Essays On Health Information Technology Social Media And Care Quality

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Health Care Comes Home

Author : National Research Council
Publisher : National Academies Press
ISBN 13 : 0309212405
Total Pages : 202 pages
Book Rating : 4.3/5 (92 download)

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Book Synopsis Health Care Comes Home by : National Research Council

Download or read book Health Care Comes Home written by National Research Council and published by National Academies Press. This book was released on 2011-06-22 with total page 202 pages. Available in PDF, EPUB and Kindle. Book excerpt: In the United States, health care devices, technologies, and practices are rapidly moving into the home. The factors driving this migration include the costs of health care, the growing numbers of older adults, the increasing prevalence of chronic conditions and diseases and improved survival rates for people with those conditions and diseases, and a wide range of technological innovations. The health care that results varies considerably in its safety, effectiveness, and efficiency, as well as in its quality and cost. Health Care Comes Home reviews the state of current knowledge and practice about many aspects of health care in residential settings and explores the short- and long-term effects of emerging trends and technologies. By evaluating existing systems, the book identifies design problems and imbalances between technological system demands and the capabilities of users. Health Care Comes Home recommends critical steps to improve health care in the home. The book's recommendations cover the regulation of health care technologies, proper training and preparation for people who provide in-home care, and how existing housing can be modified and new accessible housing can be better designed for residential health care. The book also identifies knowledge gaps in the field and how these can be addressed through research and development initiatives. Health Care Comes Home lays the foundation for the integration of human health factors with the design and implementation of home health care devices, technologies, and practices. The book describes ways in which the Agency for Healthcare Research and Quality (AHRQ), the U.S. Food and Drug Administration (FDA), and federal housing agencies can collaborate to improve the quality of health care at home. It is also a valuable resource for residential health care providers and caregivers.

Artificial Intelligence in Healthcare

Author : Adam Bohr
Publisher : Academic Press
ISBN 13 : 0128184396
Total Pages : 385 pages
Book Rating : 4.1/5 (281 download)

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Book Synopsis Artificial Intelligence in Healthcare by : Adam Bohr

Download or read book Artificial Intelligence in Healthcare written by Adam Bohr and published by Academic Press. This book was released on 2020-06-21 with total page 385 pages. Available in PDF, EPUB and Kindle. Book excerpt: Artificial Intelligence (AI) in Healthcare is more than a comprehensive introduction to artificial intelligence as a tool in the generation and analysis of healthcare data. The book is split into two sections where the first section describes the current healthcare challenges and the rise of AI in this arena. The ten following chapters are written by specialists in each area, covering the whole healthcare ecosystem. First, the AI applications in drug design and drug development are presented followed by its applications in the field of cancer diagnostics, treatment and medical imaging. Subsequently, the application of AI in medical devices and surgery are covered as well as remote patient monitoring. Finally, the book dives into the topics of security, privacy, information sharing, health insurances and legal aspects of AI in healthcare. - Highlights different data techniques in healthcare data analysis, including machine learning and data mining - Illustrates different applications and challenges across the design, implementation and management of intelligent systems and healthcare data networks - Includes applications and case studies across all areas of AI in healthcare data

Health Professions Education

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 030913319X
Total Pages : 191 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis Health Professions Education by : Institute of Medicine

Download or read book Health Professions Education written by Institute of Medicine and published by National Academies Press. This book was released on 2003-07-01 with total page 191 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Institute of Medicine study Crossing the Quality Chasm (2001) recommended that an interdisciplinary summit be held to further reform of health professions education in order to enhance quality and patient safety. Health Professions Education: A Bridge to Quality is the follow up to that summit, held in June 2002, where 150 participants across disciplines and occupations developed ideas about how to integrate a core set of competencies into health professions education. These core competencies include patient-centered care, interdisciplinary teams, evidence-based practice, quality improvement, and informatics. This book recommends a mix of approaches to health education improvement, including those related to oversight processes, the training environment, research, public reporting, and leadership. Educators, administrators, and health professionals can use this book to help achieve an approach to education that better prepares clinicians to meet both the needs of patients and the requirements of a changing health care system.

