This book was released on 2016-07-29 with total page 238 pages. Available in PDF, EPUB and Kindle. Book excerpt: This interdisciplinary volume offers theoretical, empirical, and practical insights into the strengths of families beset by chronic health issues. Featuring topics that run the lifespan from infancy to late adulthood, its coverage reflects both the diversity of family challenges in long-term illness and the wealth of effective approaches to intervention. The component skills of resilience in life-changing circumstances, from coping and meaning making to balancing care and self-care, are on rich display in a framework for their enhancement in therapy. The book’s expert contributors include tools to aid readers in the learning and teaching of concepts as they model respectful, meaningful research methods and ethical, non-judgmental practice. Among the topics covered: Helping families survive and thrive through the premature birth of an infant. Enhancing coping and resiliency among families of individuals with sickle cell disease. A family science approach to pediatric obesity treatment. Risk and resilience of children and families involved with the foster care system. Strengthening families facing breast cancer: emerging trends and clinical recommendations. The unfolding of unique problems in later life families. With its mix of practical and empirical expertise, Family Resilience and Chronic Illness: Interdisciplinary and Translational Perspectives has much to offer both researchers in the family resilience field and mental health practitioners working with clients with chronic illness.

Handbook of Pediatric Psychology, Fourth Edition

Author : Michael C. Roberts
Publisher : Guilford Press
ISBN 13 : 1606233750
Total Pages : 833 pages
Book Rating : 4.6/5 (62 download)

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Book Synopsis Handbook of Pediatric Psychology, Fourth Edition by : Michael C. Roberts

Download or read book Handbook of Pediatric Psychology, Fourth Edition written by Michael C. Roberts and published by Guilford Press. This book was released on 2009-08-10 with total page 833 pages. Available in PDF, EPUB and Kindle. Book excerpt: Sponsored by the Society of Pediatric Psychology, this authoritative work is recognized as the definitive reference in the field. In concise, peer-reviewed chapters, leading authorities comprehensively examine links between psychological and medical issues from infancy through adolescence. Psychosocial aspects of specific medical problems and developmental, emotional, and behavioral disorders are explored in depth. The volume discusses issues in training and service delivery and reviews evidence-based approaches to intervention and prevention. See also Clinical Practice of Pediatric Psychology, edited by Michael C. Roberts, Brandon S. Aylward, and Yelena P. Wu, which uses rich case material to illustrate intervention techniques.

The Adolescent in Family Therapy

Author : Joseph A. Micucci
Publisher : Guilford Press
ISBN 13 : 1606233556
Total Pages : 385 pages
Book Rating : 4.6/5 (62 download)

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Book Synopsis The Adolescent in Family Therapy by : Joseph A. Micucci

Download or read book The Adolescent in Family Therapy written by Joseph A. Micucci and published by Guilford Press. This book was released on 2009-07-20 with total page 385 pages. Available in PDF, EPUB and Kindle. Book excerpt: Rich with clinical wisdom, this successful text and practitioner guide offers a comprehensive framework for treating adolescent problems in the family context. Even as teenagers become increasingly independent, Joseph Micucci shows, they still need parental guidance and nurturance. By strengthening family relationships, clinicians can alleviate symptoms and promote behavioral change. Vivid examples and session transcripts illustrate specific strategies for treating eating disorders, depression, anxiety, defiance, underachievement, and other frequently encountered challenges. Weaving together family therapy techniques with ideas from psychodynamic and cognitive-behavioral approaches, the book has a pragmatic focus on effective interventions for getting adolescent development back on track. New to This Edition *Thoroughly updated to reflect current research and reader feedback. *Chapter on adolescent anxiety disorders. *Expanded coverage of attachment issues; lesbian, gay, and bisexual youth; and racial and ethnic identity. *New case material, one of the book’s most popular features.

