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The Impact Of Cystic Fibrosis On The Family
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Book Synopsis Cystic Fibrosis by : David M. Orenstein
Download or read book Cystic Fibrosis written by David M. Orenstein and published by Lippincott Williams & Wilkins. This book was released on 2012-03-28 with total page 788 pages. Available in PDF, EPUB and Kindle. Book excerpt: This one-of-a-kind guide offers easy-to-understand explanations, advice, and management options for patients or parents of patients with cystic fibrosis. The book explains the disease process, outlines the fundamentals of diagnosing and screening, and addresses the challenges of treatment for those living with CF. As one reviewer said, this book “is the only complete answer book for everyone living with the disease. It is an indispensable resource for families of children with CF, adolescent and adult patients, and physicians, nurses, respiratory therapists, and social workers involved in the care of CF patients.”
Book Synopsis In the Shadow of Illness by : Myra Bluebond-Langner
Download or read book In the Shadow of Illness written by Myra Bluebond-Langner and published by Princeton University Press. This book was released on 2020-06-30 with total page 321 pages. Available in PDF, EPUB and Kindle. Book excerpt: A revealing account of how families adapt to living with a chronically ill child What is it like to live with a child who has a chronic, life-threatening disease? What impact does the illness have on well siblings in the family? Myra Bluebond-Langner suggests that understanding the impact of the illness lies not in identifying deficiencies in the lives of those affected, but in appreciating how family members carry on with their lives in the face of the disease's intrusion. The Private Worlds of Dying Children, Bluebond-Langner's previous book, now considered a classic in the field, explored the world of terminally ill children. In her new book, she turns her attention to the lives of those who live in the shadow of chronic illness: the parents and well siblings of children who have cystic fibrosis. Through a series of narrative portraits, she draws us into the daily lives of nine families of children at different points in the natural history of the illness—from diagnosis through the terminal phase. In these portraits, as family members talk about their experiences in their own words, we see how parents, well siblings, and the ill children themselves struggle, in different ways, to contain the intrusion of the disease into their lives. Bluebond-Langner looks at how parents adjust their priorities and their idea of what constitutes a normal life, how they try to balance the needs of other family members while caring for the ill child, and how they see the future. This context helps us understand how well siblings view the illness and how they relate to their ill sibling and parents. Since the issues raised are not unique to cystic fibrosis but are common to other chronic and life-threatening illnesses, this book will be of interest to all who study, care for, or live with the seriously ill.
Book Synopsis The Impact of Cystic Fibrosis on Families by : Paula J. Foote
Download or read book The Impact of Cystic Fibrosis on Families written by Paula J. Foote and published by . This book was released on 2008 with total page 114 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Cystic Fibrosis by : David M. Orenstein
Download or read book Cystic Fibrosis written by David M. Orenstein and published by Lippincott Williams & Wilkins. This book was released on 2004 with total page 504 pages. Available in PDF, EPUB and Kindle. Book excerpt: Explains the how and why behind the disease process, outlines the fundamentals of diagnosis and screening, and addresses the challenges of treatment for those living with CF.
Book Synopsis The Effect on the Family of Having a Child with Cystic Fibrosis by : Dawn Carey
Download or read book The Effect on the Family of Having a Child with Cystic Fibrosis written by Dawn Carey and published by . This book was released on 1994 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis A Life Course Perspective on Health Trajectories and Transitions by : Claudine Burton-Jeangros
Download or read book A Life Course Perspective on Health Trajectories and Transitions written by Claudine Burton-Jeangros and published by Springer. This book was released on 2015-08-11 with total page 215 pages. Available in PDF, EPUB and Kindle. Book excerpt: This open access book examines health trajectories and health transitions at different stages of the life course, including childhood, adulthood and later life. It provides findings that assess the role of biological and social transitions on health status over time. The essays examine a wide range of health issues, including the consequences of military service on body mass index, childhood obesity and cardiovascular health, socio-economic inequalities in preventive health care use, depression and anxiety during the child rearing period, health trajectories and transitions in people with cystic fibrosis and oral health over the life course. The book addresses theoretical, empirical and methodological issues as well as examines different national contexts, which help to identify factors of vulnerability and potential resources that support resilience available for specific groups and/or populations. Health reflects the ability of individuals to adapt to their social environment. This book analyzes health as a dynamic experience. It examines how different aspects of individual health unfold over time as a result of aging but also in relation to changing socioeconomic conditions. It also offers readers potential insights into public policies that affect the health status of a population.
