Death In Slow Motion My Mothers Descen

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Living in Death’s Shadow

Author : Emily K. Abel
Publisher : JHU Press
ISBN 13 : 1421421844
Total Pages : 181 pages
Book Rating : 4.4/5 (214 download)

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Book Synopsis Living in Death’s Shadow by : Emily K. Abel

Download or read book Living in Death’s Shadow written by Emily K. Abel and published by JHU Press. This book was released on 2017-02-28 with total page 181 pages. Available in PDF, EPUB and Kindle. Book excerpt: Challenging assumptions about caregiving for those dying of chronic illness. What is it like to live with—and love—someone whose death, while delayed, is nevertheless foretold? In Living in Death’s Shadow, Emily K. Abel, an expert on the history of death and dying, examines memoirs written between 1965 and 2014 by family members of people who died from chronic disease. In earlier eras, death generally occurred quickly from acute illnesses, but as chronic disease became the major cause of mortality, many people continued to live with terminal diagnoses for months and even years. Illuminating the excruciatingly painful experience of coping with a family member’s extended fatal illness, Abel analyzes the political, personal, cultural, and medical dimensions of these struggles. The book focuses on three significant developments that transformed the experiences of those dying and their intimates: the passage of Medicare and Medicaid, the growing use of high-tech treatments at the end of life, and the rise of a movement to humanize the care of dying people. It questions the exalted value placed on acceptance of mortality as well as the notion that it is always better to die at home than in an institution. Ultimately, Living in Death’s Shadow emphasizes the need to shift attention from the drama of death to the entire course of a serious chronic disease. The chapters follow a common narrative of life-threatening disease: learning the diagnosis; deciding whether to enroll in a clinical trial; acknowledging or struggling against the limits of medicine; receiving care at home and in a hospital or nursing home; and obtaining palliative and hospice care. Living in Death’s Shadow is essential reading for everyone seeking to understand what it means to live with someone suffering from a chronic, fatal condition, including cancer, AIDS, Alzheimer’s, and heart disease.

The Caregiver's Tale

Author : Ann Burack-Weiss
Publisher : Columbia University Press
ISBN 13 : 0231510772
Total Pages : 210 pages
Book Rating : 4.2/5 (315 download)

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Book Synopsis The Caregiver's Tale by : Ann Burack-Weiss

Download or read book The Caregiver's Tale written by Ann Burack-Weiss and published by Columbia University Press. This book was released on 2006-03-14 with total page 210 pages. Available in PDF, EPUB and Kindle. Book excerpt: Ann Burack-Weiss explores a rich variety of published memoirs by authors who cared for ill or disabled family members. Contrary to the common belief that caregiving is nothing more than a stressful situation to be endured, memoirs describe a life transforming experience-self-discovery, a reordering of one's priorities, and a changed view of the world. The Caregiver's Tale offers insight and comfort to individuals caring for a loved one and is a valuable resource for all health care professionals. Identifying common themes, Burack-Weiss describes how the illness career and social meaning of cancer, dementia, HIV/AIDS, mental illness, and chemical dependence affect the caregiving experience. She applies the same method to an examination of family roles: parents caring for ailing children, couples and siblings caring for one another, and adult children caring for aging parents. Jamaica Kincaid, Sue Miller, Paul Monette, Kenzaburo Oë, and Philip Roth are among the many authors who share their caregiving stories. Burack-Weiss provides an annotated bibliography of the more than one hundred memoirs and an accompanying chart to help readers locate those of greatest interest to them.

A Look Inside Alzheimer's

Author : Marjorie N. Allen
Publisher : Demos Medical Publishing
ISBN 13 : 1617051470
Total Pages : 157 pages
Book Rating : 4.6/5 (17 download)

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Book Synopsis A Look Inside Alzheimer's by : Marjorie N. Allen

Download or read book A Look Inside Alzheimer's written by Marjorie N. Allen and published by Demos Medical Publishing. This book was released on 2012-09-18 with total page 157 pages. Available in PDF, EPUB and Kindle. Book excerpt: A Look Inside Alzheimer's is a captivating read for friends, families and loved ones affected by this mind-robbing disease. Individuals with early-stage Alzheimer's disease will take comfort in the voice of a fellow traveler experiencing similar challenges, frustrations, and triumphs. Family and professional caregivers will be enlightened by this book and gain a better understanding of this unfathomable world and how best to care for someone living in it. Susan and PJ, share their accounts of their own transformation and deterioration with early-onset Alzheimer's Disease and Marjorie shares her perspective as the wife of a person living with Alzheimer's Disease. The book addresses the complexity and emotions surrounding issues such as the loss of independence, unwanted personality shifts, struggle to communicate, and more. The three life-stories intertwined along with boxed quotes from professionals in the field make this book special.

