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The Quality Of Life Of Children With Cerebral Palsy
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Book Synopsis Handbook of Disease Burdens and Quality of Life Measures by : Victor R. Preedy
Download or read book Handbook of Disease Burdens and Quality of Life Measures written by Victor R. Preedy and published by Springer. This book was released on 2012-12-19 with total page 758 pages. Available in PDF, EPUB and Kindle. Book excerpt: This handbook features in-depth reviews of disability-adjusted life years (DALYs), quality-adjusted life years (QALYs), quality of life and financial measures for over 120 diseases and conditions. Its editors have organized this critical information for maximum access and ease of use, with abstracts, definitions of key terms, summary points, and dozens of figures and tables that can enhance the text or stand alone.
Book Synopsis Well-being and Quality of Life by : Mukadder Mollaoglu
Download or read book Well-being and Quality of Life written by Mukadder Mollaoglu and published by BoD – Books on Demand. This book was released on 2017-09-06 with total page 268 pages. Available in PDF, EPUB and Kindle. Book excerpt: The chapters in this book focus on the physical, social, and emotional components of the concept of quality of life. How diseases affect the quality of life of people is mainly discussed. The influence of diseases on quality of life in age-specific periods such as childhood, youth, and old age is also emphasized. In some non-disease-related environmental factors, specific social phenomena have also been analyzed. I hope that current research and research results in the book will be used to increase the quality of life by health professionals. This book will attract not only health workers but also environmentalists and social scientists and behavioral scientists.
Download or read book Cerebral Palsy written by Freeman Miller and published by JHU Press. This book was released on 2006-05-08 with total page 548 pages. Available in PDF, EPUB and Kindle. Book excerpt: When a child has a health problem, parents want answers. But when a child has cerebral palsy, the answers don't come quickly. A diagnosis of this complex group of chronic conditions affecting movement and coordination is difficult to make and is typically delayed until the child is eighteen months old. Although the condition may be mild or severe, even general predictions about long-term prognosis seldom come before the child's second birthday. Written by a team of experts associated with the Cerebral Palsy Program at the Alfred I. duPont Hospital for Children, this authoritative resource provides parents and families with vital information that can help them cope with uncertainty. Thoroughly updated and revised to incorporate the latest medical advances, the second edition is a comprehensive guide to cerebral palsy. The book is organized into three parts. In the first, the authors describe specific patterns of involvement (hemiplegia, diplegia, quadriplegia), explain the medical and psychosocial implications of these conditions, and tell parents how to be effective advocates for their child. In the second part, the authors provide a wealth of practical advice about caregiving from nutrition to mobility. Part three features an extensive alphabetically arranged encyclopedia that defines and describes medical terms and diagnoses, medical and surgical procedures, and orthopedic and other assistive devices. Also included are lists of resources and recommended reading.
Book Synopsis Measuring Health-Related Quality of Life in Children and Adolescents by : Dennis Drotar
Download or read book Measuring Health-Related Quality of Life in Children and Adolescents written by Dennis Drotar and published by Psychology Press. This book was released on 2014-06-03 with total page 394 pages. Available in PDF, EPUB and Kindle. Book excerpt: This volume's purpose is to describe concepts and methods concerning assessment of health-related quality of life (HRQOL) in children and adolescents with a special focus on chronic health conditions. The impetus for this book came from a recognition of the increasing importance of HRQOL assessments in the evaluation of treatment outcomes and the need to increase the utilization of HRQOL assessments in research and clinical applications with a range of pediatric populations. The need to develop a volume that describes new research and clinical applications concerning this topic stemmed from several recent developments. There is a continuing need for evaluations of the efficacy of medical treatments for children and adolescents, including those with chronic health conditions. To address these critical unmet needs in the field of HRQOL assessment, and to advance scientific methods and clinical applications in this field, a conference was held at Case Western Reserve University. The conference set out to summarize current information concerning the development and implementation of measures of HRQOL assessment, to identify and consider key conceptual and methodological issues in research concerning the measurement of HRQOL, and to recommend priorities to advance the state-of-the-art in research and clinical applications of QOL assessment in children and adolescents with chronic health conditions. This volume summarizes and synthesizes the information that was presented by the conference participants in a series of lively discussions and chapters that were based on the presentations.
