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Public Health And Health Research Data Availability Needs And Challenges
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Book Synopsis Public health and health research data: Availability, needs and challenges by : Carla Sofia e Sá Farinha
Download or read book Public health and health research data: Availability, needs and challenges written by Carla Sofia e Sá Farinha and published by Frontiers Media SA. This book was released on 2024-01-03 with total page 180 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Beyond the HIPAA Privacy Rule by : Institute of Medicine
Download or read book Beyond the HIPAA Privacy Rule written by Institute of Medicine and published by National Academies Press. This book was released on 2009-03-24 with total page 334 pages. Available in PDF, EPUB and Kindle. Book excerpt: In the realm of health care, privacy protections are needed to preserve patients' dignity and prevent possible harms. Ten years ago, to address these concerns as well as set guidelines for ethical health research, Congress called for a set of federal standards now known as the HIPAA Privacy Rule. In its 2009 report, Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research, the Institute of Medicine's Committee on Health Research and the Privacy of Health Information concludes that the HIPAA Privacy Rule does not protect privacy as well as it should, and that it impedes important health research.
Book Synopsis Enabling Rapid and Sustainable Public Health Research During Disasters by : Institute of Medicine
Download or read book Enabling Rapid and Sustainable Public Health Research During Disasters written by Institute of Medicine and published by National Academies Press. This book was released on 2015-04-06 with total page 190 pages. Available in PDF, EPUB and Kindle. Book excerpt: Over the past decade, preparedness and response capacities of government agencies, hospitals and clinics, public health agencies, and academic researchers in the United States and abroad have been challenged by a succession of public health emergencies, ranging from radiological threats to pandemics to earthquakes. Through After Action Reports, each of these emergencies has yielded important information and lessons learned that can inform future disaster response and recovery efforts. However, important information that needs to be collected during and immediately following these emergencies is often missed because of barriers and obstacles to gathering such data, such as varying institutional review board restrictions in different states, no sustainable funding network for this type of work, uncertainty on who should be involved in research response, and a lack of knowledge around how best to integrate research into response and recovery frameworks. Taking action to enable medical and public health research during disasters was the focus of a workshop held on June 12 and 13, 2014, coordinated and supported jointly by the Institute of Medicine Forum on Medical and Public Health Preparedness for Catastrophic Events, National Institute of Environmental Health Sciences, the National Library of Medicine, the U.S. Department of Health and Human Services' Office of the Assistant Secretary for Preparedness and Response, and the Centers for Disease Control and Prevention. Invited speakers and participants from federal, state, and local government, academia, and community and worker organizations came together to discuss how to integrate research into existing response structures; identify critical research needs and priorities; identify obstacles and barriers to research; discuss structures and strategies needed for deployment of a research study; share ideas, innovations, and technologies to support research; and explore data collection tools and data-sharing mechanisms for both rapid and longitudinal research. Enabling Rapid and Sustainable Public Health Research During Disasters summarizes the presentations and discussion of the workshop.
Author :National Academies of Sciences, Engineering, and Medicine Publisher :National Academies Press ISBN 13 :0309370884 Total Pages :115 pages Book Rating :4.3/5 (93 download)
Book Synopsis Principles and Obstacles for Sharing Data from Environmental Health Research by : National Academies of Sciences, Engineering, and Medicine
Download or read book Principles and Obstacles for Sharing Data from Environmental Health Research written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2016-04-29 with total page 115 pages. Available in PDF, EPUB and Kindle. Book excerpt: On March 19, 2014, the National Academies of Sciences, Engineering, and Medicine held a workshop on the topic of the sharing of data from environmental health research. Experts in the field of environmental health agree that there are benefits to sharing research data, but questions remain regarding how to effectively make these data available. The sharing of data derived from human subjects-making them both transparent and accessible to others-raises a host of ethical, scientific, and process questions that are not always present in other areas of science, such as physics, geology, or chemistry. The workshop participants explored key concerns, principles, and obstacles to the responsible sharing of data used in support of environmental health research and policy making while focusing on protecting the privacy of human subjects and addressing the concerns of the research community. Principles and Obstacles for Sharing Data from Environmental Health Research summarizes the presentations and discussions from the workshop.
