A Guide to Living with Hypermobility Syndrome

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Author :
Publisher : Singing Dragon
ISBN 13 : 1848190689
Total Pages : 242 pages
Book Rating : 4.8/5 (481 download)

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Book Synopsis A Guide to Living with Hypermobility Syndrome by : Isobel Knight

Download or read book A Guide to Living with Hypermobility Syndrome written by Isobel Knight and published by Singing Dragon. This book was released on 2011 with total page 242 pages. Available in PDF, EPUB and Kindle. Book excerpt: People with Hypermobility Syndrome (HMS), including Ehlers-Danlos type Hypermobility Syndrome, have a larger range of joint movement than is typical, which can cause pain and fatigue despite an outward appearance of good health. This book is the complete guide to living with and managing HMS, and ultimately enjoying a fulfilling life. The book covers everything from recognising symptoms and obtaining initial diagnosis to living with the condition on a daily basis and managing its negative effects. The author, who has HMS herself, looks at how the condition affects children and adolescents, before moving on to explore pain management (including the use of physiotherapy, pilates and a selected range of complementary health therapies), pregnancy, physical and psychological aspects of the condition, and how it widely affects dancers and other performance artists. Wider conditions that encompass Hypermobility Syndrome are also touched upon, including Fibromyalgia and IBS. This book will be a must for anybody who suffers, or suspects they might be suffering from, Hypermobility Syndrome. It will also be of interest to their families and friends, and professionals working with the condition.

Our Stories of Strength

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Author :
Publisher :
ISBN 13 : 9780997319620
Total Pages : 214 pages
Book Rating : 4.3/5 (196 download)

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Book Synopsis Our Stories of Strength by : Kendra Neilsen Myles

Download or read book Our Stories of Strength written by Kendra Neilsen Myles and published by . This book was released on 2016-10-20 with total page 214 pages. Available in PDF, EPUB and Kindle. Book excerpt: This listing is for the 7x10 full-color version of the paperback book. An inspirational collection of stories, filled with devastation, heartbreak, triumph, and strength as written by those affected by different types of Ehlers-Danlos syndrome. EDS is a group of heritable connective tissue disorders that can cause a wide variety of symptoms throughout different body systems; each unique in presentation to the individual. The variety of symptoms and presentations proves challenging to the medical community in diagnosing and treating patients; many of whom are misdiagnosed and suffer as a result. EDS has been commonly viewed as just Benign Joint Hypermobility Syndrome (BJHS/JHS) or Hypermobility Syndrome (HMS). Based upon recent research, the prevalence of EDS exceeds current estimates. Kendra Neilsen Myles founded Sisters Media, LLC with core values of giving back and providing an outlet to those willing to share their stories through submissions in the Our Stories of Strength anthology series. Sisters Media, LLC recognizes that it is through opening doors to needed conversations and sharing stories of strength, determination, and perseverance that we are able to facilitate positive changes to the way we live and help shape perceptions of those around us, as well as in the medical community. We are #Stronger2Gether."

Our Stories of Strength

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Publisher :
ISBN 13 : 9780996302906
Total Pages : 222 pages
Book Rating : 4.3/5 (29 download)

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Book Synopsis Our Stories of Strength by : Kendra Neilsen Myles

