The Lupus Diaries My Life With Chronic Illness

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The Lupus Diaries My Life With Chronic Illness

Author : Lillian Smith
Publisher :
ISBN 13 : 9781800165007
Total Pages : 0 pages
Book Rating : 4.1/5 (65 download)

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Book Synopsis The Lupus Diaries My Life With Chronic Illness by : Lillian Smith

Download or read book The Lupus Diaries My Life With Chronic Illness written by Lillian Smith and published by . This book was released on 2023-04-27 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Lillian Smith has been a writer on her illness in print and online media and helped many people by sharing her story with others. This book began as an idea when she was diagnosed with Lupus at the age of twenty-two and there were no books available to help her find answers to questions she was desperately seeking help for. She set out to write The Lupus Diaries in 2012 and, for over ten years, wrote journal entries on her life with Lupus, hoping to help young people and others with chronic illness so that they would find not only answers but hope about how to find a balance with illness and recovery from their disease. She offers real- life solutions with her real-life experience, with real-life stories that you can relate to. If you are seeking answers to a more balanced life with your chronic illness, or are newly diagnosed and want to find out how to cope, read this book, with very real and helpful chapters suchlike "'Dating and Chronic Illness'," "'Marriage and Chronic Illness'," "'Missing Out'," and much more. A memoir, a self-help book, and at heart, a true love story, this book offers lessons for everyone seeking help for their chronic illness.

Despite Lupus

Author : Sara Gorman
Publisher : Sara Gorman
ISBN 13 : 1439234892
Total Pages : 106 pages
Book Rating : 4.4/5 (392 download)

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Book Synopsis Despite Lupus by : Sara Gorman

Download or read book Despite Lupus written by Sara Gorman and published by Sara Gorman. This book was released on 2009 with total page 106 pages. Available in PDF, EPUB and Kindle. Book excerpt: Looking for a better way to manage life with a chronic illness? Despite Lupus will guide you through the proven steps needed to obtain the emotional and physical wellness you deserve.

My Adventure with Lupus

Author : Robert L. Yocum
Publisher :
ISBN 13 : 9781882180455
Total Pages : 196 pages
Book Rating : 4.1/5 (84 download)

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Book Synopsis My Adventure with Lupus by : Robert L. Yocum

Download or read book My Adventure with Lupus written by Robert L. Yocum and published by . This book was released on 1995-03 with total page 196 pages. Available in PDF, EPUB and Kindle. Book excerpt: Examines the life of the author, a Lupus patient, and gives the history, origin and development of Lupus, as well as strategies for coping with daily life as a Lupus sufferer.

Travels with the Wolf

Author : Melissa Anne Goldstein
Publisher : Ohio State University Press
ISBN 13 : 9780814208403
Total Pages : 298 pages
Book Rating : 4.2/5 (84 download)

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Book Synopsis Travels with the Wolf by : Melissa Anne Goldstein

Download or read book Travels with the Wolf written by Melissa Anne Goldstein and published by Ohio State University Press. This book was released on 2000 with total page 298 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Lupus Foundation of America estimates that between .5 and 1.5 million people have been diagnosed with lupus, a chronic autoimmune disease that can attack any part of the body. The elusive nature of the illness often becomes a source of overwhelming helplessness and frustration to its victims, their loved ones, and the physicians who treat it. Narrated through both poetry and prose, Travels with the Wolf is an autobiographical account of Melissa Anne Goldstein's experiences with lupus. It is her story of becoming a young woman, writer, and teacher in the presence of severe, often debilitating disease. It is an exploration of her relationships with her family and friends as the illness steals into their lives, and the record of her struggle to maintain her independence and identity despite disease. Finally, it is an author's journey to find her spiritual core. This book is not just about lupus. Goldstein uses her experience of the illness as well as sociological, literary, and historical research, to portray and understand the dilemmas faced by the chronically ill person in our society. In her conclusion, she calls for reform of today's health care system, which does not meet the needs of the chronically ill or their physicians.

