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Rethinking Experiences Of Childhood Cancer A Multidisciplinary Approach To Chronic Childhood Illness
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Book Synopsis EBOOK: Rethinking Experiences of Childhood Cancer: A Multidisciplinary Approach to Chronic Childhood Illness by : Mary Dixon-Woods
Download or read book EBOOK: Rethinking Experiences of Childhood Cancer: A Multidisciplinary Approach to Chronic Childhood Illness written by Mary Dixon-Woods and published by McGraw-Hill Education (UK). This book was released on 2005-06-16 with total page 219 pages. Available in PDF, EPUB and Kindle. Book excerpt: "The experiences of the families rang true throughout. I have experienced many of these personally. ...It made me think differently about my personal experience as a parent of a child with cancer and my son's current social experiences." Macmillan Cancer Support This book offers a radical critique of existing psychosocial research on children’s experiences of cancer and proposes an alternative view informed by recent interpretive perspectives. Exploring topics from obtaining a diagnosis of childhood cancer through to sharing decision-making and communication, it reviews a wide-ranging body of research and theory on childhood, chronic illness, and cancer. The book also examines research that has focused on how parents and other family members experience childhood illness. Written by a sociologist, a psychologist and a practising paediatric oncologist, this book is unique in its approach and provides key reading across traditional disciplinary boundaries. In particular, the book highlights the emerging contribution of interpretive work to understanding chronic childhood illness and further develops the dialogue that has only recently emerged between the sociology of illness and the sociology of childhood. Rethinking Experiences of Childhood Cancer is aimed at researchers, students and practitioners in the fields of social science, childhood studies, nursing, medicine, mental health care, social work, clinical psychology and other professions allied to medicine, and will also be of interest to families who have been affected by childhood cancer.
Book Synopsis Rethinking Experiences Of Childhood Cancer: A Multidisciplinary Approach To Chronic Childhood Illness by : Dixon-Woods, Mary
Download or read book Rethinking Experiences Of Childhood Cancer: A Multidisciplinary Approach To Chronic Childhood Illness written by Dixon-Woods, Mary and published by McGraw-Hill Education (UK). This book was released on 2005-06-01 with total page 219 pages. Available in PDF, EPUB and Kindle. Book excerpt: Written by a sociologist, psychologist and practising paediatric oncologist, this book offers a fresh theoretical approach to the experience of childhood cancer. The book also discusses the impact on parents and other family members when a child is diagnosed with cancer.
Book Synopsis Young People Living With Cancer by : Grinyer, Anne
Download or read book Young People Living With Cancer written by Grinyer, Anne and published by McGraw-Hill Education (UK). This book was released on 2007-02-01 with total page 201 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book uses original data gathered from in-depth research to present an account of what it is like to be an adolescent or young adult living with cancer.
Book Synopsis Principle of Nursing in Oncology by : Françoise Charnay-Sonnek
Download or read book Principle of Nursing in Oncology written by Françoise Charnay-Sonnek and published by Springer. This book was released on 2019-05-17 with total page 452 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book provides a unique overview of oncology nursing care in a new health environment, one in which oncology nurses play an increasingly important role. In this regard, it addresses not only the biomedical aspects of new drugs but also the challenges they pose in day-to-day nursing practice. It also highlights the new skills that oncology nurses will need to develop in light of the changing care setting. Drawing on evidence-based practice in Europe and around the globe, the book offers a holistic approach to nursing for adult and pediatric patients. Written by respected professionals in the field, it provides nurses interested in oncology with clear and comprehensive information on the specific abilities required, with a focus on therapeutic education, supportive care, genetic counseling and e-health. In addition, it addresses the new role of patients as decision makers and full partners throughout their treatment cycle.