Download or read book Our Stories of Strength written by Kendra Neilsen Myles and published by . This book was released on 2015-05 with total page 222 pages. Available in PDF, EPUB and Kindle. Book excerpt: An inspirational collection of stories, filled with devastation, heartbreak, triumph, and strength as written by those affected by different types of Ehlers-Danlos Syndromes. "These are stories of hope and resilience, of strength under adversity, of self-reliance and new-found sources of support. They offer one core message to all who suffer from the diverse and difficult manifestations of EDS: You are not alone." - Dr. Clair Francomano, MD "Ehlers-Danlos Syndrome is another form of the human body. Just as there are tall people, short people, dark skin colored people, and light skin colored people, each with their own set of medical issues - similarly there are hypermobile people and not so hypermobile people who have different medical issues. Our understanding of EDS has improved, but we still have a lot of work to do. While the medical world works on understanding Ehlers-Danlos Syndrome, people with EDS have provided us with stories of courage and ingenuity. These stories give others and doctors the strength to find solutions." - PRADEEP CHOPRA, MD "As a physical therapist who works with many patients suffering from EDS, I've seen firsthand how isolating and frustrating EDS can be. Along with a more knowledgeable medical field, what these patients need most is an understanding that they are not alone and to be given hope. 'Our Stories of Strength' provides both community and hope and will be just as effective as any medication or exercise." - CHRISTOPHER GNIP, PT, DPT EDS is a group of heritable connective tissue disorders that can cause a wide variety of symptoms throughout different body systems; each unique in presentation to the individual. The variety of symptoms and presentations proves challenging to the medical community in diagnosing and treating patients; many of whom are misdiagnosed and suffer as a result. EDS has been commonly viewed as just Benign Joint Hypermobility Syndrome (BJHS/JHS) or Hypermobility Syndrome (HMS). Based upon recent research, the prevalence of EDS exceeds current estimates. Kendra Neilsen Myles and Mysti Reutlinger founded Our SOS Media, LLC with core values of giving back to non-profit organizations, creating jobs for people living with invisible and chronic illnesses, and providing an outlet to those willing to share their stories through submissions in the Our Stories of Strength anthology series. Our SOS Media, LLC recognizes that it is through opening doors to needed conversations and sharing stories of strength, determination, and perseverance that we are able to facilitate positive changes to the way we live and help shape perceptions of those around us, as well as in the medical community. We are stronger together."

The Ehlers-Danlos Syndrome

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Author :
Publisher :
ISBN 13 :
Total Pages : 216 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis The Ehlers-Danlos Syndrome by : Peter Beighton

Download or read book The Ehlers-Danlos Syndrome written by Peter Beighton and published by . This book was released on 1970 with total page 216 pages. Available in PDF, EPUB and Kindle. Book excerpt: Ehlers-Danlos Syndrom.

A Guide to Living with Ehlers-Danlos Syndrome (Hypermobility Type)

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Author :
Publisher : Singing Dragon
ISBN 13 : 0857011804
Total Pages : 314 pages
Book Rating : 4.8/5 (57 download)

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Book Synopsis A Guide to Living with Ehlers-Danlos Syndrome (Hypermobility Type) by : Isobel Knight

Download or read book A Guide to Living with Ehlers-Danlos Syndrome (Hypermobility Type) written by Isobel Knight and published by Singing Dragon. This book was released on 2014-12-21 with total page 314 pages. Available in PDF, EPUB and Kindle. Book excerpt: Covering everything from recognising symptoms and obtaining initial diagnosis to living with the condition on a daily basis, this complete guide to living with and managing Ehlers-Danlos Syndrome (Hypermobility Type - formerly known as Type III) has been revised and fully-updated in this accessible new edition. The author, who has the condition, looks at how it affects children and adolescents and explores pain management, pregnancy, physical and psychological aspects, and how it widely affects dancers and other performance artists. New material includes: changes in terminology information on how osteopathy and nutrition can help psychological approaches beyond CBT how to deal with professionals what to expect from support groups and rehabilitation programmes This new edition will be a must for anybody who suffers, or suspects they might be suffering from, Ehlers-Danlos Syndrome (Hypermobility Type) and provides everything needed to enjoy a fulfilling life with this complex condition. It will also be of interest to their families and friends, and professionals working with Hypermobility Type EDS.

