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Competence And Vulnerability In Biomedical Research 2008
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Book Synopsis Competence and Vulnerability in Biomedical Research by : Philip Bielby
Download or read book Competence and Vulnerability in Biomedical Research written by Philip Bielby and published by Springer Science & Business Media. This book was released on 2008-09-16 with total page 244 pages. Available in PDF, EPUB and Kindle. Book excerpt: Enhanced knowledge of the nature and causes of mental disorder have led increasingly to a need for the recruitment of ‘cognitively vulnerable’ participants in biomedical research. These individuals often fall into the ‘grey area’ between obvious decisional competence and obvious decisional incompetence and, as a result, may not be recognised as having the legal capacity to make such decisions themselves. At the core of the ethical debate surrounding the participation of cognitively vulnerable individuals in research is when, if at all, we should judge them decisionally and legally competent to consent to or refuse research participation on their own behalf and when they should be judged incompetent in this respect. In this book, the author develops a novel justificatory framework for making judgments of decisional competence to consent to biomedical research with reference to five groups of cognitively vulnerable individuals - older children and adolescents, adults with intellectual disabilities, adults with depression, adults with schizophrenia and adults with dementia, including Alzheimer’s disease. Using this framework, the author argues that we can make morally defensible judgments about the competence or incompetence of a potential participant to give contemporaneous consent to research by having regard to whether a judgment of competence would be more harmful to the ‘generic rights’ of the potential participant than a judgment of incompetence. The argument is also used to justify an account of supported decision-making in research, and applied to evaluate the extent to which this approach is evident in existing ethical guidelines and legal provisions. The book will be of interest to bioethicists as well as psychiatrists and academic medical lawyers interested in normative questions raised by the concepts of competence and capacity.
Book Synopsis Ecological Vulnerability by : Katie Woolaston
Download or read book Ecological Vulnerability written by Katie Woolaston and published by Cambridge University Press. This book was released on 2022-06-23 with total page 247 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book offers novel theoretical responses to the question of how laws and institutions shape the human-wildlife relationship.
Book Synopsis Gewirthian Perspectives on Human Rights by : Per Bauhn
Download or read book Gewirthian Perspectives on Human Rights written by Per Bauhn and published by Routledge. This book was released on 2016-03-22 with total page 245 pages. Available in PDF, EPUB and Kindle. Book excerpt: Gewirth’s theory of human rights has made a major contribution to philosophy. In this edited collection, contributors from a broad range of disciplines discuss the theoretical and practical application of Gewirthian theory to current world issues. Case studies highlight mental health, the LGBT community, intellectual disabilities, global economic inequality, and market instability to provide a truly interdisciplinary study. This important contribution to human rights scholarship provides a platform for further discussion of Gewirthian theory. It will be of interest to those researching moral, legal, and political philosophy, as well as policy makers, social workers, and medical staff.
Book Synopsis The Limits of Consent by : Oonagh Corrigan
Download or read book The Limits of Consent written by Oonagh Corrigan and published by OUP Oxford. This book was released on 2009-01-29 with total page 256 pages. Available in PDF, EPUB and Kindle. Book excerpt: Since its inception as an international requirement to protect patients and healthy volunteers taking part in medical research, informed consent has become the primary consideration in research ethics. Despite the ubiquity of consent, however, scholars have begun to question its adequacy for contemporary biomedical research. The Limits of Consent explores this issue, reviewing the application of consent to genetic research, clinical trials, and research involving vulnerable populations. For example, in genetic research, information obtained from an autonomous research participant may have significant bearing on the interests of family members who have not consented to the study. This casts doubt on the adequacy of consent for such studies. The Limits of Consent also questions the assumptions that informed consent is essential and that it satisfactorily protects the principle of individual autonomy. It reviews recent empirical studies that challenge the possibility of truly informed consent and highlights the extent to which consent is governed by social norms and expectations. It also investigates how consent might be of secondary importance in some circumstances, for example when a research project appears to protect a public or community interest. Building on these observations, the authors make bold attempts to outline constructive solutions to the problems identified with perspectives from medicine, law, philosophy and sociology. This fascinating and provocative exploration of the limits of informed consent will appeal to ethicists, social scientists, health lawyers, clinical researchers, research ethics committee members, policy makers, and others with an interest in bioethics.
