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Electronic Data Sharing
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Author :Agency for Healthcare Research and Quality/AHRQ Publisher :Government Printing Office ISBN 13 :1587634333 Total Pages :385 pages Book Rating :4.5/5 (876 download)
Book Synopsis Registries for Evaluating Patient Outcomes by : Agency for Healthcare Research and Quality/AHRQ
Download or read book Registries for Evaluating Patient Outcomes written by Agency for Healthcare Research and Quality/AHRQ and published by Government Printing Office. This book was released on 2014-04-01 with total page 385 pages. Available in PDF, EPUB and Kindle. Book excerpt: This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. For the purposes of this guide, a patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes. A registry database is a file (or files) derived from the registry. Although registries can serve many purposes, this guide focuses on registries created for one or more of the following purposes: to describe the natural history of disease, to determine clinical effectiveness or cost-effectiveness of health care products and services, to measure or monitor safety and harm, and/or to measure quality of care. Registries are classified according to how their populations are defined. For example, product registries include patients who have been exposed to biopharmaceutical products or medical devices. Health services registries consist of patients who have had a common procedure, clinical encounter, or hospitalization. Disease or condition registries are defined by patients having the same diagnosis, such as cystic fibrosis or heart failure. The User’s Guide was created by researchers affiliated with AHRQ’s Effective Health Care Program, particularly those who participated in AHRQ’s DEcIDE (Developing Evidence to Inform Decisions About Effectiveness) program. Chapters were subject to multiple internal and external independent reviews.
Book Synopsis Sharing Clinical Trial Data by : Institute of Medicine
Download or read book Sharing Clinical Trial Data written by Institute of Medicine and published by National Academies Press. This book was released on 2015-04-20 with total page 236 pages. Available in PDF, EPUB and Kindle. Book excerpt: Data sharing can accelerate new discoveries by avoiding duplicative trials, stimulating new ideas for research, and enabling the maximal scientific knowledge and benefits to be gained from the efforts of clinical trial participants and investigators. At the same time, sharing clinical trial data presents risks, burdens, and challenges. These include the need to protect the privacy and honor the consent of clinical trial participants; safeguard the legitimate economic interests of sponsors; and guard against invalid secondary analyses, which could undermine trust in clinical trials or otherwise harm public health. Sharing Clinical Trial Data presents activities and strategies for the responsible sharing of clinical trial data. With the goal of increasing scientific knowledge to lead to better therapies for patients, this book identifies guiding principles and makes recommendations to maximize the benefits and minimize risks. This report offers guidance on the types of clinical trial data available at different points in the process, the points in the process at which each type of data should be shared, methods for sharing data, what groups should have access to data, and future knowledge and infrastructure needs. Responsible sharing of clinical trial data will allow other investigators to replicate published findings and carry out additional analyses, strengthen the evidence base for regulatory and clinical decisions, and increase the scientific knowledge gained from investments by the funders of clinical trials. The recommendations of Sharing Clinical Trial Data will be useful both now and well into the future as improved sharing of data leads to a stronger evidence base for treatment. This book will be of interest to stakeholders across the spectrum of research-from funders, to researchers, to journals, to physicians, and ultimately, to patients.
