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Taking Cystic Fibrosis To School
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Book Synopsis Taking Cystic Fibrosis to School by : Cynthia S. Henry
Download or read book Taking Cystic Fibrosis to School written by Cynthia S. Henry and published by Jayjo Books. This book was released on 2000 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Illustrations and simple text help children learn what cystic fibrosis is and how it is dealt with.
Book Synopsis School Problems of Children with Cystic Fibrosis by : Esther E. Simpson
Download or read book School Problems of Children with Cystic Fibrosis written by Esther E. Simpson and published by . This book was released on 1980 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Cystic Fibrosis and School by : Jane Price
Download or read book Cystic Fibrosis and School written by Jane Price and published by . This book was released on 1997 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Cystic Fibrosis by : David M. Orenstein
Download or read book Cystic Fibrosis written by David M. Orenstein and published by Lippincott Williams & Wilkins. This book was released on 2012-03-28 with total page 788 pages. Available in PDF, EPUB and Kindle. Book excerpt: This one-of-a-kind guide offers easy-to-understand explanations, advice, and management options for patients or parents of patients with cystic fibrosis. The book explains the disease process, outlines the fundamentals of diagnosing and screening, and addresses the challenges of treatment for those living with CF. As one reviewer said, this book “is the only complete answer book for everyone living with the disease. It is an indispensable resource for families of children with CF, adolescent and adult patients, and physicians, nurses, respiratory therapists, and social workers involved in the care of CF patients.”
Book Synopsis Mallory's 65 Roses by : Diane Shader Smith
Download or read book Mallory's 65 Roses written by Diane Shader Smith and published by . This book was released on 1997-01-01 with total page 24 pages. Available in PDF, EPUB and Kindle. Book excerpt: Mallory explains how she and her family cope with her cystic fibrosis, a disease of the lungs, that is sometimes more easily pronounced as "65 roses."
Book Synopsis Your Cystic Fibrosis Child at School by : Heather Harston
Download or read book Your Cystic Fibrosis Child at School written by Heather Harston and published by . This book was released on 1980 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Salt in My Soul written by Mallory Smith and published by Random House. This book was released on 2019-03-12 with total page 336 pages. Available in PDF, EPUB and Kindle. Book excerpt: The diaries of a remarkable young woman who was determined to live a meaningful and happy life despite her struggle with cystic fibrosis and a rare superbug—from age fifteen to her death at the age of twenty-five—the inspiration for the original streaming documentary Salt in My Soul “An exquisitely nuanced chronicle of a terrified but hopeful young woman whose life was beginning and ending, all at once.”—Los Angeles Times Diagnosed with cystic fibrosis at the age of three, Mallory Smith grew up to be a determined, talented young woman who inspired others even as she privately raged against her illness. Despite the daily challenges of endless medical treatments and a deep understanding that she’d never lead a normal life, Mallory was determined to “Live Happy,” a mantra she followed until her death. Mallory worked hard to make the most out of the limited time she had, graduating Phi Beta Kappa from Stanford University, becoming a cystic fibrosis advocate well known in the CF community, and embarking on a career as a professional writer. Along the way, she cultivated countless intimate friendships and ultimately found love. For more than ten years, Mallory recorded her thoughts and observations about struggles and feelings too personal to share during her life, leaving instructions for her mother to publish her work posthumously. She hoped that her writing would offer insight to those living with, or loving someone with, chronic illness. What emerges is a powerful and inspiring portrait of a brave young woman and blossoming writer who did not allow herself to be defined by disease. Her words offer comfort and hope to readers, even as she herself was facing death. Salt in My Soul is a beautifully crafted, intimate, and poignant tribute to a short life well lived—and a call for all of us to embrace our own lives as fully as possible.
Book Synopsis Defining and Managing Cystic Fibrosis by : Denise Marie Bleuher Angst
Download or read book Defining and Managing Cystic Fibrosis written by Denise Marie Bleuher Angst and published by . This book was released on 1992 with total page 414 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis School Problems of Children with Cystic Fibrosis by : Esther Eleanor Simpson
Download or read book School Problems of Children with Cystic Fibrosis written by Esther Eleanor Simpson and published by . This book was released on 1978 with total page 2 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Having Cystic Fibrosis Is A Lot Like Being A Superhero by : Kelsey M Finn
Download or read book Having Cystic Fibrosis Is A Lot Like Being A Superhero written by Kelsey M Finn and published by . This book was released on 2020-07-02 with total page 28 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book tells the story of Jack, a boy who has a genetic condition called Cystic Fibrosis, and his Cystic Fibrosis Superpowers. Cystic Fibrosis affects approximately 1 in every 2,500 people of European ancestry, and also affects people of other ancestries, but less frequently. This book is intended to serve as a way to communicate with children about Cystic Fibrosis, to embrace and foster acceptance of the human condition, and help children understand what Cystic Fibrosis means for themselves or someone they know who is affected by Cystic Fibrosis.
Download or read book Alex written by Frank Deford and published by Open Road Media. This book was released on 2015-02-24 with total page 115 pages. Available in PDF, EPUB and Kindle. Book excerpt: A father’s moving memoir of cystic fibrosis “captures a brave child’s legacy as well as the continuing fight against the genetic disease” (The New York Times). In 1971 a girl named Alex was born with cystic fibrosis, a degenerative genetic lung disease. Although health-care innovations have improved the life span of CF patients tremendously over the last four decades, the illness remains fatal. Given only two years to live by her doctors, the imaginative, excitable, and curious little girl battled through painful and frustrating physical-therapy sessions twice daily, as well as regular hospitalizations, bringing joy to the lives of everyone she touched. Despite her setbacks, brave Alex was determined to live life like a typical girl—going to school, playing with her friends, traveling with her family. Ultimately, however, she succumbed to the disease in 1980 at the age of eight. Award-winning author Frank Deford, celebrated primarily as a sportswriter, was also a budding novelist and biographer at the time of his daughter’s birth. Deford kept a journal of Alex’s courageous stand against the disease, documenting his family’s struggle to cope with and celebrate the daily fight she faced. This book is the result of that journal. Alex relives the events of those eight years: moments as heartwarming as when Alex recorded herself saying “I love you” so her brother could listen to her whenever he wanted, and as heartrending as the young girl’s tragic, dawning realization of her own very tenuous mortality, and her parents’ difficulty in trying to explain why. Though Alex is a sad story, it is also one of hope; her greatest wish was that someday a cure would be found. Deford has written a phenomenal memoir about an extraordinary little girl.
Book Synopsis Parent's Opinions of how the School Affects Their Cystic Fibrosis Child by : Nancy Lynn Skinner
Download or read book Parent's Opinions of how the School Affects Their Cystic Fibrosis Child written by Nancy Lynn Skinner and published by . This book was released on 1991 with total page 72 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Cystic Fibrosis and School written by and published by . This book was released on 2010* with total page 14 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis The Experience of School-age Children Living with Cystic Fibrosis in Alaska by : Aleatha Mary Martin
Download or read book The Experience of School-age Children Living with Cystic Fibrosis in Alaska written by Aleatha Mary Martin and published by . This book was released on 1995 with total page 132 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Cystic Fibrosis by : Stephanie Duggins Davis
Download or read book Cystic Fibrosis written by Stephanie Duggins Davis and published by Springer Nature. This book was released on 2020-05-21 with total page 525 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book provides a comprehensive overview of the multisystem disease, cystic fibrosis, for both pediatric and adult patients. Written by experts in the field, the text outlines the progressive nature of CF as well as the impact of this autosomal recessive disease on the respiratory, gastrointestinal, endocrine, rheumatologic, and renal systems, as well as the patient’s mental health. The book begins with a chapter describing the history of cystic fibrosis and how the face of this life-shortening disease has changed over the past several decades. The following chapters elucidate the pathophysiology of how cystic fibrosis impacts each organ system. Current management and therapeutics are detailed with step-by-step guidelines for clinicians. This book is unique in that it highlights the entire person, not just the respiratory system, with detailed inclusion of the patient perspectives throughout, informing practice standards and considerations. This is an ideal guide for pediatric and adult physicians who care for patients with cystic fibrosis, as well as respiratory therapists, physical therapists, nurses, nutritionists, and pharmacists who care for these patients.
Book Synopsis An Analysis of the Perceptions of School-age Children with Cystic Fibrosis by : Arlene Teresa Shannon
Download or read book An Analysis of the Perceptions of School-age Children with Cystic Fibrosis written by Arlene Teresa Shannon and published by . This book was released on 1979 with total page 256 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis The CF Warrior Project by : Andy C. Lipman
Download or read book The CF Warrior Project written by Andy C. Lipman and published by Booklogix. This book was released on 2019-05-15 with total page 216 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Andy's book will provide hope for those who so desperately need it. These stories of strength and determination are inspiration to keep fighting in our own lives." --Celine Dion "These are tales of warriors who have beaten the odds by making their dreams come true. These are stories that will give you hope. And by buying this book, you will bring us closer to a cure. That is my dream." --Lewis Black "After spending time with cystic fibrosis warriors throughout the country, I've quickly realized they are the toughest and most resilient people I have ever met. The outlook CF warriors have on life is one that everyone should strive to have." --Colton Underwood "These are the stories of CF warriors who refused to succumb to a distressful prognosis, and instead thrived through the power of belief." --Megan Fox
