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My Life With Sickle Cell
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Book Synopsis Living with Sickle Cell Disease by : Judy Gray Johnson
Download or read book Living with Sickle Cell Disease written by Judy Gray Johnson and published by . This book was released on 2012-05-01 with total page 146 pages. Available in PDF, EPUB and Kindle. Book excerpt: Judy Gray was four when the pain first struck. As mysterious as it was excruciating, Judy's anguish confounded the local doctor, who advised her mother to apply liniment. It was not until Judy was a teenager that another doctor informed her aunt of the real cause of Judy's agony - something called sickle cell anemia. The social mores of that time, however, dictated that adults discussed nothing of substance with children. So Judy learned little about her ailment other than it could cause her to die. A frightened Judy simply put sickle cell disease out of her mind and suffered in silence as she went on with her life. Readers will follow Judy's journey through college, a teaching career, a short-lived marriage, and the raising of a daughter while enduring severe pain episodes. All the while, exhaustion was her constant companion. Living with Sickle Cell Disease: The Struggle to Survive is a story of Judy Gray Johnson's perseverance in the face of living with a little-understood chronic illness.
Book Synopsis My Life with Sickle Cell by : Daphne Wright
Download or read book My Life with Sickle Cell written by Daphne Wright and published by Xlibris. This book was released on 2008-09 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Sickle Cell Pain by : Samir K. Ballas
Download or read book Sickle Cell Pain written by Samir K. Ballas and published by Lippincott Williams & Wilkins. This book was released on 2015-06-01 with total page 1004 pages. Available in PDF, EPUB and Kindle. Book excerpt: Sickle Cell Pain is a panoramic, in-depth exploration of every scientific, human, and social dimension of this cruel disease. This comprehensive, definitive work is unique in that it is the only book devoted to sickle cell pain, as opposed to general aspects of the disease. The 752-page book links sickle cell pain to basic, clinical, and translational research, addressing various aspects of sickle pain from molecular biology to the psychosocial aspects of the disease. Supplemented with patient narratives, case studies, and visual art, Sickle Cell Pain’s scientific rigor extends through its discussion of analgesic pharmacology, including abuse-deterrent formulations. The book also addresses in great detail inequities in access to care, stereotyping and stigmatization of patients, the implications of rapidly evolving models of care, and recent legislation and litigation and their consequences.
Book Synopsis My Life as a Sickle Cell Warrior by : Patricia Maley
Download or read book My Life as a Sickle Cell Warrior written by Patricia Maley and published by Xlibris Corporation. This book was released on 2016-08-19 with total page 143 pages. Available in PDF, EPUB and Kindle. Book excerpt: Walk a mile in the shoes of a sickle-cell warrior, one who hoped to fulfill her calling in this world. To blend in like all the normal people in the world. Almost everything she did was through survival mode; at work, at home, in school and all in all within the community. You will notice how this blood borne disease knocks her down and even makes her vulnerable numerous times as she has a brush with death. But only courage, determination and encouragement have helped her accomplish so much successfully.
Book Synopsis Surviving Sickle Cell by : Kalysia Johnson
Download or read book Surviving Sickle Cell written by Kalysia Johnson and published by AuthorHouse. This book was released on 2020-10-14 with total page 126 pages. Available in PDF, EPUB and Kindle. Book excerpt: Sickle Cell Anemia is a horrible disease to an outsider looking in. However, to me, it is no different than any other life-threatening disease! The only difference is Sickle Cell Anemia does not get the much-needed recognition it truly deserves. People know little or nothing about the disease because it is not seen as important like other well-known diseases are. I personally have an issue with that problem because I have Sickle Cell Anemia, and I have always been a lifelong advocate for it! Sickle Cell Anemia has affected me as well as many of my family members. There are countless other people in the world who also suffer from Sickle Cell Anemia. I decided to write my personal story because living with this disease has been quite a challenging journey for me, from my childhood until my middle-aged years. I have had both some good days and some bad ones, but God has kept me. So, I won’t complain! I feel as if I’ve been on an emotional roller coaster that has taken me on some highs and lows. It seems like I have been on this ride a million times over, and it simply will not stop. Despite experiencing some periodic turbulence, I have still managed to have some great times on this roller coaster ride! Therefore, I can honestly say, “It’s okay! I’m going to ride this ‘til the wheels fall off.” Plus, I know God will never, ever give me or anyone else more than we can handle! I have also learned how to weather the storms over the years. Early on, I lived my life worried every day because I was told that I was going to die at the age of 17. Accordingly, I lived with that expectation until I surpassed that deadline. Ever since then, I have been living my life without the constant fear of dying at such a tender age. Life is precious, and I live each day to the fullest! Sickle Cell Anemia is only a part of me; it is not the total sum of who I am!
