Lost Voices From A Hidden Illness

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Lighting Up a Hidden World

Author : Valerie Free
Publisher : FriesenPress
ISBN 13 : 1460280512
Total Pages : 514 pages
Book Rating : 4.4/5 (62 download)

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Book Synopsis Lighting Up a Hidden World by : Valerie Free

Download or read book Lighting Up a Hidden World written by Valerie Free and published by FriesenPress. This book was released on 2016-09-30 with total page 514 pages. Available in PDF, EPUB and Kindle. Book excerpt: The onset can be fast and shocking or slow and insidious. It can happen to anyone at any age. A flu, a vaccination, or an infection can be the innocent beginnings to the potentially life-long and disabling illness called myalgic encephalomyelitis (ME), which is more commonly known as chronic fatigue syndrome (CFS) or ME/CFS in North America. In the mid 1980s, the U.S. Centers for Disease Control (CDC) was called in by concerned doctors who were witnessing an influx of patients with a mysterious illness. Eventually the CDC labeled the condition “chronic fatigue syndrome” which turned out to be very misleading. Decades later, in 2016, health agencies are finally beginning to agree with international experts that ME/CFS is a serious, chronic, multi-system illness. Through artwork, poetry, story-telling, and meticulous research, Lighting Up a Hidden World: CFS and ME takes readers into the fascinating, yet frightening, landscape of ME/CFS. Author Valerie Free shares her personal experiences and delivers illuminating first-hand perspectives from patients, caregivers, journalists, and medical professionals from within the global community in short easy-to-read segments. These stories reveal the disgrace, controversy, and tragedy of worldwide neglect by political and health care systems, leaving ME/CFS research underfunded and millions of people marginalized, sick, and socially unsupported. Lighting Up a Hidden World: CFS and ME advocates for those too ill to speak out, abounds with patient resources, and offers realistic hope for the future. People living with this illness, along with their family and friends, will find compassion and camaraderie in its pages. This book reaches beyond the ME/CFS community exposing the themes of human suffering, resilience, and the need for social change.

Lost Voices

Author : Nellie A Radomsky
Publisher : Routledge
ISBN 13 : 1317764021
Total Pages : 196 pages
Book Rating : 4.3/5 (177 download)

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Book Synopsis Lost Voices by : Nellie A Radomsky

Download or read book Lost Voices written by Nellie A Radomsky and published by Routledge. This book was released on 2014-05-12 with total page 196 pages. Available in PDF, EPUB and Kindle. Book excerpt: In this illuminating book, Dr. Nellie Radomsky explores the complexity of chronic pain in women and evidence for its association with abuse--an issue largely unrecognized by medical practitioners. Modern medical training emphasizes diagnosis and cure, but chronic pain problems often have no identifiable organic cause, and the women who suffer are often not listened to in the doctor’s office. Lost Voices: Women, Chronic Pain, and Abuse addresses how women, by gaining knowledge of the ways the medical culture--and the larger culture--have silenced them, may move into a healing process and learn to speak out. The author encourages women in pain to give voice to their buried experiences and shows them that speaking out about their experiences with abuse and chronic pain can be the first step on the road to healing. The author explores the lost voices of women in pain through stories based on her personal encounters with patients in her practice. These women and their case histories help illustrate the interactions of chronic pain and abuse and the complexity of the doctor-patient relationship. Among the many areas Dr. Radomsky examines are: how the medical culture has silenced women chronic pain in women with a history of abuse the relationship of women’s healing processes and the sense of finding and expressing “lost voices” the doctor-patient relationship and obstacles to healing the limitation of medical models with respect to understanding complex chronic pain issues how acute and chronic pain differ and how physicians and patients alike struggle with this understandingScientific but very readable, Lost Voices assists readers in the search for answers to complex pain problems. It is a hope-full resource for women struggling with chronic pain and personal abuse issues and an enlightening guide for physicians, therapists, and others working with these women. Professionals working in the area of chronic pain, readers involved in feminist issues, and academic physicians interested in medicine as culture will find Lost Voices a revealing book.

