Exploring The Experiences Of Living With A Controversial Illness In Patients With Fibromyalgia

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Exploring the Experiences of Living with a Controversial Illness in Patients with Fibromyalgia

Author : Samantha L. Wheeler
Publisher :
ISBN 13 :
Total Pages : 332 pages
Book Rating : 4.:/5 (755 download)

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Book Synopsis Exploring the Experiences of Living with a Controversial Illness in Patients with Fibromyalgia by : Samantha L. Wheeler

Download or read book Exploring the Experiences of Living with a Controversial Illness in Patients with Fibromyalgia written by Samantha L. Wheeler and published by . This book was released on 2011 with total page 332 pages. Available in PDF, EPUB and Kindle. Book excerpt: Fibromyalgia is an illness of great controversy estimated to affect approximately 4% of the US population. There are no widely accepted etiological causes or clear physiological explanations of fibromyalgia. Only a few research studies have addressed the concept of illness uncertainty in patients with fibromyalgia. There are no current studies that examine how fibromyalgia patients experience, perceive, and understand their illness in terms of having a syndrome with an unknown etiology. This qualitative study, using phenomenological methods, explored the concept of unknown etiology as one factor in illness uncertainty. Ten participants, diagnosed with fibromyalgia from 2-15 years were interviewed. The findings from the study are divided into two parts. The first part presents a description of each participant case along with each study participant's understanding of the cause of his or her illness. The second part of the findings offers the results from the data analyses at the cross case level and describes commonalities of the fibromyalgia illness experience. The major findings of this study include the following: (a) common experiences of: pain, exhaustion, frustration, depression, cognitive difficulties, un-predictable and changing symptoms, not looking sick, and the experience of not being understood; (b) participants understood their illness as one that is invisible to others and one that is constantly changing; (c) the unclear etiology had either a continuing negative impact or negative impact at the beginning of one's illness course, whereas those diagnosed longer let go of worry about cause and shifted to a coping focus; (d) friends were perceived to be more supportive than family or members of the medical community; (e) specialists in rheumatology and pain management were perceived as having the best response regarding members of the medical community; (f) the response from medical practitioners is improving; and (g) achieving support varied depending on the person considered. Discussion of the study findings include relating the findings to existing research regarding fibromyalgia and illness uncertainty, implications of the findings for Counseling psychologists, and the strengths and limitations of the study. This study sought to provide helpful information through stories of fibromyalgia patients, with hope of contributing to the scarce body of knowledge regarding the subjective experiences of this controversial illness.

Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309316928
Total Pages : 251 pages
Book Rating : 4.3/5 (93 download)

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Book Synopsis Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome by : Institute of Medicine

Download or read book Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome written by Institute of Medicine and published by National Academies Press. This book was released on 2015-03-16 with total page 251 pages. Available in PDF, EPUB and Kindle. Book excerpt: Myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS) are serious, debilitating conditions that affect millions of people in the United States and around the world. ME/CFS can cause significant impairment and disability. Despite substantial efforts by researchers to better understand ME/CFS, there is no known cause or effective treatment. Diagnosing the disease remains a challenge, and patients often struggle with their illness for years before an identification is made. Some health care providers have been skeptical about the serious physiological - rather than psychological - nature of the illness. Once diagnosed, patients often complain of receiving hostility from their health care provider as well as being subjected to treatment strategies that exacerbate their symptoms. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome proposes new diagnostic clinical criteria for ME/CFS and a new term for the illness - systemic exertion intolerance disease(SEID). According to this report, the term myalgic encephalomyelitis does not accurately describe this illness, and the term chronic fatigue syndrome can result in trivialization and stigmatization for patients afflicted with this illness. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome stresses that SEID is a medical - not a psychiatric or psychological - illness. This report lists the major symptoms of SEID and recommends a diagnostic process.One of the report's most important conclusions is that a thorough history, physical examination, and targeted work-up are necessary and often sufficient for diagnosis. The new criteria will allow a large percentage of undiagnosed patients to receive an accurate diagnosis and appropriate care. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome will be a valuable resource to promote the prompt diagnosis of patients with this complex, multisystem, and often devastating disorder; enhance public understanding; and provide a firm foundation for future improvements in diagnosis and treatment.