Book Synopsis Sharing Clinical Research Data by : Institute of Medicine
Download or read book Sharing Clinical Research Data written by Institute of Medicine and published by National Academies Press. This book was released on 2013-06-07 with total page 157 pages. Available in PDF, EPUB and Kindle. Book excerpt: Pharmaceutical companies, academic researchers, and government agencies such as the Food and Drug Administration and the National Institutes of Health all possess large quantities of clinical research data. If these data were shared more widely within and across sectors, the resulting research advances derived from data pooling and analysis could improve public health, enhance patient safety, and spur drug development. Data sharing can also increase public trust in clinical trials and conclusions derived from them by lending transparency to the clinical research process. Much of this information, however, is never shared. Retention of clinical research data by investigators and within organizations may represent lost opportunities in biomedical research. Despite the potential benefits that could be accrued from pooling and analysis of shared data, barriers to data sharing faced by researchers in industry include concerns about data mining, erroneous secondary analyses of data, and unwarranted litigation, as well as a desire to protect confidential commercial information. Academic partners face significant cultural barriers to sharing data and participating in longer term collaborative efforts that stem from a desire to protect intellectual autonomy and a career advancement system built on priority of publication and citation requirements. Some barriers, like the need to protect patient privacy, pre- sent challenges for both sectors. Looking ahead, there are also a number of technical challenges to be faced in analyzing potentially large and heterogeneous datasets. This public workshop focused on strategies to facilitate sharing of clinical research data in order to advance scientific knowledge and public health. While the workshop focused on sharing of data from preplanned interventional studies of human subjects, models and projects involving sharing of other clinical data types were considered to the extent that they provided lessons learned and best practices. The workshop objectives were to examine the benefits of sharing of clinical research data from all sectors and among these sectors, including, for example: benefits to the research and development enterprise and benefits to the analysis of safety and efficacy. Sharing Clinical Research Data: Workshop Summary identifies barriers and challenges to sharing clinical research data, explores strategies to address these barriers and challenges, including identifying priority actions and "low-hanging fruit" opportunities, and discusses strategies for using these potentially large datasets to facilitate scientific and public health advances.
Author :National Academies of Sciences, Engineering, and Medicine Publisher :National Academies Press ISBN 13 :0309493439 Total Pages :195 pages Book Rating :4.3/5 (94 download)
Book Synopsis Integrating Social Care into the Delivery of Health Care by : National Academies of Sciences, Engineering, and Medicine
Download or read book Integrating Social Care into the Delivery of Health Care written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2020-01-30 with total page 195 pages. Available in PDF, EPUB and Kindle. Book excerpt: Integrating Social Care into the Delivery of Health Care: Moving Upstream to Improve the Nation's Health was released in September 2019, before the World Health Organization declared COVID-19 a global pandemic in March 2020. Improving social conditions remains critical to improving health outcomes, and integrating social care into health care delivery is more relevant than ever in the context of the pandemic and increased strains placed on the U.S. health care system. The report and its related products ultimately aim to help improve health and health equity, during COVID-19 and beyond. The consistent and compelling evidence on how social determinants shape health has led to a growing recognition throughout the health care sector that improving health and health equity is likely to depend â€" at least in part â€" on mitigating adverse social determinants. This recognition has been bolstered by a shift in the health care sector towards value-based payment, which incentivizes improved health outcomes for persons and populations rather than service delivery alone. The combined result of these changes has been a growing emphasis on health care systems addressing patients' social risk factors and social needs with the aim of improving health outcomes. This may involve health care systems linking individual patients with government and community social services, but important questions need to be answered about when and how health care systems should integrate social care into their practices and what kinds of infrastructure are required to facilitate such activities. Integrating Social Care into the Delivery of Health Care: Moving Upstream to Improve the Nation's Health examines the potential for integrating services addressing social needs and the social determinants of health into the delivery of health care to achieve better health outcomes. This report assesses approaches to social care integration currently being taken by health care providers and systems, and new or emerging approaches and opportunities; current roles in such integration by different disciplines and organizations, and new or emerging roles and types of providers; and current and emerging efforts to design health care systems to improve the nation's health and reduce health inequities.
