Enduring Alzheimers

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The Problem of Alzheimer's

Author : Jason Karlawish
Publisher : St. Martin's Press
ISBN 13 : 1250218748
Total Pages : 269 pages
Book Rating : 4.2/5 (52 download)

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Book Synopsis The Problem of Alzheimer's by : Jason Karlawish

Download or read book The Problem of Alzheimer's written by Jason Karlawish and published by St. Martin's Press. This book was released on 2021-02-23 with total page 269 pages. Available in PDF, EPUB and Kindle. Book excerpt: A definitive and compelling book on one of today's most prevalent illnesses. In 2020, an estimated 5.8 million Americans had Alzheimer’s, and more than half a million died because of the disease and its devastating complications. 16 million caregivers are responsible for paying as much as half of the $226 billion annual costs of their care. As more people live beyond their seventies and eighties, the number of patients will rise to an estimated 13.8 million by 2050. Part case studies, part meditation on the past, present and future of the disease, The Problem of Alzheimer's traces Alzheimer’s from its beginnings to its recognition as a crisis. While it is an unambiguous account of decades of missed opportunities and our health care systems’ failures to take action, it tells the story of the biomedical breakthroughs that may allow Alzheimer’s to finally be prevented and treated by medicine and also presents an argument for how we can live with dementia: the ways patients can reclaim their autonomy and redefine their sense of self, how families can support their loved ones, and the innovative reforms we can make as a society that would give caregivers and patients better quality of life. Rich in science, history, and characters, The Problem of Alzheimer's takes us inside laboratories, patients' homes, caregivers’ support groups, progressive care communities, and Jason Karlawish's own practice at the Penn Memory Center.

The Enduring Self in People with Alzheimer's

Author : Sam Fazio
Publisher :
ISBN 13 : 9781932529388
Total Pages : 175 pages
Book Rating : 4.5/5 (293 download)

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Book Synopsis The Enduring Self in People with Alzheimer's by : Sam Fazio

Download or read book The Enduring Self in People with Alzheimer's written by Sam Fazio and published by . This book was released on 2008 with total page 175 pages. Available in PDF, EPUB and Kindle. Book excerpt: This enlightening book demonstrates unequivocally that a person's unique self persists throughout the course of the disease. Much can be done in care settings to support a person's sense of identity and enrich the lives of people experiencing the many losses associated with dementia. Drawing from a diverse body of research, the book brings together theories and recommendations from the best thinkers and practitioners in multiple disciplines to illustrate the meaning of self and the importance of providing dementia care that recognizes and supports personhood. The Enduring Self provides a foundation for culture change efforts in community-based and residential care settings, showing administrators and care staff how to reframe communication and interactions to build more meaningful relationships with people with Alzheimer's disease. Includes provocative discussion topics at the end of each chapter and a case study for staff training.

Reducing the Impact of Dementia in America

Author : National Academies of Sciences Engineering and Medicine
Publisher :
ISBN 13 : 9780309495035
Total Pages : pages
Book Rating : 4.4/5 (95 download)

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Book Synopsis Reducing the Impact of Dementia in America by : National Academies of Sciences Engineering and Medicine

Download or read book Reducing the Impact of Dementia in America written by National Academies of Sciences Engineering and Medicine and published by . This book was released on 2022-04-26 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: As the largest generation in U.S. history - the population born in the two decades immediately following World War II - enters the age of risk for cognitive impairment, growing numbers of people will experience dementia (including Alzheimer's disease and related dementias). By one estimate, nearly 14 million people in the United States will be living with dementia by 2060. Like other hardships, the experience of living with dementia can bring unexpected moments of intimacy, growth, and compassion, but these diseases also affect people's capacity to work and carry out other activities and alter their relationships with loved ones, friends, and coworkers. Those who live with and care for individuals experiencing these diseases face challenges that include physical and emotional stress, difficult changes and losses in their relationships with life partners, loss of income, and interrupted connections to other activities and friends. From a societal perspective, these diseases place substantial demands on communities and on the institutions and government entities that support people living with dementia and their families, including the health care system, the providers of direct care, and others. Nevertheless, research in the social and behavioral sciences points to possibilities for preventing or slowing the development of dementia and for substantially reducing its social and economic impacts. At the request of the National Institute on Aging of the U.S. Department of Health and Human Services, Reducing the Impact of Dementia in America assesses the contributions of research in the social and behavioral sciences and identifies a research agenda for the coming decade. This report offers a blueprint for the next decade of behavioral and social science research to reduce the negative impact of dementia for America's diverse population. Reducing the Impact of Dementia in America calls for research that addresses the causes and solutions for disparities in both developing dementia and receiving adequate treatment and support. It calls for research that sets goals meaningful not just for scientists but for people living with dementia and those who support them as well. By 2030, an estimated 8.5 million Americans will have Alzheimer's disease and many more will have other forms of dementia. Through identifying priorities social and behavioral science research and recommending ways in which they can be pursued in a coordinated fashion, Reducing the Impact of Dementia in America will help produce research that improves the lives of all those affected by dementia.