Lost Voices from a Hidden Illness

Author : Natalie Boulton
Publisher :
ISBN 13 : 9780956026606
Total Pages : 120 pages
Book Rating : 4.0/5 (266 download)

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Book Synopsis Lost Voices from a Hidden Illness by : Natalie Boulton

Download or read book Lost Voices from a Hidden Illness written by Natalie Boulton and published by . This book was released on 2008 with total page 120 pages. Available in PDF, EPUB and Kindle. Book excerpt:

An Evocative Autoethnography of Living Alongside Myalgic Encephalomyelitis (ME)

Author : Orlagh Farrell Delaney
Publisher : Cambridge Scholars Publishing
ISBN 13 : 1527573281
Total Pages : 277 pages
Book Rating : 4.5/5 (275 download)

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Book Synopsis An Evocative Autoethnography of Living Alongside Myalgic Encephalomyelitis (ME) by : Orlagh Farrell Delaney

Download or read book An Evocative Autoethnography of Living Alongside Myalgic Encephalomyelitis (ME) written by Orlagh Farrell Delaney and published by Cambridge Scholars Publishing. This book was released on 2021-07-30 with total page 277 pages. Available in PDF, EPUB and Kindle. Book excerpt: This ground-breaking book explores and explains the day-to-day realities of living long-term with Myalgic Encephalomyelitis (ME). ME is an acquired complex disorder characterised by a variety of symptoms affecting multiple systems of the body. Marked fatigue and weakness, sickness, cognitive dysfunction and symptom flare-up can follow any physical or cognitive exertion. It is estimated that there are 17-24 million sufferers worldwide. The author has lived with moderately severe ME for the last 18 years. Utilising autoethnography as a methodology and drawing on multidisciplinary social science theory, the book tells the story of the author’s own lived experiences of the illness, and how she sought to reimagine a ‘self’ or a life living alongside the illness, that could still be considered a ‘good life’. This autoethnographic book is beautifully and evocatively written. It is a work of scholarship that will be highly accessible to academic and other readers. It is also a comprehensive introduction to autoethnography as a methodology, but it is much more. The images and poetry complement the narrative discussion, and are exemplary as part of an approach that integrates creative work with academic argument. It illuminates the struggles of living with ME and how there can be sanctuary.

When David Lost His Voice

Author : Judith Vanistendael
Publisher : SelfMadeHero
ISBN 13 : 9781906838546
Total Pages : 0 pages
Book Rating : 4.8/5 (385 download)

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Book Synopsis When David Lost His Voice by : Judith Vanistendael

Download or read book When David Lost His Voice written by Judith Vanistendael and published by SelfMadeHero. This book was released on 2013-03-19 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: "The moment his granddaughter Louise is born, David learns that he has cancer. He would rather keep quiet about his illness, the pain and the end that awaits him-- much to the frustration of the women in his life. They wait, powerless, for the silent but inexorable end"--Page 4 of cover.

The Library of Lost Things

Author : Laura Taylor Namey
Publisher : Harlequin
ISBN 13 : 1488051356
Total Pages : 323 pages
Book Rating : 4.4/5 (88 download)

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Book Synopsis The Library of Lost Things by : Laura Taylor Namey

Download or read book The Library of Lost Things written by Laura Taylor Namey and published by Harlequin. This book was released on 2019-10-08 with total page 323 pages. Available in PDF, EPUB and Kindle. Book excerpt: From the New York Times bestselling author of A Cuban Girl's Guide to Tea and Tomorrow, this deeply heartfelt love story explores hiding the worst parts of ourselves, and finding the people who love us anyway. “How could I open that door and let him see the messiest part of me?” From the moment she first learned to read, literary genius Darcy Wells has spent most of her time living in the worlds of her books. There, she can avoid the crushing reality of her mother’s hoarding and pretend her life is simply ordinary. But then Asher Fleet, a former teen pilot with an unexpectedly shattered future, walks into the bookstore where she works…and straight into her heart. For the first time in her life, Darcy can’t seem to find the right words. Fairy tales are one thing, but real love makes her want to hide behind her carefully constructed ink-and-paper wall. Still, after spending her whole life keeping people out, something about Asher makes Darcy want to open up. But securing her own happily-ever-after will mean she’ll need to stop hiding and start living her own truth—even if it’s messy. “A lovely tale for bookish readers that will give them all the feels.” —Kirkus

The Invisible Kingdom

Author : Meghan O'Rourke
Publisher : Penguin
ISBN 13 : 1594633797
Total Pages : 337 pages
Book Rating : 4.5/5 (946 download)

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Book Synopsis The Invisible Kingdom by : Meghan O'Rourke

Download or read book The Invisible Kingdom written by Meghan O'Rourke and published by Penguin. This book was released on 2022-03-01 with total page 337 pages. Available in PDF, EPUB and Kindle. Book excerpt: A NEW YORK TIMES BESTSELLER FINALIST FOR THE 2022 NATIONAL BOOK AWARD FOR NONFICTION Named one of the BEST BOOKS OF 2022 by NPR, The New Yorker, Time, and Vogue “Remarkable.” –Andrew Solomon, The New York Times Book Review "At once a rigorous work of scholarship and a radical act of empathy.”—Esquire "A ray of light into those isolated cocoons of darkness that, at one time or another, may afflict us all.” —The Wall Street Journal "Essential."—The Boston Globe A landmark exploration of one of the most consequential and mysterious issues of our time: the rise of chronic illness and autoimmune diseases A silent epidemic of chronic illnesses afflicts tens of millions of Americans: these are diseases that are poorly understood, frequently marginalized, and can go undiagnosed and unrecognized altogether. Renowned writer Meghan O’Rourke delivers a revelatory investigation into this elusive category of “invisible” illness that encompasses autoimmune diseases, post-treatment Lyme disease syndrome, and now long COVID, synthesizing the personal and the universal to help all of us through this new frontier. Drawing on her own medical experiences as well as a decade of interviews with doctors, patients, researchers, and public health experts, O’Rourke traces the history of Western definitions of illness, and reveals how inherited ideas of cause, diagnosis, and treatment have led us to ignore a host of hard-to-understand medical conditions, ones that resist easy description or simple cures. And as America faces this health crisis of extraordinary proportions, the populations most likely to be neglected by our institutions include women, the working class, and people of color. Blending lyricism and erudition, candor and empathy, O’Rourke brings together her deep and disparate talents and roles as critic, journalist, poet, teacher, and patient, synthesizing the personal and universal into one monumental project arguing for a seismic shift in our approach to disease. The Invisible Kingdom offers hope for the sick, solace and insight for their loved ones, and a radical new understanding of our bodies and our health.

Anxiety: The Missing Stage of Grief

Author : Claire Bidwell Smith
Publisher : Da Capo Lifelong Books
ISBN 13 : 0738234761
Total Pages : 249 pages
Book Rating : 4.7/5 (382 download)

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Book Synopsis Anxiety: The Missing Stage of Grief by : Claire Bidwell Smith

Download or read book Anxiety: The Missing Stage of Grief written by Claire Bidwell Smith and published by Da Capo Lifelong Books. This book was released on 2018-09-25 with total page 249 pages. Available in PDF, EPUB and Kindle. Book excerpt: With this groundbreaking book, discover the critical connections between anxiety and grief—and learn practical strategies for healing, based on the Kübler-Ross stages model. If you're suffering from anxiety but not sure why, or if you're struggling with loss and looking for solace, Anxiety: The Missing Stage of Grief offers help and answers. As grief expert Claire Bidwell Smith discovered in her own life—and in her practice with her therapy clients—significant loss and unresolved grief are primary underpinnings of anxiety. Using research and real life stories, Smith breaks down the physiology of anxiety, providing a concrete explanation that will help you heal. Starting with the basics questions—“What is anxiety?” and “What is grief?” and moving to concrete approaches such as making amends, taking charge, and retraining your brain, Anxiety takes a big step beyond Elisabeth Kübler-Ross's widely accepted five stages to unpack everything from our age-old fears about mortality to the bare vulnerability a loss can make us feel. With concrete tools and coping strategies for panic attacks, getting a handle on anxious thoughts, and more, Smith bridges these two emotions in a way that is deeply empathetic and profoundly practical.

Understanding and Using Health Experiences

Author : Sue Ziebland
Publisher : OUP Oxford
ISBN 13 : 0191643246
Total Pages : 234 pages
Book Rating : 4.1/5 (916 download)

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Book Synopsis Understanding and Using Health Experiences by : Sue Ziebland

Download or read book Understanding and Using Health Experiences written by Sue Ziebland and published by OUP Oxford. This book was released on 2013-04-04 with total page 234 pages. Available in PDF, EPUB and Kindle. Book excerpt: Improving patient experience is a global priority for health policy-makers and care providers. The need to look at healthcare delivery through the eyes of patients is widely accepted, but how should it be done? What use can be made of this information, and what evidence is there that such exercises lead to better care? Understanding and Using Health Experiences: Improving patient care examines a broad range of different sources and techniques for gathering and analyzing health experiences. Providing an accessible and pragmatic overview of the diversity and richness of research in the field this book explores the strengths and limitations of different approaches, and assesses what each method can contribute to improving people's experience of illness, and the way that health services are delivered. The book looks at topics such as using focus groups to understand experiences of health and illness, patient surveys, and the internet as a source of information on people's experience. Using clear and engaging examples throughout, the book is accessibly written by experts in social science, health services, and health policy, and will be valuable to postgraduate students, healthcare practitioners, and individuals working in health and social policy, public sector management, and research.

Hidden Valley Road

Author : Robert Kolker
Publisher : Anchor
ISBN 13 : 0385543778
Total Pages : 427 pages
Book Rating : 4.3/5 (855 download)

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Book Synopsis Hidden Valley Road by : Robert Kolker

Download or read book Hidden Valley Road written by Robert Kolker and published by Anchor. This book was released on 2020-04-07 with total page 427 pages. Available in PDF, EPUB and Kindle. Book excerpt: #1 NEW YORK TIMES BESTSELLER • OPRAH’S BOOK CLUB PICK • ONE OF GQ's TOP 50 BOOKS OF LITERARY JOURNALISM IN THE 21st CENTURY • The heartrending story of a midcentury American family with twelve children, six of them diagnosed with schizophrenia, that became science's great hope in the quest to understand the disease. "Reads like a medical detective journey and sheds light on a topic so many of us face: mental illness." —Oprah Winfrey Don and Mimi Galvin seemed to be living the American dream. After World War II, Don's work with the Air Force brought them to Colorado, where their twelve children perfectly spanned the baby boom: the oldest born in 1945, the youngest in 1965. In those years, there was an established script for a family like the Galvins--aspiration, hard work, upward mobility, domestic harmony--and they worked hard to play their parts. But behind the scenes was a different story: psychological breakdown, sudden shocking violence, hidden abuse. By the mid-1970s, six of the ten Galvin boys, one after another, were diagnosed as schizophrenic. How could all this happen to one family? What took place inside the house on Hidden Valley Road was so extraordinary that the Galvins became one of the first families to be studied by the National Institute of Mental Health. Their story offers a shadow history of the science of schizophrenia, from the era of institutionalization, lobotomy, and the schizophrenogenic mother to the search for genetic markers for the disease, always amid profound disagreements about the nature of the illness itself. And unbeknownst to the Galvins, samples of their DNA informed decades of genetic research that continues today, offering paths to treatment, prediction, and even eradication of the disease for future generations. With clarity and compassion, bestselling and award-winning author Robert Kolker uncovers one family's unforgettable legacy of suffering, love, and hope.

Lost Voices of the Nile

Author : Charlotte Booth
Publisher : Amberley Publishing Limited
ISBN 13 : 1445642980
Total Pages : 331 pages
Book Rating : 4.4/5 (456 download)

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Book Synopsis Lost Voices of the Nile by : Charlotte Booth

Download or read book Lost Voices of the Nile written by Charlotte Booth and published by Amberley Publishing Limited. This book was released on 2015-08-15 with total page 331 pages. Available in PDF, EPUB and Kindle. Book excerpt: A fascinating exploration of the lives of normal people in ancient Egypt. Full of their own strange and amusing stories; documents their anxieties, hopes, loves and mischievous pursuits.

Janet Cardiff

Author : Janet Cardiff
Publisher : London : Artangel
ISBN 13 : 9781902201078
Total Pages : 71 pages
Book Rating : 4.2/5 (1 download)

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Book Synopsis Janet Cardiff by : Janet Cardiff

Download or read book Janet Cardiff written by Janet Cardiff and published by London : Artangel. This book was released on 1999 with total page 71 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book documents Janet Cardiff's 1999 audio project, The Missing voice (Case Study B), and includes the full audio CD as well as images from this exploration of London's inner city. Part urban guide, part fiction, part film noir, her audio walk entwines the listener in a narrative that shifts through time and space. Intimate, even conspirational, Cardiff has created a psychologically absorbing experience for an audience of one at a time. You find yourself transported back in time. What was that sound? Who is speaking to you? Where does reality end, and what's imagined begin? Also included is an extended essay analyzing the artist's career to date. Born in 1957, in Brussels, Canada, Cardiff works and lives in Alberta and has shown internationally in, among others, London, New York, Berlin, and Vienna. Her work has been included in significant group exhibitions, notably Skulptur Projekte Munster, 1997; Present Tense: Nine Artists in the Nineties, at San Francisco Museum of Modern Art; the 1999 Carnegie International; and the Museum as Muse at New York's Museum of Modern Art.

Hidden Illness in the White House

Author : Kenneth R. Crispell
Publisher : Duke University Press
ISBN 13 : 9780822308393
Total Pages : 300 pages
Book Rating : 4.3/5 (83 download)

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Book Synopsis Hidden Illness in the White House by : Kenneth R. Crispell

Download or read book Hidden Illness in the White House written by Kenneth R. Crispell and published by Duke University Press. This book was released on 1988-09-30 with total page 300 pages. Available in PDF, EPUB and Kindle. Book excerpt: The serious illness of three presidents—Woodrow Wilson, Franklin Delano Roosevelt, and John F. Kennedy—as well as the injury Ronald Reagan received in the assassination attempt upon him have revealed our woefully inadequate system for handling presidential incapacity. The authors believe that this flawed system poses a major threat to the nation, and they provide sobering reports on how the government functioned (or failed to function) during times of presidential impairment. The public was kept in the dark regarding the gravity of the presidential condition, often unaware that critical decisions were being made while the president was suffering from a severe illness. Hidden Illness in the White House contains startling new information on the severity of Roosevelt’s illness during the crucial Yalta negotiations and the fact that Kennedy suffered from Addison’s disease, a life-threatening illness, long before he was elected to the presidency. In each case the authors demonstrate that a largely successful effort was made to conceal the president’s true medical condition from the public.

Ben Behind His Voices

Author : Randye Kaye
Publisher : Rowman & Littlefield Publishers
ISBN 13 : 1442210915
Total Pages : 321 pages
Book Rating : 4.4/5 (422 download)

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Book Synopsis Ben Behind His Voices by : Randye Kaye

Download or read book Ben Behind His Voices written by Randye Kaye and published by Rowman & Littlefield Publishers. This book was released on 2011-10-16 with total page 321 pages. Available in PDF, EPUB and Kindle. Book excerpt: When readers first meet Ben, he is a sweet, intelligent, seemingly well-adjusted youngster. Fast forward to his teenage years, though, and Ben's life has spun out of control. Ben is swept along by an illness over which he has no control—one that results in runaway episodes, periods of homelessness, seven psychotic breaks, seven hospitalizations, and finally a diagnosis and treatment plan that begins to work. Schizophrenia strikes an estimated one in a hundred people worldwide by some estimates, and yet understanding of the illness is lacking. Through Ben's experiences, and those of his mother and sister, who supported Ben through every stage of his illness and treatment, readers gain a better understanding of schizophrenia, as well as mental illness in general, and the way it affects individuals and families. Here, Kaye encourages families to stay together and find strength while accepting the reality of a loved one's illness; she illustrates, through her experiences as Ben's mother, the delicate balance between letting go and staying involved. She honors the courage of anyone who suffers with mental illness and is trying to improve his life and participate in his own recovery. Ben Behind His Voices also reminds professionals in the psychiatric field that every patient who comes through their doors has a life, one that he has lost through no fault of his own. It shows what goes right when professionals treat the family as part of the recovery process and help them find support, education, and acceptance. And it reminds readers that those who suffer from mental illness, and their families, deserve respect, concern, and dignity.

The Neuroscientist Who Lost Her Mind

Author : Barbara K. Lipska
Publisher : HarperCollins
ISBN 13 : 1328787273
Total Pages : 213 pages
Book Rating : 4.3/5 (287 download)

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Book Synopsis The Neuroscientist Who Lost Her Mind by : Barbara K. Lipska

Download or read book The Neuroscientist Who Lost Her Mind written by Barbara K. Lipska and published by HarperCollins. This book was released on 2018-04-03 with total page 213 pages. Available in PDF, EPUB and Kindle. Book excerpt: In the tradition of My Stroke of Insight and Brain on Fire, this powerful memoir recounts Barbara Lipska's deadly brain cancer and explains its unforgettable lessons about the brain and mind. Neuroscientist Lipska was diagnosed early in 2015 with metastatic melanoma in her brain's frontal lobe. As the cancer progressed and was treated, she experienced behavioral and cognitive symptoms connected to a range of mental disorders, including dementia and her professional specialty, schizophrenia. Lipska's family and associates were alarmed by the changes in her behavior, which she failed to acknowledge herself. Gradually, after a course of immunotherapy, Lipska returned to normal functioning, amazingly recalled her experience, and through her knowledge of neuroscience identified the ways in which her brain changed during treatment. Lipska admits her condition was unusual; after recovery she was able to return to her research and resume her athletic training and compete in a triathalon. Most patients with similar brain cancers rarely survive to describe their ordeal. Lipska's memoir, coauthored with journalist Elaine McArdle, shows that strength and courage but also an encouraging support network are vital to recovery.

Your Body Speaks Your Mind

Author : Deb Shapiro
Publisher : ReadHowYouWant.com
ISBN 13 : 1427099731
Total Pages : 566 pages
Book Rating : 4.4/5 (27 download)

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Book Synopsis Your Body Speaks Your Mind by : Deb Shapiro

Download or read book Your Body Speaks Your Mind written by Deb Shapiro and published by ReadHowYouWant.com. This book was released on 2008-11-01 with total page 566 pages. Available in PDF, EPUB and Kindle. Book excerpt: Shapiro explains why unresolved psycho/emotional issues can affect physical health, how feelings and thoughts are linked to specific body parts, and steps to take to heal the body with the mind, and to heal the mind with the body.

Disability Visibility

Author : Alice Wong
Publisher : Vintage
ISBN 13 : 1984899430
Total Pages : 338 pages
Book Rating : 4.9/5 (848 download)

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Book Synopsis Disability Visibility by : Alice Wong

Download or read book Disability Visibility written by Alice Wong and published by Vintage. This book was released on 2020-06-30 with total page 338 pages. Available in PDF, EPUB and Kindle. Book excerpt: “Disability rights activist Alice Wong brings tough conversations to the forefront of society with this anthology. It sheds light on the experience of life as an individual with disabilities, as told by none other than authors with these life experiences. It's an eye-opening collection that readers will revisit time and time again.” —Chicago Tribune One in five people in the United States lives with a disability. Some disabilities are visible, others less apparent—but all are underrepresented in media and popular culture. Activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people, just in time for the thirtieth anniversary of the Americans with Disabilities Act, From Harriet McBryde Johnson’s account of her debate with Peter Singer over her own personhood to original pieces by authors like Keah Brown and Haben Girma; from blog posts, manifestos, and eulogies to Congressional testimonies, and beyond: this anthology gives a glimpse into the rich complexity of the disabled experience, highlighting the passions, talents, and everyday lives of this community. It invites readers to question their own understandings. It celebrates and documents disability culture in the now. It looks to the future and the past with hope and love.