Postural Tachycardia Syndrome

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Author :
Publisher : Springer Nature
ISBN 13 : 3030541657
Total Pages : 316 pages
Book Rating : 4.0/5 (35 download)

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Book Synopsis Postural Tachycardia Syndrome by : Nicholas Gall

Download or read book Postural Tachycardia Syndrome written by Nicholas Gall and published by Springer Nature. This book was released on 2020-10-21 with total page 316 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book describes the varying clinical manifestations of postural tachycardia syndrome (PoTS) and provides a robust yet practical set of clinical tools for those managing patients suffering with this syndrome. Guidance is provided by a range of disciplines relevant to PoTS including general and specialist assessments, associated conditions, diagnostic considerations, therapy and service models. Postural Tachycardia Syndrome: A Concise and Practical Guide to Management and Associated Conditions presents the scientific background and practical information for the busy medical professional, illustrating key features with care-based materials to help them manage this condition, which can be a challenge for patients and clinicians alike.

Ehlers-Danlos Syndrome: A Multidisciplinary Approach

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Author :
Publisher : IOS Press
ISBN 13 : 1614998787
Total Pages : 370 pages
Book Rating : 4.6/5 (149 download)

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Book Synopsis Ehlers-Danlos Syndrome: A Multidisciplinary Approach by : J.W.G. Jacobs

Download or read book Ehlers-Danlos Syndrome: A Multidisciplinary Approach written by J.W.G. Jacobs and published by IOS Press. This book was released on 2018-08-14 with total page 370 pages. Available in PDF, EPUB and Kindle. Book excerpt: Generalized hypermobility has been known since ancient times, and a clinical description of Ehlers-Danlos syndrome (EDS) is said to have first been recorded by Hippocrates in 400 BC. Hypermobility syndromes occur frequently, but the wide spectrum of possible symptoms, coupled with a relative lack of awareness and recognition, are the reason that they are frequently not recognized, or remain undiagnosed. This book is an international, multidisciplinary guide to hypermobility syndromes, and EDS in particular. It aims to create better awareness of hypermobility syndromes among health professionals, including medical specialists, and to be a guide to the management of such syndromes for patients and practitioners. It is intended for use in daily clinical practice rather than as a reference book for research or the latest developments, and has been written to be understandable for any healthcare worker or educated patient without compromise to the scientific content. The book is organized as follows: chapters on classifications and genetics are followed by chapters on individual types, organ (system) manifestations and complications, and finally ethics and therapeutic strategies, with an appendix on surgery and the precautions which should attend it. A special effort has been made to take account of the perspective of the patient; two of the editors have EDS. The book will be of interest to patients with hypermobility syndromes and their families, as well as to all those healthcare practitioners who may encounter such syndromes in the course of their work.

Hypermobility Without Tears

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Author :
Publisher : Independently Published
ISBN 13 : 9781096534983
Total Pages : 144 pages
Book Rating : 4.5/5 (349 download)

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Book Synopsis Hypermobility Without Tears by : Jeannie Di Bon

Download or read book Hypermobility Without Tears written by Jeannie Di Bon and published by Independently Published. This book was released on 2019-05-09 with total page 144 pages. Available in PDF, EPUB and Kindle. Book excerpt: Hypermobility Without Tears is a step-by-step guide to help people with hypermobility and Ehler-Danlos Syndrome (EDS) learn how to move pain-free and effortlessly. A movement therapist and hypermobility specialist with over a decade of education, research, client practice and Pilates teaching, Jeannie is an expert in the field of movement. Her own experience of hypermobile EDS, leaves her uniquely qualified to guide people with hypermobility and EDS back to movement and a 'no pain, no strain' lifestyle. Having suffered through years of misdiagnosis and pain, Jeannie truly understands the 'hypermobile body' and her book offers empathetic guidance on how to listen to the body and learn to move without pain. Hypermobility Without Tears is arranged into six sections based on Jeannie's key principles of pain-free movement for the hypermobile body: breath, relaxation, proprioception, stability, balance and posture.

