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A Guide For Parents And Caregivers Of Children Diagnosed With Cystic Fibrosis
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Book Synopsis A Guide for Parents and Caregivers of Children Diagnosed with Cystic Fibrosis by :
Download or read book A Guide for Parents and Caregivers of Children Diagnosed with Cystic Fibrosis written by and published by . This book was released on 2018 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Finding Out by : Cystic Fibrosis Trust
Download or read book Finding Out written by Cystic Fibrosis Trust and published by . This book was released on 2000 with total page 43 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis A Parent's Guide to Cystic Fibrosis by : Burton L. Shapiro
Download or read book A Parent's Guide to Cystic Fibrosis written by Burton L. Shapiro and published by U of Minnesota Press. This book was released on 1991 with total page 156 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Cystic Fibrosis by : David M. Orenstein
Download or read book Cystic Fibrosis written by David M. Orenstein and published by Lippincott Williams & Wilkins. This book was released on 2012-03-28 with total page 788 pages. Available in PDF, EPUB and Kindle. Book excerpt: This one-of-a-kind guide offers easy-to-understand explanations, advice, and management options for patients or parents of patients with cystic fibrosis. The book explains the disease process, outlines the fundamentals of diagnosing and screening, and addresses the challenges of treatment for those living with CF. As one reviewer said, this book “is the only complete answer book for everyone living with the disease. It is an indispensable resource for families of children with CF, adolescent and adult patients, and physicians, nurses, respiratory therapists, and social workers involved in the care of CF patients.”
Book Synopsis Cystic Fibrosis by : Robert Barlett Elliott
Download or read book Cystic Fibrosis written by Robert Barlett Elliott and published by . This book was released on 1977 with total page 11 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Author :Stephen Gullo Publisher :Center for Thanatology Research & Education, Incorporated ISBN 13 : Total Pages :224 pages Book Rating :4.3/5 (91 download)
Book Synopsis Death and Children by : Stephen Gullo
Download or read book Death and Children written by Stephen Gullo and published by Center for Thanatology Research & Education, Incorporated. This book was released on 1985 with total page 224 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Cystic Fibrosis by : David M. Orenstein
Download or read book Cystic Fibrosis written by David M. Orenstein and published by Lippincott Williams & Wilkins. This book was released on 2004 with total page 504 pages. Available in PDF, EPUB and Kindle. Book excerpt: Explains the how and why behind the disease process, outlines the fundamentals of diagnosis and screening, and addresses the challenges of treatment for those living with CF.
Book Synopsis Influence of Contextual Factors and Self Efficacy on Self- Management in Parents of Children with Cystic Fibrosis by : Erin B. Booth
Download or read book Influence of Contextual Factors and Self Efficacy on Self- Management in Parents of Children with Cystic Fibrosis written by Erin B. Booth and published by . This book was released on 2017 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: Cystic Fibrosis, a life threatening autosomal recessive genetic disease, is characterized by a defective gene resulting in the production of thick mucus that obstructs the lungs and pancreas. CF requires intensive management performed at the home. An initial pilot study was performed to describe knowledge of CF related diabetes (CFRD) in adults with CF. The findings of this study, which demonstrated that adults with CF lacked sufficient knowledge about CFRD confirmed the need to explore additional factors of self-management guided by a theoretical framework. The second study presented in this dissertation used the Individual and Family Self-Management Theory (IFSMT) to describe context (condition-specific and individual and family factors) and process (self-efficacy and knowledge) and outcome (family self-management) variables for caregivers of children with CF. It also compared differences in context, process, and outcomes in caregivers based on socioeconomic status (Medicaid vs. private insurance), and explored correlations among context, process, and outcomes. Participants for this cross-sectional descriptive study were caregivers of individuals with CF who were under the age of 18 and diagnosed with CF for at least 9 months. Participants completed a demographic survey and questionnaires that included measures of perceived disease severity (VAS), depression (Patient Health Questionnaire), self-efficacy (Perceived Health Competence Scale, Mountain West Cystic Fibrosis Consortium Questionnaire), knowledge (CF Knowledge and Attitudes Questionnaire), and self management behaviors (Self-Management Behaviors Questionnaire) Additional information was collected on the children with CF and included demographic information as well as height/weight/BMI, pulmonary function test results, medication profile, and insurance status. Participants in this study were primarily female caregivers with high self-efficacy, and average knowledge. The children with CF in this study had moderate treatment complexity and normal/mild impairment in lung function. Deficits were noted in the areas of caregivers' reproductive and genetic knowledge. This study found differences between Medicaid and private insurance groups related to knowledge. There were significant relationships between disease severity and CF specific self-efficacy and nutritional surveillance as well as general self-efficacy and respiratory surveillance. These findings confirmed that the IFM. S.T would provide a consistent framework to guide future studies aimed at identifying factors that influence self-management behaviors of CF in patients and their caregivers.