Book Synopsis Healing the World's Children by : Cynthia R. Comacchio
Download or read book Healing the World's Children written by Cynthia R. Comacchio and published by McGill-Queen's Press - MQUP. This book was released on 2008 with total page 324 pages. Available in PDF, EPUB and Kindle. Book excerpt: In 1990, the UN Convention on the Rights of the Child declared that children's "survival, protection, growth and development in good health and with proper nutrition is the essential foundation of human development." Drawing from many disciplines - history, anthropology, demography, art history, disability studies, and sociology - and across a broad geography, Healing the World's Children sheds light on the medical, political, and cultural dimensions of the efforts to preserve and protect the lives of our most vulnerable citizens.
Book Synopsis Challenges Surrounding the Education of Children with Chronic Diseases by : Gordon, Maria
Download or read book Challenges Surrounding the Education of Children with Chronic Diseases written by Gordon, Maria and published by IGI Global. This book was released on 2015-10-02 with total page 329 pages. Available in PDF, EPUB and Kindle. Book excerpt: While governing bodies have mandated that all students have the right to an education, with disabled students treated to the same rights and opportunities as non-disabled students, policymakers do not always agree on what all-inclusive education should look like. Challenges Surrounding the Education of Children with Chronic Diseases explores the needs that children with certain conditions—such as diabetes, cancer, juvenile idiopathic arthritis, and inflammatory bowel disease—might have in the classroom. Featuring coverage on a wide range of topics relating to pre-service teacher training, school administrators’ policies, and the experiences of children with chronic health conditions, this book is an essential reference source for teachers, educators, school administrators, policymakers, and anyone else concerned with inclusive educational rights for all students.
Book Synopsis Palliative and End of Life Care, An Issue of Nursing Clinics - E-Book by : Mimi Mahon
Download or read book Palliative and End of Life Care, An Issue of Nursing Clinics - E-Book written by Mimi Mahon and published by Elsevier Health Sciences. This book was released on 2010-09-28 with total page 281 pages. Available in PDF, EPUB and Kindle. Book excerpt: This issue of Nursing Clinics, Guest Edited by Mimi Mahon, features subject topics such as: Understanding Children's Involvment in Medical Decision Making; Symptom Management at End of Life; Assessing respiratory distress when the patient can’t self-report; Barriers to Palliative Care, Legislative Issues; End Stage Liver Disease: Symptoms & Practice Implications; Dying children: Creating opportunities out of a “Last Chance ; Decision making in palliative care; Discussing a family member's serious illness: children's and families' perspectives; Living with cognitive impairments in Long Term Care: Palliative Care & End of Life implications; Withdrawal of Life-Sustaining Therapy; The patient and family perspectives: Living with cancer; Palliative care concepts in the sickle cell population.
Book Synopsis Uncertain Futures by : Ignasi Clemente
Download or read book Uncertain Futures written by Ignasi Clemente and published by John Wiley & Sons. This book was released on 2015-10-12 with total page 244 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book examines children and young people’s attempts to participate in conversations about their own treatment throughout uncertain cancer trajectories, including the events leading up to diagnosis, treatment, remission, relapse, and cure or death. Clearly and compellingly written, Clemente relies on a new multi-layered method to identify six cancer communication strategies Illustrates that communication is central to how children, parents, and healthcare professionals constitute, influence, and make sense of the social worlds they inhabit—or that they want to inhabit Provides ethnographic case studies of childhood cancer patients in Spain, using children's own words Examines the challenges of how to talk to and how to encourage patients' involvement in reatment discussions In his critique of the “telling” versus “not telling” debates, Clemente argues that communication should be adjusted to the children’s own needs, and that children's own questions can indicate how much or little they want to be involved Uncertain Futures is the winner of the 15th Annual Modest Reixach Prize.