Fibromyalgia

Author : Dawn A. Marcus
Publisher : Springer Science & Business Media
ISBN 13 : 1441916091
Total Pages : 266 pages
Book Rating : 4.4/5 (419 download)

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Book Synopsis Fibromyalgia by : Dawn A. Marcus

Download or read book Fibromyalgia written by Dawn A. Marcus and published by Springer Science & Business Media. This book was released on 2010-09-15 with total page 266 pages. Available in PDF, EPUB and Kindle. Book excerpt: Caring for patients with fibromyalgia requires an understanding of the complex nature of this condition. Fibromyalgia: A Practical Clinical Guide is a state-of-the-art resource designed to clarify the controversy about fibromyalgia and to provide clinicians with the latest information about its pathogenesis and clinical evaluation, as well as evidence-based guidelines for effective treatment. This comprehensive title includes fully referenced, practical information on this fast-emerging field and provides useful clinical suggestions and practical office tools for effectively managing patients. The good news for fibromyalgia patients and their healthcare providers is that a wide range of medication, non-medication, and non-traditional therapies have been proven to effectively reduce some of the most problematic and disabling fibromyalgia symptoms. Brief case vignettes help describe many of the common presentations, concerns, and complexities typically seen in fibromyalgia patients. Invaluable graphic aids -- boxes, tables, and figures – are used widely to provide quick reference for the busy clinician seeking information. In addition, clinic-proven assessment and documentation tools for evaluating and monitoring fibromyalgia symptoms and severity are provided, along with handouts for patients to provide guidance on pain management techniques, including detailed exercise and relaxation technique instructions. A unique addition to the literature, Fibromyalgia: A Practical Clinical Guide is an indispensable reference for all clinicians who care for patients with fibromyalgia.

High Quality Care for All

Author : Secretary of State for Health
Publisher : The Stationery Office
ISBN 13 : 9780101743228
Total Pages : 92 pages
Book Rating : 4.7/5 (432 download)

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Book Synopsis High Quality Care for All by : Secretary of State for Health

Download or read book High Quality Care for All written by Secretary of State for Health and published by The Stationery Office. This book was released on 2008 with total page 92 pages. Available in PDF, EPUB and Kindle. Book excerpt: This review incorporates the views and visions of 2,000 clinicians and other health and social care professionals from every NHS region in England, and has been developed in discussion with patients, carers and the general public. The changes proposed are locally-led, patient-centred and clinically driven. Chapter 2 identifies the challenges facing the NHS in the 21st century: ever higher expectations; demand driven by demographics as people live longer; health in an age of information and connectivity; the changing nature of disease; advances in treatment; a changing health workplace. Chapter 3 outlines the proposals to deliver high quality care for patients and the public, with an emphasis on helping people to stay healthy, empowering patients, providing the most effective treatments, and keeping patients as safe as possible in healthcare environments. The importance of quality in all aspects of the NHS is reinforced in chapter 4, and must be understood from the perspective of the patient's safety, experience in care received and the effectiveness of that care. Best practice will be widely promoted, with a central role for the National Institute for Health and Clinical Excellence (NICE) in expanding national standards. This will bring clarity to the high standards expected and quality performance will be measured and published. The review outlines the need to put frontline staff in control of this drive for quality (chapter 5), with greater freedom to use their expertise and skill and decision-making to find innovative ways to improve care for patients. Clinical and managerial leadership skills at the local level need further development, and all levels of staff will receive support through education and training (chapter 6). The review recommends the introduction of an NHS Constitution (chapter 7). The final chapter sets out the means of implementation.

