At The End Of Life

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Dying in America

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309303133
Total Pages : 470 pages
Book Rating : 4.3/5 (93 download)

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Book Synopsis Dying in America by : Institute of Medicine

Download or read book Dying in America written by Institute of Medicine and published by National Academies Press. This book was released on 2015-03-19 with total page 470 pages. Available in PDF, EPUB and Kindle. Book excerpt: For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.

Values at the End of Life

Author : Roi Livne
Publisher : Harvard University Press
ISBN 13 : 0674545176
Total Pages : 361 pages
Book Rating : 4.6/5 (745 download)

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Book Synopsis Values at the End of Life by : Roi Livne

Download or read book Values at the End of Life written by Roi Livne and published by Harvard University Press. This book was released on 2019-06-10 with total page 361 pages. Available in PDF, EPUB and Kindle. Book excerpt: This insightful study examines the deeply personal and heart-wrenching tensions among financial considerations, emotional attachments, and moral arguments that motivate end-of-life decisions. America’s health care system was built on the principle that life should be prolonged whenever possible, regardless of the costs. This commitment has often meant that patients spend their last days suffering from heroic interventions that extend their life by only weeks or months. Increasingly, this approach to end-of-life care is coming under scrutiny, from a moral as well as a financial perspective. Sociologist Roi Livne documents the rise and effectiveness of hospice and palliative care, and growing acceptance of the idea that a life consumed by suffering may not be worth living. Values at the End of Life combines an in-depth historical analysis with an extensive study conducted in three hospitals, where Livne observed terminally ill patients, their families, and caregivers negotiating treatment. Livne describes the ambivalent, conflicted moments when people articulate and act on their moral intuitions about dying. Interviews with medical staff allowed him to isolate the strategies clinicians use to help families understand their options. As Livne discovered, clinicians are advancing the idea that invasive, expensive hospital procedures often compound a patient’s suffering. Affluent, educated families were more readily persuaded by this moral calculus than those of less means. Once defiant of death—or even in denial—many American families and professionals in the health care system are beginning to embrace the notion that less treatment in the end may be better treatment.

Dying Well

Author : Ira Byock
Publisher : Penguin
ISBN 13 : 110150028X
Total Pages : 321 pages
Book Rating : 4.1/5 (15 download)

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Book Synopsis Dying Well by : Ira Byock

Download or read book Dying Well written by Ira Byock and published by Penguin. This book was released on 1998-03-01 with total page 321 pages. Available in PDF, EPUB and Kindle. Book excerpt: From Ira Byock, prominent palliative care physician and expert in end of life decisions, a lesson in Dying Well. Nobody should have to die in pain. Nobody should have to die alone. This is Ira Byock's dream, and he is dedicating his life to making it come true. Dying Well brings us to the homes and bedsides of families with whom Dr. Byock has worked, telling stories of love and reconciliation in the face of tragedy, pain, medical drama, and conflict. Through the true stories of patients, he shows us that a lot of important emotional work can be accomplished in the final months, weeks, and even days of life. It is a companion for families, showing them how to deal with doctors, how to talk to loved ones—and how to make the end of life as meaningful and enriching as the beginning. Ira Byock is also the author of The Best Care Possible: A Physician's Quest to Transform Care Through the End of Life.

Approaching Death

Author : Committee on Care at the End of Life
Publisher : National Academies Press
ISBN 13 : 0309518253
Total Pages : 457 pages
Book Rating : 4.3/5 (95 download)

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Book Synopsis Approaching Death by : Committee on Care at the End of Life