Book Synopsis Ethical and Philosophical Aspects of Nursing Children and Young People by : Gosia M. Brykczynska
Download or read book Ethical and Philosophical Aspects of Nursing Children and Young People written by Gosia M. Brykczynska and published by John Wiley & Sons. This book was released on 2011-01-19 with total page 288 pages. Available in PDF, EPUB and Kindle. Book excerpt: Nurses and healthcare professionals are constantly faced with ethical and philosophical dilemmas when working with children in everyday practice. Ethical and Philosophical Aspects of Nursing Children and Young People is a comprehensive text on the ethics and philosophy behind paediatric nursing that reflects the contemporary issues encountered while working with children and young people. The title provides a philosophical and historical analysis of the subject, looking at a review of sociological and political theories concerning the nature of childhood, and providing a critical analysis of contemporary notions about childhood. It then goes on to look at moral theories and their application to paediatric nursing practice, ethical issues when caring for children of all ages, from infancy to adolescence. It considers issues of disabled children, confidentiality, mental health issues, children's rights, and pain management. With case studies and activities throughout, this book will enable students and newly qualified nurses both to understand philosophical concepts and issues but also to articulate their own reflections and observations on these subjects. Written by children's nurses for children's nurses With contributions from internationally recognised experts in the field Reflective scenarios, further reading, extensive referencing, case studies, guided questions, and resources throughout Includes appendices on the RCPCH Guidelines on Withdrawal of Treatment, the ICN Ethical Code, the Summary of the UNCRC, and the RCPCH Guidelines for the Conduct of Ethical Research
Book Synopsis Cancer Care for Adolescents and Young Adults by : Daniel Kelly
Download or read book Cancer Care for Adolescents and Young Adults written by Daniel Kelly and published by John Wiley & Sons. This book was released on 2008-04-30 with total page 272 pages. Available in PDF, EPUB and Kindle. Book excerpt: Cancer in Adolescents and Young Adults is a practical guide to cancer care in adolescents and young adults. It considers the impact of diagnosis on individuals, and their families, as well as examining the impact on the health professionals responsible for their care. There are sections focussing on the adolescent’s experience of cancer and ongoing care needs during treatment, and on life after cancer, including rehabilitation and palliative care. • Builds on the forthcoming NICE guidelines on Supportive Cancer Care for Children & Young People, and recent Department of Health guidelines & policy initiatives • Adopts an integrated inter-professional approach • Contains evidence-based contributions from leading professionals in cancer care Cancer in Adolescents and Young Adults is an essential resource for all those involved with the provision of care and support for adolescents and young adults with cancer. About the Editors: Dr Daniel Kelly is Reader in Cancer & Palliative Care, Middlesex University, London. Dr Faith Gibson is Senior Lecturer in Children’s Nursing Research, Institute of Child Health, Great Ormond Street Hospital and King’s College London.
Book Synopsis Oxford Textbook of Palliative Care for Children by : Richard Hain
Download or read book Oxford Textbook of Palliative Care for Children written by Richard Hain and published by Oxford University Press. This book was released on 2021-03-24 with total page 535 pages. Available in PDF, EPUB and Kindle. Book excerpt: The importance of palliative care for children facing life threatening illness and their families is now widely acknowledged as an essential part of care, which should be available to all children and families, throughout the child's illness and at the end of life. The new edition of the Oxford Textbook of Palliative Care for Children brings together the most up to date information, current knowledge, evidence, and developments of clinical practice in the field. The book is structured into four sections. 'Foundations of Care' describes core issues, the foundations on which paediatric palliative care is based. 'Child and Family Care' looks at different aspects of psychological, social, and cultural care for the sick child or young person, and their family. These chapters cover the time course of the illness, around the time of death and support for the bereaved family. 'Symptom Care' focuses on the uses of medication, specific symptoms, and their management. Finally, 'Delivery of Care' examines practical approaches to care in different environments and the needs of clinicians. Two new editors join the team from Canada and South Africa, reflecting our aims to contribute towards the development of care for children across the world, and to be a resource for both experienced clinicians and those new to the field. Comprehensive in scope, exhaustive in detail, and definitive in authority, this third edition has been thoroughly updated to cover new practices, current epidemiological data, and the evolving models that support the delivery of palliative medicine to children. This includes two new chapters, looking in detail at 'Decision Making' and 'Perinatal Care', and a new section highlighting the emerging importance of 'Palliative Care for Children in Humanitarian Crises'. This book is an essential resource for anyone who works with children worldwide.