Medically Unexplained Symptoms, Somatisation and Bodily Distress

Author : Francis Creed
Publisher : Cambridge University Press
ISBN 13 : 1139498452
Total Pages : 267 pages
Book Rating : 4.1/5 (394 download)

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Book Synopsis Medically Unexplained Symptoms, Somatisation and Bodily Distress by : Francis Creed

Download or read book Medically Unexplained Symptoms, Somatisation and Bodily Distress written by Francis Creed and published by Cambridge University Press. This book was released on 2011-07-14 with total page 267 pages. Available in PDF, EPUB and Kindle. Book excerpt: Medically unexplained symptoms and somatisation are the fifth most common reason for visits to doctors in the USA, and form one of the most expensive diagnostic categories in Europe. The range of disorders involved includes irritable bowel syndrome, chronic widespread pain and chronic fatigue syndrome. This book reviews the current literature, clarifies and disseminates clear information about the size and scope of the problem, and discusses current and future national and international guidelines. It also identifies barriers to progress and makes evidence-based recommendations for the management of medically unexplained symptoms and somatisation. Written and edited by leading experts in the field, this authoritative text defines international best practice and is an important resource for psychiatrists, clinical psychologists, primary care doctors and those responsible for establishing health policy.

The Fibromyalgia Story

Author : Kristin Barker
Publisher : Temple University Press
ISBN 13 : 1439904596
Total Pages : 265 pages
Book Rating : 4.4/5 (399 download)

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Book Synopsis The Fibromyalgia Story by : Kristin Barker

Download or read book The Fibromyalgia Story written by Kristin Barker and published by Temple University Press. This book was released on 2009-09-04 with total page 265 pages. Available in PDF, EPUB and Kindle. Book excerpt: The first unbiased assessment of fibromyalgia.

Sleep Disorders and Sleep Deprivation

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309101115
Total Pages : 425 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis Sleep Disorders and Sleep Deprivation by : Institute of Medicine

Download or read book Sleep Disorders and Sleep Deprivation written by Institute of Medicine and published by National Academies Press. This book was released on 2006-10-13 with total page 425 pages. Available in PDF, EPUB and Kindle. Book excerpt: Clinical practice related to sleep problems and sleep disorders has been expanding rapidly in the last few years, but scientific research is not keeping pace. Sleep apnea, insomnia, and restless legs syndrome are three examples of very common disorders for which we have little biological information. This new book cuts across a variety of medical disciplines such as neurology, pulmonology, pediatrics, internal medicine, psychiatry, psychology, otolaryngology, and nursing, as well as other medical practices with an interest in the management of sleep pathology. This area of research is not limited to very young and old patientsâ€"sleep disorders reach across all ages and ethnicities. Sleep Disorders and Sleep Deprivation presents a structured analysis that explores the following: Improving awareness among the general public and health care professionals. Increasing investment in interdisciplinary somnology and sleep medicine research training and mentoring activities. Validating and developing new and existing technologies for diagnosis and treatment. This book will be of interest to those looking to learn more about the enormous public health burden of sleep disorders and sleep deprivation and the strikingly limited capacity of the health care enterprise to identify and treat the majority of individuals suffering from sleep problems.

Pain Management and the Opioid Epidemic

Author : National Academies of Sciences, Engineering, and Medicine
Publisher : National Academies Press
ISBN 13 : 0309459575
Total Pages : 483 pages
Book Rating : 4.3/5 (94 download)

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Book Synopsis Pain Management and the Opioid Epidemic by : National Academies of Sciences, Engineering, and Medicine

Download or read book Pain Management and the Opioid Epidemic written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2017-09-28 with total page 483 pages. Available in PDF, EPUB and Kindle. Book excerpt: Drug overdose, driven largely by overdose related to the use of opioids, is now the leading cause of unintentional injury death in the United States. The ongoing opioid crisis lies at the intersection of two public health challenges: reducing the burden of suffering from pain and containing the rising toll of the harms that can arise from the use of opioid medications. Chronic pain and opioid use disorder both represent complex human conditions affecting millions of Americans and causing untold disability and loss of function. In the context of the growing opioid problem, the U.S. Food and Drug Administration (FDA) launched an Opioids Action Plan in early 2016. As part of this plan, the FDA asked the National Academies of Sciences, Engineering, and Medicine to convene a committee to update the state of the science on pain research, care, and education and to identify actions the FDA and others can take to respond to the opioid epidemic, with a particular focus on informing FDA's development of a formal method for incorporating individual and societal considerations into its risk-benefit framework for opioid approval and monitoring.