Download or read book Approaching Death written by Committee on Care at the End of Life and published by National Academies Press. This book was released on 1997-10-30 with total page 457 pages. Available in PDF, EPUB and Kindle. Book excerpt: When the end of life makes its inevitable appearance, people should be able to expect reliable, humane, and effective caregiving. Yet too many dying people suffer unnecessarily. While an "overtreated" dying is feared, untreated pain or emotional abandonment are equally frightening. Approaching Death reflects a wide-ranging effort to understand what we know about care at the end of life, what we have yet to learn, and what we know but do not adequately apply. It seeks to build understanding of what constitutes good care for the dying and offers recommendations to decisionmakers that address specific barriers to achieving good care. This volume offers a profile of when, where, and how Americans die. It examines the dimensions of caring at the end of life: Determining diagnosis and prognosis and communicating these to patient and family. Establishing clinical and personal goals. Matching physical, psychological, spiritual, and practical care strategies to the patient's values and circumstances. Approaching Death considers the dying experience in hospitals, nursing homes, and other settings and the role of interdisciplinary teams and managed care. It offers perspectives on quality measurement and improvement, the role of practice guidelines, cost concerns, and legal issues such as assisted suicide. The book proposes how health professionals can become better prepared to care well for those who are dying and to understand that these are not patients for whom "nothing can be done."

Top Five Regrets of the Dying

Author : Bronnie Ware
Publisher : Hay House, Inc
ISBN 13 : 1401956009
Total Pages : 322 pages
Book Rating : 4.4/5 (19 download)

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Book Synopsis Top Five Regrets of the Dying by : Bronnie Ware

Download or read book Top Five Regrets of the Dying written by Bronnie Ware and published by Hay House, Inc. This book was released on 2019-08-13 with total page 322 pages. Available in PDF, EPUB and Kindle. Book excerpt: Revised edition of the best-selling memoir that has been read by over a million people worldwide with translations in 29 languages. After too many years of unfulfilling work, Bronnie Ware began searching for a job with heart. Despite having no formal qualifications or previous experience in the field, she found herself working in palliative care. During the time she spent tending to those who were dying, Bronnie's life was transformed. Later, she wrote an Internet blog post, outlining the most common regrets that the people she had cared for had expressed. The post gained so much momentum that it was viewed by more than three million readers worldwide in its first year. At the request of many, Bronnie subsequently wrote a book, The Top Five Regrets of the Dying, to share her story. Bronnie has had a colourful and diverse life. By applying the lessons of those nearing their death to her own life, she developed an understanding that it is possible for everyone, if we make the right choices, to die with peace of mind. In this revised edition of the best-selling memoir that has been read by over a million people worldwide, with translations in 29 languages, Bronnie expresses how significant these regrets are and how we can positively address these issues while we still have the time. The Top Five Regrets of the Dying gives hope for a better world. It is a courageous, life-changing book that will leave you feeling more compassionate and inspired to live the life you are truly here to live.

Visitors at the End of Life - Finding Meaning and Purpose in Near-Death Phenomena

Author : Allan Kellehear
Publisher :
ISBN 13 : 9780231182140
Total Pages : 224 pages
Book Rating : 4.1/5 (821 download)

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Book Synopsis Visitors at the End of Life - Finding Meaning and Purpose in Near-Death Phenomena by : Allan Kellehear

Download or read book Visitors at the End of Life - Finding Meaning and Purpose in Near-Death Phenomena written by Allan Kellehear and published by . This book was released on 2020-07-28 with total page 224 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book is about how, when, and why our dead visit us. Allan Kellehear--a medical sociologist and expert on death, dying, and palliative care--has gathered data and conducted studies on deathbed visions across cultures.

Extreme Measures

Author : Dr. Jessica Nutik Zitter, M.D.
Publisher : Penguin
ISBN 13 : 1101982578
Total Pages : 354 pages
Book Rating : 4.1/5 (19 download)

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Book Synopsis Extreme Measures by : Dr. Jessica Nutik Zitter, M.D.