Clinical Practice Guidelines We Can Trust

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 030921646X
Total Pages : 217 pages
Book Rating : 4.3/5 (92 download)

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Book Synopsis Clinical Practice Guidelines We Can Trust by : Institute of Medicine

Download or read book Clinical Practice Guidelines We Can Trust written by Institute of Medicine and published by National Academies Press. This book was released on 2011-06-16 with total page 217 pages. Available in PDF, EPUB and Kindle. Book excerpt: Advances in medical, biomedical and health services research have reduced the level of uncertainty in clinical practice. Clinical practice guidelines (CPGs) complement this progress by establishing standards of care backed by strong scientific evidence. CPGs are statements that include recommendations intended to optimize patient care. These statements are informed by a systematic review of evidence and an assessment of the benefits and costs of alternative care options. Clinical Practice Guidelines We Can Trust examines the current state of clinical practice guidelines and how they can be improved to enhance healthcare quality and patient outcomes. Clinical practice guidelines now are ubiquitous in our healthcare system. The Guidelines International Network (GIN) database currently lists more than 3,700 guidelines from 39 countries. Developing guidelines presents a number of challenges including lack of transparent methodological practices, difficulty reconciling conflicting guidelines, and conflicts of interest. Clinical Practice Guidelines We Can Trust explores questions surrounding the quality of CPG development processes and the establishment of standards. It proposes eight standards for developing trustworthy clinical practice guidelines emphasizing transparency; management of conflict of interest ; systematic review-guideline development intersection; establishing evidence foundations for and rating strength of guideline recommendations; articulation of recommendations; external review; and updating. Clinical Practice Guidelines We Can Trust shows how clinical practice guidelines can enhance clinician and patient decision-making by translating complex scientific research findings into recommendations for clinical practice that are relevant to the individual patient encounter, instead of implementing a one size fits all approach to patient care. This book contains information directly related to the work of the Agency for Healthcare Research and Quality (AHRQ), as well as various Congressional staff and policymakers. It is a vital resource for medical specialty societies, disease advocacy groups, health professionals, private and international organizations that develop or use clinical practice guidelines, consumers, clinicians, and payers.

Digital Health Entrepreneurship

Author : Sharon Wulfovich
Publisher : Springer
ISBN 13 : 3030127192
Total Pages : 228 pages
Book Rating : 4.0/5 (31 download)

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Book Synopsis Digital Health Entrepreneurship by : Sharon Wulfovich

Download or read book Digital Health Entrepreneurship written by Sharon Wulfovich and published by Springer. This book was released on 2019-06-20 with total page 228 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book presents a hands on approach to the digital health innovation and entrepreneurship roadmap for digital health entrepreneurs and medical professionals who are dissatisfied with the existing literature on or are contemplating getting involved in digital health entrepreneurship. Topics covered include regulatory affairs featuring detailed guidance on the legal environment, protecting digital health intellectual property in software, hardware and business processes, financing a digital health start up, cybersecurity best practice, and digital health business model testing for desirability, feasibility, and viability. Digital Health Entrepreneurship is directed to clinicians and other digital health entrepreneurs and stresses an interdisciplinary approach to product development, deployment, dissemination and implementation. It therefore provides an ideal resource for medical professionals across a broad range of disciplines seeking a greater understanding of digital health innovation and entrepreneurship.

Crossing the Quality Chasm

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309132967
Total Pages : 359 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis Crossing the Quality Chasm by : Institute of Medicine

Download or read book Crossing the Quality Chasm written by Institute of Medicine and published by National Academies Press. This book was released on 2001-07-19 with total page 359 pages. Available in PDF, EPUB and Kindle. Book excerpt: Second in a series of publications from the Institute of Medicine's Quality of Health Care in America project Today's health care providers have more research findings and more technology available to them than ever before. Yet recent reports have raised serious doubts about the quality of health care in America. Crossing the Quality Chasm makes an urgent call for fundamental change to close the quality gap. This book recommends a sweeping redesign of the American health care system and provides overarching principles for specific direction for policymakers, health care leaders, clinicians, regulators, purchasers, and others. In this comprehensive volume the committee offers: A set of performance expectations for the 21st century health care system. A set of 10 new rules to guide patient-clinician relationships. A suggested organizing framework to better align the incentives inherent in payment and accountability with improvements in quality. Key steps to promote evidence-based practice and strengthen clinical information systems. Analyzing health care organizations as complex systems, Crossing the Quality Chasm also documents the causes of the quality gap, identifies current practices that impede quality care, and explores how systems approaches can be used to implement change.