Book Synopsis Children and the Dark Side of Human Experience by : James Garbarino
Download or read book Children and the Dark Side of Human Experience written by James Garbarino and published by Springer Science & Business Media. This book was released on 2008-03-12 with total page 157 pages. Available in PDF, EPUB and Kindle. Book excerpt: Synthesizing insights from psychology and philosophy with his own wide-ranging experiences around the world, Dr. James Garbarino takes readers on a personalized journey into the dark side of human experience as it is lived by children. In these highly readable pages, he intertwines a discussion of children’s material and spiritual needs with a detailed examination of the clinical knowledge and experiential wisdom required to understand and meet complex developmental needs. Fusing anecdotal observations, empirical evidence, and an ecological perspective, this book is for anyone who takes an interest in the well-being and future of the world’s children.
Book Synopsis Childhood Cancer Survivors by : Nancy Keene
Download or read book Childhood Cancer Survivors written by Nancy Keene and published by Childhood Cancer Guides. This book was released on 2014-03-01 with total page 481 pages. Available in PDF, EPUB and Kindle. Book excerpt: More than 325,000 children, teens, and adults in the United States are survivors of childhood cancer. The surgery, radiation, chemotherapy, and stem cell transplants used to cure children can affect growing bodies and developing minds. If survivors know of these potential problems, they can take steps to identify, cope with, or treat them early if they do develop. The third edition of Childhood Cancer Survivors charts the territory for survivors by providing state-of-the-art information about: " Medical late effects from treatment " Emotional aspects of surviving cancer " Schedules for follow-up care " Challenges in the heath-care system " Lifestyle choices to maximize health " Discrimination in employment or insurance Woven throughout the text are stories from more than 100 survivors and parents. Authors Keene, Hobbie, and Ruccione are experts in the field of childhood cancer. Keene is the mother of a survivor of childhood leukemia and the author of several books including Childhood Leukemia, Childhood Cancer, Educating the Child with Cancer, and Chemo, Craziness & Comfort. Hobbie is Associate Director of the Cancer Survivorship Program at Children's Hospital of Philadelphia. Ruccione is Co-Director of the HOPE (Hematology-Oncology Psychosocial and Education) Program in the Children's Center for Cancer and Blood Diseases at Children's Hospital Los Angeles.
Book Synopsis Paediatric Haematology and Oncology by : Simon Bailey
Download or read book Paediatric Haematology and Oncology written by Simon Bailey and published by Oxford University Press, USA. This book was released on 2010 with total page 624 pages. Available in PDF, EPUB and Kindle. Book excerpt: While survival rates for children with cancer have increased in recent times, the increased use of more aggressive therapies has brought with it significant adverse effects. Therefore, the aim of pediatric oncologists has become to achieve "cure at least cost" by the appropriate reduction of the intensity and/or duration of treatment in carefully identified good prognosis patients. By comprehensively covering these issues, this handbook aims to provide residents in pediatric hematology and oncology, as well as staff in related medical or other healthcare disciplines, with an easily accessible source of information about the basic principles of childhood cancer and leukemia, as well as much of the more detailed specialist knowledge required to care for children with these conditions. Divided into sections to allow quick access to the necessary information, the handbook covers general principles of diagnosis and treatment, short and long term care, and oncological emergencies before moving on to chapters on specific disease. Normal values and useful websites are also included for reference.