Book Synopsis Living with and Surviving Sickle Cell Disease by : Juanita McClain
Download or read book Living with and Surviving Sickle Cell Disease written by Juanita McClain and published by Xlibris Corporation. This book was released on 2017-07-24 with total page 30 pages. Available in PDF, EPUB and Kindle. Book excerpt: Living with and surviving Sickle cell disease is an autobiography written about the life of a girl who fights to survive a chronic illness that she was diagnosed with at birth. She lives her life in fear of dying from this horrific disease. Instead of giving up and letting the disease conquer her she chooses to take a stand and fight instead. She uses her experiences as motivation to write about what she has been through and inspire the lives of many people. The book offers many miraculous stories and different scenarios of ups and downs in her life. The book is very informational, educational, moving, and inspirational to anyone who is going through some of the same experiences and even those who are not. The book will no doubt leave a lasting impression about the author.
Book Synopsis Sickle Cell Disease and My Life Struggles by : Carolyn Johnson
Download or read book Sickle Cell Disease and My Life Struggles written by Carolyn Johnson and published by . This book was released on 2015-07-07 with total page 78 pages. Available in PDF, EPUB and Kindle. Book excerpt: My heart felt like it was about to explode from the pain. As the nurse quickly left the room, I then became more irate. I began beating the walls and crying "Please, please, someone help me!" At this time, someone came and closed the door to my room and by doing that made me more irate. I began to scream so loud I thought I would spit my vocals out.
Book Synopsis Living Well With Sickle Cell Anemia by : Ebun Ekunwe
Download or read book Living Well With Sickle Cell Anemia written by Ebun Ekunwe and published by . This book was released on 2018-03-04 with total page 216 pages. Available in PDF, EPUB and Kindle. Book excerpt: To look at me, you cannot tell that I was born with sickle cell anemia. At 70 years of age, I am living healthy and pain-free in spite of having grown up with severe debilitation.What is my secret? There is a body of scientific knowledge on how nutrition impacts our genetic code. With my insight as a medical doctor, I have discovered the secret of living well with hereditary diseases, with special reference to sickle cell disorders. In the past decade, I have studied and practiced to perfect this strategy. "Living Well With Sickle Cell Anemia: One Doctor's Story" is a description of how you too can perfect it to enhance your health. Soon after you get your hands on this book, the insights contained in it will ensure that you too start to live healthy and pain-free. In the book, you get the advantage of over a decade's worth of study and practice. Before too long, you (or your loved one, if you are also getting them a copy) will almost forget that you have sickle cell disease.When asked how you are coping with sickle cell anemia, your response will be "What sickle cell?" Enjoy your life!I am enjoying mine, sickle cell notwithstanding.
Book Synopsis Sickle Cell Natural Healing by : Tamika Moseley
Download or read book Sickle Cell Natural Healing written by Tamika Moseley and published by AuthorHouse. This book was released on 2013-09-26 with total page 89 pages. Available in PDF, EPUB and Kindle. Book excerpt: After spending every three months of her newborn's life in the hospital managing his sickle cell disease, Tamika Moseley knew she had to change what she was doing or the hospital would be her second home. In this deeply personal book, Tamika shares her story of the difficult journey she took to find natural ways to treat her son's debilitating disease. Three years since she started using herbs to minimize his sickle cell crises, her son is living a normal, healthy and pain-free life. Whether you have sickle cell disease or the trait, this book will show you what your body needs and how to treat your symptoms so that pain is no longer a part of your vocabulary. As Tamika likes to say, "Knowledge is power!" Sickle Cell Natural Healing: A Mother's Journey gives you the benefit of the wisdom one fearless and determined mother collected so that others suffering with this disease can thrive.