Download or read book Cystic Fibrosis written by and published by . This book was released on 1983 with total page 19 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Cystic Fibrosis written by Alison Wesley and published by . This book was released on 1989 with total page 23 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis A Guide to Cystic Fibrosis for Parents and Children by : James C. Cunningham
Download or read book A Guide to Cystic Fibrosis for Parents and Children written by James C. Cunningham and published by . This book was released on 1988 with total page 95 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Eating Well with Cystic Fibrosis by : Cystic Fibrosis Trust
Download or read book Eating Well with Cystic Fibrosis written by Cystic Fibrosis Trust and published by . This book was released on 1996 with total page 26 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Identifying Health, Educational, and Social Emotional Needs and Potential Intervention Strategies for Children with Cystic Fibrosis First Entering Elementary School by : Kristen M. Carson
Download or read book Identifying Health, Educational, and Social Emotional Needs and Potential Intervention Strategies for Children with Cystic Fibrosis First Entering Elementary School written by Kristen M. Carson and published by . This book was released on 2015 with total page 176 pages. Available in PDF, EPUB and Kindle. Book excerpt: Cystic Fibrosis (CF) is one of the most common, life-threatening genetic disorders impacting children (Cystic Fibrosis Foundation, n.d.) and, although rare, has a broad impact on children's health, educational, and social-emotional functioning. Current interventions for children with CF lack comprehensiveness, do not occur in the school setting, and fail to employ systems collaboration. Further, interventions have taken a more reactive rather than proactive approach to meeting children's needs. This investigation addressed current gaps in the literature by identifying children's health, educational, and social-emotional needs and potential intervention strategies to be employed as children with CF first enter elementary school. The study utilized participatory action research methods (e.g., focus groups, individual interviews, advisory panel) to gain information from parents and caregivers of children with CF (n = 11), school personnel (n = 15), and CF health care professionals (n = 14) and to collaboratively identify intervention strategies perceived to be beneficial, acceptable, and feasible for implementation. Results indicated primary areas for intervention to include nutrition (e.g., malabsorption), health-related treatments (e.g., medications), educational difficulties (e.g., falling behind), disclosure, social support, and mental health (e.g., anxiety, depression). Comprehensive strategies (e.g., formalized plans, use of technology, multisystemic collaboration) to address primary concerns are discussed. It will be important for schools, families, and health care professionals to collaboratively plan to meet the comprehensive needs of children with CF in schools by increasing communication and education across systems.
Book Synopsis The Lived Experience of Fathers Caring for Their Child with Cystic Fibrosis by : Jana Shardonofsky
Download or read book The Lived Experience of Fathers Caring for Their Child with Cystic Fibrosis written by Jana Shardonofsky and published by . This book was released on 2018 with total page 198 pages. Available in PDF, EPUB and Kindle. Book excerpt: Cystic fibrosis (CF) is a life-shortening genetic disease with many treatment requirements that necessitate the participation of a caregiver, especially if the patient is a child. Most studies of the quality of life of caregivers of children with CF have focused on the mental health of mothers, reflecting a biased underlying assumption that mothers are the primary caregivers. The aim of this study was to explore the experience of fathers caring for a child with CF. Twenty fathers of children with CF were studied by use of a semistructured interview using Husserl’s descriptive phenomenology. Six themes emerged from the interviews: feeling overwhelmed, feeling isolated, experiencing altered family dynamics, actively seeking resources, experiencing financial strain, and feeling hope. Fathers of children with CF reported distressing experiences in connection with their child’s diagnosis of CF and during the course of their child’s disease, but they also a had strong feelings of hope for the future.
Download or read book Cystic Fibrosis written by Percy Bray and published by . This book was released on 1989 with total page 181 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Cystic Fibrosis by : Melanie Ann Apel
Download or read book Cystic Fibrosis written by Melanie Ann Apel and published by Scarecrow Press. This book was released on 2006 with total page 288 pages. Available in PDF, EPUB and Kindle. Book excerpt: Describes the challenges of living with cystic fibrosis, as well as a description of the illness, and an explanation of procedures for diagnosis and therapy.
Book Synopsis Cystic Fibrosis Care by : Allison Peebles
Download or read book Cystic Fibrosis Care written by Allison Peebles and published by Elsevier Health Sciences. This book was released on 2005-06-14 with total page 332 pages. Available in PDF, EPUB and Kindle. Book excerpt: Written by a team of experts in the field this unique book is a practical guide for the care of cystic fibrosis patients based on day-to-day experience and scientific evidence. Chapters cover every aspect of care from basic daily respiratory and gastroenterology management to the more common complications in cystic fibrosis and includes problem solving more complex issues. Covering all areas of clinical and psychosocial care for the cystic fibrosis patient, Cystic Fibrosis Care is designed to allow quick access to relevant information and is an invaluable guide for physiotherapists, GPs, paediatricians, nurses and dieticians. Quick access to relevant information Boxes throughout the text to reinforce important messages Chapters to cover every aspect of care from basic daily respiratory and gastroenterology management, the more common complications in CF, to problem solving more complex issues