Beyond the HIPAA Privacy Rule

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309124999
Total Pages : 334 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis Beyond the HIPAA Privacy Rule by : Institute of Medicine

Download or read book Beyond the HIPAA Privacy Rule written by Institute of Medicine and published by National Academies Press. This book was released on 2009-03-24 with total page 334 pages. Available in PDF, EPUB and Kindle. Book excerpt: In the realm of health care, privacy protections are needed to preserve patients' dignity and prevent possible harms. Ten years ago, to address these concerns as well as set guidelines for ethical health research, Congress called for a set of federal standards now known as the HIPAA Privacy Rule. In its 2009 report, Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research, the Institute of Medicine's Committee on Health Research and the Privacy of Health Information concludes that the HIPAA Privacy Rule does not protect privacy as well as it should, and that it impedes important health research.

Health Informatics - E-Book

Author : Lynda R. Hardy
Publisher : Elsevier Health Sciences
ISBN 13 : 0323846475
Total Pages : 568 pages
Book Rating : 4.3/5 (238 download)

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Book Synopsis Health Informatics - E-Book by : Lynda R. Hardy

Download or read book Health Informatics - E-Book written by Lynda R. Hardy and published by Elsevier Health Sciences. This book was released on 2022-12-02 with total page 568 pages. Available in PDF, EPUB and Kindle. Book excerpt: **American Journal of Nursing (AJN) Book of the Year Awards, 1st Place in Informatics, 2023** **Selected for Doody's Core Titles® 2024 in Informatics** Learn how information technology intersects with today's health care! Health Informatics: An Interprofessional Approach, 3rd Edition, follows the tradition of expert informatics educators Ramona Nelson and Nancy Staggers with new lead author, Lynda R. Hardy, to prepare you for success in today's technology-filled healthcare practice. Concise coverage includes information systems and applications, such as electronic health records, clinical decision support, telehealth, mHealth, ePatients, and social media tools, as well as system implementation. New to this edition are topics that include analytical approaches to health informatics, increased information on FHIR and SMART on FHIR, and the use of health informatics in pandemics. - Chapters written by experts in the field provide the most current and accurate information on continually evolving subjects like evidence-based practice, EHRs, PHRs, mobile health, disaster recovery, and simulation. - Objectives, key terms, and an abstract at the beginning of each chapter provide an overview of what each chapter will cover. - Case studies and discussion questions at the end of each chapter encourage higher-level thinking that can be applied to real world experiences. - Conclusion and Future Directions discussion at the end of each chapter reinforces topics and expands on how the topic will continue to evolve. - Open-ended discussion questions at the end of each chapter enhance students' understanding of the subject covered. - mHealth chapter discusses all relevant aspects of mobile health, including global growth, new opportunities in underserved areas, governmental regulations on issues such as data leaking and mining, implications of patient-generated data, legal aspects of provider monitoring of patient-generated data, and increased responsibility by patients. - Important content, including FDA- and state-based regulations, project management, big data, and governance models, prepares students for one of nursing's key specialty areas. - UPDATED! Chapters reflect the current and evolving practice of health informatics, using real-life healthcare examples to show how informatics applies to a wide range of topics and issues. - NEW! Strategies to promote healthcare equality by freeing algorithms and decision-making from implicit and explicit bias are integrated where applicable. - NEW! The latest AACN domains are incorporated throughout to support BSN, Master's, and DNP programs. - NEW! Greater emphasis on the digital patient and the partnerships involved, including decision-making.

Information Technology for Patient Empowerment in Healthcare

Author : Maria Adela Grando
Publisher : Walter de Gruyter GmbH & Co KG
ISBN 13 : 1614514348
Total Pages : 280 pages
Book Rating : 4.6/5 (145 download)

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Book Synopsis Information Technology for Patient Empowerment in Healthcare by : Maria Adela Grando