Lupus

Author : Marisa L. Zeppieri-Caruana
Publisher : Thoughts & Letters Incorporated
ISBN 13 : 9780615808772
Total Pages : 242 pages
Book Rating : 4.8/5 (87 download)

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Book Synopsis Lupus by : Marisa L. Zeppieri-Caruana

Download or read book Lupus written by Marisa L. Zeppieri-Caruana and published by Thoughts & Letters Incorporated. This book was released on 2013-04-30 with total page 242 pages. Available in PDF, EPUB and Kindle. Book excerpt: Life was progressing as expected; getting sick was never part of their plan. However, in its own distinct and sudden way, Lupus showed up in the lives of the men and women profiled in this book. Although their ages, locations and stories are different, they all share one thing in common: they refuse to give up hope, despite Lupus. Lupus: Real Life, Real Patients, Real Talk is the first book of its kind in relation to the disease. Journalist, Lupus patient and Lupus Foundation of America Board Member, Marisa Zeppieri-Caruana, sets out to find men and women across the nation who will share the hurdles of daily life when battling a debilitating and cruel disease. What she discovers is a community not broken and hopeless, but one that is optimistic and refuses to give in. These patients have encountered many obstacles - kidney transplants, open-heart surgeries, coma, and dialysis - yet they continue to persevere. They share their darkest moments and their future dreams. In addition to telling their stories, they discuss tips on how to manage and deal with the disease - emotionally, spiritually and physically. This book provides tangible information and inspiration for every Lupus patient and their loved ones. It is also an essential tool for those who are newly diagnosed and trying to navigate the choppy waters of chronic illness and daily life. Featuring Amy Kelly-Yalden, CEO of the Lupus Foundation of America, Southeast Chapter, and Magdalena Cadet, MD, FACR, Director of Rheumatology at New York Presbyterian Healthcare System, this book is not to be missed.

Lupus: My Constant Companion and Greatest Inspiration

Author : Julie Desbarats
Publisher :
ISBN 13 :
Total Pages : 83 pages
Book Rating : 4.5/5 (256 download)

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Book Synopsis Lupus: My Constant Companion and Greatest Inspiration by : Julie Desbarats

Download or read book Lupus: My Constant Companion and Greatest Inspiration written by Julie Desbarats and published by . This book was released on 2021-06-23 with total page 83 pages. Available in PDF, EPUB and Kindle. Book excerpt: I was diagnosed with Systemic Lupus in 2008, after a year of pain and confusion in my body. When I first heard of my diagnosis I felt extremely vulnerable, broken, lost and helpless. I desperately looked for messages of inspiration and hope as far as my new diagnosis was concerned but I was unsuccessful. Over time though, armed with more awareness about lupus, I realized that almost every side effect of the disease and the medications could be managed (and counteracted in some cases), and I began to feel like I could regain much of the energetic life I once had. Since lupus is based on inflammation, I learned of the triggers that cause inflammation at a physical, emotional and even spiritual level and started to put together an action plan to restore balance back into my body. This enabled me to regain a sense of confidence and I began to work more effectively with my doctors and care team to create a wellness plan for me, which was a great source of empowerment. Having lived through a complete transformation from weakness to empowerment and even gaining a deep sense of gratitude for all that lupus has inspired in my life, I wanted to share everything I have learned, in an objective way by allowing the reader to follow me on my journey. I have listed every bad judgment as well as every success through my experience as a way to support self-discovery in others touched by lupus. I'm a firm believer that we need to be our biggest advocates and having all the information around us, empowers us to make better decisions toward our own well-being. By sharing my journey, I hope others can avoid a lot of the fear, panic, confusion and despair that often comes with this diagnosis. I also hope to relay an alternate perspective about facing chronic illness: in my experience, lupus has shaped me in ways I never imagined and through it I have a deeper sense of inner peace and balance and I sincerely look to my lupus as being my greatest inspiration. I hope to be that message of inspiration and hope that I looked for, unsuccessfully, when I was first diagnosed.

Lupus

Author : Suzy Szasz
Publisher :
ISBN 13 :
Total Pages : 258 pages
Book Rating : 4.0/5 ( download)

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Book Synopsis Lupus by : Suzy Szasz

Download or read book Lupus written by Suzy Szasz and published by . This book was released on 1995 with total page 258 pages. Available in PDF, EPUB and Kindle. Book excerpt: An autobiography in which the author discusses her ongoing battle with Lupus, telling of her refusal to be defined as a victim because of her chronic illness, and revealing her detemination to live a full, independent life.