Book Synopsis The Spastic Forms of Cerebral Palsy by : Adriano Ferrari
Download or read book The Spastic Forms of Cerebral Palsy written by Adriano Ferrari and published by Springer Science & Business Media. This book was released on 2009-12-29 with total page 368 pages. Available in PDF, EPUB and Kindle. Book excerpt: by A. Berthoz The publication of this volume, edited by Adriano Ferrari and Giovanni Cioni, is a major event for several reasons. Most importantly, it concerns an area of child pathology that has yet to be fully explored. In this context, the authors’ efforts to compile their observations as well as those of other clinicians and to elaborate their theories have resulted in an ess- tial step in the field of cerebral palsy (CP). The originality of the book is its very clear focus, while at the same time the authors have encouraged the book’s contributors to express their ideas and personal opinions. This leads sometimes to redundancy, but this is precisely one of the benefits of the book - cause the same problems are then exposed from different points of views. The reader is thus spared the normative attempts of many other pathology books, in which the compl- ity of a given disease is hidden by the authors’ or editors’ desire to impose a rigid taxo- my or epidemiology.
Book Synopsis International Encyclopedia of Public Health by : William C Cockerham
Download or read book International Encyclopedia of Public Health written by William C Cockerham and published by Academic Press. This book was released on 2016-10-06 with total page 4477 pages. Available in PDF, EPUB and Kindle. Book excerpt: International Encyclopedia of Public Health, Second Edition, Seven Volume Set is an authoritative and comprehensive guide to the major issues, challenges, methods, and approaches of global public health. Taking a multidisciplinary approach, this new edition combines complementary scientific fields of inquiry, linking biomedical research with the social and life sciences to address the three major themes of public health research, disease, health processes, and disciplines. This book helps readers solve real-world problems in global and local health through a multidisciplinary and comprehensive approach. Covering all dimensions of the field, from the details of specific diseases, to the organization of social insurance agencies, the articles included cover the fundamental research areas of health promotion, economics, and epidemiology, as well as specific diseases, such as cancer, cardiovascular diseases, diabetes, and reproductive health. Additional articles on the history of public health, global issues, research priorities, and health and human rights make this work an indispensable resource for students, health researchers, and practitioners alike. Provides the most comprehensive, high-level, internationally focused reference work available on public health Presents an invaluable resource for both researchers familiar with the field and non-experts requiring easy-to-find, relevant, global information and a greater understanding of the wider issues Contains interdisciplinary coverage across all aspects of public health Incorporates biomedical and health social science issues and perspectives Includes an international focus with contributions from global domain experts, providing a complete picture of public health issues
Book Synopsis Physiotherapy and Occupational Therapy for People with Cerebral Palsy by : Karen Dodd
Download or read book Physiotherapy and Occupational Therapy for People with Cerebral Palsy written by Karen Dodd and published by John Wiley & Sons. This book was released on 2010-03-08 with total page 337 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book is a practical resource for physiotherapists and occupational therapists who support people with cerebral palsy, helping them to solve the problems with movement and other impairments that so often accompany cerebral palsy, so that they can be more active and better able to participate in roles such as study, work, recreation and relationships. The first chapters provide the background to the clinical reasoning approach that informs the whole text, as well as an overview of therapeutic interventions. The subsequent chapters present clinical situations that therapists will encounter in the course of their work with individuals with cerebral palsy across the lifespan. Each chapter describes a case in detail, including the reasoning behind assessment and treatment choices, interventions and outcomes. The themes emphasized throughout the book are the use of the clinical reasoning approach of the intervention process model, the International Classification of Functioning, Disability and Health as a framework to help therapists inform patient and family decision-making, family-centred approaches in developing and implementing therapeutic strategies, and multidisciplinary team work.
Book Synopsis Children and Youth with Complex Cerebral Palsy by : Laurie Glader
Download or read book Children and Youth with Complex Cerebral Palsy written by Laurie Glader and published by Mac Keith Press. This book was released on 2019-02-26 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Children with complex cerebral palsy (typically, but not always, GMFCS levels IV and V) require skilled management and extensive expertise which can be overwhelming or intimidating for many clinical practitioners. This book explores management of the many medical comorbidities these children encounter, including orthopedic concerns, mobility and equipment needs, cognition and sensory impairment, difficult behaviors, seizures, respiratory complications and nutritional challenges, among many others. Summary points at the end of each chapter provide at-a-glance access to key recommendations. In addition, an Appendix provides adaptable care tools to guide clinicians in evaluation, preventive care and crisis management. Importantly, the book includes contributions from parents of children with cerebral palsy and youth with cerebral palsy, providing unique and critical wisdom for family-centred care. Parents and families of children and youth with complex cerebral palsy will particularly appreciate the inclusion of chapters on adolescence, transition to adulthood, and growing up, growing well with cerebral palsy.