Download or read book Information Technology for Patient Empowerment in Healthcare written by Maria Adela Grando and published by Walter de Gruyter GmbH & Co KG. This book was released on 2015-03-30 with total page 280 pages. Available in PDF, EPUB and Kindle. Book excerpt: Aims and Scope Patients are more empowered to shape their own health care today than ever before. Health information technologies are creating new opportunities for patients and families to participate actively in their care, manage their medical problems and improve communication with their healthcare providers. Moreover, health information technologies are enabling healthcare providers to partner with their patients in a bold effort to optimize quality of care, improve health outcomes and transform the healthcare system on the macro-level. In this book, leading figures discuss the existing needs, challenges and opportunities for improving patient engagement and empowerment through health information technology, mapping out what has been accomplished and what work remains to truly transform the care we deliver and engage patients in their care. Policymakers, healthcare providers and administrators, consultants and industry managers, researchers and students and, not least, patients and their family members should all find value in this book. "In the exciting period that lies just ahead, more will be needed than simply connecting patients to clinicians, and clinicians to each other. The health care systems that will be most effective in meeting patients' needs will be those that can actually design their 'human wares' around that purpose. This book provides deep insight into how information technology can and will support that redesign." Thomas H. Lee, MD, MSc, Chief Medical Officer, Press Ganey Associates; Professor of Medicine, Harvard Medical School and Professor of Health Policy and Management, Harvard School of Public Health The Editors: Drs. Maria Adela Grando, Ronen Rozenblum and David W. Bates are widely recognized professors, researchers and experts in the domain of health information technology, patient engagement and empowerment. Their research, lectures and contributions in these domains have been recognized nationally and internationally. Dr. Grando is affiliated with Arizona State University and the Mayo Clinic, and Drs. Rozenblum and Bates are affiliated with Brigham and Women's Hospital and Harvard University.

Communication Skills for the Health Care Professional

Author : Gwen Marram Van Servellen
Publisher : Jones & Bartlett Learning
ISBN 13 : 9780834207660
Total Pages : 422 pages
Book Rating : 4.2/5 (76 download)

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Book Synopsis Communication Skills for the Health Care Professional by : Gwen Marram Van Servellen

Download or read book Communication Skills for the Health Care Professional written by Gwen Marram Van Servellen and published by Jones & Bartlett Learning. This book was released on 1997 with total page 422 pages. Available in PDF, EPUB and Kindle. Book excerpt: This textbook provides the kind of comprehensive and in-depth preparation your students need to communicate optimally with patients, families, and fellow providers. Combining principles and practical applications, this text shows students how to apply communication techniques to patient care. It contains specific examples from many health care disciplines and is appropriate for all students in medicine, nursing, pharmacy, dentistry, and other allied health professions. Complete with chapter objectives, real-life examples and sample dialogue, and a glossary defining over 100 words and terms essential to the field of communication.

The Future of the Public's Health in the 21st Century

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309133181
Total Pages : 536 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis The Future of the Public's Health in the 21st Century by : Institute of Medicine

Download or read book The Future of the Public's Health in the 21st Century written by Institute of Medicine and published by National Academies Press. This book was released on 2003-02-01 with total page 536 pages. Available in PDF, EPUB and Kindle. Book excerpt: The anthrax incidents following the 9/11 terrorist attacks put the spotlight on the nation's public health agencies, placing it under an unprecedented scrutiny that added new dimensions to the complex issues considered in this report. The Future of the Public's Health in the 21st Century reaffirms the vision of Healthy People 2010, and outlines a systems approach to assuring the nation's health in practice, research, and policy. This approach focuses on joining the unique resources and perspectives of diverse sectors and entities and challenges these groups to work in a concerted, strategic way to promote and protect the public's health. Focusing on diverse partnerships as the framework for public health, the book discusses: The need for a shift from an individual to a population-based approach in practice, research, policy, and community engagement. The status of the governmental public health infrastructure and what needs to be improved, including its interface with the health care delivery system. The roles nongovernment actors, such as academia, business, local communities and the media can play in creating a healthy nation. Providing an accessible analysis, this book will be important to public health policy-makers and practitioners, business and community leaders, health advocates, educators and journalists.