Joint Hypermobility Handbook

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Author :
Publisher : Wiley-Blackwell
ISBN 13 : 9780982577158
Total Pages : 0 pages
Book Rating : 4.5/5 (771 download)

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Book Synopsis Joint Hypermobility Handbook by : Brad T. Tinkle

Download or read book Joint Hypermobility Handbook written by Brad T. Tinkle and published by Wiley-Blackwell. This book was released on 2010 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: As a followup to his previous best-selling book, "Issues and Management of Joint Hypermobility: A Guide for the Ehlers-Danlos Syndrome Hypermobility Type and the Hypermobility Syndrome," Dr. Tinkle has created this handbook with several contributors to expand insights into the understanding and management of Ehlers-Danlos Syndrome Hypermobility Type and the Hypermobility Syndrome. Dr. Tinkle has received many accolades for his ability to take a complex condition and make it understandable in everyday language: "...provides a wealth of information about the natural history, and physical and medical management... It should be of great value to patients." - The American Journal of Medical Genetics Reader comments... "...a useful tool in helping me obtain the type of care I need to manage my disorder..." "This book is simple but not oversimplified. It is an excellent basic resource, giving a clear, concise, and useful overview for those (like myself) who live with hypermobility." "Super book for EDS! Finally a book that everyone can understand." "...thoroughly explores the problems associated with EDS-HM. It is a relief to realize that it is not just me..." "...a tremendous service for the health care community and the families and friends of those diagnosed or not yet formally diagnosed folks with EDS-HM... joy and clarity in reading the very 'easy to read' text chapters detailing out the impact of EDS-HM..." In addition to the weatlth of positive reviews, Dr. Tinkle's previous book on the same subject was a best seller in several categories: - Genetics - Medical Genetics - Orthopedics - Family and General Practice Brad T. Tinkle, M.D., Ph.D., is a clinical and clinical molecular geneticist at Cincinnati Children's Hospital Medical Center (CCHMC). He specializes in caring for individuals with heritable connective tissue disorders such as Ehlers-Danlos syndromes, Marfan syndrome, osteogenesis imperfecta, and achondroplasia among the many.

Living with Ehlers-Danlos Syndrome

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Author :
Publisher :
ISBN 13 : 9789173495363
Total Pages : 69 pages
Book Rating : 4.4/5 (953 download)

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Book Synopsis Living with Ehlers-Danlos Syndrome by : Britta Berglund

Download or read book Living with Ehlers-Danlos Syndrome written by Britta Berglund and published by . This book was released on 2003 with total page 69 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Living Life to the Fullest with Ehlers-Danlos Syndrome

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Author :
Publisher :
ISBN 13 : 9781478758884
Total Pages : 400 pages
Book Rating : 4.7/5 (588 download)

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Book Synopsis Living Life to the Fullest with Ehlers-Danlos Syndrome by : Pt Kevin Muldowney

Download or read book Living Life to the Fullest with Ehlers-Danlos Syndrome written by Pt Kevin Muldowney and published by . This book was released on 2015-07-17 with total page 400 pages. Available in PDF, EPUB and Kindle. Book excerpt: "This book was written to teach people with Ehlers-Danlos Syndrome (EDS) how to systematically progress through an exercise program to allow their muscles to support many joint subluxations commonly associated with this genetic disorder. This will allow people living wih EDS to have less pain throughout their body."--Back cover.

Zebras of Hope

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Author :
Publisher : CreateSpace
ISBN 13 : 9781499372731
Total Pages : 50 pages
Book Rating : 4.3/5 (727 download)

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Book Synopsis Zebras of Hope by : Ellen Kelleher

Download or read book Zebras of Hope written by Ellen Kelleher and published by CreateSpace. This book was released on 2014-05-04 with total page 50 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book was written for those diagnosed with Ehlers-Danlos Syndrome. It can be difficult to navigate the complexities of this condition, and I hope this book will help to prepare you to take on the challenge of living life after the diagnosis. We are born with EDS, yet finally receiving a diagnosis is devastating to many of us. This book includes some personal stories, so that you will be able to see how others have dealt with the diagnosis and learned to live their lives as they have faced the challenge of EDS and overcame the obstacle of self-pity, to move forward into a new life. Faith is the backbone of this book and I hope that through faith you will also learn to cope with EDS.