Textbook of Pediatric Psychosomatic Medicine

Author : Richard J. Shaw
Publisher : American Psychiatric Pub
ISBN 13 : 1585629308
Total Pages : 554 pages
Book Rating : 4.5/5 (856 download)

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Book Synopsis Textbook of Pediatric Psychosomatic Medicine by : Richard J. Shaw

Download or read book Textbook of Pediatric Psychosomatic Medicine written by Richard J. Shaw and published by American Psychiatric Pub. This book was released on 2010-03-18 with total page 554 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Textbook of Pediatric Psychosomatic Medicine provides a comprehensive, empirically based knowledge of assessment and treatment issues in children and adolescents with physical illness. Scholarly, authoritative, and evidence based, it is the first volume of its kind and will help to define the field going forward. Addressing a very wide range of medical subspecialties, this volume is a first step for researchers who want to obtain a review of the psychiatric issues in their respective specialties. In addition, the book offers many special features, including An exceptionally strong section on psychopharmacology in the medical setting, which is complemented by a comprehensive set of reference tables on psychopharmacological agents, including doses, side effects, and indications for use in the physically ill child. Definitive chapters on less commonly reviewed topics that are of particular relevance for clinicians who treat physically ill children, including pediatric palliative care, Munchausen syndrome by proxy, and pediatric feeding disorders. Coverage of key legal and forensic issues in pediatric psychosomatic medicine. Presentation of material in graphical and tabular formats for maximal usefulness, including templates of specific questions for assessing common psychiatric symptoms and flowcharts illustrating step-by-step approaches to pain and somatoform disorders. Relevance to a broad range of professionals, including psychiatrists, pediatricians, psychologists, nurses, medical students, and social workers who work with children in medical settings. May be adopted as a textbook for psychology undergraduate classes, social work internships, and both general and child psychiatry residency training programs. The editors are recognized both nationally and internationally as being among the foremost experts for their respective fields, and they have assembled the leading practitioners of pediatric psychosomatic medicine to create this volume. The only complete text on pediatric psychosomatic medicine, this volume is destined to prove seminal in the field and indispensable in the clinician's library.

Cystic Fibrosis

Author : Marcus A. Mall
Publisher : European Respiratory Society
ISBN 13 : 1849840512
Total Pages : 342 pages
Book Rating : 4.8/5 (498 download)

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Book Synopsis Cystic Fibrosis by : Marcus A. Mall

Download or read book Cystic Fibrosis written by Marcus A. Mall and published by European Respiratory Society. This book was released on 2014-06-01 with total page 342 pages. Available in PDF, EPUB and Kindle. Book excerpt: Cystic fibrosis (CF) is one of the most common fatal hereditary diseases. The discovery of the cystic fibrosis transmembrane conductance regulator (CFTR) gene 25 years ago set the stage for unraveling the pathogenesis of CF lung disease, continuous refinement of symptomatic treatments and the development of mutation-specific therapies, which are now becoming available for a subgroup of patients. This ERS Monograph provides an update on all aspects of CF lung disease, from infancy to adulthood, including current concepts on disease process, improvements in early diagnosis and monitoring, therapeutic approaches, and patient care. The book highlights important recent developments and discusses the next steps that will be required for further improvement of the life expectancy and quality of life of CF patients. It will be an essential reference for basic and clinical scientists and all members of the CF team.

Chronic Illness in Children and Adolescents

Author : Ronald T Brown
Publisher : Hogrefe Publishing GmbH
ISBN 13 : 1616763191
Total Pages : 95 pages
Book Rating : 4.6/5 (167 download)

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Book Synopsis Chronic Illness in Children and Adolescents by : Ronald T Brown

Download or read book Chronic Illness in Children and Adolescents written by Ronald T Brown and published by Hogrefe Publishing GmbH. This book was released on 2007-01-01 with total page 95 pages. Available in PDF, EPUB and Kindle. Book excerpt: Management of chronic illness in children and adolescents often is a multifaceted challenge that requires the attention and expertise of individuals from a variety of disciplines that include psychology, psychiatry, social work, and medicine. The aim of this book is to provide readers with a practical overview of the definitions, characteristics, theories and models, diagnostic and treatment indications, and relevant aspects and methods of evidence-based psychosocial treatments for chronic illness in children and adolescents. Although treatments and research for chronic conditions are reviewed in general, particular attention is directed at asthma, cancer, cystic fibrosis, diabetes mellitus, and sickle cell disease due to the high incidence of these chronic diseases among children and adolescents. Case vignettes and suggestions for further reading are provided for the interested reader.