In the Kingdom of the Sick

Author : Laurie Edwards
Publisher : Bloomsbury Publishing USA
ISBN 13 : 1620406284
Total Pages : 257 pages
Book Rating : 4.6/5 (24 download)

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Book Synopsis In the Kingdom of the Sick by : Laurie Edwards

Download or read book In the Kingdom of the Sick written by Laurie Edwards and published by Bloomsbury Publishing USA. This book was released on 2014-07-08 with total page 257 pages. Available in PDF, EPUB and Kindle. Book excerpt: Draws on scientific research and patient narratives to explore the role of social media in medical advocacy, arguing that society must change attitudes about the link between health and lifestyle and provide appropriate and compassionate treatments.

Lupus: My Constant Companion and Greatest Inspiration

Author : Ferzana Gillani
Publisher :
ISBN 13 : 9781492846727
Total Pages : 108 pages
Book Rating : 4.8/5 (467 download)

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Book Synopsis Lupus: My Constant Companion and Greatest Inspiration by : Ferzana Gillani

Download or read book Lupus: My Constant Companion and Greatest Inspiration written by Ferzana Gillani and published by . This book was released on 2013-10-10 with total page 108 pages. Available in PDF, EPUB and Kindle. Book excerpt: I was diagnosed with Systemic Lupus in 2008, after a year of pain and confusion in my body. My symptoms came to a head when I took vaccinations in preparation for a trip to Africa and then spent three weeks under the African sun. I returned home to a confirmed diagnosis of lupus and spent a turbulent few months trying to make sense of the drastic changes that were happening to me. When I first heard of my diagnosis I felt extremely vulnerable, broken, lost and helpless. I desperately looked for messages of inspiration and hope as far as my new diagnosis was concerned but I was unsuccessful. Over time though, armed with more awareness about lupus, I realized that almost every side effect of the disease and the medications could be managed (and counteracted in some cases), and I began to feel like I could regain much of the energetic life I once had. Since lupus is based on inflammation, I learned of the triggers that cause inflammation at a physical, emotional and even spiritual level and started to put together an action plan to restore balance back into my body. This enabled me to regain a sense of confidence and I began to work more effectively with my doctors and care team to create a wellness plan for me, which was a great source of empowerment. Having lived through a complete transformation from weakness to empowerment and even gaining a deep sense of gratitude for all that lupus has inspired in my life, I wanted to share everything I have learned, in an objective way by allowing the reader to follow me on my journey. I have listed every bad judgment as well as every success through my experience as a way to support self-discovery in others touched by lupus. I'm a firm believer that we need to be our biggest advocates and having all the information around us, empowers us to make better decisions toward our own well-being. By sharing my journey, I hope others can avoid a lot of the fear, panic, confusion and despair that often comes with this diagnosis. I also hope to relay an alternate perspective about facing chronic illness: in my experience, lupus has shaped me in ways I never imagined and through it I have a deeper sense of inner peace and balance and I sincerely look to my lupus as being my greatest inspiration. I hope to be that message of inspiration and hope that I looked for, unsuccessfully, when I was first diagnosed.

LIVING WITH THE WOLF and Surviving Lupus

Author : Liz Shaw-Stabler
Publisher : Xlibris Corporation
ISBN 13 : 1453504567
Total Pages : 169 pages
Book Rating : 4.4/5 (535 download)

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Book Synopsis LIVING WITH THE WOLF and Surviving Lupus by : Liz Shaw-Stabler

Download or read book LIVING WITH THE WOLF and Surviving Lupus written by Liz Shaw-Stabler and published by Xlibris Corporation. This book was released on 2010-07-31 with total page 169 pages. Available in PDF, EPUB and Kindle. Book excerpt: “This book from Liz Shaw-Stabler brings passion, guidance, and hope to the struggle of people suffering from chronic illnesses. Liz has spent decades battling systemic lupus, even enduring kidney failure and the challenges of living each day after day when she feels ill and then the near-miracle of kidney transplant—and all of the effects on the living of life. Liz is greatly admired by all who know her—a fighter, dedicated not only to personally overcoming illness, but also to bringing health care to people of color—a group that SLE strikes particularly hard. Shaw-Stabler is a professional educator and a passionate advocate, devoting hundreds of hours to founding LupusCare, which provides education and group meetings for a community in Los Angeles that is rich in African American and Latino families—a community that needs much better access to health care and health education. This book is another step in the battle. Read it to understand, to learn, and to discover how one person can influence the battle for personal and public health. Finally, read it to be inspired and to be moved to action. This book and its author are national treasures”—Bevra H Hahn, MD Professor of Medicine Chief of Rheumatology, David Geffen School of Medicine at UCLA, Great Admirer of Liz Stabler-Shaw Los Angeles, California, June 2010. “Lupus is a life-altering experience and wisdom provided our teachers and mentors can be enabling and empowering. Liz Shaw-Stabler has helped hundreds of women with her reassuring advice”—Daniel J. Wallace, MD, FACP, FACR Chief of Rheumatology at Cedares-Sinai Medical Center Liz Shaw-Stabler was born in East Texas and received her undergraduate degree from Prairie View A and M University. She moved to Chicago, Illinois, and began her career immediately after graduation. After living in Chicago for a few years, teaching high school, acquiring a Master’s Degree and doing freelance modeling, she slowed down long enough to get married. She is the mother of one daughter who resides in Chicago. Liz now lives with her husband, Jay, in Inglewood, California, where she became the Founder and Executive Director of the Center for Lupus Care Incorporated and organization that advocates for under-served lupus patients. Liz is a thirty-year lupus patient and has suffered many life-threatening illnesses but continued to believe that she was created to do something much bigger than her illness.