Under the Medical Gaze

Author : Susan Greenhalgh
Publisher : Univ of California Press
ISBN 13 : 0520925092
Total Pages : 385 pages
Book Rating : 4.5/5 (29 download)

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Book Synopsis Under the Medical Gaze by : Susan Greenhalgh

Download or read book Under the Medical Gaze written by Susan Greenhalgh and published by Univ of California Press. This book was released on 2001-05-03 with total page 385 pages. Available in PDF, EPUB and Kindle. Book excerpt: This compelling account of the author's experience with a chronic pain disorder and subsequent interaction with the American health care system goes to the heart of the workings of power and culture in the biomedical domain. It is a medical whodunit full of mysterious misdiagnosis, subtle power plays, and shrewd detective work. Setting a new standard for the practice of autoethnography, Susan Greenhalgh presents a case study of her intense encounter with an enthusiastic young specialist who, through creative interpretation of the diagnostic criteria for a newly emerging chronic disease, became convinced she had a painful, essentially untreatable, lifelong muscle condition called fibromyalgia. Greenhalgh traces the ruinous effects of this diagnosis on her inner world, bodily health, and overall well-being. Under the Medical Gaze serves as a powerful illustration of medicine's power to create and inflict suffering, to define disease and the self, and to manage relationships and lives. Greenhalgh ultimately learns that she had been misdiagnosed and begins the long process of undoing the physical and emotional damage brought about by her nearly catastrophic treatment. In considering how things could go so awry, she embarks on a cogent and powerful analysis of the sociopolitical sources of pain through feminist, cultural, and political understandings of the nature of medical discourse and practice in the United States. She develops fresh arguments about the power of medicine to medicalize our selves and lives, the seductions of medical science, and the deep, psychologically rooted difficulties women patients face in interactions with male physicians. In the end, Under the Medical Gaze goes beyond the critique of biomedicine to probe the social roots of chronic pain and therapeutic alternatives that rely on neither the body-cure of conventional medicine nor the mind-cure of some alternative medicines, but rather a broader set of strategies that address the sociopolitical sources of pain.

The Public Shaping of Medical Research

Author : Peter Wehling
Publisher : Routledge
ISBN 13 : 1317584473
Total Pages : 309 pages
Book Rating : 4.3/5 (175 download)

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Book Synopsis The Public Shaping of Medical Research by : Peter Wehling

Download or read book The Public Shaping of Medical Research written by Peter Wehling and published by Routledge. This book was released on 2014-11-27 with total page 309 pages. Available in PDF, EPUB and Kindle. Book excerpt: Bringing together an international selection of leading scholars and representatives from patients’ organizations, this comprehensive collection explores the interaction between civil society groups and biomedical science, technology development, and research politics. This volume is an important reference for academics and researchers with an interest in the sociology of health and illness, science and technology studies, the sociology of knowledge or healthcare management and research, as well as medical researchers and those involved with health-related civil society organizations.

Relieving Pain in America

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 030921484X
Total Pages : 383 pages
Book Rating : 4.3/5 (92 download)

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Book Synopsis Relieving Pain in America by : Institute of Medicine

