Caring For Dying Children And Their Families

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Care of the Dying Child

Author : Ann Goldman
Publisher :
ISBN 13 :
Total Pages : 232 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis Care of the Dying Child by : Ann Goldman

Download or read book Care of the Dying Child written by Ann Goldman and published by . This book was released on 1994 with total page 232 pages. Available in PDF, EPUB and Kindle. Book excerpt: This unique book considers the specific medical, psycho-social, and practical issues involved in caring for children dying from chronic diseases. Ann Goldman, herself a consultant paediatrician in palliative care at the Hospital for Sick Children, Great Ormond Street, recognizes the special needs of terminally ill children and their families. She confronts the problems and issues surrounding the care of these children in order to help paediatricians and other professionals provide the very best possible care for such patients. A range of contributors experienced in palliative care for children provide comprehensive coverage of the subject, including: consideration of the magnitude of the problem and the provision of services, pain control symptom management, family support and communication with children, spiritual issues, bereavement, stress. This practical, interdisciplinary approach to the specific needs of children with terminal diseases will be invaluable for every professional who wishes to enhance standards of care for dying children and their families.

When Children Die

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309084377
Total Pages : 713 pages
Book Rating : 4.3/5 (9 download)

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Book Synopsis When Children Die by : Institute of Medicine

Download or read book When Children Die written by Institute of Medicine and published by National Academies Press. This book was released on 2003-02-09 with total page 713 pages. Available in PDF, EPUB and Kindle. Book excerpt: The death of a child is a special sorrow. No matter the circumstances, a child's death is a life-altering experience. Except for the child who dies suddenly and without forewarning, physicians, nurses, and other medical personnel usually play a central role in the lives of children who die and their families. At best, these professionals will exemplify "medicine with a heart." At worst, families' encounters with the health care system will leave them with enduring painful memories, anger, and regrets. When Children Die examines what we know about the needs of these children and their families, the extent to which such needs areâ€"and are notâ€"being met, and what can be done to provide more competent, compassionate, and consistent care. The book offers recommendations for involving child patients in treatment decisions, communicating with parents, strengthening the organization and delivery of services, developing support programs for bereaved families, improving public and private insurance, training health professionals, and more. It argues that taking these steps will improve the care of children who survive as well as those who do notâ€"and will likewise help all families who suffer with their seriously ill or injured child. Featuring illustrative case histories, the book discusses patterns of childhood death and explores the basic elements of physical, emotional, spiritual, and practical care for children and families experiencing a child's life-threatening illness or injury.

Caring for Dying Children and Their Families

Author : Lenore Hill
Publisher : Singular Publishing Group
ISBN 13 : 9781565931350
Total Pages : 278 pages
Book Rating : 4.9/5 (313 download)

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Book Synopsis Caring for Dying Children and Their Families by : Lenore Hill

Download or read book Caring for Dying Children and Their Families written by Lenore Hill and published by Singular Publishing Group. This book was released on 1994-01-01 with total page 278 pages. Available in PDF, EPUB and Kindle. Book excerpt:

When Children Die

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309090768
Total Pages : 32 pages
Book Rating : 4.3/5 (9 download)

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Book Synopsis When Children Die by : Institute of Medicine

Download or read book When Children Die written by Institute of Medicine and published by National Academies Press. This book was released on 2003-10-30 with total page 32 pages. Available in PDF, EPUB and Kindle. Book excerpt: This document is a brief summary of the Institute of Medicine report entitled When Children Die: Improving Palliative and End-of-Life Care for Children. Better care is possible now, but current methods of organizing and financing palliative, end-of-life, and bereavement care complicate the provision and coordination of services to help children and families and sometimes require families to choose between curative or life-prolonging care and palliative services, in particular, hospice care. Inadequate data and scientific knowledge impede efforts to deliver effective care, educate professionals to provide such care, and design supportive public policies. Integrating effective palliative care from the time a child's life-threatening medical problem is diagnosed will improve care for children who survive as well as children who die-and will help the families of all these children. The report recognizes that while much can be done now to support children and families, much more needs to be learned. The analysis and recommendations reflect current knowledge and judgments, but new research and insights will undoubtedly suggest modifications and shifts in emphasis in future years.

Dying in America

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309303133
Total Pages : 470 pages
Book Rating : 4.3/5 (93 download)

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Book Synopsis Dying in America by : Institute of Medicine

Download or read book Dying in America written by Institute of Medicine and published by National Academies Press. This book was released on 2015-03-19 with total page 470 pages. Available in PDF, EPUB and Kindle. Book excerpt: For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.

