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Memoirs Of A Caregiver
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Book Synopsis Inside the Dementia Epidemic by : Martha Stettinius
Download or read book Inside the Dementia Epidemic written by Martha Stettinius and published by Dundee-Lakemont Press. This book was released on 2012-07-23 with total page 400 pages. Available in PDF, EPUB and Kindle. Book excerpt: One in 8 people over age 65 has Alzheimer's disease, and nearly fifty percent of those over age 85. With the passion of a committed daughter and the fervor of a tireless reporter, Martha Stettinius weaves a compelling story of her long journey caregiving for her demented mother with a broad exploration of the causes of dementia, means of treating it, and hopes for preventing it. Her greatest gift to readers is that of optimism that caregiving can deepen love, that dementia can be fought, and that families can be strengthened. Her book is appealing, enlightening, and inspiring. Includes appendices on dementia research; source notes; resources for caregivers; and an index.
Book Synopsis Memoirs of a Caregiver by : Cynthia Young
Download or read book Memoirs of a Caregiver written by Cynthia Young and published by iUniverse. This book was released on 2013-01-31 with total page 220 pages. Available in PDF, EPUB and Kindle. Book excerpt: Alzheimers is a memory-robbing, debilitating disease that affects millions of Americans. For most families, having just one member afflicted with Alzheimers disease can be devastating. In her poignant memoir, Cynthia Young shares her story of love and devotion as she learns how to care for four family members stricken with Alzheimers disease over a ten-year period. Young narrates a journey filled with laughter, challenges, and sorrow as she commutes from California to Michigan to care for her mother, two aunts, and a cousin. She provides insight into how the disease progresses and gradually destroys the memory and abilities to learn, reason, make sound judgments, communicate, and carry out daily activities. While sharing her personal story and detailing how she overcame each obstacle along the way, Young also teaches other caregivers how to use valuable resources, navigate the court system as a guardian and conservator, handle the Alzheimers personality, and search for an assisted-living facility. Memoirs of a Caregiver shares one womans inspiring story of unconditional love and courage with the hope that it will encourage and empower other caregivers to be diligent, strong, and, most importantly, to never give up. A portion of the proceeds from this book will be directed to the Alzheimers Association.
Book Synopsis Welcome to Wherever We Are by : Deborah J. Cohan
Download or read book Welcome to Wherever We Are written by Deborah J. Cohan and published by Rutgers University Press. This book was released on 2020-02-14 with total page 260 pages. Available in PDF, EPUB and Kindle. Book excerpt: In this extraordinary memoir, Deborah Cohan shares her story of caring for her elderly father, a man who was often generous and loving, but who also subjected her to a lifetime of cruelty, rage, and controlling behavior. Trained as a sociologist and family violence counselor, Cohan reflects on how she healed from decades of emotional abuse.
Book Synopsis The Dutiful Daughter's Guide to Caregiving by : Judith Henry
Download or read book The Dutiful Daughter's Guide to Caregiving written by Judith Henry and published by . This book was released on 2015-06-15 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: When Judith Henry's mother and father became ill in 2007, even her reputation as a pragmatist, a planner and a dutiful daughter (her father's term) couldn't prepare her for what lay ahead - a long list of concerns that included navigating an unfamiliar healthcare system, addressing financial and legal issues, dealing with stress and family dynamics, choosing a rehab center, and ultimately, making hospice arrangements.Doing what came naturally to her, she captured these experiences on paper - writing about what worked and what didn't; about finding humor in the oddest places; and the ways in which the past, present and future often intersect.As Judith looks back at her childhood, and reveals intimate stories about assisting both her parents years later, she also shares practical suggestions and critical information on topics every son and daughter should know as their own caregiving journey begins.
Download or read book Crash written by Rachel Michelberg and published by Simon and Schuster. This book was released on 2021-04-27 with total page 214 pages. Available in PDF, EPUB and Kindle. Book excerpt: “. . . an engaging exploration of duty, guilt, and self-preservation. . . . A cleareyed consideration of difficult ethical and familial choices.” —KIRKUS REVIEWS Rachel likes to think of herself as a nice Jewish girl, dedicated to doing what’s honorable, just as her parents raised her to do. But when her husband, David, survives a plane crash and is left with severe brain damage, she faces a choice: will she dedicate her life to caring for a man she no longer loves, or walk away? Their marriage had been rocky at the time of the accident, and though she wants to do the right thing, Rachel doesn’t know how she is supposed to care for two kids in addition to a now irrational, incontinent, and seizure-prone grown man. And how will she manage to see her lover? But then again, what kind of selfish monster would refuse to care for her disabled husband, no matter how unhappy her marriage had been? Rachel wants to believe that she can dedicate her life to David’s needs, but knows in her heart it is impossible. Crash tackles a pervasive dilemma in our culture: the moral conflicts individuals face when caregiving for a disabled or cognitively impaired family member.