Download or read book Relieving Pain in America written by Institute of Medicine and published by National Academies Press. This book was released on 2011-10-26 with total page 383 pages. Available in PDF, EPUB and Kindle. Book excerpt: Chronic pain costs the nation up to $635 billion each year in medical treatment and lost productivity. The 2010 Patient Protection and Affordable Care Act required the Department of Health and Human Services (HHS) to enlist the Institute of Medicine (IOM) in examining pain as a public health problem. In this report, the IOM offers a blueprint for action in transforming prevention, care, education, and research, with the goal of providing relief for people with pain in America. To reach the vast multitude of people with various types of pain, the nation must adopt a population-level prevention and management strategy. The IOM recommends that HHS develop a comprehensive plan with specific goals, actions, and timeframes. Better data are needed to help shape efforts, especially on the groups of people currently underdiagnosed and undertreated, and the IOM encourages federal and state agencies and private organizations to accelerate the collection of data on pain incidence, prevalence, and treatments. Because pain varies from patient to patient, healthcare providers should increasingly aim at tailoring pain care to each person's experience, and self-management of pain should be promoted. In addition, because there are major gaps in knowledge about pain across health care and society alike, the IOM recommends that federal agencies and other stakeholders redesign education programs to bridge these gaps. Pain is a major driver for visits to physicians, a major reason for taking medications, a major cause of disability, and a key factor in quality of life and productivity. Given the burden of pain in human lives, dollars, and social consequences, relieving pain should be a national priority.

Temporomandibular Disorders

Author : National Academies of Sciences, Engineering, and Medicine
Publisher : National Academies Press
ISBN 13 : 0309670489
Total Pages : 427 pages
Book Rating : 4.3/5 (96 download)

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Book Synopsis Temporomandibular Disorders by : National Academies of Sciences, Engineering, and Medicine

Download or read book Temporomandibular Disorders written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2020-07-01 with total page 427 pages. Available in PDF, EPUB and Kindle. Book excerpt: Temporomandibular disorders (TMDs), are a set of more than 30 health disorders associated with both the temporomandibular joints and the muscles and tissues of the jaw. TMDs have a range of causes and often co-occur with a number of overlapping medical conditions, including headaches, fibromyalgia, back pain and irritable bowel syndrome. TMDs can be transient or long-lasting and may be associated with problems that range from an occasional click of the jaw to severe chronic pain involving the entire orofacial region. Everyday activities, including eating and talking, are often difficult for people with TMDs, and many of them suffer with severe chronic pain due to this condition. Common social activities that most people take for granted, such as smiling, laughing, and kissing, can become unbearable. This dysfunction and pain, and its associated suffering, take a terrible toll on affected individuals, their families, and their friends. Individuals with TMDs often feel stigmatized and invalidated in their experiences by their family, friends, and, often, the health care community. Misjudgments and a failure to understand the nature and depths of TMDs can have severe consequences - more pain and more suffering - for individuals, their families and our society. Temporomandibular Disorders: Priorities for Research and Care calls on a number of stakeholders - across medicine, dentistry, and other fields - to improve the health and well-being of individuals with a TMD. This report addresses the current state of knowledge regarding TMD research, education and training, safety and efficacy of clinical treatments of TMDs, and burden and costs associated with TMDs. The recommendations of Temporomandibular Disorders focus on the actions that many organizations and agencies should take to improve TMD research and care and improve the overall health and well-being of individuals with a TMD.

In the Kingdom of the Sick

Author : Laurie Edwards
Publisher : Bloomsbury Publishing USA
ISBN 13 : 0802718019
Total Pages : 255 pages
Book Rating : 4.8/5 (27 download)

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Book Synopsis In the Kingdom of the Sick by : Laurie Edwards

Download or read book In the Kingdom of the Sick written by Laurie Edwards and published by Bloomsbury Publishing USA. This book was released on 2013-04-09 with total page 255 pages. Available in PDF, EPUB and Kindle. Book excerpt: Citing a high percentage of Americans who live with chronic illness, an urgent call to action draws on scientific research and patient narratives to explore the role of social medial in medical advocacy, arguing that we must change attitudes about the link between health and lifestyle and provide appropriate and compassionate treatments. By the award-winning author of Life Disrupted. 25,000 first printing.