Willard and Spackman's Occupational Therapy

Author : Barbara A. Schell
Publisher : Lippincott Williams & Wilkins
ISBN 13 : 1451110804
Total Pages : 1298 pages
Book Rating : 4.4/5 (511 download)

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Book Synopsis Willard and Spackman's Occupational Therapy by : Barbara A. Schell

Download or read book Willard and Spackman's Occupational Therapy written by Barbara A. Schell and published by Lippincott Williams & Wilkins. This book was released on 2013-03-08 with total page 1298 pages. Available in PDF, EPUB and Kindle. Book excerpt: Willard and Spackman’s Occupational Therapy, Twelfth Edition, continues in the tradition of excellent coverage of critical concepts and practices that have long made this text the leading resource for Occupational Therapy students. Students using this text will learn how to apply client-centered, occupational, evidence based approach across the full spectrum of practice settings. Peppered with first-person narratives, which offer a unique perspective on the lives of those living with disease, this new edition has been fully updated with a visually enticing full color design, and even more photos and illustrations. Vital pedagogical features, including case studies, Practice Dilemmas, and Provocative questions, help position students in the real-world of occupational therapy practice to help prepare them to react appropriately.

Native Country of the Heart

Author : Cherríe Moraga
Publisher : Macmillan + ORM
ISBN 13 : 0374718547
Total Pages : 205 pages
Book Rating : 4.3/5 (747 download)

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Book Synopsis Native Country of the Heart by : Cherríe Moraga

Download or read book Native Country of the Heart written by Cherríe Moraga and published by Macmillan + ORM. This book was released on 2019-04-02 with total page 205 pages. Available in PDF, EPUB and Kindle. Book excerpt: “[Written] with a poet’s verve. . . . This memoir’s beauty is in its fierce intimacy.” —Roy Hoffman, The New York Times Book Review Native Country of the Heart: A Memoir is, at its core, a mother-daughter story. The mother, Elvira, was hired out as a child, along with her siblings, by their own father to pick cotton in California’s Imperial Valley. The daughter, Cherríe Moraga, is a brilliant, pioneering, queer Latina feminist. The story of these two women, and of their people, is woven together in an intimate memoir of critical reflection and deep personal revelation. As a young woman, Elvira left California to work as a cigarette girl in glamorous late-1920s Tijuana, where a relationship with a wealthy white man taught her life lessons about power, sex, and opportunity. As Moraga charts her mother’s journey—from impressionable young girl to battle-tested matriarch to, later on, an old woman suffering under the yoke of Alzheimer’s—she traces her own self-discovery of her gender-queer body and Lesbian identity. As her mother’s memory fails, Moraga is driven to unearth forgotten remnants of a US Mexican diaspora, and an American story of cultural loss. Poetically wrought and filled with insight into intergenerational trauma, Native Country of the Heart is a reckoning with white American history and a piercing love letter from a fearless daughter to her mother. “A masterpiece of literary art.” —Michael Nava, Los Angeles Review of Books “Poignant, beautifully written.” —Kirkus Reviews, starred review “A defiant, deep and soulful book about all our mothers, mother cultures, motherlands and languages.” —Julia Alvarez, national bestselling author of In the Time of the Butterflies

Death in Slow Motion

Author : Eleanor Cooney
Publisher : Harper Collins
ISBN 13 : 0062275976
Total Pages : 274 pages
Book Rating : 4.0/5 (622 download)

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Book Synopsis Death in Slow Motion by : Eleanor Cooney