Book Synopsis The Oxford Handbook of Positive Psychology and Disability by : Michael L. Wehmeyer
Download or read book The Oxford Handbook of Positive Psychology and Disability written by Michael L. Wehmeyer and published by Oxford University Press, USA. This book was released on 2013-09-19 with total page 561 pages. Available in PDF, EPUB and Kindle. Book excerpt: This handbook is the first comprehensive text on positive psychology and disability. Emphasizing paradigmatic changes in understanding disability, the text covers traditional disciplines in positive psychology; and applications of positive psychology to domains like education or work.
Book Synopsis Understanding Children with Cerebral Palsy by : Fabrizio Stasolla
Download or read book Understanding Children with Cerebral Palsy written by Fabrizio Stasolla and published by Nova Science Publishers. This book was released on 2020 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Cerebral Palsy (CP) represents one of the most frequent neurological disorder in the infancy and in the childhood. It includes brain injuries or developmental defects. According to the World Health Organization, it is a main problem of public health. It may include communication, intellectual, and motor disabilities with negative consequences on children inclusion in daily life and caregivers burden. Rehabilitative interventions are primarily focused on promoting self-determination and independence of individuals with CP. Postural control, gait, and motor skills are usually embedded. Additionally, one may envisage request and choice programs aimed at enhancing the child's awareness of his/her own behavior. The volume summarizes some illustrative evidence-based contributions to emphasize the effectiveness and the suitability of the adopted programs. Beside stability of upper limbs and motor performance of children with CP (chapter one), the therapeutic effects of a horse riding simulator which was compared to a traditional physiotherapy on the sitting position of children with spastic CP (chapter two), the evaluation of stability in children with different form of CP was assessed through a rehabilitative platform was implemented (chapter three). The aforementioned experimental examinations presented between-groups investigations. Furthermore, four case-report studies were included. Assistive technology-based setups were used to promote an active role, constructive engagement, and positive participation of the enrolled children with CP and intellectual disabilities. The beneficial outcomes on their quality of life were considered. Chapter four describes a microswitch-based program to enhance ambulation responses of a child with CP. Chapter five provides a detailed illustration of such program to support locomotion fluency. Chapter six illustrates a cluster-technology aimed at pursuing the dual goal of fostering an adaptive response and reducing a challenging behavior. Chapter seven refers to a computerized system focused on enabling a child with CP and intellectual delays with academic performance and communication opportunities. Whenever available, the effects on indices of happiness and/or positive participation were analyzed. Social validation procedures involving external raters were conducted. Practical features of the retained treatments were privileged. Clinical, educational, psychological, and rehabilitative implications of the findings were systematically and critically discussed. Caregivers, educators, families of children with CP, practitioners, psychologists, speech and occupational therapists, medicine or psychology students, and teachers may find some useful insights for both research and practice in daily life settings"--
Download or read book Cerebral Palsy written by Freeman Miller and published by Springer Science & Business Media. This book was released on 2005-07-28 with total page 1057 pages. Available in PDF, EPUB and Kindle. Book excerpt: Dr. Miller’s valuable resource helps members of the medical team navigate the complexity of cerebral palsy care by explaining unfamiliar treatments that fall outside of their own disciplines. Readers also benefit from a review of current practices in their own fields. Includes recommended treatment algorithms and is designed to help improve decision making. Written in a very conversational style and illustrated with lots of color the volume provides rehabilitational (part 1) and surgical aspects (part 2). Accomplished by a CD-ROM which provides lots of case studies - including walking analysis. The most comprehensive title on this topic written by a leading expert.