Author :National Academies of Sciences, Engineering, and Medicine Publisher :National Academies Press ISBN 13 :0309493463 Total Pages :195 pages Book Rating :4.3/5 (94 download)
Book Synopsis Integrating Social Care into the Delivery of Health Care by : National Academies of Sciences, Engineering, and Medicine
Download or read book Integrating Social Care into the Delivery of Health Care written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2019-12-30 with total page 195 pages. Available in PDF, EPUB and Kindle. Book excerpt: Integrating Social Care into the Delivery of Health Care: Moving Upstream to Improve the Nation's Health was released in September 2019, before the World Health Organization declared COVID-19 a global pandemic in March 2020. Improving social conditions remains critical to improving health outcomes, and integrating social care into health care delivery is more relevant than ever in the context of the pandemic and increased strains placed on the U.S. health care system. The report and its related products ultimately aim to help improve health and health equity, during COVID-19 and beyond. The consistent and compelling evidence on how social determinants shape health has led to a growing recognition throughout the health care sector that improving health and health equity is likely to depend â€" at least in part â€" on mitigating adverse social determinants. This recognition has been bolstered by a shift in the health care sector towards value-based payment, which incentivizes improved health outcomes for persons and populations rather than service delivery alone. The combined result of these changes has been a growing emphasis on health care systems addressing patients' social risk factors and social needs with the aim of improving health outcomes. This may involve health care systems linking individual patients with government and community social services, but important questions need to be answered about when and how health care systems should integrate social care into their practices and what kinds of infrastructure are required to facilitate such activities. Integrating Social Care into the Delivery of Health Care: Moving Upstream to Improve the Nation's Health examines the potential for integrating services addressing social needs and the social determinants of health into the delivery of health care to achieve better health outcomes. This report assesses approaches to social care integration currently being taken by health care providers and systems, and new or emerging approaches and opportunities; current roles in such integration by different disciplines and organizations, and new or emerging roles and types of providers; and current and emerging efforts to design health care systems to improve the nation's health and reduce health inequities.
Author :National Academies of Sciences, Engineering, and Medicine Publisher :National Academies Press ISBN 13 :0309444209 Total Pages :103 pages Book Rating :4.3/5 (94 download)
Book Synopsis Advancing the Science to Improve Population Health by : National Academies of Sciences, Engineering, and Medicine
Download or read book Advancing the Science to Improve Population Health written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2017-07-13 with total page 103 pages. Available in PDF, EPUB and Kindle. Book excerpt: In September 2015, the National Academies of Sciences, Engineering, and Medicine hosted a workshop to explore the basic and translational research needs for population health science, and to discuss specific research priorities and actions to foster population health improvement. The workshop was designed to provide frameworks for understanding population health research and its role in shaping and having an effect on population health, identify individual and institutional facilitators and challenges regarding the production, communication, and use of research for population health improvement, and identify key areas for future research critical to the advancement of population health improvement. This publication summarizes the presentations and discussions from the workshop.
Author :United States. Alcohol, Drug Abuse, and Mental Health Administration Publisher : ISBN 13 : Total Pages :104 pages Book Rating :4.3/5 (121 download)
Book Synopsis Epidemiology, Health Systems Research, and Statistics/data Systems by : United States. Alcohol, Drug Abuse, and Mental Health Administration
Download or read book Epidemiology, Health Systems Research, and Statistics/data Systems written by United States. Alcohol, Drug Abuse, and Mental Health Administration and published by . This book was released on 1978 with total page 104 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Hospitals’ Benefit to the Community: Research, Policy and Evaluation by : Connie J. Evashwick
Download or read book Hospitals’ Benefit to the Community: Research, Policy and Evaluation written by Connie J. Evashwick and published by Frontiers Media SA. This book was released on 2020-10-08 with total page 88 pages. Available in PDF, EPUB and Kindle. Book excerpt: This eBook is a collection of articles from a Frontiers Research Topic. Frontiers Research Topics are very popular trademarks of the Frontiers Journals Series: they are collections of at least ten articles, all centered on a particular subject. With their unique mix of varied contributions from Original Research to Review Articles, Frontiers Research Topics unify the most influential researchers, the latest key findings and historical advances in a hot research area! Find out more on how to host your own Frontiers Research Topic or contribute to one as an author by contacting the Frontiers Editorial Office: frontiersin.org/about/contact.