Living Healthy with Ehlers Danlos Syndrome

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Author :
Publisher : Independently Published
ISBN 13 :
Total Pages : 0 pages
Book Rating : 4.3/5 (69 download)

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Book Synopsis Living Healthy with Ehlers Danlos Syndrome by : Dr Richard Taylor

Download or read book Living Healthy with Ehlers Danlos Syndrome written by Dr Richard Taylor and published by Independently Published. This book was released on 2022-10-28 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: LIVING HEALTHY WITH EHLERS DANLOS SYNDROME Encompasses everything including acknowledging clinical signs and acquiring early assessment to living with the circumstance on a regular schedule, this complete guide to living with and managing Ehlers-Danlos Syndrome has been reviewed and updated comprehensively in this widely available manuscript. Dr Richard and some of his colleagues, who have been diagnosing patients with this disorder, looks at how it affects individuals and discusses types, causes, management, treatment, physical and psychological elements, and how it broadly impacts our ways of life. This publication is a necessity for everybody who suffers, or individuals wanting to know more about the condition, Ehlers-Danlos Syndrome, and is willing to self educate himself/ herself about everything required to have a full life with this difficult illness. It will also be of interest to their family and friends, and professionals dealing with the type EDS.

Hypermobility, Fibromyalgia and Chronic Pain

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Author :
Publisher : Elsevier Health Sciences
ISBN 13 : 070204993X
Total Pages : 333 pages
Book Rating : 4.7/5 (2 download)

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Book Synopsis Hypermobility, Fibromyalgia and Chronic Pain by : Alan J Hakim

Download or read book Hypermobility, Fibromyalgia and Chronic Pain written by Alan J Hakim and published by Elsevier Health Sciences. This book was released on 2010-09-15 with total page 333 pages. Available in PDF, EPUB and Kindle. Book excerpt: This groundbreaking new text explains and documents the scientific basis of chronic pain in Joint Hypermobility Syndrome (JHS) and other heritable disorders of connective tissue from the physiological, epidemiological, genetic and clinical viewpoints. It asks the reader to consider the possibility of JHS, identify it clinically, understand its co-morbidities, including interdependencies with Fibromyalgia and Chronic Fatigue Syndrome, while managing the condition appropriately. Hypermobility, Fibromyalgia and Chronic Pain takes a multi-specialty and multidisciplinary approach to understanding JHS and its management, drawing together expertise from a broad group of internationally-recognized authors. The book is split into two sections. Section 1 deals with the clinical manifestations of JHS and Fibromyalgia, their epidemiology and pathophysiology. Section 2 covers clinical management. Here the reader will find chapters covering pharmacotherapeutics, psychotherapy and physical therapies that address the needs of patients from childhood to adulthood. It is hoped that Hypermobility, Fibromyalgia and Chronic Pain will advance knowledge of therapies and provoke further research while stimulating interest and encouraging debate. - Comprehensively relates practical therapy to the nature of the underlying pathology - Covers in one single text both the scientific and practical management aspect of Joint Hypermobility Syndrome and its allied pathologies - Contributions from over 30 leading international experts - Multidisciplinary approach will support all health professionals working in this field

Too Flexible To Feel Good

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Publisher : Victory Belt Publishing
ISBN 13 : 1628602430
Total Pages : 530 pages
Book Rating : 4.6/5 (286 download)

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Book Synopsis Too Flexible To Feel Good by : Celest Pereira