Download or read book The Caregiver written by Aaron Alterra and published by Cornell University Press. This book was released on 2018-10-18 with total page 230 pages. Available in PDF, EPUB and Kindle. Book excerpt: Aaron and Stella Alterra had been married for more than sixty years when Aaron began to notice puzzling lapses in his wife's memory. Innocuous at first, they became more severe and more alarming. After a series of appointments and tests, the Alterras were informed that Stella was one of the more than 4.5 million Americans with Alzheimer's disease. Combining medical research on the disease and often-painful anecdotes of memory loss, deteriorating motor functions, personality shifts, support-group and daycare experiences, and drug trials, Alterra chronicles his transformation from husband to caregiver after his wife's diagnosis. More than a chronology of one family's experience of Alzheimer's disease, The Caregiver is an intelligent, beautifully reflective testimony to how family members turned caregivers become the ultimate advocates for their loved ones in the face of a disease with no cure.
Download or read book Already Toast written by Kate Washington and published by Beacon Press. This book was released on 2021-03-16 with total page 224 pages. Available in PDF, EPUB and Kindle. Book excerpt: The story of one woman’s struggle to care for her seriously ill husband—and a revealing look at the role unpaid family caregivers play in a society that fails to provide them with structural support. Already Toast shows how all-consuming caregiving can be, how difficult it is to find support, and how the social and literary narratives that have long locked women into providing emotional labor also keep them in unpaid caregiving roles. When Kate Washington and her husband, Brad, learned that he had cancer, they were a young couple: professionals with ascending careers, parents to two small children. Brad’s diagnosis stripped those identities away: he became a patient and she his caregiver. Brad’s cancer quickly turned aggressive, necessitating a stem-cell transplant that triggered a massive infection, robbing him of his eyesight and nearly of his life. Kate acted as his full-time aide to keep him alive, coordinating his treatments, making doctors’ appointments, calling insurance companies, filling dozens of prescriptions, cleaning commodes, administering IV drugs. She became so burned out that, when she took an online quiz on caregiver self-care, her result cheerily declared: “You’re already toast!” Through it all, she felt profoundly alone, but, as she later learned, she was in fact one of millions: an invisible army of family caregivers working every day in America, their unpaid labor keeping our troubled healthcare system afloat. Because our culture both romanticizes and erases the realities of care work, few caregivers have shared their stories publicly. As the baby-boom generation ages, the number of family caregivers will continue to grow. Readable, relatable, timely, and often raw, Already Toast—with its clear call for paying and supporting family caregivers—is a crucial intervention in that conversation, bringing together personal experience with deep research to give voice to those tasked with the overlooked, vital work of caring for the seriously ill.
Download or read book The Caregivers written by Nell Lake and published by Simon and Schuster. This book was released on 2014-02-11 with total page 336 pages. Available in PDF, EPUB and Kindle. Book excerpt: A moving, intimate, and compassionate book that chronicles the experiences of a group of long-term caregivers—spouses, parents, and friends of the elderly and ill—illuminating critical issues of old age, end-of-life care, medical reform, and social policy—and “providing comfort in the time-honored form of shared experience” (The Minneapolis Star-Tribune). In 2010, journalist Nell Lake began sitting in on the weekly meetings of a local hospital’s caregivers support group. Soon members invited her into their lives. For two years, she brought empathy, insight, and an eye for detail to understanding Penny, a fifty-year-old botanist caring for her aging mother; Daniel, a survivor of Nazi Germany who tends his ailing wife; William, whose wife suffers from Alzheimer’s; and others with whom all caregivers will identify. Witnessing acts of devotion and frustration, lessons in patience and in letting go, Lake illuminates the intimate exchanges of caregiving and care-receiving and considers important and timely social issues: How can we care for the aging, ill, and dying with skill and compassion, even as the costs and labors of care increase? How might the medical profession take into account the needs of caregivers as well as patients? In The Caregivers Nell Lake shares a thoughtful and tenderly reported depiction of the real-life predicaments that evoke these crucial questions. With more and more people spending their late years ill and frail, and 43 million Americans already caring for family members over age fifty, this is an important chronicle of a widely shared experience and a public concern. “The Caregivers is as elegantly constructed as a novel, but more than that, Lake writes about these people with such warmth and vividness that they feel as memorable as our favorite fictional characters. It is a beautifully written account” (The Boston Globe).