Book Synopsis Precision Public Health by : Tarun Weeramanthri
Download or read book Precision Public Health written by Tarun Weeramanthri and published by Frontiers Media SA. This book was released on 2018-06-25 with total page 149 pages. Available in PDF, EPUB and Kindle. Book excerpt: Precision Public Health is a new and rapidly evolving field, that examines the application of new technologies to public health policy and practice. It draws on a broad range of disciplines including genomics, spatial data, data linkage, epidemiology, health informatics, big data, predictive analytics and communications. The hope is that these new technologies will strengthen preventive health, improve access to health care, and reach disadvantaged populations in all areas of the world. But what are the downsides and what are the risks, and how can we ensure the benefits flow to those population groups most in need, rather than simply to those individuals who can afford to pay? This is the first collection of theoretical frameworks, analyses of empirical data, and case studies to be assembled on this topic, published to stimulate debate and promote collaborative work.
Book Synopsis Healthcare Information Management Systems by : Joan M. Kiel
Download or read book Healthcare Information Management Systems written by Joan M. Kiel and published by Springer Nature. This book was released on 2022-11-24 with total page 490 pages. Available in PDF, EPUB and Kindle. Book excerpt: This new edition of the classic textbook provides bold and honest descriptions of the current and evolving state of US healthcare information technology. Emerging technologies and novel practice and business models are changing the delivery and management of healthcare, as innovation and adoption meet new needs and challenges, such as those posed by the recent COVID-19 pandemic. Many facets of these are presented in this volume: • The increasing mutual impact of information technology and healthcare with respect to costs, workforce training and leadership • The changing state of healthcare IT privacy, security, interoperability and data sharing through health information exchange • The rise and growing importance of telehealth/telemedicine in the era of COVID-19 • Innovations and trends in the development and deployment of health IT in public health, disease modeling and tracking, and clinical/population health research • Current work in health IT as it is used in patient safety, chronic disease management, critical care, rehabilitation/long-term/home-based patient care and care coordination • “Brave new world” visions of healthcare and health IT, with forward- looking considerations of the impact of artificial intelligence, machine learning on healthcare equity and policy Building on the success of previous editions, this 5th edition of Healthcare Information Management Systems: Cases, Strategies, and Solutions provides healthcare professionals insights to new frontiers and to the directions being taken in the technical, organizational, business and management aspects of information technology in the ongoing quest to optimize healthcare quality and cost, and to improve universal health at all levels.
Author :National Academies of Sciences, Engineering, and Medicine Publisher :National Academies Press ISBN 13 :0309452961 Total Pages :583 pages Book Rating :4.3/5 (94 download)
Book Synopsis Communities in Action by : National Academies of Sciences, Engineering, and Medicine
Download or read book Communities in Action written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2017-04-27 with total page 583 pages. Available in PDF, EPUB and Kindle. Book excerpt: In the United States, some populations suffer from far greater disparities in health than others. Those disparities are caused not only by fundamental differences in health status across segments of the population, but also because of inequities in factors that impact health status, so-called determinants of health. Only part of an individual's health status depends on his or her behavior and choice; community-wide problems like poverty, unemployment, poor education, inadequate housing, poor public transportation, interpersonal violence, and decaying neighborhoods also contribute to health inequities, as well as the historic and ongoing interplay of structures, policies, and norms that shape lives. When these factors are not optimal in a community, it does not mean they are intractable: such inequities can be mitigated by social policies that can shape health in powerful ways. Communities in Action: Pathways to Health Equity seeks to delineate the causes of and the solutions to health inequities in the United States. This report focuses on what communities can do to promote health equity, what actions are needed by the many and varied stakeholders that are part of communities or support them, as well as the root causes and structural barriers that need to be overcome.