Book Synopsis Family Nursing by : Dorothy A. Whyte
Download or read book Family Nursing written by Dorothy A. Whyte and published by . This book was released on 1994 with total page 250 pages. Available in PDF, EPUB and Kindle. Book excerpt: This publication is the outcome of several years' work on families caring for a child with cystic fibrosis (CF). Four case studies provide a portrayal of the efforts of parents to come to terms with the diagnosis and its implications, and trace the crisis points in the long haul of the illness.
Book Synopsis Impact of Cystic Fibrosis on Family Functioning by : Juanita Turk
Download or read book Impact of Cystic Fibrosis on Family Functioning written by Juanita Turk and published by . This book was released on 1964 with total page 5 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Promoting Adherence to Medical Treatment in Chronic Childhood Illness by : Dennis Drotar
Download or read book Promoting Adherence to Medical Treatment in Chronic Childhood Illness written by Dennis Drotar and published by Psychology Press. This book was released on 2000-08-01 with total page 567 pages. Available in PDF, EPUB and Kindle. Book excerpt: Based on a conference that assembled experts in the field of pediatric compliance in chronic illness, this book presents the latest data and conceptual models of adherence to treatment and recommendations for new directions in the field. Interdisciplinary in approach, the contributors represent a broad array of disciplines, including anthropology, pediatrics, psychology, and sociology. Designed to address critical gaps in the understanding of adherence/compliance to treatment regiments for children with chronic health conditions, this book reviews: *conceptual models used to define adherence treatment and conduct research; *the influences on treatment adherence to chronic illness in children; *the impact of adherence to treatment on children's health and psychological development; *strategies of interventions to promote adherence and reduce noncompliance rates; *methodological and measurement problems in the assessment of treatment adherence; and *recommended research priorities for the measurement of adherence and applications of interventions and training in the treatment of pediatric chronic illness.
Book Synopsis The Impact of Cystic Fibrosis on the Family by : Kirsten E. DeLambo
Download or read book The Impact of Cystic Fibrosis on the Family written by Kirsten E. DeLambo and published by . This book was released on 2002 with total page 105 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Family Adaptation to Chronic Illness by : Joan M. Patterson
Download or read book Family Adaptation to Chronic Illness written by Joan M. Patterson and published by . This book was released on 1983 with total page 450 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis The Power of Two by : Isabel Stenzel Byrnes
Download or read book The Power of Two written by Isabel Stenzel Byrnes and published by University of Missouri Press. This book was released on 2014-10-14 with total page 361 pages. Available in PDF, EPUB and Kindle. Book excerpt: For most people, a diagnosis of cystic fibrosis means the certainty of a life ended too soon. But for Isabel Stenzel Byrnes and Anabel Stenzel, twin girls with the disease, what began as a family’s stubborn determination grew into a miracle. The tragedy of CF has been touchingly recounted in such books as Frank Deford’s Alex: The Life of a Child, but The Power of Two is the first book to portray the symbiotic relationship of twins who share this life-threatening disease through adulthood.Isabel and Anabel tell of their lifelong struggle to pursue normal lives with cystic fibrosis while grappling with the realization that they will die young. Their story reflects the physical and emotional challenges of a particularly aggressive form of CF and is an honest and gripping portrayal of the daily struggle associated with long-term hospitalization, the impact of chronic illness on marriage and family, and the importance of a support network to continuing survival. Born in 1972, seventeen years before scientists discovered the genetic mutation that causes CF, the Stenzel twins endured the daily regimen of chest percussion, frequent doctor visits, and lengthy hospitalizations. But in the face of innumerable setbacks, their deep-seated dependence on each other allowed them to survive long enough to reap the benefits of the miraculous lung transplants that marked a turning point in their lives: “We have an old life—one of growing up with chronic illness—and anew life—one of opportunities and gifts we have never imagined before.” In this memoir, they pay tribute to the people who shaped their experience. These two remarkable sisters have much to teach about the power of perseverance—and about the ultimate power of hope.