Download or read book Extreme Measures written by Dr. Jessica Nutik Zitter, M.D. and published by Penguin. This book was released on 2017-02-21 with total page 354 pages. Available in PDF, EPUB and Kindle. Book excerpt: For readers of Being Mortal and Modern Death, an ICU and Palliative Care specialist offers a framework for a better way to exit life that will change our medical culture at the deepest level In medical school, no one teaches you how to let a patient die. Jessica Zitter became a doctor because she wanted to be a hero. She elected to specialize in critical care—to become an ICU physician—and imagined herself swooping in to rescue patients from the brink of death. But then during her first code she found herself cracking the ribs of a patient so old and frail it was unimaginable he would ever come back to life. She began to question her choice. Extreme Measures charts Zitter’s journey from wanting to be one kind of hero to becoming another—a doctor who prioritizes the patient’s values and preferences in an environment where the default choice is the extreme use of technology. In our current medical culture, the old and the ill are put on what she terms the End-of-Life Conveyor belt. They are intubated, catheterized, and even shelved away in care facilities to suffer their final days alone, confused, and often in pain. In her work Zitter has learned what patients fear more than death itself: the prospect of dying badly. She builds bridges between patients and caregivers, formulates plans to allay patients’ pain and anxiety, and enlists the support of loved ones so that life can end well, even beautifully. Filled with rich patient stories that make a compelling medical narrative, Extreme Measures enlarges the national conversation as it thoughtfully and compassionately examines an experience that defines being human.

Textbook of Palliative Care

Author : Roderick Duncan MacLeod
Publisher : Springer
ISBN 13 : 9783031489907
Total Pages : 0 pages
Book Rating : 4.4/5 (899 download)

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Book Synopsis Textbook of Palliative Care by : Roderick Duncan MacLeod

Download or read book Textbook of Palliative Care written by Roderick Duncan MacLeod and published by Springer. This book was released on 2025-05-29 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: This second edition provides the most up-to-date information on all aspects of palliative care including recent developments (including COVID-19), global policies, service provision, symptom management, professional aspects, organization of services, palliative care for specific populations, palliative care emergencies, ethical issues in palliative care, research in palliative care, public health approaches and financial aspects of care. This new Textbook of Palliative Care remains a unique, comprehensive, clinically relevant and state-of-the art book, aimed at advancing palliative care as a science, a clinical practice and as an art. Palliative care has been part of healthcare for over fifty years but we still needs to be explained. Healthcare education and training has been slow to recognize the vital importance of ensuring that all practitioners have a good understanding of what is involved in the care of people with serious or advanced illnesses and theirfamilies. However, the science of palliative care is advancing and this new edition will contribute to a better understanding of this specialty. This new edition offers 20 new chapters out of over 120, written by experts in their given fields provide up-to-date information on a wide range of topics of relevance to those providing care towards the end of life no matter what the disease may be. We present a global perspective on contemporary and classic issues in palliative care with authors from a wide range of disciplines involved in this essential aspect of care. The Textbook includes sections addressing aspects such as symptom management and care provision, organization of care in different settings, care in specific disease groups, palliative care emergencies, ethics, public health approaches and research in palliative care. This new Textbook will be of value to practitioners in all disciplines and professions where the care of people approaching death is important, specialists as well as non-specialists, in any setting where people with serious advanced illnesses are residing. It is also an important resource for researchers, policy-and decision-makers at national or regional levels. Neither the science nor the art of palliative care will stand still so the Editors and contributors from all over the world aim to keep this Textbook updated so that the reader can find new evidence and approaches to care.

The Art of Dying Well

Author : Katy Butler
Publisher : Scribner
ISBN 13 : 1501135473
Total Pages : 288 pages
Book Rating : 4.5/5 (11 download)

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Book Synopsis The Art of Dying Well by : Katy Butler