Communities in Action

Author : National Academies of Sciences, Engineering, and Medicine
Publisher : National Academies Press
ISBN 13 : 0309452961
Total Pages : 583 pages
Book Rating : 4.3/5 (94 download)

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Book Synopsis Communities in Action by : National Academies of Sciences, Engineering, and Medicine

Download or read book Communities in Action written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2017-04-27 with total page 583 pages. Available in PDF, EPUB and Kindle. Book excerpt: In the United States, some populations suffer from far greater disparities in health than others. Those disparities are caused not only by fundamental differences in health status across segments of the population, but also because of inequities in factors that impact health status, so-called determinants of health. Only part of an individual's health status depends on his or her behavior and choice; community-wide problems like poverty, unemployment, poor education, inadequate housing, poor public transportation, interpersonal violence, and decaying neighborhoods also contribute to health inequities, as well as the historic and ongoing interplay of structures, policies, and norms that shape lives. When these factors are not optimal in a community, it does not mean they are intractable: such inequities can be mitigated by social policies that can shape health in powerful ways. Communities in Action: Pathways to Health Equity seeks to delineate the causes of and the solutions to health inequities in the United States. This report focuses on what communities can do to promote health equity, what actions are needed by the many and varied stakeholders that are part of communities or support them, as well as the root causes and structural barriers that need to be overcome.

First, Do Less Harm

Author : Ross Koppel
Publisher : Cornell University Press
ISBN 13 : 0801464072
Total Pages : 301 pages
Book Rating : 4.8/5 (14 download)

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Book Synopsis First, Do Less Harm by : Ross Koppel

Download or read book First, Do Less Harm written by Ross Koppel and published by Cornell University Press. This book was released on 2012-04-23 with total page 301 pages. Available in PDF, EPUB and Kindle. Book excerpt: Each year, hospital-acquired infections, prescribing and treatment errors, lost documents and test reports, communication failures, and other problems have caused thousands of deaths in the United States, added millions of days to patients' hospital stays, and cost Americans tens of billions of dollars. Despite (and sometimes because of) new medical information technology and numerous well-intentioned initiatives to address these problems, threats to patient safety remain, and in some areas are on the rise. In First, Do Less Harm, twelve health care professionals and researchers plus two former patients look at patient safety from a variety of perspectives, finding many of the proposed solutions to be inadequate or impractical. Several contributors to this book attribute the failure to confront patient safety concerns to the influence of the "market model" on medicine and emphasize the need for hospital-wide teamwork and greater involvement from frontline workers (from janitors and aides to nurses and physicians) in planning, implementing, and evaluating effective safety initiatives. Several chapters in First, Do Less Harm focus on the critical role of interprofessional and occupational practice in patient safety. Rather than focusing on the usual suspects-physicians, safety champions, or high level management-these chapters expand the list of "stakeholders" and patient safety advocates to include nurses, patient care assistants, and other staff, as well as the health care unions that may represent them. First, Do Less Harm also highlights workplace issues that negatively affect safety: including sleeplessness, excessive workloads, outsourcing of hospital cleaning, and lack of teamwork between physicians and other health care staff. In two chapters, experts explain why the promise of health care information technology to fix safety problems remains unrealized, with examples that are at once humorous and frightening. A book that will be required reading for physicians, nurses, hospital administrators, public health officers, quality and risk managers, healthcare educators, economists, and policymakers, First, Do Less Harm concludes with a list of twenty-seven paradoxes and challenges facing everyone interested in making care safe for both patients and those who care for them.

Infrastructure and Technology Management

Author : Tugrul U. Daim
Publisher : Springer
ISBN 13 : 3319689878
Total Pages : 491 pages
Book Rating : 4.3/5 (196 download)

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Book Synopsis Infrastructure and Technology Management by : Tugrul U. Daim

Download or read book Infrastructure and Technology Management written by Tugrul U. Daim and published by Springer. This book was released on 2018-01-10 with total page 491 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book presents emerging technology management approaches and applied cases from leading infrastructure sectors such as energy, healthcare, transportation and education. Featuring timely topics such as fracking technology, electric cars, Google’s eco-friendly mobile technology and Amazon Prime Air, the volume’s contributions explore the current management challenges that have resulted from the development of new technologies, and present tools, applications and frameworks that can be utilized to overcome these challenges. Emerging technologies make us rethink how our infrastructure will look in the future. Solar and wind generation, for example, have already changed the dynamics of the power sector. While they have helped to reduce the use of fossil fuels, they have created management complications due to their intermittent natures. Meanwhile, information technologies have changed how we manage healthcare, making it safer and more accessible, but not without implications for cost and administration. Autonomous cars are around the corner. On-line education is no longer a myth but still a largely unfulfilled opportunity. Digitization of car ownership is achievable thanks to emerging business models leveraging new communication technologies. The major challenge is how to evaluate the relative costs and benefits of these technologies. This book offers insights from both researchers and industry practitioners to address this challenge and anticipate the impact of new technologies on infrastructure now and in the future.