Book Synopsis A Study of the Effects on Families with a Cystic Fibrosis Child by : Gilda Silva Ludwig
Download or read book A Study of the Effects on Families with a Cystic Fibrosis Child written by Gilda Silva Ludwig and published by . This book was released on 1961 with total page 100 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Cystic Fibrosis in Primary Care by : Douglas Lewis, MD, FAAFP
Download or read book Cystic Fibrosis in Primary Care written by Douglas Lewis, MD, FAAFP and published by Springer Nature. This book was released on 2020-01-28 with total page 184 pages. Available in PDF, EPUB and Kindle. Book excerpt: Cystic fibrosis is a disease that affects the entire body. It tends to be thought of as primarily a pulmonary disease since pulmonary decline is the main factor in early mortality. Because of the multi-system nature of the disease, a better understanding of cystic fibrosis expands the family physician's understanding of subjects ranging from genetics to pulmonary function to nutrition to colon transport to hydration to electrolyte management. The primary care philosophy is unique in that it always considers how a narrow problem can affect an individual globally. Cystic Fibrosis care can often feel fractured to patients as they are sent to multiple specialists to deal with problems outside of the comfort level of a prior or current specialist. With a broad medical philosophy, care is more inclusive as clinicians can manage topics such as diabetes and preventive care without multiple referrals and additional appointments. Family physicians are well-positioned and well-qualified to competently meet many of the care needs of those with cystic fibrosis. This book is edited by a family medicine physician who has specialist level experience with the disease. It opens with a background on cystic fibrosis foundations and centers to familiarize the reader. The next chapter gives a basic overview of the disease. Each of the subsequent chapters provide a comprehensive look at how cystic fibrosis affects other areas of the body that the primary care physician should be familiar with. Major components of cystic fibrosis such as physiology, spirometry, inflammation, airway clearance, chronic infection, cystic fibrosis related diabetes and pancreatic insufficiency, among others, are thoroughly explained. Written by experts in the field, Cystic Fibrosis in Primary Care appeals to all family physicians as well as specialists, residents, medical students physician assistants and nurse practitioners alike.
Book Synopsis Chronic Illness and the Family System by : Virginia Conover
Download or read book Chronic Illness and the Family System written by Virginia Conover and published by . This book was released on 1990 with total page 182 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Cystic Fibrosis, a Plea for a Future by : Cystic Fibrosis Foundation
Download or read book Cystic Fibrosis, a Plea for a Future written by Cystic Fibrosis Foundation and published by . This book was released on 1978 with total page 90 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Cystic Fibrosis and You by : Y.G. Korneluk
Download or read book Cystic Fibrosis and You written by Y.G. Korneluk and published by McGill-Queen's Press - MQUP. This book was released on 1996-10-15 with total page 65 pages. Available in PDF, EPUB and Kindle. Book excerpt: CF and You offers sensible advice on dealing with CF clinic staff, coping with school physiotherapy, and discussing CF with friends and family. In response to concerns voiced by adolescents with CF, this revised edition tackles issues such as sexuality and personal relationships unique to people with CF. Also included is a section dealing with the transition to adult CF clinic care. This book is designed primarily for teens. However, families, clinicians and others whose lives are touched by CF will benefit from this combination of medical information and personal guidance. This new edition explains recent developments in the understanding and treatment of CF such as the discovery of the CF gene, CF carrier testing, and new respiratory and digestive therapies. Comprehensive and accessible, the volume also includes an expanded glossary of medical terms.