Download or read book Death in Slow Motion written by Eleanor Cooney and published by Harper Collins. This book was released on 2013-02-26 with total page 274 pages. Available in PDF, EPUB and Kindle. Book excerpt: A raw, unsentimental and passionately written memoir about trying to care for a parent with Alzheimer’s When her once-glamorous and witty novelist-mother got Alzheimer's, Eleanor Cooney moved her from her beloved Connecticut home to California in order to care for her. In tense, searing prose, punctuated with the blackest of humor, Cooney documents the slow erosion of her mother's mind, the powerful bond the two shared, and her own descent into drink and despair. But the coping mechanism that finally serves this eloquent writer best is writing, the ability to bring to vivid life the memories her mother is losing. As her mother gropes in the gathering darkness for a grip on the world she once loved, succeeding only in conjuring sad fantasies of places and times with her late husband, Cooney revisits their true past. Death in Slow Motion becomes the mesmerizing story of Eleanor's actual childhood, straight out of the pages of John Cheever; the daring and vibrant mother she remembers; and a time that no longer exists for either of them.

The Art of Carol Janeway

Author : Victoria Jenssen
Publisher : FriesenPress
ISBN 13 : 1039130887
Total Pages : 466 pages
Book Rating : 4.0/5 (391 download)

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Book Synopsis The Art of Carol Janeway by : Victoria Jenssen

Download or read book The Art of Carol Janeway written by Victoria Jenssen and published by FriesenPress. This book was released on 2022-08-10 with total page 466 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Art of Carol Janeway portrays the exotic life and artistic career of a woman whose commercial success as a tile decorator and ceramist in New York in the 1940s and later retirement due to lead poisoning offer a fascinating study. Victoria Jenssen presents the career of yet another previously unrecognized woman artist, Carol Janeway (1913-1989), who was an entrepreneur and a single mother. While Janeway often exhibited, twice at the MoMA for example, few museums today own Janeway ceramics. This book will appeal to those interested in the following artists and topics: Georg Jensen Inc. and Frederik Lunning, Jens Risom, Ossip Zadkine, Maya Deren, Leo Lerman and Richard Hunter, Harold Ambellan, Tusnelda Sanders, underglaze ceramic decoration both freehand and printed, Lisette Model, Catherine Yarrow, Ed Wiener, Madeleine Turner, Stalin’s Moscow of the early 1930s, syndicated woman journalists of the 1940s, Ralph Ingersoll and Charles Marsh, Josiah Wedgwood & Sons, Lou Block, Doris Lee, Walter Duranty, Eliot Janeway, Julien Levy’s The Imagery of Chess, preservation of Greenwich Village. Among several celebrity owners, Marilyn Monroe owned five Janeway doorknobs.

Cognitive Disability and Its Challenge to Moral Philosophy

Author : Eva Feder Kittay
Publisher : John Wiley & Sons
ISBN 13 : 9781444322798
Total Pages : 440 pages
Book Rating : 4.3/5 (227 download)

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Book Synopsis Cognitive Disability and Its Challenge to Moral Philosophy by : Eva Feder Kittay

Download or read book Cognitive Disability and Its Challenge to Moral Philosophy written by Eva Feder Kittay and published by John Wiley & Sons. This book was released on 2010-05-18 with total page 440 pages. Available in PDF, EPUB and Kindle. Book excerpt: Through a series of essays contributed by clinicians, medicalhistorians, and prominent moral philosophers, CognitiveDisability and Its Challenge to Moral Philosophy addresses theethical, bio-ethical, epistemological, historical, andmeta-philosophical questions raised by cognitive disability Features essays by a prominent clinicians and medicalhistorians of cognitive disability, and prominent contemporaryphilosophers such as Ian Hacking, Martha Nussbaum, and PeterSinger Represents the first collection that brings togetherphilosophical discussions of Alzheimer's disease,intellectual/developmental disabilities, and autism under therubric of cognitive disability Offers insights into categories like Alzheimer's, mentalretardation, and autism, as well as issues such as care,personhood, justice, agency, and responsibility

Time and Memory

Author : Jo Alyson Parker
Publisher : BRILL
ISBN 13 : 904741117X
Total Pages : 339 pages
Book Rating : 4.0/5 (474 download)

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Book Synopsis Time and Memory by : Jo Alyson Parker

Download or read book Time and Memory written by Jo Alyson Parker and published by BRILL. This book was released on 2006-09-01 with total page 339 pages. Available in PDF, EPUB and Kindle. Book excerpt: Time and Memory comprises essays that deal with the nature of memory as a medium that reflects the passage of time, as a tool for the manipulation of time, and as a reflection of the creative and destructive impulse.