Book Synopsis The Law and Ethics of Dementia by : Charles Foster
Download or read book The Law and Ethics of Dementia written by Charles Foster and published by Bloomsbury Publishing. This book was released on 2014-12-01 with total page 572 pages. Available in PDF, EPUB and Kindle. Book excerpt: Dementia is a topic of enormous human, medical, economic, legal and ethical importance. Its importance grows as more of us live longer. The legal and ethical problems it raises are complex, intertwined and under-discussed. This book brings together contributions from clinicians, lawyers and ethicists – all of them world leaders in the field of dementia – and is a comprehensive, scholarly yet accessible library of all the main (and many of the fringe) perspectives. It begins with the medical facts: what is dementia? Who gets it? What are the current and future therapeutic and palliative options? What are the main challenges for medical and nursing care? The story is then taken up by the ethicists, who grapple with questions such as: is it legitimate to lie to dementia patients if that is a kind thing to do? Who is the person whose memory, preferences and personality have all been transformed by their disease? Should any constraints be placed on the sexual activity of patients? Are GPS tracking devices an unpardonable interference with the patient's freedom? These issues, and many more, are then examined through legal lenses. The book closes with accounts from dementia sufferers and their carers. It is the first and only book of its kind, and the authoritative text. This title is included in Bloomsbury Professional's Family Law online service.
Download or read book Vulnerability written by Henk ten Have and published by Routledge. This book was released on 2016-04-08 with total page 274 pages. Available in PDF, EPUB and Kindle. Book excerpt: Alongside globalization, the sense of vulnerability among people and populations has increased. We feel vulnerable to disease as new infections spread rapidly across the globe, while disasters and climate change make health increasingly precarious. Moreover, clinical trials of new drugs often exploit vulnerable populations in developing countries that otherwise have no access to healthcare and new genetic technologies make people with disabilities vulnerable to discrimination. Therefore the concept of ‘vulnerability’ has contributed new ideas to the debates about the ethical dimensions of medicine and healthcare. This book explains and elaborates the new concept of vulnerability in today’s bioethics. Firstly, Henk ten Have argues that vulnerability cannot be fully understood within the framework of individual autonomy that dominates mainstream bioethics today: it is often not the individual person who is vulnerable, rather that his or her vulnerability is created through the social and economic conditions in which he or she lives. Contending that the language of vulnerability offers perspectives beyond the traditional autonomy model, this book offers a new approach which will enable bioethics to evolve into a global enterprise. This groundbreaking book critically analyses the concept of vulnerability as a global phenomenon. It will appeal to scholars and students of ethics, bioethics, globalization, healthcare, medical science, medical research, culture, law, and politics.
Book Synopsis Using Naturally Occurring Data in Qualitative Health Research by : Nikki Kiyimba
Download or read book Using Naturally Occurring Data in Qualitative Health Research written by Nikki Kiyimba and published by Springer. This book was released on 2018-11-10 with total page 360 pages. Available in PDF, EPUB and Kindle. Book excerpt: This highly practical resource brings new dimensions to the utility of qualitative data in health research by focusing on naturally occurring data. It examines how naturally occurring data complement interviews and other sources of researcher-generated health data, and takes readers through the steps of identifying, collecting, analyzing, and disseminating these findings in ethical research with real-world relevance. The authors acknowledge the critical importance of evidence-based practice in today’s healthcare landscape and argue for naturally occurring data as a form of practice-based evidence making valued contributions to the field. And chapters evaluate frequently overlooked avenues for naturally occurring data, including media and social media sources, health policy and forensic health contexts, and digital communications. Included in the coverage: · Exploring the benefits and limitations of using naturally occurring data in health research · Considering qualitative approaches that may benefit from using naturally occurring data · Utilizing computer-mediated communications and social media in health · Using naturally occurring data to research vulnerable groups · Reviewing empirical examples of health research using naturally occurring data Using Naturally Occurring Data in Qualitative Health Research makes concepts, methods, and rationales accessible and applicable for readers in the health and mental health fields, among them health administrators, professionals in research methodology, psychology researchers, and practicing and trainee clinicians.