Learning to Speak Alzheimer's

Author : Joanne Koenig Coste
Publisher : Houghton Mifflin Harcourt
ISBN 13 : 0547526822
Total Pages : 184 pages
Book Rating : 4.5/5 (475 download)

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Book Synopsis Learning to Speak Alzheimer's by : Joanne Koenig Coste

Download or read book Learning to Speak Alzheimer's written by Joanne Koenig Coste and published by Houghton Mifflin Harcourt. This book was released on 2004-09-08 with total page 184 pages. Available in PDF, EPUB and Kindle. Book excerpt: A guide to more successful communication for the millions of Americans caring for someone with dementia: “Offers a fresh approach and hope.”—NPR Revolutionizing the way we perceive and live with Alzheimer’s, Joanne Koenig Coste offers a practical approach to the emotional well-being of both patients and caregivers that emphasizes relating to patients in their own reality. Her accessible and comprehensive method, which she calls habilitation, works to enhance communication between care partners and patients and has proven successful with thousands of people living with dementia. Learning to Speak Alzheimer’s also offers hundreds of practical tips, including how to: · cope with the diagnosis and adjust to the disease’s progression · help the patient talk about the illness · face the issue of driving · make meals and bath times as pleasant as possible · adjust room design for the patient’s comfort · deal with wandering, paranoia, and aggression “A fine addition to Alzheimer's and caregiving collections.”—Library Journal (starred review) “Promises to transform not only the lives of patients but those of care providers…This book is a gift.”—Sue Levkoff, coauthor of Aging Well

Jan's Story

Author : Barry Rex Petersen
Publisher : Behler Publications
ISBN 13 : 1933016442
Total Pages : 226 pages
Book Rating : 4.9/5 (33 download)

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Book Synopsis Jan's Story by : Barry Rex Petersen

Download or read book Jan's Story written by Barry Rex Petersen and published by Behler Publications. This book was released on 2010 with total page 226 pages. Available in PDF, EPUB and Kindle. Book excerpt: CBS News correspondent Barry Petersen tells the tender story of his wife's battle with Early Onset Alzheimer's.

Aging with Grace

Author : David Snowdon
Publisher : Bantam
ISBN 13 : 0307481239
Total Pages : 258 pages
Book Rating : 4.3/5 (74 download)

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Book Synopsis Aging with Grace by : David Snowdon

Download or read book Aging with Grace written by David Snowdon and published by Bantam. This book was released on 2008-11-19 with total page 258 pages. Available in PDF, EPUB and Kindle. Book excerpt: In 1986 Dr. David Snowdon, one of the world’s leading experts on Alzheimer’s disease, embarked on a revolutionary scientific study that would forever change the way we view aging—and ultimately living. Dubbed the “Nun Study” because it involves a unique population of 678 Catholic sisters, this remarkable long-term research project has made headlines worldwide with its provocative discoveries. Yet Aging with Grace is more than a groundbreaking health and science book. It is the inspiring human story of these remarkable women—ranging in age from 74 to 106—whose dedication to serving others may help all of us live longer and healthier lives. Totally accessible, with fascinating portraits of the nuns and the scientists who study them, Aging with Grace also offers a wealth of practical findings: • Why building linguistic ability in childhood may protect against Alzheimer’s • Which ordinary foods promote longevity and healthy brain function • Why preventing strokes and depression is key to avoiding Alzheimer’s • What role heredity plays, and why it’s never too late to start an exercise program • How attitude, faith, and community can add years to our lives A prescription for hope, Aging with Grace shows that old age doesn’t have to mean an inevitable slide into illness and disability; rather it can be a time of promise and productivity, intellectual and spiritual vigor—a time of true grace.