Download or read book Alexia's World written by Alexia Tennent and published by Tennflex Wellness. This book was released on 2019-11-10 with total page 44 pages. Available in PDF, EPUB and Kindle. Book excerpt: Alexia's World is about a little girl living with sickle cell disease. She is passionate and full of life. While she is aware of her limitations, she places no limits on herself. She is funny, creative, energetic, bold, authentic, kind and compassionate. Her mom, who also has the disease, is her hero and best friend. Together they form a formidable team. They focus on wellness to control the symptoms of the disease. Alexia and her mom also help other children living with the disease to thrive despite the disease. The book chronicles her journey living with sickle cell disease. She speaks about the ups and downs of her life, including the struggles her family faces navigating the healthcare system and the joy of finding what has helped to improve her health-related quality of life. Alexia now lives relatively symptom free.
Book Synopsis My Life with Sickle Cell Anemia by : Tysheba Randall
Download or read book My Life with Sickle Cell Anemia written by Tysheba Randall and published by . This book was released on 2004 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis A Parent's Guide to Managing Sickle Cell Disease by : Lola Oni
Download or read book A Parent's Guide to Managing Sickle Cell Disease written by Lola Oni and published by . This book was released on 2021 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis The Monster Within Me by : Juanita McClain
Download or read book The Monster Within Me written by Juanita McClain and published by Xlibris Corporation. This book was released on 2018-02-28 with total page 23 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Monster Within Me is about a child who is born with a genetic blood disorder called sickle cell disease. She fears the disease because of the pain and other effects it causes her. And even though this monster will always live inside of her, she doesnt let it stop her from living a fulfilling life.
Book Synopsis Iron Chelation Therapy by : Chaim Hershko
Download or read book Iron Chelation Therapy written by Chaim Hershko and published by Springer Science & Business Media. This book was released on 2012-12-06 with total page 275 pages. Available in PDF, EPUB and Kindle. Book excerpt: Within the last few years, iron research has yielded exciting new insights into the under standing of normal iron homeostasis. However, normal iron physiology offers little protec tion from the toxic effects of pathological iron accumulation, because nature did not equip us with effective mechanisms of iron excretion. Excess iron may be effectively removed by phlebotomy in hereditary hemochromatosis, but this method cannot be applied to chronic anemias associated with iron overload. In these diseases, iron chelating therapy is the only method available for preventing early death caused mainly by myocardial and hepatic iron toxicity. Iron chelating therapy has changed the quality of life and life expectancy of thalassemic patients. However, the high cost and rigorous requirements of deferoxamine therapy, and the significant toxicity of deferiprone underline the need for the continued development of new and improved orally effective iron chelators. Such development, and the evolution of improved strategies of iron chelating therapy require better understanding of the pathophysiology of iron toxicity and the mechanism of action of iron chelating drugs. The timeliness of the present volume is underlined by several significant develop ments in recent years. New insights have been gained into the molecular basis of aberrant iron handling in hereditary disorders and the pathophysiology of iron overload (Chapters 1-5).
Book Synopsis Sickle Cell Disease in Clinical Practice by : Jo Howard
Download or read book Sickle Cell Disease in Clinical Practice written by Jo Howard and published by Springer. This book was released on 2015-02-12 with total page 300 pages. Available in PDF, EPUB and Kindle. Book excerpt: Sickle Cell Disease is the most common genetic disease world wide and in the UK. It has marked geographical variation in its distribution in the UK, with a concentration in London and other major conurbations (Birmingham and Manchester). In these areas, specialist centres have become established offering expert, up to date care for both inpatients and out patients with Sickle Cell Disease. Although patient numbers are increasing outside these areas, the expertise of health professionals can be patchy. This book aims to provide a user friendly, accessible resource for areas with smaller numbers of patients, to allow them to provide equitable care with the larger well established centres. Sickle Cell Disease can be associated with acute life threatening complications, when clear, easily available advice is needed, and with chronic long term complications which may need liaison with other health professionals. Clear treatment protocols for all the common complications of sickle cell disease, are outlined here, with summaries of key evidence and references.
Book Synopsis My Life Beyond Sickle Cell by : HeyGee
Download or read book My Life Beyond Sickle Cell written by HeyGee and published by . This book was released on 2023-07 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis The Enemy Within by : Judith McBride
Download or read book The Enemy Within written by Judith McBride and published by . This book was released on 2011-05 with total page 52 pages. Available in PDF, EPUB and Kindle. Book excerpt:
