Care of the Dying Child

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Author :
Publisher :
ISBN 13 :
Total Pages : 232 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis Care of the Dying Child by : Ann Goldman

Download or read book Care of the Dying Child written by Ann Goldman and published by . This book was released on 1994 with total page 232 pages. Available in PDF, EPUB and Kindle. Book excerpt: This unique book considers the specific medical, psycho-social, and practical issues involved in caring for children dying from chronic diseases. Ann Goldman, herself a consultant paediatrician in palliative care at the Hospital for Sick Children, Great Ormond Street, recognizes the special needs of terminally ill children and their families. She confronts the problems and issues surrounding the care of these children in order to help paediatricians and other professionals provide the very best possible care for such patients. A range of contributors experienced in palliative care for children provide comprehensive coverage of the subject, including: consideration of the magnitude of the problem and the provision of services, pain control symptom management, family support and communication with children, spiritual issues, bereavement, stress. This practical, interdisciplinary approach to the specific needs of children with terminal diseases will be invaluable for every professional who wishes to enhance standards of care for dying children and their families.

The Private Worlds of Dying Children

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Publisher : Princeton University Press
ISBN 13 : 0691213089
Total Pages : 298 pages
Book Rating : 4.6/5 (912 download)

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Book Synopsis The Private Worlds of Dying Children by : Myra Bluebond-Langner

Download or read book The Private Worlds of Dying Children written by Myra Bluebond-Langner and published by Princeton University Press. This book was released on 2020-05-05 with total page 298 pages. Available in PDF, EPUB and Kindle. Book excerpt: Winner of the Margaret Mead Award A classic, moving study of terminally ill children that emphasizes their agency and shows how we can relate to dying children more honestly “The death of a child,” writes Myra Bluebond-Langner, “poignantly underlines the impact of social and cultural factors on the way that we die and the way that we permit others to die.” In a moving drama constructed from her observations of leukemic children, aged three to nine, in a hospital ward, she shows how the children come to know they are dying, how and why they attempt to conceal this knowledge from their parents and the medical staff, and how these adults in turn try to conceal from the children their awareness of the child’s impending death. In contrast to many parents, doctors, nurses, and social scientists who regard the children as passive recipients of adult actions, Bluebond-Langner emphasizes the children’s role in initiating and maintaining the social order. Her sensitive and stirring portrait shows the children to be willful, purposeful individuals capable of creating their own worlds. The result suggests better ways of relating to dying children and enriches our understanding of the ritual behavior surrounding death.

Dying in America

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Publisher : National Academies Press
ISBN 13 : 0309303133
Total Pages : 470 pages
Book Rating : 4.3/5 (93 download)

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Book Synopsis Dying in America by : Institute of Medicine

Download or read book Dying in America written by Institute of Medicine and published by National Academies Press. This book was released on 2015-03-19 with total page 470 pages. Available in PDF, EPUB and Kindle. Book excerpt: For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.

When Children Die

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Publisher : National Academies Press
ISBN 13 : 0309084377
Total Pages : 713 pages
Book Rating : 4.3/5 (9 download)

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Book Synopsis When Children Die by : Institute of Medicine

Download or read book When Children Die written by Institute of Medicine and published by National Academies Press. This book was released on 2003-02-09 with total page 713 pages. Available in PDF, EPUB and Kindle. Book excerpt: The death of a child is a special sorrow. No matter the circumstances, a child's death is a life-altering experience. Except for the child who dies suddenly and without forewarning, physicians, nurses, and other medical personnel usually play a central role in the lives of children who die and their families. At best, these professionals will exemplify "medicine with a heart." At worst, families' encounters with the health care system will leave them with enduring painful memories, anger, and regrets. When Children Die examines what we know about the needs of these children and their families, the extent to which such needs areâ€"and are notâ€"being met, and what can be done to provide more competent, compassionate, and consistent care. The book offers recommendations for involving child patients in treatment decisions, communicating with parents, strengthening the organization and delivery of services, developing support programs for bereaved families, improving public and private insurance, training health professionals, and more. It argues that taking these steps will improve the care of children who survive as well as those who do notâ€"and will likewise help all families who suffer with their seriously ill or injured child. Featuring illustrative case histories, the book discusses patterns of childhood death and explores the basic elements of physical, emotional, spiritual, and practical care for children and families experiencing a child's life-threatening illness or injury.

Pediatric Palliative Care

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Publisher :
ISBN 13 : 0190244186
Total Pages : 161 pages
Book Rating : 4.1/5 (92 download)

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Book Synopsis Pediatric Palliative Care by : Betty Ferrell

Download or read book Pediatric Palliative Care written by Betty Ferrell and published by . This book was released on 2016 with total page 161 pages. Available in PDF, EPUB and Kindle. Book excerpt: Pediatric palliative care is a field of significant growth as health care systems recognize the benefits of palliative care in areas such as neonatal intensive care, pediatric ICU, and chronic pediatric illnesses. Pediatric Palliative Care, the fourth volume in the HPNA Palliative Nursing Manuals series, highlights key issues related to the field. Chapters address pediatric hospice, symptom management, pediatric pain, the neonatal intensive care unit, transitioning goals of care between the emergency department and intensive care unit, and grief and bereavement in pediatric palliative care. The content of the concise, clinically focused volumes in the HPNA Palliative Nursing Manuals series is one resource for nurses preparing for specialty certification exams and provides a quick-reference in daily practice. Plentiful tables and patient teaching points make these volumes useful resources for nurses.

Improving Palliative Care for Cancer

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Publisher : National Academies Press
ISBN 13 : 0309074029
Total Pages : 344 pages
Book Rating : 4.3/5 (9 download)

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Book Synopsis Improving Palliative Care for Cancer by : National Research Council

Download or read book Improving Palliative Care for Cancer written by National Research Council and published by National Academies Press. This book was released on 2001-10-19 with total page 344 pages. Available in PDF, EPUB and Kindle. Book excerpt: In our society's aggressive pursuit of cures for cancer, we have neglected symptom control and comfort care. Less than one percent of the National Cancer Institute's budget is spent on any aspect of palliative care research or education, despite the half million people who die of cancer each year and the larger number living with cancer and its symptoms. Improving Palliative Care for Cancer examines the barriersâ€"scientific, policy, and socialâ€"that keep those in need from getting good palliative care. It goes on to recommend public- and private-sector actions that would lead to the development of more effective palliative interventions; better information about currently used interventions; and greater knowledge about, and access to, palliative care for all those with cancer who would benefit from it.

Top Five Regrets of the Dying

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Publisher : Hay House, Inc
ISBN 13 : 1401956009
Total Pages : 322 pages
Book Rating : 4.4/5 (19 download)

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Book Synopsis Top Five Regrets of the Dying by : Bronnie Ware

Download or read book Top Five Regrets of the Dying written by Bronnie Ware and published by Hay House, Inc. This book was released on 2019-08-13 with total page 322 pages. Available in PDF, EPUB and Kindle. Book excerpt: Revised edition of the best-selling memoir that has been read by over a million people worldwide with translations in 29 languages. After too many years of unfulfilling work, Bronnie Ware began searching for a job with heart. Despite having no formal qualifications or previous experience in the field, she found herself working in palliative care. During the time she spent tending to those who were dying, Bronnie's life was transformed. Later, she wrote an Internet blog post, outlining the most common regrets that the people she had cared for had expressed. The post gained so much momentum that it was viewed by more than three million readers worldwide in its first year. At the request of many, Bronnie subsequently wrote a book, The Top Five Regrets of the Dying, to share her story. Bronnie has had a colourful and diverse life. By applying the lessons of those nearing their death to her own life, she developed an understanding that it is possible for everyone, if we make the right choices, to die with peace of mind. In this revised edition of the best-selling memoir that has been read by over a million people worldwide, with translations in 29 languages, Bronnie expresses how significant these regrets are and how we can positively address these issues while we still have the time. The Top Five Regrets of the Dying gives hope for a better world. It is a courageous, life-changing book that will leave you feeling more compassionate and inspired to live the life you are truly here to live.

The Kids' Book about Death and Dying

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Publisher : Little Brown
ISBN 13 :
Total Pages : 140 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis The Kids' Book about Death and Dying by : Eric E. Rofes

Download or read book The Kids' Book about Death and Dying written by Eric E. Rofes and published by Little Brown. This book was released on 1985 with total page 140 pages. Available in PDF, EPUB and Kindle. Book excerpt: Fourteen children offer facts and advice to give young readers a better understanding of death.

What Do We Tell the Children?

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Publisher : Abingdon Press
ISBN 13 : 1426775156
Total Pages : 123 pages
Book Rating : 4.4/5 (267 download)

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Book Synopsis What Do We Tell the Children? by : Joseph M. Primo

Download or read book What Do We Tell the Children? written by Joseph M. Primo and published by Abingdon Press. This book was released on 2013-09-17 with total page 123 pages. Available in PDF, EPUB and Kindle. Book excerpt: One out of seven children will lose a parent before they are 20. The statistics are sobering, but they are also a call for preparedness. However, pastors and counselors of all types are often at a loss when dealing with a grieving child. Talking to adults about death and grief is difficult; it's all the more challenging to talk to children and teens. The stakes are high: grieving children are high-risk for substance abuse, promiscuity, depression, isolation, and suicide. Yet, despite this, most of these kids grow up to be normal or exceptional adults. But their chance to become healthy adults increases with the support of a loving community. Supporting grieving children requires intentionality, open communication, and patience. Rather than avoid all conversations on death or pretend like it never happened, normalizing grief and offering support requires us to be in-tune with kids through dialogue as they grapple with questions of “how” and “why.” When listening to children in grief, we often have to embrace the mystery, offer love and compassion, and stick with the basics. The author says, "We don’t have to answer the why and how for them, but we can assure our children that God is with us as we suffer. We can do so by doing good for others and pointing out all of those moments when someone has done something good for us. I believe that most of the time that’s as far as we will get, and that is okay."

Dying and Disabled Children

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Publisher : Routledge
ISBN 13 : 1317773713
Total Pages : 170 pages
Book Rating : 4.3/5 (177 download)

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Book Synopsis Dying and Disabled Children by : Harold M. Dick

Download or read book Dying and Disabled Children written by Harold M. Dick and published by Routledge. This book was released on 2014-02-25 with total page 170 pages. Available in PDF, EPUB and Kindle. Book excerpt: In this sensitive and compassionate look at terminally ill and disabled children, professionals from the medical community examine the stresses faced by their parents and siblings. They address the crucial element of communication--within a family and between health care providers and family members--in dealing with a child’s serious illness. Ethical decision making, learning to recognize the child’s suffering, and talking to children about death are honestly and clearly discussed. Experts offer direct interventions to help family members through the grieving process once a child has died.

What Does Dead Mean?

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Publisher : Jessica Kingsley Publishers
ISBN 13 : 085700705X
Total Pages : 36 pages
Book Rating : 4.8/5 (57 download)

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Book Synopsis What Does Dead Mean? by : Caroline Jay

Download or read book What Does Dead Mean? written by Caroline Jay and published by Jessica Kingsley Publishers. This book was released on 2012-10-15 with total page 36 pages. Available in PDF, EPUB and Kindle. Book excerpt: What Does Dead Mean? is a beautifully illustrated book that guides children gently through 17 of the 'big' questions they often ask about death and dying. Questions such as 'Is being dead like sleeping?', 'Why do people have to die?' and 'Where do dead people go?' are answered simply, truthfully and clearly to help adults explain to children what happens when someone dies. Prompts encourage children to explore the concepts by talking about, drawing or painting what they think or feel about the questions and answers. Suitable for children aged 4+, this is an ideal book for parents and carers to read with their children, as well as teachers, therapists and counsellors working with young children.

Practical Emergency Resuscitation and Critical Care

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Publisher : Cambridge University Press
ISBN 13 : 1009055623
Total Pages : 655 pages
Book Rating : 4.0/5 (9 download)

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Book Synopsis Practical Emergency Resuscitation and Critical Care by : Kaushal Shah

Download or read book Practical Emergency Resuscitation and Critical Care written by Kaushal Shah and published by Cambridge University Press. This book was released on 2023-10-31 with total page 655 pages. Available in PDF, EPUB and Kindle. Book excerpt: The second edition of a succinct and portable text reviewing the clinical approach to emergency medicine and critical care.

Talking with Children and Young People about Death and Dying

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Publisher : Jessica Kingsley Publishers
ISBN 13 : 1846425603
Total Pages : 162 pages
Book Rating : 4.8/5 (464 download)

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Book Synopsis Talking with Children and Young People about Death and Dying by : Mary Turner

Download or read book Talking with Children and Young People about Death and Dying written by Mary Turner and published by Jessica Kingsley Publishers. This book was released on 2006-09-28 with total page 162 pages. Available in PDF, EPUB and Kindle. Book excerpt: Talking with Children and Young People about Death and Dying is a popular resource designed to help adults talk to bereaved children and young people. Mary Turner explains the various aspects and stages of bereavement and offers useful insights into the concerns of children experiencing grief or facing an imminent bereavement. She addresses children's common fears and worries, dreams and nightmares, and acknowledges the effect of trauma on the grief process. This second edition includes a new section for adults on understanding the distress of a bereaved child and also a list of useful contacts. It is a fully photocopiable workbook that enables adults to deal with these issues sensitively and explains, for example, how to choose appropriate words to support the child. It will empower and equip adults working with bereaved children to encourage them to communicate their pain and understand the often contradictory emotions aroused by the death of someone close to them.

Multifaith Care for Sick and Dying Children and their Families

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Publisher : Jessica Kingsley Publishers
ISBN 13 : 1784500720
Total Pages : 226 pages
Book Rating : 4.7/5 (845 download)

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Book Synopsis Multifaith Care for Sick and Dying Children and their Families by : Paul Nash

Download or read book Multifaith Care for Sick and Dying Children and their Families written by Paul Nash and published by Jessica Kingsley Publishers. This book was released on 2015-04-21 with total page 226 pages. Available in PDF, EPUB and Kindle. Book excerpt: What do you need to know in order to provide the best possible care for sick children of different faiths? What, in the context of the young person's faith, might it be helpful to know to support the child and the family, improve care, communicate sensitively and avoid causing offence? Drawing on extensive, evidence-based research and practice, this practical resource addresses the multi-faith needs of sick and dying children and young people in hospitals and the wider community. Covering Islam, Christianity, Hinduism, Sikhism, Judaism and Buddhism, it provides the key information needed to help multi-disciplinary healthcare staff offer the best, culturally-appropriate care to sick children and their families. The book discusses daily, palliative, end of life and bereavement care in a range of settings, including hospitals, hospices, schools and home. The information provided covers those aspects of the religions discussed that are essential for healthcare staff to understand, including modesty and hygiene, taboos, food and prohibited products, age-related issues, sacred objects, visitors, and the expectations of the family. It includes important information on the issues of disability and mental health in each faith as well as addressing the significance within different faith traditions of the transitions from childhood to adolescence to adulthood. A comprehensive resource that uniquely focuses on the care needs of sick children from different faiths, this book will be of immeasurable value to multi-disciplinary healthcare professionals including doctors, nurses, bereavement support and palliative care workers, carers, counsellors, chaplains and arts therapists.

A History of Haematology

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Publisher : Oxford University Press
ISBN 13 : 0198717601
Total Pages : 247 pages
Book Rating : 4.1/5 (987 download)

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Book Synopsis A History of Haematology by : Shaun R. McCann

Download or read book A History of Haematology written by Shaun R. McCann and published by Oxford University Press. This book was released on 2016 with total page 247 pages. Available in PDF, EPUB and Kindle. Book excerpt: A beautifully illustrated account of the remarkable developments within haematology, this insightful volume details the scientists and pioneers central to these advances.

Angel Catcher for Kids

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Publisher : Chronicle Books
ISBN 13 : 9780811834438
Total Pages : 70 pages
Book Rating : 4.8/5 (344 download)

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Book Synopsis Angel Catcher for Kids by : Amy Eldon

Download or read book Angel Catcher for Kids written by Amy Eldon and published by Chronicle Books. This book was released on 2002-06 with total page 70 pages. Available in PDF, EPUB and Kindle. Book excerpt:

A Field Manual for Palliative Care in Humanitarian Crises

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Author :
Publisher :
ISBN 13 : 0190066520
Total Pages : 161 pages
Book Rating : 4.1/5 (9 download)

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Book Synopsis A Field Manual for Palliative Care in Humanitarian Crises by : Elisha Waldman

Download or read book A Field Manual for Palliative Care in Humanitarian Crises written by Elisha Waldman and published by . This book was released on 2019-11-29 with total page 161 pages. Available in PDF, EPUB and Kindle. Book excerpt: A Field Manual for Palliative Care in Humanitarian Crises represents the first-ever effort at educating and providing guidance for clinicians not formally trained in palliative care in how to incorporate its principles into their work in crisis situations. A Field Manual for Palliative Care in Humanitarian Crises represents the first-ever effort at educating and providing guidance for clinicians not formally trained in palliative care in how to incorporate its principles into their work in crisis situations.