On Vanishing

Author : Lynn Casteel Harper
Publisher : Catapult
ISBN 13 : 1948226294
Total Pages : 126 pages
Book Rating : 4.9/5 (482 download)

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Book Synopsis On Vanishing by : Lynn Casteel Harper

Download or read book On Vanishing written by Lynn Casteel Harper and published by Catapult. This book was released on 2020-04-14 with total page 126 pages. Available in PDF, EPUB and Kindle. Book excerpt: A New York Times Book Review Editors’ Choice An essential book for those coping with Alzheimer’s and other cognitive disorders that “reframe[s] our understanding of dementia with sensitivity and accuracy . . . to grant better futures to our loved ones and ourselves” (The New York Times). An estimated fifty million people in the world suffer from dementia. Diseases such as Alzheimer's erase parts of one's memory but are also often said to erase the self. People don't simply die from such diseases; they are imagined, in the clichés of our era, as vanishing in plain sight, fading away, or enduring a long goodbye. In On Vanishing, Lynn Casteel Harper, a Baptist minister and nursing home chaplain, investigates the myths and metaphors surrounding dementia and aging, addressing not only the indignities caused by the condition but also by the rhetoric surrounding it. Harper asks essential questions about the nature of our outsized fear of dementia, the stigma this fear may create, and what it might mean for us all to try to “vanish well.” Weaving together personal stories with theology, history, philosophy, literature, and science, Harper confronts our elemental fears of disappearance and death, drawing on her own experiences with people with dementia both in the American healthcare system and within her own family. In the course of unpacking her own stories and encounters—of leading a prayer group on a dementia unit; of meeting individuals dismissed as “already gone” and finding them still possessed of complex, vital inner lives; of witnessing her grandfather’s final years with Alzheimer’s and discovering her own heightened genetic risk of succumbing to the disease—Harper engages in an exploration of dementia that is unlike anything written before on the subject. A rich and startling work of nonfiction, On Vanishing reveals cognitive change as it truly is, an essential aspect of what it means to be mortal.

My Two Elaines

Author : Martin J Schreiber
Publisher : Harper Horizon
ISBN 13 : 0785291709
Total Pages : 192 pages
Book Rating : 4.7/5 (852 download)

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Book Synopsis My Two Elaines by : Martin J Schreiber

Download or read book My Two Elaines written by Martin J Schreiber and published by Harper Horizon. This book was released on 2022-06-13 with total page 192 pages. Available in PDF, EPUB and Kindle. Book excerpt: In My Two Elaines, author Marty Schreiber, former governor of Wisconsin, watches his beloved wife, Elaine, gradually transform from the woman he fell in love with in high school, and who diligently supported his political career, to the Elaine who knows she is declining and can’t remember how to cook a meal, and finally to the Elaine who no longer recognizes Marty or their children. One part love story, one part practical advice, this compelling book includes several unique elements: Excerpts from Elaine’s journal, recounting her thoughts, concerns, and frustrations as the disease progresses A recurring feature called “What I Wish I’d Known,” which provides helpful takeaways for caregivers based on Marty’s observations about what he wishes he’d known sooner and done differently A Q&A between Marty and neuropsychologist Dr. Michelle Braun, to equip caregivers with the right questions to ask and empower them to advocate for their loved ones and their own needs Beyond sincere, practical advice, My Two Elaines gives the reader permission to feel the full spectrum of emotions, including humor, even in the face of this relentless illness. And the book speaks to anyone touched by this disease--spouse, child, friend, or family member.

Developing Support Groups for Individuals with Early-stage Alzheimer's Disease

Author : Robyn Yale
Publisher :
ISBN 13 :
Total Pages : 260 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis Developing Support Groups for Individuals with Early-stage Alzheimer's Disease by : Robyn Yale

Download or read book Developing Support Groups for Individuals with Early-stage Alzheimer's Disease written by Robyn Yale and published by . This book was released on 1995 with total page 260 pages. Available in PDF, EPUB and Kindle. Book excerpt: Step-by-step guidelines show how to facilitate and administer a support group for early-stage Alzheimer's patients, from selecting group participants to addressing administrative concerns. Includes role plays for practicing ways to handle difficult situations, advice on involving caregivers and family members, and numerous sample interview, screening, evaluation, and observation forms and contractual agreements. A review of the author's study on patient groups includes research questions, procedures, and results. Annotation copyright by Book News, Inc., Portland, OR

My Bert Has Alzheimer's

Author : Paula de Ronde
Publisher : FriesenPress
ISBN 13 : 1039129234
Total Pages : 288 pages
Book Rating : 4.0/5 (391 download)

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Book Synopsis My Bert Has Alzheimer's by : Paula de Ronde