Pediatric Palliative Care

Author : Betty Ferrell
Publisher :
ISBN 13 : 0190244186
Total Pages : 161 pages
Book Rating : 4.1/5 (92 download)

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Book Synopsis Pediatric Palliative Care by : Betty Ferrell

Download or read book Pediatric Palliative Care written by Betty Ferrell and published by . This book was released on 2016 with total page 161 pages. Available in PDF, EPUB and Kindle. Book excerpt: Pediatric palliative care is a field of significant growth as health care systems recognize the benefits of palliative care in areas such as neonatal intensive care, pediatric ICU, and chronic pediatric illnesses. Pediatric Palliative Care, the fourth volume in the HPNA Palliative Nursing Manuals series, highlights key issues related to the field. Chapters address pediatric hospice, symptom management, pediatric pain, the neonatal intensive care unit, transitioning goals of care between the emergency department and intensive care unit, and grief and bereavement in pediatric palliative care. The content of the concise, clinically focused volumes in the HPNA Palliative Nursing Manuals series is one resource for nurses preparing for specialty certification exams and provides a quick-reference in daily practice. Plentiful tables and patient teaching points make these volumes useful resources for nurses.

On Children and Death

Author : Elisabeth Kübler-Ross
Publisher : Simon and Schuster
ISBN 13 : 1439125422
Total Pages : 292 pages
Book Rating : 4.4/5 (391 download)

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Book Synopsis On Children and Death by : Elisabeth Kübler-Ross

Download or read book On Children and Death written by Elisabeth Kübler-Ross and published by Simon and Schuster. This book was released on 2011-07-26 with total page 292 pages. Available in PDF, EPUB and Kindle. Book excerpt: On Children and Death is a major addition to the classic works of Elisabeth Kübler-Ross, whose On Death and Dying and Living with Death and Dying have been continuing sources of strength and solace for tens of millions of devoted readers worldwide. Based on a decade of working with dying children, this compassionate book offers the families of dead and dying children the help -- and hope -- they need to survive. In warm, simple language, Dr. Kübler-Ross speaks directly to the fears, doubts, anger, confusion, and anguish of parents confronting the terminal illness or sudden death of a child.

Hospice Care for Children

Author : Ann Armstrong-Dailey
Publisher : Oxford University Press, USA
ISBN 13 : 9780195133301
Total Pages : 442 pages
Book Rating : 4.1/5 (333 download)

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Book Synopsis Hospice Care for Children by : Ann Armstrong-Dailey

Download or read book Hospice Care for Children written by Ann Armstrong-Dailey and published by Oxford University Press, USA. This book was released on 2001 with total page 442 pages. Available in PDF, EPUB and Kindle. Book excerpt: Children with life-threatening and terminal illnesses--and their families-- require a unique kind of care to meet a wide variety of needs. This book, the first edition of which won the 1993 Pediatric Nursing Book of the Year Award, provides an authoritative source for the many people involved in caring for dying children. It draws together contributions from leading authorities in a comprehensive, fully up-to-date resource, with an emphasis on practical topics that can be put to immediate use. The book covers the entire range of issues related to the hospice environment and is intended for all those who participate in the hospice-care process: physicians, nurses, social workers, teachers, clergy, family therapists, parents, and community service volunteers.

The Private Worlds of Dying Children

Author : Myra Bluebond-Langner
Publisher : Princeton University Press
ISBN 13 : 0691213089
Total Pages : 298 pages
Book Rating : 4.6/5 (912 download)

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Book Synopsis The Private Worlds of Dying Children by : Myra Bluebond-Langner

Download or read book The Private Worlds of Dying Children written by Myra Bluebond-Langner and published by Princeton University Press. This book was released on 2020-05-05 with total page 298 pages. Available in PDF, EPUB and Kindle. Book excerpt: Winner of the Margaret Mead Award A classic, moving study of terminally ill children that emphasizes their agency and shows how we can relate to dying children more honestly “The death of a child,” writes Myra Bluebond-Langner, “poignantly underlines the impact of social and cultural factors on the way that we die and the way that we permit others to die.” In a moving drama constructed from her observations of leukemic children, aged three to nine, in a hospital ward, she shows how the children come to know they are dying, how and why they attempt to conceal this knowledge from their parents and the medical staff, and how these adults in turn try to conceal from the children their awareness of the child’s impending death. In contrast to many parents, doctors, nurses, and social scientists who regard the children as passive recipients of adult actions, Bluebond-Langner emphasizes the children’s role in initiating and maintaining the social order. Her sensitive and stirring portrait shows the children to be willful, purposeful individuals capable of creating their own worlds. The result suggests better ways of relating to dying children and enriches our understanding of the ritual behavior surrounding death.

Approaching Death

Author : Committee on Care at the End of Life
Publisher : National Academies Press
ISBN 13 : 0309518253
Total Pages : 457 pages
Book Rating : 4.3/5 (95 download)

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Book Synopsis Approaching Death by : Committee on Care at the End of Life

Download or read book Approaching Death written by Committee on Care at the End of Life and published by National Academies Press. This book was released on 1997-10-30 with total page 457 pages. Available in PDF, EPUB and Kindle. Book excerpt: When the end of life makes its inevitable appearance, people should be able to expect reliable, humane, and effective caregiving. Yet too many dying people suffer unnecessarily. While an "overtreated" dying is feared, untreated pain or emotional abandonment are equally frightening. Approaching Death reflects a wide-ranging effort to understand what we know about care at the end of life, what we have yet to learn, and what we know but do not adequately apply. It seeks to build understanding of what constitutes good care for the dying and offers recommendations to decisionmakers that address specific barriers to achieving good care. This volume offers a profile of when, where, and how Americans die. It examines the dimensions of caring at the end of life: Determining diagnosis and prognosis and communicating these to patient and family. Establishing clinical and personal goals. Matching physical, psychological, spiritual, and practical care strategies to the patient's values and circumstances. Approaching Death considers the dying experience in hospitals, nursing homes, and other settings and the role of interdisciplinary teams and managed care. It offers perspectives on quality measurement and improvement, the role of practice guidelines, cost concerns, and legal issues such as assisted suicide. The book proposes how health professionals can become better prepared to care well for those who are dying and to understand that these are not patients for whom "nothing can be done."

Improving Palliative Care for Cancer

Author : National Research Council
Publisher : National Academies Press
ISBN 13 : 0309074029
Total Pages : 344 pages
Book Rating : 4.3/5 (9 download)

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Book Synopsis Improving Palliative Care for Cancer by : National Research Council

Download or read book Improving Palliative Care for Cancer written by National Research Council and published by National Academies Press. This book was released on 2001-10-19 with total page 344 pages. Available in PDF, EPUB and Kindle. Book excerpt: In our society's aggressive pursuit of cures for cancer, we have neglected symptom control and comfort care. Less than one percent of the National Cancer Institute's budget is spent on any aspect of palliative care research or education, despite the half million people who die of cancer each year and the larger number living with cancer and its symptoms. Improving Palliative Care for Cancer examines the barriersâ€"scientific, policy, and socialâ€"that keep those in need from getting good palliative care. It goes on to recommend public- and private-sector actions that would lead to the development of more effective palliative interventions; better information about currently used interventions; and greater knowledge about, and access to, palliative care for all those with cancer who would benefit from it.

Unexplained Pediatric Deaths

Author : Elizabeth Bundock
Publisher :
ISBN 13 : 9780998904320
Total Pages : pages
Book Rating : 4.9/5 (43 download)

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Book Synopsis Unexplained Pediatric Deaths by : Elizabeth Bundock

Download or read book Unexplained Pediatric Deaths written by Elizabeth Bundock and published by . This book was released on 2019-11-08 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: This publication reviews medicolegal investigation of sudden, unexpected pediatric deaths, focusing on systems and procedures in the United States and those deaths which remain incompletely understood or entirely unexplained. It discusses the evolution of our understanding and practice in the area of sudden, unexpected pediatric death investigation, covering the changing philosophies and medical theories as to causation and changing investigative and certification strategies. Procedural guidance for investigation, autopsy and ancillary testing, certification and reporting, and key considerations for prevention, research and working with family members and other professional team members are provided.The path to production of this publication began in 2016 when the National Association of Medical Examiners received a scientific grant from the SUDC Foundation called "Sudden Death in Pediatrics: Consensus for Investigation, Certification, Research Direction and Family Needs" to convene, in collaboration with the American Academy of Pediatrics, an expert panel to identify and discuss the diverse issues and limitations surrounding these deaths and build a foundation for national consensus. The combined effort of a panel of medical examiners, pediatricians, and federal agency representatives, representing the diverse interests of death investigation, autopsy performance, certification, clinical subspecialties (pediatrics, neurology, cardiology, child abuse, injury prevention, infectious diseases, genetics, and metabolic diseases), family needs, prevention, and epidemiology, culminated in this publication.

Supporting Dying Children and their Families

Author : Paul Nash
Publisher : SPCK
ISBN 13 : 0281065969
Total Pages : 164 pages
Book Rating : 4.2/5 (81 download)

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Book Synopsis Supporting Dying Children and their Families by : Paul Nash

Download or read book Supporting Dying Children and their Families written by Paul Nash and published by SPCK. This book was released on 2011-01-20 with total page 164 pages. Available in PDF, EPUB and Kindle. Book excerpt: This practical guide offers invaluable and sensitive advice for all who work alongside terminally ill children, their families and families who have been bereaved. Paul Nash helpfully describes the different types of care that are needed depending on the age of the child - from baby to teenager - and on the particular needs of the child's family. He also provides resources to help with remembering and celebrating the life of a child, including rituals that can be used in preparation for death, at the time of death and at funeral or memorial services.