Book Synopsis Ethical Decision Making in School Mental Health by : James C. Raines
Download or read book Ethical Decision Making in School Mental Health written by James C. Raines and published by Oxford University Press. This book was released on 2010-09-30 with total page 288 pages. Available in PDF, EPUB and Kindle. Book excerpt: Ethical predicaments are endemic for mental health professionals working in a host setting like schools. New interventions, evolving technologies, and a patchwork of ethical guidelines and legal codes create a constant stream of new ethical dilemmas. Quick answers and simple solutions are rare, but with the seven-stage model presented here, readers will learn to apply an ethical decision-making process that minimizes their liability while better protecting their students. Beginning with an introduction to the moral, legal, and clinical foundations that undergird ethical practice, the authors outline an ethical decision-making process to handle conundrums that includes seven major steps: know yourself, analyze the dilemma, seek consultation, identify courses of action, manage the clinical concerns, enact the decision, and reflect on the process. Each chapter describes these steps in detail, provides case examples to illustrate their application, and presents exercises that encourage readers to integrate them into their everyday practice. This handy guide is written for the school social workers, school psychologists, school nurses, and school counselors who are responsible for acting in their students' best interests, as well as post-secondary students studying to enter one of these professions. It will be a trusted resource for school services professionals seeking clear but nuanced guidance in resolving thorny ethical issues.
Book Synopsis The Cambridge Handbook of Health Research Regulation by : Graeme Laurie
Download or read book The Cambridge Handbook of Health Research Regulation written by Graeme Laurie and published by . This book was released on 2021-06-09 with total page 444 pages. Available in PDF, EPUB and Kindle. Book excerpt: The definitive reference guide to designing scientifically sound and ethically robust medical research, considering legal, ethical and practical issues.
Book Synopsis Law Through the Life Course by : Jonathan Herring
Download or read book Law Through the Life Course written by Jonathan Herring and published by Policy Press. This book was released on 2021-05-03 with total page 292 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book is the first to explore the interactions of the law with the life course in order to understand the complex life journey as a whole. Jonathan Herring reveals how the law privileges “middle age” to the detriment of the whole life story and explains why an understanding of the life course is important for lawyers.
Book Synopsis Revisiting Landmark Cases in Medical Law by : Shaun D. Pattinson
Download or read book Revisiting Landmark Cases in Medical Law written by Shaun D. Pattinson and published by Routledge. This book was released on 2018-09-27 with total page 201 pages. Available in PDF, EPUB and Kindle. Book excerpt: Is it lawful for a doctor to give a patient life-shortening pain relief? Can treatment be lawfully provided to a child under 16 on the basis of her consent alone? Is it lawful to remove food and water provided by tube to a patient in a vegetative state? Is a woman’s refusal of a caesarean section recommended for the benefit of the fetus legally decisive? These questions were central to the four focal cases revisited in this book. This book revisits nine landmark cases. For each, a new leading judgment is attributed to an imagined judge, Athena, who operates within the constraints of the legal system of England and Wales. Her judgments accord with an innovative legal theory, referred to as ‘modified law as integrity’, and are linked as a line of precedent. The result is a re-spinning of extant judicial threads into a web of legal principles with a greater claim to coherence and defensibility than those in the original cases. The book will be of great interest to scholars and students of medical law, criminal law, bioethics, legal theory and moral philosophy.
Book Synopsis Oral Rehabilitation by : Iven Klineberg
Download or read book Oral Rehabilitation written by Iven Klineberg and published by John Wiley & Sons. This book was released on 2012-02-06 with total page 441 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book provides its readers with a structured approach to decision-making and case management in oral rehabilitation. It is built around actual patient cases from simple prosthodontics to complex full-mouth reconstructions, demonstrating a formal process by which a diagnosis and treatment plan is reached. Grounded firmly in evidence-based principles, the book also includes a chapter on literature searching in dentistry, which is critical for acquiring a knowledge-base for informed decisions in clinical treatment. Featuring an approach to prosthodontics and oral rehabilitation that is both instructional and practical, Oral Rehabilitation: A Case-Based Approach will help clinicians to develop the necessary skills to make consistent, evidence-based clinical decisions. KEY FEATURES • Presents a case-based process showing how diagnosis and treatment is achieved • Covers a range of clinical scenarios from simple to complex presentations • Illustrates each case fully, with stages documented by colour photographs • Emphasises inter-disciplinary management in prosthodontics • Accompanied by a website containing illustrative video clips
Download or read book Bioethics written by Marcus Düwell and published by Routledge. This book was released on 2013 with total page 322 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book is a philosophically-oriented introduction to bioethics. It offers the reader an overview of key current debates in bioethics in the areas including organ retrieval, stem cell research, justice in healthcare and issues in environmental ethics including issues surrounding food and agriculture. The book also seeks to go beyond describing the issues in order to provide the reader with the methodological and theoretical tools for a more comprehensive understanding of bioethical debates. The book investigates the theoretical foundations and normative implications of bioethical debates and situates the areas of ethics into their philosophical context.