Author :United States. Congress. House. Committee on Veterans' Affairs. Subcommittee on Oversight and Investigations Publisher : ISBN 13 : Total Pages :108 pages Book Rating :4.0/5 ( download)
Book Synopsis Sharing of Electronic Medical Information Between the U.S. Department of Defense and the U.S. Department of Veterans Affairs : Hearing Before the Subcommittee on Oversight and Investigations of the Committee on Veterans' Affairs, U.S. House of Representatives, One Hundred Tenth Congress, First Session, October 24, 2007 by : United States. Congress. House. Committee on Veterans' Affairs. Subcommittee on Oversight and Investigations
Download or read book Sharing of Electronic Medical Information Between the U.S. Department of Defense and the U.S. Department of Veterans Affairs : Hearing Before the Subcommittee on Oversight and Investigations of the Committee on Veterans' Affairs, U.S. House of Representatives, One Hundred Tenth Congress, First Session, October 24, 2007 written by United States. Congress. House. Committee on Veterans' Affairs. Subcommittee on Oversight and Investigations and published by . This book was released on 2008 with total page 108 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Capturing Social and Behavioral Domains and Measures in Electronic Health Records by : Institute of Medicine
Download or read book Capturing Social and Behavioral Domains and Measures in Electronic Health Records written by Institute of Medicine and published by National Academies Press. This book was released on 2015-01-08 with total page 287 pages. Available in PDF, EPUB and Kindle. Book excerpt: Determinants of health - like physical activity levels and living conditions - have traditionally been the concern of public health and have not been linked closely to clinical practice. However, if standardized social and behavioral data can be incorporated into patient electronic health records (EHRs), those data can provide crucial information about factors that influence health and the effectiveness of treatment. Such information is useful for diagnosis, treatment choices, policy, health care system design, and innovations to improve health outcomes and reduce health care costs. Capturing Social and Behavioral Domains and Measures in Electronic Health Records: Phase 2 identifies domains and measures that capture the social determinants of health to inform the development of recommendations for the meaningful use of EHRs. This report is the second part of a two-part study. The Phase 1 report identified 17 domains for inclusion in EHRs. This report pinpoints 12 measures related to 11 of the initial domains and considers the implications of incorporating them into all EHRs. This book includes three chapters from the Phase 1 report in addition to the new Phase 2 material. Standardized use of EHRs that include social and behavioral domains could provide better patient care, improve population health, and enable more informative research. The recommendations of Capturing Social and Behavioral Domains and Measures in Electronic Health Records: Phase 2 will provide valuable information on which to base problem identification, clinical diagnoses, patient treatment, outcomes assessment, and population health measurement.
Book Synopsis Governance of Electronic Data Sharing Networks for Healthcare and Research by : Katherine KaKyong Kim
Download or read book Governance of Electronic Data Sharing Networks for Healthcare and Research written by Katherine KaKyong Kim and published by . This book was released on 2013 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: Background and Significance: With many clinicians and hospitals moving to electronic medical records, the potential for leveraging large-scale data to improve care and research is rapidly emerging. In electronic networks for healthcare and research, numerous technical challenges and ethical issues must be addressed, particularly incorporating views of stakeholders such as patients and consumers and health organization leaders about sharing health data. There is a dearth of knowledge regarding how governance standards, strategies, or organizational structures are best matched to principles of patient-centeredness. This study provides evidence of applicable state and federal policy as well as stakeholders' views that will inform effective governance of these networks. Specific Aims: 1. Create a flexible framework for understanding the requirements of governance in multi-state research networks, 2. Explore stakeholder requirements for governance of data sharing networks for healthcare treatment and research, 3. Understand California consumers' perspectives on electronic health information sharing for healthcare and research. Methods: Aim 1 is accomplished through state and federal policy analysis, application of policy framework to three comparative effectiveness research use cases: safety of new oral hematologic medications; medication therapy management for patients with diabetes and hypertension; and informational interventions for providers in the treatment of acute respiratory infections, and convening of an expert panel to vet the framework and its application. Aim 2 involves six patient focus groups and interviews of institutional leaders in three academic medical centers in three jurisdictions, CA, MA, federal Veteran's Administration, analyzed using a grounded theory approach. Aim 3 consists of a random digit dialed, computer aided telephone interview survey of California adults analyzed using descriptive statistics and logistic regression for analysis of predictors of consent choices. Results: A flexible policy framework was adapted from the US Fair Information Practice Principles. The policies may vary depending on the type of patient data shared (aggregate counts, de-identified, limited, and fully identified data sets) and the flow of data. Participants in the focus groups positively endorsed sharing their health data with these networks to advance healthcare knowledge. However, patients expressed several concerns regarding security and broader ethical issues such as commercialism, public benefit, and social responsibility. Network governance requirements were elucidated and yielded both technical and policy mechanisms for implementation. The survey showed differences in views and lower likelihood of consenting to share data for healthcare than for research. Conclusion: The need for flexibility in the development and implementation of policies must be balanced with responsibilities of data stewardship. Network governance guidelines need to move beyond strict technical requirements and address wider socio-ethical concerns by fully including stakeholders in governance processes.