Lupus Diary

Author : Olivia Davenport
Publisher :
ISBN 13 : 9780996749855
Total Pages : 178 pages
Book Rating : 4.7/5 (498 download)

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Book Synopsis Lupus Diary by : Olivia Davenport

Download or read book Lupus Diary written by Olivia Davenport and published by . This book was released on 2016 with total page 178 pages. Available in PDF, EPUB and Kindle. Book excerpt: For people living with Lupus, expressing what life is really like with an unpredictable autoimmune disease isn't easy. Lupus Diary: Track Your Life with Lupus--Body, Mind, and Spirit by Olivia Davenport gives Lupus patients a way to monitor how they're feeling physically, emotionally, and spiritually, using helpful prompts and inspiring quotes.

Lupus

Author : Jessica Rowshandel, LMSW
Publisher : Springer Publishing Company
ISBN 13 : 1617052515
Total Pages : 160 pages
Book Rating : 4.6/5 (17 download)

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Book Synopsis Lupus by : Jessica Rowshandel, LMSW

Download or read book Lupus written by Jessica Rowshandel, LMSW and published by Springer Publishing Company. This book was released on 2015-11-11 with total page 160 pages. Available in PDF, EPUB and Kindle. Book excerpt: EXPERT ADVICE AND STRATEGIES TO IMPROVE YOUR QUALITY OF LIFE WITH LUPUS. Filled with practical tips and support, Lupus: 365 Tips for Living Well offers reliable, easy to implement ways to face challenges and live your life to the fullest with lupus. This empowering guide is packed with information to help you: Get the medical care you need Learn about alternative and complementary therapies Manage lupus fog Reduce stress, fatigue, and flares Maintain healthy relationships with partners, friends, family, and children Deal with work-related issues, employers, and co-workers And much more. “Long-overdue, Lupus: 365 Tips for Living Well is a comprehensive, yet easy to understand essential guide for individuals with lupus, their loved ones and anyone going through a possible diagnosis. By educating and empowering people to become actively engaged in their treatment and encouraging participation in the lupus community through advocacy and research, Jessica Rowshandel delivers a valuable resource at a time when the patient voice is more relevant than ever.” —KATHLEEN A. ARNTSEN, President and CEO of Lupus and Allied Diseases Association, lupus patient, and national autoimmune advocate

Lupus

Author : Kavya Kumawat
Publisher : via tolino media
ISBN 13 : 3757970411
Total Pages : 80 pages
Book Rating : 4.7/5 (579 download)

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Book Synopsis Lupus by : Kavya Kumawat

Download or read book Lupus written by Kavya Kumawat and published by via tolino media. This book was released on 2023-10-16 with total page 80 pages. Available in PDF, EPUB and Kindle. Book excerpt: This comprehensive guide provides insights into understanding and managing the complexities of lupus. From diagnosis to self-care, emotional well-being, and resilience, this book equips you with the knowledge and strategies needed to live a fulfilling life with this chronic illness.

You Don't LOOK Sick!