Library Journal

Author :
Publisher :
ISBN 13 :
Total Pages : 934 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis Library Journal by :

Download or read book Library Journal written by and published by . This book was released on 2003 with total page 934 pages. Available in PDF, EPUB and Kindle. Book excerpt: Includes, beginning Sept. 15, 1954 (and on the 15th of each month, Sept.-May) a special section: School library journal, ISSN 0000-0035, (called Junior libraries, 1954-May 1961). Also issued separately.

Elder Care in Crisis

Author : Emily K. Abel
Publisher : NYU Press
ISBN 13 : 147981539X
Total Pages : 231 pages
Book Rating : 4.4/5 (798 download)

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Book Synopsis Elder Care in Crisis by : Emily K. Abel

Download or read book Elder Care in Crisis written by Emily K. Abel and published by NYU Press. This book was released on 2022-10-25 with total page 231 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Drawing partly from an online support group for dementia caregivers, this book demonstrates that this country faces an elder care crisis. Our elder care system rests on the exploitation of workers, mostly women and people of color, who are paid too little to make ends meet and imposes unsustainable burdens on family members"--

Help for the Caring

Author : Brenda Parris Sibley
Publisher : iUniverse
ISBN 13 : 0595253563
Total Pages : 146 pages
Book Rating : 4.5/5 (952 download)

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Book Synopsis Help for the Caring by : Brenda Parris Sibley

Download or read book Help for the Caring written by Brenda Parris Sibley and published by iUniverse. This book was released on 2002 with total page 146 pages. Available in PDF, EPUB and Kindle. Book excerpt: This much-needed bibliography and filmography brings together lists of books about Alzheimer's and caregiving, including biographies, poetry, and even fiction, as well as in instructional and dramatic films.

Goodbye God, We're Going to Texas

Author : John Suddath
Publisher : Trafford Publishing
ISBN 13 : 1412036887
Total Pages : 210 pages
Book Rating : 4.4/5 (12 download)

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Book Synopsis Goodbye God, We're Going to Texas by : John Suddath

Download or read book Goodbye God, We're Going to Texas written by John Suddath and published by Trafford Publishing. This book was released on 2004 with total page 210 pages. Available in PDF, EPUB and Kindle. Book excerpt: Why another book about a victim of Alzheimer's Disease? Hasn't the tragic story been told many times before? Mary Louise's story includes AD as the final chapter of her life, but the real story is that of a successful career woman, dedicated Christian, child of the Great Depression, and community activist. Although she never married, family was very important to her - not only her immediate family and blood relatives, but also friends, co-workers, and students, who also became a part of her immediate family. She kept the ties through regular correspondence, phone calls and long distance travel with dozens of her "family." In the man's world of her time, she persevered in a new career in the health care field as a physical therapist. Her life and her interaction with those she loved is a case study covering the major diseases of our time: tuberculosis, polio, heart disease, and AD. The theme of each chapter is devoted to a health care issue, and the summary in the epilogue focusses on some of the current debate and possible solutions for improving health eldercare in the United States today.

The Routledge Companion to Bioethics

Author : John D. Arras
Publisher : Routledge
ISBN 13 : 1136644830
Total Pages : 877 pages
Book Rating : 4.1/5 (366 download)

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Book Synopsis The Routledge Companion to Bioethics by : John D. Arras

Download or read book The Routledge Companion to Bioethics written by John D. Arras and published by Routledge. This book was released on 2014-12-05 with total page 877 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Routledge Companion to Bioethics is a comprehensive reference guide to a wide range of contemporary concerns in bioethics. The volume orients the reader in a changing landscape shaped by globalization, health disparities, and rapidly advancing technologies. Bioethics has begun a turn toward a systematic concern with social justice, population health, and public policy. While also covering more traditional topics, this volume fully captures this recent shift and foreshadows the resulting developments in bioethics. It highlights emerging issues such as climate change, transgender, and medical tourism, and re-examines enduring topics, such as autonomy, end-of-life care, and resource allocation.

Sick and Tired

Author : Emily K. Abel
Publisher : UNC Press Books
ISBN 13 : 1469661799
Total Pages : 207 pages
Book Rating : 4.4/5 (696 download)

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Book Synopsis Sick and Tired by : Emily K. Abel

Download or read book Sick and Tired written by Emily K. Abel and published by UNC Press Books. This book was released on 2021-03-19 with total page 207 pages. Available in PDF, EPUB and Kindle. Book excerpt: Medicine finally has discovered fatigue. Recent articles about various diseases conclude that fatigue has been underrecognized, underdiagnosed, and undertreated. Scholars in the social sciences and humanities have also ignored the phenomenon. As a result, we know little about what it means to live with this condition, especially given its diverse symptoms and causes. Emily K. Abel offers the first history of fatigue, one that is scrupulously researched but also informed by her own experiences as a cancer survivor. Abel reveals how the limits of medicine and the American cultural emphasis on productivity intersect to stigmatize those with fatigue. Without an agreed-upon approach to confirm the problem through medical diagnosis, it is difficult to convince others that it is real. When fatigue limits our ability to work, our society sees us as burdens or worse. With her engaging and informative style, Abel gives us a synthetic history of fatigue and elucidates how it has been ignored or misunderstood, not only by medical professionals but also by American society as a whole.

Canadian Graphic

Author : Candida Rifkind
Publisher : Wilfrid Laurier Univ. Press
ISBN 13 : 1771121815
Total Pages : 412 pages
Book Rating : 4.7/5 (711 download)

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Book Synopsis Canadian Graphic by : Candida Rifkind

Download or read book Canadian Graphic written by Candida Rifkind and published by Wilfrid Laurier Univ. Press. This book was released on 2016-05-15 with total page 412 pages. Available in PDF, EPUB and Kindle. Book excerpt: Canadian Graphic: Picturing Life Narratives presents critical essays on contemporary Canadian cartoonists working in graphic life narrative, from confession to memoir to biography. The contributors draw on literary theory, visual studies, and cultural history to show how Canadian cartoonists have become so prominent in the international market for comic books based on real-life experiences. The essays explore the visual styles and storytelling techniques of Canadian cartoonists, as well as their shared concern with the spectacular vulnerability of the self. Canadian Graphic also considers the role of graphic life narratives in reimagining the national past, including Indigenous–settler relations, both world wars, and Quebec’s Quiet Revolution. Contributors use a range of approaches to analyze the political, aesthetic, and narrative tensions in these works between self and other, memory and history, individual and collective. An original contribution to the study of auto/biography, alternative comics, and Canadian print culture, Canadian Graphic proposes new ways of reading the intersection of comics and auto/ biography both within and across national boundaries.

Basements and Attics, Closets and Cyberspace

Author : Linda M. Morra
Publisher : Wilfrid Laurier Univ. Press
ISBN 13 : 1554584302
Total Pages : 493 pages
Book Rating : 4.5/5 (545 download)

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Book Synopsis Basements and Attics, Closets and Cyberspace by : Linda M. Morra

Download or read book Basements and Attics, Closets and Cyberspace written by Linda M. Morra and published by Wilfrid Laurier Univ. Press. This book was released on 2013-01-24 with total page 493 pages. Available in PDF, EPUB and Kindle. Book excerpt: Women’s letters and memoirs were until recently considered to have little historical significance. Many of these materials have disappeared or remain unarchived, often dismissed as ephemera and relegated to basements, attics, closets, and, increasingly, cyberspace rather than public institutions. This collection showcases the range of critical debates that animate thinking about women’s archives in Canada. The essays in Basements and Attics, Closets and Cyberspace consider a series of central questions: What are the challenges that affect archival work about women in Canada today? What are some of the ethical dilemmas that arise over the course of archival research? How do researchers read and make sense of the materials available to them? How does one approach the shifting, unstable forms of new technologies? What principles inform the decisions not only to research the lives of women but to create archival deposits? The contributors focus on how a supple research process might allow for greater engagement with unique archival forms and critical absences in narratives of past and present. From questions of acquisition, deposition, and preservation to challenges related to the interpretation of material, the contributors track at various stages how fonds are created (or sidestepped) in response to national and other imperatives and to feminist commitments; how archival material is organized, restricted, accessed, and interpreted; how alternative and immediate archives might be conceived and approached; and how exchanges might be read when there are peculiar lacunae—missing or fragmented documents, or gaps in communication—that then require imaginative leaps on the part of the researcher.