Book Synopsis Secondary Analysis of Electronic Health Records by : MIT Critical Data
Download or read book Secondary Analysis of Electronic Health Records written by MIT Critical Data and published by Springer. This book was released on 2016-09-09 with total page 435 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book trains the next generation of scientists representing different disciplines to leverage the data generated during routine patient care. It formulates a more complete lexicon of evidence-based recommendations and support shared, ethical decision making by doctors with their patients. Diagnostic and therapeutic technologies continue to evolve rapidly, and both individual practitioners and clinical teams face increasingly complex ethical decisions. Unfortunately, the current state of medical knowledge does not provide the guidance to make the majority of clinical decisions on the basis of evidence. The present research infrastructure is inefficient and frequently produces unreliable results that cannot be replicated. Even randomized controlled trials (RCTs), the traditional gold standards of the research reliability hierarchy, are not without limitations. They can be costly, labor intensive, and slow, and can return results that are seldom generalizable to every patient population. Furthermore, many pertinent but unresolved clinical and medical systems issues do not seem to have attracted the interest of the research enterprise, which has come to focus instead on cellular and molecular investigations and single-agent (e.g., a drug or device) effects. For clinicians, the end result is a bit of a “data desert” when it comes to making decisions. The new research infrastructure proposed in this book will help the medical profession to make ethically sound and well informed decisions for their patients.
Book Synopsis Defending Secrets, Sharing Data by :
Download or read book Defending Secrets, Sharing Data written by and published by . This book was released on 1987 with total page 196 pages. Available in PDF, EPUB and Kindle. Book excerpt: Examines Federal policies directed at protecting information, particularly in electronic communications systems. Examines the vulnerability of communications and computer systems, and the trends in technology for safeguarding information in these systems. Addresses important trends taking place in the private sector. Charts and tables.
Book Synopsis Building the Data Warehouse by : W. H. Inmon
Download or read book Building the Data Warehouse written by W. H. Inmon and published by John Wiley & Sons. This book was released on 2002-10-01 with total page 434 pages. Available in PDF, EPUB and Kindle. Book excerpt: The data warehousing bible updated for the new millennium Updated and expanded to reflect the many technological advances occurring since the previous edition, this latest edition of the data warehousing "bible" provides a comprehensive introduction to building data marts, operational data stores, the Corporate Information Factory, exploration warehouses, and Web-enabled warehouses. Written by the father of the data warehouse concept, the book also reviews the unique requirements for supporting e-business and explores various ways in which the traditional data warehouse can be integrated with new technologies to provide enhanced customer service, sales, and support-both online and offline-including near-line data storage techniques.
Author :Sudeep Tanwar Publisher :Institution of Engineering and Technology ISBN 13 :1785618989 Total Pages :432 pages Book Rating :4.7/5 (856 download)
Book Synopsis Security and Privacy of Electronic Healthcare Records by : Sudeep Tanwar
Download or read book Security and Privacy of Electronic Healthcare Records written by Sudeep Tanwar and published by Institution of Engineering and Technology. This book was released on 2019-12-13 with total page 432 pages. Available in PDF, EPUB and Kindle. Book excerpt: Hospitals, medical practices and healthcare organizations are implementing new technologies at breakneck speed. Yet privacy and security considerations are often an afterthought, putting healthcare organizations at risk of data security and privacy issues, fines, damage to their reputations, with serious potential consequences for the patients. Electronic Health Record systems (EHRs) consist of clinical notes, patient listings, lab results, imaging results and screening tests. EHRs are growing in complexity over time and requiring increasing amounts of data storage. With the development of the IoT, the Cloud and Smart Cities frameworks, new privacy and security methods are being pursued to secure healthcare-based systems and platforms. Presenting a detailed framework as well as comparative case studies for security protection, data integrity, privacy preservation, scalability, and healthcare legislation, this edited volume covers state of the art research and addresses privacy and security methods and technologies for EHRs.
Book Synopsis Managing and Sharing Research Data by : Louise Corti
Download or read book Managing and Sharing Research Data written by Louise Corti and published by SAGE. This book was released on 2014-02-04 with total page 258 pages. Available in PDF, EPUB and Kindle. Book excerpt: Research funders in the UK, USA and across Europe are implementing data management and sharing policies to maximize openness of data, transparency and accountability of the research they support. Written by experts from the UK Data Archive with over 20 years experience, this book gives post-graduate students, researchers and research support staff the data management skills required in today’s changing research environment. The book features guidance on: how to plan your research using a data management checklist how to format and organize data how to store and transfer data research ethics and privacy in data sharing and intellectual property rights data strategies for collaborative research how to publish and cite data how to make use of other people’s research data, illustrated with six real-life case studies of data use.
Download or read book What is EDI? written by Martin Preston and published by Wiley-Blackwell. This book was released on 1988-01-01 with total page 101 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Electronic Health Records and Medical Big Data by : Sharona Hoffman
Download or read book Electronic Health Records and Medical Big Data written by Sharona Hoffman and published by Cambridge University Press. This book was released on 2016-12-07 with total page 227 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book provides interdisciplinary analysis of electronic health record systems and medical big data, offering a wealth of technical, legal, and policy insights.
Book Synopsis Fundamentals of Clinical Data Science by : Pieter Kubben
Download or read book Fundamentals of Clinical Data Science written by Pieter Kubben and published by Springer. This book was released on 2018-12-21 with total page 219 pages. Available in PDF, EPUB and Kindle. Book excerpt: This open access book comprehensively covers the fundamentals of clinical data science, focusing on data collection, modelling and clinical applications. Topics covered in the first section on data collection include: data sources, data at scale (big data), data stewardship (FAIR data) and related privacy concerns. Aspects of predictive modelling using techniques such as classification, regression or clustering, and prediction model validation will be covered in the second section. The third section covers aspects of (mobile) clinical decision support systems, operational excellence and value-based healthcare. Fundamentals of Clinical Data Science is an essential resource for healthcare professionals and IT consultants intending to develop and refine their skills in personalized medicine, using solutions based on large datasets from electronic health records or telemonitoring programmes. The book’s promise is “no math, no code”and will explain the topics in a style that is optimized for a healthcare audience.
Download or read book Electronic Data Sharing written by and published by . This book was released on 1991 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Patient Safety by : Institute of Medicine
Download or read book Patient Safety written by Institute of Medicine and published by National Academies Press. This book was released on 2003-12-20 with total page 551 pages. Available in PDF, EPUB and Kindle. Book excerpt: Americans should be able to count on receiving health care that is safe. To achieve this, a new health care delivery system is needed â€" a system that both prevents errors from occurring, and learns from them when they do occur. The development of such a system requires a commitment by all stakeholders to a culture of safety and to the development of improved information systems for the delivery of health care. This national health information infrastructure is needed to provide immediate access to complete patient information and decision-support tools for clinicians and their patients. In addition, this infrastructure must capture patient safety information as a by-product of care and use this information to design even safer delivery systems. Health data standards are both a critical and time-sensitive building block of the national health information infrastructure. Building on the Institute of Medicine reports To Err Is Human and Crossing the Quality Chasm, Patient Safety puts forward a road map for the development and adoption of key health care data standards to support both information exchange and the reporting and analysis of patient safety data.