Download or read book The Caregiver written by Samuel Park and published by Simon & Schuster. This book was released on 2019-07-09 with total page 304 pages. Available in PDF, EPUB and Kindle. Book excerpt: From the critically acclaimed author of This Burns My Heart comes a “luminous mother-daughter saga” (Entertainment Weekly) about a young woman who is forced to flee 1980s Brazil for California, and in doing so unearths the hidden life of her enigmatic mother. Mara Alencar’s mother Ana is her moon, her sun, her stars. Ana, a struggling voice-over actress, is an admirably brave and recklessly impulsive woman who does everything in her power to care for her little girl in perilous 1980s Rio de Janeiro. With no other family or friends her own age, Ana eclipses Mara’s entire world. They take turns caring for each other—in ways big and small. But who is Ana, really? As she grows older, Mara slowly begins to piece together the many facets of Ana’s complicated life—a mother, a rebel, and always, an actress. When Ana becomes involved with a civilian rebel group attempting to undermine the city’s cruel Police Chief, their fragile arrangement begins to unravel. Mara is forced to flee the only home she’s ever known, for California, where she lives as an undocumented immigrant, caregiving for a dying woman. It’s here that she begins to grapple with her turbulent past and starts to uncover vital truths—about her mother, herself, and what it means to truly take care of someone. A “lovely and heartbreaking” (People) story that is “simultaneously dreamlike and visceral” (The Atlantic), The Caregiver is “a beautiful testament to Samuel Park’s extraordinary talents as a storyteller…that reads, in some moments, like a thriller—and, in others, like a meditation on what it means to be alive…A ferocious page-turner with deep wells of compassion for the struggles of the living—and the sins of the dead” (Kirkus Reviews, starred review).
Book Synopsis The Caregiver's Tale by : Ann Burack-Weiss
Download or read book The Caregiver's Tale written by Ann Burack-Weiss and published by Columbia University Press. This book was released on 2006 with total page 224 pages. Available in PDF, EPUB and Kindle. Book excerpt: Ann Burack-Weiss explores a rich variety of published memoirs by authors who cared for ill or disabled family members. The text will offer insight and comfort to individuals caring for a loved one and is a valuable resource for all healthcare professionals.
Book Synopsis The Soul of Care by : Arthur Kleinman
Download or read book The Soul of Care written by Arthur Kleinman and published by Penguin. This book was released on 2019-09-17 with total page 272 pages. Available in PDF, EPUB and Kindle. Book excerpt: A moving memoir and an extraordinary love story that shows how an expert physician became a family caregiver and learned why care is so central to all our lives and yet is at risk in today's world. When Dr. Arthur Kleinman, an eminent Harvard psychiatrist and social anthropologist, began caring for his wife, Joan, after she was diagnosed with early-onset Alzheimer's disease, he found just how far the act of caregiving extended beyond the boundaries of medicine. In The Soul of Care: The Moral Education of a Husband and a Doctor, Kleinman delivers a deeply humane and inspiring story of his life in medicine and his marriage to Joan, and he describes the practical, emotional and moral aspects of caretaking. He also writes about the problems our society faces as medical technology advances and the cost of health care soars but caring for patients no longer seems important. Caregiving is long, hard, unglamorous work--at moments joyous, more often tedious, sometimes agonizing, but it is always rich in meaning. In the face of our current political indifference and the challenge to the health care system, he emphasizes how we must ask uncomfortable questions of ourselves, and of our doctors. To give care, to be "present" for someone who needs us, and to feel and show kindness are deep emotional and moral experiences, enactments of our core values. The practice of caregiving teaches us what is most important in life, and reveals the very heart of what it is to be human.
Book Synopsis My Two Elaines by : Martin J Schreiber
Download or read book My Two Elaines written by Martin J Schreiber and published by Harper Horizon. This book was released on 2022-06-13 with total page 192 pages. Available in PDF, EPUB and Kindle. Book excerpt: In My Two Elaines, author Marty Schreiber, former governor of Wisconsin, watches his beloved wife, Elaine, gradually transform from the woman he fell in love with in high school, and who diligently supported his political career, to the Elaine who knows she is declining and can’t remember how to cook a meal, and finally to the Elaine who no longer recognizes Marty or their children. One part love story, one part practical advice, this compelling book includes several unique elements: Excerpts from Elaine’s journal, recounting her thoughts, concerns, and frustrations as the disease progresses A recurring feature called “What I Wish I’d Known,” which provides helpful takeaways for caregivers based on Marty’s observations about what he wishes he’d known sooner and done differently A Q&A between Marty and neuropsychologist Dr. Michelle Braun, to equip caregivers with the right questions to ask and empower them to advocate for their loved ones and their own needs Beyond sincere, practical advice, My Two Elaines gives the reader permission to feel the full spectrum of emotions, including humor, even in the face of this relentless illness. And the book speaks to anyone touched by this disease--spouse, child, friend, or family member.