Home Care for the Dying Child

Author : Ida Marie Martinson
Publisher :
ISBN 13 :
Total Pages : 356 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis Home Care for the Dying Child by : Ida Marie Martinson

Download or read book Home Care for the Dying Child written by Ida Marie Martinson and published by . This book was released on 1976 with total page 356 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Multifaith Care for Sick and Dying Children and their Families

Author : Paul Nash
Publisher : Jessica Kingsley Publishers
ISBN 13 : 1784500720
Total Pages : 226 pages
Book Rating : 4.7/5 (845 download)

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Book Synopsis Multifaith Care for Sick and Dying Children and their Families by : Paul Nash

Download or read book Multifaith Care for Sick and Dying Children and their Families written by Paul Nash and published by Jessica Kingsley Publishers. This book was released on 2015-04-21 with total page 226 pages. Available in PDF, EPUB and Kindle. Book excerpt: What do you need to know in order to provide the best possible care for sick children of different faiths? What, in the context of the young person's faith, might it be helpful to know to support the child and the family, improve care, communicate sensitively and avoid causing offence? Drawing on extensive, evidence-based research and practice, this practical resource addresses the multi-faith needs of sick and dying children and young people in hospitals and the wider community. Covering Islam, Christianity, Hinduism, Sikhism, Judaism and Buddhism, it provides the key information needed to help multi-disciplinary healthcare staff offer the best, culturally-appropriate care to sick children and their families. The book discusses daily, palliative, end of life and bereavement care in a range of settings, including hospitals, hospices, schools and home. The information provided covers those aspects of the religions discussed that are essential for healthcare staff to understand, including modesty and hygiene, taboos, food and prohibited products, age-related issues, sacred objects, visitors, and the expectations of the family. It includes important information on the issues of disability and mental health in each faith as well as addressing the significance within different faith traditions of the transitions from childhood to adolescence to adulthood. A comprehensive resource that uniquely focuses on the care needs of sick children from different faiths, this book will be of immeasurable value to multi-disciplinary healthcare professionals including doctors, nurses, bereavement support and palliative care workers, carers, counsellors, chaplains and arts therapists.

Caring for the Dying Patient and the Family

Author : Janet Moscrop
Publisher : Springer
ISBN 13 : 148993376X
Total Pages : 301 pages
Book Rating : 4.4/5 (899 download)

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Book Synopsis Caring for the Dying Patient and the Family by : Janet Moscrop

Download or read book Caring for the Dying Patient and the Family written by Janet Moscrop and published by Springer. This book was released on 2013-11-11 with total page 301 pages. Available in PDF, EPUB and Kindle. Book excerpt: This third edition of a popular textbook has been completely revised by the joint editors, Janet Moscrop and Joy Robbins. As in previous editions, the focus is on the person dying at home, in residential care or in hospital and the emphasis is on teamwork in caring for the individual and their relatives and friends. Experts in all aspects of care have contributed to this complete revision of the previous text and each chapter is written by a different member of the multiprofessional team. The chapter on the terminal care of people suffering from AIDS has been enlarged and consideration is also given to care of those in the term inal stages of other non-malignant diseases. Other new material includes chapters on complementary therapy, the use of the day centre, the value of volunteers, diversional therapy and respite care. The chapter on bereavement covers many aspects of grief and loss and there is a sensitive approach to the need for supporting staff in this spe cialized work. Consideration is also given to the needs of dying and griev ing people from differing ethnic backgrounds with varying cultural expectations in a pluralistic society. The third edition offers a broad overview of the support given to the dying person and the carers by medical and nursing staff, physiothera pists, pharmacists, social workers, the chaplaincy and members of the pastoral care team. Students of all these disciplines should find this book both readable and informative.

Caring for Dying Loved Ones

Author : Joanna Lillian Brown
Publisher :
ISBN 13 : 9780981982014
Total Pages : 178 pages
Book Rating : 4.9/5 (82 download)

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Book Synopsis Caring for Dying Loved Ones by : Joanna Lillian Brown

Download or read book Caring for Dying Loved Ones written by Joanna Lillian Brown and published by . This book was released on 2010-01-01 with total page 178 pages. Available in PDF, EPUB and Kindle. Book excerpt: A useful guide book for persons already caring for dying relatives and friends as well as those who wish to prepare for care giving responsibilites in the future.