Author : Joy Selak
Publisher : CRC Press
ISBN 13 : 9781439805787
Total Pages : 166 pages
Book Rating : 4.8/5 (57 download)

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Book Synopsis You Don't LOOK Sick! by : Joy Selak

Download or read book You Don't LOOK Sick! written by Joy Selak and published by CRC Press. This book was released on 2005-03-08 with total page 166 pages. Available in PDF, EPUB and Kindle. Book excerpt: “Coming to terms with this reality was a lot like accepting the death of a loved one.” You Don’t LOOK Sick!: Living Well with Invisible Chronic Illness chronicles a patient’s true-life accounts and her physician’s compassionate commentary as they take a journey through the three stages of chronic illness—Getting Sick, Being Sick, and Living Well. This resource helps you focus on building a meaningful life that contains illness as opposed to a life of frustration and fear. Designed for patients in at all stages of the chronic illness journey, this book will also be illuminating for caregivers and loved ones. From the book: “I’ve learned that having a chronic illness is not a prison sentence. It does not mean I must spend the rest of my life feeling depressed and angry, locked away from the world inside my little sick box. It does not mean that I am useless and no longer have any gifts to share, but it may mean that I must develop some new ones.” You Don’t LOOK Sick! addresses practical aspects of chronic illness, such as: hiring a doctor managing chronic pain coping with grief and the loss of function winning battles with health and disability insurers countering the social bias against the chronically ill recognizing the limitations of chronics illness care and charting a path for change In You Don’t LOOK Sick!: Living Well with Invisible Chronic Illness, you will find stories, dialogue, humor, examples, and analogy of the three stages to illustrate a challenging but navigable journey. You will also find suggested reading materials for learning to live well, medical Internet resources, illness-specific Web sites, names and addresses of national associations, and a bibliography of medical books by topic. The short chapters and straightforward language of the book will be helpful for readers who are weary and dispirited. From the authors: “I've learned that having a chronic illness is not a prison sentence. It does not mean I must spend the rest of my life feeling depressed and angry, locked away from the world inside my little sick box. It does not mean that I am useless and no longer have any gifts to share, but it may mean that I must develop some new ones.” —Joy H. Selak “My goal is to work with patients so that, like world class athletes, they can perform at their peak capacity. My job is more than giving answers; I must educate, counsel and encourage patients to set goals and implement a personal care program as well as take appropriate medications.” —Dr. Steven Overman The authors are experienced public speakers. If you wish to inquire about their availability to speak to patients or health care professionals, please contact Joy Selak by email at [email protected].

Good Days, Bad Days

Author : Kathy Charmaz
Publisher :
ISBN 13 :
Total Pages : 332 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis Good Days, Bad Days by : Kathy Charmaz

Download or read book Good Days, Bad Days written by Kathy Charmaz and published by . This book was released on 1991 with total page 332 pages. Available in PDF, EPUB and Kindle. Book excerpt: Millions of American suffer chronic illness, but what is life really like when you are chronically ill? Drawing on skillfully conducted in-depth interviews, Kathy Charmaz takes a fresh look at the experiences of people with serious chronic illnesses such as cardiovascular disease, cancer, lupus, emphysema, multiple sclerosis, and arthritis.

Lupus

Author : Nancy C. Hanger
Publisher : Da Capo Press
ISBN 13 : 9781569245095
Total Pages : 244 pages
Book Rating : 4.2/5 (45 download)

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Book Synopsis Lupus by : Nancy C. Hanger

Download or read book Lupus written by Nancy C. Hanger and published by Da Capo Press. This book was released on 2003 with total page 244 pages. Available in PDF, EPUB and Kindle. Book excerpt: The author, a lupus sufferer, arms readers with the vital information they will need to face this disease, with advice on diagnosis, lifestyle changes, and treatment options. Original.

Diagnosis

Author : Marilyn Celeste Morris
Publisher : Publishamerica Incorporated
ISBN 13 : 9781413767896
Total Pages : 216 pages
Book Rating : 4.7/5 (678 download)

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Book Synopsis Diagnosis by : Marilyn Celeste Morris

Download or read book Diagnosis written by Marilyn Celeste Morris and published by Publishamerica Incorporated. This book was released on 2005-10-01 with total page 216 pages. Available in PDF, EPUB and Kindle. Book excerpt: When she was suddenly assaulted by myriad baffling symptoms of joint pain and extreme fatigue, the author embarked on an intensive search for diagnosis and treatment of what would be diagnosed as systemic lupus erythematosus, a little-known autoimmune disease that promised to destroy her body, her mind and her spirit. From the pages of her intimate daily journal, we travel with her through chronic joint pain, frustration, anger and grief for her former self to her current state of remission. Far from being a litany of complaints, the authors pages reveal her unexpected spiritual growth and gratitude for life itself, and she hopes she can be of help to others who suffer from this disease or other chronic illnesses.