Author :Council for International Organizations of Medical Sciences (CIOMS) Publisher :World Health Organization ISBN 13 :9789290360889 Total Pages :0 pages Book Rating :4.3/5 (68 download)
Book Synopsis International Ethical Guidelines for Health-Related Research Involving Humans by : Council for International Organizations of Medical Sciences (CIOMS)
Download or read book International Ethical Guidelines for Health-Related Research Involving Humans written by Council for International Organizations of Medical Sciences (CIOMS) and published by World Health Organization. This book was released on 2017-01-31 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: "In the new 2016 version of the ethical guidelines, CIOMS provides answers to a number of pressing issues in research ethics. The Council does so by stressing the need for research having scientific and social value, by providing special guidelines for health-related research in low-resource settings, by detailing the provisions for involving vulnerable groups in research and for describing under what conditions biological samples and health-related data can be used for research."--Page 4 de la couverture.
Book Synopsis The Clinical and Ethical Practice of Neuromodulation – Deep Brain Stimulation and Beyond by : Markus Christen
Download or read book The Clinical and Ethical Practice of Neuromodulation – Deep Brain Stimulation and Beyond written by Markus Christen and published by Frontiers Media SA. This book was released on 2018-01-15 with total page 84 pages. Available in PDF, EPUB and Kindle. Book excerpt: Neuromodulation is among the fastest-growing areas of medicine, involving many diverse specialties and affecting hundreds of thousands of patients with numerous disorders worldwide. It can briefly be described as the science of how electrical, chemical, and mechanical interventions can modulate the nervous system function. A prominent example of neuromodulation is deep brain stimulation (DBS), an intervention that reflects a fundamental shift in the understanding of neurological and psychiatric diseases: namely as resulting from a dysfunctional activity pattern in a defined neuronal network that can be normalized by targeted stimulation. The application of DBS has grown remarkably and more than 130,000 patients worldwide have obtained a DBS intervention in the past 30 years—most of them for treating movement disorders. This Frontiers Research Topics provides an overview on the current discussion beyond basic research in DBS and other brain stimulation technologies. Researchers from various disciplines, who are working on broader clinical, ethical and social issues related to DBS and related neuromodulation technologies, have contributed to this research topic.
Book Synopsis Ethics and Neuromarketing by : Andrew R. Thomas
Download or read book Ethics and Neuromarketing written by Andrew R. Thomas and published by Springer. This book was released on 2016-10-19 with total page 219 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book addresses the emerging field of neuromarketing, which, at its core, aims to better understand the impact of marketing stimuli by observing and interpreting human emotions. It includes contributions from leading researchers and practitioners, venturing beyond the tactics and strategies of neuromarketing to consider the ethical implications of applying powerful tools for data collection. The rationale behind neuromarketing is that human decision-making is not primarily a conscious process. Instead, there is increasing evidence that the willingness to buy products and services is an emotional process where the brain uses short cuts to accelerate the decision-making process. At the intersection of economics, neuroscience, consumer behavior, and cognitive psychology, neuromarketing focuses on which emotions are relevant in human decision-making, and uses this knowledge to make marketing more effective. The knowledge is applied in product design; enhancing promotions and advertising, pricing, professional services, and store design; and improving the consumer experience as a whole. The foundation for all of this activity is data gathering and analysis. Like many new processes and innovations, much of neuromarketing is operating far ahead of current governmental compliance and regulation and thus current practices are raising ethical issues. For example, facial recognition software, used to monitor and detect a wide range of micro-expressions, has been tested at several airports—under the guise of security and counterterrorism. To what extent is it acceptable to screen the entire population using these powerful and intrusive techniques without getting passengers’ consent? Citing numerous examples from the public and private sectors, the editors and contributing authors argue that while the United States has catalyzed technological advancements, European companies and governments are more progressive when it comes to defining ethical parameters and developing policies. This book details many of those efforts, and offers rational, constructive approaches to laying an ethical foundation for neuromarketing efforts.
Book Synopsis Vulnerability by : Catriona Mackenzie
Download or read book Vulnerability written by Catriona Mackenzie and published by Oxford University Press, USA. This book was released on 2014 with total page 331 pages. Available in PDF, EPUB and Kindle. Book excerpt: This volume breaks new ground by investigating the ethics of vulnerability. Drawing on various ethical traditions, the contributors explore the nature of vulnerability, the responsibilities owed to the vulnerable, and by whom.