Download or read book The Art of Dying Well written by Katy Butler and published by Scribner. This book was released on 2020-02-11 with total page 288 pages. Available in PDF, EPUB and Kindle. Book excerpt: This “comforting…thoughtful” (The Washington Post) guide to maintaining a high quality of life—from resilient old age to the first inklings of a serious illness to the final breath—by the New York Times bestselling author of Knocking on Heaven’s Door is a “roadmap to the end that combines medical, practical, and spiritual guidance” (The Boston Globe). “A common sense path to define what a ‘good’ death looks like” (USA TODAY), The Art of Dying Well is about living as well as possible for as long as possible and adapting successfully to change. Packed with extraordinarily helpful insights and inspiring true stories, award-winning journalist Katy Butler shows how to thrive in later life (even when coping with a chronic medical condition), how to get the best from our health system, and how to make your own “good death” more likely. Butler explains how to successfully age in place, why to pick a younger doctor and how to have an honest conversation with them, when not to call 911, and how to make your death a sacred rite of passage rather than a medical event. This handbook of preparations—practical, communal, physical, and spiritual—will help you make the most of your remaining time, be it decades, years, or months. Based on Butler’s experience caring for aging parents, and hundreds of interviews with people who have successfully navigated our fragmented health system and helped their loved ones have good deaths, The Art of Dying Well also draws on the expertise of national leaders in family medicine, palliative care, geriatrics, oncology, and hospice. This “empowering guide clearly outlines the steps necessary to prepare for a beautiful death without fear” (Shelf Awareness).

Sedation at the End-of-life: An Interdisciplinary Approach

Author : Paulina Taboada
Publisher : Springer
ISBN 13 : 9401791066
Total Pages : 190 pages
Book Rating : 4.4/5 (17 download)

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Book Synopsis Sedation at the End-of-life: An Interdisciplinary Approach by : Paulina Taboada

Download or read book Sedation at the End-of-life: An Interdisciplinary Approach written by Paulina Taboada and published by Springer. This book was released on 2014-10-21 with total page 190 pages. Available in PDF, EPUB and Kindle. Book excerpt: The book’s main contribution is its interdisciplinary approach to the issue of sedation at the end-of-life. Because it occurs at the end of life, palliative sedation raises a number of important ethical and legal questions, including whether it is a covert form of euthanasia and for what purposes it may legally be used. Many of the book chapters address the first question and almost all deal with a specific form of the second: whether palliative sedation should be used for those experiencing “existential suffering”? This raises the question of what existential suffering is, a topic that is also discussed in the book. The different chapters address these issues from the perspectives of the relevant disciplines: Palliative Medicine, Bioethics, Law and Theology. Hence, helpful accounts of the clinical and historical background for this issue are provided and the importance of drawing accurate ethical and legal distinctions is stressed throughout the whole book. So the volume represents a valuable contribution to the emerging literature on this topic and should be helpful across a broad spectrum of readers: philosophers, theologians and physicians.

Dying

Author : Monika Renz
Publisher : Columbia University Press
ISBN 13 : 023154023X
Total Pages : 181 pages
Book Rating : 4.2/5 (315 download)

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Book Synopsis Dying by : Monika Renz

Download or read book Dying written by Monika Renz and published by Columbia University Press. This book was released on 2015-10-06 with total page 181 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book introduces a process-based, patient-centered approach to palliative care that substantiates an indication-oriented treatment and radical reconsideration of our transition to death. Drawing on decades of work with terminally ill cancer patients and a trove of research on near-death experiences, Monika Renz encourages practitioners to not only safeguard patients' dignity as they die but also take stock of their verbal, nonverbal, and metaphorical cues as they progress, helping to personalize treatment and realize a more peaceful death. Renz divides dying into three parts: pre-transition, transition, and post-transition. As we die, all egoism and ego-centered perception fall away, bringing us to another state of consciousness, a different register of sensitivity, and an alternative dimension of spiritual connectedness. As patients pass through these stages, they offer nonverbal signals that indicate their gradual withdrawal from everyday consciousness. This transformation explains why emotional and spiritual issues become enhanced during the dying process. Relatives and practitioners are often deeply impressed and feel a sense of awe. Fear and struggle shift to trust and peace; denial melts into acceptance. At first, family problems and the need for reconciliation are urgent, but gradually these concerns fade. By delineating these processes, Renz helps practitioners grow more cognizant of the changing emotions and symptoms of the patients under their care, enabling them to respond with the utmost respect for their patients' dignity.