Download or read book My Bert Has Alzheimer's written by Paula de Ronde and published by FriesenPress. This book was released on 2022-01-26 with total page 288 pages. Available in PDF, EPUB and Kindle. Book excerpt: My Bert Has Alzheimer’s is an intimate, detailed account of a wife’s experience with her husband’s dementia. As Paula de Ronde quickly learned, life for two people — patient and caregiver - is thrown into disarray with a diagnosis of Alzheimer’s. Ambushed by the disease, it is a journey into the unknown, but one that features an abundance of love, hope, and support. There is no shying away from the horror of the disease, but its awfulness doesn’t strip from the experience of the powerful companions that accompany those enduring it — namely, love, laughter, and community. Thrust into the caregiver role for her other half who used to be her equal and best buddy, making all kinds of decisions together, Paula now enters a new world of uncertainty and chaos. There is no roadmap. Instead she learns that the disease is as individual as each person who contracts it. Here is a caregiver’s poignant and revealing story of the mental, physical, and emotional stress of caring for the love of her life, her Bert, as he gives over to his neurological disease. The caregiver’s life is far from easy. Yet fueled by love, which never wanes, each step of the way is handled with grace and the help of care partners. Alzheimer’s steals memories but also gives teaching moments. As the disease progresses Paula learns to be more tolerant, patient, compassionate and accepting of human frailties. Alzheimer’s releases an inner strength. She meets each challenge, finds a solution to each issue that arises, then passes on her new-found knowledge to others. She learns the value of having a support group. Alzheimer’s cements the old adage that laughter is the best medicine. Together she and her Bert become stronger than the disease. With humour, compassion, wisdom, and deep feeling, she describes this slice of their conjoined lives. More than a record of the impact of a disease this is, at its essence, also a love story.

Keeping Love Alive as Memories Fade

Author : Gary Chapman
Publisher : Moody Publishers
ISBN 13 : 0802494412
Total Pages : 275 pages
Book Rating : 4.8/5 (24 download)

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Book Synopsis Keeping Love Alive as Memories Fade by : Gary Chapman

Download or read book Keeping Love Alive as Memories Fade written by Gary Chapman and published by Moody Publishers. This book was released on 2016-09-16 with total page 275 pages. Available in PDF, EPUB and Kindle. Book excerpt: Across America and around the world, the five love languages have revitalized relationships and saved marriages from the brink of disaster. Can they also help individuals, couples, and families cope with the devastating diagnosis of Alzheimer's disease (AD)? Coauthors Chapman, Shaw, and Barr give a resounding yes. Their innovative application of the five love languages creates an entirely new way to touch the lives of the five million Americans who have Alzheimer’s, as well as their fifteen million caregivers. At its heart, this book is about how love gently lifts a corner of dementia’s dark curtain to cultivate an emotional connection amid memory loss. This collaborative, groundbreaking work between a healthcare professional, caregiver, and relationship expert will: Provide an overview of the love languages and Alzheimer’s disease, correlate the love languages with the developments of the stages of AD, discuss how both the caregiver and care receiver can apply the love languages, address the challenges and stresses of the caregiver journey, offer personal stories and case studies about maintaining emotional intimacy amidst AD. Keeping Love Alive as Memories Fade is heartfelt and easy to apply, providing gentle, focused help for those feeling overwhelmed by the relational toll of Alzheimer’s. Its principles have already helped hundreds of families, and it can help yours, too.

Families Caring for an Aging America

Author : National Academies of Sciences, Engineering, and Medicine
Publisher : National Academies Press
ISBN 13 : 0309448069
Total Pages : 367 pages
Book Rating : 4.3/5 (94 download)

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Book Synopsis Families Caring for an Aging America by : National Academies of Sciences, Engineering, and Medicine

Download or read book Families Caring for an Aging America written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2016-12-08 with total page 367 pages. Available in PDF, EPUB and Kindle. Book excerpt: Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.

Music and Dementia

Author : Amee Baird
Publisher :
ISBN 13 : 0190075937
Total Pages : 325 pages
Book Rating : 4.1/5 (9 download)

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Book Synopsis Music and Dementia by : Amee Baird

Download or read book Music and Dementia written by Amee Baird and published by . This book was released on 2020 with total page 325 pages. Available in PDF, EPUB and Kindle. Book excerpt: Dementia is a significant health issue facing our aging population. Although there is no known cure, there is increasing evidence that music is an effective treatment for various symptoms of dementia. Music therapy and musical activities can have widespread benefits for people with dementia and their caretakers, including triggering memories, enhancing relationships, reducing agitation, and improving mood. This book outlines the current research on music and dementia from internationally renowned music therapists, music psychologists, and clinical neuropsychologists.