Translational Pain Research

Author : Lawrence Kruger
Publisher : CRC Press
ISBN 13 : 1439812101
Total Pages : 458 pages
Book Rating : 4.4/5 (398 download)

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Book Synopsis Translational Pain Research by : Lawrence Kruger

Download or read book Translational Pain Research written by Lawrence Kruger and published by CRC Press. This book was released on 2009-11-24 with total page 458 pages. Available in PDF, EPUB and Kindle. Book excerpt: One of the Most Rapidly Advancing Fields in Modern Neuroscience The success of molecular biology and the new tools derived from molecular genetics have revolutionized pain research and its translation to therapeutic effectiveness. Bringing together recent advances in modern neuroscience regarding genetic studies in mice and humans and the practical

The Origins of Health and Disease

Author : Michael E. Hyland
Publisher : Cambridge University Press
ISBN 13 : 1139500910
Total Pages : 359 pages
Book Rating : 4.1/5 (395 download)

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Book Synopsis The Origins of Health and Disease by : Michael E. Hyland

Download or read book The Origins of Health and Disease written by Michael E. Hyland and published by Cambridge University Press. This book was released on 2011-04-21 with total page 359 pages. Available in PDF, EPUB and Kindle. Book excerpt: Some phenomena in medicine and psychology remain unexplained by current theory. Chronic fatigue syndrome, repetitive strain injury and irritable bowel syndrome, for example, are all diseases or syndromes that cannot be explained in terms of a physiological abnormality. In this intriguing book, Michael E. Hyland proposes that there is a currently unrecognised type of illness which he calls 'dysregulatory disease'. Hyland shows how such diseases develop and how the communication and art of medicine, good nursing care, complementary medicine and psychotherapy can all act to reduce the dysregulation that leads to dysregulatory disease. The Origins of Health and Disease is a fascinating book that develops a novel theory for understanding health and disease, and demonstrates how this theory is supported by existing data, and how it explains currently unexplained phenomena. Hyland also shows how his theory leads to new testable predictions that, in turn, will lead to further scientific advancement and development.

Pain

Author : Thomas Hadjistavropoulos
Publisher : Psychology Press
ISBN 13 : 1135631980
Total Pages : 390 pages
Book Rating : 4.1/5 (356 download)

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Book Synopsis Pain by : Thomas Hadjistavropoulos

Download or read book Pain written by Thomas Hadjistavropoulos and published by Psychology Press. This book was released on 2004-02-04 with total page 390 pages. Available in PDF, EPUB and Kindle. Book excerpt: This invaluable resource presents a state-of-the-art account of the psychology of pain from leading researchers. It features contributions from clinical, social, and biopsychological perspectives, the latest theories of pain, as well as basic processes and applied issues. The book opens with an introduction to the history of pain theory and the epidemiology of pain. It then explores theoretical work, including the gate control theory/neuromatrix model, as well as biopsychosocial, cognitive/behavioral, and psychodynamic perspectives. Issues, such as the link between psychophysiological processes and consciousness and the communication of pain are examined. Pain over the life span, ethno-cultural, and individual differences are the focus of the next three chapters. Pain: Psychological Perspectives addresses current clinical issues: * pain assessment and acute and chronic pain interventions; * the unavailability of psychological interventions for chronic pain in a number of settings, the use of self-report, and issues related to the implementation of certain biomedical interventions; and * the latest ethical standards and the theories. Intended for practitioners, researchers, and students involved with the study of pain in fields such as clinical and health psychology, this book will also appeal to physicians, nurses, and physiotherapists. Pain is ideal for advanced courses on the psychology of pain, pain management, and related courses that address this topic.

Fibromyalgia

Author : Erin Lawson, MD
Publisher : Springer
ISBN 13 : 3319158201
Total Pages : 198 pages
Book Rating : 4.3/5 (191 download)

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Book Synopsis Fibromyalgia by : Erin Lawson, MD

Download or read book Fibromyalgia written by Erin Lawson, MD and published by Springer. This book was released on 2015-06-09 with total page 198 pages. Available in PDF, EPUB and Kindle. Book excerpt: This practical text provides a clinical overview of the etiology, diagnosis and treatment for fibromyalgia. Current evidence-based treatments and guidelines are emphasized along with lifestyle modification suggestions for the patient. Also included is a review of current literature, research and emerging developments on this prevalent pain syndrome. A range of healthcare specialties, including pain management, rheumatology, neurology, internal medicine and family practice, will find this comprehensive guide to be a valuable resource to their routine treatment of fibromyalgia and improve patient's quality of life.