Book Synopsis Oxford Textbook of Global Public Health by : Roger Detels
Download or read book Oxford Textbook of Global Public Health written by Roger Detels and published by Oxford University Press. This book was released on 2022 with total page 1777 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Public health is concerned with the process of mobilizing local, state/provincial, national, and international resources to assure the conditions in which all people can be healthy (Detels and Breslow 2002). To successfully implement this process and to make health for all achievable, public health must perform the functions listed in Box 1.1.1"--
Author :Agency for Healthcare Research and Quality/AHRQ Publisher :Government Printing Office ISBN 13 :1587634333 Total Pages :396 pages Book Rating :4.5/5 (876 download)
Book Synopsis Registries for Evaluating Patient Outcomes by : Agency for Healthcare Research and Quality/AHRQ
Download or read book Registries for Evaluating Patient Outcomes written by Agency for Healthcare Research and Quality/AHRQ and published by Government Printing Office. This book was released on 2014-04-01 with total page 396 pages. Available in PDF, EPUB and Kindle. Book excerpt: This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. For the purposes of this guide, a patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes. A registry database is a file (or files) derived from the registry. Although registries can serve many purposes, this guide focuses on registries created for one or more of the following purposes: to describe the natural history of disease, to determine clinical effectiveness or cost-effectiveness of health care products and services, to measure or monitor safety and harm, and/or to measure quality of care. Registries are classified according to how their populations are defined. For example, product registries include patients who have been exposed to biopharmaceutical products or medical devices. Health services registries consist of patients who have had a common procedure, clinical encounter, or hospitalization. Disease or condition registries are defined by patients having the same diagnosis, such as cystic fibrosis or heart failure. The User’s Guide was created by researchers affiliated with AHRQ’s Effective Health Care Program, particularly those who participated in AHRQ’s DEcIDE (Developing Evidence to Inform Decisions About Effectiveness) program. Chapters were subject to multiple internal and external independent reviews.
Book Synopsis Eliminating Health Disparities by : National Research Council
Download or read book Eliminating Health Disparities written by National Research Council and published by National Academies Press. This book was released on 2004-08-09 with total page 310 pages. Available in PDF, EPUB and Kindle. Book excerpt: Disparities in health and health care across racial, ethnic, and socioeconomic backgrounds in the United States are well documented. The reasons for these disparities are, however, not well understood. Current data available on race, ethnicity, SEP, and accumulation and language use are severely limited. The report examines data collection and reporting systems relating to the collection of data on race, ethnicity, and socioeconomic position and offers recommendations.
Book Synopsis Essentials of Public Health Research Methods by : Richard A. Crosby
Download or read book Essentials of Public Health Research Methods written by Richard A. Crosby and published by Jones & Bartlett Learning. This book was released on 2020-03-16 with total page 268 pages. Available in PDF, EPUB and Kindle. Book excerpt: Part of the Essential Public Health Series, Essentials of Public Health Research Methods is specifically written for undergraduate students studying public health who want to fully understand the range of research methods as applied to public health. Using the circular model of public health research as an overarching framework, Essentials of Public Health Research Methods provides a clear, time-tested methodology that leads students step-by-step through the research process -- from framing the questions, identifying the study design and choosing methodology to collecting and analyzing data, and disseminating research findings. By following this process, students learn about various facets of public health, while also learning how to select and apply various research methodologies.
Book Synopsis Prioritizing Global Neurosurgery in the Focus of Global Public Health: The Ethical, Financial and Clinical Necessities by : Ahmed Negida
Download or read book Prioritizing Global Neurosurgery in the Focus of Global Public Health: The Ethical, Financial and Clinical Necessities written by Ahmed Negida and published by Frontiers Media SA. This book was released on 2022-05-03 with total page 167 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Author :National Academies of Sciences, Engineering, and Medicine Publisher :National Academies Press ISBN 13 :0309378125 Total Pages :102 pages Book Rating :4.3/5 (93 download)
Book Synopsis Sharing Research Data to Improve Public Health in Africa by : National Academies of Sciences, Engineering, and Medicine
Download or read book Sharing Research Data to Improve Public Health in Africa written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2015-09-18 with total page 102 pages. Available in PDF, EPUB and Kindle. Book excerpt: Sharing research data on public health issues can promote expanded scientific inquiry and has the potential to advance improvements in public health. Although sharing data is the norm in some research fields, sharing of data in public health is not as firmly established. In March 2015, the National Research Council organized an international conference in Stellenbosch, South Africa, to explore the benefits of and barriers to sharing research data within the African context. The workshop brought together public health researchers and epidemiologists primarily from the African continent, along with selected international experts, to talk about the benefits and challenges of sharing data to improve public health, and to discuss potential actions to guide future work related to public health research data sharing. Sharing Research Data to Improve Public Health in Africa summarizes the presentations and discussions from this workshop.