The 36-Hour Day

Author : Nancy L. Mace
Publisher : JHU Press
ISBN 13 : 1421441705
Total Pages : 361 pages
Book Rating : 4.4/5 (214 download)

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Book Synopsis The 36-Hour Day by : Nancy L. Mace

Download or read book The 36-Hour Day written by Nancy L. Mace and published by JHU Press. This book was released on 2021-08-10 with total page 361 pages. Available in PDF, EPUB and Kindle. Book excerpt: The 36-Hour Day is the definitive dementia care guide.

Alzheimer's Disease and Dementia

Author : Steven R. Sabat
Publisher : Oxford University Press
ISBN 13 : 0190603127
Total Pages : 273 pages
Book Rating : 4.1/5 (96 download)

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Book Synopsis Alzheimer's Disease and Dementia by : Steven R. Sabat

Download or read book Alzheimer's Disease and Dementia written by Steven R. Sabat and published by Oxford University Press. This book was released on 2018-01-02 with total page 273 pages. Available in PDF, EPUB and Kindle. Book excerpt: Alzheimer's is swiftly on the rise: it is estimated that every 67 seconds, someone develops the disease. For many, the words "Alzheimer's disease" or "dementia" immediately denote severe mental loss and, perhaps, madness. Indeed, the vast majority of media coverage of Alzheimer's disease (AD) and other types of dementia focuses primarily on the losses experienced by people diagnosed and the terrible burden felt by care partners yearning for a "magic bullet" drug cure. Providing an accessible, question-and-answer-format primer on what touches so many lives, and yet so few of us understand, Alzheimer's Disease and Dementia: What Everyone Needs to Know® contributes what is urgently missing from public knowledge: unsparing investigation of their causes and manifestations, and focus on the strengths possessed by people diagnosed. Steven R. Sabat mines a large body of research to convey the genetic and biological aspects of Alzheimer's disease, its clinical history, and, most significantly, to reveal the subjective experience of those with Alzheimer's or dementia. By clarifying the terms surrounding dementia and Alzheimer's, which are two distinct conditions, Sabat corrects dangerous misconceptions that plague our understanding of memory dysfunction and many other significant abilities that people with AD and dementia possess even in the moderate to severe stages. People diagnosed with AD retain awareness, thinking ability, and sense of self; crucially, Sabat demonstrates that there are ways to facilitate communication even when the person with AD has great difficulty finding the words he or she wants to use. From years spent exploring and observing the points of view and experiences of people diagnosed, Sabat strives to inform as well as to remind readers of the respect and empathy owed to those diagnosed and living with dementia. Alzheimer's Disease and Dementia conveys this type of information and more, which, when applied by family and professional caregivers, will help improve the quality of life of those diagnosed as well as of those who provide support and care.

The Myth of Alzheimer's

Author : Peter J. Whitehouse, M.D.
Publisher : Macmillan
ISBN 13 : 0312368178
Total Pages : 336 pages
Book Rating : 4.3/5 (123 download)

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Book Synopsis The Myth of Alzheimer's by : Peter J. Whitehouse, M.D.

Download or read book The Myth of Alzheimer's written by Peter J. Whitehouse, M.D. and published by Macmillan. This book was released on 2008-12-09 with total page 336 pages. Available in PDF, EPUB and Kindle. Book excerpt: Challenges conventional perceptions about Alzheimer's disease to offer readers alternative approaches to memory loss and aging that can be aided through simple nutritional and exercise strategies.

Tangles

Author : Sarah Leavitt
Publisher : Skyhorse
ISBN 13 : 9781616086398
Total Pages : 128 pages
Book Rating : 4.0/5 (863 download)

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Book Synopsis Tangles by : Sarah Leavitt

Download or read book Tangles written by Sarah Leavitt and published by Skyhorse. This book was released on 2012-05-01 with total page 128 pages. Available in PDF, EPUB and Kindle. Book excerpt: In this powerful memoir the the LA Times calls “moving, rigorous, and heartbreaking," Sarah Leavitt reveals how Alzheimer’s disease transformed her mother, Midge, and her family forever. In spare blackand- white drawings and clear, candid prose, Sarah shares her family’s journey through a harrowing range of emotions—shock, denial, hope, anger, frustration—all the while learning to cope, and managing to find moments of happiness. Midge, a Harvard educated intellectual, struggles to comprehend the simplest words; Sarah’s father, Rob, slowly adapts to his new role as full-time caretaker, but still finds time for wordplay and poetry with his wife; Sarah and her sister Hannah argue, laugh, and grieve together as they join forces to help Midge. Tangles confronts the complexity of Alzheimer’s disease, and ultimately releases a knot of memories and dreams to reveal a bond between a mother and a daughter that will never come apart.