Book Synopsis The Caregiver's Guide to the Universe by : Renee Pirie
Download or read book The Caregiver's Guide to the Universe written by Renee Pirie and published by Createspace Independent Publishing Platform. This book was released on 2018-02-08 with total page 200 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Caregiver's Guide to the Universe is a narrative revealing the humorous and unorthodox methods my father used to care for my mother after she developed early-onset Alzheimer's disease in her late forties. Although he was uneducated and semiliterate, he used his superpowers to care for her 24/7 for over a quarter of a century before her death on the outside finally caught up with her death on the inside. As she metamorphosed, he kept his love alive through music and teenage love notes. He survived tragedy as a teenager, tragedy with his cherished wife, and somewhere in between, he taught my siblings and I the true meaning of life by weaving across the lines between reality and dreams. According to the Alzheimer's Foundation of America (AFA), over five million Americans have Alzheimer's and one to four family members act as caregivers for each individual with the disease. The Caregiver's Guide to the Universe fills a much needed niche being a true story of an ordinary man in love with the memory of someone without one. Wildly popular novels on Alzheimer's such as Still Alice and The Notebook continue to fascinate readers. The true love story portrayed in this memoir will not only fascinate them, it will inspire them.
Book Synopsis The Language of Time by : Ashley Bendiksen
Download or read book The Language of Time written by Ashley Bendiksen and published by . This book was released on 2020-06-12 with total page 336 pages. Available in PDF, EPUB and Kindle. Book excerpt: "My mother developed Alzheimer's at just 48. It didn't make any sense. Worse, there was no cure and no timeline. I became a caregiver overnight, endlessly aware of a heartbreaking new reality - tomorrow was no longer guaranteed. I needed to somehow slow down time, to find answers, to create a miracle (while still managing my own life as a woman in my 20s). At the very least, I had to do my best to capture it all before time ran out - archiving memories and learning all I could about courage, how to live, and how to love." Combining journal entries with transcribed conversations and emotive storytelling, The Language of Time is a real and honest expression of one daughter's sudden and unplanned journey as caregiver. It's a story of hope, strength, courage, and the unbreakable bond between a daughter and her mom. It's a story of womanhood, without the guidance of a mother. And it's a poignant reminder of the ever-passing moments of time with those we love. The Language of Time is a breakthrough memoir that will be appreciated by those who have been touched by caregiving, Alzheimer's/dementia, terminal illness, hospice, or loss of a parent. It shines a light on the unique circumstances of early onset Alzheimer's, and fulfilling the role of caregiver as a young adult. It's also filled with stories of facing life's challenges, love, family, gratitude, personal growth, and self-discovery.
Download or read book Kick-Ass Kinda Girl written by Kathi Koll and published by . This book was released on 2018-10-09 with total page 276 pages. Available in PDF, EPUB and Kindle. Book excerpt: When her husband called on his way to the hospital, Kathi Koll had no idea how dramatically their lives would change, or how her loving heart and indomitable spirit would fight that change. Her journey from a life of adventure to a full-time caregiver, steeped in joy and humor, teaches us what it means to live in the moment and never lose hope.
Book Synopsis Confessions of an Imperfect Caregiver by : Bobbi Carducci
Download or read book Confessions of an Imperfect Caregiver written by Bobbi Carducci and published by . This book was released on 2014-07-26 with total page 284 pages. Available in PDF, EPUB and Kindle. Book excerpt: Bobbi Carducci's life was about to change. Her ill father-in-law 's odd behavior was a mystery when he came to live with her and Mike. For the next seven years Bobbi did everything she could to save him from himself-while he tried to convince everyone that he didn't need her and that she was crazy. "Brutally honest and written from the heart, Carducci's intimate chronicle of caring for her father-in-law is a poignant story of strength, compassion, and humor that will linger with you long after you read the last page. Highly recommended for anyone caring for an elderly parent." Jan Neuharth, author of the Hunt Country Suspense novels "Confessions of an Imperfect Caregiver, perfectly encapsulates the human experience, not just the caregiver's. When we live in a world of worry, stress and self-doubt, where do we find the strength to go on? Bobbi's retelling of her caregiving years unfolds in a beautiful answer to the questions posed by sickness, health, care, and loss." Alexandra Axel, Media Director, The Caregiver Space Bobbi is an award winning author and multi published short story writer. Her work has appeared in numerous anthologies and publications, in print and online. Bobbi's website and blog can be found at www.bobbicarducci.com and theimperfectcaregiver.com. Bobbi also blogs monthly for TheCaregiverSpace.org and AgingCare.com.
Book Synopsis The Fifth Season by : Lisa Ohlen Harris
Download or read book The Fifth Season written by Lisa Ohlen Harris and published by . This book was released on 2013 with total page 203 pages. Available in PDF, EPUB and Kindle. Book excerpt: "A memoir of caregiving; illuminates the difficulties of and ethical questions surrounding end-of-life care in America"--Provided by publisher"--