This Is Assisted Dying

Author : Stefanie Green
Publisher : Simon and Schuster
ISBN 13 : 1982129514
Total Pages : 304 pages
Book Rating : 4.9/5 (821 download)

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Book Synopsis This Is Assisted Dying by : Stefanie Green

Download or read book This Is Assisted Dying written by Stefanie Green and published by Simon and Schuster. This book was released on 2022-03-29 with total page 304 pages. Available in PDF, EPUB and Kindle. Book excerpt: An international bestseller, this compassionate memoir by a leading pioneer in medically assisted dying who helps suffering patients explore and fulfill their end of life choices is “written with sensitivity, grace, and candor...not to be missed” (Publishers Weekly, starred review). Dr. Stefanie Green has been forging new paths in the field of medical assistance in dying since 2016. In her landmark memoir, Dr. Green reveals the reasons a patient might seek an assisted death, how the process works, what the event itself can look like, the reactions of those involved, and what it feels like to oversee proceedings and administer medications that hasten death. She describes the extraordinary people she meets and the unusual circumstances she encounters as she navigates the intricacy, intensity, and utter humanity of these powerful interactions. Deeply authentic and powerfully emotional, This Is Assisted Dying contextualizes the myriad personal, professional, and practical issues surrounding assisted dying by bringing readers into the room with Dr. Green, sharing the voices of her patients, her colleagues, and her own narrative. As our population confronts issues of wellness, integrity, agency, community, and how to live a connected, meaningful life, this progressive and compassionate book by a physician at the forefront of medically assisted dying offers comfort and potential relief. “A humane, clear-eyed view of how and why one can leave the world by choice” (Kirkus Reviews), This Is Assisted Dying will change the way people think about their options, and ultimately is less about death than about how we wish to live.

Hospice Social Work

Author : Dona J. Reese
Publisher : Columbia University Press
ISBN 13 : 0231508735
Total Pages : 520 pages
Book Rating : 4.2/5 (315 download)

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Book Synopsis Hospice Social Work by : Dona J. Reese

Download or read book Hospice Social Work written by Dona J. Reese and published by Columbia University Press. This book was released on 2013-02-26 with total page 520 pages. Available in PDF, EPUB and Kindle. Book excerpt: The first text to explore the history, characteristics, and challenges of hospice social work, this volume weaves leading research into an underlying framework for practice and care. A longtime practitioner, Dona J. Reese describes the hospice social work role in assessment and intervention with individuals, families, groups, organizations, and the community, while honestly confronting the personal and professional difficulties of such life-changing work. She introduces a well-tested model of psychosocial and spiritual variables that predict hospice client outcomes, and she advances a social work assessment tool to document their occurrence. Operating at the center of national leaders' coordinated efforts to develop and advance professional organizations and guidelines for end-of-life care, Reese reaches out with support and practice information, helping social workers understand their significance in treating the whole person, contributing to the cultural competence of hospice settings, and claiming a definitive place within the hospice team.

With the End in Mind

Author : Kathryn Mannix
Publisher : Little, Brown Spark
ISBN 13 : 031650453X
Total Pages : 314 pages
Book Rating : 4.3/5 (165 download)

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Book Synopsis With the End in Mind by : Kathryn Mannix

Download or read book With the End in Mind written by Kathryn Mannix and published by Little, Brown Spark. This book was released on 2018-01-16 with total page 314 pages. Available in PDF, EPUB and Kindle. Book excerpt: For readers of Atul Gawande and Paul Kalanithi, a palliative care doctor's breathtaking stories from 30 years spent caring for the dying. Modern medical technology is allowing us to live longer and fuller lives than ever before. And for the most part, that is good news. But with changes in the way we understand medicine come changes in the way we understand death. Once a familiar, peaceful, and gentle -- if sorrowful -- transition, death has come to be something from which we shield our eyes, as we prefer to fight desperately against it rather than accept its inevitability. Dr. Kathryn Mannix has studied and practiced palliative care for thirty years. In With the End in Mind , she shares beautifully crafted stories from a lifetime of caring for the dying, and makes a compelling case for the therapeutic power of approaching death not with trepidation, but with openness, clarity, and understanding. Weaving the details of her own experiences as a caregiver through stories of her patients, their families, and their distinctive lives, Dr. Mannix reacquaints us with the universal, but deeply personal, process of dying. With insightful meditations on life, death, and the space between them, With the End in Mind describes the possibility of meeting death gently, with forethought and preparation, and shows the unexpected beauty, dignity, and profound humanity of life coming to an end.

The Best Care Possible

Author : Ira Byock
Publisher : Penguin
ISBN 13 : 1583335129
Total Pages : 338 pages
Book Rating : 4.5/5 (833 download)

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Book Synopsis The Best Care Possible by : Ira Byock

Download or read book The Best Care Possible written by Ira Byock and published by Penguin. This book was released on 2013-03-05 with total page 338 pages. Available in PDF, EPUB and Kindle. Book excerpt: A doctor on the front lines of hospital care illuminates one of the most important and controversial social issues of our time. It is harder to die in this country than ever before. Though the vast majority of Americans would prefer to die at home—which hospice care provides—many of us spend our last days fearful and in pain in a healthcare system ruled by high-tech procedures and a philosophy to “fight disease and illness at all cost.” Dr. Ira Byock, one of the foremost palliative-care physicians in the country, argues that how we die represents a national crisis today. To ensure the best possible elder care, Dr. Byock explains we must not only remake our healthcare system but also move beyond our cultural aversion to thinking about death. The Best Care Possible is a compelling meditation on medicine and ethics told through page-turning life-or-death medical drama. It has the power to lead a new national conversation.

Voluntarily Stopping Eating and Drinking

Author : Timothy E. Quill
Publisher : Oxford University Press
ISBN 13 : 0190080736
Total Pages : 313 pages
Book Rating : 4.1/5 (9 download)

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Book Synopsis Voluntarily Stopping Eating and Drinking by : Timothy E. Quill

Download or read book Voluntarily Stopping Eating and Drinking written by Timothy E. Quill and published by Oxford University Press. This book was released on 2021 with total page 313 pages. Available in PDF, EPUB and Kindle. Book excerpt: Many people who are experiencing unacceptable suffering or deterioration in the present, or who fear them in the near future, do not know their full range of options to hasten death. This is particularly true if they live in jurisdictions that do not allow a physician assisted death - over forty jurisdictions in the U.S. and most countries across the world. Though VSED is readily available, and not illegal, most people are unaware of it as an option. The informationin this book is vital to those considering their options either hypothetically or in real time, providing an integrated, balanced, and nuanced exploration of VSED with contributions from legal, medical, and ethical experts.

Music at the End of Life

Author : Jennifer L. Hollis
Publisher :
ISBN 13 :
Total Pages : 0 pages
Book Rating : 4.4/5 (6 download)

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Book Synopsis Music at the End of Life by : Jennifer L. Hollis

Download or read book Music at the End of Life written by Jennifer L. Hollis and published by . This book was released on with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Students of religion and Eastern thought will welcome this readable translation and practical commentary on the Uddhava Gita, a Hindu text in which Krishna's teachings introduced in the Bhagavad Gita are extended and nuanced. Krishna's Other Song: A New Look at the Uddhava Gita examines the entire Uddhava Gita in relation to other Hindu scriptures, especially the Bhagavad Gita, and shares its teachings in light of interreligious understanding and nonsectarian spirituality. This edition's elaborate commentary, written by a prominent American scholar of Hindu studies, who is also a practitioner, opens up the text's esoteric teaching to a Western audience for the first time, adding context and relevance that make the book accessible and its teachings practicable for a Western readership. A foreword, written by prominent Hinduism scholar Charles S. J. White joins the author's own introduction to lay out the Uddhava Gita's background, philosophical dimensions, and religious significance. This edition does not include the original Sanskrit, nor does it labor to translate each word verbatim. Rather, it gives the reader all 1,030 verses in plain English, offering accessible commentary that allows the meaning and relevance of the Uddhava Gita to unfold to one and all.