Book Synopsis Rethinking Causality, Complexity and Evidence for the Unique Patient by : Rani Lill Anjum
Download or read book Rethinking Causality, Complexity and Evidence for the Unique Patient written by Rani Lill Anjum and published by Springer Nature. This book was released on 2020-06-02 with total page 252 pages. Available in PDF, EPUB and Kindle. Book excerpt: This open access book is a unique resource for health professionals who are interested in understanding the philosophical foundations of their daily practice. It provides tools for untangling the motivations and rationality behind the way medicine and healthcare is studied, evaluated and practiced. In particular, it illustrates the impact that thinking about causation, complexity and evidence has on the clinical encounter. The book shows how medicine is grounded in philosophical assumptions that could at least be challenged. By engaging with ideas that have shaped the medical profession, clinicians are empowered to actively take part in setting the premises for their own practice and knowledge development. Written in an engaging and accessible style, with contributions from experienced clinicians, this book presents a new philosophical framework that takes causal complexity, individual variation and medical uniqueness as default expectations for health and illness.
Author :National Academies of Sciences, Engineering, and Medicine Publisher :National Academies Press ISBN 13 :0309388570 Total Pages :525 pages Book Rating :4.3/5 (93 download)
Book Synopsis Parenting Matters by : National Academies of Sciences, Engineering, and Medicine
Download or read book Parenting Matters written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2016-11-21 with total page 525 pages. Available in PDF, EPUB and Kindle. Book excerpt: Decades of research have demonstrated that the parent-child dyad and the environment of the familyâ€"which includes all primary caregiversâ€"are at the foundation of children's well- being and healthy development. From birth, children are learning and rely on parents and the other caregivers in their lives to protect and care for them. The impact of parents may never be greater than during the earliest years of life, when a child's brain is rapidly developing and when nearly all of her or his experiences are created and shaped by parents and the family environment. Parents help children build and refine their knowledge and skills, charting a trajectory for their health and well-being during childhood and beyond. The experience of parenting also impacts parents themselves. For instance, parenting can enrich and give focus to parents' lives; generate stress or calm; and create any number of emotions, including feelings of happiness, sadness, fulfillment, and anger. Parenting of young children today takes place in the context of significant ongoing developments. These include: a rapidly growing body of science on early childhood, increases in funding for programs and services for families, changing demographics of the U.S. population, and greater diversity of family structure. Additionally, parenting is increasingly being shaped by technology and increased access to information about parenting. Parenting Matters identifies parenting knowledge, attitudes, and practices associated with positive developmental outcomes in children ages 0-8; universal/preventive and targeted strategies used in a variety of settings that have been effective with parents of young children and that support the identified knowledge, attitudes, and practices; and barriers to and facilitators for parents' use of practices that lead to healthy child outcomes as well as their participation in effective programs and services. This report makes recommendations directed at an array of stakeholders, for promoting the wide-scale adoption of effective programs and services for parents and on areas that warrant further research to inform policy and practice. It is meant to serve as a roadmap for the future of parenting policy, research, and practice in the United States.
Author :National Academies of Sciences, Engineering, and Medicine Publisher :National Academies Press ISBN 13 :0309493382 Total Pages :621 pages Book Rating :4.3/5 (94 download)
Book Synopsis Vibrant and Healthy Kids by : National Academies of Sciences, Engineering, and Medicine
Download or read book Vibrant and Healthy Kids written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2019-12-27 with total page 621 pages. Available in PDF, EPUB and Kindle. Book excerpt: Children are the foundation of the United States, and supporting them is a key component of building a successful future. However, millions of children face health inequities that compromise their development, well-being, and long-term outcomes, despite substantial scientific evidence about how those adversities contribute to poor health. Advancements in neurobiological and socio-behavioral science show that critical biological systems develop in the prenatal through early childhood periods, and neurobiological development is extremely responsive to environmental influences during these stages. Consequently, social, economic, cultural, and environmental factors significantly affect a child's health ecosystem and ability to thrive throughout adulthood. Vibrant and Healthy Kids: Aligning Science, Practice, and Policy to Advance Health Equity builds upon and updates research from Communities in Action: Pathways to Health Equity (2017) and From Neurons to Neighborhoods: The Science of Early Childhood Development (2000). This report provides a brief overview of stressors that affect childhood development and health, a framework for applying current brain and development science to the real world, a roadmap for implementing tailored interventions, and recommendations about improving systems to better align with our understanding of the significant impact of health equity.