Information Technology for Management

Author : Efraim Turban
Publisher : John Wiley & Sons
ISBN 13 : 1119802520
Total Pages : 659 pages
Book Rating : 4.1/5 (198 download)

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Book Synopsis Information Technology for Management by : Efraim Turban

Download or read book Information Technology for Management written by Efraim Turban and published by John Wiley & Sons. This book was released on 2021 with total page 659 pages. Available in PDF, EPUB and Kindle. Book excerpt: Information Technology for Management provides students with a comprehensive understanding of the latest technological developments in IT and the critical drivers of business performance, growth, and sustainability. Integrating feedback from IT managers and practitioners from top-level organizations worldwide, the International Adaptation of this well-regarded textbook features thoroughly revised content throughout to present students with a realistic, up-to-date view of IT management in the current business environment. This text covers the latest developments in the real world of IT management with the addition of new case studies that are contemporary and more relevant to the global scenario. It offers a flexible, student-friendly presentation of the material through a pedagogy that is designed to help students easily comprehend and retain information. There is new and expanded coverage of Artificial Intelligence, Robotics, Quantum Computing, Blockchain Technology, IP Intelligence, Big Data Analytics, IT Service Management, DevOps, etc. It helps readers learn how IT is leveraged to reshape enterprises, engage and retain customers, optimize systems and processes, manage business relationships and projects, and more.

Leddy & Pepper's Professional Nursing

Author : Lucy J Hood
Publisher : Lippincott Williams & Wilkins
ISBN 13 : 1975172639
Total Pages : 733 pages
Book Rating : 4.9/5 (751 download)

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Book Synopsis Leddy & Pepper's Professional Nursing by : Lucy J Hood

Download or read book Leddy & Pepper's Professional Nursing written by Lucy J Hood and published by Lippincott Williams & Wilkins. This book was released on 2021-08-06 with total page 733 pages. Available in PDF, EPUB and Kindle. Book excerpt: Easy to read, visually engaging, and updated with the latest practices and considerations in clinical nursing practice, Leddy & Pepper’s Professional Nursing, 10th Edition provides a practical overview of the contemporary nursing profession and addresses the philosophical, developmental, sociocultural, environmental, political, health care delivery, and leadership issues essential to career enhancement in clinical practice. This enhanced 10th Edition is accompanied by a robust package of interactive resources that engage today’s learners and help you instill the understanding and confidence for clinical nursing success.

Registries for Evaluating Patient Outcomes

Author : Agency for Healthcare Research and Quality/AHRQ
Publisher : Government Printing Office
ISBN 13 : 1587634333
Total Pages : 385 pages
Book Rating : 4.5/5 (876 download)

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Book Synopsis Registries for Evaluating Patient Outcomes by : Agency for Healthcare Research and Quality/AHRQ

Download or read book Registries for Evaluating Patient Outcomes written by Agency for Healthcare Research and Quality/AHRQ and published by Government Printing Office. This book was released on 2014-04-01 with total page 385 pages. Available in PDF, EPUB and Kindle. Book excerpt: This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. For the purposes of this guide, a patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes. A registry database is a file (or files) derived from the registry. Although registries can serve many purposes, this guide focuses on registries created for one or more of the following purposes: to describe the natural history of disease, to determine clinical effectiveness or cost-effectiveness of health care products and services, to measure or monitor safety and harm, and/or to measure quality of care. Registries are classified according to how their populations are defined. For example, product registries include patients who have been exposed to biopharmaceutical products or medical devices. Health services registries consist of patients who have had a common procedure, clinical encounter, or hospitalization. Disease or condition registries are defined by patients having the same diagnosis, such as cystic fibrosis or heart failure. The User’s Guide was created by researchers affiliated with AHRQ’s Effective Health Care Program, particularly those who participated in AHRQ’s DEcIDE (Developing Evidence to Inform Decisions About Effectiveness) program. Chapters were subject to multiple internal and external independent reviews.