In Support of Families

Author : Michael W. Yogman
Publisher : Harvard University Press
ISBN 13 : 9780674447356
Total Pages : 316 pages
Book Rating : 4.4/5 (473 download)

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Book Synopsis In Support of Families by : Michael W. Yogman

Download or read book In Support of Families written by Michael W. Yogman and published by Harvard University Press. This book was released on 1986 with total page 316 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book examines the effects of stress on children and parents and explores strategies for coping. The authors view the family as a dynamic system whose health is vitally related to internal relationships and interactions with other social networks. Stress in this context can be a positive or a negative influence on family health.

Encyclopedia of Family Health

Author : Martha Craft-Rosenberg
Publisher : SAGE
ISBN 13 : 1412969182
Total Pages : 1145 pages
Book Rating : 4.4/5 (129 download)

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Book Synopsis Encyclopedia of Family Health by : Martha Craft-Rosenberg

Download or read book Encyclopedia of Family Health written by Martha Craft-Rosenberg and published by SAGE. This book was released on 2011-01-20 with total page 1145 pages. Available in PDF, EPUB and Kindle. Book excerpt: Including entries from disciplines across the social sciences, this two-volume set provides coverage of a variety of issues related to the theory, research, practice and policy of health within a family context.

Adolescent Encounters With Death, Bereavement, and Coping

Author : Charles A. Corr, PhD, CT
Publisher : Springer Publishing Company
ISBN 13 : 0826110746
Total Pages : 415 pages
Book Rating : 4.8/5 (261 download)

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Book Synopsis Adolescent Encounters With Death, Bereavement, and Coping by : Charles A. Corr, PhD, CT

Download or read book Adolescent Encounters With Death, Bereavement, and Coping written by Charles A. Corr, PhD, CT and published by Springer Publishing Company. This book was released on 2009-03-16 with total page 415 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Capturing from the start that 'Childhood is, and always has been, a vulnerable time,' we have a rich in gathering of contributed pieces that bring us into the raw, fragile arena of children traumatized by life events and behaviors..." --Illness, Crisis, and Loss "Balk and Corr again have edited a book that will set the direction of the field for yet another decade....Caregivers can count on this book...for insight and intervention." --From the Foreword by Kenneth J. Doka, PhD Professor, The Graduate School, The College of New Rochelle Author, Counseling Individuals With Life-Threatening Illness Over a decade has passed since the publication of Balk and Corr's groundbreaking Handbook of Adolescent Death and Bereavement. This new book, Adolescent Encounters With Death, Bereavement, and Coping, analyzes the challenges faced by adolescents coping with death, dying, and bereavement, and examines the new, unique circumstances and advances that have transpired over the last decade. These include: Grief and coping with HIV/AIDS Adolescents, humor, and death Technology and the Internet: coping with loss in the digital world Bereavement over the deaths of celebrities The book also explores critical, imaginative conceptual frameworks and models that have emerged on the scene, including: The dual process model for understanding loss Ideas about assumptive worlds Debates about the benefit and harm of grief counseling New research on recovery and resilience following bereavement Written from the interdisciplinary perspectives of expert sociologists, psychologists, educators, social workers, nurses, and anthropologists, this book offers a breadth and depth of insight into the complex nature of adolescent bereavement. Nurses, counselors, social workers, and educators will find this book to be an invaluable resource when they try to understand and help adolescents coping with death-related issues.