Book Synopsis Life Habits : Shortened Version (LIFE H 3.0) by : Patrick Fougeyrollas
Download or read book Life Habits : Shortened Version (LIFE H 3.0) written by Patrick Fougeyrollas and published by Lac St-Charles, Québec : INDCP. This book was released on 2002 with total page 24 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis The Child with Cerebral Palsy by : United States. Children's Bureau
Download or read book The Child with Cerebral Palsy written by United States. Children's Bureau and published by . This book was released on 1957 with total page 20 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Understanding in Children with Cerebral Palsy: Orthopedic Problems by : Dmitry Popkov
Download or read book Understanding in Children with Cerebral Palsy: Orthopedic Problems written by Dmitry Popkov and published by . This book was released on 2020-06-24 with total page 351 pages. Available in PDF, EPUB and Kindle. Book excerpt: Cerebral palsy presents stable encephalopathy that systemically influences on the child's and adult's organism. Orthopedic complications of cerebral palsy possess on the contrary progressive features and those complications cause gradual failure of motor ability of a person: impaired walking, loss of postural ability, reduced self-care and inclusion, finally quality of life becoming much worse. That is why orthopedic aspects are of great importance in children with cerebral palsy. This volume presents a collection of chapters covering a wide range of problems, from a system of universal classification of dysfunctions in Cerebral Palsy and practical issues of prevention of orthopedic complications orthopedic to surgery (diagnostics and quantitative interpretation of gait disorders in such patients, optimal methods of surgical intervention, hip surgery, spinal surgery) and aspects of nutritive status of this specific category of patients, associated comorbidities and their influence and connection with orthopedic problems. Furthermore, three chapters are dedicated to the anesthetic aspects of orthopedic surgery. The substantiation is given to the methods of combined anesthesia and sedation during surgery, as well as in the immediate postoperative period, taking into account concomitant epilepsy, increased intracranial pressure and spasticity in such children.Single-event multilevel orthopedic surgery is a recognized gold standard in ambulatory patients, though it varies according to gait patterns and associated orthopedic problems causing motor disorders. The book contains explanations and methodology of surgeries for conventional gait patterns, as well as in iatrogenic disorders caused by previous unreasonable interventions. The chapter on the correction of deformities and dysfunctions of the upper limb shows the first applied transfer of m.flexor cubitus ulnaris to the radius, which gave extremely positive results both in terms of function and aesthetics.Unfortunately, in Russia the number of CP patients with iatrogenic orthopedic disorders is high. Extremely negative consequences in the form of weakness of the triceps muscles after percutaneous fibromyotomies (so-called "Ulzibat method") or lengthening of the Achilles tendon in diplegia performed before the age of five years and before the development of muscle retraction lead to the development of crouch gait even in patients with high motor potential (GMFCS I, II). This complication of unreasonable surgical interventions develops in 5-7 years after primary surgery and in the opinion of doctors and parents is not related to previous procedures. This book, based on 3D-instrumented gait analysis, shows the features of iatrogenic crouch gait, as well as methods of surgical correction of this difficult situation.The data presented in this book are based, on the one hand, on the personal practical and scientific experience of each author, and on the other hand, the entire team of authors works in collaboration with each other, coordinating their decisions and interventions with colleagues, thus ensuring continuity in treatment of children and adults suffering from cerebral palsy.
Book Synopsis The HELP Guide to Cerebral Palsy by : Nadire Berker
Download or read book The HELP Guide to Cerebral Palsy written by Nadire Berker and published by . This book was released on 2005-01-01 with total page 144 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Clinics in Developmental Medicine by :
Download or read book Clinics in Developmental Medicine written by and published by . This book was released on 1964 with total page 108 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Quality of Life Measurement in Neurodegenerative and Related Conditions by : Crispin Jenkinson
Download or read book Quality of Life Measurement in Neurodegenerative and Related Conditions written by Crispin Jenkinson and published by Cambridge University Press. This book was released on 2011-02-03 with total page 207 pages. Available in PDF, EPUB and Kindle. Book excerpt: Patient reported outcome measures are central to the evaluation of medical care and treatment regimes. Such measures depart from traditional clinical assessments as they are based on issues known to be of importance to patients. This book outlines the development and application of a variety of such measures in a wide range of neurological conditions. Introductory chapters outline issues in the application and validation of quality-of-life measures in neurology. Subsequent chapters survey the most widely used quality-of-life instruments in Parkinson's disease, motor neurone disease, multiple sclerosis, multiple system atrophy, progressive supranuclear palsy, and Alzheimer's/dementia. A chapter on cerebral palsy deals with the particular challenges to developing outcome measures for children. The book also addresses issues relating to the translation of measures for use in cross-cultural studies, handling missing data, carer experiences of long-term conditions, and methodological challenges. Essential reading for clinicians and researchers working in the field of neurology.