Download or read book Too Flexible To Feel Good written by Celest Pereira and published by Victory Belt Publishing. This book was released on 2021-10-12 with total page 530 pages. Available in PDF, EPUB and Kindle. Book excerpt: Are you overly flexible or double-jointed? Perhaps you are the clumsy and tired person in your group of friends, often nursing an injury of some sort. If you are nodding in agreement with raised eyebrows and a knowing smirk on your face, then there is a chance you are hypermobile. Hypermobility affects a whopping 10 to 25 percent of the population (meaning it’s more common than being left-handed, standing over six feet tall, or having a third nipple), and it can cause symptoms ranging from minor discomfort to debilitating pain. Hypermobile people’s bendiness and tendency toward anxiety often lead them to yoga, where they find that they are at last praised for their physical ability and given tools to manage their hypersensitivity. However, the way yoga is taught frequently leaves this population susceptible to severe injuries, and they end up being told by medical professionals to avoid yoga. In this epic new book, fitness experts Adell Bridges and Celest Pereira redefine how to manage hypermobility, providing a practical roadmap that will enable you to harness your bendiness and feel fantastic. They reinforce the importance of stability, correct posture, and a healthy lifestyle, showing how, if managed properly, hypermobility is not debilitating but a superpower that you can use to live an extraordinary life. Too Flexible to Feel Good teaches you how to adapt your everyday habits such as your biomechanics and your diet to support and nourish your flexible body. This book also features: • Practical tips on how to hold your body for optimal results during training • Tools to help build awareness of your joint position in everyday life • Strategies for busting anxiety • Exercises that can improve your biomechanics • Diet and sleep considerations Too Flexible to Feel Good is also an invaluable resource for yoga teachers, fitness instructors, and medical professionals, helping them develop a deeper understanding of how best to help this population.

The Mystery of Ehlers-Danlos Syndrome

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Author :
Publisher : Independently Published
ISBN 13 :
Total Pages : 0 pages
Book Rating : 4.8/5 (655 download)

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Book Synopsis The Mystery of Ehlers-Danlos Syndrome by : Minnie H Lewis

Download or read book The Mystery of Ehlers-Danlos Syndrome written by Minnie H Lewis and published by Independently Published. This book was released on 2023-10-26 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Mystery Of Ehlers-Danlos Syndrome: A Comprehensive Guide for Patients, Caregivers, and Healthcare Professionals Ehlers-Danlos syndrome (EDS) is a collection of genetic connective tissue illnesses that predominantly affect your skin, joints, and blood vessel walls. People with EDS may experience a wide range of symptoms, including joint hypermobility, skin fragility, chronic pain, and fatigue. This comprehensive guide provides everything you need to know about EDS, from understanding the causes and diagnosis to managing symptoms and improving quality of life. The book covers: The different types of EDS and their clinical manifestations The latest research on EDS and its treatment Practical strategies for managing EDS on a day-to-day basis The emotional and psychological impact of living with EDS Resources and support networks for patients, families, and healthcare professionals Whether you are newly diagnosed with EDS or looking for ways to better manage your condition, this book is an essential resource. Learn how to navigate the healthcare system, advocate for your needs, and live a fulfilling life with EDS. Who this book is for: This book is intended for people living with hEDS and vEDS, their caregivers, and healthcare professionals. It is written in a clear and concise style, making it accessible to readers of all backgrounds. Benefits of this book: If you are living with EDS, this book will provide you with the knowledge and tools you need to manage your condition effectively. You will learn about the latest research on EDS, as well as practical strategies for coping with symptoms and improving your quality of life. If you are a caregiver of someone with EDS, this book will help you to better understand the condition and how to support your loved one. You will also learn about resources and support networks that are available to help you and your family. If you are a healthcare professional, this book will provide you with a comprehensive overview of EDS, its clinical manifestations, and the latest treatment options. You will also learn about ways to improve the lives of your patients with EDS. Grab your copy today and start living your best life with EDS!

Physical and Psychosocial Aspects of Living with Ehlers-Danlos Syndrome

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Author :
Publisher :
ISBN 13 : 9789163112775
Total Pages : 23 pages
Book Rating : 4.1/5 (127 download)

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Book Synopsis Physical and Psychosocial Aspects of Living with Ehlers-Danlos Syndrome by : Britta Berglund

Download or read book Physical and Psychosocial Aspects of Living with Ehlers-Danlos Syndrome written by Britta Berglund and published by . This book was released on 2001 with total page 23 pages. Available in PDF, EPUB and Kindle. Book excerpt: